Skip to main content
Sleep Apnea Stories

Sleep Apnea Stories

By Emma Cooksey
Sleep Apnea Stories is a podcast featuring guests who are coping with sleep apnea and the medical experts who treat them. The goal of the podcast is to shatter stereotypes around sleep apnea. We also want to build a community of people coping with Sleep Apnea to provide inspiration and hope to listeners. Do you have Sleep Apnea? Would you be willing to share your story with our community? If so, I'd love to hear from you! Email: sleepapneastories@gmail.com
Photo credit: Kate Gardiner www.instagram.com/kategardiner
CPAP Mask credit: ResMed Airfit f30i www.resmed.com
Listen on
Where to listen
Breaker Logo

Breaker

Google Podcasts Logo

Google Podcasts

Overcast Logo

Overcast

Pocket Casts Logo

Pocket Casts

RadioPublic Logo

RadioPublic

Spotify Logo

Spotify

Currently playing episode

40 - Teresa DeNike - Sleep Coaching

Sleep Apnea Stories

40 - Teresa DeNike - Sleep Coaching

Sleep Apnea Stories

1x
42 - Larry Shaw - Dual Band Chin Strap
Emma is joined by Larry Shaw, the inventor of the Knightsbridge Dual Band Chin Strap.   Together they discuss:  * Larry's own personal journey with snoring and sleep apnea;  * How his symptoms of increased daytime sleepiness mounted gradually over time;  * Larry's reluctance to go to a doctor about his sleep apnea and his approach of trying to figure it out himself;  * The impact of sleep problems on his relationships;  * Trying chinstraps on the market to keep his mouth closed at night;  * Coming up with a better design for the Knightsbridge Dual Band Chin Strap to keep the mouth closed without undue pressure being placed on the TMJ;  Larry's Knightsbridge Dual Band Chin Strap: https://dualbandchinstrap.com/  Follow the podcast (and enter the winter giveaway!) on Instagram: www.instagram.com/sleepapneastories  Emma mentioned Dr Steven Park's podcast on Sleep Apnea - watch or listen here.   She also mentioned Instagram live on the men's health with Dr Joshua Roland with "The Coach" app.  Find it here. This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma  Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
44:38
November 24, 2021
41 - Kajsa Bradley - Sleep Apnea and Mental Health
Emma is joined by Kajsa Bradley.  Together they discuss:  * Struggling with depression and anxiety as a teenager but not receiving mental health treatment;  * Kajsa being away from home in Europe and reaching a mental breaking point;  * Starting therapy - feeling shame and judgment about seeking help from a therapist;  * Moving back to Oregon and trying several therapists before finding a great therapeutic match;  * Kajsa having a sleep study and being diagnosed with severe obstructive sleep apnea;  * Feelings of relief because diagnosis gave some treatment options but also having feelings of shame and embarrassment;  * Adjusting to CPAP therapy well, to begin with, but then developing problems with wearing the mask all night;  * Being labelled CPAP "non-compliant" and having surgery with an ENT and seeing a reduction in AHI;  * Kajsa starting a blog to write about her experiences and help other people.  Kajsa's blog: https://www.mentalhealthnaps.com/  Follow Kajsa on Instagram: www.instagram.com/mental_health_naps_  Follow the podcast on Instagram: www.instagram.com/sleepapneastories  This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma  Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
01:13:52
November 17, 2021
40 - Teresa DeNike - Sleep Coaching
Emma is joined by Teresa DeNike at Sleep Better NYC.  As a sleep coach, Teresa explains: * what a sleep coach does and how they can help people struggling to get quality sleep; * how a sleep coach can help someone with sleep apnea navigate different options; * Teresa's background working for an oral appliance manufacturer; * mouthguards and other devices people buy randomly online and think they are treating their sleep apnea but they're NOT! Connect with Teresa on Instagram: @sleepbetternyc www.sleepbetter.nyc Connect with Emma on Instagram: @sleepapneastories www.sleepapneastories.com If you missed Emma's presentation on the Project Sleep Facebook page, here's the link: https://fb.watch/8BAphsvLDN/ This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
40:29
October 13, 2021
39 - Patrick Zwally - Double Jaw Surgery
Trigger warning: there is some discussion of suicidal thoughts in this episode. Patrick Zwally shares his health journey from debilitating chronic pain to life-saving double jaw surgery and jaw joint replacement.  Together Patrick and Emma discuss: * Patrick's childhood including his mouth breathing and poor oral posture; * The traditional orthodontics Patrick had as a teen; * The beginning of TMJ problems, 2 shoulder surgeries and neck pain; * Patrick developing chronic pain and feeling suicidal; * Lots of people are having serious sleep problems but don't meet the official criteria for a sleep apnea diagnosis; * Patrick discovering the work of Professor John Mew and Dr Mike Mew; * Meeting with Dr Bill Hang and Dr Reza Movahed; * Double jaw surgery and jaw joint replacement and Patrick's amazing results; * Myofunctional Therapy to improve oral posture. Sarah Hornsby talking about exercises she does with Kourtney Kardashian https://youtu.be/qgUPm4Y5azk The book Patrick mentioned - Jaws: the story of a hidden epidemic Follow the podcast on Instagram: @sleepapneastories Emma's Facebook Live on the Project Sleep page October 10th at 8pm EST - click here  This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
56:36
October 6, 2021
38 - Chris Kelly - AER Healthcare, Improving Diagnosis and Treatment for Sleep Apnea
