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Life After Paralysis with Tiffiny Carlson

Life After Paralysis with Tiffiny Carlson

By Tiffiny Carlson
SPINALpedia's podcast, Life After Paralysis with Tiffiny Carlson, is the official podcast of SPINALpedia.com, a nonprofit dedicated to helping people with spinal cord injuries. Hosted by Tiffiny Carlson, a C6 quadriplegic of over 25 years and the executive director of SPINALpedia, she interviews guests from all areas of life with a spinal cord injury, highlighting important topics within the paralysis community from spinal cord injury research and advocacy to lifestyle topics. New episodes are uploaded monthly. Send show ideas to tiffinycarlson@gmail.com.
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Currently playing episode

Episode 8: Keith Smith & His Epidural Stimulator Journey

Life After Paralysis with Tiffiny Carlson

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Episode 28: Accessible Travel During COVID-19
In Episode 28 of Life After Paralysis, we interview two paraplegics who've traveled during the COVID-19 pandemic, both traveling to the state of Florida. We first speak with Dick, a 60 something paraplegic injured for over 40 years, who shares his favorite airline right now and his travels in Tampa. Our second guest is Corey, a paraplegic and a seating specialist who is still traveling on the road during the pandemic. He shares his travel advice for road trips, as well an adaptive SCUBA trip he went on with his son. Show run time is 45 minutes.
45:51
September 11, 2020
Episode 8: Keith Smith & His Epidural Stimulator Journey
The spinal cord injury world has been eagerly awaiting some kind of viable treatment, and epidural simulation is finally providing that hope. Case in point Keith Smith. A C4 complete quadriplegic from California, he was chosen to be part of Dr. Susan Harkema's epidural simulation trial at the University of Louisville. Besieged with dangerously low blood pressure, he was considered a viable candidate.  After living in Kentucky for one year after receiving the stimulator, he is now back at home and reports loads of physical improvements including stabilized blood pressure, better bladder and bowel control, the ability to stand and improved sexual function.  Here in his own words how it changed his life in our interview with him.  Episode runtime is 22 minutes.  - Kentucky Spinal Cord Injury Research Center: https://louisville.edu/kscirc
22:29
July 31, 2020
Episode 27: My Neck Is Broken, But My Brain is Just Fine
In Episode 27, we chat with three people who share their amusing and sometimes frustrating stories of discrimination after becoming disabled. In many cases people just don't understand that our brains aren't affected as well, which leads to some funny stories. We chat with Sean Dineen, a professor with spastic paraplegia, Ken Macdonald, a quadriplegic and former quad rugby player, and Antonia Sinibaldi, a vent-dependent quadriplegic, singer and author. Podcast run-time: 1 hr, 27 mins - Listen/watch Antonia sing: https://www.antoniasinibaldi.com/
1:27:38
July 8, 2020
Episode 26: Quarantining with a Spinal Cord Injury Pt. II
In Episode 26, we chat with two more people about quarantining and having a spinal cord injury. Our first guest is Noel Joyce, a paraplegic from Ireland, who is a industrial designer. He shares insight into the designs occurring as a result of COVID-19 and how they benefit people with disabilities. Our second guest is Misty Dawn Piker, a paraplegic and theater usher from Indiana. She too has been home since March and shares how she's been getting everything done while home alone, from getting her mail to her plans for celebrating her birthday later this week. - Follow Misty on Twitter: @mimi_dawn_piker - Follow Noel on Instagram at @noeljoyce
49:24
June 1, 2020
Episode 25: Quarantining with a Spinal Cord Injury Pt. 1
In Episode 25 of Life After Paralysis, Tiffiny interviews two people with paralysis who have been quarantining at home since March. Her first guest is Eric Pfisterer, a 32 year old with spinal bifida who is working from home as a high school guidance counselor. He talks about how he and his wife have been staying busy and how he is being careful whenever he goes out. Tiffiny's next guest is Dan Martino, a retired lawyer who's been paralyzed for over 28 years due to a flu vaccine. On a ventilator for five years as well, he shares wisdom on how to stay sane while staying at home. - Follow Eric on Instagram at @wheelie_good_eats - A retired lawyer, Dan is offering free legal counsel to anyone with a SCI. His email is danmartino01@gmail.com
53:05
May 5, 2020
Episode 24: Vent Life
Episode 24: Vent Life In episode 24, we talk to two people with quadriplegia who use a ventilator to breathe. We first speak with Drew Clayborn from Michigan. Injured in high school, he went on to attend the University of Michigan and is the founder of The Drew Crew Charitable Organization. Next, we speak with Loa Griesbach from Washington who's been injured 18 years. She too went on to college shortly after her injury and is an Ambassador for Ventec Life, a ventilator company.  - Follow Drew @drewclayborn - Follow Loa @loagriesbach
55:55
March 31, 2020
Episode 23: Wheelchair Life Hacks
