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Life After ECT

Life After ECT

By Life After ECT

There are many risks from electroconvulsive therapy (ECT, EST, electroshock therapy).

Tragically, most prospective patients are given little warning before this treatment and no help after to identify and treat their injuries after.

Join me and my peers as we discuss what life after ECT is like as well as the history, science, news surrounding this controversial procedure.

Thank you for listening!

DISCLAIMER
Information from this podcast is not medical advice and should not be treated as such.

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Currently playing episode

Guest: Understanding Electrical Injury - Dr. Marc Jeschke

Life After ECT

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Linda Andre Interview - Madness Radio
Linda Andre Interview - Madness Radio
First Aired: 05-12-2009 on Madness Radio ECT SURVIVOR ACTIVIST AND AUTHOR LINDA ANDRE TALKS ABOUT HER BOOK, DOCTORS OF DECEPTION, WITH MADNESS RADIO (2009.) Linda Andre became an accidental activist after her life was irreparably altered by ECT. She lost five years of her life and suffered permanent cognitive disability after a series of treatments she was aggressively coerced into having. Andre’s journey would lead her to the electroshock survivor community and activism, later to write what many consider the definitive book on electroshock, Doctors of Deception: What They Don’t Want You to Know about Shock Treatment. In this interview, Linda discusses her experience, the complex history of shock therapy, and elaborate efforts by the industry to mislead and suppress information about ECT’s true risks, side effects, and efficacy. If I could summarize my book in one sentence it would be this: if you tell a big lie and you tell it often enough and it’s big enough people will believe you. ~Linda Andre Listen here ECT MYTHS DISCUSSED: Modified ECT isn’t new – electroconvulsive therapy performed under anesthesia with muscle paralytics have been in use since the 1950s. Modified ECT is physically more damaging to the brain because the seizure threshold is raised by anesthesia, requiring more electricity to induce convulsions Pure oxygenation is used to make seizures last longer, not to improve patient safety. Patients injured by ECT struggle to be taken seriously by doctors, the media, and society. See ECT Arguments: All Medical Procedures Have Risks Celebrity ECT promoters like Kitty Dukakis and Carrie Fisher have acknowledged they have experienced permanent memory loss. Psychiatry lobbied against FDA safety testing at a time the device was supposed to be proven effective or taken off the market. Conflicts of interest are rife in ECT research. Show Notes  https://docs.google.com/document/d/1SCiXfxFswJZNVzdp84ZOWNbG3EwPYsUHpKUHsD82Z5g/edit?usp=sharing 
52:00
September 05, 2022
Can Electroconvulsive Therapy Erase Bad Memories? ECT and the Eternal Sunshine of the Spotless Mind
Can Electroconvulsive Therapy Erase Bad Memories? ECT and the Eternal Sunshine of the Spotless Mind
I love seeing Jim Carrey in serious roles. Mostly known for his off-the-wall physical comedy he has a few serious roles in his film roster. It’s frickin awesome when he brings that irrepressible energy to drama. One of my favorite drama movies he stars in is Eternal Sunshine of the Spotless Mind. It’s a story about a couple's tempestuous relationship and painful breakup ending in Clementine (Kate Winslet) undergoing a procedure to erase Joel (Jim Carrey) from her memory. In turn, he does the same followed by unexpected consequences. I watched this movie often in the early stages of my recovery from brain damage from ECT. I think I was searching for a reflection of my new reality after losing old memories and the ability to make new ones was wrecked. The film's choppy jump cuts and shuffled timelines felt true to my early recovery days. At that time I lived in constant confusion and struggled to make sense of my fractured timeline of memories. Going places I'd been before but couldn't remember, talking to people I sensed I knew but couldn't place where feeling something is missing but not knowing what. Doctors refused to believe anything was wrong. I'd gone so long without talking to another injured ECT recipient and doctors repeatedly told me ECT doesn’t cause permanent brain damage... I guess I needed to see a reflection of how distorted my world was after shock therapy after my ability to make new memories was wrecked. The premise of selective memory erasure via ECT for trauma is interesting but is it even possible? There’s research on using Electroconvulsive therapy (ECT) as a treatment for post-traumatic stress disorder (PTSD & cPTSD) like in the movie, selectively erasing or reducing traumatic memories. Over the years this topic has generated a lot of pop science buzz in the media, often citing Spotless Mind like I’m doing now. But I can speculate where the journalists can't because I’ve lived it. Many who have ECT will say they don’t care or even hope they lose their memories from the treatment. I was one of those people. I wish I'd known more