Emma is joined by Chris Kelly from AER Healthcare in Australia.  He explains their approach to diagnosis and treatment of Sleep Apnea and how it disrupts the status quo where patients do a lot of the legwork.  Together they discuss: * How Chris started as a dental prosthetist and how he started designing and manufacturing oral appliances for sleep apnea and snoring; * Common problems for patients navigating the current medical system involving referrals to sleep specialists from GPs; * How Chris developed AER Healthcare to give a pathway to people with Sleep Apnea to easily get screened and have a sleep study at home; * Chris explains the four types of sleep studies, how they differ and which can be relied upon to rule in/out Sleep Apnea; * Working with Sleep Specialists to interpret results of home sleep studies and make recommendations and provide prescriptions for the Dentist to explain all the treatment options; * Why they offer a one month CPAP trial. Connect with Chris at https://linkedin.com/in/christopherkellyaerhealthcare/ AER Healthcare's website has a video explaining their model: https://www.aerhealthcare.com.au/ The surgical procedure Chris mentioned is called a 'Transpalatal Advancement Pharyngoplasty for Obstructive Sleep Apnea Syndrome' Chris mentioned Jason from the Lanky Lefty YouTube channel.  You can find it here: https://www.youtube.com/c/Freecpapadvice Follow the podcast on Instagram: @sleepapneastories This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
01:08:35
September 29, 2021
37 - Dr David McIntosh - "Snored to Death"
Emma is joined by Dr David McIntosh, an adjunct Associate Professor of ENT Surgery in Queensland, Australia.  He specializes in pediatric ENT surgery, nose & sinus disease and snoring & sleep apnea.  Together they discuss: * Dr McIntosh explains the urgency of intervention with children showing signs of sleep disordered breathing; * Children with mouth breathing or snoring should be taken for evaluation to a pediatric ENT as quickly as possible; * Consequences of untreated sleep disordered breathing in kids include: behavioral problems, hearing problems, listening problems, memory problems and many other issues; * David explains why he fully supports proponents of nasal breathing but also explains that he thinks it's important to get to the root cause of the mouth breathing and take corrective action. * The difference between management and treatment and where ENTs can perform surgery to treat the underlying airway obstruction. Follow Dr McIntosh on Instagram: @dr_david_mcintosh_ent https://entspecialists.com.au/our-team/dr-david-mcintosh/ Buy a copy of Dr McIntosh's book here or simply search "Snored to Death" on Amazon.   Emma's note: the information in this book is critical to the well being of children all over the world.  If you have means, please buy an extra copy and gift to a Pediatrician or GP you know.   This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
56:58
September 22, 2021
36 - Dr Jenny Talbert - Sleep Apnea and Health at Every Size
Emma is joined by Dr Jenny Talbert, a Doctor of Chiropractic practicing in Portland, Oregon.  Together they discuss: * The experience of diagnosis and beginning treatment with a CPAP; * Jenny's mom's diagnosis with Sleep Apnea after a scary episode of Afib; * The "Health at Every Size" philosophy Dr Talbert brings to her Chiropractic office; * Jenny's hope to continue advocacy for sleep apnea testing and diagnosis with fellow chiropractors as well as helping patients get the referrals they need. Some resources discussed in the episode: Dr Vik Veer’s YouTube video https://www.youtube.com/watch?v=rdR8SVCeSJg BMI Episode of Maintenance Phase Podcast http://maintenancephase.com/ Books: Body Respect by Dr. Lindo Bacon Fearing the Black Body: The Racial Origins of Fat Phobia by Dr. Sabrina Strings Email:  drjennytalbert@gmail.com Follow Dr Talbert on Instagram: www.instagram.com/chirojenny  Follow the show on Instagram: www.instagram.com/sleepapneastories This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
01:02:16
September 15, 2021
35 - Dr David Shirazi - TMJ Disorder and Sleep Apnea
Emma is joined by Dr David Shirazi, a Dentist who is also an Acupuncturist and even trained as a Sleep Tech.  Together they discuss: * TMJ problems, what causes them and how they often relate to sleep apnea; * Why traditional mouth guards for clenching and grinding can make sleep apnea worse and which devices Dr Shirazi uses instead; * Using acupuncture to treat TMJ problems and facial pain; * Dr Shirazi explains what the ALF orthodontic appliance is and how he uses it with his patients; * Traditional orthodontics and the disappointing rate of change; * An interesting story about the way some Scandinavian countries decided to include mandibular advancement devices as a treatment for sleep apnea covered under public health insurance; Dr Shirazi's website: https://tmjandsleeptherapycentre.com/ TMJ Centres around the world: https://tmjtherapycentre.com/centre-directory-geo-location/ Follow the podcast on Instagram: www.instagram.com/sleepapneastories This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
56:59
September 8, 2021
34 - Fabienne Deprez - A Professional Athlete with Sleep Apnea
Emma is joined by Fabienne Deprez, a former professional badminton player who competed for the German national women's team.  Together they discuss: * Fabienne's feeling tired and unable to bounce back after training sessions; * Her journey to diagnosis with sleep tests; * 5 months using a CPAP but finding it difficult; * Being fitted for a mandibular advancement device and finding it more comfortable to wear than a CPAP; * Pregnancy and tiredness; * Fabienne's decision to talk about her diagnosis with Sleep Apnea to use her platform to raise awareness. Follow the podcast on Instagram: www.instagram.com/sleepapneastories Follow Fabienne on Instagram: www.instagram.com/fabiennedeprez  Emma mentioned Jason from the Lanky Lefty YouTube channel.  You can find it here: https://www.youtube.com/c/Freecpapadvice Here is Jason's Amazon store with links to the Mask Bright CPAP cleaner and the hurricane CPAP equipment dryer: https://www.amazon.com/shop/thelankylefty27 This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
