FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network
By Carole Scrafton
FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease NetworkSep 08, 2021
Rare Disease Male Support Group – mental health community support.
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
The word ‘ataxia’ comes from the Greek ‘a taxis’, which means ‘without order’.
Our mission is to bring back some of the order to the lack of order.
It is the term used for a group of neurodegenerative diseases that affect balance and coordination.
Ataxia and Me are a partner organisation of FibroFlutters with us mutually supporting the work of each other. Helping to raise awareness of Ataxia is important to improve the understanding of the disease so that people know what it is.
This episode is also available as a blog post: https://fibroflutters.com/2021/08/31/international-ataxia-awareness-day-25th-september-with-ataxia-and-me/
Fibromyalgia Awareness Week 2021 – #BecomeFibroAware
This week is Fibromyalgia Awareness Week 2021 where fibro related communities, charities and organisations come together to raise awareness of this debilitating condition. Here at FibroFlutters we advocate and support our Mother host Fibromyalgia Action UK. This charity works relentlessly to raise awareness and support people with fibromyalgia.
"It is the type of chronic illness that leaves people with variable symptoms and feeling different from one day to the next. The main symptom being chronic pain that is difficult to manage and interferes with how people conduct their daily activities."
This episode is also available as a blog post: https://fibroflutters.com/2021/09/05/fibromyalgia-awareness-week-2021-becomefibroaware/
