Lupus: The Expert Series
By Lupus Foundation of America
Lupus: The Expert SeriesOct 21, 2021
The Expert Series S7E1: Lupus Nephritis
March is Kidney Month! Join us for a conversation with Dr. Brad Rovin, an expert in autoimmune kidney disease, where we talk about lupus nephritis and kidney health for people with lupus.
The Expert Series S6E6: Lupus and Cancer
In this episode, we talk with Dr. Sasha Bernatsky, about lupus and cancer, if there’s a link between lupus and cancer, and a new abstract about cancer incidence and risk factors in a large SLE cohort.
Dr. Bernatsky is a rheumatologist, a James McGill professor and a senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the McGill University Health Centre. Her expertise lies in using ‘big data’ from health services, linked to additional clinical sources of information.
Read more about lupus facts and statistics
Help expand lupus research through RAY (Research Accelerated by You)
- Read the mentioned abstract: Updated analyses of cancer incidence and risk factors in a large international SLE cohort
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The Expert Series S6E5: Stress and stress management
In this episode of the Expert Series, we speak with Dr. Christie Bartels about stress and stress management for people with lupus. Dr. Bartels covers how to manage stress, resources to manage stress and the difference between stress symptoms and lupus symptoms.
Dr. Bartels is Division Chief of Rheumatology at the University of Wisconsin School of Medicine and Public Health and Chair of the American College of Rheumatology (ACR) RISE Registry Health IT Committee. As a rheumatologist health services and implementation researcher, Bartels’ work aims to improve cardiovascular health and reduce disparities among patients with lupus and rheumatic diseases.
For more resources on stress and stress management:
Other resources mentioned in the episode
Insight Timer
Arthritis Foundation’s Walk with Ease program
The Expert Series S6E4: Lupus and teens
In this episode of The Expert Series, Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children’s Hospital at Montefiore in New York, talks with us about how lupus affects teenagers, how they can cope with lupus, and how to communicate with health care providers as teens get older.
Her research focuses on improving mental health and disease outcomes in youth with lupus and has been funded by the Lupus Foundation of America, the Rheumatology Research Foundation, the Childhood Arthritis and Rheumatology Research Alliance (CARRA)/ Arthritis Foundation, and the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH.
Resources:
- Find out more about lupus and teens
- School survival guide for teens with lupus
- Helping teens learn to cope with lupus
- SELF app, for people 18+ in the U.S.
Mentioned resources:
- Take a pain check, a chronic disease podcast meant to support youth with rheumatic diseases
TES Bonus Episode: The Awakening: When lupus looks like mental illness
In this episode of The Expert Series, Dr. Anca Askanase, professor of medicine, the founder and director of Lupus Center and director of Rheumatology Clinical Trials at the Division of Rheumatology of the Columbia University Irving Medical Center in New York City, will be sharing about her role in the successful treatment of a catatonic woman who awakened after 20 years.
Read the article on April’s case and others on the Washington Post,
How autoimmune disease can attack the brain, cause psychiatric symptoms
Lupus resources:
The Expert Series S6E3: Lupus in the LGBTQ+ Communities
In this episode, we talk with Dr. Jillian Rose-Smith, vice president and chief equity officer at the Hospital for the Special Surgery, about lupus in the LGBTQ+ communities. We discuss what it means to have gender affirming care, how to protect yourself from implicit bias in the healthcare space and how to get the support you need.
Review these resources to learn more:
- What role do sex and gender play in lupus?
- Lupus facts and statistics
- What is self-advocacy
- Speak with a health educator
- Fenway Health - A health organization dedicated to helping LGBTQ+ communities
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The Expert Series S6E2: Visible Symptoms of Lupus
In this month’s episode, we learn more about visible symptoms of lupus with Dr. May Choi. Dr. Choi will discuss the difference between visible and invisible symptoms, treatment options, and ways to cope with visible manifestations of lupus.
