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The Lympha Press Podcast

The Lympha Press Podcast

By Lympha Press

Free-flowing conversation to educate and inspire! Whether it's the latest research on lymphedema and lipedema, conversations about community, or interviews with thought leaders: we're pumped to talk about it. This podcast is brought to you by Lympha Press, makers of the Optimal Plus. Find out more by visiting www.lymphapress.com.
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Lipedema Patient Roundtable: April 2024

The Lympha Press PodcastApr 23, 2024

00:00
01:04:11
Lipedema Patient Roundtable: April 2024

Lipedema Patient Roundtable: April 2024

For the lipedema community, the Fat Disorders Resource Society (FDRS) Conference is an annual highlight. At the April Lipedema Patient Roundtable, host Brenda Viola and Angelique Charles “zoomed” from St. Louis Missouri, where the next few days will focus on the latest research and breakthroughs in fat disorders.

Linda Anne Kahn, an FDRS clinical speaker, treated attendees to a sneak preview of her talk on the fascial network, pain and lipedema, and Dercum’s disease.

Special guest Kaz Windsor joined the live discussion from the UK, and shared how limited options for help inspired her to study and forge her own path for healing. She now motivates thousands of others through her Sculpt and Change Therapies practice and robust social media following. Kaz underscored the importance of reading and research, but also the need to respect your own inner guidance as you manage your condition.

Angelique Charles’ personal experience getting to Missouri from Arizona sparked an insightful conversation about traveling with lipedema, from TSA Precheck to asking for assistance and why certain airlines are preferable because of how they accommodate lipedema challenges. The latest Lympha Press webinar on the topic was also cited as a valuable resource.

Why is community so important? “Because sometimes even family members don’t understand.” A safe space where patients can know they’re not alone is why the Lipedema Patient Roundtable was started, and this online gathering grows stronger each month.

Special thanks to anchor panelists, special guest, and host:

These outstanding individuals bring candor, humor, and important information that never fails to encourage those who attend the live event each third Thursday or who watch the recordings. Lympha Press is committed to offering world-class therapy through the Optimal Plus pneumatic compression device, and also values the need for community and for patients to feel seen and heard. Find out more about Lympha Press by visiting www.lymphapress.com.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on ⁠⁠⁠the Lipedema Channel on YouTube⁠⁠⁠, or on ⁠⁠⁠Instagram at @lympha_press⁠⁠⁠.

Apr 23, 202401:04:11
Lymphedema Patient Roundtable: April 2024

Lymphedema Patient Roundtable: April 2024

Spring has sprung, and the April Lymphedema Patient Roundtable was blooming with conversation around themes of community and support! Special guest Veronica Seneriz from the Lymphatic Education and Research Network walked attendees through LE&RN's robust new Resource Center (proudly sponsored by Lympha Press), and Angela Jones urged everyone to connect with the things that bring you joy with the reminder "You are not your lymphedema."

At the end of the hour, Karen Ashforth led everyone in a relaxing manual lymphatic drainage session, walking the group through some of the core clearing that's common to all people with swelling.

A big thank-you to our panelists this month:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, and on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Apr 16, 202401:02:28
Tips for the Traveler with Lymphedema and Lipedema
Apr 02, 202401:16:60
Lipedema Patient Roundtable: March 2024

Lipedema Patient Roundtable: March 2024

"Perfectionism is the enemy of good." This was just one of the powerful takeaways from the March Lipedema Patient Roundtable. Special guest Dr. Nicholas Pennings, DO, FOMA, FACO, FP, has devoted his career to studying and treating obesity and lipedema. An expert on one of the hottest related topics, GLP-1 medications, he fielded a host of insightful questions from a curious panel and audience. Side effects, insulin resistance, potential impacts on fibrosis, and much more were covered during the hour.

Dr. Pennings said that family members and, sadly, medical professionals are the most likely to perpetuate stigmas surrounding obesity: "Obesity is a chronic disease. The goal is not a number on the scale; it is about health. And your size is not your fault."

His closing words of encouragement? "Correcting bias and shame begins with yourself." In a world where lipedema patients remain judged for their size, he emphasized being kind to ourselves.

Jenny Beaujean echoed this call to kindness, first to ourselves, then to others: "May I be free from fear. May I be free from suffering. May I be happy..." These words ended a truly educational and inspirational hour, with special thanks to moderator Brenda Viola (@BrendaViola_ViciCommunications) for Lympha Press and special guest Dr. Nicholas Pennings, Associate Professor of Family Medicine at Campbell University, School of Osteopathic Medicine.

Heartfelt appreciation to our anchors:

The monthly Lipedema Patient Roundtables are part of Lympha Press' commitment to supporting lipedema patients and helping them manage their condition. Many patients have experienced reduced pain, increased mobility, and many other benefits by using the Optimal Plus, indicated by the FDA for the treatment of lipedema. To find out more, visit www.lymphapress.com.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on ⁠⁠the Lipedema Channel on YouTube⁠⁠, or on ⁠⁠Instagram at @lympha_press⁠⁠.

Mar 26, 202401:01:35
Lymphedema Patient Roundtable: March 2024

Lymphedema Patient Roundtable: March 2024

Happy Lymphedema Awareness Month! Every month is Lymphedema Awareness Month at the Lymphedema Patient Roundtable, but even more so in March.

What does "lymphedema awareness" mean to you? And what about the butterfly, the symbol for lymphedema? The panel and attendees spent the hour engaged in inspiring conversation, along with a robust Q&A session on topics like compression garments, cellulitis, and surgery.

A special thank-you to our panelists this month:

  • Alexa Ercolano, Lymphedema Patient and Lympha Press Marketing and Communications Associate (⁠@lymphielife⁠)
  • Angela Jones, Lipolymphedema Patient and Health Coach (⁠@2018gethealthy⁠)
  • Catherine Rosenberg, Lymphedema Patient (⁠@crosenberg1982⁠)
  • Amanda Sobey, Lymphedema Patient, Certified Personal Trainer, and Nutritionist (⁠⁠@am.sobey⁠⁠)

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, and on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Mar 19, 202401:00:09
A Conversation with Dr. John Chuback on Your Heart: The Center of Your Cardiovascular and Lymphatic Circulations

A Conversation with Dr. John Chuback on Your Heart: The Center of Your Cardiovascular and Lymphatic Circulations

Mar 12, 202401:02:46
Lipedema Patient Roundtable: February 2024

Lipedema Patient Roundtable: February 2024

Love is always in the air at the Lipedema Patient Roundtable, but the feeling was palpable as the group shared what community means to them in this “Galentines” episode. With representatives from the Lipedema Foundation and Fat Disorders Resource Society (FDRS) welcomed as guests, questions and answers abounded. New materials intended for patients to bring to their medical team were unveiled by the Foundation, including their Clinician's Guide to Lipedema and Research Roadmap, and discussion surrounding how to participate in the organization’s research database were discussed. 

Angelique Charles encouraged the audience to “not give up on themselves” and Siouxie Boshoff shared how “Vitamin G – gratitude” made a difference in her month. An East Coast virtual watch party for the FDRS Conference may be in the works, spearheaded by Pattie Cornute and Jenny Beaujean. And Cara Cruz cautioned all to be prepared for the post-Conference letdown after spending days with people who truly understand lipedema.

The following questions were asked about the live research opportunity, with the Lipedema Foundation promising to provide answers in the coming days. So, here they are:

  • Is it advisable/helpful for people to stop compression and/or other conservative therapies a few days before they participate?
  • We do not advise or recommend removing compression any earlier than coming to the research study without compression (expedites the changing room process). We are stating the following for participants on our Live Research landing page: "Participants will need to disrobe prior to participating in the study, and changing areas will be available. To expedite the process, please come to your assigned time slot without compression if possible."

  • Are we interested in participation from people who have undergone surgery?
  • Yes. Having undergone liposuction in the past does not prohibit your ability to participate in this study.

