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Epilepsy Awareness: 1 in 26

Epilepsy Awareness: 1 in 26

By Jamie Wissinger
A place to chat about living positively with Epilepsy
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Episode 23: Sydney
Today I'm chatting with Sydney about her epilepsy and her experience with Epilepsy Camp!  Connect with Sydney: IG here Connect with Jamie: IG here Virtual Meet Ups: Sign up here
34:31
February 26, 2021
Episode 22: Mindy
Today I'm chatting with Mindy about her epilepsy +  support systems- a huge concern is that adults do not get that type of support- so she created it!  You can find her support group via Instagram here I also host a support group bi-weekly!  Join us here Parents of kiddos with epilepsy?  Join us here
28:43
February 12, 2021
Episode 21: Katy
Today I'm chatting with Katy, and she shares what it's like to live with tonic/clonic seizures.  She shares a bit about her hospital stay, from her family's perspective- and how she manages her Epilepsy. 
40:11
February 5, 2021
Episode 20: The one where we talk about HOPE
Today I'm sharing an episode that I was a guest on: Y'all Should Be Friends with my dear friend, Kristina.  This is the first time I've shared THIS part of my story, and I'm excited to do so.  I can't be alone with this situation, so let me know what you think and if you can relate!  You can find Kristina at her website and purchase her book here
24:23
January 29, 2021
Episode 19: Torie Robinson
Today I'm chatting with Torie about her advocacy work and how she's bridging the gap between patient + science.   Torie is also the: Founder, Editor, Writer & CEO for Epilepsy Sparks, Podcaster for Epilepsy Sparks Insights, Governor for the NHS South London & Maudsley Trust, on the SAC for Epilepsy Research UK, Council of Management for Epilepsy Action, on Patient Advisory Groups for UCB and EpiCARE, and an Ambassador for the UK Government Disability Confident – Yes I Can initiative. You can find her via Facebook: here and her Podcast: here
25:15
January 22, 2021
Episode 18: Kirsten
Today I chat with Kirsten from @brey_fighting_back on IG!  She is a Momma to 3, and her advocacy shines bright for her 6 year old son Brey- who has Epilepsy.  We talk about med changes, keto diet, neuro + developmental regression, family dynamics... it was an amazing and eye opening experience!   
48:15
November 13, 2020
Episode 17: Felicia
Today, I'm chatting with Felicia- who is a mama to 4 and LIVES IN THE SAME TOWN AS ME!  SO awesome!  We chat about all things mamahood, driving, pregnancies, doctors, and CBD.   This episode is a little controversial, so buckle up!  She also has a podcast, which you can find at the link below!  https://anchor.fm/felicia-waterfill5 
32:49
October 30, 2020
Episode 16: SUDEP Awareness
Today is World SUDEP Action day and I want to share a little bit about it.  When I was diagnosed with Epilepsy, my doctor did not tell me about it- and this is SUPER important for us with Epilepsy to know!  Tune in and share with someone who could benefit from learning about SUDEP.  For more information about SUDEP, go to http://.sudepactionday.org
16:57
October 23, 2020
Episode 15: Where we talk about Trauma
Hey girl!  Today I'm sharing a little bit about my trauma and the healing that is associated with it.  If this resonates with you, please join me in our community, Surrender and Shine on FB!   xo, Jamie  https://www.facebook.com/groups/1565021100319075
06:28
September 5, 2020
Episode 14: Guest Episode with Fran
I’m happy to share the mic with Fran Turauskis, who is a Podcast Producer, and a Writer from London. In today’s episode she shares about adventure and how her diagnosis has impacted her life. Fran educates us on what adventure sports people with epilepsy can and cannot do.
10:28
August 7, 2020
13: 5 things I wish I knew when I was diagnosed with Epilepsy
A Letter to Myself: 5 things I wish I knew when I was diagnosed with Epilepsy - this is a solo episode from your host, Jamie. You can find her on IG @jamiewissinger
10:53
July 31, 2020
Episode 12: Where we chat about Video EEGs
On this episode, Jamie and Destiney chat via IG LIVE, with their kiddos in the background (thanks quarantine), about ambulatory EEGS and what that process is like!  
21:07
May 17, 2020
Episode 11: Sharon
Today I’m chatting with Sharon about her life with Epilepsy and the VNS device.   You can find her on IG @be.brave.brains
16:48
January 17, 2020
Episode 10: Kyle
Today I’m chatting with Kyle about his epilepsy and how he advocates for the community. You can find him on IG @epilepsylifestyleblog or his website: https://www.epilepsylifestyle.com/ 
37:54
December 13, 2019
Episode 9: Kati
Today I'm chatting with Kati on how she manages her Epilepsy living solo in the Windy City!  She also chats about her small business, which we LOVE supporting.   You can find her via IG: https://www.instagram.com/kati_anne/  https://www.instagram.com/fetchingstitches/ 
44:49
November 15, 2019
Episode 8: Meghan
Today I am chatting with Meghan, from the Daley Life on the joys of Epilepsy and how her diagnosis changed (or did not change) her mindset.   IG: livefearlessly_akf Facebook: www.facebook.com/livefearlesslyfit Website: www.meghandaley.wordpress.com
01:01:53
September 27, 2019
Episode 7: Dylan D
Today I'm chatting with Dylan about her seizures, and how she has created an Epilepsy toolkit for your loved ones to be prepared when you have a seizure.   You can find her on Instagram, @digidyla 
28:54
August 30, 2019
Episode 6: Angelina
Today I talk with Angelina about her journey with Epilepsy.  https://www.instagram.com/amperrino/ and on YouTube: https://m.youtube.com/channel/UCLRDsVxtkWYFuIDEFZ6H11Q
29:08
August 23, 2019
Episode 5: Christalle Bodiford
 Today we chat with Christalle Bodiford- an artist, advocate, writer, and adventure seeker.  As an entrepreneur diagnosed with epilepsy, Christalle brings a unique perspective of empowerment that inspires others to embrace a positive mindset and live with purpose.   christallebodiford.com Instagram.com/christallebodiford Facebook.com/creativeepilepsyadvocate Twitter.com/christalleart
35:49
August 16, 2019
Episode 4: Amanda Rost
Today I am chatting with Amanda about her journey with partial seizures and how she's navigated through living in a small town with Epilepsy. You can find Amanda:  @epilepticmom on IG @epilepticmomAR on Twitter http://www.epilepticmom.com https://anchor.fm/hearmeoutepilepticmom 
30:54
August 9, 2019
Episode 3- Destiney
Destiney is a wife, mother, soon-to-be published author, and runner living with Epilepsy.  In this episode we chat about all things family, job, and seizure related- and how Destiney turned from avoiding her diagnosis to embracing it.   You can find her online at @destineywendtrunning
39:44
August 2, 2019
Episode 2: Interview with Meghan from the Daley Life
Hey friends!  Check out my interview with Meghan, from The Daley Life podcast where we chat about all things fitness, epilepsy, and life! 
51:10
July 25, 2019
Episode 1: Seizure First Aid
In this episode I will chat about Seizure First Aid:  how I became a trainer, and what YOU can do to be prepared in case a loved one has a seizure.  jamiewissinger.com 
20:20
July 25, 2019