In episode 23, we uncover wheelchair life hacks your therapists forgot to tell you about. From the wonders a simple cone can do to prevent parking abuse to a spatula set-up for a C1 quadriplegic that enables independent eating, Tiffiny chats with four guests who share their best tips that have the power to change lives. Guests in this episode are the following: - James Collins: A paraplegic from Hawaii, he shares his cone trick to prevent parking abusers next to his car. - Amir: A paraplegic from Las Vegas, he shares how much a simple reacher from Amazon helps him be independent. He also talks about why he prefers portable hand-controls. - Brandon: A C5 quadriplegic, he talks about how helpful the Voice Control system is on his iPhone. - Tyler Schrenk: A C1 quadriplegic from Washington, he shares his spatula invention so he can eat when he's alone, as well as other cool gadgets he has that he can independently access in his home. To watch the video tour of his home & gadgets, click here: https://spinalpedia.com/video/GBY1XqKXylJ
49:42
February 22, 2020
Episode 22: Adaptive Driving
In episode 22, four people with paralysis share their stories about driving post-injury. They share the adaptive driving programs they use, their fears about driving again, and the technology they use that enables them to drive. Tiffiny talks to Heather Wood, a mom with Guillain-Barré syndrome from Massachusetts, Mike Gerhard, a paraplegic who's been driving for over 20 years from Pennsylvania, Kenneth Folkman, a paraplegic who builds custom VW hand-controls from Green Bay, Wisconsin, and Kimberly Ivory, a C7 quadriplegic who just got her license from Houston, Texas.
1:05:23
January 29, 2020
Episode 21: Overcoming Relationships Ending & Depression Post-Injury - A Chat with the Newly Injured Brandon
In episode 21 and the first episode of 2020, Tiffiny is joined by Brandon, a father of 4 who's been injured for only one year following a motorcycle accident and has already been through so much, including depression, a relationship ending and losing his job. He shares his story and how he's making it through this difficult time in his life. We want to give Brandon a HUGE thanks for his story.  He reminds us all that human resiliency is one of the greatest traits of our species. 
34:05
December 30, 2019
Episode 20: SPINALpedia Disability Employment Success Stories - Shawn Dean
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Shawn Dean, a lawyer and C6 quadriplegic who lives in Minneapolis, Minnesota. He currently works for US Bank. To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
15:02
December 4, 2019
Episode 19: SPINALpedia Disability Employment Success Stories - Garrison Redd
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Garrison Redd, a paraplegic from Brooklyn, NY, who worked FT for the IRS then decided to switch careers, becoming a wheelchair model and actor. To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
16:47
December 4, 2019
Episode 18: SPINALpedia Disability Employment Success Stories - Brian Denny
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Brian Denny, a high-level quadriplegic who works full-time as an Outreach Coordinator at the South Carolina Spinal Cord Injury Association. He is also married and has three children. Brian was injured in 2010 in an injury at work. To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
17:40
December 4, 2019
Episode 17: SPINALpedia Disability Employment Success Stories - Cody Bowman
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Cody Bowman, a 32 year old with spina bifida from Florida, who's currently working PT in retail while attending college. She is studying for her Bachelors in Communication and was a contestant in Ms. Wheelchair Florida 2014. To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
18:39
December 4, 2019
Episode 16: SPINALpedia Disability Employment Success Stories - Doug Maurer
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Doug Maurer, a paraplegic of over 40 years who has an amazing career in computer programming. Originally from Wisconsin, he lives in South Carolina with his wife, children, and grandchildren. To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
15:52
December 4, 2019
Episode 15: SPINALpedia Disability Employment Success Stories - Dick Crumb
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with with Dick Crumb, a paraplegic of over 45 years who is retired after working in the Agribusiness for several decades. He resides in Stillwater, Minnesota with his wife.  To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
17:48
December 4, 2019
Episode 14: SPINALpedia Disability Employment Success Stories - Steve Laux
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with with Steve Laux, a medical engineer at Medtronic and a C6 quadriplegic from Minnesota. He is married and has triplet daughters. To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
16:07
December 4, 2019
Episode 13: SPINALpedia Disability Employment Success Stories - Joey Carlson
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Joey Carlson, a former speed skater who works in Marketing Communications at Medtronic Corporation. He is a C5-6 quadriplegic from Minneapolis, Minnesota. To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
14:24
December 4, 2019
Episode 12: Campaign: SPINALpedia Disability Employment Success Stories - Shannon Minnick
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Shannon Minnick from Washington DC. She has been a C7 quadriplegic since 1990 and is the Director of Independent Living Services at Independence Now, Inc. She is also a mom and is Ms. Wheelchair Maryland 2010. To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
16:10
December 4, 2019
Episode 11: SPINALpedia Disability Employment Success Stories - Bill Fertig
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Bill Fertig, a longtime disability advocate from Virginia who is the Director of United Spinal’s Resource Center. Bill was injured in 1999 in an off-duty police office motorcycle accident.  To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
24:35
December 4, 2019
Episode 10: SPINALpedia Disability Employment Success Stories - Kelly Morse