Special thanks to special guests Jonathan Kartt, CEO, and Courtney Mascio Henderson, Professional Education Manager, from The Lipedema Foundation (@lipedema_fndn). The Roundtable truly appreciates the participation of Cheyenne Brinson, President, and Polly Armour, Research Coordinator, for the Fat Disorders Resource Society (@fatdisorders).

And everyone’s favorite Galentines? Our anchor panelists and moderator: 

Lympha Press is committed to supporting lipedema patients and helping them manage their condition with the Optimal Plus, indicated by the FDA for the treatment of lipedema. To find out more, visit www.lymphapress.com. And if you’re attending the FDRS Conference, come and visit the Lympha Press booth, where Brenda Viola will delighted to meet you in person!

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on ⁠⁠the Lipedema Channel on YouTube⁠⁠, or on ⁠⁠Instagram at @lympha_press⁠⁠.

Feb 27, 202401:08:44
Lymphedema Patient Roundtable: February 2024

Lymphedema Patient Roundtable: February 2024

From navigating relationships with lymphedema to the way loved ones support us in our lymphedema lives, to how we show ourselves and our lymphedema some love (even when it’s difficult to do so) – the Lymphedema Patient Roundtable had a lot to discuss this Valentine's Day Eve.

"If you don't communicate with yourself [about your condition], and you can't accept it for yourself, how can you expect anybody else to accept it for you?" posited Catherine Rosenberg.

"It's a hard conversation to have with yourself, but at the same time, it's an important one, because you need to love and respect yourself before anybody else can love and respect you."

The Roundtable also covered topics like cellulitis, central lymphatics, and the Lymphedema Treatment Act. With special guest Sarah Bramblette at the virtual table, attendees had the chance to learn more and ask questions about this exciting new legislation.

Our hearts are full of gratitude for our panel this month:

Resources and links mentioned in this video:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, and on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Feb 20, 202401:06:49
Lipedema Patient Roundtable: January 2024

Lipedema Patient Roundtable: January 2024

Compression, compression, compression! The main flow of conversation revolved around this all-important component of lipedema (and lymphedema) management. Cara Cruz’s own certified lymphedema therapist, Megan Glod, joined the panel as a special guest to answer questions and offer guidance on everything from skincare and finding a good lymphedema therapist, to best practices when choosing day and nighttime compression garments.

Pattie Cornute’s Lipedema Fitness group is in the midst of its Mindful Movement collaboration with April Sluder’s The Lipedema Journey, and her new love for “rope flow” was discussed. Siouxie Boshoff’s decision to “eat what feels good to her body” was met with hearty agreement.

Dr. Karen Herbst graced the Roundtable with her presence and shared her current interest in electrolyte fluid levels as well as compartment syndrome. “Fascia is the highway of the body” was a powerful statement made during the Roundtable.

The power of community and the support found when gathering together each month could be felt throughout the evening, as is customary for the Roundtable. Anticipation is also building for the annual Fat Disorders Resource Society Conference, and representatives from both FDRS and the Lipedema Foundation will be in attendance next month to answer questions!

Special thanks go to anchor panelists, moderator, and amazing guest:

Lympha Press is committed to supporting lipedema patients and helping them manage their condition with the Optimal Plus, indicated by the FDA for the treatment of lipedema. To find out more, visit www.lymphapress.com. Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on ⁠⁠the Lipedema Channel on YouTube⁠⁠, or on ⁠⁠Instagram at @lympha_press⁠⁠.

Jan 23, 202401:01:14
Lymphedema Patient Roundtable: January 2024

Lymphedema Patient Roundtable: January 2024

Happy New Year! The Lymphedema Patient Roundtable kicked off 2024 with a robust conversation around lymphedema management, including complete decongestive therapy, wraps and bandages, and pneumatic compression pumps. A few folks in the chat even chimed in to say they were tuning in while using their Lympha Press — talk about multitasking!

The hot topic of the evening was the Lymphedema Treatment Act, which recently went into effect on January 1st. What does this federal law mean for Medicare beneficiaries? What sort of compression supplies are covered? And how long until other insurance plans adopt the new coverage guidelines?

Panelists Karen Ashforth and Nasreen Starner answered these questions and more, offering some great insights on the subject from their perspective as therapists.

The hour ended on an empowering note as panelists and attendees shared their “word of the year” for 2024. “Keep coming to this Zoom meeting for support and education,” encouraged Lela A. in the chat. “I love this group.”

A special thanks to our panel of patients and therapists:

Resources and links mentioned in this video:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, and on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Jan 22, 202401:01:33
Lipedema Patient Roundtable: December 2023

Lipedema Patient Roundtable: December 2023

The spirit of the season was evident at the December Lipedema Patient Roundtable, and the gifts of encouragement and insight were plentiful.

Two special guests made the hour extra special: ⁠Lympha Press Chief Medical Officer Dr. Karen Herbst⁠ fielded a host of questions, from hormones and hair loss to prescriptions and pumping, while Sonya Louise, a coach who helps women with chronic illness navigate life, offered tactics for managing pain and finding purpose. "Placing your awareness on what doesn't hurt" was a powerful takeaway for the audience, and questions like "What signals that lipedema is progressing?" were also discussed.

New visitors to the Roundtable audience were welcomed with open hearts. One attendee had just received their diagnosis that day and asked, "What would be the first thing you'd do if you were me?" The answers included downloading ⁠the Standard of Care for Lipedema in the US⁠, finding a knowledgeable therapist, and "finding your people."

Special thanks go to anchor panelists, moderator, and amazing guests:

Lympha Press supports the lipedema community by sponsoring these monthly Roundtables and ⁠welcomes inquiries⁠ about their easy-to-use pneumatic compression therapy. Lympha Press representatives can connect patients with knowledgeable doctors and therapists around the country, fulfilling the company's mission to offer therapy that's easy to live with. Visit ⁠www.lymphapress.com⁠ to find out more.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on ⁠⁠the Lipedema Channel on YouTube⁠⁠, or on ⁠⁠Instagram at @lympha_press⁠⁠.

Dec 26, 202301:00:26
Lymphedema Patient Roundtable: December 2023

Lymphedema Patient Roundtable: December 2023

Merry Lymphmas from the December Lymphedema Patient Roundtable! The holidays can sometimes be a difficult time, not just in managing our lymphedema but navigating the mental or emotional pangs of the season as well. The panel talked about some ways they handle these challenges, with attendees chiming in to share their own holly jolly tips.

From vibration plates, massage guns, and infrared blankets to the effects of alcohol on lymphedema, the conversation covered topics both naughty and nice! To wrap up the evening, everyone shared what they are asking “Lymphedema Santa” for this year and offered warm wishes for the new year ahead.

A special thanks to the elves on the panel:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, and on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Dec 19, 202359:54
Lipedema Patient Roundtable: November 2023

Lipedema Patient Roundtable: November 2023

Can you imagine not being able to go to the dentist because the patient chair is unsuitable for anyone over 300 pounds? Or having an aversion to calling an ambulance because you feel it’s too embarrassing to be placed on the gurney?

The challenges of lipedema are far from just physical. The emotional anguish associated with everyday life takes a mental toll. For women judged by their size and taunted by those who assume they need to eat less and exercise more, the monthly Lipedema Patient Roundtable proves to be a safe and uplifting environment to share these stories.

Fresh off the publication of the US Magazine article featuring Dr. Jaime Schwartz and his star patient, Pale Ginger Pear, Cara Cruz shared the backstory that led to this worldwide press. Pain and methods to address it with aromatherapy and essential oils were also shared by Linda Anne Kahn. Questions surrounding knee surgery, and the benefits of Lympha Press pneumatic compression in tandem with manual lymphatic drainage (MLD) were discussed. The panelists “shimmered” as Glitter for Lipoedema, a UK initiative to raise awareness through social media on December 18th, was discussed.

