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imPACt

imPACt

By Patient Advisory Council

Welcome to the imPACt Podcast! The Patient Advisory Council (PAC) of ImproveCareNow aims to use this podcast to increase awareness, education, inclusivity, and connection while working towards our goals of diversity, equity, and inclusion. Collaboration between PAC members and guest speakers inside and outside ICN will be at the forefront of our conversations to foster a sense of community through PAC’s advocacy work. Topics will range from patient advocacy to the daily stress of IBD as a patient, and rotating hosts will ensure fresh perspectives! Sit back, relax, and enjoy the imPACt!
Pediatric Patient Autonomy in IBD Care
Pediatric Patient Autonomy in IBD Care
PAC members Leela, Hannah, Kera, Fizza, and Ryleigh talk about the importance of patient autonomy within IBD care. You'll hear all about patients perspectives with care, what providers and parents can do to help patients thrive with accurate patient autonomy, and how a patients can feel without autonomy within IBD care. 
44:10
November 18, 2022
What Patients Need From Providers with the SWAP
What Patients Need From Providers with the SWAP
Join former PAC member Dr. Jennie David Ph.D. (licensed pediatric IBD psychologist, IBD patient, and PAC co-chair alum) as she talks with Dr. Shana Boyle Ph.D. (licensed pediatric psychologist), Kelly Summers, APRN, nurse practitioner specializing in IBD, and Noelle Moore, LCSW, a clinical social worker specializing in IBD. The episode is about whole person care in IBD and an opportunity to ask a psychologist, social worker, and medical provider (nurse practitioner) how they came to work in pediatric IBD and how they learned about the mental health components to IBD, hosted by a former PAC co-chair! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation, or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care-related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
50:12
November 04, 2022
Collab with Bowel Sounds--What I Wish You Knew
Collab with Bowel Sounds--What I Wish You Knew
Fionna, Christian, and Shira collaborate with the hosts of NASPGHAN's podcast, Bowel Sounds, Dr. Temara Hajjat and Dr. Jason Silverman to discuss what we wish providers knew from the patient perspective and vice versa what providers wish patients knew. We touch on so many topics from inclusive care in IBD, to body image, to family and social life, and to growing up with IBD and becoming independent. This episode is posted both on ICN PAC's podcast, the imPACt, and on Bowel Sounds. Check out other Bowel Sounds episodes anywhere podcasts are available including on Spotify here: https://open.spotify.com/show/47siDPxpfBkC1xjDW5HnBM?si=42db54d4445e4801 Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation, or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care-related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
01:34:21
October 24, 2022
High School, College, Grad School & IBD
High School, College, Grad School & IBD
Join PAC members Hannah, Vanessa, and Fionna, as they talk about their experiences with IBD during different stages of schooling. You'll hear about IBD in high school, college, and grad school! Listen in to hear about how accommodations have helped them through school and how it is important to be an advocate for yourself to teachers and professors.  Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation, or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care-related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
42:11
October 14, 2022
Why Story Telling Matters with Chris Keck
Why Story Telling Matters with Chris Keck
Join PAC members, Vanessa, Becky, and Fionna talking to Chris Keck, from ICN, about telling stories--particularly personal narratives. We discuss the impact of storytelling and how ICN and the PAC uses telling stories to influence change. This episode is just in time for the Fall 2022 Community Conference next week, where we will be sharing stories together. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation, or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care-related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
54:14
September 16, 2022
IBS in IBD with Dr. Carlo Di Lorenzo
IBS in IBD with Dr. Carlo Di Lorenzo
In this episode of imPACt, Shira and Maddie talk with Dr. Di Lorenzo from Nationwide Children's Hospital. Together, they discuss irritable bowel syndrome (IBS), inflammatory bowel disease (IBD), and the intersection between the two disorders. The interaction between the brain and the gut is complex and fascinating, and many IBD patients are not informed of the significant impact this connection has on their well-being. Dr. Di Lorenzo brings an amazing clinical perspective to this conversation, so be sure to listen! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation, or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care-related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
35:32
September 02, 2022
Mental Health and IBD with the SWAP
Mental Health and IBD with the SWAP
Avery and Ryleigh are joined by Dr. Lauren Potthoff, a pediatric IBD psychologist, to discuss their experiences with mental health concerns during IBD flares, including how they have coped during difficult times, how loved ones and providers can offer support, and what mental health symptoms are most common for patients during a flare. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation, or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care-related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
43:05
August 19, 2022
IBD & Medical Trauma with the SWAP
IBD & Medical Trauma with the SWAP
Join PAC members Autumn, Henry, and Samantha as they chat with SWAP members Dr. Jennie David (licensed clinical pediatric IBD psychologist) and Dr. Alexandra Fuss. The SWAP stands for Social Worker and Psychologist, and the PAC is so excited to be collaborating with them! Hear first-hand insights from PAC members on how medical trauma has impacted them, and hear from providers on how they have experienced and seen medical trauma as well. They also talk about how to handle medical trauma, and how having support systems are key. This is the first episode in our three-episode series with the SWAP, so make sure to stay tuned for future episodes!  Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation, or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care-related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
52:33
August 05, 2022
IBD, Meds, Biologics, Oh My!
