Legally Blonde & Blind

We’ve all heard the phrase “albinism is beautiful,” and over the last decade, albino models, influencers, and advocates have taken the world by storm. But albinism representation—especially in the fashion and beauty industry—is far from perfect. In the thirtieth episode of Legally Blonde & Blind, I discuss society's evolving attitudes towards beauty and how we can more meaningfully include, uplift, and celebrate those with albinism. Tune in to learn how for me, albinism is far more than pretty white hair..it’s a community, source of pride, and part of who I am.

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If you were asked to picture an “athlete,” you probably wouldn’t imagine someone who is blind. But with creativity, collaboration, and a few modifications, athletes with low vision can partake in many elite and recreational activities, such as goalball, skiing, tandem cycling, and many more! Sports help athletes of all ages and abilities stay healthy, build self-confidence, and become part of a team. Liza Corso—a Paralympic silver medalist—joins Marissa to share how participating in track and field has positively impacted her life. Tune in to learn about how we can raise awareness and increase opportunities for people to participate in adaptive sports.

Liza Corso is a junior at Lipscomb University studying psychology and nutrition. She was selected to participate in the 2020 Tokyo Paralympic Games and won a silver medal in the 1500m. She also competes on Lipscomb’s Cross Country and Track & Field team. 

“I feel that there is so much value in sports and being able to prove to yourself that you are mentally and physically tough, that you can do hard things.”

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Research indicates that 55% of communication in face-to-face conversations is through nonverbal cues such as body language and facial expressions. How can blind folks navigate social settings where subtle, nonverbal communication is prevalent? In “Blind Social Butterfly,” I share my perspective on networking, mingling, and forming connections with low vision. I also offer advice for making happy hours, conferences, and other social events more accessible. 

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“No dogs allowed!” “Can you show me your service animal ID?” “Just take an UberPet.” In restaurants, airports, convenience stores, and Ubers across the United States, many service animal teams experience access issues and denials. A survival guide for both new and experienced service animal handlers, the twenty-eighth episode of Legally Blonde & Blind outlines the Americans with Disabilities Act (ADA) and other federal laws relating to assistance animals. I explore when, where, and why access issues most frequently occur. Based on surveys, personal experience, and testimonies from other handlers, I then offer advice on how to respectfully yet assertively handle access issues.

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I have never wanted a “cure” for my albinism and corresponding visual impairment, but only recently found the words to explain why. Research regarding treatments for and the genetic origins of disabilities raises complex ethical questions. Does studying albinism in a laboratory genuinely improve people’s lives, or does it merely satisfy the curiosity of medical professionals? In “I’m Not Broken,” I argue that albinism should be viewed as part of one’s identity and a source of community rather than an undesirable mutation. I consider the emotional, social, and political impacts of seeking to reverse or cure blindness. I then argue how redirecting these funds towards developing assistive technology, advocating for legislative changes, and providing necessities (sunscreen, UV protective gear, etc.) to people with albinism would have a stronger impact. Keep in mind that this is a deeply personal subject. My goal is to share my perspective and lived experience—not speak on behalf of the entire albinism community. 

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Driving is a rite of passage in the United States and many people with albinism find themselves on the cusp of qualifying for a license. In the 24th episode of Legally Blonde & Blind,  Marissa shares how she learned to accept and embrace her status as a nondriver. Tune in to learn about bioptics, low vision driving regulations, and ways to support those without a license. Driving should not be the only way to attain independence and freedom!

“Being a nondriver does not mean you will be any less independent. It does not mean you will be a passenger in your mom’s car for the rest of your life. Thousands of blind people have found their way, and so will you.”

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Many parents of children with disabilities or chronic illnesses use social media to share information and connect with others, but when does this go too far? In Episode 22 of Legally Blonde & Blind, Marissa discusses issues surrounding representation and consent when sharing a child’s disability on Instagram, Facebook, YouTube, or other social media platforms. Tune in to learn why “raising awareness” and “inspiring others” is often not as straightforward or impactful as mommy bloggers believe.

“My fear is that when parents take up so much space on social media, they send the message that people need to speak for us, that we can’t share our own stories.”

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In “Gifted & Talented Blind Kids,” Marissa explains why she and many other students with visual-impairments tend to be perfectionists in the classroom. This episode will outline how the U.S. education system fosters toxic attitudes towards grades, success, and intelligence that disproportionately impact disabled students. Tune in to learn about setting realistic goals, developing healthy coping skills, and detaching self-worth from grades.