about the memory before undergoing electroconvulsive therapy for supposed treatment-resistant depression (actually CPTSD and life-threatening undiagnosed medical conditions— all 100% treatable.) Memory is not a buffet you can pick and choose from. In a brain primarily composed of water, doctors can't control the electricity they use let alone identify and target specific memories while leaving cognition and other memories intact. Cranial nerves involved in trauma responses are also at risk of damage in ways we're only beginning to understand. Memory loss coupled with trauma and cognitive impairment is hell. People in my situation desperately need comprehensive testing and rehabilitation for long-term sequelae of electrical injury secondary to electroconvulsive therapy (ECT). Learn how you can support all ECT patients: Audit ECT Petition Works Cited Eternal Sunshine of The Spotless Mind. Directed by Michel Gondry, with performances: Jim Carrey, Kate Winslet. Focus Features, 2004. https://www.imdb.com/title/tt0338013/ Gifs https://giphy.com/ Music courtesy of: RYYZN, MEMORIES ERASED, https://hypeddit.com/track/3zzfl9 Show Notes & Links https://docs.google.com/document/d/1T3Pes8AUd_hfkCryW54zRFOsDT0eaKXHo-gLiCBcoiw/edit?usp=sharing
12:34
July 25, 2022
Lisa Morrison's ECT Story, Part 3 - Justice and Hope
Lisa Morrison's ECT Story, Part 3 - Justice and Hope
The following guest audio is part 3 of 3 part series from electroshock survivor, Lisa Morrison. She shares her experiences before and after receiving electroconvulsive therapy as well as valuable insights on patient care. Part 1 Part 2 See show notes for links: Show Notes https://docs.google.com/document/d/1EWo9lkpuK2lU4roaMYumZ8fJ6ujM4UKc_IBvsOnskfk/edit?usp=sharing  Lisa Morrison: "The following 3-part blog arose after agreeing to be interviewed about my experiences of receiving Electroconvulsive Therapy (ECT) by the BBC NI. The purpose is to share my views, experiences, and questions arising from facing the reality that I had received ECT on far more occasions than I remembered. The purpose is to share my views, experiences and questions arising from facing the reality that I had received ECT on far more occasions than I remembered. I have also since, received some of my records which had been requested because of my sketchy memory. These validated issues I have raised through my work but were quite challenging and at times distressing to read. This is a bog-standard reflection of my thoughts on ECT and the system in which it was delivered as I try to make sense of my own journey through mental health services. It has helped me take what felt overwhelming and ‘too big’ and translate it into a narrative which I hope will contribute to positive change. I have not tried to give all perspectives or reference multiple research papers. This is just my story. I intentionally refer to ‘the system’ and not individuals as I believe, in the most part, people wanted to help." ----------------------------------- RESOURCES  How to Report Your ECT Injury to the FDA Action Litigation  Additional Resources  Petition · Standardize, Regulate & Audit Shock Treatments (Electroconvulsive therapy or ECT)
26:06
April 25, 2022
Lisa Morrison's ECT Story, Part 2: Finding Me
Lisa Morrison's ECT Story, Part 2: Finding Me
The following guest audio is part two of 3 part series from electroshock survivor, Lisa Morrison. She shares her experiences before and after receiving electroconvulsive therapy as well as valuable insights on patient care. Part 1  See show notes for links: Show Notes  https://docs.google.com/document/d/1CABT2asu7F3JdFDjhMFMiLMGfozu_mSMJm-ZsG42PQo/edit?usp=sharing  Lisa Morrison: "The following 3-part blog arose after agreeing to be interviewed about my experiences of receiving Electroconvulsive Therapy (ECT) by the BBC NI. The purpose is to share my views, experiences, and questions arising from facing the reality that I had received ECT on far more occasions than I remembered. The purpose is to share my views, experiences and questions arising from facing the reality that I had received ECT on far more occasions than I remembered. I have also since, received some of my records which had been requested because of my sketchy memory. These validated issues I have raised through my work but were quite challenging and at times distressing to read. This is a bog-standard reflection of my thoughts on ECT and the system in which it was delivered as I try to make sense of my own journey through mental health services. It has helped me take what felt overwhelming and ‘too big’ and translate it into a narrative which I hope will contribute to positive change. I have not tried to give all perspectives or reference multiple research papers. This is just my story. I intentionally refer to ‘the system’ and not individuals as I believe, in the most part, people wanted to help."
23:49
March 17, 2022
Lisa Morrison's ECT Story, Part 1: Loss and Anger
Lisa Morrison's ECT Story, Part 1: Loss and Anger
