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Retina UK

Retina UK

By Retina UK
Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
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Unlock Genetics

Retina UK

Unlock Genetics

Retina UK

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e-Newsletter May/June 2022
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.
05:47
June 08, 2022
Webinar: Technology solutions
This content was recorded during a Retina UK webinar on Thursday 26 May 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK. We are pleased to welcome VisionAid who will be joining us for our upcoming webinar on Technology solutions. VisionAid is a family owned and run business who have been providing solutions to visually impaired people since 1996 and are now one of the largest specialist low vision and blindness product suppliers in the UK. We will be looking at four main areas of technology during the presentation: Optical magnifying glasses vs electronic video magnifiers The pros and cons of traditional optical magnifiers, mobile phones solutions and electronic video magnifiers. Latest Wearable Technology A round-up of the latest wearable video magnifiers which enable handsfree magnification for watching TV, seeing people’s faces, sporting events, cinema, practical tasks (cooking, playing an instrument, gardening etc.) including a remote demonstration of a unit. Transportable video magnification Lightweight video magnifiers providing desktop performance in packages that can easily be moved from one location to another Text-to-speech solutions From the latest handheld and wearable OrCam solutions to feature rich, high performing desktop and computer connectible options (some combined with magnification).
01:04:02
May 27, 2022
Webinar: Usher syndrome mini-series - Part 1
This content was recorded during a Retina UK webinar on Tuesday 24 May 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK. Retina UK are collaborating with Usher Kids UK and CureUsher to deliver a two part webinar mini series about Usher syndrome. The first instalment will see us joined by a panel of sector experts, including Mr Rob Henderson (Moorfields Eye and Great Ormond Street Hospitals), Chloe Joyner (UsherKids UK), Kate Arkell (Retina UK) and Joanne Milne (CureUsher). We will be covering key questions and topic areas including what Usher syndrome is, how to get a diagnosis, both clinical and genetic, and what will happen after this, the importance of regular testing, how to interpret the genetic data and who can help you understand this and how you can connect with other support services. The second instalment of the webinar series will be held on Wednesday 22 June at 7.00pm – more details to follow.
01:30:13
May 26, 2022
Webinar: “Mini-Retina” – A tool to unlock the future of restored vision in retinal blindness
This content was recorded during a Retina UK webinar on Thursday 28 April 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK. This webinar will be presented by Avril Watson. Avril is a PhD candidate of Stem Cell Biology in Professor Majlinda Lako’s group at Newcastle University and also a Scientist at Newcells Biotech Ltd. She is funded through the Marie Curie Actions project StarT which focuses on diagnosis, treatment and modelling of Stargardt disease. Her research is focused on modelling Stargardt disease with mini-retinas generated from patients with late-onset Stargardt disease. Avril has always had an interest in retinal disease and has worked in various retinal research groups in Ireland before moving to the UK to continue her studies. Aside from her interest in retinal research, Avril plays guitar, loves to swim and is a big fan of dogs!   Inherited retinal disorders affect nearly one in 2,000 people in the world. Despite such a high frequency, there are limited treatment options available. There are a number of factors responsible for this. One of the main issues is the difference in early symptoms and also in the progression of disease over time, even in cases where individuals have the same genetic diagnosis. Considering this, each case of retinal blindness turns out to be quite rare, and so it can be difficult to make personalised medicine for each and every person. The trick is to identify common symptoms between different retinal diseases, so that the therapy can be used to help as many people as possible. However, this is easier said than done!   With the help of mini-retinas, we can study these diseases in a patient-specific manner and on a much more in-depth scale. Mini-retinas are essentially mini eyeballs in a dish. They contain all of the cell types in the human retina and we can perform many experiments on these to figure out the missing pieces in the puzzle. This allows us to identify new patterns in retinal disease that drugs can later be developed for. As mini-retinas are very similar to the real thing in human, we can also use them to test out these new treatments to ensure that they do what they’re supposed to. This testing strategy allows therapies to proceed through all the regulatory processes quicker and with more confidence so that they can be one step closer to being used in the clinic to prevent/treat vision loss.   In this webinar, Avril will discuss some of the existing therapies available for retinal disease, and some that are being developed for a number of different retinal conditions, highlighting how mini-retina are important in the drug development process.
