Real Talk with Melody
By Melody Olander
Hosted by Melody Olander, a life blogger, Instagrammer, Healthcare Solutions grad student, and non-profit founder figuring out life one day at a time.
Diagnosed with CIDP in 2016, after years of battling an unknown condition causing severe symptoms, Melody decided to dedicate her time towards improving the patient's experience.
"I hope by sharing my story and the stories of others, we can start to see some real change in the healthcare system."
Real Talk with MelodyAug 06, 2021
Pink Takeover (ft. Taylor)
On this weeks episode we discuss how most people don't realize you get out of social media what you put into it. We talk about the importance of creating a social media community that vibes with your views and restrict posts that cause negative emotions. We also discuss our experiences with therapy and all the different kinds of therapies available to try. Therapy isn't a one size fits all approach, and it can take a while to find the right therapist/technique for you.
About the Guest:
Taylor Steinbeck is a content creator and digital illustrator based in the Bay Area who enjoys creating feminist illustrations with the aim of empowering others to cultivate a practice of radical self-compassion. Her passions lie in the intersection of social justice, mental health awareness, and the femme aesthetic.
You can find more information about Taylor on Instagram @shegotthepink
About the host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick."
After battling a rare neurological disorder for 7 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. She has successfully created a program centered on assisting both those who are diagnosed and going through the diagnostic process.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com
Edited by: Kristen @birdbearhealth
Final Listen: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
An Unrequited Spotlight(ft. Teona)
I Believe Me (ft. Arizona Lindsey)
Trigger Warning: This episode contains discussion of abuse, suicide, trauma and mental health issues.
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Episode 15 of Real Talk with @butyoudontlooksickofficial and @arizonalindseymusic
On this weeks episode of Unfiltered Friday’s, Arizona and I dive into the depths of our brains. Arizona, a mental health advocate, and I discuss the lives of mental illness patients, she and myself included. The struggles are daily constants: not being able to sleep, pain, fatigue, lack of concentration and focus, mental fog… and the tendency to blame ourselves for our symptoms. We discuss this difficult cycle of mental health symptoms and the self-blaming response. We think its’ partially accredited to the heavy stigmas on mental illness which is at the point even patients invalidate their own conditions. While the burden of symptoms are not our faults, Arizona and I talk about our realizations that individuals do have control over our persons, even when our body and brains are telling the opposite. We discuss how we just wanted our suffering to end, and how we got to a point where we could cope with our conditions and advocate for others.
We hope that by sharing this honest episode, it helps others who deal with these symptoms and illnesses realize they are not alone.
If you or someone you know is struggling with depression or suicidal thoughts, please reach out to someone you trust.
Help is available.
USA National Suicide Hotline 800-273-8255
About the Guest:
Fearlessly open and raw, Arizona Lindsey exposes her own story of trauma and rebirth from the ashes through her music and mission. From homelessness to winning the Gold Coast Arts Center’s 'Your Big Break' Competition, Arizona represents resilience and tenacity as she uses her platform to de-stigmatize mental health. She shatters the expectations of the world with an unconventional approach to life as she survives on self-expression and encourages others to embrace their uniqueness. Empowering through a pop-country sound and vulnerable fraught lyrics, Arizona Lindsey leaves nothing unsaid in her new album The Process; now available on all music platforms.
You can follow Arizona on instagram @arizonalindseymusic or visit www.arizonalindsey.com/
About the host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick."
After battling a rare neurological disorder for 7 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. She has successfully created a program centered on assisting both those who are diagnosed and going through the diagnostic process.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com
Edited by: Kristen @birdbearhealth
Final Listen: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Walking The Tightrope (ft. Noel Elie)
Noel and I both deal with multiple illnesses, as a significant amount of chronic patients do. We talked about the oftentimes complicated balance of life between the conditions, personal advocacy for our healthcare, full schedules, and mental health. The balance is not simple, but we discuss this balance further and how to prioritize your health and self amidst the sea of needs. Noel and I discussed our experiences in constantly having to advocate for belief, medicine, proper care, or even just the bare minimum in the medical system like many patients do. Chatting with Noel we related so much in our experience, and after covering a wide range of topics I'm sure our listeners this week will have something to relate to as well.
About the Guest:
Noel Elie is an Actress, Filmmaker, Wellness Advocate and the CEO of the world renown production and PR company, Noel Elie Productions. Noel is a storyteller and content creator and enjoys partnering alongside wellness brands with a giveback initiative and helping entrepreneurs receive massive exposure through PR, Social Media, and Events. Her company also specializes in book launch campaigns and helping authors become New York Times Best Selling Authors. In the last couple of years she was diagnosed with Lyme Disease, Co-Infections, Mold Toxicity and multiple Fibroid Tumors and is on a mission to heal herself from the inside out and as holistically as possible.
