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NETs Get Real with NCAN

NETs Get Real with NCAN

By Neuroendocrine Cancer Awareness Network

NCAN has produced conferences for NET patients for over 15 years - conferences that help keep you up to date on issues impacting your care like new diagnostics and treatments.

Now you can tune in to a monthly podcast featuring interesting insights and stories from thought leaders and personalities in the neuroendocrine cancer community!
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Currently playing episode

NETs Get Real May 16, 2020 Season 1 Ep 5 – Leigh-Anne Burns, RD - Diet and Nutrition for NET Patients Part 1

NETs Get Real with NCANMay 16, 2020

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42:50
NETs Get Real with NCAN with NET Patient Noura Dakka!

NETs Get Real with NCAN with NET Patient Noura Dakka!

This episode we speak with NET Patient, Noura Dakka. She talks about her incredible journey of her diagnosis, her strong opinions on second, third and fourth opinions, forging forward in spite of her diagnosis and minsdiagnosises and so much more!


Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!


For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Mar 06, 202437:53
NETs Get Real with NET Dr. Michael Demeure!

NETs Get Real with NET Dr. Michael Demeure!

This episode we speak with Dr. Michael Demeure from Hoag Medical Group in California talking about his multidisciplinary team, the importance of coming to the NCAN 2024 NET Patient Conference in San Diego and so much more!


Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!


For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Feb 07, 202419:06
NETs Get Real with NET Patient Kelly Baughman

NETs Get Real with NET Patient Kelly Baughman

This episode we speak with NET Patient, Kelly Baughman. She talks about the journey across the country trying to identify her diagnosis, being shooed by doctors, finally finding the right one moving forward and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Jan 03, 202440:28
NET Patient, Christine DuPerry

NET Patient, Christine DuPerry

This episode we speak with newly diagnosed NET Patient, Christine DuPerry. She talks about the journey as a pharmaceutical professional, diagnosis, support system and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dec 06, 202321:43
New NET Patient, April Whetsell

New NET Patient, April Whetsell

This episode we speak with newly diagnosed NET Patient, April Whetsell. She talks about her journey of being just recently diagnosed, how being a medical professional affected her journey in positive and negative ways, trying to decide her next moves, staying positive, her future as an advocate and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Nov 01, 202326:26
NET Patient Katie Gilmore (Diagnosed in First Trimester of Pregnancy)

NET Patient Katie Gilmore (Diagnosed in First Trimester of Pregnancy)

This episode we speak with newly diagnosed NET Patient, Katie Gilmore. She talks about her journey of being diagnosed in the first trimester of her pregnancy, visiting several doctors and trying to decide her next move, staying positive, her future, advocating for herself and so much more!


Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!


For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Oct 04, 202331:53
NET Patient, Whipple Warrior and Advocate Ronda Ayala, RN

NET Patient, Whipple Warrior and Advocate Ronda Ayala, RN

This episode we speak with NET Patient and Advocate, Ronda Ayala RN about her NET journey, creating the Whipple Warriors, the ins and outs of a Whipple Surgery, her involvement in NCAN and so much more!


Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!


For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Sep 06, 202330:35
NET Patient and Advocate Gigi Baker

NET Patient and Advocate Gigi Baker

This episode we speak with NET Patient and Advocate, Gigi Baker about her NET journey in the height of the COVID-19 pandemic, tips for new NET patients, importance of seeing a NET specialist, being lucky enough to live near a NET Specialty Center and more!


Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!


For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Aug 03, 202320:08
NETs Get Real with NCAN - Dr. Amr Mohamed Medical Oncologist at UH Cleveland Medical Center

NETs Get Real with NCAN - Dr. Amr Mohamed Medical Oncologist at UH Cleveland Medical Center

This episode we speak with the oncologist from UH Cleveland Medical Center, Dr. Amr Mohamed. He talks about the importance of finding a NET specialist, why advocacy is so important and the collaborative efforts doctors in the NET field.


Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!


For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Jul 05, 202319:04
Talking with NET Patient and Support Group Leader, Julie Riecken!

Talking with NET Patient and Support Group Leader, Julie Riecken!

