ABCs of Disability Planning
By ABCs of Disability Planning
All views and opinions represented are my own. I am not writing on behalf of Capital Motion or Visible National Trust. Neither Capital Motion nor Visible National Trust endorse or in any other way support this content and podcast. This podcast is wholly owned and operated by me, Eric Jorgensen.
ABCs of Disability PlanningSep 26, 2022
Breakthrough Therapies for Mental Health in the Workplace
What Is KAT?
Ketamine-Assisted Therapy (KAT) refers to the use of ketamine in conjunction with facilitated therapy. KAT is a proven treatment for many mental health disorders, including major depression, PTSD, generalized anxiety, and substance abuse.
Ketamine itself is a dissociative medicine that quiets sensory input and can give people a temporary change in their mental perspective. Its original use was as a surgical anesthetic, for which it received FDA approval in 1970. Since then it’s been used worldwide as an anesthetic, has an outstanding safety record, and is on the World Health Organization’s list of essential medicines.
Enthea was founded by a team of industry experts who share a vision of access to safe and affordable psychedelic healthcare. Together, they are focused on effecting change to offer people the treatment they deserve. Connect to learn more:
Website: https://www.enthea.com/
LinkedIn: https://www.linkedin.com/company/entheahealth/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
Developing novel tools for Autism screening
Dr. Geraldine Dawson is the William Cleland Distinguished Professor of Psychiatry and Behavioral Sciences at Duke University, where she is a Professor of Pediatrics Psychology & Neuroscience.
Dr. Dawson also is the Founding Director of the Duke Center for Autism and Brain Development, an NIH Autism Center of Excellence, which is an interdisciplinary research program and clinic, aimed to improve the lives of those diagnosed with autism through research, education, clinical services, and policy.
Dr. Dawson received a Ph.D. in Developmental and Child Clinical Psychology from the University of Washington and completed a clinical internship at the UCLA Neuropsychiatric Institute.
Dr. Dawson's work focuses on improving methods for early detection and intervention for autism, understanding brain function in autism, and validation of autism EEG biomarkers. She co-developed the Early Start Denver Model, an empirically validated early autism intervention that is used worldwide. She collaborates with colleagues in the departments of computer science and engineering, pediatrics, and biostatistics to develop novel digital health approaches to autism screening and outcome monitoring.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about Eric Jorgensen you can find him here:
Web: https://visiblenationaltrust.com/
Waypoints: https://waypoints.substack.com/
LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/
Global Genes - Allies in Rare Diseases
You're not alone! When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare diseases. Global Genes is committed to providing information, resources, and connections to all communities affected by rare diseases.
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills, and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers.
Rare Drug Development Symposium (4/29/2024 - 5/1/2024) - https://globalgenes.org/event/rare-disease-drug-development/
Rarely Told Stories - https://globalgenes.org/resources/#/types/story
Rarecast (Podcast) - https://www.levinemediagroup.com/rarecast/
Disorder: Rare Disease Film Festival - https://www.rarediseasefilmfestival.com/
EveryLife Foundation for Rare Diseases - https://everylifefoundation.org/
"The Mighty" (movie) - https://www.imdb.com/title/tt0119670/
Connect to learn more:
Web: https://globalgenes.org/ Phone: (+1) 949-248-RARE (7273)
FB: @GlobalGenes
X: @GlobalGenes
IG: @globalgenes
Episode Transcript: https://docs.google.com/document/d/1tsUg4k-B1GpEfFfk9JCdQtTE9MKTkYCD/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Fighting for disability rights and disability justice in 14 states - New Disabled South
New Disabled South, and their advocacy arm, New Disabled South Rising, are fighting for disability rights and justice in 14 states. Those states are Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, Oklahoma, South Carolina, Tennessee, Texas, Virginia, and West Virginia.
The 10 Principles of Disability Justice
Intersectionality: Many disabled people experience other forms of oppression in addition to ableism. The experience of disability is shaped by race, gender, class, and more.
Leadership of the most impacted: The most oppressed lead our movement because they know the most about how systems of oppression work.
Anti-capitalist politic: We don’t conform to capitalist systems that profit from us. Human worth does not rely on how much a person can produce.
Commitment to cross-movement organizing: We work with other movements to shift views on ableism and disability.
Recognizing wholeness: We have value beyond capitalist standards of work. Disabled people are whole people.
Sustainability: We work at a pace that promotes ongoing justice and liberation and values the teachings of our lives and bodies.
Commitment to cross-disability solidarity: We join together to accomplish more. Isolation harms us all.
Interdependence: We help each other achieve liberation for all living systems and the land. Government solutions control us more.
Collective access: We share the responsibility to create community with each other by making access a way of life for all.
Collective liberation: No one is left behind; we need each other to achieve freedom.
Connect to learn more:
Website: New Disabled South Rising
IG: @newdisabledsouthrising
X: @DisSouthRising FB: @NewDisabledSouth Email: info@newdisabledsouth.org
Episode Transcript: https://docs.google.com/document/d/13NvbTprASqRgMqZIL0nluo9kWO9iUA3O/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
National Council on Severe Autism
Jill Escher is the President of the National Council on Severe Autism. She is an autism research philanthropist (Escher Fund for Autism), a real estate investor who provides low-income housing for adults with developmental disabilities, a former lawyer, and a mother of two children with nonverbal autism. As an advocate, she is past president of the board for the Autism Society San Francisco Bay Area and, as a promoter of innovative research has served on the governing council of the Environmental Mutagenesis and Genomics Society. The National Council on Severe Autism is pursuing recognition, policy, and solutions for the surging population of individuals, families, and caregivers affected by severe forms of autism and related disorders.
Autism Confidential Podcast: https://www.autismconfidential.org/
"Chasing the Intact Mind" by Amy Lutz: https://amzn.to/48oZkup
"The Autism Surge: Lies, Conspiracies, and My Own Kids" by Jill Escher: https://www.thefp.com/p/the-autism-surge-lies-conspiracies
Episode Transcript: https://docs.google.com/document/d/1d9XyYakluHBMAUqFbNUCVH4gPgDql5Ij/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Website: https://www.ncsautism.org/
FB: @NationalCouncilonSevereAutism
X: @NCSAutismOrg
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Hospice Navigation: The Compassionate Guide to End-of-Life Care
Hospice Navigation: The Compassionate Guide to End-of-Life Care
Death is scary. No one wants to talk about it, and most of us aren't ready when it comes. It feels like the medical profession has made it their mission to delay the end of life, no matter the cost of pain and suffering. You have the right to go out on your terms, by choosing not to see further aggressive treatments. Hospice is an underutilized resource paid for by insurance and available in all 50 states and DC.
When dealing with a serious illness, having access to the right resources and guidance can make all the difference. Hospice Navigation Services is here to offer just that – a compassionate hand to hold and a reliable compass to help navigate this challenging journey.
Who can benefit from a Hospice Navigation Services session? If you're:
- dealing with a serious illness
- a caregiver who needs information about hospice care for someone you love
- needing education about end-of-life care
- a patient or caregiver with questions about your current hospice care
- needing to discuss advance care planning
Here's what Hospice Navigation Services has to offer:
- private, personalized guidance
- expert Hospice Navigators
- easy online booking of your Hospice Navigation Session on The Heart of Hospice website
- a choice of a FREE 30-minute Navigation Session or a 60-minute Navigation Session
- a safe space for questions about end-of-life care
- comprehensive information about how to get the best out of your hospice care
"When Breath Becomes Air": https://amzn.to/48piKzb
Helen's interview on the Happy Healthy Caregiver Podcast (Ep. 99): https://happyhealthycaregiver.com/podcast/helen-bauer/
Connect to learn more:
Website: https://www.theheartofhospice.com/services
FB: @TheHeartofHospice
IG: @TheHeartofHospice
X: @TheHeartHospice
Episode Transcript: https://drive.google.com/file/d/1freQMIOXYV90KiI8u16JmgDqSmfU3eWN/view?usp=sharing
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Meet Effie Parks, Host of the "Once Upon A Gene - Rare Disease Podcast"
Once Upon A Gene is a Podcast for families living with rare diseases. There are personal stories and resources shared to help connect us with our community. Although I only linked Apple podcast below, Once Upon A Gene is available on any player of your choice and has a YouTube channel.
