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Aunty M Brain Tumours Talk Show

Aunty M Brain Tumours Talk Show

By Claire Bullimore

Aunty M Brain Tumours Talk Show - A podcast sharing inspiring stories of brain tumour survivors. Join our supportive community for heartfelt interviews, insights from medical experts, and empowering tales of resilience. Tune in, be inspired, and spread awareness on the path of brain tumour recovery.
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Carol Vaughan Was In A coma For 12 Days

Aunty M Brain Tumours Talk ShowAug 26, 2023

00:00
11:48
Johnathan's Glioblastoma Multiforme Story

Johnathan's Glioblastoma Multiforme Story

In this episode of Aunty M Brain Tumours Talk Show, Johnathan shares his brain tumour story. Johnathan experienced a sudden and severe onset of symptoms the day before Thanksgiving, leading to an unexpected diagnosis of glioblastoma multiforme (GBM).

Johnathan recalls the ordinary start with what he assumed were hereditary migraines. Still, he details how things took a severe turn when he could no longer comprehend text and experienced severe dizziness and vertigo, prompting an emergency room visit. This visit quickly escalated as medical tests revealed a mass on his brain, leading to urgent referrals and treatments that upended his life.

Despite the shocking and rapid progression of his condition, Johnathan talks about the ongoing treatment, including surgery and the use of an Optune device, and how these have impacted his daily life. He also touches on the emotional and psychological effects of his diagnosis, both on himself and his family.

Throughout the conversation, Johnathan shares insights into his coping mechanisms, including starting a blog to share his experiences and connect with others in similar situations. He emphasizes the importance of community support, positive thinking, and adapting to a "new normal."

Visit Johnathan's blog and connect with him here www.johnvsgbm.com


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Apr 12, 202423:43
Pamela's Meningioma Story
Mar 28, 202429:53
Laura's Glioblastoma Multiforme Story
Mar 27, 202426:24
My Granddaughter's Optic Pathway Glioma Story
Mar 26, 202434:11
Brenda's Meningioma Story
Mar 25, 202441:24
Matthew's Astrocytoma Story
Mar 24, 202426:32
Mel's Pilocytic Astrocytoma Story
Mar 23, 202438:49
Kimberley's Astrocytoma Story
Mar 22, 202430:59
Stefania's Meningioma Story
Mar 21, 202437:48
Yaron's Glioblastoma Multiforme Story
Mar 20, 202436:12
Paris' Pituitary Tumour Story
Mar 19, 202430:27
John's Glioblastoma Story (Told by his Family)
Mar 18, 202429:33
Susan's Acoustic Neuroma Story
Mar 17, 202431:03
Brian and Emma's Oligodendroglioma Story
Mar 16, 202441:39
Rudy's Diffuse Astrocytoma Story
Mar 15, 202432:09
Grace's Pilocytic Astrocytoma Story
Mar 14, 202441:59
Henna's Brain Tumour Story
Mar 13, 202442:57
Natalie's Acoustic Neuroma Story
Mar 12, 202431:07
Rebecca's Brain Tumour Story
Mar 11, 202437:21
Simona's Cavernoma Story
Mar 10, 202401:08:40
Molly's Astrocytoma Story
Mar 09, 202442:50
Ashleigh Hunter: Me and My Dad
Mar 08, 202431:27
Lucy's Astrocytoma Story
Mar 08, 202420:44
Stephanie's Mother was Diagnosed With A Brain Tumour
Mar 06, 202413:42
Kiera's Medulloblastoma and Posterior Fossa Syndrome Story
Mar 05, 202427:48
Jamie's Astrocytoma Story
Mar 04, 202428:48
Holly's Central Neurocytoma Story
Mar 03, 202417:08
David's Brain Tumour Story
Mar 02, 202424:24
Kate's Pituitary Tumour and Acromegaly Story
Mar 01, 202433:25
Maxine's Meningioma Story
Mar 01, 202438:39
Melinda's Posterior Fossa Meningioma Story
Mar 01, 202411:31
Zach's Brain Tumour Story
Jan 06, 202428:17
Garrett's Ganglioglioma Story
Dec 08, 202322:58
Andy's Brain Tumour Story
Nov 24, 202334:55
Marcus Elwell Brain Tumour Story
Nov 18, 202349:13
Finding Strength in Shared Brain Tumours: Michelle and Karina
Nov 14, 202324:04
Israr's Clival Meningioma Story
Nov 11, 202321:55
Coping with Brain Tumours: A Conversation with Sam

