Skip to main content
HAE Speaks

HAE Speaks

By US HAEA

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.
Available on
Apple Podcasts Logo
Castbox Logo
Google Podcasts Logo
Overcast Logo
Pocket Casts Logo
RadioPublic Logo
Spotify Logo
Currently playing episode

Episode 19- Jenny's HAE Journey

HAE SpeaksOct 27, 2021

00:00
35:17
Episode 45: HAEA DIY Community Events - Red Lake Nation HAE Awareness Walk

Episode 45: HAEA DIY Community Events - Red Lake Nation HAE Awareness Walk

In this episode, we chat with Alecia, who shares her experiences hosting a memorial HAE walk in memory of her brother, Joseph Fairbanks Jr., who passed away due to HAE. Over 100 participants attended Alecia’s event in her hometown of Red Lake Nation, Minnesota! 


For more information, please visit www.haea.org.


A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!

Feb 05, 202411:07
HAE, the holidays and you. Navigating the holiday season with HAE
Dec 19, 202307:23
Episode 44: A word from the HAE Community
Nov 30, 202310:44
Episode 43: Kate is living Beyond HAE
Nov 01, 202341:40
Episode 42: Dusty & Mark’s HAE Journey
Oct 01, 202336:57
Episode 41: Back to School tips with Mandy
Sep 01, 202320:21
Episode 40: College preparedness & HAE
Aug 01, 202320:18
Episode 39: The importance of mindfulness

Episode 39: The importance of mindfulness

Episode 39: Adina Mauk:HAEA Health Advocate, shares the importance of mindfulness  along with tips and tricks. 

Looking for ideas and methods for self-care? Adina has just the information you are looking for.  In this episode of the HAE Speaks podcast Adina talks about her journey to self-care.

Living with HAE can be stressful both for someone living with HAE as well as for caregivers.  Mindfulness can help you focus on what you are sensing and feeling in the moment and be used as a tool for effectively managing this stress.


For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

Thank you to our sponsors:

⁠BioCryst Pharmaceuticals⁠

⁠Kalvista Pharmaceuticals⁠

⁠Takeda




Jul 05, 202317:25
Episode 38: Hosting an HAE DIY event
Jun 01, 202322:13
Episode 37: Transitioning to Caregiver
May 15, 202315:33
Episode 36: Dr. Riedl discusses the HAEA ⁠shared decision making tool⁠.

Episode 36: Dr. Riedl discusses the HAEA ⁠shared decision making tool⁠.

Episode 36: Dr. Riedl discusses the HAEA shared decision making tool. A free tool available at HAEA.org to help individuals living with HAE prepare for their physician appointments.

Dr. Riedl:

Allergist/Immunologist

Clinical Director of UC San Diego Health's U.S. HAEA Angioedema Center

Professor of Medicine


For more information about Hereditary Angioedema please visit ⁠HAEA.org⁠

Thank you to our sponsors:

⁠BioCryst Pharmaceuticals⁠

⁠Kalvista Pharmaceuticals⁠

⁠Takeda

Apr 06, 202315:16
Episode 34: Lora's HAE Journey
Mar 13, 202316:14
Episode 32: Navigating college with HAE
Mar 09, 202321:54
Gene Therapy in HAE: A look into BioMarin’s Investigational Study
Feb 06, 202316:32
Episode 34: A Newly Diagnosed Perspective
Jan 31, 202324:48
Episode 32: HAEA year in review
Jan 09, 202346:39
Episode 31- Jess shares the importance of Advocating for HAE
Nov 01, 202213:18
Episode 30- Adina's HAE journey
Oct 06, 202217:19
Episode 29- Bobbi shares her journey with HAE
Sep 07, 202215:29
Orladeyo: Red shares his HAE journey
Aug 23, 202211:47
Episode 28- Troyce provides tips about going back to school
Aug 01, 202209:38
Episode 27- Abby shares her insights about the HAEA Brady Club
Jul 01, 202208:27
Episode 26- Missy & Sarah discuss the 2022 HAE IN-MOTION®
May 31, 202212:24
Episode 25- Lisa & Mike share information about HAE day :-) 2022
May 05, 202219:26
Episode 24- Aysha shares her HAE journey
Apr 01, 202225:43
Episode 23- Troyce provides tips about insurance in 2022
Feb 28, 202206:23
Episode 20- HAEA Year in Review
Jan 28, 202226:07
Episode 22- Bobbi shares her HAE journey
Jan 28, 202206:23
Episode 21- HAEA Meet and Greet Events
Jan 03, 202207:34
Episode 19- Jenny's HAE Journey
Oct 27, 202135:17
Episode 18- Christine and Mike: Capitol Hill Campaign
Oct 04, 202117:55
Episode 17- Antonio and Jack: HAEA DIY events
Aug 30, 202109:09
Episode 16: Sonia's HAE Journey
Jul 30, 202115:18
Episode 15: Lisa: HAE IN-MOTION®
Jun 30, 202111:07
Episode 14: Chaeli: HAE and Travel
May 28, 202112:30
Episode 13: Lisa: HAE events
May 04, 202119:00
Episode 12: Jess's HAE Journey
Apr 06, 202125:08
Episode 11: HAE and Education
Mar 01, 202125:08
Episode 10: Hannah's HAE Journey
Feb 01, 202109:16
Episode 9: HAE and pregnancy
Jan 04, 202106:52
Episode 8: 2020 Team HAEA

Episode 8: 2020 Team HAEA

As you may already know, the HAEA has adapted to the uncertainty provoked by the COVID-19 pandemic by swiftly transitioning our 2020 scheduled programs and events to fun and engaging virtual platforms.  In just a few months, we have successfully developed and launched interactive contests, advocacy training modules, virtual Meet & Greet events, and more to fulfill the needs of the HAEA community. We have also increased the number of webinars and their content. Listen as HAEA staff discuss how together, we have adapted to this virtual world.

Nov 29, 202027:08
Episode 7: HAEA Support

Episode 7: HAEA Support

In this episode of HAE Speaks we connect with Marna and Adina to learn more about the HAEA Support Groups.

Nov 02, 202012:11
Episode 6: Advocating for HAE

Episode 6: Advocating for HAE

Linda P. provides insight to her HAE journey and tips about creating HAE awareness.

Sep 21, 202007:55
Episode 5: Road to Treatment

Episode 5: Road to Treatment

Michael G. shares his road to treatment and overcoming his fear of needles.

Aug 21, 202012:27
Episode 4: Life before and after an HAE diagnosis of a child.

Episode 4: Life before and after an HAE diagnosis of a child.

Episode 4 - Mandy is a mother and caregiver to her son, Luke.   Listen as Mandy shares a part of their journey,  life before and after an HAE diagnosis of a child.

Aug 03, 202016:23
Episode 3: Ongoing Research for New HAE treatments.
Jul 03, 202013:30
Episode 2: COVID interviews

Episode 2: COVID interviews

Missy interviews an HAE patient, caregiver and two Brady Club youngsters about COVID. Each of them with great ideas and tips during this time.
Jun 02, 202027:47
Episode 1: Life as a Caregiver (Missy M.)

Episode 1: Life as a Caregiver (Missy M.)

Episode 1

HAE Speaks Podcast: 

Missy M. shares a glimpse into her life as an HAE caregiver for her husband Mike.  

For more information about HAE and the US Hereditary Angioedema Association please visit HAEA.org

May 01, 202015:11
What is HAE?

What is HAE?

A brief overview of HAE and the Hereditary Angioedema Association.

May 01, 202002:28