IBD, Meds, Biologics, Oh My!
This week on imPACt, join us (Fionna and Shira) as we have a casual chat about our personal experiences on meds and biologic drugs for their IBD. Medications and biologics are often a big part of managing IBD. We share what it has been like switching biologics, how attitudes around biologics influence patient experience, and the psychological difficulties of medical decisions. We also talk about a few things that have helped us communicate effectively with our providers during medication changes and how we try to manage our expectations while going through medical transitions. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
37:02
July 01, 2022
Dr. Sunseri and Dr. Crawford talk EEN with the PAC
Dr. Sunseri and Dr. Crawford talk EEN with the PAC
Exclusive Enteral Nutrition (EEN) is a common IBD therapeutic, but the details of what it looks like to follow EEN are not so frequently discussed. In this episode of the imPACt, PAC members Caitlyn, Christian, and Maddie talk with GI providers Dr. Sunseri and Dr. Crawford about the in's and out's of EEN, NG tubes, and the annoying reality of your pump alarm going off at 2 am in the morning. Listen to our conversation on Spotify to hear more! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
49:58
May 20, 2022
Happy One Year imPACt!
Happy One Year imPACt!
The PAC released the first episode of our podcast imPACt on February 28th, 2021. Now, one year later, join communications co-chairs Fionna and Vanessa (who filmed the first episode!) as they look back on all the episodes the PAC has made, and how the podcast has grown! They also discuss the great future planned for imPACt, and how far it can grow! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
12:28
February 27, 2022
Patient Centered Care with Dr. Michel and Dr. Patel
Patient Centered Care with Dr. Michel and Dr. Patel
Revisiting content from the 2021 Fall Community Conference in this podcast episode we have special guests--Dr. Hilary Michel and Dr. Asish Patel--along with three PAC members--Fionna, Shira, and Caitlyn--talk about Patient-Centered Care from both the provider and patient perspectives. We talk about the patient-provider relationship, language, and empowerment and the roles these play in patient-centered care. Tune in to hear great insights from the providers on how they think about building trust and using language to build strong patient-provider relationships and cultivate patient-centered care in clinic. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
37:35
February 04, 2022
J-Pouch Life: Breaking up with my Colon
J-Pouch Life: Breaking up with my Colon
Join Hannah and Leela talking about j-pouches and their experiences living with one. Learn about what a j-pouch is, their diagnosis story and process of getting a j-pouch including living with an ostomy, and their "new normal". Because j-pouch surgery is most commonly a multi-step process, hear about their day-to-day life pre j-pouch surgery, while having an ostomy, recovering from surgery, and what they are up to now! With some jokes along the way, we hope you enjoy our talk about j-pouches and feel a little less alone if you are thinking about surgery. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
31:22
January 21, 2022
Toolkits of 2021
Toolkits of 2021
Kick off 2022 by joining PAC members Anya, Becky, and Hannah as they recap the year’s toolkits – Health Care Literacy and Lifestyle! These two toolkits were recently completed in 2021 and will be published soon. Learn more about the process and work put in to the toolkits through this episode!  Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
24:15
January 08, 2022
Crohn's and Colitis Awareness Week 2021
Crohn's and Colitis Awareness Week 2021
Join us (Vanessa and Fionna) as wrap up Crohn's and Colitis Awareness Week answering some of the questions that we saw circulate around social media during this important time for IBD advocacy. We hope you tune in to learn a little more about IBD and why advocacy is important to PAC members! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
29:57
December 10, 2021
PACsgiving: IBD and Support Systems
PACsgiving: IBD and Support Systems
