Life After Paralysis with Tiffiny Carlson

Life After Paralysis with Tiffiny Carlson

By Tiffiny Carlson

Life After Paralysis is the official podcast of SPINALpedia.com, a nonprofit dedicated to helping people with spinal cord injuries. Hosted by Tiffiny Carlson, a C6 quadriplegic since 1993 and the executive director of SPINALpedia, she interviews guests and highlights important topics in the paralysis community, from spinal cord injury research and advocacy to lifestyle topics. New episodes are uploaded monthly. Send show ideas to info@spinalpedia.com. Learn more at SPINALpedia.com
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Currently playing episode

Episode 42: Quadriplegic Camper Jason Thurston Spreads the Word on John Dillon Park, a Fully Inclusive Campground

Life After Paralysis with Tiffiny CarlsonJun 03, 2022
00:00
44:03
Episode 58: Guinness World Record Wheelchair Traveler Renee Bruns

Episode 58: Guinness World Record Wheelchair Traveler Renee Bruns

After falling in love with traveling as a child after being taken from hospital to hospital to determine her disability, Renee Bruns, 41, from Atlanta, Georgia, knew it was her destiny to travel the world. Not only has she visited all 7 continents, she also holds the Guinness World Record for the most countries visited in one year by a wheelchair-user (66 countries). Renee shares her story, travel tips for those with mobility challenges, as well as the lessons she's learned from humanity while traveling.


— Visit her site: reneebruns.net

May 15, 202532:23
Episode 57: How Humor & Friends Have Impacted Ricky Chang's Paralysis Journey

Episode 57: How Humor & Friends Have Impacted Ricky Chang's Paralysis Journey

Life with a C4-5 spinal cord injury may be challenging, but Ricky Chang, paralyzed since 2008, has been undeterred. After fighting hard for many things after his accident, including getting his driver's license using a modified steering wheel, he shares how he's been able to stay strong over the years thanks to his dry humor and solid friend base.

Also interning for NASA in their Communications Department last year while attending VCU, as well as a new grad with a Communications degree, Chang, 35, proves it's never too late to achieve your educational dreams.

Jan 17, 202534:41
Episode 56: Discover Adaptive Pickleball with Taylor Nichols
Nov 18, 202434:41
Episode 55: Wheelchair Travel Pioneer Ashley Lyn Olson

Episode 55: Wheelchair Travel Pioneer Ashley Lyn Olson

While the web is full of accessible travel sites today, that wasn't the case in 2006 when Ashley Lyn Olson started her now infamous wheelchair travel site, Wheelchairtraveling.com. Her site is chock full of indispensable accessible travel info from her worldwide travels and her contributors. After becoming paralyzed at 14, travel was Ashley's vessel to freedom and she shares that journey with us, and much more, in this episode.

- Follow Ashley on IG: https://www.instagram.com/alo.journey

- Visit Wheelchairtraveling: https://wheelchairtraveling.com

Jul 22, 202434:29
Episode 54: NYC Real Estate Broker, Author & SCI Peer Mentor - Jeffery Lorenzo Williams
Apr 02, 202432:27
Episode 53: Paul LaCorte - Single Dad & Lead Singer of Honkydonky & Heartbreaker
Jan 10, 202437:49
Episode 52: ShelbyLynn Quintana's Transverse Myelitis Journey
Oct 24, 202328:05
Episode 51: Paralyzed Metal Artist & Rally Racer Chris Hrabik to Start Adaptive Driving School

Episode 51: Paralyzed Metal Artist & Rally Racer Chris Hrabik to Start Adaptive Driving School

In episode 51, we spoke with Chris Hrabik, based in a small town in Missouri, who was paralyzed nearly 20 years ago in a car accident at the age of 18. An incomplete quadriplegic, he went on to become a talented metal artist and fabricator as well as a rally racer after his injury. And he has a new project - starting his very own adaptive driving school where anyone no matter their ability (even people who are blind, as they will have a closed 4 mile track) are welcome.