48:39
April 29, 2022
E-Newsletter April 2022
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.
08:60
April 08, 2022
Retina UK Sight Loss Survey 2022: Make your voice heard
Would you like to help shape Retina UK’s future? Do you want to ensure decision-makers understand the impact of inherited sight loss? If so we’d love to hear from you. By sharing your views and experiences in our 2022 Sight Loss Survey you can help ensure our current and future activities are relevant and that they respond to your needs. We will also share the findings with other statutory bodies and organisations that can make a difference for people living with inherited sight loss. Take part The survey is open to anyone living in the UK with an inherited sight loss condition. It can take 20 minutes or longer to complete, especially if you are using accessibility software or devices. It is not possible to stop part-way and resume another time, so only start the survey now if you have time to complete it in one session. Otherwise, feel free to exit and come back when you have more time. The deadline is Tuesday 26 April. It can be completed: on paper online (surveymonkey.co.uk/r/SightLossSurvey2022) over the phone. Call 01280 821334 and we will arrange a time to phone you back. You can respond anonymously should you wish.
08:34
April 07, 2022
Webinar: Medical images and what they show with Dr Daniel Jackson from Moorfields Eye Hospital
This content was recorded during a Retina UK webinar on Thursday 31 March 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK. Dr Daniel Jackson will talk about medical imaging of the retina. Detailed imaging of the eye is crucial for the assessment of many eye conditions and retinal disorders in particular. He will be discussing what images you are likely to have during a hospital appointment; how they are taken; why we take them; how we interpret them; and how this helps in the management and treatment of retinal conditions. He will talk through pictures and examples to help illustrate exactly what we are looking at and what it means. Daniel is a Clinical Research Fellow working at Moorfields Eye Hospital and the Institute of Ophthalmology in London. He is currently undertaking a PhD with Professor Mariya Moosajee and works in the adult and children genetics clinics at Moorfields. His background is in Clinical Ophthalmology where he has almost completed his training in the Oxford training programme. He has a special interest in genetic eye disorders, including inherited retinal conditions, paediatrics and glaucoma.
47:53
April 01, 2022
Look Forward - Spring 2022 - Issue 176
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2022 (Issue 176). You can download a copy in PDF and Word format on the Retina UK website: www.RetinaUK.org.uk/publications.
53:59
March 14, 2022
Webinar: Get Active with British Blind Sport
This content was recorded during a Retina UK webinar on Thursday 24 February 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK.  This webinar will be presented by Alex Pitts, National Partnerships Manager & Lead Safeguarding Officer at British Blind Sport. She will talk about: the benefits of sport and physical activity the key objectives of British Blind Sport the BBS Have a Go Days and Active at Home Programme where you can find your local sports and physical activity opportunities Alex is responsible for the development of key partnerships with stakeholders from across the VI sector and sport sector to achieve greater connectivity and widened opportunities for participation of sport for people living with sight loss. Alex has worked with BBS since 2018, previously as BBS’ Participation Officer, and has gained extensive experience within the charity and its sports development objectives.
50:58
February 24, 2022
E-Newsletter February 2022
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334. 
05:04
February 15, 2022
Webinar: Professor Dominic Ffytche - Visual hallucinations and Charles Bonnet syndrome
This content was recorded during a Retina UK webinar on Thursday 27 January 2022. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/Lz0frr1KydQ Professor Ffytche will provide an explanation of what Charles Bonnet Syndrome is, the science behind it, and share some potential coping strategies for people who experience visual hallucinations. Professor Ffytche joined the Department of Old Age Psychiatry at Kings College London in 2006. He is Professor of Visual Psychiatry and Lead Consultant Psychiatrist to the Visual Perceptual Disorder clinic at the South London and Maudsley NHS Foundation Trust, a national specialist service for patients with visual hallucinations. He researches brain mechanisms of vision and how they go wrong to cause visual hallucinations, visual illusions and related symptoms and treatments for such experiences. He has published over 100 articles in the scientific and lay literature with over 4,000 academic citations. He plays a leading role in patient and public education for Charles Bonnet syndrome (visual hallucinations in eye disease) as medical advisor to Esme’s Umbrella and has helped develop information resources on visual hallucinations for the NHS, charity sector and eye-health professionals.