In this episode, we'll touch on some news then follow up with guest audio from electroshock survivor Lisa Morrison’s amazing 3 part series about her experience with ECT. The following guest audio is a 3 part series from electroshock survivor, Lisa Morrison. She shares her experiences before and after receiving electroconvulsive therapy as well as valuable insights on patient care.  See show notes for links:  Show Notes  https://docs.google.com/document/d/1zALXBgdPTzcYoDkay9uxXJX_HsbUgq75YFAHtvMye4Q/edit?usp=sharing  Lisa Morrison: "The following 3-part blog arose after agreeing to be interviewed about my experiences of receiving Electroconvulsive Therapy (ECT) by the BBC NI. The purpose is to share my views, experiences, and questions arising from facing the reality that I had received ECT on far more occasions than I remembered. The purpose is to share my views, experiences and questions arising from facing the reality that I had received ECT on far more occasions than I remembered. I have also since, received some of my records which had been requested because of my sketchy memory. These validated issues I have raised through my work but were quite challenging and at times distressing to read. This is a bog-standard reflection of my thoughts on ECT and the system in which it was delivered as I try to make sense of my own journey through mental health services. It has helped me take what felt overwhelming and ‘too big’ and translate it into a narrative which I hope will contribute to positive change. I have not tried to give all perspectives or reference multiple research papers. This is just my story. I intentionally refer to ‘the system’ and not individuals as I believe, in the most part, people wanted to help."
17:55
January 31, 2022
What's Life Like After Shock Treatment (ECT)? - Guest Interview
What's Life Like After Shock Treatment (ECT)? - Guest Interview
This interview answers the most common questions people have about electroconvulsive therapy (also known as shock treatment, electroshock or ECT): Does ECT work? Does ECT cause Memory loss? Does ECT cause permanent memory loss? How will ECT memory loss impact my life, family and relationships? Does ECT cause brain damage? What barriers are common for people living life after ECT? Where can I get help after ECT for my injuries? Is the short-term benefit some people experience from ECT worth the risk of its long-term consequences? Marissa, a student in San Diego State University’s Rehabilitation Counseling Master’s program who chose to specialize in the Cognitive Certificate, interviewed me as part of her class project about barriers to accessing help after brain injury. In this video we discuss immediate and delayed consequences of repetitive electrical injury caused by electroconvulsive therapy, the California Department of Rehabilitation Brain Injury Advisory Board meetings, Neuropathology findings of electrical injury (gliosis, myelin sheath injury, vascular abnormalities, chronic microbleeds, brain stem injury, acquired channelopathies, dysarthria, swallowing issues, barriers to appropriate brain injury assessment for people harmed by medical treatment, academic accommodations, personal strategies I tried to improve my quality of life after ECT, memory problems and how memory loss impacts personal identity and personal relationships. Sarah Price Hancock, MS, CRC, lived for nearly two decades misdiagnosed with severe mental illness. She was given 116 bilateral ECT treatments and now lives with delayed electrical injury. Sarah holds a Master’s in Rehabilitation Counseling and taught for four years in San Diego State University’s Rehabilitation Counseling program. She also hosts The Emotional Self-Reliance Podcast and guest lectures on psychiatric recovery. Follow her on Twitter Sarah P. Hancock, MS, CRC ♿ (@PsychRecovery) / Twitter Help ensure patients like Sarah get access to vital testing and rehabilitation and medical care by signing her petition Petition · Standardize, Regulate & Audit Shock Treatments (Electroconvulsive therapy or ECT) · Change.org Injured By ECT? Visit our resource pages  Resources  Action  Litigation
01:05:41
December 06, 2021
Electroconvulsive Therapy Success and Failure - Two Patients Discuss Their Different ECT Outcomes
Electroconvulsive Therapy Success and Failure - Two Patients Discuss Their Different ECT Outcomes
This guest audio is from the Emotional Self Reliance Podcast. Sarah P. Hancock and her friend, Greg Threadgold have both had electroconvulsive therapy with remarkably different outcomes. In this episode, the two compare their different results with ECT and discuss the need for better regulation of this procedure to ensure good outcomes for all patients.See original interview. SHOW NOTES I sat down with Greg Threadgold, an ECT patient who feels ECT saved his life.  We had a sincere discussion about the differences in treatment practices and the need to prevent injury among ECT patients.  Greg Threadgold discusses his ECT Success and shares how he felt about my failed treatment.  Repetitive head injury has delayed effects as does low-voltage diffuse electrical injury.  ECT must be considered through the lens of both repetitive head trauma and an electrical injury (900 milliamps/450 volts/504mC).   