Patient Engagement in Research Initiatives: The Hypo-RESOLVE Approach

Making sure that the Hypo-RESOLVE results change the diabetes (research) landscape for the better, is one of our most important goals. For our last episode, we have invited Jens Heisterberg from Novo Nordisk and Ken Tait from our Patient Advisory Committee (PAC) to talk about the importance of establishing a dialogue with government officials.

Patient-Reported Outcome (PRO) Measures reliably assess the psychological impact of hypoglycaemia. Our seventh episode features researchers Dr Jill Carlton and Dr Philip Powell from the University of Sheffield and Ken Tait from our Patient Advisory Committee (PAC), who talk about PwD involvement in the development of Patient-Reported Outcomes Measures (PROs) in Hypo-RESOLVE.

Diabetes and hypoglycaemia extend beyond physical effects and can become a psychological burden as well. Today’s episode features Melanie Broadley from the University of Southern Denmark and Renza Scibilia from our Patient Advisory Committee (PAC), who talk about the psychological aspects of diabetes and the impact of hypoglycaemia on quality of life.

What are the implications of hypoglycaemic episodes that are underneath the detection threshold of current glucose measuring devices? This is what the Hypo-METRICS study set out to determine. Our podcast guests Natalie Zaremba and Patrick Divilly from King's College London and Renza Scibilia from our Patient Advisory Committee (PAC) talk about the Hypo-METRICS study and how important PwD engagement is during study design and implementation.

Today’s fourth episode marks the halfway point of our podcast series – thank you for tuning in so far! We have invited special guests Professor Simon Heller from the University of Sheffield and Renza Scibilia from our Patient Advisory Committee (PAC) to talk about the challenges of involving PwD in research projects and the importance of a clear definition of hypoglycaemia.

In today’s episode, we are talking data and a lot of it! Mark Ibberson from SIB and Laura Cooke from our Patient Advisory Committee (PAC) talk about the challenge of bringing together a lot of clinical datasets into a single database to answer important research questions on hypoglycaemia.

Our second podcast episode is bringing you an important topic: Professor Rory McCrimmon from the University of Dundee and Laura Cooke from our Patient Advisory Committee (PAC) discuss the effects and consequences of hypoglycaemia.

Why are there not more projects involving patients? In our very first episode, Enrico Mastroianni from Novo Nordisk and Simon O’Neill from our Patient Advisory Committee (PAC) talk about the challenges and, of course, the many benefits of involving people with diabetes as equal partners in huge research consortia, such as Hypo-RESOLVE.

Subscribe to the show so you will never miss an episode. Be sure to catch our next episode, when we are trying to make sense of the effects and consequences of hypoglycaemia and tell you more about our work within the Hypo-RESOLVE project. Thanks for listening!