As always, the importance of community took center stage in this Friendsgiving episode. Special guest April Sluder introduced TREND Community technology that exists to empower those impacted by chronic diseases. The hour flew by even quicker than usual, with closing thoughts of Thanksgiving and expressions of gratitude.

Special thanks to our panelists and moderator:

  • Jenny Beaujean (@jenny_beaujean)
  • Siouxie Boshoff (@lipedema.living)
  • Angelique Charles (@thelippybutterfly)
  • Pattie Cornute (@lipedemafitness)
  • Cara Cruz (@palegingerpear)
  • Linda Anne Kahn (@lindaannekahn)
  • April Sluder (@thelipedemajourey)
  • Brenda Viola (@brendaviola_vicicommunications)

Lympha Press created The Lipedema Patient Roundtable to support this community. It proudly offers the Optimal Plus, which is indicated by the FDA for the treatment of lipedema. To find out how Lympha Press can improve quality of life, visit www.lymphapress.com.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Nov 28, 202301:03:41
Lymphedema Patient Roundtable: November 2023

Lymphedema Patient Roundtable: November 2023

The Lymphedema Patient Roundtable was bursting with “lymphatic gratitude” this month as the regular panel was joined by special guest Jasmine Zheng, MD, CLT, FAAPMR, from Penn Medicine!

What are central lymphatic issues? How might they present? What is the treatment? Dr. Zheng answered these questions and more, with Catherine Rosenberg providing helpful context from the patient’s perspective. Other topics covered by the panel were the benefits of wearing nighttime (quilted) compression garments while pumping, tips for managing your lymphedema over the holidays, and practicing “lymphatic gratitude” in our lymphedema lives.

A warm thank-you to our panel this month:

Resources and links mentioned in this video:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, and on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Nov 21, 202301:00:52
Lipedema Patient Roundtable: October 2023

Lipedema Patient Roundtable: October 2023

It was a boo-tiful night to talk about lipedema, especially since Linda Anne Kahn had recently returned from the Lipedema World Congress in Germany, filled with insights and emerging research to share! Special guest Dr. Molly Sleigh also joined the panel with takeaways from her time at the National Lymphedema Network Conference in Philadelphia.

Cara Cruz shared the mind-bending “lipedema math” that can see 20 and 30 pounds of lipedema fat removed through surgery… and yet the scale doesn’t move. Also discussed were C-reactive proteins, self-massage, and the challenge of educating more general practitioners about lipedema so patients don’t have to go decades without a diagnosis.

Thank you to our amazing anchor panelists and guests:

The Lipedema Patient Roundtable community was created by Lympha Press to support patients with information and inspiration as they seek to manage their condition effectively.

For those interested in learning more about the Lympha Press Optimal Plus, which is specifically indicated by the FDA for the treatment of lipedema, contact our dedicated and caring team through www.lymphapress.com.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Oct 25, 202301:02:40
Lymphedema Patient Roundtable: October 2023

Lymphedema Patient Roundtable: October 2023

With it being Breast Cancer Awareness Month and the Roundtable falling on both World Mental Health Day and World Metabolic Health Day, there was much to discuss at the October Lymphedema Patient Roundtable!

To top it off, a number of our panelists just returned from the National Lymphedema Network Conference in Philadelphia and were eager to share insights and lessons learned from their time there as both faculty and attendees.

How can one improve gut health, especially after taking antibiotics? What are the pros and cons of using a pneumatic compression device? And how does stress affect the lymphatic system? These are just a few of the questions covered throughout the evening, accompanied by special guests Leslyn Keith, OTD, CLT-LANA, and Kathleen Lisson, CMT, CLT, raffling off free copies of their books (Leslyn's The Lymphatic Code and Kathleen's Stress Reduction for Lymphedema) and Kathleen leading the everyone in a series of calming breathing exercises.

With so much information and inspiration shared, the evening went ten minutes over the usual hour! Attendee Lourdes N. summed it up best in the chat when she said, "The Lymphedema Roundtable is the best medicine for me."

Thank you to our panelists:

- Alexa Ercolano, Lymphedema Patient and Lympha Press Marketing and Communications Associate (⁠@lymphielife⁠)

- Angela Jones, Lipolymphedema Patient and Health Coach (⁠@2018gethealthy⁠)

- Leslyn Keith, OTD, CLT-LANA (@leslynkeith)

- Kathleen Lisson, CMT, CLT (@kathleenlisson)

- Catherine Rosenberg, Lymphedema Patient (⁠@crosenberg1982⁠)

- Amanda Sobey, Lymphedema Patient, Certified Personal Trainer, and Nutritionist (⁠@am.sobey⁠)

- Nasreen Starner, OTR/L, CLT (@nasreenstarner)

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, and on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Oct 18, 202301:11:39
Lympha Press Leadership Series: Frank Aviles, PT, CWS, CLT-LANA

Lympha Press Leadership Series: Frank Aviles, PT, CWS, CLT-LANA

Named the President of the Save a Leg, Save a Life Foundation (SALSAL) in 2022, Frank Aviles is passionate about the early diagnosis and treatment of wounds: “People don’t realize that they should treat a wound just as they would a cancer diagnosis. They need to go directly to someone who specializes in wound care.”

The non-profit’s 14-member board is comprised of “the brightest minds in wound care” and the vision for the organization is to give patients a voice and provide them with education so they can advocate for themselves. One of SALSAL’s recent innovations? Patient assistance events with over 20 stations to diagnose a variety of conditions and establish a healing path forward.

With over 30 years in lymphedema and wound care, Aviles has seen many advances: “I remember when we were cautioned against using pumps,” he says. Now, they are an integral part of patient treatment plans.

But how did he arrive at this profession? His dream was to be an astronaut! At the age of four, his family moved from Puerto Rico to Cape Canaveral. They knew he would be the first to graduate from college and wanted him to have every opportunity to pursue his dream. When an eyesight problem dashed his hopes of NASA or becoming a pilot, he pivoted to science and healthcare – and the rest is history.

You’ll be inspired by the success story Frank Aviles shares as well as his heart for people.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Oct 03, 202325:56
Lipedema Patient Roundtable: September 2023

Lipedema Patient Roundtable: September 2023

September is Pain Awareness Month, and the anchors and attendees of the Lipedema Patient Roundtable know all too well the aching associated with their condition. The remarkable improvements Cara Cruz has achieved through surgery and the many patients who have found relief through using the Lympha Press Optimal Plus encouraged all in attendance.

The medical expertise of special guest Noah Danesh, MPH, who serves on the research team at Total Lipedema Care, gave excellent insights into the issue of inflammation and its correlation to COVID (and long COVID). He deftly handled a large volume of clinical questions, including treating mast cell activation syndrome, identifying Dercum's disease, and the distinction between lipomas and lipedema. Especially appreciated was his mention of Linda Anne Kahn's brilliant webinar on mast cell activation syndrome and how lymphapress.com offers a wealth of information for anyone seeking more information on a variety of lipedema-related topics.

Kathleen Lisson, CMT, CLT, also joined the panel this month and shared what she learned from attending the recent International Society of Lymphology (ISL) World Congress in Genoa, Italy. One very positive note? Lipedema, a condition once overlooked, is now a prominent topic at these international conferences.

The importance of how we talk to ourselves was covered as each panelist answered, "What would you say to your little self?" (Yes, during this September "back to school" episode, the crew shared photos from their grammar school days.) Some of the answers? Being kinder and more accepting of our perceived faults; giving ourselves permission to be...ourselves! Not being afraid to take up space (in any way) and permitting real feelings so they don't bottle up were all shared with heartfelt candor. A touching moment was when Kathleen Lisson shared that observing her mother's breast cancer diagnosis in her youth led her to a healing profession.