33:36
September 1, 2021
33 - Dr Dayna Johnson - Sleep Apnea and Racism
Emma is joined by Dr Dayna Johnson. Dr. Dayna Johnson, PhD, MPH, MSW, MS is a sleep epidemiologist and Assistant Professor in the Department of Epidemiology at the Rollins School of Public Health, Emory University in Atlanta GA.  Dr Johnson explains: * some reasons why communities of color have higher rates of sleep apnea but lower screening for the condition. * unconscious and conscious biases playing into doctor visits and who gets referred to a sleep center. * the need to promote awareness of symptoms of sleep apnea, especially in black communities. * access to sleep doctors and transportation. * how air pollution disproportionately affects black people and how that contributes to sleep apnea. * safety concerns in lower income neighborhoods and how those can affect whether people are able to follow sleep hygiene advice. * covid-19 and the impact on the black community's access to healthcare. Follow Dr Johnson on Twitter: https://twitter.com/DrDaynaAJohnson Follow the show on Instagram: www.instagram.com/sleepapneastories This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
49:10
August 25, 2021
32 - Graham Stoney - Sleep Apnea and Chronic Fatigue Syndrome
Emma is joined by Graham Stoney, a former biomedical engineer from Sydney, Australia.  Together they discuss: * Graham's depression and exhaustion, which led to him leaving his job and a diagnosis with Chronic Fatigue Syndrome, * Bringing training as a biomedical engineer to try to figure out the root cause of his sleep apnea, * Trials of CPAP and a mandibular advancement device, * Graham on going to multiple different specialists: sleep specialist, ENTs, surgeons, trying to get to the root cause of his sleep apnea, * Exploring MMA surgery and palate expansion and beginning treatment with an mRNA appliance, * Graham talks about Jordan Peterson and his diagnosis with obstructive sleep apnea. Graham's blog is here: https://cfs-survivors.org/ Follow Graham on Instagram: www.instagram.com/grahamstoney Follow the show on Instagram: www.instagram.com/sleepapneastories This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
01:23:42
August 18, 2021
31 - Brandon Wilds - New Treatment - eXciteOSA
Emma is joined by Brandon Wilds, one of the first patients to try out the eXciteOSA device for treating mild sleep apnea and snoring.  Together they discuss: * Brandon coping with daytime sleepiness and seeing a sleep specialist; * Sleep studies at home and at a medical facility; * Being prescribed a CPAP and having a lot of problems with it; * Learning about a new treatment called eXciteOSA and being one of the first patients to try it; * The eXciteOSA device - what it is and how it works; * Brandon on how much better he is feeling now. Emma mentioned Project Sleep's program "Rising Voices of Narcolepsy".  Sign up for updates from Project Sleep and learn more about the program here: https://project-sleep.com/rising-voices-of-narcolepsy/ This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com eXciteOSA www.exciteosa.com and Betterhelp www.betterhelp.com/emma Please note: eXciteOSA are a sponsor of this season of the "Sleep Apnea Stories" podcast but Emma had complete control over the editorial content of this interview.   Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
36:06
August 11, 2021
BONUS - Emma Cooksey - Women and Sleep Apnea
Emma was recently invited by Fariya Doctor, a Feldenkrais practitioner in Canada, to give an online talk about Women and Sleep Apnea.  Since raising awareness about Sleep Apnea is part of Emma's mission with this podcast, she jumped at the chance!  This bonus episode is an edited audio version of Emma's talk.  In this episode Emma discusses: * Her own journey with Sleep Apnea; * Overview of symptoms to look for and how these can often present differently in men and women; * Case Studies of women featured on the podcast and different reasons they went years without diagnosis; * Different treatments for Sleep Apnea, including CPAP, Mandibular Advancement Devices and Inspire.  Emma touches on other less well known treatments, like palate expansion, buteyko breathing, myofunctional therapy, didgeridoo playing and the new Excite OSA treatment. Vote for the Podcast (takes 1 minute - voting ends 1st August 2021!!!) - The Sleep Apnea Stories podcast got nominated for awards at this years WEGO Health Awards!  If you'd like to support Emma and the podcast to win an award, click the link below, scroll to underneath the categories and click "Endorse this patient leader". https://www.wegohealth.com/Emma34/awards  Complete Short Survey (takes 2-5 minutes) - If you listen to the podcast, please compete this short survey to help shape future episodes. https://www.surveymonkey.com/r/VD5JMPV Follow the podcast on Instagram: @sleepapneastories www.sleepapneastories.com Follow Fariya Doctor on Instagram: @movement_detective https://fariyadoctor.com/
57:32
July 29, 2021
30 - Emma Cooksey - Vivos DNA Appliance, Myofunctional Therapy and Buteyko Breathing
