Where to listen
Episode 11 - Shane, a firefighter with EB, his story, his family and his heroes
Melissa and Jill use their time during social distancing to enjoy an amazing conversation with Shane. An amazing family man who's career as a firefighter was something he dreamed of, worked for and that challenges his EB daily.
https://miathrives.org/
51:08
March 20, 2020
Episode 10 - Nisha - Accepting and Advocating
Nisha shares her story of accepting her EB, announcing her EB and becoming an advocate for Rare Disease. An incredible woman with a very full life who is finding her voice and helping others to find theirs as well!
https://everylifefoundation.org/
https://rareadvocates.org/rdw-2/
https://www.youtube.com/watch?v=I00QH1OwLNE&feature=youtu.be
37:54
March 13, 2020
Episode 9- Jim and the MiaThrives Golf Tournament
Jill’s husband Jim joins the MiaThrives ladies to talk about their annual golf tournament and why he became involved in EB awareness.
20:06
March 3, 2020
Episode 8 - Ryan - Bella's Ball 2020
Melissa, Jill and Ryan discuss his incredible event, the annual Bella's Ball in support of DEBRA Canada’s programs and services assisting families with Epidermolysis Bullosa. His daughter Raquel was given a sitski through the DEBRA fund a butterfly program which allows her to ski and race with her family.
https://www.debracanada.org/2020-bellas-ball-broomball-open
34:20
February 26, 2020
Episode 7 - A purpose, a passion and a journey with Mark
You cannot miss this episode! Mark joins Melissa and Jill to talk about EB Simplex, Athletes4EB, mental health, a purpose driven life and finding your way.
38:58
February 17, 2020
Episode 6 - Sarah shares her talents, her loves and her busy life with JEB
Sarah spends time with Melissa and Jill talking about her busy days, her fur babies and living a purposeful life with JEB. There is a lot of talk about beloved and very special pets in this episode. You don't want to miss this!
34:07
February 10, 2020
Episode 5 - Talented musician Ed talks family, friendships, and finding your path with DDEB
We are thrilled to have the chance to talk with one of our very favourite community members. Ed has a heart as big as his incredible talent and we can't wait for you to meet him and hear his story.
27:43
February 3, 2020
Episode 4 - EB World Congress 2020
Melissa and Jill recap the last week at MiaThrives. With part of the MiaThrives team in London at the EB World Congress and Jill back at home it was a fun, informative, and busy time, and Jill even attempted a cartwheel!
29:50
January 28, 2020
Episode 3- Novelette a beautiful story of life with RDEB
Melissa and Jill are so excited to be joined by Novelette, a true mentor, leader and thinker in the EB community. An unforgettable discussion about life with RDEB, the joy, the pain, the everyday "stuff" and how we can best support each other! You don't want to miss this!
51:20
January 20, 2020
Episode 2- Talking DDEB, Family and Tattoos and with our friend Chris
MiaThrives community member, EB warrior, incredible husband and father and amazing tattoo Artist Chris joins Melissa and Jill to discuss his family's journey with EB!
37:31
January 13, 2020
Welcome Friends, let's get this Podcast started!!
Melissa and Jill of MiaThrives start the podcast adventure with quick history of who they are, the why of MiaThrives and a Butterfly Child named Mia!
This is the start of a journey for all of us in the EB community, an opportunity for frank and honest discussions, amazing guests, fun topics, challenging issues, purpose, inspiration, and so much more. Join us afterwards on our facebook group to continue the conversation.
www.miathrives.org
32:51
January 7, 2020