Welcome to the Haemcast, where we talk about all things haemophilia and bleeding disorders. Join us as we speak with leading experts in the field to tackle and address the latest news, hot topics and research.
"Adapting to Change, sustaining care in a new world." That's the theme for World Haemophilia Day this year and in this special episode, Luke Pembroke, Haemnet Comms Officer, speaks with members of the UK Bleeding Disorder community about how they have had to adapt to change during the past year in response to the challenges faced.
Featured guests include:
Haemophilia Nurse Specialist Debra Pollard on conducting clinics from home whilst shielding
Patient advocate and research fellow Rich Gorman on moving across the country and not yet meeting his new haemophilia team in person!
Haemnet's master of "creative interference" gives us the low down on Project Phoenix (www.haemnet.com/phoenix)
Nurse Specialist, April Jones tells us about the challenges the Newcastle Haemophilia team faced with the centre having to relocate
Lead Clinical Nurse Specialist, Wandai Maposa recollects the ghost town of Tooting mid-pandemic and how scary it was to see members of his team redeployed to ITU.
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Following the release of the European Principles of Care for Women and Girls with Bleeding Disorders last month, Haemnet's Director of Education, Debra Pollard discusses why this is an important step for the community with expert guests, Naja Skouw-Rasmussen (EHC), Dr Rezan Abdul-Kadir (Consultant Gynaecologist, Royal Free London) and Dr Karin van Galen (Consultant Haematologist, UMC Utrecht). Our guests also dive in to the challenges and barriers women within the bleeding disorders community face, from receiving diagnosis to effective treatment, and what more needs to be done to improve outcomes for these women.
You can view the WGWB Principles of Care webinar here.
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How can genetic testing complicate consent in clinical practice? When is genetic testing appropriate for a patient? Is it time to rethink what we mean by consent for people with haemophilia and bleeding disorders?
In this Haemcast, host Dr Kate Khair is joined by Dr Nicola Curry (Consultant Haematologist, Oxford Haemophilia and Thrombosis Centre) and Dr Keith Gomez (Consultant Haematologist, The Royal Free Haemophilia Centre, London) to discuss these complex issues and more.
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In part 2 of this Haemcast focusing on pain in haemophilia host Dr Kate Khair, uncovers some of the ways people with haemophilia manage their pain, with expert physios Nathalie Roussel (University of Antwerp, Belgium) and Paul McLaughlin (The Royal Free Hospital, London, UK), as well as exploring the hopes for the future of pain management and research within haemophilia.
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Find out more about what we do at www.haemnet.com. Follow us on Twitter: www.twitter.com/haemnet
The first ever Haemcast!... and the first in a two part episode exploring the hot topic of 'pain' within haemophilia. Our host, Dr Kate Khair, is joined by haemophilia physiotherapists and pain experts, Nathalie Roussel (University of Antwerp, Belgium) and Paul McLaughlin (The Royal Free Hospital, London, UK) to discuss mechanisms of pain, the challenges in assessing and managing pain, and think about the ways we as treaters can improve outcomes for patients.
Be sure to subscribe and follow Haemcast so you don't miss Part 2 and future episodes.
Find out more about what we do at www.haemnet.com