For the final episode of this season, Emma gives an update on her own journey with Sleep Apnea.  She explains her goals of getting to the root cause of her Sleep Apnea and introduces the people who are helping her: * Emma discusses her Myofunctional Therapy experience working with Kaitlyn Shrum.  They discuss Emma's classic signs of a compromised airway: high vaulted narrow palate, tongue-tie, history of thumb sucking and mouth breathing. How they worked together before and after Emma's tongue-tie release. Kaitlyn Shrum - Myofunctional Therapist Instagram: @southernspeechandmyo www.southernspeechandmyo.com * Emma discusses her functional breathing training with Jo Brierly, this included Buteyko breathing re-education.  Jo shares the trauma she experienced as a result of a terrorist attack and how discovering breath work changed her life.   Jo Brierly - Functional Breathwork Coach Instagram: @thebreathingclinic www.thebreathingclinic.org * Emma discusses her palate expansion, using vivos appliances, with her dentist, Dr Michelle DeFelice Hucke.  Dr Hucke shares about her intake procedure for these devices and the expected outcome. Dr Michelle DeFelice Hucke - Dentist Instagram: @jaxbeachesfamilydentistry https://jacksonvillebeachdentist.com/ * Emma introduces her husband to listeners of the podcast! Jason Cooksey - Emma's husband on supporting a partner with sleep apnea.   Connect with Emma on Instagram @sleepapneastories or email sleepapneastories@gmail.com The sponsor of this episode of the podcast is Mute Nasal Dilators www.mutesnoring.com Vote for the show in this year's "WEGO Health" Awards: scroll to the bottom and click where it says "endorse this patient leader" https://www.wegohealth.com/Emma34/awards Please complete this 5 minute listener survey: https://www.surveymonkey.com/r/5TWGMT5
01:20:02
July 7, 2021
29 - Chandra Hartman - Epigenetic Orthodontics and Sleep Apnea
In this Episode, Emma has a conversation with Chandra Hartman about her palate expansion.  Together they discuss: * Living with chronic respiratory issues of bronchitis and allergies as a child; * Chandra living without health insurance but suspecting she had Sleep Apnea for years; * Working with a Traditional Chinese Medicine doctor to treat respiratory issues; * Chandra becoming interested in the work of Weston A. Price and Epigenetic Orthodontics; * Connecting with a Dentist who offered Epigenetic Orthodontics, including Vivos appliances; * Being diagnosed with severe Sleep Apnea at the age of 45 and using a CPAP; * How Chandra's life has changed since her successful treatment.   Follow Chandra on Instagram: @chandra.hartman Chandra's blog: https://elitrope.wordpress.com/category/epigenetic-orthodontics/ Follow the show on Instagram: @sleepapneastories Email Emma: sleepapneastories@gmail.com  This episode is sponsored by Mute
44:05
June 30, 2021
28 - AJ Block - Didgeridoo for Sleep Apnea
Emma is joined by AJ Block.  AJ is a musician and teacher who runs a program specifically designed for people with Sleep Apnea.  Together they discuss: * AJ's background as a musician and how he found the Didgeridoo; * The "Didge for Sleep" project AJ has put together to help people with Sleep Apnea; * The 2005 British Medical Journal Study (linked below) which concluded the Didgeridoo did help reduce AHI in a group of Sleep Apnea patients who were trained in playing the Didgeridoo; * The need for a lot more research into the effectiveness of Didgeridoo training for Sleep Apnea and AJ's willingness to be involved in upcoming research projects. Here are the links AJ discussed on the episode: Didge Project YouTube channel click here  https://didgeforsleep.com/ https://www.didgeproject.com/sleep-apnea/didgeridoo-sleep-apnea-update-2019-a-sleep-apnea-patient-log/ Here is the link to the free class Emma took and discussed on the episode: https://www.didgeproject.com/didgeridoo-fundamentals/ To follow the Didge Project on Instagram: @didgeproject British Medical Journal Study: click here This episode was sponsored by Mute Nasal Dilators https://mutesnoring.com/ To follow the show on Instagram: @sleepapneastories If you want to be featured in an upcoming episode, please email me at sleepapneastories@gmail.com To share your story with the non profit "Airway Revolution" follow this link: https://www.airwayrevolution.org/share-your-story
31:06
June 23, 2021
27 - Elizabeth Thiel - At Home Sleep Study
Emma is joined by Elizabeth Thiel, a 39 year old wife and mother living in Atlanta, Georgia.  Together, they discuss: * At home Sleep Studies - what to expect from this sort of test; * Being prescribed a CPAP machine and working to find the right mask; * Problems with delays getting CPAP masks with insurance compliance requirements in mind; * Durable Medical Equipment companies vs ordering CPAP supplies online; * Comfort CPAP Covers/Liners; Follow Elizabeth on Instagram >>> @ladyzbird Follow the show on Instagram >>> @sleepapneastories For details of the Philips CPAP Recall click here scroll down and click where it says "affected" CPAP machines. For details of Emma's "Mastering Your CPAP" online video course, click here. To join the email list and get your FREE printable pdf "CPAP Lessons I Learned the Hard Way" click here. This episode of Sleep Apnea Stories was sponsored by Mute Nasal Dilators.  
38:24
June 16, 2021
26 - Dr Shelby Harris - Insomnia and Sleep Apnea
Emma is joined by Dr Shelby Harris a Licensed Clinical Psychologist who specializes in Behavioral Sleep Medicine.  She treats Insomnia patients using Cognitive Behavior Therapy specifically for Insomnia.  In this episode we discuss: * What is insomnia and how do you know if you have it? * The distinctions between sleepiness and fatigue and how accurately describing symptoms can help in diagnosis; * The possibility of having Sleep Apnea along with Insomnia and how these different conditions can be treated concurrently; * The pro's and con's of wearable sleep trackers, such as apple watches, oura rings and fitbits; * Cognitive Behavior Therapy for Insomnia vs traditional sleep aid medications; * The importance of consistent sleep hygiene. Follow Dr Harris on Instagram @sleepdocshelby www.drshelbyharris.com "The Women's Guide to Overcoming Insomnia" by Dr Shelby Harris - available on Amazon and Audible Follow the podcast on Instagram @sleepapneastories New or struggling CPAP users - check out Emma's new online video course "Mastering your CPAP" https://sleepapneastoriesacademy.thinkific.com/courses/mastering-your-cpap This episode is sponsored by Mute https://mutesnoring.com/
33:36
June 9, 2021
25 - Vashanti Ganesh - PCOS and Sleep Apnea