Effie Parks, originally from beautiful Montana, has become a guiding light in the rare disease community following her son Ford's diagnosis with CTNNB1 syndrome. Settling in Washington, she transformed her family's journey into a crusade for advocacy, support, and empowerment for families navigating similar challenges.
As the host of the "Once Upon a Gene" podcast, Effie has been recognized for several awards including WEGO Health and Podcast Magazine for her impactful storytelling and resource-sharing in the realm of rare genetic disorders.
Effie extends her advocacy through speaking engagements at medical and patient advocacy conferences, sharing her experiences and insights from her work to bridge the gap between all rare disease stakeholders.
Her skill in community engagement, developed through her advocacy, empowers her efforts in building a supportive network and raising awareness.
With a mission to leave the world better than she found it, Effie is dedicated to fostering a more informed and empathetic environment for those impacted by rare diseases.
Her work embodies resilience and compassion, inspiring and uniting the rare disease community. Effie’s journey is not just about sharing stories, it's about driving change and creating a lasting impact in the world of rare genetic conditions.
Two Disabled Dudes: https://twodisableddudes.com/
"Chasing My Cure: A Doctor's Race to Turn Hope Into Action; A Memoir" - Dr. David Fajgenbaum: https://amzn.to/3OpBzLg
"The Ataxian" documentary (Amazon Prime): https://amzn.to/4bg53oS
Connect to Learn More:
Website: https://effieparks.com/
Email: hello@onceuponagene.com
FB: @OnceUponAGene
IG: @onceuponagene.podcast
Apple Podcast: https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347
Episode Transcript: https://docs.google.com/document/d/1Q6gNJc9HGU7HRMdEA8I2R3G-fHJI8qdT/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
The Lucas Project: Recognition & Respite for Special Needs Families
The Lucas Project provides recognition, respite, and resources to family caregivers of those with special needs.
16.3 million People in the U.S. are caregivers to a child with special needs.
That number is staggering and also a wake-up call. Most of us know of someone who is caring for a child with special needs and if you don’t personally know of someone, you can be assured that they are in your neighborhood; probably hiding behind closed doors isolated and exhausted.
Caregivers often project the perception that “everything is okay,” when in fact, it probably is not okay and they would so appreciate having someone reach out and lend a hand. It is our job as a society to surround these caregivers and support them through the difficult times, because a child is only as healthy as the caregiver, and society is only as healthy as the families within it. At The Lucas Project, we care for the caregivers.
Get Jess Ronne's books from Amazon: https://amzn.to/4b6jQCF
Lisa Whittle's books from Amazon: https://amzn.to/3S8EbhQ
Atomic Habits: https://amzn.to/48OhrdY
Connect to learn more:
Website: https://thelucasproject.org/
Email: info@thelucasproject.org
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Embracing Another Normal: Resilience Stories and Strategies for Raising Children with Disabilities
Embracing Another Normal integrates the deep expertise of Kris Burbank, thought leader and coach on parenting children with disabilities, and the wisdom and insights of Dr. Linda Hoopes, award-winning author and researcher on personal resilience. It articulates six fundamental challenges of raising children with disabilities, shares stories of how parents and families have navigated these challenges, and provides a framework for connecting successful strategies to the key building blocks of resilience.
Connect to learn more:
Link to "Embracing Another Normal" (Amazon): https://amzn.to/3Okf6PP
Kris Burbank's Substack "Another Normal": https://anothernormal.substack.com?utm_source=navbar&utm_medium=web&r=f674k
Linda Hoopes Substack "Prosilience": https://prosilience.substack.com?utm_source=navbar&utm_medium=web&r=f674k
Kris' Website: https://www.krisburbank.com/
Prosilience Website: https://prosilience.com/
"Welcome to Holland": https://www.emilyperlkingsley.com/welcome-to-holland
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Introducing the NR2F1 Foundation
NR2F1 Foundation's mission is to support those impacted by an NR2F1 mutation, aka Bosch-Boonstra-Schaaf optic atrophy syndrome through education, advocacy, and research.
BBSOAS, also known as Bosch-Boonstra-Schaaf Optic Atrophy Syndrome, is a rare neurological disorder caused by a disruption in the NR2F1 gene. BBSOAS is characterized by a wide array of clinical features, but the most common are vision impairment caused by optic atrophy, developmental delay, and intellectual disability. There are currently a few hundred known cases of BBSOAS worldwide with diagnoses rapidly increasing every month.
The phenotypic spectrum of Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) is broad and variable, but the most well-established characteristics include developmental delay/intellectual disability and visual impairment (including optic nerve atrophy, optic nerve hypoplasia, and cortical visual impairment). Other common features include hypotonia, oromotor dysfunction, and mild and inconsistent dysmorphic facial features. Morphological changes in brain structures including thinning of the corpus callosum, and autism spectrum disorder are also considered common. Individuals are at an elevated risk of seizures, including infantile spasms.
Genotype-phenotype correlations have been proposed, with individuals with mutations in the DBD typically showing a more severe phenotype, and individuals with whole-gene deletions and truncating mutations tending to have moderate to mild symptoms. Individuals with point mutations outside of the DBD most often manifest the mildest phenotype.
BBSOAS is considered a static encephalopathy and has not been shown to be progressive/degenerative. There is no progression of the eye phenotype known, including no known progression of optic atrophy.
Connect to learn more:
Email: info@nr2f1.org
Website: https://nr2f1.org/
FB: @NR2F1 Foundation
IG: @nr2f1foundation
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
JelikaLite - Precision Autism Through Light
JelikaLite - Precision Autism Through Light
ASD is a lifelong developmental disorder. The rates continue to rise, the cause remains unknown, and current solutions are inadequate. Autistic individuals frequently have difficulties with communication, social interactions, repetitive behavior, and focus, impacting their ability to integrate into society.
JelikaLite believes that all children can lead fulfilling and productive lives. That is why they are developing Cognilum, an innovative solution to enhance the child's communication skills while reducing a child's troublesome autism symptoms, enabling them to improve their lives.
Cognilum is a therapeutic wearable device that provides non-invasive brain stimulation with near-infrared light, sensors, and a machine-learning personalization platform.
Connect to learn more:
Website: https://jelikalite.com/
Sign up for early access: https://jelikalite-23877686.hubspotpagebuilder.com/jelikalite-early-access-campaign
Email: info@jelikalite.com
Floreo: https://floreovr.com/
GoMo Health: https://gomohealth.com/
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Financial Services for the World’s Largest Minority - Visible National Trust
Financial Services for the World’s Largest Minority - Visible National Trust.
Visible National Trust is the first national, universally accessible disability financial planning and wealth management solution for special needs families.
For families, Visible National Trust is a leap forward in disability financial services, providing intergenerational stewardship of funds while safeguarding access to important benefits, and including the services of global and national financial institutions trusted by millions of people.
BlackRock provides ETF model portfolios to the Trust and Huntington National Bank is the Trust’s custodian and sub-accountant. Visible’s complete solution includes all trust services, investment, custody, accounting and tax services, payments, and continuous access to account information. Visible’s asset-based fees are lower than prevailing fees for alternative services and include many benefits not available elsewhere.
For financial advisors, Visible National Trust is a complete packaged solution for disability financial planning integral to implementing comprehensive wealth management and retirement plans for families that include a loved one with a disability. Visible seamlessly connects families and financial advisors.