Join us (Vanessa and Fionna) as we kickoff the month of Thanksgiving and some Thanksgiving themed PAC created content. We talk about one of the things we are extremely grateful for as IBD patients—support systems. Support systems have made a huge difference in how we have been able to manage our IBD, grow up and mature with IBD, and be successful both academically and in our extracurriculars. We hope you listen in to learn how to help support and IBD patient and hear how much we appreciate it! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
31:13
November 12, 2021
Happy Halloween! Spooky-Scary IBD
Happy Halloween! Spooky-Scary IBD
Join Becky and Shira as they get ready for Halloween but with an IBD spin! Listen to their spooky and close-call IBD experiences as well as hear how IBD impacted Becky's trick-or-treating growing up. They discuss some entertaining IBD “would you rather questions” and share their preferences. Head over to @icnpatients on IG to cast your vote on these “would you rathers” as well! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
34:59
October 29, 2021
Infusions, Injections, School, and Life
Infusions, Injections, School, and Life
Join PAC Communication Co-Chairs, Vanessa and Fionna, as they talk about their experiences changing IBD treatment plans and how it has fit in with school and their busy lives. Vanessa shares her experience deciding to switch from an infusion to an injection as she prepares to go to college and Fionna discusses starting infusions in college. We also talk about what an infusion day looks like for us and routines we have. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
16:38
October 15, 2021
ICN Fall Community Conference Preview
ICN Fall Community Conference Preview
In this episode, PAC members and communication co-chairs Fionna and Vanessa give you a preview to the ICN Fall Community Conference featuring sessions lead by the PAC. They talk about how the PAC will be discussing IBD & Identity, Barriers to Care, Fatigue, Body Image & Eating Disorder, and lead an Ignite Talk. They also discuss why conference is important to the PAC, why you should listen, and how to sign up to listen and enjoy our PAC members being strong advocates! The link to sign up for the conference will be posted bellow in the description, and the conference goes from September 30th-October 1st, so be sure to sign up this week! Fall Community Conference Sign Up: https://www.improvecarenow.org/fall_2021_community_conference Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
13:58
October 14, 2021
IBD and Patient-Parent Relationships
IBD and Patient-Parent Relationships
In this episode of the imPACt, members of the PAC (patient advisory council) and parent working group (PWG) talk about patient-parent relationships in the context of IBD care and how these relationships evolve. Parents and/or guardians play a huge role in helping pediatric patients with IBD navigate and manage their IBD care. However, as patients grow older and gain independence, they may want to take more of a lead in their own care. This transition often shifts the roles of the parent and the patient in the IBD care team. Lisa and John, parents of a son with Crohn's disease share their perspective as parents and PAC members Shira and Fionna share the patient perspective. We share our own experiences as we become more independent, while at the same time still relying on our parents for certain types of support in our IBD care. We share example of what kinds of parental support have been vital to our physical and mental well-being. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
46:18
September 10, 2021
Bad Joints & Sore Stomachs: IBD and Arthritis
Bad Joints & Sore Stomachs: IBD and Arthritis
Join PAC members Shira and Caitlyn as they discuss IBD associated arthritis with pediatric gastroenterologist Dr. Rachel Bensen and pediatric rheumatology fellow Dr. Sara Patrizi. Joint issues are one of the more common extra-intestinal manifestations in patients with Crohn’s and UC. We cover some basic information about arthritis and IBD, discuss the importance of multidisciplinary care, and Caitlyn and I share a little bit about our personal journeys with arthritis and IBD. Big thank you to Dr Bensen and Dr Patrizi for joining us and look out for more episodes on IBD and extra-intestinal manifestations in the future! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
32:40
August 27, 2021
Back to School with IBD
Back to School with IBD
