The Sound of Hope

This week Jami and Sean, editor of the podcast, give an update on the podcast and what's been happening behind the scenes at Chronic Hope. We explain why we there hasn't been new episode of the podcast and give a teaser at some of our upcoming  projects

Jessica (@chronicallycss) joins Jami this week as they chat about life during lockdown and living with chronic illness. Jessica shares her journey with Central Sensitisation Syndrome and how life is in lockdown. She shares some of the coping mechanisms she's been using - particularly meditation and relaxation techniques - and other tips to stay positive during these times.

Jake Heilbrunn (@jakeheilbrunn) joins Jami as he shares his insightful journey with Lyme disease. He walks us through how he got diagnosed and how its impacted its entrepreneurial lifestyle. Jake talks about the stigma that surround men and chronic illness and speaks about his path to recovery.

This week Jami is joined by Erica (@ambitiously_a_crohnie) a Chronic Hope ambassador as they discuss working with a chronic illness. They go over the challenges faced by the chronic illness community in the workplace, when to tell your boss/employer about your condition and knowing your rights as an employee.

This week Yasmine (@yasmine.shakur) joins Jami on the podcast to discuss all things art, creativity and chronic illness. She shares how drawing helped her on her recovery journey. They talk about art as medium for conveying emotion and as a tool to raise awareness and understand for chronic illness. Yasmin also shares her insight on being creative and how to find your own creative outlet

Jes (@house_of_spoons)hops on the podcast as she shares her experience being a spoonie parent. She shares how she manages her spoons - spending time with the kids, dealing with flare ups, and the benefits of having a daily routine.

Matt (@chronicallymindfulmatt) joins the podcast to chat about mental health and masculinity. He speaks about his time in the navy and the hyper masculine environment found within. He discusses the stigma around men's mental health and the benefits of meditation and mindfulness.

Elya (@corra.health) returns to chat about a short tangent from last time - her mobility assistance service dog Kana! She talks about the process of getting a service dog for her needs and how having Kana by her side has greatly improved her life. She and Jami also touch on their own experiences with disability, acknowledging and accepting one's circumstance and condition.

This week Kia (@livewellwithkia) takes Jami for a deep dive into the science behind autoimmune diseases and the importance of good diet for gut health and chronic inflammation.

This week we have Niamh (@ibs_fighter) joining Jami to talk about life as a dancer/performer living with IBS and anxiety. She speaks about how anxiety and IBS affected her as a dancer and the mindset shift she implemented to continue on. Niamh also highlights the importance of having a strong and understanding group of friends/support network to open up about any health issues and be honest with your struggles.

For our first guest of 2021, Talia (@taliamiele) joins the podcast to chat about food. From tips on food prep to managing dietary restrictions, she shares her advice and insights on how she manages food challenges as a spoonie. She and Jami also take a deep dive into food mindset and how it plays into our lives

McKay (@chronically_sick_) joins the podcast this week to discuss all things EDS and POTS. She shares her experience with POTS and EDS and how advocating for herself with doctors lead to a proper diagnosis. She gives advice to those who may be in similar situations and shares tips on how to deal with the undiagnosed phase

Jason (@we_at_one) hops on the podcast to talk all about natural healing. He goes into how you can heal your inner self as well as the natural ways he used to heal from IBS. He shares some of the strategies and foods he took along his healing journey from IBS.

Rene (@motivmax) joins Jami this week to share his journey with ankylosing spondylitis (Bechterew's disease) and yet despite this went to train and complete a half marathon earlier in the year. He talks about how he changed his mindset and maintains his motivation in completing his goals

Steff (@totallyfunkless) joins the podcast this week to discuss writing and advocating for chronic and mental illness. She talks about how she started writing and how her work brings insight into the experiences of those living with chronic illness. Steff also discuss her time freelancing and writing articles for the spoonie community

This week Jami is joined by Elya to talk about what it's like being a spoonie entrepreneur. She shares what it's like building a business as a spoonie in hustle culture and managing flare ups in the context of running a business. She also shares her latest business Corra Health - a health app desinged for individuals who suffer from chronic illnesses which will allow them to track symptoms, identify triggers, and collect data that can be shared with their medical care professionals

Emily (@movementwithmigraine) joins Jami to talk about the power of movement and exercise. She shares her thoughts on how to strike a balance between exercise and rest.  They discuss the importance of trusting our bodies and the impact fitness culture plays in our mindset towards exercise

This week Stephanie (@steffischaupp/@chronicallymyownhero) joins Jami on the podcast as they discuss living and moving in different countries as spoonies. Both from and having lived in 3 different countries they discuss cultural differences and share experiences living abroad. Stephanie also shares some of her experience with dealing with different doctors and healthcare systems. Finally they share some tips for spoonies looking to move and live overseas

Chris (@rocdoc38) shares with Jami his recovery from CFS (Chronic Fatigue Syndrome). Chris shares the top 4 principles to his recovery  journey: mindset, nutrition, quality sleep and restorative movement. Join us as he takes a deep dive into how each of these principles shaped and guided his path to recovery.

This week Jami does her first solo podcast to talk about a variety of things: from how Chronic Hope was founded, her CFS journey and recovery, and where she's at in life right now and what future holds for her and Chronic Hope

This week Emma joins the pod to talk about her journey with CFS. She had CFS from a young age, recovered then got CFS again and is now back on the path to CFS. Emma and Jami share some of their thoughts and mindsets as they went through their journeys - some of the traumas, anxieties and worries they faced

This week Paul Hansma, a physicist from USCB, joins the podcast to talk in depth about some of the science behind chronic pain. He talks about the link between the brain and chronic pain. Paul also goes into some techniques  to reduce sensitization from the pain: learning, activity, biofeedback, guided imagery and mediation.

A long awaited podcast with Taylor! (@plottwistparenting). This week Jami and Taylor discuss the ins and outs of homeschooling. They touch upon what homeschooling is like and education during the pandemic. Taylor also shares her tips for those parents homeschooling their kids as well as managing her day to day as a spoonie.