Special thanks to our anchor panelists, moderator, and special guests:

The Lipedema Patient Roundtables are brought to you by Lympha Press, which offers effective pneumatic compression therapy to manage lipedema. The easy-to-use Optimal Plus and Lympha Pants as well as upper extremity Lympha Jacket have contributed to reduced pain, increased mobility, and many other benefits to patients. Find out more by visiting www.lymphapress.com.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Sep 26, 202301:05:22
Lymphedema Patient Roundtable: September 2023

Lymphedema Patient Roundtable: September 2023

Class is officially in session at the September Lymphedema Patient Roundtable, and the syllabus covered everything from finding a support system and staying encouraged while managing lymphedema, to an interesting conversation on the Perrin Technique, an osteopathic approach that manually stimulates the fluid motion around the brain and spinal cord.

The 2023 National Lymphedema Network Conference is right around the corner, and guest panelist Louisa Boyd — a certified lymphedema therapist and NLN Board of Directors member — offered a sneak peek of what to expect. Not only will there be exciting research on brain lymphatics shared by Dr. Wei Chen, but Roundtable panelists Catherine Rosenberg and Kelly Bell will speak about their experiences as patients with central lymphatic issues.

During the Q&A portion of the evening, the panel answered questions about genital lymphedema, nighttime compression garments, and how to find reputable surgeons who would accept insurance. Then attendees Geri and Valgrace joined the panelists on the other side of the virtual table to share the ways they stay encouraged in their lymphedema lives.

Thank you to our panelists this month:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, and on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and support the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Sep 19, 202301:03:34
Lympha Press Leadership Series: Dr. Karen Herbst

Lympha Press Leadership Series: Dr. Karen Herbst

Driven by curiosity her entire life, Karen Herbst was fascinated with the idea of fat since childhood: Where does it come from? How could some people live on a diet of fruits and vegetables and yet have disproportionate fat deposits? Her academic life and subsequent degrees were fueled by her quest for knowledge and inspired by mentors who encouraged her to ask questions, research the answers, and "figure it out."

Now the leading authority on lipedema, she's motivated to "figure it out - faster" because her core mission is to help people. In fact, her favorite success story stars a patient who improved so dramatically, that he didn't need to see her again.

However many would say that spearheading the Standard of Care for Lipedema in the United States is one of her greatest accomplishments. Not one to rest on her many laurels, Dr. Herbst hints that updated versions are in the works and welcomes vigorous debate about medical issues. Perhaps that's why she shines in her role as Lympha Press's Chief Medical Officer and anchor of the monthly Research Roundtable for medical professionals, held on the first Monday of each month and hosted alongside certified lymphedema therapist Karen Ashforth. "If you want to hear about emerging science and research that hasn't even been published yet, it's where you want to be," she adds.

Though she wears many different hats, including a prominent role with Total Lipedema Care and Dr. Jaime Schwartz's surgery practice, Dr. Herbst is best categorized as a lifelong learner whose passion for helping people only grows stronger with time.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Aug 29, 202326:39
Lipedema Patient Roundtable: August 2023

Lipedema Patient Roundtable: August 2023

This episode of the Lipedema Patient Roundtable was as hot as the month of August! Our anchor panelists have made waves since we last gathered: The Lippy Butterfly, Angelique Charles, discussed the amazing article she authored about lipedema on HuffPost.com that is bringing widespread validation to many whose doctors told them to “just lose weight.”

Pale Ginger Pear shared her surprise that she’s on the rebound (not that kind of rebound!) and likes to use her rebounder as a tool to manage her condition and have fun at the same time. Another tool discussed was yoga straps: Pattie Cornute shared with her Lipedema Fitness followers that it’s a great prop for helping with challenging yoga poses and as a stretching aid.

The research clearly shows that lipedema presents at hormonal junctures, such as puberty, pregnancy, and perimenopause. Clinical expert Linda Anne Kahn has been studying the role of estrogen in lipedema and shared what she is learning, along with a link to some of the latest information available on this topic and a lively discussion about pregnancy.

The main focus of the evening was on special guest Dr. David Amron, a renowned dermatologic and body contouring surgeon whose genuine heart for his patients is evident. Handling with grace each question sent his way, he shared best practices to prepare for lipedema surgery, his thoughts on weight reduction medication and lipedema, incisional drainage, as well as how chronic venous insufficiency and vein issues interplay with lipedema surgery.

Special thanks our anchor panelists and moderator:

And especially to our special guest:

  • Dr. David Amron, Lipedema Specialist and Surgeon (@davidamronmd)

The benefits of Lympha Press intermittent pneumatic compression (IPC) therapy are always woven into the fabric of these monthly conversations, with Dr. Amron saying he now prescribes IPC for all patients. Patients report decreased pain, increased mobility, and improved quality of life when using IPC to help manage their swelling. Visit www.lymphapress.com to find out how the Optimal Plus pump, Lympha Pants, and Lympha Jacket can help you manage lipedema!

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Aug 22, 202301:21:49
Lymphedema Patient Roundtable: August 2023

Lymphedema Patient Roundtable: August 2023

The panelists changed things up at the August Lymphedema Patient Roundtable by introducing a new format featuring a panelist chat and a Q&A open forum followed by the first-ever “Lymphedema Patient Roundtable Call-in Show”!

Did you know we have 600-700 lymph nodes in our body, the majority of which are in our gut? Certified lymphedema therapist Karen Ashforth led a fascinating conversation on the connection between digestion issues and the lymphatic system, with panelists and attendees chiming in to share their own experiences with food sensitivities. There was also an impassioned discussion about advocating yourself at the doctor’s office, especially when they aren’t familiar with lymphedema (or the lymphatic system).

During the Q&A, questions arose on topics such as what to look for when searching for a lymphedema therapist, lymphedema care before and after knee surgery, vacation tips, and more. Then, during the “call-in show,” the panelists welcomed attendee Anita C. to the other side of the virtual table to join the conversation and wrap up the evening.

Thank you to our panelists this month:

…and here’s a collection of resources mentioned during the chat:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, or on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and to be a support to the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Aug 15, 202301:01:53
I'm Worth The Bother: The Francine Schwartz Interview
Aug 01, 202322:18
Lipedema Patient Roundtable: July 2023

Lipedema Patient Roundtable: July 2023

Two new hashtags were birthed following the July Lipedema Patient Roundtable's riveting discussion: #DoTheThing and #WearTheThing were shared by Pattie Cornute and Pale Ginger Pear. The message? Don't talk yourself out of trying something new for fear of what other people will think. Pattie's Lipedema Fitness group just celebrated its 10th anniversary! And the panelists also helped Brenda Viola say goodbye to her fifties, with an outpouring of love (and flowers).

What do you do when traveling and your compression pump and other treatment tools are not available? Water! Expert guest Karen Ashforth, MS, OTR, CLT-LANA, talked about getting movement time in a pool to minimize the impacts of travel. If there isn't a pool, even movement in bath water can help. And water in terms of staying hydrated was also underscored as important when traveling, especially when temperatures are high. Summertime is also the season for bug bites, which can negatively impact lipedema limbs. Karen Ashforth touted the use of ammonia and Linda Anne Kahn recommended lavender oil. Using compression garments under your Lympha Press was a new concept for many attendees, and cautions regarding hot tubs, infrared blankets, and how fibrosis presents in lipedema patients were discussed.

Special guest Susan O'Hara, an author and lipedema advocate, shared her exciting progress in creating fashionable footwear for lipedema feet and legs. Soon, animal prints, flexible boots that fit lipedema calves, and metallic styles will be available, which was met with great excitement by the panelists and attendees. "You may have lipedema, but lipedema doesn't have to have YOU" was a common theme during this inspirational and information-filled Roundtable.

Special thanks to our anchor panelists and special guests:

Linda Anne Kahn said it best during the discussion: "In my opinion, anyone who needs pneumatic compression should have a Lympha Press." If you would like help managing your lipedema, please contact us through our website. Join the Lipedema Patient Roundtable on the third Wednesday of each month at 8:00 PM EST, sponsored by Lympha Press to support and encourage the lipedema patient community.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Jul 25, 202301:05:22
Lymphedema Patient Roundtable: July 2023

Lymphedema Patient Roundtable: July 2023

It’s summertime and a lot of people are going on vacation, but as we all know: lymphedema does not take a break. Whether going down the shore or traveling across the globe, the panelists and attendees at the July Lymphedema Patient Roundtable shared some great tips for managing lymphedema away from home.