Stay in touch by following her on instagram @noel_elie or visit her website www.noelelieproductions.com
About the host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick."
After battling a rare neurological disorder for 7 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. She has successfully created a program centered on assisting both those who are diagnosed and going through the diagnostic process.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com
Edited by: Kristin @birdbearhealth
Final Listen: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Fabulous & Fatigued (ft. Sara)
About the Guest:
Sara is a writer and runs a page called Fabulous and Fatigued where she talks about life with fibromyalgia, depression, and anxiety. Sara didn't always have these conditions until one day when she was hit by a car in highschool and started experiencing irriversable symptoms.
About The Host:
Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 7 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Edited by: IZ @iz_indelicato
Final Edit: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
--- Support this podcast: anchor.fm/melody-olander/support
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
The Power of a Click (ft. Kristine)
Episode 12 of Real Talk with @butyoudontlooksickofficial and @findyourrare
On this week’s episode, Kristine and I, both individuals with internet-reliant businesses, discuss what the reality of being chronically ill and online is. Our discussion focused on the online communities and the issue of competition between individuals with both chronic illness/disability/etc and a platform. Oftentimes, we’ve found in our efforts to collaborate with those individuals that there is an uncomfortable amount of a sense of competition, rather than comradery and support. We don’t quite understand that mentality! We both agree that anyone’s success in our community is a success for us as well. Kristine and I talk about our diagnostic journeys and how in medicine, every process is a circle. In our businesses, both she and I’s goal is to be able to change the shape of the medical process for patients- to one more centered on the patient. After all, who is the medical business helping, if not for the patients?
About Our Guest:
Dealing with the diagnostic journey for several years to find an answer, two years later found her believed diagnosis is actually a misdiagnosis, and back through the process she goes! Kristine’s passion was found in the most difficult stage of any chronic patient, when one has the illness but doesn't know the diagnosis. Looking for answers to her illness and finding none, she decided to create the resource she needed for herself: RARE. Now, RARE is a popular retail company for chronically ill individuals to have both representation, community, and a resource. Inclusive to all ailments: chronic, disabling, degenerative, mental, invisible- RARE is a collective company for all patients.
Check Kristine and RARE out @findyourrare
About The Host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick." After battling a rare neurological disorder for over 7 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Edited by: IZ @iz_indelicato
Final Edit: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
--- Support this podcast: https://anchor.fm/melody-olander/support
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Living in a Neurotypical World (ft. Izzy)
Episode 11 of Real Talk with @butyoudontlooksickofficial and @autieselfcare
In this week’s episode, Izzy and I discuss what it was like for Izzy to not be diagnosed with autism until she was 18 years old and why women are less likely to be diagnosed. Izzy shares her personal experience of struggling without a diagnosis throughout her life and all the times she felt isolated. Izzy shares how all the pieces finally started making sense when she was diagnosed at 18. We discuss what the signs were that made Izzy look into a diagnosis and how different life might’ve been if she was diagnosed earlier. Listen to this weeks episode to learn more about autism, masking, and how you can be more supportive to your loved ones with autism.
About our guests:
Izzy is an advocate and social media influencer sharing the realities of what it’s like to have autism while living in a neurotypical world. Izzy shares insightful tips and advice while covering topics such as, mental health & autism, sleep & autism, things to know if dating an nautistic person, book recommendations and more! You can follow Izzy on instagram @autieself
About the host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick." After battling a rare neurological disorder for 7 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. She has successfully created a program centered on assisting both those who are diagnosed and going through the diagnostic process.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com
Podcast Manager: Bella @itsbellawhit
Audio Editor: Kristen @birdbearhealth
Final Listen/Edits: Taylor @plottwistparenting
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Friends in Business & Illness (ft. Kacie & Sofia)
Episode 10 of Real Talk with @butyoudontlooksickofficial @sofia.supichaya and @kace_face1
On this weeks episode we discuss what it's like being business women while juggling multiple invisible conditions.
Friends in business and illness. This weeks’ guests Sofia and Kacie are connected in both. All three of us are businesswomen with a combination of chronic illnesses that affect our daily lives. With entrepreneurship, it’s oftentimes working five jobs while having the title of one; the three of us couldn’t agree more! We shared some collective experiences of being a disabled woman in an able-bodied field, from total lack of accessibility to the difficulty of peers not understanding how we perform our jobs if we are “actually” sick.