Emma is joined by Vashanti Ganesh.  Together they discuss: * A family doctor being unwilling to prescribe a CPAP despite a diagnosis of Sleep Apnea; * Suffering with incontinence as a symptom of Sleep Apnea; * PCOS - Polycystic Ovary Syndrome, what it is and some of the symptoms to watch for; * Sleep Apnea being common in women with PCOS; * How Vashanti brought her PCOS symptoms under control with lifestyle changes; * How much better Vashanti felt when she was prescribed a CPAP at last; * Vashanti's work as a health coach supporting women with healthy living. Vashanti's free sleep guide she mentioned is available here: https://vashantigita.dropfunnels.com/guide-2-2/sleep-guide/ Follow Vashanti on Instagram: www.instagram.com/vashantig Follow Vashanti on Facebook: https://www.facebook.com/vashantigita Follow the podcast on Instagram: @sleepapneastories Email Emma: sleepapneastories@gmail.com Struggling with your CPAP?  Sign up for Emma's "Mastering your CPAP" online course here
43:16
June 2, 2021
2 - Karen Wolk - Inspire Implant for Sleep Apnea Treatment
Emma is joined by her guest Karen Wolk. They talk all about Karen’s journey with sleep apnea, from having panic attacks and a cognitive impairment affecting her memory, to being diagnosed with Sleep Apnea. Karen explores the different treatments she tried including medications, a nasal surgery, CPAP and BIPAP machines before finally finding relief with an ‘inspire’ implant. Karen discusses how the technology works and the tremendous impact it has had on the quality of her life. Finally, Emma and Karen discuss the silver linings to come from their sleep apnea diagnoses.   Connect with Karen on Linked In or Instagram: http://linkedin.com/in/karenwolk Instagram: @kwolk 
36:04
June 1, 2021
24 - Brittny Sciarra and Karese Laguerre - Myofunctional Therapy and Sleep Apnea
Emma is joined by Brittny Sciarra and Karese Laguerre to discuss their work as Myofunctional Therapists, also called Orofacial Myologists.  Together they discussed: * What Myofunctional Therapy is and why it can be beneficial for many people with Obstructive Sleep Apnea; * Myofunctional Therapy as part of a treatment plan for children with Sleep Disordered Breathing; * Karese shares her own experience with advocating for and getting treatment for her children with Sleep Disordered Breathing; * What normal resting tongue posture looks like and why it is so important, especially in children as their palate develops; * How to find airway-focused healthcare professionals who might not be easily found in your area. Find Brittny here: https://www.ctorofacialmyology.com/ Follow Brittny on instagram: @ct_orofacial_myology Find Karese here: https://www.themyospot.com/ Follow Karese on Instagram: @themyospot Follow Emma and the podcast on Instagram: @sleepapneastories  Find Myofunctional Therapists here: AAPMD or AOMD Sign up for email about the show here and get a free pdf with answers to common CPAP problems. When you're on the email list, you'll be the first to know when Emma's upcoming online course "Mastering your CPAP" goes live! This Episode was sponsored by Mute Nasal Dilators
42:07
May 26, 2021
23 - Alida Abdullah - High Blood Pressure and Sleep Apnea
Emma is joined by Alida Abdullah and they discuss: *Growing up snoring and sleeping during school; *Difficulty with CPAP therapy as a mother juggling a newborn and a 3 year old; *Being a college athlete and not fitting the Homer Simpson stereotype of the older, overweight men who suffer with Sleep Apnea; *Treatment of African American women in the healthcare system, what needs to change; *The link between Hypertension and Sleep Apnea. Connect with Alida on Instagram: @aa2ff2020 Follow Emma on Instagram: @sleepapneastories If you want to read further about the health disparities due to race in the US, there are some great resources put together by Dr Akilah Cadet https://www.changecadet.com/resources and also this article by Dr Cadet: https://www.healthline.com/health/black-health-matters-putting-the-care-back-in-healthcare#3 The podcast Emma mentioned in the intro: https://www.richroll.com/podcast/matthew-walker-600/
40:34
May 19, 2021
22 - Julie Flygare - Narcolepsy and Sleep Disorders Advocacy
Emma is joined on the podcast by Julie Flygare, President and CEO of Project Sleep.  Julie has suffered with Narcolepsy with Cataplexy and is an accomplished sleep disorders advocate.  Emma and Julie discuss: *Symptoms and early warning signs of Narcolepsy; *Julie's journey through diagnosis and treatment; *How sleep studies for Narcolepsy differ from those for Sleep Apnea; *The need for more awareness around Sleep Disorders and more money for Sleep Disorders Research; *How listeners can get involved in supporting Project Sleep. You can find all the information about Project Sleep, including social media handles on the website: https://project-sleep.com/ Julie's book "Wide Awake and Dreaming: A Memoir of Narcolepsy" is available now.  Find all the details of where to buy it here You can follow Emma on Instagram @sleepapneastories Sign up for email updates about the podcast and get a free printable pdf called "CPAP Lessons I Learned the Hard Way" here
47:33
May 12, 2021
21 - Randy Thornton - Sleep Apnea in the NFL
Emma is joined by Randy Thornton, a former NFL player and professional wrestler. Randy discusses: *How he struggled with intense headaches and mood swings before he was diagnosed with Sleep Apnea; *Reluctance of many men to go to the doctor; *Just how widespread Sleep Apnea is among athletes who focus on building muscles of the neck and shoulders; *Spreading awareness in the African American community about the dangers of Sleep Apnea; *The new "Best Sleep" magazine and it's goal to raise awareness of Sleep Disorders like Sleep Apnea. Info about "Best Sleep" magazine:  https://vimeo.com/509104771 Follow Randy on Instagram: @randythornton20 Follow Emma on Instagram: @sleepapneastories Sign up for email and get your free 2 page pdf printable "CPAP Lessons I learned the hard way" here 
47:33
May 5, 2021
20 - Dr Madan Kandula - Sleep And Sinus Surgeries for Sleep Apnea with an ENT