Dr. Choi is a rheumatologist, clinician scientist, and Assistant Professor at the Cumming School of Medicine, University of Calgary.
Resources
- Check out our previous episode about invisible symptoms with Dr. Cynthia Aranow
- Use this sheet to keep track of your lupus symptoms
- Learn how lupus affects the body
The Expert Series S6E1: Invisible Symptoms of Lupus
Dr. Cynthia Aranow explains the impact of invisible symptoms in this episode of The Expert Series. Learn the difference between a sign and symptom and how to discuss this topic with your health care team and loved ones.
Review these resources to learn more about this topic:
- https://www.lupus.org/resources/understanding-the-invisible-impact-of-lupus
- https://www.lupus.org/resources/ten-things-to-tell-your-friends-about-lupus
- https://www.lupus.org/resources/learn-ways-to-better-manage-your-lupus
- https://www.lupus.org/resources/financial-assistance
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The Expert Series S5E13: Remission: Can my lupus go away?
There is no set definition or timeframe for what counts as lupus remission. It’s no wonder lupus remission is a confusing topic!
This month, Dr. Ronald van Vollenhoven, director of Amsterdam Rheumatology Center in the Netherlands, shares his expertise about lupus remission and inactive lupus and what it means for lupus warriors.
Learn more about lupus remission on our National Resource Center on Lupus
The Expert Series S5E12: Step Therapy and access to medications
In this episode of The Expert Series, we explore the topic of Step Therapy and access to medications. LFA’s Health Education Specialist and Manager Ashley Holden will explain what Step Therapy is and how it can affect people with lupus.
Related resources
- Check out LFA’s Policy Spotlight on Step Therapy
- Medications that treat lupus
- Learn how to self-advocate for yourself or a loved one here
The Expert Series S5E11: Lupus and bone health
Inflammation from lupus and treatments can affect a person’s bone density, which makes it easier for someone with lupus to break a bone. Dr. Ummara Shah, associate professor in the department of medicine at University of Rochester, discusses why it’s important for people with lupus to care about their bone health.
Dr. Shah also leads clinical trials in lupus and is involved in education of lupus patients at the University of Rochester.
More resources on how to manage bone health:
- https://www.lupus.org/resources/how-lupus-affects-the-bones
- https://www.lupus.org/resources/osteoporosis-management-strategies
- https://www.lupus.org/resources/how-lupus-affects-the-muscles-tendons-and-joints
- https://www.lupus.org/resources/exercising-with-lupus
The Expert Series S5E10: Health Disparities and Social Determinants of Health
You may have heard the terms health disparities or social determinants of health being used in conversation, but weren’t quite sure how they apply to people with lupus. If so, this is your time to listen.
We’re talking with LFA’s Research Director Dr. Joy Buie about health disparities and social determinants of health and how it can affect people with lupus.
Here is some important information
- Keep track your health information with Your lupus care file
- Financial assistance resource page
- Get the most from your doctor’s visit
The Expert Series S5E9: Answers from our Health Educators
La discusión de este episodio se impartió en español
Lupe y Lety, especialistas en educación para la salud de la Fundación de Lupus de América (LFA, por sus siglas en inglés), están de vuelta en un nuevo episodio respondiendo preguntas frecuentes sobre el lupus sometidas al equipo de educación para la salud.
Para enviar su propia pregunta a los especialistas en educación de la salud, llena este formulario aquí
Para leer más de las respuestas del blog de las especialistas en educación de la salud hag clic en el enlace, en inglés o en español
Para obtener más información sobre el lupus, visite el NRCL (NRCL en español)
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This episode discussion is conducted in Spanish
Lupus Foundation of America’s Health Education Specialists, Lupe and Lety, are back in a new episode answering frequently asked lupus questions sent to the health education team.
