Beyond the Loss: Real Talk about Life and Loss
By Pregnancy & Infant Loss Support Centre
Beyond the Loss: Real Talk about Life and Loss May 27, 2022
Growing in the Spaces Left Behind: A TFMR Story
This week, Aditi and Danyelle welcome Soraya and Zain to the podcast to discuss the loss of their son Amaanat. During his 20 week scan, they discovered that Amaanat had a non-fatal but significant brain anomaly, leading to their decision to terminate the pregnancy. Soraya and Zain talk candidly and openly about their experience, their decision making, and ultimately what it's like to make one of the hardest decisions a parent can make
Time Doesn't Heal Everything: The Work of Grief
This week, Aditi and Danyelle sit down to debunk some of the most pernicious myths about the grieving process. Danyelle speaks about how her own lack of understanding and resources led her to repeating the same unhelpful steps for many years. Coping, Danyelle points out, is not enough. Time doesn't heal everything. That's where grief work comes in. Instead of being a passive passenger to the process, grief work is an active approach, allowing you to process and move through your loss. For more information about grief work or anything else discussed in the episode, please reach out at pilsc.org.
Ten Years Out: Thoughts on Anniversaries/Milestones
This week, Aditi and Danyelle sit down to discuss the milestones of our grief journey and how our relationship to those milestones changes over time. Milestones can bring up a sense of expectations that we behave a certain way, but the truth is that each milestone is different for everyone. Instead of focusing on the expectations of how grief 'should' look, we are better served by honouring our personal truth in the moment. Aditi and Danyelle provide their insights and experiences about these emotionally charged moments.
If you're interested in finding out more about The Legacy Sponsorship Program discussed in this episode, please visit the site at: https://pilsc.org/donate-to-pilsc/legacy-sponsorship-program/
Race, Grief and Infertility: A Conversation with Dr. Loree Johnson
This week, Aditi and Danyelle sit down with Dr. Loree Johnson to talk about the intersection of race, infertility and grief. We do not all experience the same system of care when we go through loss, and it's important to recognize when others are at the receiving end of systemic societal prejudices that impact their lives. Together we must learn to see this inequity and work to make sure everyone receives the same kindness, support and care during the hardest moments of their lives.
Dr. Loree Johnson started her career in community-based mental health services focused on adolescents and their families but later transitioned to working in the infertility and loss communities after seeing many clients present with issues related to fertility and loss. Clients of color, in particular, expressed to her a sense of isolation and confusion about their fertility journey given how their experience challenged the dominant narrative that infertility and loss did not affect communities of color at the same rate as their white counterparts.
After her first-hand experience with fertility challenges taught her the importance of self-care for managing the physical and emotional stress that come with the fertility process, coupled with the lack of representation she saw of therapists of color in the fertility space, Dr. Loree found her purpose supporting individuals and couples on their path to parenthood.
Dr. Loree has combined her 25 years of professional clinical experience as a Licensed Marriage and Family Therapist (LMFT) with her own personal fertility journey to help others who are going through similar experiences. She currently lives and works in Los Angeles, California. She and her husband welcomed their rainbow in 2021 after 8 years of trying to conceive, three losses, and one TFMR.
If you're interested in contacting or learning more about Dr. Loree, you can reach out to her at @drloreejohnson on Instagram.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk with Sarah Cormier and Gillian Hatto
This week, Danyelle sits down with Sarah Cormier and Gillian Hatto to talk about and demystify the perception around SIDS/SUDI/SUDC. SIDS is a difficult topic with a lot of baggage behind it. How do you find a community afterwards? How do you manage the community you come from, who often don't have the tools or right words to help you? How do you begin the healing journey?