Emma is joined by Dr Madan Kandula, a Board Certified Otolaryngologist, specializing in sleep and sinus surgery.  He leads Advent, an ENT group with 10 clinics across Wisconsin and Illinois.  In this episode we cover: *The current state of the healthcare system and how patients are not being served by it; *Dr Kandula's vision for a more patient-centered approach and offering multiple treatment options for Sleep Apnea; *Minimally invasive in-office procedures on sinuses and turbinates to help relieve nasal congestion and improve sleep at night; *Madan's own journey with breaking his nose twice and how that shaped his interest in the ENT field. Connect with Dr Kandula on Instagram: @adventknows https://adventknows.com/  this website has a number of videos about the procedures Emma and Dr Kandula discussed in this episode. Connect with Emma on Instagram: @sleepapneastories  Download your FREE 2 page printable pdf on "CPAP lessons I learned the hard way" here If you have interest in the course Emma is developing to help you adjust to your CPAP, please email sleepapneastories@gmail.com and put "CPAP course" in the subject of the email.
45:23
March 31, 2021
19 - Dr Meghna Dassani - Children and Sleep Apnea
Emma is joined by Dr Meghna Dassani, a Dentist in Houston, Texas.  In this episode we discussed: *Dr Dassani's new book "Airway is Life: Waking up to your family's sleep crisis" and her podcast Healthy Sleep Revolution * What are the red flags parents should look for in their kids to spot sleep disordered breathing? * Which specialists should be consulted and in what order?   *When is it appropriate to send a child for a sleep study?  Are CPAPs an option for children with Sleep Apnea? * Palate expansion in kids and the impact on their airway development.  How early can you start? Connect with Dr Dassani: www.MeghnaDassani.com www.DassaniDentistry.com IG: @healthysleeprevolution FB: @drdassani Email: info@meghnadassani.com Connect with Emma on Instagram: @sleepapneastories Email: sleepapneastories@gmail.com **Get your FREE 2 page printable pdf on "CPAP Lessons I Learned the Hard Way" here**
33:47
March 24, 2021
18 - Craig Baker - Sleep Apnea Symptoms: Anxiety
Emma is joined by Craig Baker, a Personal Trainer from Sydney, Australia. Together they discuss:  *Craig discusses his Sleep Apnea symptoms, including anxiety and exhaustion; *Deciding to cut back on decathlon training in his 20s; *Using a phone app to record snoring and breathing sounds during sleep; *Emma's experience with her Tonsilectomy and Craig's upcoming surgery; *CPAP and Craig's experience with Nasal Pillows; *Are people overweight and then develop Sleep Apnea or do they develop Sleep Apnea and get overweight as a result? Connect with Craig: @craigbakerpt and https://www.craigbakerpt.com/ Get Emma's "CPAP Lessons I Learned the hard way" printable pdf here
41:37
March 17, 2021
17 - Dr Earl Bogrow - CPAP alternative: Mandibular Advancement Devices
Emma is joined by Dr Earl Bogrow, a Dentist who specializes in Mandibular Advancement Devices, also called Oral Appliances, to treat Sleep Apnea.  During the episode Emma and Earl discuss: *Some of the benefits to Mandibular Advancement devices vs CPAP; *Dr Bogrow's own journey with Sleep Apnea; *How to find a great Dentist to make you an oral appliance. *TMJ issues and how they need to be taken into account when customizing a Mandibular Advancement Device;  *Breathing and airways - James Nestor's book "Breath"; *Dr Bogrow's didgeridoo playing and how circular breathing can tone the muscles of the throat. Contact Dr Bogrow: https://michigansleepapneacenter.com/ Search for a Dentist accredited with the American Academy of Dental Sleep Medicine - click here Donate to the Project Sleep fundraising "Sleep In" here
01:00:11
March 10, 2021
16 - Stacy Erickson Edwards - Sleep Apnea and Idiopathic Hypersomnia
Emma is joined by Stacy Erickson Edwards, a Sleep Disorders Advocate and blogger at www.cpapbabes.com.  Stacy discusses: *her journey to getting diagnosed with Sleep Apnea; *dealing with continued sleepiness even after CPAP treatment and exploring other potential sleep disorders; *being diagnosed with Idiopathic Hypersomnia after an MSLT test; *working with Project Sleep to raise awareness about sleep disorders. *taking part in Project Sleep's "Sleep In" fundraiser 12th-14th March; Connect with Stacy: http://www.cpapbabes.com/ Instagram: @cpapbabes Connect with Emma: https://www.sleepapneastories.com/ Instagram: @sleepapneastories Emma and Stacy are both taking part in Project Sleep's "Sleep In" Fundraiser, more details here.   You can sponsor Emma here Emma mentioned Stacy's article on not feeling better on CPAP - read it here
40:15
March 3, 2021
15 - Ryan King - Exercise and Sleep Apnea
Emma talks all about physical fitness and coping with Sleep Apnea.  Emma's guest, Ryan King, is a personal trainer who has been working with Gary Knight (friend of the show, guest on episode 4).  Emma and Ryan discuss: * How to gradually build up the amount of exercise you're doing even when you're tired; * Alternatives to working out at the gym; *The importance of mindset and breathing; *Unrealistic ideals of beauty. Connect with Ryan on Instagram: @rkfitness_fevo "Sleep In" Fundraiser run by Project Sleep, 12th-14th March 2021  **I'd LOVE to have you on my team to spread awareness of Sleep Apnea!!!** Sign up to join the fundraiser (click "Join Our Team button) or donate: click here Or to learn more about Project Sleep, visit their website: https://project-sleep.com/ or follow them on Instagram: @project_sleep Connect with Emma: Instagram - @sleepapneastories www.sleepapneastories.com
45:03
February 24, 2021
14 - Sydney Avis & Dr Victor Avis - MMA Surgery