To standardize, regulate, audit ECT and provide rehabilitation to patients if/when injured, please sign and share the international patient safety petition www.change.org/patientsafetyECT    Your signature could save a life.   Sadly, Greg's experienced his first episode of symptoms associated with delayed electrical injury eight years after having 13 treatments. His experience speaks to the reality that even "successful ECT outcomes" carry the risk of developing low-voltage diffuse electrical injury symptoms years after treatment. Paroxysmal neurological disorders from electrical injuries acquired channelopathies can be difficult to recognize and diagnose.   We desperately need researchers who study acquired brain injuries and/or repetitive head injuries to do a retrospective study on people with a history of shock treatment to identify needs associated with the delayed effects of repeatedly exposing the brain to 900 milliamps/450 volts of electricity.    Dr. Bennet Omalu, the neuropathologist who first identified and published on Chronic Traumatic Encephalopathy among American Football Players, stated in California's Department of Rehabilitation TBI Advisory Board Meeting that electroconvulsive therapy must be considered through the lens of a repetitive electrical injury to the head.  The neuropathology of ECT is clear. It's both a repetitive head injury and an electrical injury--and must be considered as such when considering the functional acquired brain injury to develop appropriate interventional rehabilitative care. (Omalu, B. (2019, August). TBI Advisory Board Meeting of California's Department of Rehabilitation, Sacramento, CA).     Please continue to share the #AuditECT petition https://www.change.org/p/standardize-...
13:54
November 11, 2021
Guest: Understanding Electrical Injury - Dr. Marc Jeschke
Guest: Understanding Electrical Injury - Dr. Marc Jeschke
In this guest audio presentation electrical injury expert Dr. Marc Jeschke explains the   Similarities between high and low voltage electrical injuries  The physical, social, mental health, and economic impact of electrical injury  And what research is needed to improve patient outcomes  View slides   We thank Dr. Jeschke for allowing us to share this important information for all impacted by electrical injury, and those harmed by electroconvulsive therapy (ECT) in particular.  Did you know ECT has never been FDA tested for safety or efficacy? Learn more about why this matters and how you can help improve outcomes for all patients  - Audit ECT Campaign 
49:02
October 05, 2021
 A discussion on the campaign for an independent review on ECT - A Disorder for Everyone Festival 2021
A discussion on the campaign for an independent review on ECT - A Disorder for Everyone Festival 2021
4 patient safety activists discuss their efforts for an independent review of electroconvulsive therapy (ECT) use in the UK. CAMPAIGN AIMS Learn about the campaigners’ aims and find links to related resources: Guest blog: Call for an independent review into the practice of ECT LUCY JOHNSTON Lucy Johnston is a consultant clinical psychologist and author. JOHN READ John Read is a professor of clinical psychology of East London with numerous publications to his name. He has been in the ECT reform space for many years following his first-hand experience with electroshock recipients while in the nursing field. CHRIS HARROP Chris Harrop is a private practicing clinical psychologist with 20+ years of experience working for the National Health Service (NHS). He has numerous publications on psychosis and is the coauthor of many of the freedom of information (FOA) requests regarding the UK’s ECT practice, regulation, or lack thereof. SUSAN CUNLIFFE, MBCHB HONOURS Sue Cunliffe is a former pediatrician and abuse survivor who suffered life-changing permanent damage from electroconvulsive therapy. She is a passionate campaigner for ECT patient safety through informed consent, regulation, and proper practice. SARAH PRICE HANCOCK MS, CRC Misdiagnosis of a medically treatable illness led Sarah to years of polypharmacy and 116 ECT treatments. Sarah now lives with the devastating long-term consequences of electrical injury. She is campaigning for the audit and regulation of ECT. Audit ECT campaign A DISORDER FOR EVERYONE ORG About A Disorder for Everyone Website
36:36
September 30, 2021
ECT & Litigation - Special Guest Series , Episode 3
ECT & Litigation - Special Guest Series , Episode 3
This episode is a continuation of a special guest series.  Today’s episode Seeking legal advice after being injured by electroconvulsive therapy (ECT, shock therapy, shock treatment) can be daunting.  Deborah, a former level one trauma nurse, electroshock survivor, and founder of ECTJustice.com has provided audio to help demystify the process.  TOPICS COVERED:  Firms participating in electroshock product liability lawsuits.  What you need to file a medical malpractice lawsuit. Statute of limitations and time frame needed to file a lawsuit.  Statute of limitations for minors. Statute of limitations up? How you can still help litigation efforts by submitting your experience to law firms. Tips for easy submission to law firms.  RESOURCES:   Action Page  Litigation Page Help improve ECT patient safety - Audit ECT petition Resources Page  Obtaining medical records  Testing 