Sarah and Gillian have fought hard to raise awareness to SIDS/SUDI/SUDC, joining the SIDS Calgary Board and creating foundations in memory of their children that support other families suffering the devastating loss of a child. Sarah is now the Helpline Coordinator at PILSC and Gillian looks forward to hosting the next retreat for grieving mothers through Hazel’s Heroes.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
When Adult Friendships End
Grief and trauma change us, and what is sometimes surprising is how it can also change or end our adult friendships. This week, Aditi and Danyelle share from their journeys about the loss of adult friendships in their lives, what they've learned, and what they wish they'd known.
If you are struggling and want to connect, please reach out to us through our helpline: you can text with one of our peer mentors at 1-888-910-1551 or chat on our website www.pilsc.org.
Real Talk with Roopa Khanna
Asking someone about whether or not they are planning to have children is not the same as asking about the weather. Sometimes 'small talk' covers big topics. This week, Aditi and Danyelle sit down to talk with Roopa Khanna about her loss and experience with navigating interactions with people who don't often know the impact of what they're asking.
Roopa joined the board of PILSC to help bring a voice to those who may feel like they cannot speak about their losses. It is important for her that pregnancy and infant loss is a topic that is not in the shadows of society but rather often discussed.
If you are struggling and want to connect, please reach out to us through our helpline: you can text with one of our peer mentors at 1-888-910-1551 or chat on our website www.pilsc.org.
A Reading by Psychic Medium Erin Winters
Erin Winters is a psychic medium who works with spirits to provide guidance, meaningful messages, clarity, and gentle reassurance to her clients. This week she brings her skills to her reading with Aditi as they, along with Danyelle, try to find some guidance for the future of PILSC.
Erin has been an integral part of the Pregnancy and Infant Loss Support Centre from the beginning. She is very grateful to be offering her energetic channelings to this community.
If you are struggling and want to connect, please reach out to us through our helpline: you can text with one of our peer mentors at 1-888-910-1551 or chat on our website www.pilsc.org.
Real Talk with Ram Dass
This week, Danyelle and Aditi sit down with producer, multi-instrumentalist, and songwriter, Ram Dass, to discuss the ways music has helped him process loss. Ram Dass experiences music as spiritually and emotionally restorative. He inspires a unique potency through collaboration and improvisation that creates art greater than the sum of its parts.
If you want to learn more about Ram Dass, you can find him below on:
LinkTree: https://linktr.ee/ramdassmusic
Instagram: @ramdassmusic
Website: ramdassmusic.com
If you are struggling and want to connect, please reach out to us through our helpline: you can text with one of our peer mentors at 1-888-910-1551 or chat on our website www.pilsc.org.
One Question, Many Answers
At the end of every episode of Beyond the Loss, Danyelle and Aditi pose the same question to their guest: if you could reach back and tell yourself something from the beginning of your loss journey, what would that be? Over the last two seasons, we've had many different and beautiful answers to that question. As you look forward to whatever awaits you in 2022, listen to the people who have come before and charted this difficult terrain. Hopefully, it'll inspire you as it does us.
If you are struggling and want to connect, please reach out to us through our helpline: you can text with one of our peer mentors at 1-888-910-1551 or chat on our website www.pilsc.org.
Real Talk About Grief Over the Holidays
This week's episode is a re-release of our December 2020 recording where Aditi and Danyelle discuss the difficulties around grieving over the holidays. The holidays can be a difficult, confusing, stressful time, even without having to navigate through the grief journey.
We wish you a very gentle season. If you are struggling and want to connect, please reach out to us through our helpline: you can text with one of our peer mentors at 1-888-910-1551 or chat on our website www.pilsc.org.
We look forward to having you back in the New Year.
Real Talk with Candace Stephenson
This week Aditi and Danyelle sit down with yoga teacher Candace Stephenson to talk about the similarities and differences between their grief journeys ten years after loss. The three discuss grief over the holidays, how loss changes over time, and the coping strategies that have worked for them.
If you're interested in connecting with Candace, you can follow her on Instagram @thismomdoesyoga or check out her yoga services at www.strongandfreeyoga.ca.
