The Sclero-Sun Podcast

The Sclero-Sun Podcast S2E11 Dr. Brett Thombs

Meet Dr. Brett Thombs, Director of SPIN The Scleroderma Patient-centered Intervention Network. He shares what SPIN does to help the scleroderma community all over the world.

Video version on youtube.com/sclerodermasocal

http://www.scleroderma.org/socal

The Sclero-Sun Podcast S2E10 Dorinda A. Smith

Meet Dorinda A. Smith, MS FNP and learn about her journey with scleroderma and functional medicine. She will be speeking at our So Cal Scleroderma Patient Education Day  on September 18th.

http://www.scleroderma.org/socal

The Sclero-Sun Podcast S2E9 - Lynn Steblecki

On this episode of The Sclero Sun Podcast we talk to author, motivational speaker and scleroderma patient Lynn Steblecki

Emmanuel Munda -  Host

Tina Burger - Cohost

Lynn Steblecki- Guest

For more information go to www.scleroderma.org/socal

copyright 2021 Scleroderma Foundation Southern California Chapter

The Sclero-Sun Podcast S2E8 - Andrew Botieri

On this episode of The Sclero Sun Podcast we talk to author, motivational speaker and scleroderma survivor Andrew Botieri

Emmanuel Munda -  Host

Tina Burger - Cohost

Andrew Botieri - Guest

For more information go to www.scleroderma.org/socal

copyright 2021 Scleroderma Foundation Southern California Chapter

On this episode of The Sclero Sun Podcast we talk to educator, advocate, researcher and patient Ed Harris from the Scleroderma Education Project.

Emmanuel Munda -  Host

Tina Burger - Cohost

Ed Harris - Guest

For more information go to www.scleroderma.org/socal

copyright 2021 Scleroderma Foundation Southern California Chapter

On this episode of The Sclero-Sun Podcast we talk with musician and rapper Airick G. about growing up the son of a scleroderma patient and how his mother influences his music and his life.

Emmanuel Munda -  Host

Guest - Airick G

For more information go to www.scleroderma.org/socal

copyright 2021 Scleroderma Foundation Southern California Chapter

The Sclero Sun Podcast S2E5 The UCLA Scleroderma Program

On this episode we talk to team at the UCLA Scleroderma Program. Dr. Elizabeth Volkmann, Dr. Heather Bukiri and research coordinator Talaya Martinez. They talk about what it takes to run a world class scleroderma treatment and research center in Los Angeles and the challenges they faced during COVID.

Emmanuel Munda -  Host

Tina Burger - Cohost 

Dr. Elizabeth Volkmann, Dr. Heather Bukiri and Talaya Martinez. - Guests  

For more information go to www.scleroderma.org/socal   

copyright 2021 Scleroderma Foundation Southern California Chapter

On this episode Dr. Susan Nyanzi returns to talk about her upcoming scleroderma foundation combined support group meeting talk.  Emmanuel Munda -  Host Tina Burger - Cohost Dr. Susan Nyanzi- Guest  For more information go to www.scleroderma.org/socal   copyright 2021 Scleroderma Foundation Southern California Chapter

On this episode we meet Dr. Luis Del Castillo a scleroderma patient and dentist who will share his insights on caring for scleroderma patients teeth. He also shares his life experiences and needing a double lung transplant.  

Emmanuel Munda -  Host 

Tina Burger - Cohost 

Dr. Luis Del Castillo - Guest  

For more information go to www.scleroderma.org/socal   

copyright 2021 Scleroderma Foundation Southern California Chapter

Welcome back to The Sclero-Sun Podcast. We have several announcements come and listen.  Copyright 2021 The Scleroderma Foundation Southern California Chapter

The Sclero Sun Podcast S1E9 The Foundation Celebration Special

Find out what's coming up at the 2020 Foundation Celebration.

The Sclero Sun Podcast S1E8 Meet the National Volunteer Chapter of the Year

On this episode we chat with the 2020 National Volunteer Chapter of the Year Sheryl Bishop.

The Sclero Sun Podcast S1E7 And the Winner is...

On this episode of the Sclero-Sun Podcast we announce the winners of the Bark for a Cure Calendar Pet Photo Contest.

The Sclero-Sun Podcast S1E6 Meet Dr. Susan Nyanzi

Meet speaker, advocate and patient Dr. Susan Nyanzi.

Support group leaders Susan Okuno and Kelly Clemeshaw join the podcast to discuss how and why they became support group leaders.

The Sclero-Sun Podcast S1E4 Fall Events Updates

Scleroderma Foundation Southern California staff members Emmanuel and Manon gives the updates on upcoming events at the Foundation as well as the current front runners for the BARK for a CURE Pet Costume contest. 

The Sclero-Sun Podcast S1E3 Chatting With The Fursts
Dr. Daniel Furst and Elaine Furst are scleroderma experts who continue work with Scleroderma Foundation in education, as well as volunteering at events. In this episode we dive into 10 pressing questions regarding scleroderma and what you can and cannot do because of COVID. We also talk about how it relates to mental health. 

The Sclero-Sun Podcast S1E2 The Young Adults
Meet a couple of our young adults heading the Young Adult Support Group of the Scleroderma Foundation Southern California Chapter.

The Sclero-Sun Podcast S1E1 Meet The Staff

In this episode meet the staff of the Scleroderma Foundation Southern California Chapter. 

Copyright 2020 Scleroderma Foundation Southern California Chapter