01:02:11
January 28, 2022
E-Newsletter January 2022
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.
05:21
January 24, 2022
Webinar: Dr Salwah Rehman, Clinical trials process
This content was recorded during a Retina UK webinar on Thursday 9 December 2021. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/pLDzECeFrJc Dr Rehman has been involved in running recent clinical trials for inherited sight loss treatments and will give us a general overview of the clinical trials process and practicalities, including issues to consider if you are given the opportunity to take part. There will also be an opportunity to ask questions. Before moving to Oxford to further her experience in research and ophthalmology, Salwah worked as a junior doctor in Greater Manchester at The Royal Bolton Hospital. She is currently working on the ongoing gene therapy trials for choroideremia and RPGR X-linked retinitis pigmentosa under the supervision of Professor Robert MacLaren. Salwah completed her medical studies from the University of Liverpool. There, her interest in research started early and she also received her Master of Research in Clinical Sciences (MRes) degree with distinction. During her master’s degree she undertook a research project with Professor Colin Willoughby at St Paul’s Eye Unit in The Royal Liverpool University Hospital, evaluating corneal biomechanics and biomechanically corrected intraocular pressure, which has won the North of England Ophthalmology Society summer meeting Best Poster award in 2018. Her work exploring transportation efficacy and clinical outcomes of preloaded keratoplasty grafts for corneal transplantation also won a Best Poster award at the Liverpool National Student Research conference and was published in Cornea in 2019.
01:00:49
December 10, 2021
E-Newsletter December 2021
The latest e-Newsletter from Retina UK.
02:52
November 30, 2021
The Big Give Christmas Challenge 2021
Donate now and your gift will be doubled! The Big Give Christmas Challenge is underway. Make your donation to medical research as soon as possible and it will be DOUBLED at no additional cost to you: https://donate.thebiggive.org.uk/campaign/a056900001txvAyAAI Now is such an exciting time for sight loss research - but we can't take our foot off the pedal now, and the pioneering projects we fund are only made possible by your donations. Need help to make your donation, or would like more information? Contact Deborah on 07841 004564 or email fundraising@RetinaUK.org.uk. Spread the word amongst friends and family to help us raise as much money as possible – we’re aiming for £50,000 this year! Thank you for your support - together we can drive progress towards new and effective treatments for inherited sight loss.
04:58
November 30, 2021
Look Forward - Winter 2021 - Issue 175
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2021 (Issue 175). You can download a copy in PDF and Word format on the Retina UK website: www.RetinaUK.org.uk/publications.
01:01:55
November 19, 2021
Webinar: Michael Gilhooley, Optogenetics
This content was recorded during a Retina UK webinar on Wednesday 27 October 2021. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/1DYvRgjwd8A Michael Gilhooley is a clinical lecturer in the department of Genetics, Institute of Ophthalmology University College London and Moorfields Eye Hospital. His research interests include the development of novel therapies for inherited retinal degenerations (optogenetics) and inherited optic neuropathies.  This session introduced the technique of optogenetics and its potential for development into a treatment for IRDs. Optogenetics is the process of expressing light sensitive proteins in cells, such as these surviving cells in the retina, to allow them to react to light independently. It has recently been used for the first time to return some vision to a patient with IRD in Paris as reported in the BBC News.
58:56
November 01, 2021
E-Newsletter October 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/.
