Clare Delmar explores issues facing men diagnosed with prostate cancer that are little known, less understood and almost never talked about. A podcast series by The Focal Therapy Clinic. www.thefocaltherapyclinic.co.uk
Simon Lord, personal trainer and cancer rehab specialist, is also a prostate cancer survivor having had successful robotic surgery in 2010. He joins On Focus to discuss the changes and developments he’s observed in diagnostics and treatments for men with prostate cancer and how this impacts the experience of men he works with.
Marcus McKenzie, a teacher from South London who recently underwent prostate surgery after two years spent on Active Surveillance, joins OnFocus to discuss the heightened risk of prostate cancer that black and mixed race men face, how this impacted his experience and what all black and mixed race need to know about managing their prostate health.
Michael Clay came to the Focal Therapy Clinic after having been placed on Active Surveillance at Torbay Hospital in South Devon. Michael’s a 76-year-old retired banker who leads a very active life with his wife and family which, despite his early-stage cancer diagnosis, was being severely compromised by his treatment. He encountered several issues which he feels are very important for all men to hear and understand before they make decisions about treatment for prostate cancer, and he’s joined On Focus to discuss these.
Professor Gordon Wishart joins On Focus to discuss the backlog of cancer referrals, diagnoses and treatments in the NHS and offer some suggestions on ways forward. Professor Wishart is
founder, Chief Medical Officer and CEO of Check4Cancer, a leading early cancer detection and cancer prevention organisation. As the former Director of the Cambridge Breast Unit from 2005-2010, and current Professor of Cancer Surgery at Anglia Ruskin School of Medicine since 2008, Professor Wishart has a strong track record in clinical research and modernisation of cancer diagnosis and treatment, with more than 100 peer-reviewed papers in scientific journals. In 2010 he led a team of clinicians and scientists that developed the PREDICT breast cancer treatment and survival model, now used worldwide.
Dr Michael Sagner, bestselling author of Lifestyle Medicine and a pioneer in preventative healthcare, joins OnFocus to discuss the changing narrative around ageing and outlines that by focusing on prevention, personalisation, prediction and participation men can impact their experiences with prostate cancer
Continence Nurse specialist Jane Simpson, author of the Pelvic Floor Bible, joins On Focus to discuss what men with prostate cancer need to know about continence and what they can do about it.
The Pelvic Floor Bible is available here:
Consultant Urologist Tim Dudderidge joins On Focus to discuss what factors contribute to a patient’s recovery from prostate cancer treatment, and how this varies across treatment options.
He refers to a recent study of patient recovery from focal therapy, evaluated as functional outcomes
Elvin Box, a popular and passionate advocate for men with prostate cancer joins On Focus to discuss learnings from his experience and how he’s taking these forward to improve the experience of others. Diagnosed in 2016, Elvin is a Movember UK ambassador and has written and campaigned extensively on a number of issues impacting men and their families as they experience a diagnosis of prostate cancer and navigate treatment options.
See recent publications from Elvin here:
Lorraine Grover, a Psychosexual Nurse Specialist, joins On Focus to discuss how a prostate cancer diagnosis and treatment impacts sexual identity and sexual relationships. For over 25 years Lorraine has been a passionate driver in helping to improve the way sexuality and sexual function is managed within healthcare. She has expertise in managing male sexual dysfunction and has a special interest in caring for patients diagnosed with prostate cancer (and whenever possible their partners). Sexual difficulties can have both psychological and organic causes and she is able to consider both aspects of management.
Learn more about Lorraine Grover here:
Tony Collier, ambassador, awareness speaker and fundraiser for Prostate Cancer UK, joins On Focus to to share his views on exercise for men with a prostate cancer diagnosis, borne out of his personal experience as a dedicated runner and that of his many supporters and followers on social media.
Dr Asanga Fernando, Consultant Cancer Liaison Psychiatrist and Clinical Director of the Advanced Patient Simulation and Clinical Skills Centre at St George’s University Hospitals NHS Trust, London, joins OnFocus to discuss his work on integrating mental health support with prostate cancer care.
Dr Sam Merriel joins On Focus to discuss how GPs are supporting men in their prostate health and explores some avenues for improvement. Dr Merriel is a GP practicing in North Somerset in SouthWest England. He is also a clinical senior research fellow at the University of Exeter, investigating ways of improving the early diagnosis of cancer in primary care. He has published research on prostate cancer diagnosis and management, and his current Cancer Research UK funded research is exploring the potential of GPs using prostate MRI to aid in the early and accurate diagnosis of prostate cancer.
Alan Doherty, Clinical Director at the Birmingham Prostate Clinic, and recently voted one of the UK’s top ten prostate cancer specialists in a national poll of consultant urologists published in the Daily Mail, joins OnFocus to discuss the recently published study led by Imperial College comparing outcomes of men undergoing focal therapy and radical prostatectomy. Alan has been an innovator, advocate and dedicated practitioner of precision treatments for prostate cancer, and thinks the study’s real impact will be felt amongst men considering Active Surveillance.
Raj Nigam, Consultant Urologist at the Royal Surrey NHS Trust and the Focal Therapy Clinic, joins On Focus to discuss the landmark study led by Imperial College London that was published last week to much acclaim. In both its outcomes, design and impact, this study is a breakthrough in supporting better choice and ultimately better care for men diagnosed with localised prostate cancer.
Tim Dudderidge, Consultant Urologist at Southampton University NHS Trust and the Focal Therapy Clinic joins OnFocus to discuss how clinical trials are designed to advance innovations in clinical practice and how they ultimately bring choice and benefit to patients.