Join PAC members Elise, Leela, Vanessa, and Madeline, on this week's episode about going back to school with IBD. They discuss the importance of getting accommodations in college, and how to manage dealing with infusions and flares during school. They also talk about how they deal with IBD during sports seasons, and how they transition their IBD care and routine into their school one. Be sure to listen and enjoy this episode as the PAC prepares to head back to school! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
54:50
August 13, 2021
Transitioning with Dr. Michele Maddux
Transitioning with Dr. Michele Maddux
**Content Warning: this podcast episode includes a discussion about alcohol, tobacco, drugs, sexual activity and birth control as they relate to IBD patient health, care, planning and decision-making.** Episode 11 of the imPACt podcast brings together young adult PAC members and Dr. Michele Maddux, a clinical psychologist at Children’s Mercy Hospital, for a candid discussion about the many aspects of transitioning from pediatric to adult IBD care. PAC members share their experience and how they have learned about more adult topics such as insurance and become more responsible for their IBD care. Dr. Maddux and the PAC talk about important but commonly uncomfortable conversations to have with your doctor regarding alcohol, drugs, sex, and birth control and how to initiate them. They share about valuable resources available for IBD patients transitioning from pediatric to adult care such as the Transition Toolkit and My Health Passport by The Hospital for Sick Children. Resources Mentioned: Transition Toolkit: https://www.improvecarenow.org/transition_to_adult_care My Health Passport by The Hospital for Sick Children: https://teens.aboutkidshealth.ca/Article?contentid=2775&language=English Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
43:16
July 30, 2021
IBD, Body Image, and Relationships with Food Pt. 2 Ft. Brittany-Roman Green
IBD, Body Image, and Relationships with Food Pt. 2 Ft. Brittany-Roman Green
Disclaimer: This episode discusses body image, eating disorders, and weight. We encourage our audience to listen at their own discretion. Join us (Maha, Maddie, and Fionna) as we continue our discussion from Episode 2 on IBD, Body Image, and Relationships with Food. This time we have special guest, Brittany Roman-Green, a registered dietician and certified personal trainer specializing in gastrointestinal conditions including Crohn’s disease and ulcerative colitis. Brittany shares her personal journey with IBD, how she sees the effect of IBD on relationships with food and body image in her practice, and gives some tips on how to start working on your relationship with food and your body. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
41:34
July 16, 2021
GI Psychology featuring PAC Alumna Dr. Jennie David
GI Psychology featuring PAC Alumna Dr. Jennie David
Join PAC members Maha and Madeline as they talk to GI Psychologist Dr. Jennie David about what GI psychology is! Social Media:  Instagram and Twitter: @icnpatients  Facebook: @ICNPAC  Anchor: anchor.fm/icnpatients  Spotify: imPACt improvecarenow.org  Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
52:27
July 02, 2021
Queer, Sick, and Proud
Queer, Sick, and Proud
As a disclaimer, this podcast episode includes brief mentions of sex education and substance use. Join us for Episode 8 of the imPACt podcast! PAC members Anya, Shira, and Avery discuss pride month and how queerness and IBD are related! They share their thoughts on the importance of validation both as queer individuals and patients and talk about pride and accessibility. Listen in to hear some of their experiences as well in health care settings as queer IBD patients and advocates. Hannah Witton's YouTube channel: https://www.youtube.com/user/hannahgirasol Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
29:19
June 18, 2021
IBD and Identity
IBD and Identity
Listen in as Becky, Maddie, and Fionna talk about the complexity of IBD and identity. We share how IBD and identity interconnect and impact how patients connect with others, including the ways our identities impact our IBD care. This episode highlights the individuality of identity and how we identify with IBD as patients. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
34:03
June 04, 2021
World IBD Day--Let's Talk About Advocacy!