05:31
October 15, 2021
Information evening (online): Wales - Wednesday 14 October 2021
Speakers include: Professor Marcela Votruba, Professor and Hon. Consultant in Ophthalmology Dr Nicola Tavener, Genetic Counsellor Dr Paul Cornes Glenn Tookey, CEO, Sight and Sound Presentations will cover: Genetic primer- patterns of inheritance and genetic counselling- especially relevant to inherited retinal dystrophies (IRD) Summary of IRD diseases, genes & overview of current IRD gene therapy and treatment trials Clinical Outcomes Group- How are we going to find new treatments for rare diseases such as IRD? Accessible Technology from Sight and Sound The focus of our Wales information evening is specific to that part of the United Kingdom. Please remember that the process for referrals etc. may not be exactly the same in your home region.
01:52:16
October 14, 2021
Information evening (online), Northern Ireland - Wednesday 29 September 2021
This online information evening was recorded on Wednesday 29 September 2021. The speakers do reference slides. They are available on the YouTube recording of this webinar if required: https://youtu.be/7KptxsuXdUU.  Speakers include:  Miss Julie Silvestri, Clinical Director for Ophthalmic Services at the Belfast Health & Social Care Trust Miss Eibhlin McLoone, Paediatric Ophthalmologist  Dr Alex Yeong SpR Ophthalmology  Dr Shane McKee, Consultant in Genetic Medicine Miss Claire Kirk, Genetic Counsellor, Ophthalmic Services at the Belfast Health & Social Care Trust  Miss Laura Cushley, PhD Student, QUB   Presentations covered:   Updates on genotyping in inherited retinal disorders in both the adult and paediatric populations Inheritance patterns  Unlock Genetics Navigating towns and cities with sight loss
01:53:23
October 01, 2021
Webinar: DNA and RNA base editing tools for Stargardt’s Disease
This webinar features Elena Piotter and was recorded on Tuesday 24 August 2021. Elena does reference slides in her presentation. They are available on the YouTube recording of this webinar if required: https://youtu.be/lQ6SEK-wLZs.. Elena Piotter, a PhD student working in Robert MacLaren's group in the Nuffield Laboratory of Ophthalmology at the University of Oxford, is currently researching DNA and RNA base editing tools aiming to correct pathogenic mutations in ABCA4. Her focuses on gene therapy, CRISPR technology including DNA and RNA base editing, and why this is relevant for Stargardt disease. She is excited to have this research funded by Retina UK and recently ran an UltraChallenge 25km to raise money and show support for Retina UK. There are a number of webinars and online information evenings being held by Retina UK in the autumn of 2021. For more information, visit: https://retinauk.org.uk/info-events.
48:53
September 24, 2021
Webinar: Inflammation and retinal degeneration in retinitis pigmentosa: Can lessons learned in the lab help us identify treatments in the clinic?
This webinar features Roly Megaw and was recorded on Thursday 23 September 2021. Roly does reference slides in his presentation but the content is easy to follow without the slides. Roly Megaw is a clinician scientist. He is a Wellcome Trust funded clinical lecturer at the MRC Human Genetics Unit at the University of Edinburgh and a consultant ophthalmologist in NHS Lothian. Roly undertook his PhD with Charles ffrench-Constant at the Scottish Centre for Regenerative medicine, using induced pluripotent stem cells to model x-linked retinitis pigmentosa, prior to undertaking his clinical fellowship with Graeme Black in Manchester. The webinar is also available on the Retina UK YouTube channel where it includes the slides: https://youtu.be/msbH6QseSBk. There are a number of webinars and online information evenings being held by Retina UK in the autumn of 2021. For more information, visit: https://retinauk.org.uk/info-events. 
01:02:13
September 24, 2021
E-Newsletter September 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/.
09:03
September 15, 2021
E-Newsletter August 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/.
05:14
August 16, 2021
The difference we made in 2020
Retina UK Impact Report illustrating the difference we made in 2020.
22:26
August 11, 2021
E-Newsletter July 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/.
06:37
July 26, 2021
In conversation with Steve Bate MBE
Gold medal winning paralympian and Retina UK Ambassador Steve Bate MBE talks to Head of Fundraising, Deborah Laing in the run up to the 2020 Paralympics in Tokyo. 
21:04
July 15, 2021
Look Forward - Summer 2021 - Issue 174
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2021 (Issue 174). You can download a copy in PDF and Word format on the Retina UK website: www.RetinaUK.org.uk/publications.