To submit your own question to Health Education Specialists, fill out this form here
To read more from Answers from the Health Education Specialists blog, in English or en Espanol
To learn more about lupus, visit the NRCL (NRCL en Espanol)
The Expert Series S5E8: Lupus and the eyes
In this episode, we focus on eyes and how lupus can affect vision. Dr. Michelle Petri, founder and director of Johns Hopkins Lupus Center, discusses the importance of maintaining eye health when you have lupus, and what to take notice of depending on prescribed medications.
To learn more about lupus and the eyes, review a slideshow here
Related:
To see how lupus affects other parts of the body, check out our resources here
Here’s how medications used to treat lupus can affect you, read more here
The Expert Series S5E7: Participating in Clinical Trials
Clinical trials make new and better treatments for lupus possible. In this episode of The Expert Series, we sit down and talk with Stephanie Slan, director of IMPACT+ (Improving Minority Participation and Awareness in Clinical Trials) at the Lupus Foundation of America about clinical trial participation. Stephanie also debunks some myths about clinical trials might keep people from wanting to participate.
It’s important for people with lupus to consider participating in these trials to further the advancement of lupus medicines and treatment. This episode breaks down eligibility criteria, what happens during a clinical trial, and what happens with your information after a trial.
Listen to learn more
To learn more about clinical trials, read more about participating in clinical trials here or about frequently asked questions here
If you are interested in participating in research, visit: Lupus.org/RAY
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The Expert Series S5E6: Fertility and reproductive health
The Expert Series is happy to have Dr. Bonnie Bermas on our episode about fertility and reproductive health.
Dr. Bermas is an internal medicine professor at UT Southwestern Medical Center focusing on rheumatology disorders. She was the Clinical Director of the Lupus Center and co-director of the Program in pregnancy and rheumatic diseases at Brigham and Women’s and Harvard Medical School.
Her research interests include pregnancy and rheumatic diseases, systemic lupus erythematosus (SLE) and antiphospholipid syndrome (APS), and rheumatic immune checkpoint inhibitor adverse events.
Below are resources from the National Resource Center on Lupus related to this episode
- Read about Lupus and women’s reproductive health
- Read how six men are living with lupus
- Learn more to understand the role of how sex and gender play in lupus
- For more information on medication, read about Medications used to treat lupus.
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The Expert Series S5E5: Self care and self management for people with lupus
In this month’s episode, we talk about self-care/self-management with Dr. May Choi. Dr. Choi is a rheumatologist, clinician scientist, and Assistant Professor at the Cumming School of Medicine, University of Calgary.
She has a background and training that include Masters of Public Health in Epidemiology at Harvard University and a lupus fellowship. Dr. Choi is also the Associate Director of MitogenDx Laboratory for novel autoantibody and biomarker testing for autoimmune diseases and the Associate Director of Research for the University of Calgary Lupus Centre of Excellence.
Resources
Here is a resource and worksheet to help find support near you. If you want a list of program and services the Lupus Foundation of America provides, you can find information here.
Read about lupus and depression, and a coping with lupus strategies worksheet.
Depending on where you are in your lupus journey, consider signing up for Strategies to Embracing Living with Lupus Fearlessly, or SELF. This program is self-paced program and can guide someone to reach milestones that can help improve quality of life.
The Expert Series S5E4: Lupus and Antiphospholipid Syndrome (APS)
In this month’s episode, we speak with Dr. Jane Salmon about Antiphospholipid Syndrome, or APS. Dr. Salmon is a Collette Kean Research Professor and the director of the Lupus and APS Center of Excellence at the Hospital for Special Surgery.
Dr. Salmon shares her insight on APS how it can affect people with lupus, treatments, and more. Tune in to learn more.
For more information on APS, read here
The Expert Series S5E3: Recursos Financieros Para Personas Hispanas/Latinas con Lupus (Financial Resources for Hispanics/Latinos with lupus)
This episode was recorded in Spanish. Este podcast fue grabado en español.