For immediate peer support across each stage of the journey text our National Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk with Aaron Hoyland
Today Aditi and Danyelle sit down to talk to Aaron Hoyland about the non-birthing partner's perspective through the fertility journey. Together they discuss elements of traditional masculinity in relation to fertility as well as how fertility issues can obscure and overtake the relationship beneath it all.
If you want to connect with Aaron, you can find him on Twitter at @aaronhoyland
For immediate peer support across each stage of the journey text our National Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About Non-Birthing Partner Loss
When we talk about loss we often focus on the experiences of the birthing person. Sometimes the non-birthing partner is overlooked in the grief and loss that follows. This week, Aditi and Danyelle sit down with Jason Dykstra, father to four children (three who are living) about his experience as a supportive non-birthing partner during loss.
In addition to being a father, Jason is a husband to one and helper to many. For the last decade, he has helped people get comfortable being uncomfortable in the capacity of a coach, mediator, writer, and teacher. As an international speaker and trainer, he specializes in interpersonal communication skills, mental health, and conflict transformation. Jason helps hold the difficult spaces so that you don't have to go it alone.
For immediate peer support across each stage of the journey text our National Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About Rituals After Loss
Ritual and ceremony help define our lives. There are so many rituals for new babies - first month photos, baby showers - but none for when a pregnancy ends in a loss. This week, Aditi and Danyelle speak with Kelly Hurley, a Life-Cycle Funeral Celebrant, about her practice of providing space and structure for grieving families to celebrate and process their loss through ritual.
About:
Kelly- Ke/Lee Hurley- Her/Lee
As a certified Life-Cycle Funeral Celebrant, Kelly serves families as a ceremony and ritual guide. For those special goodbyes that are needed when experiencing pregnancy or infant loss, she companions parents providing After-Death ceremony and ritual guidance in a hospital, home setting or funeral home, Remembrance rituals for pregnancy loss; funerals and memorials. Kelly became a Celebrant after a career of counselling people undergoing loss, trauma and mental health challenges. Her soul’s purpose is to be a ceremonialist of a new age and keeper of the sacred for all who love, grieve and transition; and for all those who don’t have a voice.
Contact information:
https://www.withgracepregnancyinfantlossceremonies.com/
www.instagram.com/withgracecelebrantkellyhurley
www.facebook.com/kelly.hurley.14855
www.pinterest.com/withgracekhurley
For immediate peer support across each stage of the journey text our National Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk about How Culture Impacts Grief
Even though loss connects us all, how we experience that loss is very different. A person's culture can dramatically change the number of supports and obstacles that appear on their journey through grief. This week, Aditi and Danyelle sit down with guest Agnes Jensen to discuss the impact culture has had on her loss.
It was during this loss of her child Elliot that Agnes encountered the conflict between her own feelings and need for support with those of the Indian community and culture she came from. Agnes is the co-founder of After Baby Loss, an online community that nurtures and supports fellow Indian mothers struggling.
If you want to learn more about Agnes and her work you can find her on Instagram at @agnesrjensen or @afterbabyloss. Her website is www.afterbabyloss.com.
For immediate peer support across each stage of the journey text our National Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk about Ending a Wanted Pregnancy
This week, Aditi and Danyelle sit down with their guest, Jena Colpitts, to have a candid conversation about terminating wanted pregnancies for medical reasons.
In 2019, Jena and her husband went to their 20-week ultrasound, and it would change their life. After the loss of her first child, Isla, at 22 weeks gestation, Jena joined the community of those navigating life after pregnancy loss. She has been active in speaking about her experience of pregnancy loss and believes that creating an open dialogue is the catalyst for change.
For immediate peer support across each stage of the journey text our National Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk With Jessie Mundell
This week, Adiit and Danyelle sit down to talk about our postpartum bodies, how we feel about them, and how we're taught to feel about them by the fitness industry with Jessie Mundell. Jessie is in the business of bodies, putting her expertise in prenatal and postnatal exercise to work supporting people in their self-care so they can heal faster and reconnect with their bodies. Together they discuss central problems with fitness that are rarely brought up such as inherent bias, privilege and systemic racism.