52:34
June 25, 2021
Unlock Genetics - a recording of the content on our website
This content has been taken from the Unlock Genetics website: www.RetinaUK.org.uk/genetics. High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, Unlock Genetics (www.RetinaUK.org.uk/genetics). The site aims to increase the level of awareness of genetic testing and genetic counselling amongst people living with inherited sight loss conditions, empowering them to make fully informed decisions about their lives, healthcare and family planning. It provides clear, trustworthy and balanced information and has been developed with significant input from experts in the field and also those who live with inherited sight loss.
01:44:19
June 22, 2021
E-Newsletter May 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/.
06:34
May 28, 2021
An overview of current research into inherited sight loss
Retina UK Research Development Manager gives a broad update on what's happening in the research world. This talk was originally made in the latter part of 2020 to the Retina UK Local Peer Support Groups.
18:52
May 19, 2021
E-Newsletter April 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/. 
06:38
April 23, 2021
Unlock Genetics
The different tracks within this episode feature Retina UK Research Development Manager Kate Arkell in conversation with Georgina Hall, Consultant Genetic Counsellor at the Manchester Centre for Genomic Studies about why you might consider getting a genetic test. It is followed by Retina UK Information and Support Manager Denise, who speaks to Georgina about the practicalities of getting a genetic test. Finally Bhavini and Martin share their very different experiences of genetic testing and counselling. Find out more by visiting our website: www.RetinaUK.org.uk/genetics.
39:07
April 21, 2021
Retina UK Professionals' Conference - April 2021
The Conference took place on Friday 16 April 2021. It was held online due to restrictions currently in place. The programme is available to download as follows: PDF format: https://retinauk.org.uk/wp-content/uploads/2021/04/Professionals-Conf-2021-FINAL-2.pdf Word format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-Professionals-Conference2021.docx
03:50:22
April 21, 2021
Retina UK Annual Conference - April 2021
The Conference took place on Saturday 17 April 2021. It was held online due to restrictions currently in place. The programme is available to download as follows: Programme in PDF format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-annual-conf-prog_2021-FINAL-2.pdf Programme in Word format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-Annual-Conference2021.docx The programme is also available in audio format on this channel.
04:07:25
April 21, 2021
Retina UK Annual Conference & AGM 2021 - Programme
Annual Conference - 17 April 2021, starting at 9.30am with the AGM, followed by the Conference at 10.00am. More information is available on the Retina UK website at www.RetinaUK.org.uk/annual-conference.
20:17
April 15, 2021
E-Newsletter March 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/
08:39
March 29, 2021
Look Forward - Spring 2021 - Issue 173
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2021 (Issue 173)
53:34
February 24, 2021
From Small Beginnings: an interview with Lynda Cantor, founder and Honorary President of Retina UK
A written article based on this recorded interview is available in the Spring 2021 edition of our Newsletter, Look Forward: https://retinauk.org.uk/information-support/publications/
16:18
February 24, 2021
E-Newsletter January 2021
A PDF copy is available here: https://retinauk.org.uk/information-support/publications/
07:47
January 25, 2021
E-Newsletter December 2020
Latest Retina UK Podcast features Luxturna treatment Retina UK Annual Conference The Big Give Christmas Challenge Charles Bonnet Syndrome Patient Information Event Local groups Christmas Raffle Tech tip Sight Village news 10 for 10 Virtual Challenge
07:14
December 04, 2020
First NHS treatment for an inherited retinal dystrophy - Retina UK speaks to three recipients
Retina UK Research Development Manager Kate Arkell speaks to three of the first people to receive the Luxturna (voretigene neparvovec) treatment in the UK. Jake, Lee and Matt all received the Luxturna gene therapy at the start of 2020. They all have two faulty copies of the RPE65 gene and are living with Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP.
