A Tour of Holland
By April Hammon
This podcast serves as a platform for parents of children with special needs in order to gain insight, educate, and build community.
A Tour of HollandJun 27, 2022
00:00
50:13
Episode 26: An interview with Oksana Sergeyovich
In this episode Oksana shares her experience raising her 5 year old son Arthur, who has a diagnosis of autism and GDD (Global Developmental Delays)
Connect with Oksana on IG @xeniathestranger
Connect with Oksana on IG @xeniathestranger
Jun 27, 202250:13
Episode 25: An Interview with Allison Harvey-Griffin
In this episode Allison shares her experience raising her 6 year old son Jackson who has a diagnosis of Diastrophic dysplasia, a rare form of dwarfism.
Connect with Allison on:
Instagram @allie0126 and @jackharveyg
Email: harv79@gmail.com
Connect with Allison on:
Instagram @allie0126 and @jackharveyg
Email: harv79@gmail.com
Apr 04, 202259:56
Episode 24: An interview with Gina Evans D'Angelo
In this episode Gina Evans D’Angelo shares her experience raising her daughter Jackie who has a diagnosis of Achondroplasia, a form of dwarfism. Gina lives with her two children in Farmington, Connecticut.
Resources mentioned in this episode include:
- Parents of Little People support group
- Little People of America
Connect with Gina on Facebook. The book she wrote for is also available online:
Special Delivery From Pregnancy to Toddlerhood https://www.amazon.com/dp/B09JV97Z97/ref=cm_sw_r_cp_api_glt_i_PATN17BGJDMZJ2S8PM9Z
Feb 28, 202257:12
Episode 23: An Interview with Jill Pratt
In this episode I have the pleasure of interviewing Jill Pratt, mother of Jiselle and co-founder of the Jisellle Lauren Foundation. Jill is a mother of 3 young children and her oldest, Jiselle, has a diagnosis of Rett's syndrome a rare neurological condition. Resources mentioned in this episode include:
Katie Beckett program
www.rettsyndrome.org
www.jisellelaurenfoundation.org
Rett University
Connect with Jill on IG: @pratt_partyof5
Follow the Jiselle Lauren Foundation on IG: @thejisellelaurenfoundation
Watch the interview here: youtu.be/gVwYeNKVTG4
Katie Beckett program
www.rettsyndrome.org
www.jisellelaurenfoundation.org
Rett University
Connect with Jill on IG: @pratt_partyof5
Follow the Jiselle Lauren Foundation on IG: @thejisellelaurenfoundation
Watch the interview here: youtu.be/gVwYeNKVTG4
Jan 31, 202240:21
Episode 22: An interview with Effie Parks
In this episode Effie Parks shares her experience raising her son Ford who has CTNNB1, a rare neurological syndrome. Effie lives in Seattle, Washington with her husband and two children. She is the host of the award winning podcast: Once Upon A Gene.
Resources mentioned in this episode include:
Every Life Foundation
Podcasts:
The Two Disabled Dudes
Global Genes
Once Upon A Gene
The Courageous Parents network
The Disordered Channel
Connect with Effie here: effieparks.com/
Resources mentioned in this episode include:
Every Life Foundation
Podcasts:
The Two Disabled Dudes
Global Genes
Once Upon A Gene
The Courageous Parents network
The Disordered Channel
Connect with Effie here: effieparks.com/
Dec 20, 202147:30
Episode 21: An Interview with Jeanine Lynn Arlene Blair
In this episode, Jeanine shares her experience raising her daughter Ami ("Aim-mee") who has a diagnosis of arthrogryposis as well as hearing impairment due to bacterial meningitis at the age of 6 months old. Ami has 3 siblings and lives in Calgary Canada.
Get in touch with Jeannine or follow her accounts at
Facebook: Jeannine Lynn Arlene Blair
Instagram: @jeanninelynnarleneblair
TikTok: @jeannineblair2
Resources mentioned in this episode include:
Children's Hospital of Calgary
Duet Bike
Get in touch with Jeannine or follow her accounts at
Facebook: Jeannine Lynn Arlene Blair
Instagram: @jeanninelynnarleneblair
TikTok: @jeannineblair2
Resources mentioned in this episode include:
Children's Hospital of Calgary
Duet Bike
Dec 06, 202140:24
Episde 20: An interview with Sasha Albright
In this episode, Sasha Albright, shares her experience raising her 3-1/2 year old daughter Kai'Lani or "KK" who was diagnosed with achondroplasia dwarfism at the age of 3 months old. Sasha is a single mother of 3 daughters, author, poet, and advocate for inclusion. Her writing was featured in the book Special Delivery: from Pregnancy to Toddlerhood by Angela Singletary as well as in Different Abilities, a collection of letters from those who love some one with special needs.