The three of us discuss the importance of the understanding that disabled people are full people too. We are performers, people who are passionate about their careers, artists, business owners, and continue to do this work DESPITE the illness at hand. Even on symptomatic days, the painful days, the unfathomable days, we continue to be full people who seek fulfillment from our careers. Navigating the healthy career world is not easy, and the three of us are not shy talking about the reality of it.
Life with a chronic illness is a balance. Kacie, Sofia and I talk about how oftentimes we are feeling punished for doing work we are proud of, and what the “right way” to be in pain is. We conclude that the truth is: the way you are in pain is the right way. Sofia, Kacie, and I all share experiences trying to translate what illness is actually like to those who have never experienced it themselves, and how much more could be done if the healthy world took the time to learn about chronic illness and disability.
About the Guests:
Sofia is a business owner for a swimwear line called IMME swimwear along with a marketing agency and photography business
You can find Sofia through the correlated links above or on Instagram: @sofia.supichaya
Kacie is a fashion model, artist, writer, and marketing consultant
You can find more information about Kacie through her website or on Instagram: @Kace_face1 or Tiktok: @Kace_face1
About the host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick."
After battling a rare neurological disorder for 7 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. She has successfully created a program centered on assisting both those who are diagnosed and going through the diagnostic process.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com
Edited by: IZ @iz_indelicato
Final Listen: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Under the Lens (ft. Sticksy & Bella)
Episode 9 of Real Talk with @butyoudontlooksickofficial, @Sticksy617, and @itsbellawhit
In this week’s episode, Sticksy, Bella, and I, all public advocates and influencers, have a discussion about our experiences working within our communities- and the reality that comes with public advocacy. When discussing chronic illness and mental health regularly in our work, all three of us have shared experience dealing with the turbulence as individuals who speak very candidly on our experiences. From algorithmic censorship to abled-bodied audiences critiquing our advocacy, we’ve dealt with it all, and are here to laugh about it all. Speaking with Sticksy and Bella, it was a refreshing perspective to take a moment to look at the problems within the space. Most conversations surrounding disability and illness, whether it be mental or physical, has been primarily centered on the translation in-between the healthy world and disability. But, the reality is there is a broad spectrum of issues, from micro to macro.
About our guests:
Sticksy is a massively successful influencer, boasting over 750,000 followers on TikTok. Diagnosed with Asperberger’s, BPD, EDS, and symptoms of Marfan’s, Sticks takes a fresh approach to advocacy. Both blunt and hysterical, he has contributed greatly, providing a needed perspective in the constantly developing world of chronic illness. With platforms full of honest content, opinions, commentary, and humor, Sticksy is not afraid to say what needs to be said.
You can find Sticksy on TikTok and Instagram at @Sticksy617
You may recognize Bella Whit from episode 6, “You’re Not Immune to Dying”. Now also our podcast manager, Bella is a social media influencer who focuses on raising awareness on EDS and the process of being undiagnosed and undertreated after taking years to be diagnosed herself. She uses and plays on her own experiences to share her often humorous, messy, life since her onset of symptoms. Bella’s content focuses on connecting the world of the chronic and the healthy, making the processes that come with disability accessible to everyone.
You can follow Bella on Youtube, TikTok and Instagram @itsbellawhit
About the host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick."
After battling a rare neurological disorder for 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. She has successfully created a program centered on assisting both those who are diagnosed and going through the diagnostic process.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com
Edited by: Kristen @birdbearhealth
Final Edit: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
A Different Perspective (ft. Diana)
Episode 8 of Real talk with Diana G. and @butyoudontlooksickofficial
In this Mother's Day episode I talk with my mom about her perspective of my medical journey. We discuss how scary it is when you first become sick and the learning curve that comes with a chronic illness.
About The Host:
Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Edited by: Kristen @birdbearhealth
Final Edit: Taylor @plottwistparenting
Podcast Manager: Bella @itsbellawhit
--- Support this podcast: https://anchor.fm/melody-olander/support
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Chronic The Film (ft. Charlotte & Milly)
Episode 7 of Real talk with @chronicfilm and @butyoudontlooksickofficial
In this episode I talk with the director(Milly) and writer (Charlotte) of the film Chronic. Chronic is a short film that follows the story of a young couple, Sadie and Rob, who move in together but Sadie’s chronic illness complicates their plans and begins to govern their relationship. We discuss the vulnerability that comes with sharing your story and what the inspiration was for this short film. We discuss how crucial it is to have members of the chronic illness community involved with films when it’s about having a disability and some of the shortcomings that other films have while not including the chronic illness perspective.