“How can we raise society’s expectations for blind people without feeling like we as individuals need to be perfect?”

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White canes in the albinism community can be rather controversial. Some view them as a useful tool for navigation while others feel they are “overkill” for people with significant residual vision. After years of resistance, I share why I decided to use a white cane and how I find it beneficial when traveling independently. “White Canes in the Wild” debunks common misconceptions and shares tips for cane training!

“I think viewing canes as a tool in the toolbox rather than a sign of defeat would do our community a lot of good.”

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Whether it be through invasive questions, unsolicited remarks, or condescending attitudes, people who are blind or visually-impaired experience microaggressions, actions that occur casually, frequently, and often without any negative intentions, on a daily basis. In “How Many Fingers am I Holding up?”, Marissa shares how to identify and discuss subtle acts of exclusion. Tune in to learn how to respond next time someone says “You look like a ghost!”

“Even if a comment seems small or unimportant to you, it can do real harm”

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Tikia Kidd, author of Life with J.A.K: Living with Albinism, joins Marissa to share her experiences raising and advocating for her son Julian (aka J.A.K) who has albinism. They discuss processing a new diagnosis, embracing differences, and fostering self-advocacy skills. Tune in to learn how parents can educate relatives, teachers, and other community members about albinism!

Tikia Kidd is a wife, mother, and educator who lives in Illinois with her loving husband and their two exceptional children. She is a Parent Education Coordinator with NOAH and wrote Life with JAK to provide communities a non-fiction, family-friendly, and diverse book about Albinism.

“I wanted to celebrate how brilliant, intelligent, and beautiful people with albinism are.”

Purchase Life with J.A.K.: Living with Albinism!

Sean Curry joins Marissa to discuss the current state of access to vision care in the United States, particularly in the DC metro area, and the importance of eye exams. Tune in to learn more about how public transportation, income, and other social determinants of health impact vision loss (and what you can do about it!).

Sean Curry is the Associate Director of Programs for the Prevention of Blindness Society of Metropolitan Washington who has a Masters in Public Health from The George Washington University. He oversees low vision community and health education events in the District of Columbia, Northern Virginia, and Montgomery and Prince George’s Counties of Maryland.

“A lot of eye conditions do not have early symptoms. You may not realize you are losing your vision because it is progressing very slowly. You often hear the phrase ‘ignorance is bliss’, but when it comes to your eye health, that is not the case”

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Sometimes the glass feels half empty, and that’s okay. In “Let’s Talk about the Hard Things,” Marissa shares the most challenging aspects of living with albinism and low vision, including inaccessible buildings, awkward interactions, and society’s low expectations for blind people. Acknowledging and discussing these frustrating realities can help reveal how to make the world more accessible. WARNING: Marissa discusses sexual assault from 14:15-16:20, so please skip that portion if you find the topic upsetting.

“This is how we make meaningful change. These hard conversations can help us raise awareness for and analyze the barriers facing blind people.”

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Lia Stone joins Marissa to discuss gaining confidence and independence in the kitchen with low vision. She shares several organizational tips as well as approaches for handling knives, ovens, and other potentially dangerous tools. They also discuss the benefits of attending a training center and when to ask for sighted help. Tune in to learn about developing cooking and baking skills without starting a fire!

Lia is a work experience coordinator with the EDGE program as part of New Jersey's Pre-Employment Transition Services for blind and visually-impaired students. She is also the chair of the State’s Rehabilitation Council and a board member of New Jersey’s National Federation of the Blind affiliate. During the coronavirus pandemic, she hosted a Zoom cooking class for her blind students.

“I prefer the concept of interdependence over independence. The reality is, regardless of ability, everyone to some degree depends on others”

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Shaara Roman joins Marissa to discuss her experiences implementing diversity, equity, and inclusion programs (DEI) as well as what companies can do, both at the individual and organizational level, to prioritize accessibility in these efforts. Tune in to learn more about amplifying the voices of disabled employees in the workplace!

Shaara Roman is a former Chief Human Resources Officer and the CEO of The Silverene Group, a boutique management and culture consulting group. Her firm helps organizations foster engaged and productive teams by removing toxic stressors in the workplace. She also helps leaders through pivotal organizational changes, such as rapid growth, mergers, and acquisitions.