En este episodio, nuestras especialistas en educación para la salud, Leticia Ocaña, MPH, CHES® y Guadalupe Patiño, MPH, hablan sobre los recursos financieros que pueden estar disponibles para las personas con lupus de la comunidad hispana/latina. Los recursos que comparten incluye información que se encuentra en nuestro nuevo artículo que se enfoca en brindar ayuda a la comunidad de lupus y dónde buscarla.
Para obtener más información sobre recursos de asistencia financiera, visite: https://www.lupus.org/es/resources/recursos-de-asistencia-financiera
O aquí en inglés: https://www.lupus.org/resources/financial-assistance
For people with lupus, help may come in many ways – whether it’s through caregivers or organizations. While the Lupus Foundation of America doesn’t provide direct financial assistance, we have complied a resource to help people with lupus find the help they may need to keep up with the cost of their lupus care . Our Health Education Specialists Leticia Ocaña and Guadalupe Patiño share information in this resource for people with lupus, including from the Hispanic/Latino lupus community.
For more information of financial assistance resource, visit: https://www.lupus.org/es/resources/recursos-de-asistencia-financiera
Or here, in English: https://www.lupus.org/resources/financial-assistance
The Expert Series S5E2: The Heart and Lupus
In this episode of The Expert Series, we welcome Dr. Murray Urowitz, a senior staff rheumatologist at the Toronto Western Hospital and Senior Scientist at the Krembil Research Institute and Schroeder Arthritis Institute. Dr. Urowitz helps us continue the conversation on lupus and heart health. We discuss the difference between coronary artery disease and cardiovascular disease for lupus patients, how these diseases present in both men and women, and more.
Find out more information on heart health and lupus on our National Resource Center on Lupus. | En Español
You may also find our referenced heart episode with Dr. Jim Oates, here
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The Expert Series S5 E1: Medication Management
In this episode of The Expert Series, we are focusing on medication management. LFA talks with Dr. Marcia Mueting, CEO of Nebraska Pharmacists Association, about the importance of connecting with your local pharmacists, what questions to ask, and what to do if you experience side effects from your lupus medications. Dr. Mueting also worked as staff pharmacist, pharmacy manager in a community practice, and helps support her husband, who is a lupus warrior.
For information on lupus medications, check out these resources:
To learn more on how lupus affects the body, visit: https://www.lupus.org/resources/how-lupus-affects-the-body
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The Expert Series S4E12: Winter Wellness
In this episode of The Expert Series, we talk with Dr. Anca Askanase, founder and clinical director of Columbia University’s Lupus Center, about winter wellness. We discuss how to stay healthy during cold and flu season, the importance of getting a flu shot every year, and more.
To learn more about flu and vaccines for people with lupus, check out our resources on our Resource Center:
Be sure to also check out our blog discussing how to stay safe and stress-free this holiday season.
The Expert Series S4E11: Caring for Caregivers
In honor of National Caregivers Month, we speak with Grace Whiting, president and CEO of The National Alliance for Caregiving, on why we should give back to those who take care of us. In this episode we discuss the caregiver role, tips to stay healthy, resources, and more.
For more information on caregiving, check out our dedicated page for caregivers.
The Expert Series S4E10: Diet, nutrition and kidney health
In this episode of The Expert Series, LFA’s Senior Communication Strategist Duane Peters talks with Melanie Betz of University of Chicago. Betz, a member of the American Kidney Fund dietician advisory group, addresses the role of diet for people with Lupus Nephritis and kidney-friendly recipes.
For information on Lupus Nephritis, check out our dedicated resource page. You may learn more about how kidney disease involvement may affect someone with lupus.
For recipes, you can check out Melanie Betz’s website and American Kidney Fund’s Kidney Kitchen.
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The Expert Series S4E9: Mitos y Realidades del Lupus (Lupus Myths and Realities)
Esta discusión se lleva a cabo en español. En este episodio de la Serie de Expertos la Gerente de Educación para la Salud y Alcance Hispano, Leticia Ocaña, habla con la Dra. Cristina Drenkard, Profesora Asociada de Medicina de la Universidad Emory en Atlanta, Georgia, sobre los mitos y realidades comunes del lupus que rodean al lupus.
