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Life's a Polyp

Life's a Polyp

By Jenny Jones

Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and uses her platform of Life's a Polyp (blog, vlog, and shop) focused on raising awareness about FAP, SBS, and patient empowerment. She started the NORD FAP Research Fund in 2015 and donates profits from Life's a Polyp Shop and her FAP Children's Book - Life's a Polyp with Zeke and Katie.
Her FAP related surgeries (8 total) started at age 9. She's experienced life-threatening complications resulting in medical PTSD and lived with an ileostomy for 6 years before having it reversed.
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Post Concussion Syndrome

Life's a PolypMar 28, 2024

00:00
17:16
Post Concussion Syndrome

Post Concussion Syndrome

Jenny shares about her experience developing and living with Post Concussion Syndrome

Mar 28, 202417:16
How We Can Use Hardship to Build Our Resiliency

How We Can Use Hardship to Build Our Resiliency

Jenny shares an in-depth view of how we can use our hardships to build our resiliency from our own inner strength.

Dec 07, 202312:27
Comfytemp Weighted Heated Vest: AD - A Sponsored Review
Nov 30, 202307:19
3 Self-Care Habits That Can Be Started Today

3 Self-Care Habits That Can Be Started Today

Jenny shares 3 self-care habits that one can start today to for beginning a self-care routine for the betterment of physical and mental well-being.

Nov 28, 202305:04
Changing Our Perspectives to Better Our Well-Being

Changing Our Perspectives to Better Our Well-Being

Jenny discusses ways of changing perspective for well-being betterment.

Nov 17, 202306:09
La Mémoire Noire: Part 1

La Mémoire Noire: Part 1

La Mémoire Noire or The Dark Memory is a letter series written to Jenny's first surgeon. The man who caused everything ultimately in my life to reach this point today. I was to have 2 surgeries beginning at the age of 9 and his surgical errors altered the course of my life. Ultimately, I instead would require 7 surgeries and experience repeated life-threatening complications resulting in medical PTSD, suicidal and homicidal ideation. This is trauma I am still trying to heal from nearly 30 years later that has touched every aspect of my life and how I react, view, and process the world. As part of my therapeutic efforts to heal, I am writing this series to him. It is my raw, unedited thoughts and feelings towards this man and all that transpired following my first surgery that he performed. It will be a series that is periodically updated as I process each letter, my trauma, and continue inching towards healing embodying full love and forgiveness for myself and others.

Sep 25, 202313:12
Living My Best Life

Living My Best Life

Jenny shares in her latest blog post what the last two years have been like for her and through it all, why she says she’s living her best life

Jun 23, 202307:59
When You're Eager for Medical Testing

When You're Eager for Medical Testing

Jenny shares how unexplained vomiting for 10 months has left her eager to undergo medical testing, in spite of medical PTSD


Apr 30, 202308:01
Learning Balance

Learning Balance

Jenny shares her struggle to balance life, how it affects her physical and mental health and how she's finding balance now


Jan 31, 202305:46
Chronic Pain and Physical Therapy
Oct 28, 202210:41
What is Familial Adenomatous Polyposis and Life's a Polyp?

What is Familial Adenomatous Polyposis and Life's a Polyp?

A brief overview of the rare disease, Familial Adenomatous Polyposis, and Life's a Polyp.

This Episode was originally published to Life's a Polyp's Youtube in 2017.

Oct 20, 202202:41