— Follow Chris on IG: https://www.instagram.com/crabik713/

— Follow Chris on FB: https://www.facebook.com/UnHolyRoller/

Aug 23, 202336:10
Episode 50: The Healing Power of Gratitude with Author Shelly Kerschner
Jun 30, 202338:19
Episode 49: Slingshot Golf for Quadriplegics Makes Debut at Adaptive Open
Jun 08, 202324:39
Episode 48: Katie Rodriguez Banister & Rejoining the Theater World 30 Years After Her Spinal Cord Injury

Episode 48: Katie Rodriguez Banister & Rejoining the Theater World 30 Years After Her Spinal Cord Injury

A former high school theater kid and aerobics instructor paralyzed in 1990, Katie Rodriguez Banister has been living life as a C5-6 quadriplegic for over 33 years. Post-injury, she found a passion for speaking and writing about SCI issues like managing/finding caregivers, and during Covid she decided to turn her autobiography into a play with the help of a friend.


The end result "ROLL WITH IT! (film) disability, humor, hope and F-bombs" went on to be a hit in the St. Louis theater scene and was nominated for "Best New Play" and Katie also acts in it. The play shares her life's ups and downs and she isn't afraid to speak her mind, swear, talk about sex and more. In our 30 minute conversation, Katie shares what drove her to return to theater nearly 30 years after her injury and her longtime husband Steve makes an appearance as well. Thank you Katie for sharing your story and energy <3


"ROLL WITH IT!" is permanently available to view on Eventbrite for $5 if you use the code "discount 50% off" here: https://www.eventbrite.com/e/roll-with-it-film-disability-humor-hope-and-f-bombs-best-new-play-tickets-503707581937?fbclid=IwAR3vxtYWFPuxKe0rghYGKTJYD43_C2ui2X59Cy42lGuqpQN0-maf3ReG43Y


Find Katie on social media:


https://www.instagram.com/katierodriguezbanister/


https://www.facebook.com/katie.banister

Apr 04, 202330:23
Life After Paralysis Episode 47: Gabe Trujillo: Becoming a NBC 12 News Digital Executive Producer
Mar 06, 202332:30
Life After Paralysis Episode 46: Amy Wang-Hiller, Violinist on Wheels
Jan 06, 202332:15
Life After Paralysis Episode 45: Casey Moore of the Oregon Spinal Cord Injury Connection
Nov 22, 202232:51
Life After Paralysis Disability Employment Series 2022 - Candis Welch, DEI Practioner, Disability Advocate & Speaker
Oct 14, 202228:08
Life After Paralysis Disability Employment Series 2022 - Brandon Winfield
Oct 07, 202222:53
Life After Paralysis Episode 44: Wheelchair Zumba Instructor Tennille Houston
Sep 13, 202232:59
Episode 43: Self-Improvement Hour with Tim Taylor

Episode 43: Self-Improvement Hour with Tim Taylor

Tim Taylor, a C5 quadriplegic from Pennsylvania, has experienced a lot since his injury nearly 20 years ago, and he has a lot to share in this episode. We talk with him about his car accident that resulted in the death of two individuals, how he made it through the depression that followed afterwards and how he ultimately found his calling since he was no longer able to pursue his previous career.

From making money on his YouTube channel to flipping vintage items he finds at thrift restores and reselling them on eBay, he has used his business mind to keep himself afloat financially. Tim also shares his first arm contracture surgery experience, which he underwent earlier this year as part of his 2022 year of self improvement. His next goal is getting his driver's license for the first time since his injury. Episode run-time is 32 minutes

— Tim's YouTube channel: https://www.youtube.com/user/timay618

— Tim on IG: https://www.instagram.com/this_is_wheel_life/

Jul 20, 202232:11
Episode 42: Quadriplegic Camper Jason Thurston Spreads the Word on John Dillon Park, a Fully Inclusive Campground
Jun 03, 202244:03
Episode 41: Bianca Faith Johnson - Lawyer, Professor, Preacher & Ms. Wheelchair NY 2022
May 02, 202226:28
Episode 40: Wage Disparities & The Great Caregiver Shortage
Feb 24, 202247:09
Episode 39: Cooking from a Wheelchair
Jan 05, 202233:15
Life After Paralysis Episode 38: Peter Yeo's Mobility-Enhancing Surgeries
Nov 01, 202125:19
Life After Paralysis Episode 37: Newly Injured Melissa Childers Shines a Light on Spinal Strokes
Sep 21, 202122:21
Life After Paralysis Episode 36: Wheelchair Weight Loss, Finding Love and More with Beth Beckley

