Emily and Jill spend an hour with Shirvani from South Africa. This incredibly dynamic woman, mother, wife, advocate, model and so much more is open and honest about her life with EB, becoming and being a mother, healthcare decisions and thriving in your own way. We truly didn't want this conversation to end!
We are very excited to share this episode with one of our amazing community members, Sanja. We learned so much about what thriving with EB means to her and all about her incredibly resilient family. You don't want to miss this very special episode!
If you want to hear from someone who is the very definition of thriving than you need to listen to this episode with Toni. Toni is "grabbing life by the horns" and she shares it all with us today!
Debra South Africa
Join Emily and Jill as they share a conversation with the fabulously talented, extremely candid and incredibly warm Liz Trinnear. Everything from red carpet shoes to everyday struggles. You don't want to miss this!
Liz Trinnear tells her story here
Emily and Jill have a lot to learn from Les in terms of video games! Join them for a really fun and honest conversation about his day to day life with EB, his very popular live streaming and his love of music!
Emily and Jill are so excited to speak with Stacey about a topic we haven't really delved into before. Athletics, training, motivation and movement. Such great stuff! This is a must listen!
Jill and Emily share an incredible conversation with Cindy. She opens up about her recent EB diagnosis after a lifetime of searching for answers. Now she has found support and an incredible EB community she is excited to be a part of.
EB blog freshly launched: https://mybutterfly.life
Personal website: https://cindymateus.com
Web studio website: https://dsignpoint.com
When you want to break down
Keeping a smile
When it’s easier to frown.
Working through your troubles
Not just push them away
Living my best life,
For the time we have here
Bringing people together
To help you face the fear
An exciting day for the MiaThrives podcast as Emily and Jill get the opportunity to speak with one of the leaders of our EB community and learn more about his #EBlifestyle!
Welcome to Season 2 of the MiaThrives podcast! Melissa and Jill are joined by Rachel who discusses her incredibly full life and her amazing organization Befriend EB. https://www.facebook.com/befriendeb/
Melissa and Jill use their time during social distancing to enjoy an amazing conversation with Shane. An amazing family man who's career as a firefighter was something he dreamed of, worked for and that challenges his EB daily.
Nisha shares her story of accepting her EB, announcing her EB and becoming an advocate for Rare Disease. An incredible woman with a very full life who is finding her voice and helping others to find theirs as well!
Melissa, Jill and Ryan discuss his incredible event, the annual Bella's Ball in support of DEBRA Canada’s programs and services assisting families with Epidermolysis Bullosa. His daughter Raquel was given a sitski through the DEBRA fund a butterfly program which allows her to ski and race with her family.
Sarah spends time with Melissa and Jill talking about her busy days, her fur babies and living a purposeful life with JEB. There is a lot of talk about beloved and very special pets in this episode. You don't want to miss this!
Melissa and Jill recap the last week at MiaThrives. With part of the MiaThrives team in London at the EB World Congress and Jill back at home it was a fun, informative, and busy time, and Jill even attempted a cartwheel!
Melissa and Jill are so excited to be joined by Novelette, a true mentor, leader and thinker in the EB community. An unforgettable discussion about life with RDEB, the joy, the pain, the everyday "stuff" and how we can best support each other! You don't want to miss this!
Melissa and Jill of MiaThrives start the podcast adventure with quick history of who they are, the why of MiaThrives and a Butterfly Child named Mia!
This is the start of a journey for all of us in the EB community, an opportunity for frank and honest discussions, amazing guests, fun topics, challenging issues, purpose, inspiration, and so much more. Join us afterwards on our facebook group to continue the conversation.