Si necesita más información y apoyo, consulte nuestro paquete informativo sobre el lupus aquí.
Información adicional está disponible en español. Visite: lupus.org/es/resources
This discussion is conducted in Spanish. In this episode of The Expert Series, Health Education Manager for Hispanic Outreach Leticia Ocaña speaks with Dr. Cristina Drenkard, Associated Professor of Medicine at the Emory University in Atlanta, Georgia about the common lupus myths and realities surrounding lupus.
If you need more information and support, please take a look at our lupus information packet here.
More resources are available in Spanish, visit: Lupus.org/es/resources
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The Expert Series S4E8: 2021 Lupus Treatment Research Updates
In this episode of The Expert Series, Dr. Diane Kamen, Associate Professor of Medicine at the Medical University of South Carolina, Division of Rheumatology, will be sharing updates regarding research for treatments in lupus. She highlights the history of autoimmunity research, stem cell research and newly approved treatments for lupus.
For more research news updates, visit: Lupus.org/News
If you are interested in participating in research, visit: Lupus.org/RAY
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The Expert Series S4E7: Making it Work with Lupus
The Lupus Foundation of America Health Education Specialists have had increased calls and emails from people with lupus, with questions about safely returning to work. We know that this year, is a very unique one for getting back to work with the COVID-19 pandemic. But we also know that working with lupus is a very important topics for most people with lupus and one we want to make sure we cover.
Please find the links to important resources discussed in this episode:
Lupus and the workplace FAQs | Lupus Foundation of America
What you need to know about workplace accommodations | Lupus Foundation of America
Call 211 for Essential Community Services | United Way 211
COVID-19 Vaccines for Children and Teens | CDC
JAN - Job Accommodation Network (askjan.org)
Coronavirus Disease (COVID-19) | Occupational Safety and Health Administration (osha.gov)
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The Expert Series S4E6: Men’s Health and Special Considerations with Lupus
It’s Men’s Health Month and we want to discuss how lupus affects men.
In this episode of The Expert Series, Men’s Health and Special Considerations with Lupus, we answer some important questions about men’s health with Dr. Niewold, Director of the Colton Center for Autoimmunity and Judith and Stewart Colton Professor of Medicine and Pathology at New York University Grossman School of Medicine.
For more information about lupus and men, click here.
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The Expert Series S4E5: Could It Be Lupus?
Getting an early and accurate lupus diagnosis is critical to preventing long-term consequences of the disease.
In this episode of The Expert Series, Could It Be Lupus? we answer some important questions about labs and diagnostic assessments for lupus diagnosis with Dr. Adegbenga Bankole from Carillion Clinic in Roanoke, Virginia.
For more information about diagnosing lupus click here.
This episode is sponsored by Exagen. The need for improved lab tests prompted the Lupus Foundation of America to support early research on the development of Cell-Bound Complement Activation Products also known as CB-CAPs. CB-CAPs are now the cornerstone of Exagen’s AVISE CTD test for diagnosis and AVISE SLE Monitor used to uncover disease activity in people who have lupus. More about AVISE can be found at www.avisetest.com.
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The Expert Series S4E4: Improving Health Visits for People with Lupus
In this episode of The Expert Series, we discuss Improving Health Visits for People with Lupus with Jillian Rose. Jillian Rose is Assistant Vice President of Community Engagement, Diversity, Research at the Hospital for Special Surgery with a Master’s in Social Work, a Master’s in Public Health and Doctorate of Education from Columbia University in New York. She is dedicated to health equality for rheumatology and orthopedic care and today, as we celebrate Minority Health Month, we share her knowledge about implicit bias and how we can work to improve health visits for people with lupus.
For more information about preparing for your health visits click here.