33:25
November 30, 2020
Look Forward - Winter 2020 - Issue 172
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2020 (Issue 172)
01:05:21
November 02, 2020
E-Newsletter October 2020
This edition includes details about: The Retina UK Christmas raffle Usher Kids UK family Zoom calls Charles Bonnet syndrome patient information event The difference we made in 2019 Virgin Money London Marathon 2021 Volunteers needed to test new memory stick project
06:21
October 13, 2020
The new MyEyeSite application and how it will give people living with rare eye conditions ownership of their own digital medical data
Retina UK Research Manager, Kate Arkell, speaks to Professor Andrew Webster, Professor of Molecular Ophthalmology at University College London and Consultant Ophthalmologist at Moorfields Eye Hospital; Dr Nikolas Pontikos, Computational Scientist, currently a Eye Moorfields Charity career development Fellow at University College London and Nick Nettleton, Founder and CEO at Loft Digital. The MyEyeSite application aims to give people with living with rare eye conditions ownership of their own digital medical data. https://myeyesite.health/ 
34:35
October 06, 2020
Impact Report 2019
Thanks to you ... The impact we made in 2019
03:42
September 22, 2020
E-Newsletter - September 2020
This E-Newsletter includes information about: Our BBC Lifeline appeal Virtual local group meetings Research funding Royal Parks half marathon Volunteers needed to test new app Christmas raffle Audio material Feedback
06:56
September 15, 2020
Look Forward - Summer 2020 - Issue 171
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2020 (Issue 171)
46:49
July 20, 2020
Retina UK COVID-19 response - 17 March 2020
This is a voice recording of an article posted on the Retina UK website: https://retinauk.org.uk/general-news/retina-uk-covid-19-response/
02:37
March 17, 2020
Look Forward - Spring 2020 - issue 170
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2020 (Issue 170)
51:35
February 28, 2020
Look Forward - Winter 2019 - Issue 169
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2019 (Issue 169)
45:58
November 18, 2019
Retina UK Annual Conference - September 2019
Listen to the audio recordings from the Retina UK Annual Conference on 28 September 2019 in Milton Keynes.
04:24:11
September 28, 2019
Retina UK Professionals' Conference 2019
Listen to the audio recordings from the Retina UK Professionals' Conference on Friday 27 September 2019 in Milton Keynes
03:45:57
September 27, 2019
Look Forward - Summer 2019 - Issue 168
The latest newsletter from Retina UK containing updates from all areas of the charity; the latest research news; our Annual Conference and other events; the information and support we provide and the difference this makes. None of this would be possible without your support and we also celebrate the many ways you get involved.
45:21
August 13, 2019
Findings from sight loss survey 2019
National sight loss charity Retina UK has published its unique insight into the experiences of those living inherited retinal conditions. Almost 1,000 people completed a survey earlier this year to help the charity understand the real-life experiences, challenges and expectations of those living with these conditions. Tina Houlihan, Chief Executive, said: “We are an organisation entirely focussed on people living with inherited retinal dystrophies; to make the biggest difference for our community and have the right priorities we need to constantly learn more about real-life experiences, challenges and expectations of families living with these conditions.”