From compression garments and bandages to tips on how to find a certified lymphedema therapist, the conversation was bursting with information and resources. There's a lot to be pumped about this summer, too, with Catherine Rosenberg sharing an update on her recent suction-assisted lipectomy surgery and Alexa Ercolano relaying her excitement to participate in the pediatric lymphedema summer camp, Camp Watchme.

Thank you to our panelists this month:

...and here’s a list of links mentioned during the chat:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, or on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and to be a support to the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com.

Jul 18, 202301:04:34
Lympha Press Leadership Series: Catherine Seo, PhD

Lympha Press Leadership Series: Catherine Seo, PhD

“I was headed for a wheelchair.” So began Catherine Seo’s lipedema journey at perimenopause. A surgical procedure left her with lymphedema and emotional distress: “I cried and cried and asked so many questions my surgeon ‘fired’ me.”

A researcher and communicator, Seo devoured Michael and Ethel Földi’s “Textbook of Lymphology” on the lymphatic system and found a chapter on lipedema that changed her life. When she saw photos of and gathered with others who also had lipedema, she describes an “incredible exhale” at “finally seeing people like me.”

Her education included a documentary class and, when invited to England to meet with other lipedema patients, she brought her recording equipment with her. This resulted in the groundbreaking documentary “Lipedema: The Disease They Call Fat.” This production led to the creation of Lipedema Simplified, the umbrella organization for The Lipedema Project.

“Lipedema Simplified is intended to offer programs and resources to the global lipedema community, while The Lipedema Project is our research arm, devoted to raising awareness,” Seo explains. “Overall, our vision is the ‘be the voice’ for women living with lipedema.”

Seo also values educating patients about the tools available to help manage their condition, like Lympha Press compression therapy, which are integral to her own care. She counts bringing people and ideas together as her greatest success and encourages people to celebrate their lives and to live well. Her final exhortation is to “Dream big!” Though she hopes for a cure in her lifetime, she believes in reaching for the moon in hopes of landing on a star.

Find out more at https://lipedemaproject.org/.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Jul 11, 202334:43
Lipedema Patient Roundtable: June 2023

Lipedema Patient Roundtable: June 2023

With thirty-six episodes in the vault, the Lipedema Patient Roundtable celebrated its third anniversary with some trips down memory lane. A special guest in honor of Lipedema Awareness Month was Paula Donahue, PT, DPT, MBA, CLT-LANA, one of the authors of the Standard of Care for Lipedema in the United States. She fielded a host of questions about active and passive compression, heat or burning/tingling in limbs, how to raise awareness, and much more.

Lotions and a Lippy Butterfly potion, silver linings of jeans not ripping (!), and how to deal with being overwhelmed were also discussed. Angelique Charles shared what the Roundtable has meant to her, which was received with hearts all around when she said, "It has become my family."

Lympha Press's support for the lipedema community was acknowledged, with the Roundtables offering a safe, fun, and comfortable space to connect with others who are facing the physical and mental challenges of this condition with grace, resilience, creativity, and humor. And many attendees posted in chat that they were pumping in their Lympha Press while watching the webinar! To find out more about how the Lympha Press Optimal Plus can help you, visit www.lymphapress.com.

Special thanks to the anchor panelists:

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Jun 27, 202301:01:05
Lymphedema Patient Roundtable: June 2023

Lymphedema Patient Roundtable: June 2023

June is both Wound Care Awareness Month and Lipedema Awareness Month, and the panelists and attendees at the Lymphedema Patient Roundtable had a lot to talk about along with additional topics such as compression garments, medical pedicures, and staying cool in the summer heat.

What causes wounds? How can lymphedema patients prevent them? And if you do develop wounds, what can you do to treat them? Panelists Angela Jones and Catherine Rosenberg weighed in from personal experience, while lymphedema therapist Karen Ashforth offered helpful insights on antibacterial and barrier creams.

Not every lymphedema patient has lipedema, but many lipedema patients develop lymphedema. The panel talked about why that is, as well as the differences — and similarities — between the two conditions and their treatment.

The evening closed with everyone sharing what they are most "pumped" about this month. From summer fun and outdoor concerts to upcoming surgeries and Lympha Press compression therapy, there is a lot to look forward to for our Roundtable community!

A special thank-you to our panelists this month:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, or on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and to be a support to the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com or contacting marketing@lymphapress.com.

Jun 20, 202301:00:10
Lympha Press Leadership Series: Leslyn Keith, OTD, CLT-LANA

Lympha Press Leadership Series: Leslyn Keith, OTD, CLT-LANA

Leslyn Keith started out as an occupational therapist but was seeking a focus that yielded more measurable results. “I am left-brain oriented and nebulous results weren’t satisfying to me,” she says in this insightful interview.

As fate would have it, she was soon introduced by a mentor to lymphedema therapy and knew she was going to devote herself to helping these patients. “I could see their limb volume reduce substantially in one session, and I was hooked,” she adds.

Her curiosity and interest in the obesity epidemic led to her doctoral pursuit and a host of published research. The link between diet and the management of lymphatic disorders led to a poster presentation – and Catherine Seo, founder of The Lipedema Project, was in the audience. They had a mutual “Aha!” moment: Could it be that diet could also positively impact lipedema patients?

Dr. Keith’s books “The Ketogenic Solution for Lymphatic Disorders” and “The Lymphatic Code” are landmarks in her ever-growing volume of work. Her credo? “Let’s look outside of the box for solutions.” Along with her contributions as Board President and Director of Research for The Lipedema Project, she is an instructor with Klose Training Academy of Lymphatic Studies and relishes collaboration with all who seek to find solutions for the lymphedema and lipedema patient populations.

More information is available at www.leslynkeith.com as well as a host of resources through lipedema-simplified.org.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Jun 13, 202332:16
Lympha Press Leadership Series: Lisa Berman Sylvestri, MSPT, CLT-LANA

Lympha Press Leadership Series: Lisa Berman Sylvestri, MSPT, CLT-LANA

A patient whose breast cancer led to lymphedema changed the course of physical therapist Lisa Sylvestri’s career focus: “My goal is that every cancer patient be given a chance to live their best life,” she says. Part of fulfilling this mission was becoming a certified lymphedema therapist and opening Oasis Physical Therapy and Wellness in the San Francisco Bay Area.

To her fellow clinicians, she says, “Go for it!” and to patients, she says, “Ask for it!” She encourages patients to be their own advocates and not to dismiss signals that their bodies are giving them that require attention.

“Seeing what patients need, being a long-term part of their care team – it’s fulfilling, but hard.” Interestingly, Lisa says the patient care part is the joyful part of the business; it’s the running a business at the same time that can pose the greatest challenges.

Taking what she’s learned these last few years, she’s developed a blueprint for others to model their own therapy businesses after. Visit www.oasisptwellness.com for more information (and use the code LymphaPress for a 20% discount).

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Jun 06, 202319:05
Lympha Press Leadership Series: Betty Westbrook, PTA, CLT
May 30, 202325:11
Lipedema Patient Roundtable: May 2023

Lipedema Patient Roundtable: May 2023

One of the Lipedema Patient Roundtable’s founding panelists Cheryl Scoledge, of the Facebook group Lipedema and Food Sensitivities, made a special guest appearance to add to the discussion about Ehlers-Danlos syndrome (EDS). A connective tissue syndrome that can also be prevalent in lipedema patients, it affects the skin, joints, and blood vessel walls, resulting in overly flexible joints and elastic skin that easily bruises. Stories of braces being necessary on legs and even dental impacts were shared along with important information on how to be tested and manage this condition.