Coping with Brain Tumours: A Conversation with Sam

The "Aunty M Brain Tumours Talk Show" is an informative and inspiring podcast featuring discussions about brain tumours and the experiences of those affected by them. In this episode, Sam shares her journey with brain tumours, beginning with her diagnosis in June 2013. She initially experienced symptoms like pulsatile unilateral tinnitus, balance problems, odd posture, and back and abdomen pain. Sam went through multiple medical appointments, leading to the discovery of two brain tumours—one in her cerebellum and another in the occipital lobe. The one in her cerebellum was surgically removed, but she continues active monitoring.


Sam discusses the psychological challenges of living with the uncertainty of her condition and the possibility of future surgeries due to her diagnosis of neurofibromatosis type 2. She highlights the importance of a support network, her new partner, friends, and counselling in coping with these challenges. Sam also talks about the impact of fatigue, speech difficulties, and clumsiness on her daily life.


The conversation touches on the significance of some people in naming their tumours, the need for knowledge and control, and the kindness of caregivers during hospital stays. Sam's story exemplifies resilience and the diverse ways individuals cope with life-changing diagnoses.


Follow Aunty M Brain Tumours on:

You can also find out more on the Aunty M Brain Tumours Blog -⁠⁠⁠⁠⁠⁠⁠⁠  ⁠⁠Click Here.⁠⁠ 

Nov 07, 202335:29
Revolutionizing Cancer Treatment: The ChemoSeed Implant
Nov 02, 202327:30
The Power of Petitions in Brain Tumor Research

The Power of Petitions in Brain Tumor Research

In this Aunty M Brain Tumours Talk Show episode, we speak to Hugh Adams from the charity Brain Tumour Research. He talks about their goal to reach 100,000 signatures by Wednesday. They already have well over 70,000 signatures but need one last push with your help.

Sign and share the petition HERE

Hugh talks about the power of Petitions and why the public can make history with this last push.

"We are calling on the Government to ring-fence £110 million of current and new funding to kick-start an increase in the national investment in brain tumour research to £35 million a year by 2028 Sign and share the petition" - Brain Tumour Research

Sign and share the petition HERE "Brain tumours kill more children and adults under the age of 40 than any other cancer yet, since records began in 2002, just 1% of the national spend on cancer research has been allocated to this devastating disease" - Brain Tumour Research Sign and share the petition HERE

Follow Aunty M Brain Tumours on:

You can also find out more on the Aunty M Brain Tumours Blog -⁠⁠⁠⁠⁠⁠  ⁠⁠Click Here.⁠⁠ 


Oct 28, 202315:05
Arvin Koshal: I Had 6 Brain Tumours
Oct 23, 202309:11
Ellen Yates Reflects on her Acoustic Neuroma Diagnosis and Fundraising
Oct 15, 202312:06
Harmonizing Hope: Brain Tumour Advocacy & Creative Resilience
Oct 01, 202331:26
Carol Vaughan Was In A coma For 12 Days

Carol Vaughan Was In A coma For 12 Days

Aug 26, 202311:48
The Challenges of Brain Tumours and Understanding Personal Independence Payments (PIP)
Aug 23, 202312:16
I Bounced Back Very Quickly After My Brain Tumour Surgery
Aug 19, 202306:26
My Son asked me to Write a Book about His 10-year Brain Cancer Battle
Aug 18, 202307:55
Overcoming Epilepsy and Seizing Life
Aug 10, 202306:41
The Removal of a Sphenoid Wing Meningioma Left me with Hemiplegia
Aug 07, 202306:51
My Brain Tumour is Pressing on my Optic Nerve
Jul 31, 202306:44