Sasha has several platforms on social media including her personal FB page, KK's FB page: A Pint Sized Princess in a Big World, and IG @sashalee1213.
Listeners may also email her at eviegraciemommie@gmail.com
Resources mentioned in the podcast include:
Facebook group : Smile Mail
Little People of America
Sasha has several platforms on social media including her personal FB page, KK's FB page: A Pint Sized Princess in a Big World, and IG @sashalee1213.
Listeners may also email her at eviegraciemommie@gmail.com
Resources mentioned in the podcast include:
Facebook group : Smile Mail
Little People of America
Nov 22, 202142:58
Episode 19: An interview with Carlos Labrada
In this episode, Carlos Labrada shares his experience raising his children, two of whom have special needs. His youngest child Leo, has a diagnosis of Pelizaeus-Merzbacher Disease and his middle child, Carlitos, has a diagnosis of Fibrous Dysplasia. Carlos lives with his wife and three children in San Diego, CA and serves on the board of the PMD Foundation. Listeners can connect with Carlos via email: clabrada@pmdfoundation.com
Resources mentioned in this episode include:
HOPE Foundation - San Diego, CA www.sdcoe.net/student-services/early-education/Pages/hope-infant-family-support.aspx
PMD Foundation - www.pmdfoundation.org/
Loving Leo Facebook page
Lucille Packard Children's hospital
Pelizaeus-Merzbacher Disease (PMD) Its Rare but Everywhere Facebook group
I Run 4 Michael Facebook group
FD Warriors Inc. Facebook group
Resources mentioned in this episode include:
HOPE Foundation - San Diego, CA www.sdcoe.net/student-services/early-education/Pages/hope-infant-family-support.aspx
PMD Foundation - www.pmdfoundation.org/
Loving Leo Facebook page
Lucille Packard Children's hospital
Pelizaeus-Merzbacher Disease (PMD) Its Rare but Everywhere Facebook group
I Run 4 Michael Facebook group
FD Warriors Inc. Facebook group
Oct 11, 202156:22
Episode 18: An Interview with Gary Martinez Jr.
In this informative episode, Gary Martinez Jr. shares his experience raising his daughter, Monica, who has a diagnosis of autism & sensory processing disorder. Gary is a resourceful and imaginative father who is also an author and creator of the Autism STAR program.
Connect with Gary online:
IG @gary_martinez_jr
FB: Gary Martinez Jr.
Tik Tok: @garymartinezjr
Resources from this episode:
Gary's book: Living Life Through Their Eyes: Our Journey on the Autism Spectrum
https://www.amazon.com/Living-Through-Journey-Autism-Spectrum/dp/1798079585/ref=sr_1_fkmr0_1?dchild=1&keywords=living+life+through+their+eyes+gary+martinez+jr&qid=1632102138&sr=8-1-fkmr0
The Autism STAR program https://www.autismstar.net/
The Autism Book by Dr. Robert Sears
The Autism Parenting Summit
https://autismparentingsummit.com/
Understanding Your Child's Sensory Signals: A Practical Daily Use Handbook for Parents and Teachers by Angie Voss OTR
Sep 20, 202150:13
Episode 17: An interview with Heather Griswold-Reed
In this episode, Heather Griswold-Reed shares her journey as Timmy’s mother. Timmy is a 15 year old young man with a diagnosis of autism and intellectual disability. Connect with Heather on Facebook or on Instagram @slofamilylife
Aug 23, 202131:24
Episode 15: An interview with Sam Hoffman
In this episode, Sam Hoffman, shares his experience raising his child Willy who has a diagnosis of autism- Sam is a special needs educator living in New York. To connect with Sam you can find him on Instagram @samahoff
Resources:
Autism Clinic at Mount Sinai hospital
Resources:
Autism Clinic at Mount Sinai hospital
Jun 21, 202131:15
Episode 14: An interview with Sarah Sullivan
In this episode Sarah Sullivan shares about raising her two adopted sons Keagan and Xander who both have special needs. Sarah is one of the founders of a non-profit called Parents for Joy which created the first accessible playground in the county in which she lives with her family.
Parents for Joy
www.parentsforjoy.org
Connect with Sarah on Facebook in either the Parents for Joy group or Special Needs Support group.
Parents for Joy
www.parentsforjoy.org
Connect with Sarah on Facebook in either the Parents for Joy group or Special Needs Support group.
Jun 07, 202146:27
Episode 13: An interview with Dan Vasquenza
In this episode Dan shares his parenting journey with his son, Jack, who has a diagnosis of (Chromosome) 18p deletion.