Tim discusses his involvement in the CHRONOS trials which will investigate outcomes of men udergoing focal therapy vs surgery for localised prostate cancer. He also explains how the a registry of men who have received HIFU treatment in the UK is providing a valuable data resource for statistical comparisons of treatments for men with localised prostate cancer, and highlights this week’s publication of a landmark study showing comparable outcomes for men undergoing focal therapy and prostatectomy.
Focal Therapy v Prostatectomy study:
TFTC Consultant Urologist Marc Laniado joins On Focus to discuss the impact of Covid-19 and lockdown on prostate cancer services and patient care. The backlog in diagnostics and treatments for men with prostate cancer is real and a major challenge to the NHS, and men must be aware of what’s available to them.
Tina Woods, founder of Collider Health and author of Live Longer with AI, joins On Focus to discuss the changing narrative around ageing, the emerging science of longevity, and how this could impact conversations around treatment for older men with prostate cancer.
Tina is an acknowledged leader in the fast-growing field of longevity science. Her recent book “Live Longer with AI” is a top seller on Amazon and, as founder of the All Party Parliamentary Group on Longevity at Westminster she is at the heart of government policy on ageing and living well longer.
Colin Stokes MBE is the indefatigable founder and honorary chairman of the Prostate Project, a charity established in 1998 and dedicated to improving the experience and outcomes for men with prostate cancer. Based at the University of Surrey and closely linked to the Royal Surrey Hospital, it has made a significant impact on both research and patient experience with prostate cancer. In this interview Colin emphasises the importance of localism and focus in the work of his charity, and demonstrates how this approach has helped to establish the Royal Surrey and the Stokes Centre for Urology as a world-class centre of excellence in prostate cancer research and practice.
We were also very happy to be listed recently as one of the top prostate cancer podcasts.
Our final interview for 2020 is with Tom Riley, aka Sir Caughtshort, founder of Lockdown Loo, who joins On Focus to discuss the lack of public toilets and how this has caused a public health crisis across the UK. His response was to set up Lockdown Loo, a digital map of available and accessible public toilets. In this interview we discuss how the lack of public toilets discriminates against older folks and, in particular, men with prostate disease, and how it is also becoming a unifying issue for members of the public to with back and demand these facilities be provided.
Download the map here: www.lockdownloo.com
Read our blog here.
Join our facebook discussion here.
Focal Therapy patient Ray Braithwaite discusses the difficult and impersonal experience he underwent immediately following his prostate cancer diagnosis which felt to him like being on a conveyor belt. He ultimately went on to undergo HIFU tithe TFTC Consultant Urologist Tim Dudderidge and felt so strongly about this experience that he published an article in his local newspaper on the Isle of Wight.
He’s also just published a children’s book in time for Christmas, called “A Rather Strange Christmas Day”. Its available here on Amazon.
Journalist and publisher Graham Ogilvy joins On Focus to discuss his recent experience with a prostate cancer diagnosis in Scotland that ultimately led him to seek treatment in England, and offers strong advice for men in Scotland to question the “blunt instruments” that are the default diagnostic and treatment offer there.
Tony Collier, ambassador, awareness speaker and fundraiser for Prostate Cancer UK joins Clare to discuss his campaigns and the messages he wants every man and his loved ones to hear regarding prostate cancer.
In May 2017, while training for an ultra marathon, Tony was told that a groin strain was in fact prostate cancer that had spread to the pelvic bone and was working its way throughout his skeletal system. In his words, “a worst case prognosis of two years was a real shock but I was even more shocked when I discovered that if I’d requested a PSA blood test every year from age 50 I could have had curative treatment. If only I’d known! Now it’s my mission to make sure other men know”.
In recognition of Black History Month, this episode of On Focus builds on the stark fact that black men are diagnosed with prostate cancer at twice the rate of white men, and invites a leader in London’s black community to explore the reasons why.
Jonathan Oloyede is a British Nigerian who trained as a medical doctor and now serves as a full-time missionary and minister in England and Europe. He is founder and leader at City Chapel in East London, which among its many community outreach programmes supports local health initiatives including a man-to-man mentoring project. In this episode, he discusses the challenges that men in his community face regarding their health, and how he is playing a key role in supporting them.
Alan Doherty, Clinical director of the Birmingham Prostate Clinic, discusses how variation in MRI reporting methods affects diagnostic and treatment decisions, and offers advice to patients on ensuring that they are getting best practice from their MRI scan.
Alex González from Sonacare Medical, leading developers of HIFU systems for prostate cancer, explains the origins of HIFU technology and how it has developed to become a powerful non-invasive treatment for prostate cancer.
Chris Lewis, founder of one of the UK’s largest and most influential online cancer communities, joins Clare to discuss how cancer communities are evolving to support many cancer patients, not just as a source of communal solace but as a powerful political and media advocate for patient rights and improved services.
Patient advocate Jackie Reubin discusses women’s and partner’s roles in supporting men with prostate cancer, and the impact these have on their own health and well-being. A video of Jackie and her husband Barry can be seen here.
Prostate cancer survivor and campaigner Gogs Gagnon discusses how writing and promoting his book “Prostate Cancer Strikes: Navigating the Storm” served as a catharsis on his personal journey. Gogs shares insights on a range of learnings and experiences, including how to challenge diagnostic information and treatment recommendations. Gogs has become a social media phenomenon – find him at his website, on Twitter, on YouTube, on Facebook and on Amazon.
Consultant Urologist Marc Laniado discusses the mental health challenges facing men diagnosed with prostate cancer, and explores how these are best managed. In this interview, Marc highlights the anxiety caused by perceived trade offs between curing cancer and losing sexual and urinary functions and explains how focal therapy helps many men deal with this.
Consultant Urologist Tim Dudderidge on how prostate cancer patients in the UK have a right to know their treatment choices, embodied and codified in law through the Montgomery Ruling, and discusses how Covid-19 has impacted prostate care.