FMDT Pooled Trust interview: https://spotifyanchor-web.app.link/e/sIlTDdkjBFb
Intro to Special Needs Trusts: https://spotifyanchor-web.app.link/e/7OYmDE3jBFb
Estate Planning, Beyond the Basics: https://spotifyanchor-web.app.link/e/zTvINqikBFb
Connect to learn more:
Website: https://visiblenationaltrust.com/ Email: inquire@visiblenationaltrust.com
Phone: 800-760-4234
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Supporting Independence and Improving Quality of Life - MapHabit
Supporting Independence and Improving Quality of Life - MapHabit.
Habit-building tools are important for everyone to keep routines on track.
MapHabit's unique, science-based system helps make each day safer, more productive, and less stressful for individuals and their caregivers. Their approach leverages the power of combining assistive technology with behavior learning.
Their innovative system organizes habits, routines, and tasks into visual maps. They are interactive and engaging step-by-step how-to guides that help members complete a daily activity independently, or with help from a support partner or a caregiver.
These visual maps make it easier to get tasks done each day.
Waypoints Technology article: https://waypoints.substack.com/p/technology-what-can-it-do-for-you Connect to learn more:
Website: https://www.maphabit.com/
Phone: 1-855-515-4332
FB: @MapHabit
IG: @maphabitatl
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Discover your potential as a family through live-in child care
Discover your potential as a family through live-in child care. Apex Social Group specializes in live-in care for families with special needs. Their caregivers have backgrounds in healthcare, therapy, and education.
Apex Care Professionals are dedicated to child development and providing specialized support to families with special needs. With backgrounds in therapeutic, health, or educational fields, their candidates are dedicated to understanding and supporting the developmental goals of each child they care for.
They specialize in providing exceptional care to families with special needs, including autism, developmental delays, ADHD, cerebral palsy, and more. They source our extraordinary candidates from prestigious European and American universities, vocational training schools, hospitals, and globally recognized organizations. Learn more:
Website: https://apex-social.com/
Email: info@apex-social.com
FB: @ApexSocialGroup
Meet their candidates: https://apex-social.com/meet-our-candidates/
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
It takes a (Meerkat) village to raise a child with special needs.
It takes a village to raise a child with special needs. Meerkat Village connects you with your child’s providers and supporters in one place. Parents of children with special needs bear the daily struggle of keeping all their child's caregivers on the same page.
It requires constant effort to ensure their child can make progress and thrive. Meerkat Village provides a forum for group collaboration and communication among the entire village of adults supporting the child. From therapists, teachers, and specialists to grandparents, neighbors, and friends, everyone is welcome in Meerkat Village.
They empower, connect, and create hope for parents and their children’s providers by providing a simple way to track progress and develop strategies.
"Superheroes on the Spectrum" (book)
Connect to learn more:
Website: https://meerkatvillage.com/
FB: @MeerkatVillage
IG: @meerkatvillage
Link to Transcript: https://docs.google.com/document/d/1XuW2kOFR-mI-G6oTvUqiQxn_-dGadkWB/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
When something feels off, Buoy it
When something feels off, Buoy it! Buoy helps people figure out health issues and find the right care.
Their A.I. asks questions and helps narrow down what is going on based on your answers. No more guessing and filling in the blanks. It's like talking to your friend who happens to be a doctor. Editorial Standards
They were founded based on the idea that searching for health information online shouldn't be scary and misleading. To combat this, their technology and all of their content are:
- Reviewed and edited by experts - doctors, clinicians, nurses, and therapists
- Created to be clear and actionable, not vague and alarmist
- And backed by clinical research
Learn more:
Website: https://www.buoyhealth.com/
Email: contact@buoyhealth.com
FB: @BuoyHealth
X: @buoyhealth
IG: @buoyhealth
Episode Transcript: https://docs.google.com/document/d/15tQLcHmm2uLZl2BvIHtqZRyU7RicKTCt/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Stanford Neurodiversity Project
Dr. Lawrence Fung is an Assistant Professor (University Medical Line) at the Major Laboratories and Clinical Translational Neurosciences Incubator in the Department of Psychiatry and Behavioral Sciences at Stanford University. He received his BS with honors from the University of California at Berkeley, MS in Engineering from Johns Hopkins University, PhD from Cornell University, and MD from George Washington University. Dr. Fung completed his general psychiatry residency, child & adolescent psychiatry fellowship, and postdoctoral research fellowship at Stanford University.
Dr. Fung is a researcher and clinician specializing in autism and the father of a neurodiverse teenager on the autism spectrum. He serves as the principal investigator of studies investigating the neurobiology of autism by state-of-the-art molecular neuroimaging and bioanalytical technologies.
He studies novel pharmacologic interventions, including pregnenolone. Dr. Fung is the director of the Stanford Neurodiversity Project, which strives to uncover the strengths of neurodiverse individuals and utilize their talents to increase innovation and productivity of society as a whole. Dr. Fung directs the Adult Neurodevelopment Clinic, which specializes in assessing and treating adults on the autism spectrum.
Neurodiversity at Work: https://med.stanford.edu/neurodiversity/NaW.html
Imitation Game (movie): https://www.imdb.com/title/tt2084970/ Connect to learn more
Stanford Neurodiversity Project: https://med.stanford.edu/neurodiversity.html
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Everyone has the ability to #BeImpactful
Everyone has the ability to #BeImpactful - Philip C. Clark. Be Impactful, create a plan that enables your child with special needs to live a great life.
ENABLE Special Needs Planning, LLC, believes that everyone has the ability to be impactful in the lives of others. This ability is what gives each of us a sense of purpose in life.
"80% of families do not have a comprehensive plan for their family, or their child with special needs". Phillip Clark founded ENABLE Special Needs Planning thanks to the positive impact of his younger sister, Sarah, who has Down syndrome.
Episode Transcript: https://docs.google.com/document/d/1c1lbsmgL09pZZL42GuUwUS21JwJgGgiC/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Learn more:
Website: https://enablesnp.com/
Online Community (private FB Group): https://enablesnp.com/fb-group-landing-page/
Email: info@ENABLEsnp.com
FB: @EnableSpecialNeedsPlanning
X: @ENABLEsnp
IG: @enablesnp
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Overconnected but Underserved!
The Connected Parent has a comprehensive database and easy-to-use filters to help you connect with the local & online businesses you need, reviewed by families like yours.
They are a comprehensive, one-stop hub of resources local to you and reviews for those hard-to-find services your family needs. With their easy-to-use filters, narrowing your search to find therapists, recreational activities, advocates, and other resources in your area has never been easier.
The best part? They're building out a community of reviews that gives you on-demand access to insights & recommendations that feel like they came straight from a personal friend.
Episode Transcript: https://docs.google.com/document/d/1T8g6BhMypV7wmrjDrLHxLNLHC-557nrI/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Website: https://www.theconnectedparent.net/
Email: support@theconnectedparent.net
Phone: 877-313-6349
IG: @theconnectedparentsite
FB: @TheConnectedParent
Accessible Adventures: https://accessibleadventures.net/index.html#/
"The Body Keeps the Score" - https://amzn.to/47ewwVo
"Together is Better", Simon Sinek - https://amzn.to/3QIFVgS Dan Palloto's TED Talk about Charity - https://www.ted.com/talks/dan_pallotta_the_way_we_think_about_charity_is_dead_wrong?language=en
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Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Improving Emotional Connections by Bridging Emotional Communication Across People and Screens
Improving Emotional Connections by Bridging Emotional Communication Across People and Screens
Valence analyzes tonal data to classify emotions. Vibes for Apple Watch is live. Vibes uses haptic feedback so you can literally feel the vibes of the room as a vibration on your wrist. Feel unique taps for each emotion with a disappearing visual label that only appears when your screen is pointed toward you. Recognizes (7) basic emotions - sad, angry, nervous, neutral, surprised, happy, and disgusted.