About our guests:
Charlotte is the writer of the short film Chronic. Charlotte has a handful of conditions that she wasn’t diagnosed with until after 6 1/2 years of being undiagnosed. She knows the struggles of having an invisible condition without a name all too well. Milly is the director of the film Chronic and has had CFS/ME since childhood. You can follow both of them @chronicfilm
About The Host:
Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
You’re not immune to dying (ft. Bella)
Episode 6 of Real Talk with @butyoudontlooksickofficial and @itsbellawhit
In this weeks episode I talk with Bella about having a chronic illness and the realities we've had to face at a young age. We talk about how being disabled makes you appreciate the fragility of life on a daily basis and how we feel like a walking reality check to abled bodied people.
About our guest:
Bella is a social media influencer who focuses on raising awareness on EDS and the hassle of being undiagnosed after taking years to be diagnosed herself. Bella has a Tik Tok following of over 40,000 while talking about the realities of disability. You can follow her on youtube, Tik Tok and instagram @itsbellawhit
About the Host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick." After battling a rare neurological disorder for 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Chronic illness Travels (ft. Katya)
Episode 5 of Real talk with @positivelychronictravels and @butyoudontlooksickofficial
In this episode we share our tips and resources for traveling while having a chronic illness. When Katya was first diagnosed, she realized there weren't resources readily available to talk about the adjustments you need while traveling with a condition. Because of this Katya decided to create a platform called Positively Chronic Travels, which she created to answer some of the questions she had regarding traveling and having a condition. We talk about our tips and tricks along with what struggles you can expect while traveling.
About our guest:
Katya is a social media influencer who focuses on sharing the realities of traveling with an illness. You can follow her on instagram, Tik Tok and YouTube @positivelychronictravels or you can visit her website https://www.positivelychronictravels.com/
About The Host:
Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Shifting from Expectations to Executions (ft. Jake)
Episode 4 of Real talk with @jakemayerscoaching and @butyoudontlooksickofficial
In this episode we talk about mindset while having a chronic illness and how important mindfulness is. We talk about Jakes story with chronic lyme disease and how this eventually led him in the direction of becoming a transformational coach and founding his own company, JMC. We discuss our journies of being undiagnosed and how we developed a confidence to advocate for ourselves and others.
About our guest:
Jake is a transformational coach who has also had chronic lyme disease for over 13 years. Jake decided to start up JMC after having a chronic condition for years and realizing that just because you're suffering doesn't mean you can't enjoy life. Jake helps chronic illness patients take back control of their lives and develop action plans to stay in control. You can follow Jake on instagram @jakemayerscoaching
About The Host:
Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Health from a Hive? (ft. Brittany)
In this weeks episode I talk with Brittany about her journey with Lyme Disease and Bee Venom Therapy.
We talk about how Brittany came across this therapy and how her mindset about bees has shifted over the years.
About our guest:
Brittany is a social media influencer with a Tik Tok and Instagram following based around Bee Venom Therapy. She shows the realities of living with Lyme disease and what it's like to get stung by 30 bees a week as a form of treatment. You can follow her and her journey @britterbeez
About the host:
Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick." After battling a rare neurological disorder for 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
Changing the Narrative (ft. Julie)
Episode 2 of Real Talk with @iamstamm in New York City (You'll randomly hear the sound of the city and sirens) and @butyoudontlooksickofficial
In this episode I talk with Julie about the book she published titled "Some Days We"
This childrens book shows the perspective of a young boy named Wyatt and how he views his superhero mom with a chronic illness.
Julie and I discuss the stigma behind being a parent with a chronic illness and how to have hard conversations with young children regarding chronic illness. We give our insight of how important it is to change the narrative regarding chronic illness and why doctors opinions aren't always worth listening to.
About our guest:
Julie is an MS advocate who published a book titled "Some Days We" This book can currently be found on Amazon or at Barnes and Noble, and will soon be available internationally in different languages. Julie wanted to use her personal experience to give the story behind chronic illness a different narrative. Generally, chronic illness is talked about in a sad and depressing way. Julie wanted to write a book with a different perspective. One through the eyes of a young boy named Wyatt who views his mom as a superhero. You can follow Julie on instagram @iamstamm
About The Host:
Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.
The Roller Coaster of Chronic Illness (ft. Gigi)
Episode 1 of Real talk with @itsgigirobinson and @butyoudontlooksickofficial
In this episode we talk about all things living with chronic illness and what the rollercoaster of navigating life is like!
We talk about dealing with haters, relationships, losing friends and how we both found our own ways of healing through art.
We discuss our journies of University and how we handled ableist professors.
About our guest:
Gigi is a social media influencer with a Tik Tok following of over 100,000. She is a chronic illness and body positivity advocate who shows the realities of life. You can follow her on both instagram and Tik Tok @itsgigirobinson
About The Host:
Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients.
You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com
Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.