Emma is joined by Sydney Avis and her Dad, Dr Victor Avis.  Sydney recently underwent an MMA surgery (Maxillary Mandibular Advancement) to expand her airway and improve her sleep and breathing.  In this episode we discuss: *various diagnoses Sydney received including Narcolepsy and Sleep Apnea and why Dr Avis didn't feel these told the whole story of Sydney's airway challenges *treatments Sydney tried before opting for the MMA surgery, including a Mandibular Advancement Device and a CPAP.   *diagnostic tests Sydney underwent, including the DISE procedure and sleep studies *MMA surgery and recovery from it *the non-profit "O2 Breathe" the father/daughter duo began and the Documentary film "Airway" they have been working on for four years. Airway Documentary: https://www.airwaydocumentary.com/ O2 Breathe: https://www.o2-breathe.org/ Connect with Sydney and Victor: @sydneyavis @dr.victoravis
53:13
February 17, 2021
13 - Lauren Freedman - Multiple Diagnoses
Emma is joined by Lauren Freedman, host of "Uninvisible Pod".  On her podcast, Lauren provides a platform for discussion of invisible illnesses following her own health struggles. Some of the things we discussed in this episode: Coping with multiple diagnoses - not only sleep apnea but depression, anxiety and Hashimoto's (an autoimmune disorder). Lauren’s experience of trying to hold down a job while struggling to find answers in her health journey. The healthcare system and Lauren's need to advocate for herself Emma asks all about the concept of 'spoonies' and spoons theory to help explain the limited energy people coping with chronic health problems have.  This is the original article Lauren references https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ I really encourage you to check it out Lauren's podcast if you haven’t already.  https://uninvisiblepod.com/  This is also the place to download the "Hacking Healthcare" resource Lauren and Emma discuss. Emma asked Lauren about her interview with Nitika Chopra, the found of the Chronicon support community.  You can find it here https://chronicon.co/ Find Lauren's social media handles and connect with her: https://uninvisiblepod.com/about/ Sponsors of this episode: MYOTAPE click here to buy the myotape discussed in this episode. BetterHelp click here to sign up and get 10% off your first month of online counselling. Avocado Mattresses click here Or visit www.sleepapneastories.com/services
57:42
February 10, 2021
12 - Sam Gotowiec - Young Adults with Sleep Apnea
I really wanted to have Sam on the podcast because he’s young and so often younger sleep apnea sufferers don’t get a lot of attention.  Some of the things we discussed were: * How Sam’s friends first noticed his snoring and pauses in breathing * Getting diagnosed with Sleep Apnea with an at home sleep study * The Canadian Healthcare system * What it feels like to be a young person with a chronic sleep disorder * Mouth breathing and nasal breathing, mouth-taping Connect with Sam on Instagram: @sammycg88 Connect with Emma on Instagram: @sleepapneastories Sponsors of this episode: MYOTAPE click here to buy the myotape discussed in this episode. BetterHelp click here to sign up and get 10% off your first month of online counselling. Or visit www.sleepapneastories.com/services
31:09
February 3, 2021
11 - Patrick McKeown - Buteyko Breathing Re-education for Sleep Apnea
'Sleep Disordered Breathing' has "breathing" right there in the name!  Yet breathing is overlooked as a vital component in treating Sleep Apnea.  Patrick McKeown is a breathing expert and founder of the Buteyko Clinic.  He explains the different types of sleep apnea and how breathing correctly can help address them. Some things we discussed: Buteyko breathing - slow, light and deep using diaphragm; How nasal breathing can help people with Sleep Apnea versus mouth breathing; Mouth taping to support nasal breathing - specifically Myotape; The four types of Sleep Apnea; Patrick’s newest book “The Breathing Cure”.   Sponsors of this episode: MYOTAPE click here to buy the myotape discussed in this episode. BetterHelp click here to sign up and get 10% off your first month of online counselling. Or visit www.sleepapneastories.com/services
58:43
January 27, 2021
10 - Emma Cooksey - Nasal Breathing and Myofunctional Therapy for Sleep Apnea
Emma shares an update on her own journey with Sleep Apnea.  Since starting the podcast earlier this year, Emma has learned so much from her guests and her own reading and research.  On this episode, Emma discusses:  the books "Breath" by James Nestor and "Oxygen Advantage" by Patrick McKeown.  Both these books discuss the benefits of nasal breathing;  beginning Myofunctional therapy to improve tongue placement for proper nasal breathing;  her discover of Myotape to gently keep her mouth closed at night.  Emma recaps the first 9 episodes and looks ahead to new episode coming in January 2021!  Connect with Emma on instagram:  @sleepapneastories   Email: sleepapneastories@gmail.com www.sleepapneastories.com Emma mentioned Myofunctional Therapy with Kaitlyn Shrum, you can contact her here: www.southernspeechandmyo.com
28:18
November 27, 2020
9 - Edgar Castro Tello - Sleep Apnea and Mental Health
Emma is joined by Edgar Castro Tello who shares his personal journey with sleep apnea.  Emma and Edgar discuss: Having sleep apnea as the child of undocumented immigrants without access to healthcare; Experiencing extreme symptoms at high altitude in Colorado; Sleep Apnea in the gay community, especially among "bears"; Diagnosis and treatment of Sleep Apnea allowing mental health problems to be acknowledged and treated. Connect with Edgar: @zageguy on Instagram
49:09
November 12, 2020
8 - Dr Jose Gonzalez - Snoring and Sleep Apnea
Emma is joined by Dr Jose Gonzalez.  In the episode they discuss Jose's recent diagnosis with sleep apnea and how he is adjusting to life with his CPAP.  Emma and Jose talk about:  Loud snoring and how often it is ignored as normal when it can indicate Sleep Apnea;  Being single and in a relationship with Sleep Apnea;  Anxiety as a warning sign for Sleep Apnea;  Self image issues which come up with CPAP treatment;  The media's portrayal of Sleep Apnea.  Connect with Jose on Instagram: @dr.jose.gonzalez  Emma would love you to complete her listener survey.  Click this link to complete the survey: https://www.surveymonkey.com/r/VD5JMPV  Sign up for email at www.sleepapneastories.com and receive a free pdf journal to help you get better sleep with Sleep Apnea.  Emma mentioned "Breath" by James Nestor - links to buy: https://www.mrjamesnestor.com/breath/