Valence recognizes the power of neurodiversity and seeks to empower people of all neurotypes to better interpret emotions without having to change their fundamental communication style. Download on the Apple App Store - https://apps.apple.com/us/app/vibes-for-watch/id1610209299
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Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
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Providing Patients and Caregivers a Voice
Providing Patients and Caregivers a Voice
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
- For patients and family caregivers —they provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —they partner with advocacy and support groups to increase donations.
- For market research firms —they handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —they provide the respondents and patient communities required to support business insight needs and all types of research studies.
Pam Cusick, Rare Patient Voice's Senior Vice President, is an experienced research professional with more than 30 years of expertise in study design, implementation, and analysis. Her background in public health communications and research, coupled with her passion for patient advocacy, dovetail with Rare Patient Voice’s mission and vision. She hopes to expand Rare Patient Voice’s panels to include all patients and caregivers who want to share their opinions and impact their disease category.
Pam earned a BA in Psychology from Sweet Briar College and an MA in Psychology from the New School for Social Research. Pam is past president of the Board of Directors and Scientific Advisory Council Lead for the Horses and Humans Research Foundation. As Senior Vice President, her focus is on the continued growth and success of RPV, with an eye on client services, business development, and oversight of outreach and panel management, marketing, and human resources.
Learn more:
Website: https://rarepatientvoice.com/
FB: @RarePatientVoice
Twitter: @rarepatientvoic
IG: rarepatientvoice
Email: ContactUs@RarePatientVoice.com
Link to Transcript: https://docs.google.com/document/d/1B8_llq6kLTdQp9c4AWMOaUKs6hnYfv20YFqNK7S_plg/edit?usp=sharing
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Find the experts you need, with Our Place you are never alone
Find the experts you need, with Our Place you are never alone!
As a member of Our Place, you can access the Our Places Map! Here you will find Medicaid providers, barbers, swim schools, and anything else you need. It's all based on your location so you'll find what you need in your community.
With the help of the Our Place team and members like you, Our Places will grow with more and more businesses that serve you and your loved ones.
Episode Transcript: https://docs.google.com/document/d/1ToEO2U8RiG68Vvy0EM87XvRvdcbdoyMl/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more: Website: https://www.joinourplace.com/
Email: sophie@joinourplace.com YouTube: https://www.youtube.com/@ourplace3743/videos
Aqua-Tots Swim School - https://www.aqua-tots.com/
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The Caregiver's Journey with Sue Ryan
Episode Transcript: https://docs.google.com/document/d/1BEe8i7gtN0tD4OZo6lzNcc5_omk3L_Ka/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Sue Ryan knows what it feels like to be standing at the edge of the abyss in our life – or to be down in the abyss – not knowing where to turn, what to do, or who to talk with.
She navigated the transition from being the adoring daughter of my hero, my Dad, to a journey with him as a caregiver through his diagnosis of a type of Dementia.
She's navigated the transition from being a consistent top performer in her company and achieving the highest recognition, to realizing it wasn’t where she wanted to be, having no idea where to turn, what to do, or who to talk with.
She navigated the journey of being single into her late forties in a career that had her traveling frequently and doing what she wanted when she wanted, to falling in love and marrying Jack – the love of her life – becoming part of his large family, embracing his desire to retire, move, and travel.
She navigated the transition from being the loving wife and partner with Jack, to our being told he was now an Alzheimer’s patient and I was now his caregiver – the path we’ve been journeying together for the past eleven years until his death in 2023.
She navigated the transition from living her life being who she thought others wanted her to be, to discovering who she's meant to be, recreating her life, and living with joy from the highest expression of who she is. She's become the master of transitions and is here to help you become the master of yours.
She doesn't want your transitions to be as difficult as hers were or take you as long to learn how to intentionally – and successfully – navigate them as it took her.
Learn more:
Caregiver's Journey Course: https://sueryan.solutions/the-caregivers-journey/
Sue's book, "Our Journey of Love: 5 Steps to Navigate Your Care Giving Journey": https://amzn.to/45dzNTq
Website: https://sueryan.solutions/
FB: https://www.facebook.com/suearmstrongryan/
Email: sue@sueryan.solutions
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Web: https://truenorthdisabilityplanning.com/
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Introducing "The Emotionally Naked Podcast"
AutismDadvocate.org is an online support forum for dads with children with autism and about the commonalities we all face as fathers.
Frequently, fathers follow the American tradition of rugged individualism and rarely have an honest and earnest discussion on the challenges of fatherhood. What does it mean to be an engaged father? What are the tensions and polarities we all face as fathers? And why do we so often soldier forward alone?
Paul's first interview - https://spotifyanchor-web.app.link/e/qmPDbb69eDb
Holly Robinson Peete's interview with Paul - https://www.autismdadvocate.org/what-do-dads-need-to-hear-from-momsofasdkids
Rodney & Holly Robinson Peete's interview with Paul - https://www.autismdadvocate.org/journey-of-a-father-with-rodneypeete Contact Paul
Website: https://www.autismdadvocate.org/ Podcast: https://podcasts.apple.com/us/podcast/the-autism-dadvocate-podcast/id1538437276 Instagram: #autismdadvocate
Facebook: @AutismDadvocate
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Web: https://truenorthdisabilityplanning.com/
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Navigating Life Transitions: Coaching vs. Therapy
Navigating Life Transitions: Coaching vs. Therapy
Discover the Differences and Find Your Path to Personal Growth and Success
Barbara Kay Coaching (BKC) provides custom coaching to individuals, teams, leaders and groups. As a business psychology and achievement expert Barbara is a personal trainer for business success.
As a behavioral scientist and productivity coach, Barbara speaks nationally on a wide range of achievement topics including Growth, Productivity, Leadership, Teams, Client Relationships, Behavioral Finance, Change, Women, Branding & Communication.
Business Psychology and Productivity Coach, author of many articles and two books, Barbara serves clients through coaching, consulting, and speaking on Growth, Productivity, Teams, Client Relationships, Communication, Change, and Leadership. She has been serving clients since 1998, with dual degrees and credentials in Clinical Psychology and Coaching. Professionally licensed, she completes ongoing development education and is a member of the American Psychological Association. Barbara Kay Coaching supports client diversity goals as a Woman Business Enterprise and Certified Diversified Supplier.
Get her books:
"The Top Performer's Guide to Change: Overcoming Fear to Turn Change into Opportunity"
"The $14 Trillion Woman: Your Essential Guide to Engaging the Female Client"
Connect with Barbara:
Website: Barbara Kay Coaching
Email: mailto:barbara@barbarakaycoaching.com
International Coaching Federation (ICF): https://coachingfederation.org/
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Blog - https://ejorgensenwordpresscom.wordpress.com
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Andrew Arboe - Autistic Self-Advocate and Speaker
Andrew is an autistic self-advocate with over five years of professional experience helping autistic individuals be empowered in their lives by sharing his experiences in public speaking and freelancing work with organizations. Andrew was the keynote speaker for Autism Connection's 32 Annual Autism Conference in Springfield, Massachusetts. Andrew is also on various boards like in AANE (Speaker Bureau) and HAAPE (Autism Expert Board).
His motivation is to better the world out there one day at a time. His adaptive work career allowed him to gain perspectives in the autistic, parent, and professional worlds. Andrew believes that collaboration being key for solving issues with transitioning to adulthood and transportation. He focuses on transportation because it can affect various milestones and can impact both the social and work worlds for individuals. He knows how it feels about how limiting it can be to not have a reliable transportation option. Andrew helps individuals find their own path to finding what works for them. After all, each autistic individual has their own needs, and those needs should be embraced. That is why Andrew created the Autism and Driving Resource Database to help them find driving resources in their state.