Resources mentioned in the episode:
Chromosome 18 registry and research society
www.chromosome18.org/
Major League Wiffleball
www.mlwmerch.com/pages/about-mlw
Kulture City
www.kulturecity.org/
Marcus Autism Center
www.marcus.org
Children's Healthcare of Atlanta
www.choa.org
The 18:80 Challenge (fundraiser)
chromosome18.salsalabs.org/18for80/index.html?fbclid=IwAR3YQ-vQOzIv_Dooq8r1ztInNijBTs5vgPpEBWygevZal-dc7ey1Z8ZYs6E
Resources mentioned in the episode:
Chromosome 18 registry and research society
www.chromosome18.org/
Major League Wiffleball
www.mlwmerch.com/pages/about-mlw
Kulture City
www.kulturecity.org/
Marcus Autism Center
www.marcus.org
Children's Healthcare of Atlanta
www.choa.org
The 18:80 Challenge (fundraiser)
chromosome18.salsalabs.org/18for80/index.html?fbclid=IwAR3YQ-vQOzIv_Dooq8r1ztInNijBTs5vgPpEBWygevZal-dc7ey1Z8ZYs6E
May 24, 202152:35
Episode 12: An interview with Sharon Thomas
In this episode Sharon Thomas shares her parenting journey raising her son, Nicholas, who is on the Autism Spectrum. Listeners can connect with Sharon by emailing her starlytedst@gmail.com.
May 10, 202140:21
Episode 11: An Interview with Simone Marques
In this episode, Simone Marques shares her experience as Lolo's mother. Lolo is an 8 year old boy who has a diagnosis of Pelizaeus-Merzbacher disease, which is a rare leuko-dystropy. Listeners can connect with Simone on Facebook.
Resources discussed in the episode:
PMD Family Support Facebook page
Project Surf Camp www.projectsurfcamp.com/
Resources discussed in the episode:
PMD Family Support Facebook page
Project Surf Camp www.projectsurfcamp.com/
Apr 26, 202135:03
Episode 10: An interview with Traceyann Hill
In this episode, Traceyann Hill shares her experience raising her son Avery in Brooklyn, NY. Avery has a diagnosis of Autism as well as Pervasive Development Disorder, not otherwise specified (PDD, n.o.s.)
Listeners can connect with Traceyann on her You Tube channel: Traceyann and Avery‘s Journey
Listeners can connect with Traceyann on her You Tube channel: Traceyann and Avery‘s Journey
Mar 16, 202130:23
Episode 9: An Interview with Carolyn Toman Mains
In this episode, Carolyn shares her experience raising her son William who has a diagnosis of Pelizaeus-Merzbacher Disease.
Mar 02, 202138:16
Episode 8: An interview with Patti Daviau
In this episode, Patti shares her experience as the mother of three boys with the diagnosis of Pelizaeus-Merzbacher Disease (PMD). Her family observed this genetic condition as far back as 8 generations and was involved in the initial research for this diagnosis. She is the founder of an incredible support network, PMD Family Support, and has been helping other families navigate their journey for over 30 years.
Feb 22, 202133:24
Episode 7: An interview with Cornelia Griffith
Cornelia shares her experience raising her son Oliver who has a rare leukodystrophy, Pelizaeus-Merzbacher Disease
Feb 15, 202137:41
Episode 6: An interview with Lexi Rohner
In this episode, Lexi Rohner, shares her experience raising triplets, two of whom have special needs.
Connect with Lexi at www.grparaequestrian.org
Connect with Lexi at www.grparaequestrian.org
Feb 08, 202158:37
Episode 5: An interview with Kim Holmes
In this episode, Kim Holmes, shares her experience raising her daughter Violet who has several diagnoses including alternating hemiplegia of childhood.
Feb 01, 202123:04
Episode 4: An interview with Chelsea Allred
Chelsea shares her experience with raising her two sons who have autism diagnoses.
Jan 25, 202122:02
Episode 3: An interview with Melissa Smith
Melissa shares insights and her experiences in raising her daughter, Hadley, who was diagnosed with a mutation of the Syngap1 gene.
Jan 18, 202132:30
Episode 2: An interview with Marianne Bal
Marianne shares about parenting her son, Valentin, who has a diagnosis of Pelizaeus-Merzbacher Disease (PMD), a rare leukodystrophy.
Jan 11, 202128:34
Episode 1: An interview with Alicia Lennox-Becker
Alicia shares her experience raising her son, Liam, who has a diagnosis of Pelizaeus-Merzbacher Disease (PMD) a rare leukodystrophy.
Jan 04, 202135:37