Life After Paralysis Episode 36: Wheelchair Weight Loss, Finding Love and More with Beth Beckley

Beth Beckley is not your average married lady living life in the Atlanta, Georgia suburbs with her spoiled fur babies (although her dogs are insanely cute). Injured 13 years ago when she was 21, Beth, now a T4 paraplegic, has an appreciative perspective on life. She shares her injury story, how recently lost 40 pounds and how she's forging ahead with a new healthy lifestyle.  

Beth also shares how she lost the weight with help from the Shepherd Center, one of the best SCI rehab centers in the US. Married for 10 years, she also talks about how she met her husband on eHarmony as well as how she deals with a less than harmonious mother-in-law. They're also currently trying to get pregnant. Listen to our 25 minute chat with Beth Beckley below.

- Watch the video version of this episode: https://www.youtube.com/watch?v=Xb9y4LdgRj4

- Follow Beth on Instagram: https://www.instagram.com/wheelingwithmebethb/

- Follow Beth on Youtube (she makes DIY crafts): https://www.youtube.com/channel/UCeR4T7wgd8T0DhmLmHDyE6Q

- Read her guest post on our blog, "Guest Post: Life is Still Worth Living" by Beth Beckley, here: https://spinalpedia.com/guest-post-life-is-still-worth-living-by-beth-beckley/

- Shepherd Fitness Center: https://www.shepherd.org/promotion

Aug 12, 202125:32
Life After Paralysis Episode 35: Former MMA Fighter Ulysses Martin

Life After Paralysis Episode 35: Former MMA Fighter Ulysses Martin

In Episode 35, we are joined by Ulysses Martin, a 45 year old C3-5 quadriplegic, father and quadriplegic from Florida. A former amateur MMA fighter, minor league football player and actor, Martin was injured in 2018 when he was hit by a SUV while on his motorcycle. He is now striving to walk again and is determined to return to physical therapy to pursue activity-based therapy at Stay In Step in Tampa..

Activity-based therapy is a form of physical therapy where people continue to go for months, even years after their injury and continue to see return through exercises like gait training and vibration therapy. It is expensive and Martin is currently fundraising so he can return. Learn more about Martin and his incredible story below. Run-time is 30 minutes.

- Ulysses' site

- Follow Ulysses on IG

- Donate to his GoFundMe account to help him return to therapy here

Jul 09, 202130:45
Episode 34: Adaptive Surfer Ernie Johnson
May 20, 202127:30
Episode 33: 40 Years Paralyzed - Ron Trozzi and His Green Thumb Life in Arizona
Apr 22, 202131:42
Episode 32: Leah B. Rose - Quadriplegic Empowerment Coach from Vancouver
Mar 18, 202132:35
Episode 31: Scott Fedor & 5 Absolute Life Truths He's Learned Since Breaking His Neck
Feb 11, 202138:12
Episode 30: Balancing Optimism vs Reality with Author and Quadriplegic Ryan S. Atkins
Jan 11, 202127:47
Ep 29: Working After a Spinal Cord Injury Pt. II

Ep 29: Working After a Spinal Cord Injury Pt. II

In Episode 29, Pt. II of Working After a Spinal Cord Injury,  we chat with Alex, a C4 quadriplegic from Miami injured in 2018, who still works as a real estate agent, and then we speak with Kenneth, a C5 quadriplegic from Colorado. Kenneth was a Walmart store manager for several years and now works for Colorado Cross Disability Coalition - ccdconline.org.