Connect with Andrew
Website: https://andrewarboe.weebly.com/
Email: arboea@gmail.com
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Web: https://truenorthdisabilityplanning.com/
Waypoints - https://waypoints.substack.com/
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X (Twitter): @NeedsNavigator
Navigating LGBTQ+ Planning and Allyship: Complexities, Legislation, and Support
In this enlightening podcast episode, join us as we delve into the intricacies of LGBTQ+ financial and legal planning. Our guest, Mindy Neira, a seasoned financial planner with a focus on serving the LGBTQ+ community and individuals with disabilities, provides valuable insights into the challenges and considerations faced by this diverse group.
From navigating complex legislation to understanding the impact of legal changes on families, Mindy offers guidance on planning for a more inclusive and equitable future. Discover the role of allyship in financial planning, how to recognize an ally, and explore the new D.E.I. (Diversity, Equity, and Inclusion) certification that helps identify planners committed to fostering inclusive environments. Join the conversation and gain a deeper understanding of how planning intersects with identity, rights, and community support.
Mindy is Co-Chair of the National Association of Personal Financial Advisors (NAPFA) Diversity, Equity, and Inclusion Steering Committee. Her specialty focus area is with individuals and families who have planning needs related to disability or other medical conditions. She also partners with those who are Lesbian, Gay, Bisexual, Transgender, or Queer (LGBTQ).
Connect to learn more:
Website: https://moderawealth.com/people/mindy-neira/
Email: mindyn@moderawealth.com
LinkedIn: https://www.linkedin.com/in/mindyneira/
Find an Advisor tools:
NAPFA: https://www.napfa.org/find-an-advisor
FPA: https://www.plannersearch.org/
XYPN: https://connect.xyplanningnetwork.com/find-an-advisor
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABCs of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
A Zebra's Guide to Disability Advocacy
Sarah Semnyetzky is the author of "A Zebra's Guide to Disability Advocacy". Focusing specifically on the domains of academia, medical care, and interpersonal relationships and support networks, in the book Sarah focuses on helping disabled individuals and their loved ones navigate their own, diverse journeys.
She explores these topics using her personal and professional experience, and insight into the complexities of the disabled community. She analyzes how these complexities impact our needs as disabled individuals, using step-by-step guidance, detailed explanations, and personal anecdotes to illustrate her points. She also includes a specialized guide for those with ADHD, imparting impactful advice and skill-building techniques to help readers thrive in academia, the workplace, and beyond.
In this episode, I ask her to share what's happened since she published her book. What she's learned, and what, if anything, she would have done differently. My goal is to share the perspective of someone with invisible disabilities and help you see the world from at least one person's point of view.
Connect w/ Sarah: Website: https://scsemnyetzky.wixsite.com/my-site
Email: scsemnyetzky@gmail.com
Blog: https://sarahofember.wordpress.com/blog/
Phone: (772) 300-4882
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Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
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How will I know? The "impossible choice" - Palliative or Hospice Care
Juli and Chris Henderson have lived through one of the toughest times any parent can face, the loss of their son. In this interview, we have a very candid discussion about what they wish they'd known. The catalyst for this discussion was Juli's blog post "How will I know?".
Dr. Chris Henderson is a Critical Care Intensivist at CHRISTUS Santa Rosa (CSR) Westover Hills Hospital in San Antonio, Texas, and serves as a Member of the South Texas Regional Advisory Council Pandemic Medical Operations Workgroup. He is Board Certified in Critical Care, Pulmonary Medicine, Internal Medicine, and Sleep Medicine. He presently serves as President of Medical Staff at CHRISTUS Santa Rosa Hospitals, President of CSR Family Health Center, and a member of the Board of Directors of the Family Health Center. Additionally, Chris is the Director of Inpatient Services for the program and Chairman of its Clinical Competency Committee and serves as an Adjunct Assistant Professor for the University of Texas Health Science Center at San Antonio (UTHSCSA) Department of Family and Community Medicine. He entered his present position after more than 26 years of service in the United States Air Force Medical Corps, retiring in July 2011 with the rank of Colonel.
Juli Henderson is a highly trained vocalist, respected voice teacher and owner of JH Voice Studio, physician’s wife, mother of five adult children, and newly minted grandmother. She grew up moving frequently as a military dependent but has called San Antonio, Texas home for 36 years. The In Our Arms Blog is her passion project, launching in February 2021 to share the story of Robert. As the mother of a child with disabilities who passed at the tender age of eighteen, Juli’s writings give hope to hundreds of readers, including a private Facebook group where members share resources and support. She is extending her impact by her involvement in resource projects such as her recent launch of the In Our Arms “Breathe” candle in collaboration with a purpose-driven brand, School Scents. When not writing or teaching, Juli volunteers in the community on nonprofit boards and speaks in churches and schools about her “Life unexpected".
Website: https://www.inourarms.blog/
Facebook: @InOurArmsBlog
Instagram: @inourarmsblog
Link to episode transcript - https://docs.google.com/document/d/1l3GH0VqpUhKbkbG-9FrgYt1nX5ma_0rR/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Link to Juli's first interview - https://podcasters.spotify.com/pod/show/abcs-disability-planning/episodes/In-Our-Arms-Blog---Juli-Henderson-e1eh8hb
Hospice interview with Carlos Graveran - https://spotifyanchor-web.app.link/e/Vd12e2DeWDb
Five Wishes interview - https://spotifyanchor-web.app.link/e/GwyGY7MeWDb
Introduction to Burial Insurance with Brenda Hager - https://spotifyanchor-web.app.link/e/JCE9jiSeWDb
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Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Empowering people and families impacted by Duchenne muscular dystrophy
Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Dan & DMD book - https://amzn.to/3QvfAV8
Transcript to the episode: https://docs.google.com/document/d/1uWsfzSjthW_69wVRFUdRCiG_GSz2gqGw/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Web: https://www.jettfoundation.org/
Email: info@jettfoundation.org
Facebook: https://www.facebook.com/jettfoundation/?ref=aymt_homepage_panel
IG: @jettfoundation
Parent Project Muscular Dystrophy - https://www.parentprojectmd.org/
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Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Remove barriers and understand what helps your child thrive
BeMe empowers Autistic individuals, their families, and care teams with the tools they need to thrive. BeMe combines medical, behavioral, and environmental factors in an insight-generating app designed specifically to support Autistic children. It was founded by and is comprised of a team very active in Autism care and advocacy. They are an organization including parents and caregivers, domain experts, and Autistic individuals. They know and have lived through many struggles and joys and come from a place of understanding. BeMe.ai is effortless to use, combining wearable technology and a smartphone app to simplify data entry. Their powerful AI, combined with their unique approach to organizing, transforming, and sharing data, allows you to gain new insights into your child’s health, behavior, and overall progress. Connect to learn more:
Website: https://www.beme.ai/
Email: info@beme.ai
Facebook: https://www.facebook.com/BeMe.aiInc
YouTube: https://www.youtube.com/@bemeai1689
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Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
X (Twitter): @NeedsNavigator
Connecting families affected by disability to recommended businesses
Empowered Together - Connecting families affected by disability to recommended businesses. They envision a world where tools and accommodations are in place for all people to meaningfully access and participate in their communities. While parenting her daughter with a developmental disability, Sarah Spear learned firsthand how isolating that journey can be and that other parents on similar journeys were feeling all alone. She recognized the value of sharing support and knowledge with one another and Empowered Together was born.
Connect to learn more:
Empowered Together (ET) Website: https://empoweredtogether.us/
ET App: https://app.empoweredtogether.us
ET Instagram: https://www.instagram.com/empoweredtogetherco/
ET Twitter: https://mobile.twitter.com/empowered2gethr
ET Facebook: https://www.facebook.com/empowered2gether
ET LinkedIn: https://www.linkedin.com/company/empoweredtogether
ET YouTube: https://www.youtube.com/@empoweredtogether
Sarah’s Twitter: https://twitter.com/SarahSpearIt
Sarah’s LinkedIn: https://www.linkedin.com/in/shine/
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Videos to teach daily living skills - PICKLE System
Videos to teach daily living skills - PICKLE System
Pickle System's mission is to improve the lives of individuals with autism and developmental disabilities by providing a personal, accessible, and hands-off resource utilizing video models, image-based content, and evidence-based guidance.
