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Parkinson's Disease Story Exchange

Parkinson's Disease Story Exchange

By The PD Story Exchange Team

The Parkinson's Disease Story Exchange uplifts unheard voices in and outside of the Parkinson's community. Listen to real conversations where filters are thrown out the door. All so that you can know the nitty, gritty, and the in-between about this disease.
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Parkinson's Pill Bottle | with Brian Alldridge

Parkinson's Disease Story ExchangeJul 10, 2022

00:00
29:59
Parkinson's Pill Bottle | with Brian Alldridge

Parkinson's Pill Bottle | with Brian Alldridge

Brian Alldridge is a renowned reality TV videographer. Brian designed a pill bottle after watching a Parkinson's patients' TikTok where he struggled to grab one of the medications in the container. Brian decided to fix that.

The invention has 3 parts and an easy-to-use function for those with any movement impairment. Alldridge explains the motivation behind it, how to use it, and its impact with me. With a little CAD, a ton of searching, and a huge support from the internet, the TremorSafe bottle flourished. Tune in to hear more about the bottle and where you can find it.

Ideas are a dime a dozen but this one ended up being a major dime. 

For more information about the TremorSafe pill bottle: https://www.tremorsafe.com/

Special thanks to Brian for the wonderful conversation. 

Jul 10, 202229:59
F**K PARKINSONS | with Steve Goldstein

F**K PARKINSONS | with Steve Goldstein

Journalistic instinct and versed writer, New York native and Bethesda resident, Steve Goldstein retraces his story in this 2019 episode. He shares what it means to fight Parkinson's head-on until it gives up. A strategy he uses? Boxing. Listen more to find out how Steve punches his pain away and what he does to stay motivated on and off the ring.

Special thanks to Steve for being one of my favorite interviews to date. 

Read more on Steve's article regarding Title Boxing Classes here: https://bethesdamagazine.com/bethesda-magazine/january-february-2019/glove-up-parkinsons/

Jul 06, 202219:10
We're all mortals | with Ece Bayram, MD, PhD

We're all mortals | with Ece Bayram, MD, PhD

Motor exams, neurological scales, cognitive testing, and observational interviews. We hear over and over how important Parkinson's research is. But what about the people behind it? She vouches to make every patient smile -- at least once. You'll hear from Dr. Ece Bayram. A gravitating force in her field with extensive expertise in movement disorders, neurodegeneration, and Parkinson's Disease, Dr. Bayram talks about the ins-and-outs of participant research and how she's reshaping the archetype of clinical research. Tune in to find out more about how she breaks barriers for patients that mean the most.

Special thanks to Ece, her curiosity, and her research. 

Read publications and more about Dr. Bayram here: https://profiles.ucsd.edu/ece.bayram 


Jun 28, 202226:08
One more knot | with Steven Heller

One more knot | with Steven Heller

Contributing writer for the New York Times, Visual Arts Director, author, designer, and expert in pop culture, Steven Heller is a force to be reckoned with. In this episode, Steven details his experience with Parkinson's Disease, unveils his own life experience, and grasps with reflections he's  undergone since his diagnosis. To the fullest extent, Heller reveals his story in a truthful, insightful dialogue. 

Special thanks to Steven for allowing me to speak with him. 

To learn more about Mr. Heller, visit his website here: http://www.hellerbooks.com/docs/about.html

Jun 12, 202233:01