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The Expert Series S4E3: Managing Your Journey with Lupus Nephritis
In this episode of The Expert Series, we discuss Managing Your Journey with Lupus Nephritis with Wendy Rodgers. Wendy is the Senior Manager for Community Outreach and Engagement for the Lupus Foundation of America and lupus warrior. With a background in science and education, and has lived with lupus for 21 years (and counting), she provides helpful insights into managing your lupus nephritis and how to find resources along the way.
For more information about lupus nephritis click here.
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The Expert Series S4E2: Top Questions about Skin and Hair
In this episode of The Expert Series, we discuss Top Questions about Skin and Hair with Fotios Kompouras, MD. Dr. Kompouras is an Assistant Professor of Medicine and Director of the Yale Lupus Program in Connecticut. He attended St. George's University School of Medicine and worked closely with Lupus Foundation of America’s Acting Medical Director, Dr. Susan Manzi, investing novel therapeutics for lupus at the University of Pittsburgh and Allegheny Clinic before moving to Yale. He has assisted in important clinical research over the course of his career that has contributed to the treatments for lupus and has developed a cohort of lupus patients for novel lupus research. He also has developed the Rheumatology/Dermatology clinic with Sarika Rama Chandra at Yale.
For more information about lupus symptoms involving skin and hair click here.
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The Expert Series S4E1: Lupus & Physical Activity
In this episode of The Expert Series, we discuss Lupus & Physical Activity with Hazel L. Breland PhD, FAOTA, OTR/L. Dr. Breland is an Associate Professor of Occupational Therapy at the Medical University of South Carolina, doctoral capstone coordinator, and past president of the Association of Rheumatology Professionals, the interprofessional division of the American College of Rheumatology. Her academic areas of focus include diversity, equity, and inclusion; interprofessional education, community engagement, occupational therapy clinical education; and, patient-centered interventions for chronic conditions
For more information about low impact exercises and activities for people with lupus, click here.
The Expert Series S3E11: Advice from the Community
2020 was an unprecedented year. The lupus community is strong and we helped each other through this year by sharing our wisdom and compassion. In this episode, we asked both experts in the field as well as people with lupus for advice as we approach 2021.
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The Expert Series S3E10: Trust and Participation in Research
In this episode of The Expert Series, we discuss Trust and Participation in Research with Dr. Owen Garrick. Dr. Garrick is the President and CEO of Bridge Clinical Research, a global clinical research and health communications firm focused on drug development, scientific advancement and patient engagement. He has helped launch multiple collaborative efforts in advancing precision medicine research and serves as an advisor to the Stanford Precision Health for Ethnic and Racial Equity Center (SPHERE). In this interview, Dr. Garrick shares more information about precision medicine, the importance of diversity in clinical trials and what participation in a clinical trial entails.
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The Expert Series S3E9: (En Español) Educadores y Recursos de Salud de la Fundación de Lupus de América
En este episodio de The Expert Series o la Serie de Expertos, Leticia Ocaña, MPH, CHES, Educadora de la salud de La Fundación de Lupus de América comparte más información sobre cómo nuestras educadoras de la salud pueden ayudarle a entender y manejar el lupus y los recursos que puede utilizar, incluyendo: Take Charge, LupusConnect™, y Lupus Foundation of America Caregiver Toolkit.
The Expert Series S3E8: The Importance of Support
In this episode of The Expert Series, we discuss The Importance of Support with Lupus Foundation of America staff: Wendy, our Community Outreach and Engagement Manager, and Lauren, our Health Education Nurse Manager. Wendy and Lauren share more information about types of support, support groups, and helpful resources for those looking to build their support system.
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The Expert Series S3E7: Kidney Health and Lupus
In this episode of The Expert Series, we discuss Kidney Health and Lupus with Dr. Brad Rovin, Nephrologist at Ohio State University Wexner Medical Center. Dr. Rovin explains what to expect from a lupus diagnosis, lifestyle considerations for healthy living, and what exciting new treatments are on the horizon for people with lupus nephritis.