Acquisition, maintenance, and generalization of daily living skills may increase independence, quality of life, employment outcomes, and post-school education opportunities for individuals with disabilities. Daily living skills are comprised of three domains - Personal, Domestic, and Community.
Connect to learn more:
Web: https://www.picklesystem.com/
Email: admin@picklesystem.com
FB: https://www.facebook.com/profile.php?id=100093284371069
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Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
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Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support
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Meet. Support. Advance. Raising awareness of another Rare Disease - TBRS Community
Meet. Support. Advance. Raising awareness of another Rare Disease - TBRS Community
Tatton Brown Rahman Syndrome (TBRS) is a rare genetic disease caused by pathogenic variants (previously called mutations) in the DNMT3A gene and for that reason, it is also called DNMT3A Overgrowth Syndrome.
Individuals with TBRS have overgrowth—typically, tall stature, increased weight, and large head circumference (also known as macrocephaly)—mild to severe intellectual disability, and subtle but distinctive facial characteristics.
There are a variety of other symptoms that are also associated with TBRS, such as low muscle tone, behavioral and mental health issues, orthopedic problems, cardiac defects, and autism, but not all individuals have every clinical finding reported, and the syndrome varies considerably in its severity.
As of 2021, roughly 250 people have been diagnosed with TBRS. It is not clear how common the syndrome is, but many more individuals are likely to be diagnosed as whole genome sequencing methods become more accessible. There is currently no cure for TBRS, and clinical care is focused on managing the particular clinical findings in each individual.
Episode Transcript: https://docs.google.com/document/d/11ZW665x8eYUYe7Pb1BtYr1r2laITkooz/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more
Website: https://tbrsyndrome.org/
Email: info@tbrsyndrome.org
Facebook: https://www.facebook.com/dnmt3aovergrowthsyndrome/
X (formerly Twitter): @TBRSCommunity
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Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
---
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Support this podcast: https://podcasters.spotify.com/pod/show/abcs-disability-planning/support
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Reach. Climb. Go. If you're a wheelchair user get your iBot Personal Mobility Device
Reach. Climb. Go. If you're a wheelchair users get your iBot Personal Mobility Device. One device, with 6 modes. Go beyond powered mobility in this revolutionary power wheelchair.
The world is not as accessible as it should be. The iBOT® PMD provides a unique multi-modal experience in personal mobility. Custom-fit to each user, with an iBOT® PMD the world opens up. From Mobius Mobility's website: If the ATV had a quieter, smarter cousin, its name would be the iBOT® PMD. The iBOT® PMD engages four large drive wheels while automatically keeping the seat level. This allows users to traverse varied terrain, to go beyond typical backyard exploration. Hills and inclines are everywhere. Dirt, mud, gravel, snow – the world is covered with the stuff. Explore it all in an iBOT® PMD. Connect to learn more:
Website: http://www.mobiusmobility.com
Phone: 1-833-346-4268
Email: info@mobiusmobility.com
Facebook: @IBOTbyMobiusMobility
IG: mobiusmobility
YouTube: Mobius Mobility
TikTok: mobiusmobility
Episode Transcript: https://docs.google.com/document/d/1kfPdk7asXmJ3Y46inULcOP6kboB6iuXa/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Empowering Kids Through Songwriting - Hear Your Song
Hear Your Song empowers children and teens with serious illnesses and complex health needs to make their voices heard through collaborative songwriting.
In their kid-driven process, Hear Your Song volunteers help kids write their song lyrics, which are then set to music and recorded, based on the kid’s musical ideas.
Hear Your Song provides support and training for undergraduate leaders who facilitate songwriting sessions with kids through local community partnerships.
Hear Your Song shares the extraordinary songs that kids write to celebrate each songwriter’s passion, imagination, and creative vision. Connect to learn more:
Website: https://www.hearyoursong.org/
Facebook: https://www.facebook.com/hearyoursonghys/
Twitter: @HearYourSongHYS
IG: @hearyoursonghys
Email: hys@hearyoursong.org Episode Transcript: https://docs.google.com/document/d/1KOXiFgpzazblzswJHS1DA-w2aIGr8VMK/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Inclusion Films - Teaching filmmaking to individuals with developmental disabilities
Inclusion Films, started in 2007 by veteran filmmaker Joey Travolta, teaches filmmaking to individuals with developmental disabilities in six dedicated production studios throughout California. Students have an opportunity to test their skills and experience independence when hired to work at Joey’s summer film camps. In addition to their workshops, they travel the country offering short film camps for children and adults with developmental disabilities. Over 75% of their graduates have been hired by companies around the country. Carol of the Bells
Link to Transcript - https://docs.google.com/document/d/1JcP_DsHsF_en-2KVR7JlRSG7Nl0dQDQU/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Website: https://www.inclusionfilms.com/
Email: info@inclusionfilms.com
Phone: (661) 324-7400
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Protecting and advancing the rights of individuals with intellectual and developmental disabilities - Together for Choice
Together for Choice's Mission is to unite to protect and advance the rights of individuals with intellectual and developmental disabilities (I/DD) to live, work and thrive in a community or setting of their choice. Ashley Kim Weiss is a social entrepreneur and disability advocate who currently serves as the Executive Director for Together for Choice.
She is also the President & CEO of Elevare Community, which provides consulting services in housing development, residential placement, and life planning for adults with intellectual and developmental disabilities. Prior to Elevare, Ashley was the co-founder and Executive Director of Villa de Vida, a non-profit organization building an affordable housing community for adults with developmental disabilities in San Diego.
Ashley is a National Certified Guardian and licensed California Professional Fiduciary. She holds a bachelor’s degree in Finance and Management from the University of Illinois, Chicago, and a Master’s degree in Business Administration from the Claremont Graduate University’s Drucker School of Business.
Connect to learn more:
Website: https://www.togetherforchoice.org/
Email: info@togetherforchoice.org
FB: https://www.facebook.com/TogetherForChoice/
IG: @togetherforchoice
Twitter: @TogetherForChoice
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Excellence powered by a neurodivergent team - Aspiritech
More than 90 percent of the Aspiritech team members are on the autism spectrum. TAspiretech hires and trains team members and aims to pair them with a client and project that matches their strengths and passions. The team members of Aspiritech represent a diverse group of individuals who’ve created a strong community and a world-class business model supporting Fortune 500 companies and small businesses alike.
Mission: Aspiritech is a world-class QA testing company that empowers individuals on the autism spectrum to fulfill their potential through meaningful employment combined with social opportunity.
Vision: Working together for a world that embraces neurodiversity by valuing talents, supporting challenges, and welcoming differences.
Podcast Transcript - https://docs.google.com/document/d/1PgaSVgHf1mXbvnPY1zUTDg0zAjoFtWwe/edit?usp=drive_link&ouid=117716030289987185197&rtpof=true&sd=true
Teaching Autism Community Trades (T.A.C.T.)
Connect to learn more:
Website: https://aspiritech.org/
Facebook: https://www.facebook.com/aspiritech/
Twitter: @Aspiritech
Instagram: @aspiritech
Phone: 312-945-8378
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Developmental Disabilities and Sexuality. Elevatus helps you have these essential conversations.
Developmental Disabilities and Sexuality. Elevatus helps you have these essential conversations. As national leaders in the field of sexuality and intellectual, developmental disabilities, and autism they offer evidence and trauma-informed curriculum, online training, in-services, and workshops to help professionals, educators, self-advocates, and parents skillfully and confidently navigate the topic of sexuality.