You can find more about Jessie on her site or on her podcast, To Birth and Beyond. For immediate peer support across each stage of the journey text our National Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About Infertility
Content Warning: Mention of suicide 15:30 - 17:11
This week, Aditi and Danyelle are joined by Erin Keable to talk about her struggles of infertility and male factor infertility. Erin and her partner's journey to be parents is a long and ongoing one. For seven years they have made multiple attempts through IUI and IVF. Erin is a volunteer with PILSC doing the social media postings as well as a co-facilitator of the new Peer Support Group for Fertility starting in the Fall.
For immediate peer support across each stage of the journey text our National Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk With A Spiritual Medium
This week is a little bit different as Aditi and Danyelle (www.pilsc.org) sit down to talk with Shauna Domalain. Since losing her son, Jack, and going through her own grief and healing journey, Shauna has used her spiritual gifts as a medium to assist parents in connecting with their lost children on the Other Side.
This week's episode is sponsored by Alison Lang Real Estate. Please visit alisonlang.ca
To contact Shauna Domalain, please visit her website at: www.livealifeyoulove.org or shauna@livealifeyoulove.org or telephone: 403.923.9894
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk with Rachel Whalen
This week, Aditi and Danyelle (www.pilsc.org) welcome Rachel Whalen to the podcast. Rachel is a mother, writer, and advocate for the pregnancy and infant loss community. After enduring two miscarriages and the stillbirth of her daughter, Dorothy, she began to write about her experiences on her blog, An Unexpected Family Outing. Her blog quickly became a source of validation and comfort for those who had experienced their own heartbreak. An Unexpected Family Outing is a place for everyone so that you never have to be alone.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About the Movement Through Grief
This week, Aditi and Danyelle (www.pilsc.org) warmly welcome Melo Garcia to the podcast. Melo is a grief specialist assisting those who have lost what can't be replaced. She created After Chloe, an online community that provides support, resources, and assistance through the difficult grief journey. You can learn more about Melo, After Chloe and her new podcast, The Resilience of Grieving at www.afterchloe.com. Together, the three discuss the movement through and within grief, as well as the often undiscussed impact a loss can have on our relationships.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk about Navigating Loss With A Living Child
This week, Aditi and Danyelle (www.pilsc.org) sit down to discuss Danyelle's journey of navigating the loss of one child while parenting another. The loss of a child affects the whole family, often in different ways that change over time. Danyelle shares her experience, the lessons she's learned, and the things she wished she'd known or had available to her at the time.
Resources discussed in the episode:
We Were Gonna Have A Baby, But We Had An Angel Instead by Pat Schwiebert
Art Therapy for Sibling Loss through The Pregnancy and Loss Center
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About Signs
This week Danyelle and Aditi (www.pilsc.org)sit down to talk about the signs that come up during our journey through grief, signs that lead us to healing and to moving forward in our lives. If you have a story of how a sign helped you along the path, we would love to hear it. You can send those in here info@pilsc.org
“There is an intelligence in the movement of life, which goes far beyond the limited intelligence of your thinking mind. This is the spirit”~Eckhart Tolle
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real talk with a Grandparent (Nanima)
This week is a little bit different. This week Aditi and Danyelle (www.pilsc.org) sit down with Rekha Chugh who immigrated to Canada from India 40 years ago. Rekha has two living children as well as two angel babies. And one of those living daughters is Aditi. This week, Aditi and Danyelle sit down with Aditi's mother to talk about intergenerational experiences of loss and how not knowing what the right thing to say or do has inspired them all to be helpers to others in their situation.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About Navigating Assisted Fertility
This week, Aditi and Danyelle (www.pilsc.org)sit down to talk to guest Maggie McGee about her assisted fertility journey. Maggie reflects on coming to grips with the loss of the life she envisioned and how building a family comes in many ways and shapes, as well as at different times for everyone.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk about Termination For Medical Reasons (T.F.M.R)
This week, Aditi and Danyelle (www.pilsc.org) sit down with certified bereavement and fertility doula, Hadeer El Hindawi, to discuss her own journey through loss. In December 2019, at Hadeer's 20 week ultrasound, her son was given a terminal diagnosis, Anencephaly. She had to make the gut-wrenching decision of whether to continue or terminate the pregnancy the next day. She chose the latter and what followed were the worst hours of her life. Hadeer shares more about her experience and how she has navigated this difficult journey.