This episode is sponsored by Aurinia Pharmaceuticals. Aurinia Pharmaceuticals is committed to supporting the needs of the lupus nephritis community. That’s why they created the ALL IN program, a source of information, resources, and support for those affected by lupus nephritis, an inflammation of the kidneys caused by lupus. For more information visit www.allinforln.com.
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The Expert Series S3 E6: The Impact of Racial Trauma on Mental Health (Mental Health America)
In this episode of The Expert Series, The Impact of Racial Trauma on Mental Health, America Paredes from Mental Health America discusses mental health in the Black, Indigenous and People of Color (BIPOC) community as well as resources to help cope.
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About Mental Health America
Mental Health America (MHA) is an organization dedicated to addressing the needs of those living with mental illness and promoting the overall mental health of all. MHA’s work is driven by its commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services, and supports for those who need them; with recovery as the goal.
The Expert Series S3E5: Reproductive Health & Lupus (Dr. Jane Salmon)
In this episode of The Expert Series, Reproductive Health and Lupus, Dr. Jane Salmon shares information about reproductive health, antiphospholipid syndrome (APS), challenges with pregnancy with lupus and tips on how to prepare for a having safe pregnancy.
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The Expert Series S3 E4: Telehealth & Lupus (Dr. Donald Thomas)
In this episode of The Expert Series, Telehealth and Lupus, Dr. Donald Thomas shares information about telehealth and tips on how to prepare for a virtual visit with your doctor.
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About the Presenter
Dr. Donald Thomas teaches at the Walter Reed National Military Medical Center as an Associate Professor of Clinical Medicine of the Uniformed Services University of the Health Sciences, a practicing rheumatologist in Greenbelt, Maryland and author of the” Lupus Encyclopedia: A Comprehensive Guide for Patients and Families.”
The Expert Series S3E3: Mental Health & Wellness in a Time of Uncertainty
Depression and anxiety has increased among Americans as the coronavirus pandemic continues to evolve.
In this episode of The Expert Series, Mental Health and Wellness During a Time of Uncertainty, Dr. Neda Gould shares information about stress and anxiety, coping strategies and will lead a brief guided meditation practice.
The Expert Series S3E2: Importance of Fatty Acids for People with Lupus
In this episode of The Expert Series, Kathryn Wierenga, one of the 2019 recipients of the Lupus Foundation of America’s Gina M. Finzi Memorial Student Summer Fellowship Award, shares more information about the Importance of Fatty Acids and People with Lupus.
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About the Presenter
Kathryn Wierenga graduated with a bachelor’s in science from Michigan State University and is currently a doctorate student in their Department of Biochemistry and Molecular Biology with a dual major in Environmental and Integrative Toxicological Sciences. She is currently studying how Omega-3 fatty acids suppress lupus flaring.
The Expert Series S3 E1: Lupus Foundation of America Health Educators & Resources
In this episode of The Expert Series, Lauren Metelski, RN, Health Education Nurse Manager for the Lupus Foundation of America shares more information about how our health educators can help you navigate your lupus journey and resources that you can use to better manage the disease, including:
- Take Charge E-mail Series: a weekly education email series for people with lupus, including those recently diagnosed. Each week for 12 weeks, you'll get an email from our Health Educators with tips and resources that can empower you to take charge of your health.
- LupusConnect™: an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of lupus.
- Lupus Foundation of America Caregiver Toolkit: a downloadable toolkit designed to provide you with guidance, support, and advice, whether you have been a caregiver for just a few days, or for several years.
About The Expert Series
The Expert Series by the Lupus Foundation of America is an educational podcast series featuring empowering conversations with leading lupus experts with a focus on helping you live well with lupus.
Each month, lupus experts will offer invaluable insight on a variety of important topics, providing you with the knowledge you need to better manage the disease.
New segments of The Expert Series are available on the third Thursday of every month. Subscribe on Lupus.org/TheExpertSeries to receive an email when new episodes are released.