When it comes to talking about sexuality, people with disabilities are often excluded; almost as if they’re incapable of having sexual thoughts, feelings, and needs. In reality, they too are sexual beings who need the information and skills for making healthy decisions about sexuality. Though agencies who work with people with developmental disabilities know that sexuality issues need to be addressed, they often don’t feel comfortable or competent enough to do so. This training will give you the curriculum, tools, and skills you need to teach sex education classes and lead staff/parent training. Katherine McLaughlin has 25 years of experience as an educator and trainer with a specialty in sexuality and developmental disability. She's also a member of the disability community and understands both personally and professionally the issues people with disabilities face. She named the company to represent her mission – to elevate us all – especially people with disabilities.
Episode Transcript: https://docs.google.com/document/d/1UzLzd9D5XTRGNe6kj2rbxqD6Zwpbaxjb/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Learn more:
Website: https://www.elevatustraining.com/
Facebook: https://www.facebook.com/elevatustraining
Phone: 603-399-5777 (9am-5pm EST, M-F)
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Raising Kellan - Empowering, connecting, and educating parents raising children with a disability. For Parents. By Parents.
Raising Kellan Started in 2019. Most non-profits about children with a disability begin with a heart-rending story and the endless search on how to fix the disability.
The start of Raising Kellan wasn’t about that. You see, in June 2019, while visiting family in South Africa, Marsh Naidoo was asked to give a speech to health professionals at the Open Air School in Durban, and the feedback she received was unexpected. Sure, people were engaged. But, could she share her perspective as a physical therapist and mother of a child with cerebral palsy with other parents raising children with complex medical needs, as well?
Marsh was reluctant at the thought of sharing her experience, but she did.
She returned home and this burning thought became the blog and podcast that formed the bedrock of the non-profit organization, Raising Kellan. Since 2020, Raising Kellan has supported parents in the US, South Africa, and Europe on their journey, negotiating the uncharted territory of raising children with a disability.
Are you a parent bewildered by your child’s disability?
We are a community connected by a diagnosis, yet positively embracing our lives, and we want you to know, you’re not alone.
Raising Kellan was created by parents like you for parents like you.
Learn More:
Website: https://www.raisingkellan.org/
Podcast: https://www.raisingkellan.org/blog?tag=podcast
Marsh's book: "What I Wish I Knew Back Then: A Physical Therapist and Mother's Perspective of Raising her Child with Cerebral Palsy"
Facebook: https://www.facebook.com/raisingkellan.org
IG: @raising_kellan
Episode Transcript: https://docs.google.com/document/d/1oK6TKUM_iEL_lvK9ZyBs9yfwG5FTFPBK/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
No parent should feel alone. Ever. Parent to Parent USA is here to make sure you don't.
Parent to Parent's Vision: Parent to Parent USA will support a network of viable, sustainable, fully-functioning, and effective Parent to Parent programs in all 50 states through hands-on support, training and technical assistance, and high-quality tools and resources. Our network’s parent leadership and engaged membership will serve as strong advocates, provide robust mentoring opportunities, and develop the working partnerships with funders, service providers, and others needed to sustain and grow the program nationwide.
Parent to Parent of the United States (Parent to Parent USA) was created in 2003 with funding from the Robert Wood Johnson Foundation to ensure that families nationwide whose children have special needs have access to Parent to Parent support. Founders and affiliations: Nancy DiVenere, Parent to Parent of Vermont; Mary Slaughter, Raising Special Kids, AZ; Kathy Brill, Parent to Parent of PA; Connie Ginsberg, Family Connection of South Carolina.
Parent to Parent support – the matching of experienced, trained Support Parents with families seeking support has been proven effective in helping families cope with their day-to-day lives, connect with community resources and navigate the health care system. Parent to Parent USA has identified and connected all statewide Parent to Parent programs nationally, a first step toward forming an Alliance among all family support programs in the country that demonstrate the following:
- Parent to Parent support as a core organizational component
- Commitment to implement Parent to Parent USA – endorsed practices
Lily Brown has experienced firsthand the magic in the match of parent-to-parent support after her daughter was diagnosed with a rare genetic condition at age 3. As Co-Executive Director for Parent to Parent USA, she is dedicated to strengthening the Parent to Parent community so that no parent feels alone, ever. She leads the organization in the areas of development, program evaluation, volunteer engagement, and fiscal management. She draws on her entrepreneurial background to scale operations using a combination of talent and technology.
Learn More:
Website: https://www.p2pusa.org/
Facebook: https://www.facebook.com/p2pusa
IG: @p2pusa
Sibshops - https://siblingsupport.org/sibshops/
Podcast Transcript - https://docs.google.com/document/d/1vBb-CidQZ0HHIQBjeZIjMKWVf0lkNEy2/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Introduction to the Job Accommodation Network
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on job accommodations and disability employment issues. Serving customers across the United States and around the world for more than 35 years, JAN provides free one-on-one practical guidance and technical assistance on job accommodation solutions, Title I of the Americans with Disabilities Act (ADA) and related legislation, and self-employment and entrepreneurship options for people with disabilities. JAN provides individualized consultation to assist:
- Employers and their representatives seeking guidance on practical ways to engage in the interactive process, provide job accommodation solutions, and comply with Title I of the ADA;
- Individuals with medical conditions and disabilities seeking information about job accommodation solutions, employment rights under the ADA, self-employment and entrepreneurship opportunities; and
- Family members and rehabilitation, medical, educational, and other professionals in their effort to support successful employment outcomes for individuals with medical conditions and disabilities.
Tracie DeFreitas is the Director of Training, Services, and Outreach for the Job Accommodation Network (JAN), the leading national source of expert guidance on workplace accommodation and disability employment issues. Tracie has more than twenty-five years of experience in the disability employment field. She has served the JAN organization in various roles since joining the team in 1994, including as Principal Consultant, Lead ADA Consultant, Project Manager for the Campaign for Disability Employment (CDE), and Senior Sensory and Immunology Specialist and Team Lead. As Director of Training, Services, and Outreach, Tracie is responsible for directing the planning, design, and implementation of internal and external JAN training programs and outreach strategies. She also collaboratively manages the day-to-day operation of the JAN service to ensure that customer needs and organizational goals are met.
Learn More:
Website: https://askjan.org/
YouTube: https://www.youtube.com/janinformation
Facebook: https://www.facebook.com/JobAccommodationNetwork/
Twitter: @JANatJAN
Interview Transcript - https://docs.google.com/document/d/1P0XJyMaFeLdnHM82lxG-wW5n9U0aPHUh/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Invisible no more w/ Leddy Glenn-Ludwig
Leddy Glenn-Ludwig is a best-selling author, goal-setting consultant, and self-empowerment coach. In this interview, we talk through what you can do to help yourself if you have an invisible disability. We explore the differences between life coaching, consulting, and therapy. And Leddy explains how to find the right person to work with. Throughout her life, others told her that she was not smart enough to achieve her goals and that she should settle for less. She came to believe them, but not anymore. Leddy Glenn Coaching exists to support individuals with invisible disabilities to know their strengths and apply them to their professional life by exploring themselves on a deeper level and creating an action plan for the transformation.
Grammarly - https://app.grammarly.com/
Learn more
Website: https://leddyglenncoaching.com/
Email: leddy@leddyglenn.com
Phone: 816-787-0048
Facebook: https://www.facebook.com/LeddyGlennCoaching
"Transforming Your Life" (book): https://amzn.to/3MCwnSy
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
The Internet should be Accessible to Everyone!
