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Voice of EHDEN

Voice of EHDEN

By EHDEN_Account
Welcome to the European Health Data and Evidence Network (EHDEN) an Innovative Medicines Initiative (IMI) public private project. More via ehden.eu. In this podcast experts will discuss key aspects of working with real world health data in large scale observational research, network studies and building 21st century research architectures. International thought leaders, EHDEN Partners and others will share experiences and perspectives, and we hope that this will be both informative and inspirational!
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Global open science and observational research: a conversation with international thought leader, Patrick Ryan, OHDSI & Janssen

Voice of EHDEN

Global open science and observational research: a conversation with international thought leader, Patrick Ryan, OHDSI & Janssen

Voice of EHDEN

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The intricacies of data quality, the Data Quality Dashboard, and a new sub-specialty focus on data quality: a discussion with Clair Blacketer
In this episode we discuss a definition of data quality and some of the inherent challenges with real world data quality with Clair Blacketer, Janssen Epidemiology, OHDSI and Erasmus MC. Clair describes the work she and colleagues have been engaged in on the development of a criteria-driven Data Quality Dashboard (DQD). some recent publications (Blacketer, et al, and Blacketer, et al), and the impact of using the DQD and process with Data Partners from the EHDEN COVID-19 call (2020). We discuss the experience in the field of using the DQD and the insights on quality of source and mapped data, as well as the iterative stages in enhancing the quality of data in the Common Data Model. Finally, Clair discusses the emerging 'sub-specialty' of data quality and aspirations for the expansion of her and others work on the DQD. More information on the DQD can be found on the OHDSI GitHub here.
37:53
November 30, 2021
The EHDEN SME Directory & SME experiences with Data Partner mapping to the OMOP CDM
In this episode, we are pleased to speak with Andreas Kremer, Co-Founder of ITTM Solutions, Luxembourg, and Mark Rogers, ETL Product Manager, Imosphere, UK, representing two of our small-to-medium-sized-enterprises (SMEs), who are part of the expanding network of EHDEN-certified SMEs in Europe. They both share the impetus for joining this EHDEN programme, and discuss the experience and learning from working with Data Partners on mapping their source data to the OMOP common data model. Importantly, there are many levels of engagement, support and development beyond the focus on an ETL. Lastly, we speak about the future role of SMEs in European research more widely, and their integral role in enabling programmes, projects and initiatives utilising real world data.
28:25
November 18, 2021
Joining EHDEN as a Data Partner: experiences from UK Biobank and UCL
In this episode, we hear from Václav Papež, Research Associate at University College London (UCL), about the onboarding experience of UCL and UK Biobank as an EHDEN Data Partner. We discuss some of his latest research on defining phenotypes in data from electronic health records, his experiences with mapping data to the OMOP CDM with The Hyve in the IMI BigData@Heart project, as well as the recent EHDEN E-THON (Evidence-a-thon) and his experiences in participating in medical evidence generation in the EHDEN Network.
19:03
November 4, 2021
Improving the quality of cancer care for this and future generations: a conversation with James N'Dow about the EHDEN / PIONEER / OHDSI prostate cancer study-a-thon
In this episode, we dive into a very important healthcare topic: how collaborations with patients, clinicians and professional medical societies can help us generate evidence from observational data to advance cancer care. We discuss the joint EHDEN / PIONEER / OHDSI study-a-thon about prostate cancer earlier this year with our guest, James N'Dow, Adjunct Secretary General for Education at European Association of Urology and Professor of Urology at the University of Aberdeen, Scotland, and also PIONEER Academic Coordinator. We also touch upon the relationship between RCTs (Randomised Controlled Trials), observational studies, real-world outcomes and how important they are to inform clinical guidelines and improving the quality and experience of cancer care for patients.
25:56
October 21, 2021
Patient involvement with Open Science - a conversation with the European Patient Forum
In this episode, Gözde Susuzlu, Project Coordinator, and Estefania Cordero, Project Communications Officer, at the European Patients Forum discuss the rise of patient involvement in healthcare research, the need for support and digital literacy, and the role of such programmes as EHDEN. They explore the DataSavesLives initiative and the wider European Health Data Space (EHDS) development, finishing with the insights derived from the recent EPF survey conducted on the impact of the COVID-19 pandemic on patients and patient organisation. The EPF 2021 Congress will be held virtually 26-29 October, more information here.
24:12
October 7, 2021
How open science is changing medical research in the era of COVID-19
In this episode, Dani Prieto-Alhambra, Professor of Pharmaco- and Device Epidemiology University of Oxford and academic lead for the work package in EHDEN focusing on the generation of real world evidence, talks about COVID-19, and how new, open science ways of working such as study-a-thons are influencing medical research.
24:23
September 26, 2021
Global open science and observational research: a conversation with international thought leader, Patrick Ryan, OHDSI & Janssen
In our first episode of season one, Patrick Ryan, PhD, VP Observational Health Data Analytics, Janssen R&D, Assistant Professor, Adjunct; Department of Biomedical Informatics, Columbia University Medical Center, and founding member of Observational Health Data Sciences & Informatics (OHDSI) joins us to discuss the last decade of OHDSI's and now EHDEN's methodological and tool development. We expand into COVID-19 and the pandemic's impact on observational research, and conclude by discussing OHDSI's educational remit and the need for upskilling in the research community. The Global OHDSI Symposium is 12-15th September, 2021 - more information via OHDSI.org.
23:43
September 9, 2021
Voice of EHDEN Trailer
Welcome to season 1 of the Voice of EHDEN (VoE) podcast series. VoE will bring together a broad range of experts, all of whom are working at the edge of new developments with real-world healthcare data and large-scale research at all levels. They will share their first-hand experiences and help us gain a better understanding of the challenges and progress being made on this front. For more information about EHDEN, upcoming and past episodes, or to suggest future topics, please visit our website: www.ehden.eu
02:52
September 7, 2021