This episode we speak with NET Patient and leader of the Nebraska NCAN Support Group, Julie Riecken. She talks about her NET journey, her involvement in the NET community, discovering resources and assistance for patients and so much more. Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Jun 07, 202321:17
NET Patient and Advocate Alexandria Jungling

NET Patient and Advocate Alexandria Jungling

This episode we speak with NET Patient and Advocate, Alexandria Jungling. She talks about the misconceptions of being diagnosed at a young age, doctors unexpected and sometimes unprofessional reactions and so much more. Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

May 10, 202325:07
PRRT Now and in the Future with Dr. Sam Mehr and Scott Dengenhardt from Nebraska Cancer Specialists

PRRT Now and in the Future with Dr. Sam Mehr and Scott Dengenhardt from Nebraska Cancer Specialists

This episode we speak with Dr. Sam Mehr and Scott Dengenhardt from Nebraska Cancer Specialists, two major point people on the research team about PRRT now and in the future!

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Apr 05, 202318:26
Dr. Namarta (Neena) Vijayvergia Talks Biomarkers and Testing for NETs!

Dr. Namarta (Neena) Vijayvergia Talks Biomarkers and Testing for NETs!

This episode we speak with the oncologist from the Fox Chase Cancer Center in Philadelphia, PA, Dr. Namarta (Neena) Vijayvergia. She talks all about biomarkers and testing for NETs! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Mar 23, 202324:13
Dr. Chandrikha Chandrasekharan talks about Multidisciplinary Teams.

Dr. Chandrikha Chandrasekharan talks about Multidisciplinary Teams.

This episode we speak with the oncologist from the University of Iowa Dr. Chandrikha Chandrasekharan.  She talks all about the importance of a multidisciplinary team and working with centers with high volumes!   

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!  

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Mar 08, 202333:12
Taking action with Patient and Group Leader, Wendy Knoll!

Taking action with Patient and Group Leader, Wendy Knoll!

This episode we speak with a leader in the NET support community, a mom, a vet, an advocate and a leader of her own chapter of NCAN, Wendy Knoll!  We hear all about how her NET diagnosis journey, why she wanted to get so involved with serving the NET community, the upcoming Zebra Gala in Raleigh, NC and so much more!

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Feb 22, 202321:20
BUY THE TICKET - With High-Grade Patient Shari Shultz

BUY THE TICKET - With High-Grade Patient Shari Shultz

This episode we speak with a high-grade NET patient, Shari Schultz!  We hear all about how her NET diagnosis journey changed her outlook on life and created her philosophy of "Buy the Ticket."  Special Guest-Co-Host Maryann Wahmann.  

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!    

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Feb 09, 202346:24
Dr. Shikha Jain Discusses Cardiac Complications from Neuroendocrine Tumors

Dr. Shikha Jain Discusses Cardiac Complications from Neuroendocrine Tumors

This episode we speak with the oncologist from the University of Illinois Cancer Center, Dr. Shikha Jain.  She talks all about Cardiac Complications from Neuroendocrine Tumors!  Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Jan 25, 202328:28
Dr. Jason Starr talks Neuroendocrine Cancer Myths, Terms and Facts!

Dr. Jason Starr talks Neuroendocrine Cancer Myths, Terms and Facts!

This episode we speak with the oncologist from Mayo Clinic in Jacksonville, FL, Dr. Jason Starr.  He talks all about Neuroendocrine Cancer Myths, Terms and Facts!  Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Jan 11, 202337:05
Founder of NETs Mexico, Michel DeQuevedo!

Founder of NETs Mexico, Michel DeQuevedo!

This episode we speak with the founder of NETs Mexico, Michel DeQuevedo!  We hear all about his nearly decade-long NET diagnosis journey, finally being diagnosed in 2021, advocating for himself, the lack of information and support available in South America and how his mother inspired him to create NETs Mexico.

Find NETs Mexico on all social media platforms @netsmexico and at netsmexico.com

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dec 08, 202228:59
Panel Discussion on Why you should be involved in the NET Community from the 2022 NCAN National Conference!

Panel Discussion on Why you should be involved in the NET Community from the 2022 NCAN National Conference!

