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Being Rare

Being Rare

By The E WE Foundation
Being Rare is a community conversations platform bringing awareness to several different topics and how they relate to the are disease and special needs communities. Being Rare is hosted by Sarita Edwards, wife and mom to 5, one having rare disease Edwards Syndrome, commonly known as Trisomy 18. From time-to-time you'll hear from Kareem Edwards stepping in as co-host.

The E.WE Foundation is a proud sponsor of the Being Rare podcast. www.theewefoundation.org
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One Minute Monday - Support

Being Rare

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One Minute Monday - Support
In this One Minute Monday Sarita talks about being the giver and receiver of support. Listen to 60 seconds of being rare.
00:53
July 13, 2021
Supportive Adult Series: Extended Bedside Manner
In this episode Sarita is joined by Licensed Master Social Worker Ebone Kimber to discuss bedside manner or the lack thereof. Listen as Ebone shares strategy nuggets for professionals and families. Join us for more conversation on Wednesday, July 14th at 10:00am, live on Facebook and Zoom. Learn more at theewefoundation.org.
15:33
July 8, 2021
One Minute Monday - Amazement
In this One Minute Monday Sarita talks about Elijah amazing himself with sound! Listen as she shares 60 seconds of being rare.
00:58
July 6, 2021
One Minute Mondays - Being Relatable
In this One Minute Monday, Sarita talks about the relatable journey of being rare. Listen as she shares 60 seconds of being rare.
01:02
June 29, 2021
Father's Day Takeover - Part Two
In this special Father's Day episode, Sarita's husband Kareem sits down with John Hart, Dadvocate to Harley, a 5 year old with Full Trisomy 18. Listen as John shares their journey of living with a rare disease.
32:41
June 24, 2021
Father's Day Takeover - Part One
Sarita's husband Kareem takes over Being Rare Studios in a two-part special Father's Day episode. In this episode Kareem sits down with Aaron Ludwig, rare Dadvocate to Mimi, his 3 year old daughter living with Full Trisomy 18. Listen as Aaron shares their Trisomy 18 journey.
43:09
June 22, 2021
One Minute Tuesday - Saying No
In this One Minute Tuesday, Sarita talks about saying no to invites. Listen as she shares 60 seconds of Being Rare.
01:01
June 22, 2021
One Minute Tuesday - Expectations
On this One Minute Tuesday episode Sarita talks about expectations from healthcare professionals. Listen as she shares 60 seconds of Being Rare.
01:12
June 15, 2021
One Minute Monday - Resentment
In this One Minute Monday episode, Sarita talks about shifting from resentment to a place of gratitude.
01:08
June 8, 2021
One Minute Mondays - Balance
In this One Minute Monday, Sarita talks about balancing family and self care.
01:08
May 31, 2021
The Power in Storytelling
In this final Mother's Day episode, Sarita talks with Effie Parks, podcast host at Once Upon A Gene about finding our people, sending our rare kiddos to school, and the power in sharing our stories. To learn more about Effie and her podcast, visit her online at EffieParks.com.
28:47
May 31, 2021
Family, Faith, & Trisomy 18
In this episode Sarita talks with Beverly Jacobson about balancing family, faith, and a Trisomy 18 diagnosis. To learn more about Beverly's new nonprofit, Verity's Village, find them on Facebook and Instagram.
36:32
May 31, 2021
Surviving Loss
In this episode, Sarita is joined by Allison Bones, CEO & President at T.E.A.M. 4 Travis. Listen as Allison shares her journey of surviving loss, overcoming grief, and finding her tribe. To learn more about T.E.A.M 4 Travis visit www.team4travis.org.
31:43
May 31, 2021
One Minute Tuesday
In this One Minute Tuesday episode, we talk about feeling isolated and unseen. Listen as we share 60 seconds on relationships!
01:00
May 25, 2021
One Minute Mondays - The Choice
In this One Minute Monday, Sarita talks about the choice of responding or dismissing people's questions and stares. Listen as she shares her truth.
01:08
May 17, 2021
One Minute Mondays - FEAR
In this episode, Sarita shares how sick visits can sometime carry overwhelm and fear. Listen as she shares her truth about fear crippling her faith.
01:11
May 11, 2021
Sick Days
In this episode, Sarita talks about the sometimes automatic "death conversation" that comes with taking a rare kiddo to an unplanned doctor's appointment.
02:25
May 6, 2021
Get To Know Us
In this sequel first episode, Kareem joins Sarita to talk about being rare, how their journey started, and why they started the E.WE Foundation.
14:05
May 5, 2021
Being Rare
We are excited to officially launch our first episode. In this episode, listen as Sarita shares information about their rare journey and what you can expect from the Being Rare podcast.
05:19
May 5, 2021
One Minute Monday - ACCESSIBILITY
Kareem & Sarita's eldest kid graduated college over the weekend. It was their first public event using Elijah's wheelchair. In this one-minute Monday Sarita shares their experience.
01:03
May 3, 2021
Being Rare - Trailer
Being Rare is a community conversations platform bringing awareness and exposure to several different topics and how they relate to rare disease and the special needs community. Stay up to date on current conversations by subscribing now!
00:34
December 20, 2020