In addition to EDS Awareness Month, May is Mental Health Awareness Month, and Lympha Press reminded attendees that there are patient and clinician mental health resources on www.lymphapress.com. Also shared was the encouragement to “move your body” and “start where you are” when facing a challenge to avoid being overwhelmed.

Inflammation was also a “hot” topic, with Cara Cruz (Pale Ginger Pear) sharing her recent progress obtaining testing for inflammatory markers. How food sensitivities impact these results were also discussed.

The group is preparing for Lipedema Awareness Month in June with excitement – especially regarding Pattie Cornute’s Lipedema Fitness Triathlon along with upcoming Lympha Press webinars with Dr. Karen Herbst and Linda-Anne Kahn. Roundtable host Brenda Viola is also offering an encore webinar of her recent talk from the Fat Disorders Resource Society Conference in July.

Special thanks to all the attendees of this monthly live Roundtable who add so much depth and encouragement to the hour (which always flies by!). We especially appreciate our regular panelists:

And thank special guest:

The Lipedema Patient Roundtables are held on the third Wednesday of each month at 8:00 PM EST and are sponsored by Lympha Press, which offers compression therapy systems like the Optimal Plus compression pump and Lympha Pants garment to effectively treat lipedema patients. The Roundtable demonstrates Lympha Press’s commitment to patient well-being and to fostering the important sense of community that contributes to mental health. To learn more about how Lympha Press can help you, reach out at lymphapress.com/contact-us.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

May 23, 202301:01:39
Lymphedema Patient Roundtable: May 2023

Lymphedema Patient Roundtable: May 2023

Mental health is as important as physical health, especially when living with a chronic condition like lymphedema. In recognition of May being Mental Health Awareness Month, panelists and attendees at the Lymphedema Patient Roundtable opened up about their own mental health journeys and how they support their emotional well-being alongside their physical.

Joining the panelists on the other side of the virtual table was regular attendee Fenton Groff, who shared his story peppered with insights on how he manages his mental health together with his lymphedema.

The hour flew by as the conversation continued to topics like the surgical treatment of lymphedema, exercise, and nutrition, as well as re-framing your lymphedema treatment as self-care. To close out the evening, Fenton shared an encouraging quote from Mark Twain: “The secret of making progress is to get started.”

A special thank-you to our panelists this month:

And here’s a list of links mentioned during the chat:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, or on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and to be a support to the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com or contacting marketing@lymphapress.com.

May 16, 202301:03:02
Lympha Press Leadership Series: Karen Ashforth, MS, OTR, CLT-LANA

Lympha Press Leadership Series: Karen Ashforth, MS, OTR, CLT-LANA

“Love is the greatest ingredient in healing.”

That’s just one of the gems from this insightful interview with Karen Ashforth, MS, OTR, CLT-LANA. Giving hope as well as the tools to manage chronic conditions has been Karen’s mission for over 40 years. A problem solver at heart who enjoys coming up with “new recipes for treatment no one has thought of yet” makes her training sessions riveting. Her passion for education and a desire to “put lymphedema in remission” make her work with patients and clinicians effective.

A lifelong learner who encourages people to keep looking for answers, she brings her curiosity and wisdom to each Research Roundtable for clinicians. This unique series, co-anchored by Karen Ashforth and Dr. Karen Herbst, is a platform for leading-edge conversations on a different topic each month. Sponsored by Lympha Press, clinicians can register by following this link.

She is also one of the anchors of the monthly Lymphedema Patient Roundtable, hosted by Alexa Ercolano from Lympha Press. Patients can register for this monthly discussion, held on the second Tuesday of each month at 8 PM EST, by visiting this link.

To learn more about Karen Ashforth and her work, visit www.karenashforth.com.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

May 09, 202316:15
Lipedema Patient Roundtable: Special Fat Disorders Resource Society Conference Recap 2023

Lipedema Patient Roundtable: Special Fat Disorders Resource Society Conference Recap 2023

This special edition of the Lipedema Patient Roundtable was all about beating the post-conference blues! Joining our regular panelists were patient speakers from the Fat Disorders Resource Society (FDRS) Conference, including:

From learning to "pivot," walking into a doctor's appointment with the Standard of Care for Lipedema in the US, wearing clothes that make you feel great, and celebrating the passage of the Lymphedema Treatment Act — this special edition of the Roundtable encouraged all who attended to know their worth and find strength in community.

Special thanks to our anchor patient panelists who offer their time and insights so freely each month:

If you'd like more information about how you can use Lympha Press to manage your lipedema or lymphedema, we'd love to help. Visit https://lymphapress.com/contact-us/ to get connected with a local Lympha Press representative!

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

May 02, 202301:05:50
Lipedema Patient Roundtable: April 2023

Lipedema Patient Roundtable: April 2023

The April Lipedema Patient Roundtable was jam-packed with information and inspiration as each anchor panelist shared their biggest takeaway from the recent Fat Disorders Resource Society (FDRS) Conference. Special guest Dr. Omar Beidas from Advent Health shared insights about lipedema surgery and answered questions about chronic venous insufficiency, BMI, and other factors when considering surgery. His local Lympha Press Compression Therapy Consultant, Rich Bradley, talked about the important relationship between reps and doctors, as well as lymphedema and other therapists. Both shared success stories and their commitment to helping lipedema patients.

In response to questions from the audience, tapping or Emotional Freedom Technique (EFT) expert Lauren Fonvielle from Mindshift with Lauren talked about this technique for pain and mindset management and led the group through a tapping exercise.

The Lipedema Patient Roundtables are brought to you each month by Lympha Press, which offers a tremendous tool to manage this condition. The Optimal Plus is indicated by the FDA for the treatment of lipedema, and combined with the Lympha Pants garment, offers easy-to-use compression therapy in the comfort of home. Find out more by contacting Lympha Press!

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Apr 25, 202301:01:02
Lymphedema Patient Roundtable: April 2023

Lymphedema Patient Roundtable: April 2023

Spring has sprung, and the April Lymphedema Patient Roundtable was buzzing with questions from attendees on topics ranging from tips for donning garments, managing swelling after knee replacement surgery, and mobility aids for lower extremity lymphedema. Plus, Amanda Sobey gave an exciting recap of the Lymphedema Association of Manitoba's celebrations — and wins — during Lymphedema Awareness Month.

What's the difference between compression garments, bandages, and wraps? Can we use hot tubs if we have lymphedema? And how do you deal with a doctor who won't listen to you about your lymphedema? The hour flew by as panelists discussed these questions and more alongside those chiming in in the live chat to share their own experiences and insights. Regular attendee Fenton Groff summed it up best: "Walk a mile in our lymphedema shoes for one hour... and you will obtain years of education."

A special thank-you to our panelists this month:

  • Karen Ashforth, MS, OTR/L, CLT-LANA (@karenashforth_cltlana)
  • Alexa Ercolano, Lymphedema Patient and Lympha Press Marketing and Communications Associate (@lymphielife)
  • Angela Jones, Lipolymphedema Patient and Health Coach (@2018gethealthy)
  • Catherine Rosenberg, Lymphedema Patient (@crosenberg1982)
  • Amanda Sobey, Lymphedema Patient, Certified Personal Trainer, and Nutritionist (@am.sobey)

And here's a list of links mentioned during the chat:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, or on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and to be a support to the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com or contacting marketing@lymphapress.com.

Apr 18, 202301:01:22
The Leadership Series: Katina Kirby, OT, CLT-LANA

The Leadership Series: Katina Kirby, OT, CLT-LANA

Katina Kirby’s greatest wish is that she’ll be out of a job someday. “A day when there is a cure for lymphedema is the highest hope,” she says in this enlightening interview.

Her career started as an occupational therapist, and when the opportunity arose for lymphedema therapist training, she raised her hand. Katina loved helping patients, though 25 years ago a lymphedema diagnosis was met with skepticism in the medical community. “This is just post-surgical swelling…” she heard, though the surgery in question had been four years previous.