Oct 29, 202038:56
Ep 29: Working After a Spinal Cord Injury Pt. I

Ep 29: Working After a Spinal Cord Injury Pt. I

In Episode 29 and for October Disability Employment Awareness Month, we chat with César, a C4 quadriplegic from Tijuana, Mexico, who has his own online business, and we speak with Derek, a C5-6 quadriplegic from Mississippi, who has worked as a financial advisor and many other jobs during his 29 years post-injury.

- Check out César's store: https://www.redbubble.com/people/yannichingaz/shop?asc=u

- Check out César's article on becoming independent for Audacity Magazine: https://www.audacitymagazine.com/independently-dependent/

Oct 28, 202043:47
Episode 28: Accessible Travel During COVID-19

Episode 28: Accessible Travel During COVID-19

In Episode 28 of Life After Paralysis, we interview two paraplegics who've traveled during the COVID-19 pandemic, both traveling to the state of Florida. We first speak with Dick, a 60 something paraplegic injured for over 40 years, who shares his favorite airline right now and his travels in Tampa. Our second guest is Corey, a paraplegic and a seating specialist who is still traveling on the road during the pandemic. He shares his travel advice for road trips, as well an adaptive SCUBA trip he went on with his son. Show run time is 45 minutes.

Sep 11, 202045:51
Episode 8: Keith Smith & His Epidural Stimulator Journey
Jul 31, 202022:30
Episode 27: My Neck Is Broken, But My Brain is Just Fine

Episode 27: My Neck Is Broken, But My Brain is Just Fine

In Episode 27, we chat with three people who share their amusing and sometimes frustrating stories of discrimination after becoming disabled. In many cases people just don't understand that our brains aren't affected as well, which leads to some funny stories. We chat with Sean Dineen, a professor with spastic paraplegia, Ken Macdonald, a quadriplegic and former quad rugby player, and Antonia Sinibaldi, a vent-dependent quadriplegic, singer and author. Podcast run-time: 1 hr, 27 mins

- Listen/watch Antonia sing: https://www.antoniasinibaldi.com/

Jul 08, 202001:27:38
Episode 26: Quarantining with a Spinal Cord Injury Pt. II

Episode 26: Quarantining with a Spinal Cord Injury Pt. II

In Episode 26, we chat with two more people about quarantining and having a spinal cord injury. Our first guest is Noel Joyce, a paraplegic from Ireland, who is a industrial designer. He shares insight into the designs occurring as a result of COVID-19 and how they benefit people with disabilities. Our second guest is Misty Dawn Piker, a paraplegic and theater usher from Indiana. She too has been home since March and shares how she's been getting everything done while home alone, from getting her mail to her plans for celebrating her birthday later this week.

- Follow Misty on Twitter: @mimi_dawn_piker

- Follow Noel on Instagram at @noeljoyce

Jun 01, 202049:24
Episode 24: Vent Life

Episode 24: Vent Life

Episode 24: Vent Life

In episode 24, we talk to two people with quadriplegia who use a ventilator to breathe. We first speak with Drew Clayborn from Michigan. Injured in high school, he went on to attend the University of Michigan and is the founder of The Drew Crew Charitable Organization. Next, we speak with Loa Griesbach from Washington who's been injured 18 years. She too went on to college shortly after her injury and is an Ambassador for Ventec Life, a ventilator company. 

- Follow Drew @drewclayborn

- Follow Loa @loagriesbach

Mar 31, 202055:56
Episode 23: Wheelchair Life Hacks
Feb 22, 202049:42
Episode 22: Adaptive Driving

Episode 22: Adaptive Driving

In episode 22, four people with paralysis share their stories about driving post-injury. They share the adaptive driving programs they use, their fears about driving again, and the technology they use that enables them to drive. Tiffiny talks to Heather Wood, a mom with Guillain-Barré syndrome from Massachusetts, Mike Gerhard, a paraplegic who's been driving for over 20 years from Pennsylvania, Kenneth Folkman, a paraplegic who builds custom VW hand-controls from Green Bay, Wisconsin, and Kimberly Ivory, a C7 quadriplegic who just got her license from Houston, Texas.