After over 11,000 Lawsuits, the Trend is Going Parabolic. There was a time when it was possible to get away with having a website that didn’t work for people with disabilities. But those days are long gone, and ADA regulations for web accessibility are being enforced in court. Comply with ADA law and conform with WCAG 2.1 guidelines at every step of your web accessibility journey. Protect your website from accessibility-related lawsuits with the world's strongest automated solution for accessibility. Accessibility sets your website apart and showcases your commitment to inclusion - all while boosting SEO, search rankings, conversions, and your bottom line. Lionel Wolberger has spent his career understanding the nuanced role that technology plays in global advancement. As UserWay’s COO, he connects their suite of AI-powered accessibility solutions with enterprises, governments, and agencies. Lionel is also a member of the W3C standards body where he advocates for the disability community. Learn More:
Website: https://userway.org/
Facebook: https://www.facebook.com/UserWay
Twitter: @UserWayOrg
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Eric Presents "Putting It All Together - A Diagnosis to Adulthood Guide"
In this bonus episode, Eric presents what parents and professionals should think about at various life stages, starting with receiving the diagnosis and ending when the child turns 21. Included are the question and answer sessions.
Here are the transition time stamps if you'd prefer to skip to the life stage you're currently in or approaching.
Introduction and Overview 3:09
Diagnosis 9:52
School Years 25:52
18 and older 44:30
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For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Bullied Brain Episode 1: Unraveling the Caricature: A Journey Through Personality Disorders and Self-Discovery
"You were in a wasteland. And not only were you in a wasteland, but the two of them were predatory. I mean it's pretty unbelievable."
Link to download the transcript - https://docs.google.com/document/d/1_DWFHwg1VYGdXogg_Erp5tZlc5VfDwWg/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Jennifer Fraser is the author of "The Bullied Brain: Heal Your Scars and Restore Your Health". She has a PhD in Comparative Literature and The Bullied Brain is her fourth book. She draws on medical, neuroscientific, and neurobiological research to examine what happens to brains that are bullied and abused. Jennifer's an award-winning educator and works as a coach, consultant, and international presenter.
Neither Jennifer nor I are mental health professionals. If you feel you need help please seek out a licensed professional in your area. We are creating these episodes to show you what is possible. There was a time when I felt broken. That I didn't fit in anywhere. I'm not going to lie and say everything is rainbows and unicorns, but my good days far outnumber my bad. It's taken a LOT of work, both on my own and with therapists. Everyone's journey is going to be different. The only constant is if you want something to change you need to take action.
Link to Jennifer's website: https://bulliedbrain.com/
Jennifer is available to consult or speak, you can reach her at JenniferFraserPhD@gmail.com.
Please consider following/subscribing. Here's a link to the website - https://shows.acast.com/bullied-brain-healing-and-overcoming-trauma
New episodes will be released every other week.
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about Eric Jorgensen and True North Disability Planning you can find us here:
Email: eric@specialneedsnavigator.us
Web: https://truenorthdisabilityplanning.com/
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Becoming rentABLE - the Accessible Short-Term Rental Experts
After 20 years of frustration, with very limited vacation options, Lorraine Woodward's family of four, three of whom have mobility issues due to muscular dystrophy, took it upon themselves to create their own accessible property. In 2014, Lorraine’s "A Place of No Worries" was realized. Their fully accessible property was not only a way to meet their own family vacation needs, but also a way to serve as an investment property that could be a resource for other families who needed the same accessibility features/needs. Becoming rentABLE was founded in 2021, after years of struggling to find accessible short-term rental properties. To have an accessible property means that there are no barriers to entry for anyone; an elderly relative, a family member with a physical disability, or a friend who has been temporarily disabled. Each would have access to something that everyone should have access to a place where memories can be made and a chance to live their best life.
They understand there is no one-size-fits-all when it comes to accessibility. Disabilities come in all shapes and sizes. While wheelchair accessibility is talked about the most, they have expanded our efforts to include mobility, cognitive, hearing, vision, and aging accessibility. They offer 36 filters, so you can customize your own needs and find the best property for you and your family.
Link to the transcript - https://docs.google.com/document/d/1y6JS4y_M1Lihq7E9k35QWLuh8btb2Qs9/edit?usp=share_link&ouid=117716030289987185197&rtpof=true&sd=true
Connect to learn more:
Website: https://www.becomingrentable.com/
Facebook: https://www.facebook.com/becomingrentable
Twitter: @BRentable
IG: @becomingrentable
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Trailer: Bullied Brain: Healing from, and overcoming, Trauma
This is the first episode of a joint venture between Jennifer Fraser and myself.
Jennifer Fraser is the author of The Bullied Brain: Heal Your Scars and Restore Your Health. She has a PhD in Comparative Literature and The Bullied Brain is her fourth book. She draws on medical, neuroscientific, and neurobiological research to examine what happens to brains that are bullied and abused. Jennifer's an award-winning educator and works as a coach, consultant, and international presenter.
The podcast is a dialogue that works in the first season like a coaching session. Eric shares his childhood experiences of being abused and Jennifer discusses the implications for my brain and for recovery. Our goal is to use Eric's childhood abuse as a case study as most people don't learn about their brains or about how abuse impacts their brains. The research is clear that the brain is innately wired to repair and recover when we know the harm was done and the evidence-based practices to heal. This is the focus of Jennifer's book, but it comes to life in the podcast as Eric bravely walks us through the abuse done to him and his many strategies for healing his neurological scars. For all those who have suffered bullying, abuse, and trauma, join us to look at it through the lens of brain science and learn ways to repair the harm done.
New episodes will be released every other week, starting on 7 June. Use the link below to subscribe or search for "Bullied Brain" in your podcast player. This is a new show, so it may take a little while to be approved in your player. If you don't see it, please keep checking.
https://shows.acast.com/bullied-brain-healing-and-overcoming-trauma
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning
Estate Planning For A Child With A Disability: Beyond the Basics
Kim Martin is a trusts and estates attorney licensed in Georgia and Illinois whose practice focuses on estate planning for families with a special needs family member. Her areas of expertise also include guardianship, divorce settlement agreements in cases that involve a special needs child, and tax planning.
Kim’s publications include articles in Trusts and Estates Magazine and Family Lawyer Magazine. She has appeared on several podcasts, most notably Wealth Matters and ABC’s of Disability Planning. She recently recorded an informational video for True Link on the subject of Divorce and Special Needs Children. Hear more of Kim’s expertise in special needs law on her YouTube channel here. In this episode, we talk about her favorite Trust provisions - what they are and why she likes to include them.
Contact Kim:
Website: https://www.harrisonheld.com/professionals/kim-martin/
Email: kmartin@harrisonheld.com
Episode Transcript - https://docs.google.com/document/d/1OoReMKnmyIV8-xlVnAvRQaxFl430RIhY/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true
Kim's interview about divorcing with a disabled child - https://podcasters.spotify.com/pod/show/abcs-disability-planning/episodes/Divorcing-when-you-have-a-disabled-child---Kim-Martin-e1fqd5o/a-a7ja8ha
Special Needs Trusts Episodes:
Special Needs Trusts w/ Matthew Bogin - https://podcasters.spotify.com/pod/show/abcs-disability-planning/episodes/12-Special-Needs-Trusts-w-Attorney-Matt-Bogin-e19cpbk/a-a6pfqjv
Estate Planning w/ Kelly McCrea - https://podcasters.spotify.com/pod/show/abcs-disability-planning/episodes/19-Estate-Planning-with-Kelly-McCrea-e19cpbe/a-a6pfqkf
Title credit to Google's Bard
As an Amazon Associate, I earn commissions from qualifying purchases.
For more information about True North Disability Planning you can find us here:
Web: https://truenorthdisabilityplanning.com/
Blog - https://ejorgensenwordpresscom.wordpress.com
Podcast (ABC's of Disability Planning) - https://anchor.fm/abcs-disability-planning
Waypoints - https://waypoints.substack.com/
Facebook: @TrueNorthDisabilityPlanning
Twitter: @NeedsNavigator
Resource store (free downloads too) - https://www.teacherspayteachers.com/Store/True-North-Disability-Planning