Truly, awareness and treatment have come a long way. Katina’s long-term experience in lymphedema therapy equipped her perfectly for the role of Executive Director of the Lymphology Association of North America (LANA). LANA’s website, www.clt-lana.org, is a wealth of information for both patients and clinicians and Katina’s hope is that many will avail themselves of LANA’s resources.

Lympha Press has been a proud LANA sponsor for many years and is delighted to shine a spotlight on Katina Kirby and the significant role LANA plays to educate and advocate for advances in lymphedema therapy.

This interview was recorded in March 2023. You can watch a video recording of the interview on the Lympha Press USA Channel on YouTube.

The Lympha Press Leadership Series raises awareness of leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research.

Apr 11, 202321:21
Figure Out the “Why?”: The M. Mark Melin Interview

Figure Out the “Why?”: The M. Mark Melin Interview

Dr. Mark Melin wanted to be an astronaut, and now he studies space as part of his groundbreaking work in lymphedema and wounds.

Find out how his personal experience led to his profession, and be inspired by his fervor for patients to advocate for themselves.

A call to join the American Vein & Lymphatic Society and a host of “shout outs” to people he is inspired by inform this captivating interview.

This interview was recorded in March 2023. You can watch a video recording of the interview on the Lympha Press USA Channel on YouTube.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Apr 04, 202322:53
Lymphedema Patient Roundtable: March 2023

Lymphedema Patient Roundtable: March 2023

March is Lymphedema Awareness Month! Every Lymphedema Patient Roundtable is about lymphedema awareness, but the March Roundtable was especially pumped with conversation around life with lymphedema.

The panel was joined by Steve Kantor, founder of Medical Solutions Supplier, and lymphedema patient and advocate Veronica Seneriz, who many know through her group, Lymphie Strong, and her role as Patient Services Director at the Lymphatic Education and Research Network.

Panelists and attendees reflected on their lymphedema journeys and shared the lessons they’ve learned — and are still learning — along the way, and Veronica spoke about her unique experience growing up in a “lymphedema family” as a multigenerational lymphedema patient. The conversation was so engaging that the Roundtable went over its usual hour by almost ten minutes, although it still felt like time flew by: “This was the fastest round table ever. It went by too fast!!” wrote one attendee in the chat. “So much information, so appreciated!”

We so appreciate those who joined us this month, including our panelists:

  • Karen Ashforth, MS, OTR/L, CLT-LANA (@karenashforth_cltlana)
  • Kelly Bell, Lymphedema Patient and Advocate (@veteran_fighting_lymphedema)
  • Alexa Ercolano, Lymphedema Patient and Lympha Press Marketing and Communications Associate (@lymphielife)
  • Angela Jones, Lipolymphedema Patient and Health Coach (@2018gethealthy)
  • Catherine Rosenberg, Lymphedema Patient (@crosenberg1982)
  • Steve Kantor, founder of Medical Solutions Supplier
  • Veronica Seneriz, Lymphedema Patient, Founder of Lymphie Strong, and Patient Services Director at LE&RN (@lymphiestrong)
  • Amanda Sobey, Lymphedema Patient, Certified Personal Trainer and Nutritionist (@am.sobey)
  • Nasreen Starner, CLT (@nasreenstarner)

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, or on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and to be a support to the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com or contacting marketing@lymphapress.com.

Mar 28, 202301:09:07
Lipedema Patient Roundtable: March 2023

Lipedema Patient Roundtable: March 2023

It's Lymphedema Awareness Month and the Lipedema Patient Roundtablers were honored to welcome William Repicci, President and CEO of the Lymphatic Education and Research Network (LE&RN). The resources available through LE&RN for lipedema patients were discussed as well as how this important organization advocates for patients with all lymphatic disorders. A powerful moment was when Repicci stated, after hearing the impassioned words of the panelists, "Stoicism doesn't change the world. Activism does."

Nine years after her original lipedema surgery, Siouxie Boshoff was missing from tonight's panel as she recovered from surgery with Dr. Jaime Schwartz. Pale Ginger Pear spoke about recovery and read a poem; The Lippy Butterfly encouraged us all to "stop, drop, and roll" with life; and the attendees filled chat with what the monthly Roundtable means to them.

Brenda Viola shared (with joy) the testimony of a Pennsylvania lipedema patient who now goes out dancing on Friday nights and wears shorts again, thanks to her Optimal Plus and Lympha Pants.

The entire group is excited about the upcoming Fat Disorders Resource Society (FDRS) Conference in April, where Dr. Karen Herbst will offer the keynote and both Cara Cruz and Linda-Anne Kahn will also serve as speakers; Brenda will close the conference with "Settling Your Worth." Pattie Cornute's recent posts on @LipedemaFitness spoke to the power of "the words we say to ourselves," and some powerful time was spent thinking about "I am...I can...I will..."

Next month, the panel sticks to its "New Year's Resolution" to invite experts to join the discussion. Dr. Omar Beidas, a lipedema surgeon based in Florida, and Lauren Fonvielle, who is an expert on mindset and tapping, will join the April Roundtable.

But March? It was another jam-packed, information- and inspiration-filled hour with special thanks to:

If you'd like more information about how you can use Lympha Press to manage your lipedema or lymphedema, we'd love to help. Reach out to marketing@lymphapress.com for more information or visit www.lymphapress.com.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Mar 21, 202301:01:54
The Power of Advocacy: William Repicci, President and CEO, LE&RN

The Power of Advocacy: William Repicci, President and CEO, LE&RN

“I like putting puzzles together,” remarked Lymphatic Education & Research Network President and CEO William Repicci during this Lympha Press Leadership Series interview.

His story is remarkable: From Alaska to Africa; a background in psychology and Broadway plays to his current role with Lymphatic Education and Research Network (LE&RN); every stop in his journey prepared him to be an effective advocate for lymphatic causes.

When responding to a vague job description, he eventually turned down the offer because “I knew nothing about lymphedema.” But as he learned 10 million people were affected by a disease that had little recognition in the medical world, he took on the challenge. Initially rebranding what had been a failing and near-bankrupt organization, what we now know as LE&RN grew to become a positive force for both patients and clinicians.

Without LE&RN, there would be no World Lymphedema Day. Department of Defense research funding now includes lymphatic diseases, thanks to their advocacy efforts. The creation of LE&RN’s Centers of Excellence is also a highlight… but there’s much more work to do, and Repicci remains inspired as he enters his twelfth year of service at LE&RN’s help.

Find out more at https://www.lymphaticnetwork.org.

This interview was recorded in March 2023. You can watch a video recording of the interview on the Lympha Press USA Channel on YouTube.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Mar 14, 202324:01
Alchemy in Action: The Kathleen Lisson Interview

Alchemy in Action: The Kathleen Lisson Interview

In this installment of the Lympha Press Leadership Series, learn more about Kathleen Lisson, CLT, and how her desire to help reduce the side effects of her mother’s cancer led her first to massage therapy, then manual lymph drainage, and certification as a lymphedema therapist.

A contributor to the Standard of Care for Lipedema in the United States and a prolific author, Lisson is fueled by curiosity. “I want to wake up every day with the intention of learning something new,” she says.

Patients will be inspired by her respect for them; in fact, she says to her patients, “You’re calling the shots.” Respectful of the care team, she delights in collaboration and learning new techniques to help patients. She admits to many a late night on PubMed and is devoted to advancing awareness and education. Follow her on social media at @KathleenLisson.

This interview was recorded in February 2023. You can watch a video recording of the interview on the Lympha Press USA Channel on YouTube.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Mar 07, 202324:19
Lipedema Patient Roundtable: February 2023

Lipedema Patient Roundtable: February 2023

Love is usually in the air at the Lipedema Patient Roundtable, but extra doses were served up with the addition of Kathleen Lisson, CLT, to the panel as a special Valentine’s guest. As one of the authors of the Standard of Care for Lipedema in the United States, she adeptly answered questions from the audience, including how to best deal with pain, what to look for when considering surgery, and even led the group in a beautiful meditation to end the program.

