Welcome back to the show! This episode we sit down with each other to discuss our emotional journey with the announcement of the cancellation of the Novartis gene therapy drug, and we share about some great Rett Syndrome organizations.

Webinar of Dr. Benke's Update of Clinical Trials: https://www.rmrett.org/news-from-rmra/update-on-gene-therapy-trials

Rett organizations we shared about:

International Rett Syndrome Foundation - https://www.rettsyndrome.org/
Girl Power 2 Cure - https://www.girlpower2cure.org/
Rett Syndrome Research Trust - https://reverserett.org/
Rett UK - https://www.rettuk.org/
Rett Syndrome Europe - https://www.rettsyndrome.eu/
Rett Syndrome Association of Australia - https://rettaustralia.org.au/
Ontario Rett Syndrome Association (Canada) - https://www.rett.ca/
Rett Syndrome Association Israel - https://rett.org.il/
Rett South Africa - http://rett-sa.co.za/

Honorable Mentions:

Rett Syndrome Angels (Massachusetts, USA) - https://rsangels.org/
Rocky Mountain Rett Association (Colorado, USA) - https://rmrett.org
Association for the Assistance to Patients with Rett Syndrome (Russia) - http://xn--e1avha.xn--p1ai/
Rett Syndrome-Peru - https://www.facebook.com/rettperu/
Reverse Rett (United Kingdom) - https://www.reverserett.org.uk/
Rett Family Care Center (China) - http://blog.sina.com.cn/rettgirl
Taiwan Rett Syndrome Association - http://rett.org.tw/

Our family Christmas music playlist: https://music.youtube.com/playlist?list=PLwEaQjXGzW1IIWMqz9d9Cw67F4sPDKxNY&feature=share

If you are a newly diagnosed family, you can connect with the International Rett Syndrome Foundation where you can begin connecting with the community. - https://rettsyndrome.org

Subscribe today so that you never miss an episode. And we’ll see you next time!

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18 | Growing our Rett syndrome community, Elizabeth w/ @graceforrett shares stories, and more!

pRETTy happy. | Hope and Rett syndromeBy Sarah and SamJun 28, 2021