49:42
July 24, 2019
Look Forward - Spring 2019 - Issue 167
Our printed Newsletter, Look Forward, is produced three times per year. It is available in print, on audio, in digital format and also in Braille. For more information and to subscribe to Look Forward, please visit:  https://retinauk.org.uk/ 
51:18
April 16, 2019
Look Forward - Winter 2018 - Issue 166
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2018 (Issue 166)
41:44
November 12, 2018
Look Forward - Summer 2018 - Issue 165
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2018 (Issue 165)
40:47
August 13, 2018
RPFB Annual Conference 2018
Below are recordings from the RP Fighting Blindness (now Retina UK) Annual Conference held on 23 June 2018. Welcome & Intro Dr Stephen Hicks presentation Victoria Claire presentation Dr Laura Brady presentation Voice Control presentation Dr Mariya Moosajee presentation Prof Susie Downes presentation & Prof John Marshall Award OxSight Workshop RP Question time & Conference Close Annual General Meeting
04:39:38
June 23, 2018
Look Forward - Spring 2018 - Issue 164
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2018 (Issue 164)
42:02
May 04, 2018
London Information Day - 7 December 2017
Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) London Information Day held on 07 December 2017. London Information Day – Part 1 London Information Day – Part 2 London Information Day – Part 3
03:39:11
December 07, 2017
Look Forward - Winter 2017 - Issue 163
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2017 (Issue 163)
37:24
November 08, 2017
Look Forward - Summer 2017 - Issue 162
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2017 (Issue 162)
44:46
September 06, 2017
RP Fighting Blindness Annual Conference 2017
24 June 2017 Exhibition, stands and registration open Convene and Conference Welcome (5 mins) Chairman, Don Grocott Presentation one: Small Molecule Therapies (30 mins) Professor Mike Cheetham Presentation two: Changing the Final Destination – correcting the mistakes in our genetic make up to prevent disease progression (20 mins) Professor Tara Moore Tea and coffee break (40 mins) with a chance to view the stands and chat Please reconvene promptly for the second session Genetic Testing in RP – an update (30 minutes) Professor Susie Downes The John Marshall Award – RP Scientist of the Year presentation (15 mins) Presented by Professor John Marshall MBE, RPFB Trustee Chief Executive’s Conference Address (15 minutes) Tina Houlihan, Chief Executive, RP Fighting Blindness Lunch (55 mins) - Lunch is provided and the stands will remain open Please reconvene promptly for the afternoon session Inspirational speaker: Steve Bate MBE (30 mins) Workshop Sessions (60 mins) Genetic Management (Held in main room) Retinal Implants (Held in room two) Benefits (Held in room three) RNIB Connect (Held in room four) Employment (Held in room five) Tea and Coffee Break (30 mins) with a chance to view the stands and chat Please reconvene promptly for the final session RP Question Time (60 mins) Chaired by Professor John Marshall MBE and joined by this morning’s medical speakers Chairman’s Conference Address (10 mins) Don Grocott, Chairman of the Board Annual General Meeting (35 mins) The formal business matters of the charity Non-members are welcome to attend but are unable to speak or vote on any resolution
04:15:14
June 24, 2017
Families Conference 5 - 7 May 2017
Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) Families Conference, held 5th to the 7th of May 2017. Welcome & Introduction  Inherited Retinal Dystrophies and Syndromes – Prof Andrew Webster  What can an alliance of patients and professionals achieve – Prof Graeme Black Medical Q & A The current clinic experience for families – Rob Henderson The Genetic Eye Clinic experience – Theo Gale Life beyond diagnosis – Laura Ross How families cope and provide the right support for their children – Bo Anderson Q & A Translating Science into Medicine – Dr Mariya Moosajee Science Q & A A Family Story – Chloe Joyner & Bhavini Makwana Pathway to support for education – Wendy Sainsbury The Appreciative Enquiry Session (part 1) The Appreciative Enquiry Session (part 2) The Appreciative Enquiry Session (part 3) The Appreciative Enquiry Session (part 4) The Appreciative Enquiry Session (part 5) The Appreciative Enquiry Session (part 6)
06:37:55
May 08, 2017
Look Forward - Spring 2017 - Issue 161
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2017 (Issue 161)
41:27
April 18, 2017
Look Forward - Winter 2016 - Issue 160
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2016 (Issue 160)
42:04
November 14, 2016
Aberdeen Patient Information Day - 15 September 2016