Jan 29, 202001:05:24
Episode 21: Overcoming Relationships Ending & Depression Post-Injury - A Chat with the Newly Injured Brandon

Episode 21: Overcoming Relationships Ending & Depression Post-Injury - A Chat with the Newly Injured Brandon

In episode 21 and the first episode of 2020, Tiffiny is joined by Brandon, a father of 4 who's been injured for only one year following a motorcycle accident and has already been through so much, including depression, a relationship ending and losing his job. He shares his story and how he's making it through this difficult time in his life. We want to give Brandon a HUGE thanks for his story.  He reminds us all that human resiliency is one of the greatest traits of our species. 

Dec 30, 201934:06
Episode 20: SPINALpedia Disability Employment Success Stories - Shawn Dean

Episode 20: SPINALpedia Disability Employment Success Stories - Shawn Dean

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Shawn Dean, a lawyer and C6 quadriplegic who lives in Minneapolis, Minnesota. He currently works for US Bank.

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201915:02
Episode 19: SPINALpedia Disability Employment Success Stories - Garrison Redd

Episode 19: SPINALpedia Disability Employment Success Stories - Garrison Redd

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Garrison Redd, a paraplegic from Brooklyn, NY, who worked FT for the IRS then decided to switch careers, becoming a wheelchair model and actor.

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201916:47
Episode 18: SPINALpedia Disability Employment Success Stories - Brian Denny

Episode 18: SPINALpedia Disability Employment Success Stories - Brian Denny

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Brian Denny, a high-level quadriplegic who works full-time as an Outreach Coordinator at the South Carolina Spinal Cord Injury Association. He is also married and has three children. Brian was injured in 2010 in an injury at work.

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201917:40
Episode 17: SPINALpedia Disability Employment Success Stories - Cody Bowman

Episode 17: SPINALpedia Disability Employment Success Stories - Cody Bowman

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Cody Bowman, a 32 year old with spina bifida from Florida, who's currently working PT in retail while attending college. She is studying for her Bachelors in Communication and was a contestant in Ms. Wheelchair Florida 2014.

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201918:39
Episode 16: SPINALpedia Disability Employment Success Stories - Doug Maurer

Episode 16: SPINALpedia Disability Employment Success Stories - Doug Maurer

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Doug Maurer, a paraplegic of over 40 years who has an amazing career in computer programming. Originally from Wisconsin, he lives in South Carolina with his wife, children, and grandchildren.

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201915:53
Episode 15: SPINALpedia Disability Employment Success Stories - Dick Crumb

Episode 15: SPINALpedia Disability Employment Success Stories - Dick Crumb

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with with Dick Crumb, a paraplegic of over 45 years who is retired after working in the Agribusiness for several decades. He resides in Stillwater, Minnesota with his wife. 

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201917:48
Episode 14: SPINALpedia Disability Employment Success Stories - Steve Laux

Episode 14: SPINALpedia Disability Employment Success Stories - Steve Laux

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with with Steve Laux, a medical engineer at Medtronic and a C6 quadriplegic from Minnesota. He is married and has triplet daughters.

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201916:08
Episode 13: SPINALpedia Disability Employment Success Stories - Joey Carlson

Episode 13: SPINALpedia Disability Employment Success Stories - Joey Carlson

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Joey Carlson, a former speed skater who works in Marketing Communications at Medtronic Corporation. He is a C5-6 quadriplegic from Minneapolis, Minnesota.

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201914:25
Episode 12: Campaign: SPINALpedia Disability Employment Success Stories - Shannon Minnick

Episode 12: Campaign: SPINALpedia Disability Employment Success Stories - Shannon Minnick

In October, we celebrated National Disability Employment Awareness Month, speaking to people with paralysis about their careers post-injury. In this interview, we chatted with Shannon Minnick from Washington DC. She has been a C7 quadriplegic since 1990 and is the Director of Independent Living Services at Independence Now, Inc. She is also a mom and is Ms. Wheelchair Maryland 2010.

To be matched with a FREE disability employment benefits counselor please fill out this three-minute survey: https://forms.gle/Nix93TjEaEZzjcDm7

Dec 04, 201916:10