Dr. Eric Liu, Dr. Aman Chauhan and comedian/NET patient Steve Mazan discuss the importance of getting involved in the NET community LIVE from the 2022 NET Patient Conference in Atlanta, GA!

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Nov 23, 202222:02
Recurrence Risk in pNETs with Heloisa Soares, MD, PHD

Recurrence Risk in pNETs with Heloisa Soares, MD, PHD

Dr. Heloisa Soares joins the show today and talks about the Recurrence Risk in pNETs.  She also lets us know about how he got into NETs and other important tips for patients!  

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!  

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Nov 09, 202235:51
Overview of Pulmonary Carcinoid Tumors with Dr. Robert Ramirez

Overview of Pulmonary Carcinoid Tumors with Dr. Robert Ramirez

Dr. Robert Ramirez joins the show today and talks about an Overview of Pulmonary Carcinoid Tumors.  He also lets us know about how he got into NETs and other important tips for patients!  

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!  

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware  

You can contact him at his email: robert.ramirez@vumc.org

Oct 26, 202250:24
NETs Get Real - Management of Small Bowel Neuroendocrine Tumors with Dr. James Howe.

NETs Get Real - Management of Small Bowel Neuroendocrine Tumors with Dr. James Howe.

Dr. James Howe joins the show today and talks about Management of Small Bowel Neuroendocrine Tumors.  He also lets us know about how he got into NETs and other important tips for patients!

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Oct 12, 202237:50
Dr. Satya Nanu Das talks about PRRT!

Dr. Satya Nanu Das talks about PRRT!

Dr. Satya Nanu Das joins the show today and talks about PRRT.  He also lets us know about how he got into NETs and other important tips for patients! 

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!  

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Sep 28, 202230:45
Identifying Novel Anticancer Drugs for Neuroendocrine Neoplasias with Jaydira Del Rivero, MD

Identifying Novel Anticancer Drugs for Neuroendocrine Neoplasias with Jaydira Del Rivero, MD

Dr. Jaydira Del Rivero from NIH in Maryland joins the show today and talks about Identifying Novel Anticancer Drugs for Neuroendocrine Neoplasias or NENs.  She also lets us know about how she got into NETs and other important tips for patients!

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Sep 14, 202233:05
Speaking with 30-Plus Year NET Patient Mark Patton

Speaking with 30-Plus Year NET Patient Mark Patton

This episode highlights our first NET expert that happens to be a patient.  At only 11-years-old, Mark Patton was diagnosed with a cancerous lung tumor.  He overcame, grew up, lived his life, got married and then 11 months later, at the age of 27 was diagnosed with a NET tumor...15 years later he shares his story of building a family, career, keeping a positive mindset and overall success in spite of living with NETs!

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Aug 31, 202233:51
Liver Directed Therapies with Michael Soulen, MD

Liver Directed Therapies with Michael Soulen, MD

On this episode we welcome Dr. Michael Soulen, Professor of Radiology at the Hospital of the University of Pennsylvania.  He talks about becoming a part of the NETs community over 30 years almost by accident and highlights Liver Directed Therapy.  Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!  For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Aug 17, 202242:27
Overcoming Insurance Denials with Tom Wilson, Leader of the Wisconsin Neuroendocrine Cancer Connection Group

Overcoming Insurance Denials with Tom Wilson, Leader of the Wisconsin Neuroendocrine Cancer Connection Group

This episode we speak with a NETs specialist in his own right, Tom Wilson, leader of the Wisconsin Neuroendocrine Cancer Connection Group.  In 2015, his wife Lynn was diagnosed with NETs and became heavily involved in her journey navigating the complexities of care and dealing with insurance company denials.  Co-author of the book "Negotiate Anything! Secrets to Make Businesses Treat You Fairly," he speaks on the important skills needed to make sure your insurance company will pay for your important treatments.  This is a MUST LISTEN episode for so many!

Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!