Below are recordings and copies of the presentations from the RP Fighting Blindness Aberdeen Patient Information Day held on 15 September 2016. Aberdeen Patient Information Day – Part 1 Aberdeen Patient Information Day – Part 2 Aberdeen Patient Information Day – Part 3 Aberdeen Patient Information Day – Part 4 Aberdeen Patient Information Day – Part 5
02:24:55
September 15, 2016
Look Forward - Summer 2016 - Issue 159
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2016 (Issue 159)
46:30
May 12, 2016
Look Forward - Spring 2016 - Issue 158
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2016 (Issue 158)
42:50
February 29, 2016
Look Forward - Winter 2015 - Issue 157
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2015 (Issue 157)
35:23
December 14, 2015
Look Forward - Summer 2015 - Issue 155
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2015 (Issue 155)
52:52
May 29, 2015
Look Forward - Spring 2015 - Issue 154
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2015 (Issue 154)
44:24
February 26, 2015
Look Forward - Winter 2014 - Issue 153
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2014 (Issue 153)
47:33
December 01, 2014
Look Forward - Summer 2014 - Issue 151
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2014 (Issue 151)
54:37
May 28, 2014
Look Forward April 2014 (issue 150)
The print edition of this newsletter is available on Issu: https://issuu.com/home/published/150spring2014
56:43
April 01, 2014
Look Forward - Winter 2013 - Issue 149
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2013 (Issue 149)
44:28
November 29, 2013
Look Forward - Autumn 2013 - Issue 148
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2013 (Issue 148)
43:46
August 30, 2013
Look Forward Issue 146 (Spring 2013)
Contents include: RP Awards Letter from the Chief Executive Gene therapy update Olympic values award for Toby Rhodopsin RP Project: the sequel Retinal implant approved by FDA Retinal implant AG study results More than just positive spin The RP tandem challenge Round the island walk Carrots night walk 2013 New York marathon The RP Conference 2013 Conveting the constitution Meet the researcher Changing faces at RP Fighting Blindness 'Team Finlay' running for RP research The RP Fighting Blindness short story competition 2013
01:00:54
March 01, 2013
Look Forward Winter 2012 - Issue 145
Contents include: The Gene Team appeal Letter from the Chief Executive Second Sight milestone for people with RP New source for stem cells may help save sight Lottery funded project ends Neurotech announce results of clinical study Carole Holmes Run for RP Fighting Blindness! Marathon girl Easy fundraising Ways of seeing Stars of our community The power of dance Outreach update RAG weekend 2013 Isle of Wight walk to save sight RPFB membership
48:05
December 01, 2012
Look Forward Issue 144 (Autumn 2012)
Contents include: Retina International World Congress Letter from the Chief Executive The RP Conference 2012 Charity of the Year Running events Stars of our community Outreach update Olympic torchbearers shine a light Jeans of Genes
46:51
September 01, 2012
Look Forward Spring 2012 (Issue 142)
Contents include: £1/4m boost for RPFB Letter from the Chief Executive Trustees approve research grants ACT report stem cells as 'safe' Inherited blindness: new genetic testing Treatment: the dangers of misinformation Carrots nightwalk - see London in the dark 2012 High achiever Driving RPYP The RP Conference 2012 RP Awards 2012 We need you Outreach update Running events Prize draw Retina International congress 2012 Stars of our community
42:36
March 01, 2012
My Vision of Hope - A remarkable story
by Lynda Cantor with Yvonne Higgins Read by Hilary and Geoff Strutt
05:29:11
June 01, 2006
BRPS Newsletter - Winter 2004
The British Retinitis Pigmentosa Society newsletter.
30:23
December 01, 2004
BRPS newsletter - Autumn 2004
Newsletter from the British Retinitis Pigmentosa Society
01:15:00
September 01, 2004
BRPS newsletter - Summer 2004
Newsletter from the British Retinitis Pigmentosa Society
01:07:33
July 01, 2004
BRPS newsletter - February 2004
Newsletter from the British Retinitis Pigmentosa Society
01:06:41
February 26, 2004
BRPS newsletter - December 2003
the latest newsletter from the British Retinitis Pigmentosa Society
01:14:25
December 01, 2003
BRPS newsletter - Autumn 2003
Newsletter from The British Retinitis Pigmentosa Society
01:05:35
September 01, 2003
Look Forward - Summer 2003
Newsletter from Retina UK
01:05:18
July 24, 2003
RPFB newsletter - March 2003
Newsletter from RP Fighting Blindness
01:08:25
March 01, 2003
Look Forward - Winter 2002
A newsletter dating back to Winter 2002
01:06:44
November 29, 2002
BRPS Newsletter - September 2002
Newsletter from the British Retinitis Pigmentosa Society (BRPS)
01:17:17
September 11, 2002