05:02
August 09, 2021
ECT & brain damage: what it looks like and how to get help - Guest
ECT & brain damage: what it looks like and how to get help - Guest
ECT and brain injury: what does electroconvulsive therapy-induced brain damage look like and how can patients get testing and rehab?  Continuing this special series, Deborah, former level 1 trauma nurse and electroshock survivor, explains  ECT injury symptoms & consequences of those injuries as far as we understand  Barriers keeping patients from getting appropriate testing and rehabilitative following ECT  What tests to request How sharing your experience can help yourself and other patients  PETITIONS  Sarah's petition - Petition · Standardize, Regulate & Audit Shock Treatments (Electroconvulsive therapy or ECT) · Change.org Sarah’s Latest Article Open Letter to the FDA's Denial of ECT's Harms - 2021 - Life After ECT  Sue's Petition - closed Medical Errors Podcast interview - ECT & Brain Damage - A Physician's Experience - Life After ECT Maudsley Debate  RESOURCES  Electroconvulsive trauma episode  Aftercare following electroshock  Obtaining medical records 
21:50
December 08, 2020
Ernest Hemingway - Famous ECT Patients (PART 1)
Ernest Hemingway - Famous ECT Patients (PART 1)
Today marks the 59th anniversary of renowned American author, Ernest Hemingway's suicide. Hemingway killed himself following a series of involuntary electroshock (ECT) that wrecked his writing ability, giving one of the most cited quotes on ECT injury in the process: "What these shock doctors don't know is about writers and such things as remorse and contrition and what they do to them . . . Well, what is the sense of ruining my head and erasing my memory, which is my capital, and putting me out of business? It was a brilliant cure, but we lost the patient." Ernest Hemingway, Papa Hemingway, A.E. Hotchner Hemingway's case is still relevant in the year 2020; people are still losing their livelihoods to electroshock. Some patients like Ernest, kill themselves, too. I recently learned of more tragic circumstances leading up to his death that I feel more people should know about. I will also share a bit about similar struggles with work and school and I invite other survivors to also for a follow-up episode. It's easy! Your Story: What work/education problems did you have after ECT? Leave a voicemail Voice Mail - https://anchor.fm/lifeafterect/message Include your name, initials or alias if you prefer to remain anonymous Briefly describe any work/school issues you had Stay tuned for the follow-up episode! RESOURCES Hemingway Hounded by the Feds https://www.nytimes.com/2011/07/02/opinion/02hotchner.htm  Ernest Hemingway: macho man of letters http://www.cnn.com/fyi/school.tools/profiles/hemingway/index.story.html Latest analysis of ECT efficacy The latest analysis of ECT dismal efficacy https://www.madinamerica.com/2020/06/john-read-irving-kirsch-electroconvulsive-therapy-ect-evidence-clinical-trials-justify-continued-use/ http://cepuk.org/2020/06/04/guest-blog-by-richard-bentall-ect-is-a-classic-failure-of-evidence-based-medicine/ Did you know shock therapy has never been standardized? Learn why this matters and how you can help https://www.change.org/p/standardize-regulate-audit-shock-treatments-electroconvulsive-therapy-or-ect ----- JaneLifeAfterECT@gmail.com LifeAfterECT.com
20:22
July 02, 2020
Electroconvulsive Trauma (ECT) - Guest
Electroconvulsive Trauma (ECT) - Guest
Deborah was coerced into having electroconvulsive therapy (ECT) at a vulnerable time in her life.  As a result of these treatments, she lost her career as a trauma nurse, skills, marriage, memories of her children's lives, and the ability to make new memories, and more. Read The impact of electroshock on my life She has since worked tirelessly to help educate society and help peers obtain legal and medical support for their injuries.    Over the years she has done extensive research and her activism efforts have propelled our cause forward with the first successful class-action lawsuit, and medical & psychological tests that confirm brain damage from electroshock.   She has generously let me convert her videos to podcast format so this valuable information can reach more people.   Topics Covered:   issues with informed consent   evidence ECT causes brain damage   brain damage symptoms   how patients struggle to get testing by most medical fields who prefer to protect colleagues rather than help brain-damaged patients   lawsuits   how to get testing & rehabilitation   Learn more about Deborah's work  ECTJustice.com   Life After ECT Resource Page  Life After ECT Action Page  Did you know ECT has never been safety tested by the FDA, nor is it regulated or standardized? Learn why this matters and how you can help Petition
23:41
June 29, 2020
Life After ECT Podcast Intro
Life After ECT Podcast Intro
Welcome to the Life After ECT Podcast! This intro give background on why I made this podcast and what I hope to accomplish. Thanks for stopping by!
02:44
June 08, 2020