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My Myasthenia

My Myasthenia

By Jesse Morgan

A podcast to share our stories, journeys, and discoveries regarding the crazy disease Myasthenia Gravis. Each week we will talk with a different guest about their experience with the disease, and share insights on how to best cope with the condition. We will laugh together, sometimes cry together, but most importantly learn together.
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What happens to your body in the heat?

My MyastheniaJul 19, 2023

00:00
18:46
What happens to your body in the heat?

What happens to your body in the heat?

In this episode, we delve into the effects of extreme heat on our bodies and explore effective measures to minimize its impact. Discover the science behind staying cool and learn what strategies actually work in combating scorching temperatures.

Jul 19, 202318:46
Sheila’s MG Story

Sheila’s MG Story

Dec 13, 202201:04:34
What to Expect with IVIG

What to Expect with IVIG

Dec 03, 202234:54
Learning to Cope

Learning to Cope

On today's episode, we learn about healthy and unhealthy ways to cope with stressful situations, and how to identify ways to improve those skills.

Thank you to everyone who has stuck around and waited for this episode. I took a much-needed break and am now ready to continue releasing episodes on a regular basis.
Today's information was obtained from many places, but the main source can be found here.
Oct 24, 202232:00
My Thymectomy Experience

My Thymectomy Experience

On today's episode, I will be discussing my experience of getting a Thymectomy to remove my Thymus and Thymoma. If you are worried about having this surgery done, hopefully hearing my story in detail may help to put your mind at ease. 

Jul 15, 202250:33
Dealing with the Heat - MG Tips #2

Dealing with the Heat - MG Tips #2

On Today's episode, we cover the common topic of dealing with the summer heat. Tune in to hear the most common Tips and Tricks from the MG community on staying safe - and comfortable - during the hottest part of the year.
Jul 06, 202231:14
The Wonderful World of Mestinon

The Wonderful World of Mestinon

Join us as we take a ride on the "Royalty Free" version of the Magic School Bus and dive deep into the human body to explore The Wonderful World of Mestinon, and see how it works at the cellular level to keep us safe.
In just a few weeks we will be releasing the My Myasthenia "Acetylcholine" shirts, so stay tuned if you are interested in picking up one for yourself!
Jun 29, 202231:31
Discussing Therapy With Michelle

Discussing Therapy With Michelle

On Today's Episode, we get to interview Michelle, a Clinical Therapist who also suffers from MG. She shares some helpful information on coping with a Chronic Illness, so be sure to listen to the whole interview!
If you would like to share your story on the podcast, feel free to send an email to MyMyastheniaPod@gmail.com.
Jun 21, 202252:35
Exercise - MG Tips #1

Exercise - MG Tips #1

On Today's episode, we dive into the Myasthenia Gravis community to get advice on exercising with MG. While we are all different, staying in shape should be a common goal amongst us all. If you have any tips that did not get covered, feel free to reach out with your suggestions to MyMyastheniaPod@gmail.com.

Jun 14, 202235:59
Crisis On The Water With Sean

Crisis On The Water With Sean

On Today's episode, we have the privilege of interviewing Sean on his remarkable story of getting diagnosed with Myasthenia Gravis. While his path wasn't ideal, Sean is on the road to recovery and is enjoying the beginning stages of remission! Find Sean on Reddit as /u/SeanRok on the subreddit /r/MyastheniaGravis.

If you would like to be interviewed for the podcast please send an email to MyMyastheniaPod@gmail.com and we can discuss having you on the show!
Don't forget June is Myasthenia Gravis Awareness Month. To find out more, visit the Myasthenia Gravis Foundation here: myasthenia.org/Make-an-Impact/Turn-Awareness-into-Action
Jun 07, 202231:37
What is Myasthenia Gravis?

What is Myasthenia Gravis?

In today's episode, we get into the nitty-gritty of what Myasthenia Gravis ACTUALLY is, and how it affects our bodies. We cover a brief overview of how to spot a Myasthenic Crisis and different treatments available if one happens, and the different medications you can probably expect to be prescribed.
June is MG Action Month! Find out more at the link below, and be sure to do your part to spread awareness of Myasthenia Gravis all month long! myasthenia.org/Make-an-Impact/Turn-Awareness-into-Action
May 31, 202231:06
In The Beginning - Getting Diagnosed

In The Beginning - Getting Diagnosed

My name is Jesse, and in today's inaugural episode, I discuss my own experience with finding out I have Myasthenia Gravis. Being the first episode, this one has a few bumps along the way, but that is part of the fun! If you or someone you know has MG and would like to share your story, please feel free to reach out to MyMyastheniaPod@gmail.com and we will get you on the podcast in future episodes!
May 27, 202235:03