World IBD Day--Let's Talk About Advocacy!
This weeks imPACt podcast is a special one coming out on World IBD Day. We have asked PAC members to send in short recordings discussing "Why talking and advocating about IBD is important to you". Listen to this special episode to hear why our PAC members love to advocate for IBD. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
09:14
May 19, 2021
School with IBD
School with IBD
Vanessa, PAC co-chair of communications, student, and tennis player, leads a conversation about managing IBD and school with PAC member Fionna. Join us as we talk about IBD and how we have advocated for ourselves at school and while participating in sports! Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify profile: Patient Advisory Council: imPACt https://open.spotify.com/show/79wyCLVeqLjzoEDV2cYixv improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
26:34
April 30, 2021
Self-Advocacy and Transition with PAC Alumna Dr. Sami Kennedy
Self-Advocacy and Transition with PAC Alumna Dr. Sami Kennedy
Join PAC members Elise and Seth with special guest, and PAC alumna, Sami as they talk about self-advocacy and pediatric-to-adult transition and transfer of care. As both an IBD patient and now a physician, Sami shares her unique perspective on advocacy and transition. These topics have recently been the themes of some PAC led sessions at the Fall 2020 and Spring 2021 ICN Community Conferences. As one of the first three patients to attend an ICN Community Conference and a former PAC co-chair, Sami has embraced being a patient advocate. Elise, Seth, and Sami share how to embrace the role of a patient advocate especially in terms of self-advocacy. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify profile: Patient Advisory Council: imPACt https://open.spotify.com/show/79wyCLVeqLjzoEDV2cYixv improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
32:26
April 16, 2021
Resilience with IBD
Resilience with IBD
In this episode, PAC members Nour and Anya have a post conference discussion about their presentations. They talk about their experiences with flares, and being able to give patient perspectives to doctors and adults about these problems. They also talk about adjustments they make in daily life because of flares, and talk about how with IBD you have to be resilient. Listen to this episode to here all about Nour and Anya’s perspective around IBD, and how it contributed to their conference presentations. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify profile: Patient Advisory Council: imPACt https://open.spotify.com/show/79wyCLVeqLjzoEDV2cYixv improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
25:43
April 02, 2021
The Impact of IBD on Body Image and Relationships with Food
The Impact of IBD on Body Image and Relationships with Food
PAC members Maddie, Maha, and Fionna come together to discuss how IBD has affected their relationship with food and body image and the strategies that patient care can incorporate to address these sensitive topics. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify profile: Patient Advisory Council: imPACt https://open.spotify.com/show/79wyCLVeqLjzoEDV2cYixv improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
37:33
March 19, 2021
The PAC: Where We've Been and Where We're Going
The PAC: Where We've Been and Where We're Going
Meet Becky and Maddie, the Co-Chairs of the Patient Advisory Council. This episode's host, Robbie, leads a conversation about the PAC's imPACt and some memorable moments from being a patient advocate. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify profile: Patient Advisory Council: imPACt https://open.spotify.com/show/79wyCLVeqLjzoEDV2cYixv improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
32:47
March 05, 2021
Trailer: Introducing imPACt!
Trailer: Introducing imPACt!
In this episode the Patient Advisory Council (PAC) Co-Chairs of Communication, Vanessa and Fionna, introduce the imPACt podcast. The first episode will be released in a week and following episodes will be posted every other week. The imPACt podcast will be available on Spotify, Apple Podcasts, and Anchor. Social Media: Instagram and Twitter: @icnpatients Facebook: @ICNPAC Anchor: anchor.fm/icnpatients Spotify: imPACt improvecarenow.org Disclaimer: The information in this podcast is of a general nature. Please do not use information shared here in place of a visit, call, consultation or the advice of a licensed physician or other qualified healthcare provider. The information shared during this podcast should not be relied on to diagnose or treat any health condition. This information does not constitute medical advice and is not an endorsement of specific medications, treatment protocols or diets. Patients and caregivers with health care related questions or concerns are advised to contact a physician or other qualified healthcare provider promptly.
05:26
February 26, 2021