Attendees were interested in the Lympha Press Optimal Plus, and panelists encouraged that, when it comes to lipedema, more than a leg sleeve is the “optimal” garment choice. Several of the anchors are regular users of the Lympha Pants and Cara Cruz has the upper extremity garment, which came in handy for healing after her recent arm surgery.

Excitement is building for the upcoming Fat Disorders Resource Society (FDRS) Conference in April and next month is Lymphedema Awareness Month, so the Roundtable will host a representative from the Lymphatic Education and Research Network (LE&RN). In the meantime, a reminder to “never turn your back on your self” underscored the value of knowing our worth, fueling all who logged on with an extra helping of encouragement.

Special thanks to the panelists:

New visitors join the Roundtable each month! Please bring your questions, and should you want to learn more about the Lympha Press Optimal Plus, reach out to marketing@lymphapress.com or visit www.lymphapress.com to find out how helpful it is when managing lipedema.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Feb 28, 202301:01:41
Lymphedema Patient Roundtable: February 2023

Lymphedema Patient Roundtable: February 2023

Hearts weren't the only thing pumping at the Lymphedema Patient Roundtable this Valentine's Day: With Medical Solutions Supplier founder Steve Kantor at the virtual table, the conversation was pumped on the topic of pneumatic compression therapy!

How can one ensure they get the most out of their treatment sessions with their pump? What's the difference between the pumps you see in the drug store or online versus pumps like Lympha Press? And what is the "wave" setting? With Steve's pneumatic compression know-how, certified lymphedema therapist Karen Ashforth's clinical expertise, and our patient panelists providing their own first-hand experiences, the chat seized the opportunity to buzz with questions about pumps.

Panelists and attendees also talked about navigating relationships with lymphedema, not just with others but with yourself as well. Regular attendee Fenton Groff summed up the love felt during the night best, saying: "This Roundtable is my monthly support group — I wouldn't miss it. I love all of you."

Thank you to our panelists this month:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, or on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and to be a support to the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com or contacting marketing@lymphapress.com.

Feb 21, 202301:01:21
Throwback Episode: The February 2022 Lymphedema Patient Roundtable

Throwback Episode: The February 2022 Lymphedema Patient Roundtable

This recording is from February 2022.

Can you feel the love? Attendees at the February Lymphedema Patient Roundtable sure did! In honor of February being the month of love, a few of our panelists brought along their special someones to talk about relationships and lymphedema.

There wasn’t a dry eye onscreen as Kelly Bell’s wife, Jen, described how adrift they felt when looking for answers and how she strove to be his “safe harbor.” Alexa Ercolano and her twin sister, Breanna, shared the ways their experience growing up was affected by Alexa’s lymphedema, and Angela Jones and Angelique Charles expressed how their shared experience of living with lipolymphedema has made their friendship invaluable despite never having met in person (yet!).

What about when the only person you have is yourself? Amanda Sobey discussed what it was like to go through the bulk of her lymphedema journey alone as a single parent, and how she eventually forged her own support system through social media. Our medical professionals on the panel chimed in, too, about the importance of therapists having support as well.

It was a night of extreme vulnerability, resiliency, encouragement — and, most of all, of love.

A huge thank-you to our panelists and their guests:

Feb 14, 202301:01:03
Embracing the Lipedema Life: The CurvyGirlBeth Interview

Embracing the Lipedema Life: The CurvyGirlBeth Interview

Plus size model and influencer Beth Rylaarsdam — known as CurvyGirlBeth online — tells her lipedema story and shares how she manages her condition and embraces the lipedema life.

This interview was recorded in June 2020 You can watch the video recording of Beth's interview on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

The Lipedema Channel interviews are brought to you by Lympha Press, global leaders in pneumatic compression therapy for nearly 40 years. For more information, visit lymphapress.com.

Feb 07, 202342:30
Membership Makes a Difference: The Dean Bender Interview

Membership Makes a Difference: The Dean Bender Interview

In this fascinating interview with American Vein & Lymphatic Society (AVLS) Executive Director Dean Bender, he recalls, “In 2004, most of our membership couldn’t spell lymphedema, let alone diagnose it.”

Much has changed for the better since then, and Bender details how AVLS offers Advocacy, Research, and Education to its members. The role of the Foundation to fund mission-critical initiatives, how a name change ensured that lymphedema would be viewed as important as venous disease, and his vision for American Board of Medical Specialties (ABMS) recognition of venous and lymphatic medicine as a stand-alone medical specialty were discussed.

To AVLS members, Dean says “Thank you” while offering a call for more engagement. Volunteerism is at the heartbeat of AVLS’ success, which offers hope and help to patients with chronic conditions. For more information, visit https://www.myavls.org.

This interview was recorded in January 2023. You can watch a video recording of the interview on the Lympha Press USA Channel on YouTube.

The Lympha Press Leadership Series is intended to raise awareness to leaders in lymphedemaCVIwounds, and lipedema and the organizations that advocate for awareness and research. Lympha Press is proud to offer this content to serve both clinicians and patients.

Jan 31, 202326:59
Lipedema Patient Roundtable: January 2023

Lipedema Patient Roundtable: January 2023

It took panelist Jenny Beaujean 45 years to get a diagnosis. May it never take anyone that long again!

The Lipedema Patient Roundtable made good on its 2023 resolution by bringing in special guests to add leading-edge information to the monthly conversations. Guy Eakin, Chief Science Officer for Lipedema Foundation, answered questions about research initiatives and the Lipedema Patient Registry. His colleague, Kathy Doherty, informed the audience about the newly released Lipedema Patient Bill of Rights, which can be found at lipedema.org. And guest April Sluder, who leads the group The Lipedema Journey, spoke about her Mindful Movement collaboration with Pattie Cornute. Cara Cruz's healing journey after her final surgery, ways to boost your mood with color, and the mind/body/brain connection added to the invigorating conversation.

Thanks to our regular panelists as well as the record number of attendees!

The Lipedema Channel on YouTube is where each month's Roundtable and excellent one-on-one interviews "live." This channel celebrated 1,000 subscribers in January! These initiatives are all part of Lympha Press' commitment to support the lipedema community. Lympha Press provides the Optimal Plus, which is pneumatic compression therapy specifically indicated by the FDA for the treatment of lipedema. To find out more, reach out to marketing@lymphapress.com.

Thanks for listening to the Lipedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lipedema Channel on YouTube, or on Instagram at @lympha_press.

Jan 24, 202359:49
Lymphedema Patient Roundtable: January 2023

Lymphedema Patient Roundtable: January 2023

Happy 2023! The Lymphedema Patient Roundtable kicked off the new year by celebrating some major wins, from the passage of the Lymphedema Treatment Act into law to panelist Catherine Rosenberg's incredible progress after undergoing lymphovenous anastomosis surgery.

Panelists and attendees shared the different ways they are committing to their lymphedema management and self-care in the new year, such as figuring out which compression garments work best for them or finally making the call to set up a surgery consultation. The theme of "giving yourself grace" came up, along with the importance of finding and leaning on community. Other topics of discussion included central lymphatics, lymphatic imaging tests, and nutritional considerations with lymphedema.

Thank you to our panelists this month:

Thanks for listening to the Lymphedema Patient Roundtable podcast! You can watch the video recording of this Roundtable on the Lymphedema Channel on YouTube, or on Instagram at @lympha_press.

Lympha Press is proud to offer these monthly Lymphedema Patient Roundtables and to be a support to the lymphedema community. The Roundtables are held on the second Tuesday of each month at 8:00 PM EST. Sign up to attend any of our live webinars at https://linktr.ee/LymphaPress.

Learn how our easy-to-use compression therapy can help you manage your condition by visiting www.lymphapress.com or contacting marketing@lymphapress.com.

Jan 17, 202301:00:20