For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Aug 03, 202247:34
Clinical Trials with Mary A. Maluccio, MD, MPH, FACS

Clinical Trials with Mary A. Maluccio, MD, MPH, FACS

This is the relaunch of NETs Get Real!  This episode we have Mary A. Maluccio, MD, MPH, FACS talking to us about Clinical Trials and why they are so important.  She is Professor of Surgery and Medical Director of the New Orleans Louisiana Neuroendocrine Tumor Specialists program, NOLANETS, a strategic partnership between Louisiana State University and Ochsner Medical Center-Kenner and we couldn't be happier to have her on the show.


Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!


For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Jul 20, 202251:26
NETs Get Real May 16, 2020 Season 1 Ep 5 – Leigh-Anne Burns, RD - Diet and Nutrition for NET Patients Part 1

NETs Get Real May 16, 2020 Season 1 Ep 5 – Leigh-Anne Burns, RD - Diet and Nutrition for NET Patients Part 1

Leigh-Anne Burns, RD has practiced medical nutritional therapy for over 20 years.  A specialist in the area of nutrition support, she earned a BS from Northeastern Louisiana University and an MS from Louisiana Technical University.  She spent fifteen years practicing as a Nutritionist for the E. A. Conway LSU Health Sciences Center in Monroe and serving as an Instructor for there LSU School of Medicine in Shreveport, where she cared for the critically ill, including oncology patients. She has dedicated much effort to cancer prevention and early detection. She teaches medical students, residents, and fellows various areas of nutrition and participates in both research and patient care in the area of oncology and cancer prevention. She has specialized in the clinical practice care of oncology patients, spending much of the last seventeen years caring for patients with neuroendocrine carcinoid cancer.

May 16, 202042:50
NETs Get Real May 9, 2020 Season 1 Ep 4 – Part 2 of A Candid Talk with Dr. Aman Chauhan

NETs Get Real May 9, 2020 Season 1 Ep 4 – Part 2 of A Candid Talk with Dr. Aman Chauhan

This interview was recorded live on Zoom with an audience of NET cancer patients and caregivers.

In part 2 of the interview, Dr. Chauhan continues his discussion of issues that impact NET patients and answers live questions directly from patients.

Dr. Aman Chauhan is board certified in internal medicine and specializes in the treatment of neuroendocrine tumors. He is a member of the medical oncology team at the UK Markey Cancer Center dedicated to multidisciplinary evaluation and treatment.

His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and non-small cell lung cancer. As Markey’s director of NET Theranostics, Dr. Chauhan will identify NET patients who qualify for Lutathera® (Lutetium 177 DOTATATE) treatments for gastroenteropancreatic neuroendocrine tumors.

May 09, 202042:24
NETs Get Real May 1, 2020 Season 1 Ep 3 - A Candid Talk with Dr. Aman Chauhan

NETs Get Real May 1, 2020 Season 1 Ep 3 - A Candid Talk with Dr. Aman Chauhan

In this episode, Dr. Chauhan discusses many issues that impact NET patients, including COVID-19.

Dr. Aman Chauhan is board certified in internal medicine and specializes in the treatment of neuroendocrine tumors. He is a member of the medical oncology team at the UK Markey Cancer Center dedicated to multidisciplinary evaluation and treatment.

His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and non-small cell lung cancer. As Markey’s director of NET Theranostics, Dr. Chauhan will identify NET patients who qualify for Lutathera® (Lutetium 177 DOTATATE) treatments for gastroenteropancreatic neuroendocrine tumors.

May 01, 202038:13
NETs Get Real Ep 2 - A Candid Talk with Dr. Eric Liu

NETs Get Real Ep 2 - A Candid Talk with Dr. Eric Liu

Dr. Eric Liu is an internationally-recognized neuroendocrine tumor surgeon with the Rocky Mountain Cancer Centers in Denver, Colorado.

Apr 08, 202018:01
NETs Get Real Episode 1- Let's Talk NETs with Expert Dr. Joseph Dillon

NETs Get Real Episode 1- Let's Talk NETs with Expert Dr. Joseph Dillon

Dr. Joseph Dillon, an endocrinologist and neuroendocrine cancer expert, is part of the faculty at the University of Iowa Holden Comprehensive Cancer Center, a Center of Excellence for the treatment of NETs. In this show he will be answering some critical questions regarding how neuroendocrine cancer patients can receive the best care possible.

Apr 02, 202023:24