39:04
October 29, 2020
7 - Dr David Madow - Anxiety and Sleep Apnea
Emma is joined by Dr David Madow.  David shares his personal journey with sleep apnea.  For anyone who is new to using a CPAP, this episode is a must!  David talks through all the adjustments he made to make using a CPAP more comfortable. In this episode we discussed: how it feels to suffer with anxiety caused by sleep apnea; David's own experience of using an oral appliance to treat sleep apnea and then changing to a CPAP; how David educated himself on all things CPAP to improve his comfort and maximize results. Connect with David: Email: rundrdave@gmail.com Instagram: davidmadow David's youtube videos about CPAP - https://www.youtube.com/playlist?list=PLO8l2YoJXkAPjnvnK88y1tn1cncmpDDaS OSCAR program to analyse your CPAP results - http://www.apneaboard.com/wiki/index.php/OSCAR_Installation Emma's latest article on Anxiety and Sleep Apnea - https://sleepapnea.sleep-disorders.net/living/undiagnosed-symptoms-anxiety/ To receive email updates from David: http://join.davidmadow.com/
44:58
October 16, 2020
6 - Dr Natasha Hassam-Sarwar - Nasal Breathing vs Mouth Breathing
Emma is joined by Dr Natasha Hassam-Sarwar, a dentist specializing in optimizing sleep.  Natasha is also a Sleep Coach so Emma took the opportunity to pick her brain on all things sleep apnea!  Dr Hassam-Sarwar explains: the difference between Sleep Apnea and UARS (Upper Airway Resistance Syndrome); why so many sleep apnea sufferers grind and clench their teeth; mouth breathing versus nostril breathing and why nostril breathing is so much better! Connect with Natasha: Instagram: @drnatashasarwar Email: drnatashasarwar@gmail.com www.aerasleepco.com
37:53
October 2, 2020
5 - Eric Burton - New Relationships with CPAP
Emma is joined by Eric Burton who suffers from Sleep Apnea himself and also works as a Sleep Supplies Specialist with Aeroflow in North Carolina.  Eric shares about his own journey with sleep apnea.  Eric describes his sleep study and how he adjusted to his CPAP.  Eric has a lot to share about his work advising patients on the best mask or equipment for them.  We also talked about how going on a trip and leaving your CPAP at home is NOT a great plan and never to be repeated!   Connect with Eric: ericburton06@gmail.com
33:33
September 17, 2020
4 - Gary Knight - Weight Loss to Improve Sleep Apnea
Emma is joined by Gary Knight.  Gary experienced a lot of the common symptoms of sleep apnea before his diagnosis in 2016, in particular he noticed overwhelming daytime sleepiness.  Gary discusses the treatment he received, where he lives in the UK, and his first experiences with his CPAP.  Gary lost over 70lbs after he was diagnosed and we discuss his attitude and approach to exercise and the effect his weight loss had on his sleep apnea (*spoiler alert - it helped!!!).  Having learned to manage his own sleep apnea, Gary has gone on to help others with his Facebook support group "Southern UK Sleep Apnoea and CPAP".   For more on Gary's journey: https://www.hope2sleep.co.uk/sleep-apnoea-patient-stories-gary.html https://www.blf.org.uk/your-stories/how-a-cpap-machine-changed-my-life Connect with Gary: Instagram: @grassbasher  Email: sleepapnoea@mail.com
27:48
September 4, 2020
3 - Dr Joi Freemont - Oral Appliances, an Alternative to CPAP
Emma is joined by Dr Joi Freemont, a dentist who treats patients with sleep apnea in her practice but also suffers with sleep apnea herself.  Joi describes the shock of her father's death from sleep apnea and how that experience opened her eyes to the condition.  Whilst attending a professional training on oral appliances and taking a sleep study, Dr Freemont discovered that she also suffered with sleep apnea.  Knowing that the CPAP would not be a good fit for her, Joi got an oral appliance and immediately felt better with increased energy.  Dr Freemont is on a mission to help spread awareness of the need to be tested for sleep apnea but also the availability of alternative treatments if CPAP doesn't work for a particular patient.  @freemontdental  on instagram https://www.thehapevilledentist.com/
26:45
August 21, 2020
1 - Emma Cooksey - Delayed Sleep Apnea Diagnosis
Meet your host, Emma Cooksey, and join her as she shares her personal journey with Sleep Apnea.  Emma shares her lowest moment when she realized she needed to get help along with the tips and tricks she wishes someone told her about her Cpap when she was first diagnosed with Obstructive Sleep Apnea in 2008.  Emma talks about living her best life with sleep apnea 12 years after diagnosis, including her 3 step morning ritual which helps her face the day no matter how the night's sleep went.   Do you have a sleep apnea story to share?   Get in touch! @sleepapneastories on instagram or email sleepapneastories@gmail.com *Emma and her guests are not medical professionals.  Their discussions are about the personal journeys of people suffering with Sleep Apnea and are not giving medical advice.  Be sure to consult with your own healthcare providers about your own unique circumstances.* Struggling with your CPAP?  Sign up for Emma's "Mastering your CPAP" online course here
24:53
July 25, 2020
Sleep Apnea Stories Podcast Trailer
Sleep Apnea Stories is a new podcast with Emma Cooksey. Emma has lots to share about her own journey with sleep apnea but really wants to hear from YOU. If you suffer from sleep apnea but haven’t let it hold you back from living every day to the fullest, get in touch! Contact Emma on Instagram @sleepapneastories or email sleepapneastories@gmail.com.
00:49
July 12, 2020