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Kelly Morse who is an optometrist (eye doctor) from Pennsylvania. She is also a paraplegic and was injured while in college. Kelly knew since she was a little girl that she wanted to be an optometrist and hasn't let her injury put a damper on her career goals.  To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
16:39
December 4, 2019
Episode 9: SPINALpedia Disability Employment Success Stories - John Michaels
In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about finding a career post-injury. In this interview, we chatted with the hardworking John Michaels, a C6 quadriplegic since 1994, who has 3 jobs. He is also engaged and lives in Maryland.  To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7
25:22
December 4, 2019
Episode 8: Healthy Eating and Weight Loss After SCI
In episode #8, Tiffiny talks with two men with quadriplegia who've changed their diets to get healthy and lose weight after becoming paralyzed. She is joined by Brian Kasper from Minnesota who eats clean/Vegan and shares tips on using food to strengthen the body after paralysis. And she is joined by Damon Keoki Piikalama Boiser, a quadriplegic from Hawaii, who recently lost 40+ lbs by changing his diet, ie, cutting out rice and more. They also discuss how mental health/being Bi-Polar can affect your weight. Enjoy!
1:11:45
November 29, 2019
Episode 7: Online Dating with a Spinal Cord Injury
In Episode #7 of Life After Paralysis, Tiffiny Carlson interviews two quadriplegics about the travails of online dating after their injuries. She interviews Rob Cella from Thunder Bay, Ontario and Brook McCall from Portland, Oregon. To learn more about SPINALpedia.com, visit: https://spinalpedia.com/about To learn more about Tiffiny visit: https://beautyability.com/about-3/
1:08:56
October 28, 2019
Episode 6: Service Dogs for Quadriplegics
Service dogs make the lives of thousands of people with spinal cord injuries safer, happier and healthier everyday. The joy a service animal can bring to your life is priceless, but for quadriplegics, even moreso. The amazing tasks and companionship they provide cannot be beat. In Episode 6, Tiffiny has on three guests, all with quadriplegia, who share their lives with their service dogs. Show run-time is 1 hour, 21 minutes. Guests descriptions and time stamps can be found below. Guest #1) Erin Thompson (1:45 mins): A new college graduate from Minnesota, Erin is a C5-6 quadriplegic and her service dog is Mia. Follow them @miatheservicedoggo and @mizhoneybadger Guest #2) Allie Leath (25 mins): A brand new service dog mama to Taylor, who she received this Summer, Allie is 32 years old and a C7 quadriplegic. Guest #3) Dan Guillou (50:45 mins): Paralyzed for over 30 years, Dan is a C5-6 quadriplegic from Oceanside, California originally from Wisconsin and Narha is his service dog.
1:21:18
September 27, 2019
Episode 5: Moving On After a Spinal Cord Injury
Spinal cord injuries are considered one of the worst things that can happen to people, or so they say. What did you do when you found yourself with a spinal cord injury? How did you move on?  This is something many of us are asked by family and friends, even strangers. In episode five, Tiffiny interviews four people with spinal cord injuries about their injury story and how they were able to move on. Each person has unique advice that is worth a listen. The show run-time is 1 hour, 39 mins and the guests are as follows (time stamps are included so you can jump ahead): - Darin from Oklahoma (2:40 mins): Paralyzed a few years ago, he shares moving on in a rural area and with an incomplete injury. - Jason from Maine (28:30): Paralyzed in his 30s, married, and with kids, he shares how helping others helped him. - Justin from Wyoming (51:30): A passionate hunter, he shares how his love of the outdoors helped him heal. - Lindsey from Oregon (113:15): An incomplete quad, she shares her journey dealing with chronic pain.
1:38:51
August 27, 2019
Episode 4: Buying a Home After a Spinal Cord Injury
How do you find a home that's accessible or can easily be made accessible? Are their special home buying grants available? What about making your home accessible after the purchase? Tiffiny is joined by 4 guests for an epic 1.5 hour show on everything SCI & home buying. To listen to the guest you're most interested in, guest descriptions and timestamps for when they appear in the show are as follows. Guest #1) Brian Zadorozny, C6 quad who purchased a home near Seattle. Timestamp 1:36mins. Guest #2) Tammy Pruey, a paraplegic, owns a double-wide trailer in rural PA. Timestamp 34mins. Guest #3) Jeff Meixell, a quad, who buys/sells accessible homes in Florida panhandle. Timestamp 55 mins. Guest #4) Gina Schuh, a C6 quad, who's bought homes in AZ. Timestamp 1 hr, 15mins. To see photos of the guests' homes, visit  https://imgur.com/a/NkHmwi9? 
1:36:17
July 22, 2019
Episode 3: Adaptive Camping
Camping in a wheelchair can be some adventurous stuff.  What tents do people use? How and where do you sleep? Tiffiny chats with three avid campers with spinal cord injuries - Jason Thurston, Ty Hockett and Greg Niedzielski - to get the dirt, and they share adaptive camping hacks as well as some funny camping stories along the way. Run-time is 43 minutes.
43:55
June 19, 2019
Episode 2: A Roundtable Discussion on Ableism
A roundtable discussion on the topic of ableism, with three people with disabilities.
55:31
April 30, 2019
Episode 1: Current State of Spinal Cord Injury Research w/ Dr. Lyn Jakeman and Rob Wudlick
This episode is about spinal cord injury research, with the two guests being a research doctor and a quadriplegic,
31:22
March 19, 2019