You can contact Hadeer through:
- website
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk With the Authors of "Don't Struggle in Silence--I am Resilient"
This week, Aditi and Danyelle www.pilsc.org welcome five authors of the upcoming book collaboration "Don't Struggle in Silence - I Am Resilient" to share their unique stories of pregnancy loss and their healing journeys. "Don't Struggle in Silence - I Am Resilient" releases May 2, 2021 and books can be purchased through the publisher at www.ashleykpittman.com.
The authors:
Aimee Rivenbark @aklealea123
Aime Lands @amielandsauthor
Michelle Smith @Miracle_Speaks
Aviva Solson- avivanronen.solson on Facebook
Jasmine Welch-@Hustle52weeks
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About Toxic Positivity
This week, Aditi and Danyelle (www.pilsc.org) sit down to discuss toxic positivity. Even if you haven't heard the term before you know exactly what it is. Toxic positivity is the mindset that you should always put a positive or optimistic view on your situation while dismissing your very real distress and discomfort. Together, Aditi and Danyelle discuss their experience with toxic positivity, what to look out for and how to move beyond it.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk on Cultural Identity & Early Pregnancy Loss
This week, Aditi and Danyelle (www.pilsc.org) welcome Rebecca Foshole-Luke to the podcast. Rebecca is a forensic social worker who works with parents/guardians providing advocacy, education, and support as they navigate the child welfare legal system. She hopes that by sharing her story and experience with pregnancy loss, it will allow for more openness to talking about pregnancy loss and create more spaces for support for women and families. Together, the three discuss the treatment of racialized persons when seeking treatment and the different ways backgrounds can impact the experience of loss.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About Termination
This week, Aditi and Danyelle (www.pilsc.org) welcome Cait Reynolds to the Beyond the Loss podcast. Cait (she/her) is a Political Science graduate and dog mom. She is passionate about social justice and policy reform for disenfranchised and overlooked groups, and is pursuing a career in law so that she can be a part of meaningful change for high-need demographics. Cait volunteers at PILSC because the mission is very close to her heart. Having gone through her own loss, Cait finds it incredibly rewarding to be a part of a group that helps so many navigate their journeys through grief. Together, the three discuss the range of experiences surrounding termination and how grief looks different for everybody.
Real Talk About Pregnancy After Loss
March is Pregnancy After Loss Awareness Month and this episode Aditi and Danyelle (www.pilsc.org) share their own experiences with pregnancy after loss. They talk about their expectations, their regrets, what they wish they knew and provide tips for anyone in the same place.
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org
Real Talk About Life and Loss with Parijat Deshpande
This week, Aditi and Danyelle (www.pilsc.org) are proud to welcome Parijat Deshpande to the Beyond the Loss podcast. Parijat is a clinical therapist, an author, an advocate and high-risk pregnancy specialist. Her book Pregnancy Brain: A Mind-Body Approach to Stress Management During a High-Risk Pregnancy, was named One of the Best Pregnancy Books by Bookauthority.
To get more information on Parijat, you can reach her through:
- Twitter: @ParijatDesh
- Facebook: @ParijatDesh
- Instagram: @healthy.highriskpregnancy
- Website: https://www.parijatdeshpande.com/
For immediate peer support across each stage of the journey text our national Pregnancy & Infant Loss Helpline at 1-888-910-1551 or chat on our website at www.pilsc.org