“Diversity is a fact. It’s numbers and representation. Inclusion is an act…diversity without inclusion is ineffective.”

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After several months living in Georgetown, exploring D.C., using public transit, and getting lost more than a few times, Marissa discusses the unexpected challenges she encountered as a blind person navigating a new city. She shares how her attitudes towards blindness and independence have changed since moving away from home. Tune in to learn more about mobility and gain several “blind hacks” for getting around.

“I realized I need to love the blind girl who gets lost as much as the blind girl who is independent, who has her act together.  If I never tried new things, put myself out there, put myself in positions where I might feel lost or helpless, I would’ve never gained the skills I have today.”

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Jenna Giesecke joins Marissa to share how she developed and adapted to a tic disorder during the COVID-19 pandemic. They discuss transitioning to college, requesting accommodations, and finding a place in the disabled community. Tune in to learn more about the intersection between disability and mental health!

Jenna Giesecke is a junior at Stevens Institute of Technology majoring in Mechanical Engineering. She is the Philanthropy Chair and Sisterhood Development Co-Chair in her university’s Theta Pi Alpha chapter. She is also an accessibility advocate for Stevens’ Diversity, Equity, and Inclusion committee.

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How does gender identity impact the way blind women live, work, and travel independently? In the next episode of Legally Blonde & Blind, Marissa and special guest Mia Parra discuss the intersection of gender, sexuality, and blindness. Tune in to learn how their combined identities influence how they receive help, view their appearance, approach dating, travel alone, and pursue friendships.

Mia Parra is a sophomore at Western Michigan University who is studying psychology and loves musical theatre.

WARNING: From 21:40-27:00, Mia Parra and Marissa discuss sexual harassment and assault. If you don’t want to hear about these topics, make sure to skip this segment!

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In the tenth episode of Legally Blonde & Blind, Marissa discusses how inspiration porn and other narratives surrounding disability made it challenging for her to share her story. She’ll then share some writing, editing, and brainstorming tips she’s gathered along the way.

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Marissa interviews Alanna Cronk, the founder of 1AC-CESSIBILITY, They discuss how the hyper-competitive culture and inflexible, “one size fits all” structure of speech and debate harms participants, especially those who are members of marginalized communities. Learn how speech and debate tournaments can create a more welcoming environment that encourages students to prioritize their mental and physical well-being!

Alanna is a senior at Georgetown University studying English and Philosophy. Her academic interests include indigenous philosophy, disability studies, semantics, symbolic logic, and women’s studies. When she is not conducting fascinating research projects, she can most often be found playing with her rescue dog and emotional support animal, Twinkie.

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What is albinism and what unique challenges does it present? In the eighth episode of Legally Blonde & Blind, Marissa explains how the physical appearance of people with albinism can lead to ostracization, discrimination, and low self-esteem. Tune in to learn more about how she learned to embrace her white hair, pale skin, and wiggly eyes!

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How do parents of a visually-impaired child process a new diagnosis and encourage their child to develop a positive attitude towards blindness? How does one navigate the alphabet soup of IEP plans and other accommodations? In Legally Blonde & Blind’s Mother’s Day Special, Marissa’s mom shares her unique experiences and perspectives as a parent of a child with albinism.

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How does one define independence and set reasonable goals for daily living? In this episode of Legally Blonde & Blind, Marissa discusses developing a healthy mindset towards independence and asking for help. She also shares toxic ways she used to view independence and offers advice for sighted people when assisting a blind person.

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In the fifth episode of Legally Blonde & Blind, Marissa shares her favorite things about being legally blind, such as being able to make friends in the blind community, scroll through her phone with her nose, and much more! She also discusses how her blindness helped her develop communication, social, and organizational skills.

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Samantha Hurley, a high school senior who has made several YouTube videos about her experiences with albinism, joins Marissa to discuss bullying, activism, and raising awareness for albinism on social media.

Samantha is a rising sophomore at the University of Georgia studying Journalism with a minor in Spanish. She is also receiving certificates in News Media and Public Affairs Communication. Her YouTube channel features several videos about albinism, body positivity, and disability activism.

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From web accessibility to Zoom fatigue, blind students face a unique set of challenges while learning virtually. Marissa discusses the roadblocks she has encountered and offers practical advice based on her experiences as an online college student.

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In the first episode of Legally Blonde & Blind, Marissa discusses how humor helped her develop confidence and feel more comfortable talking about her visual impairment.

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