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Retina UK

Retina UK

By Retina UK
Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
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Unlock Genetics

Retina UK

Unlock Genetics

Retina UK

1x
E-Newsletter May 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/.
06:34
May 28, 2021
An overview of current research into inherited sight loss
Retina UK Research Development Manager gives a broad update on what's happening in the research world. This talk was originally made in the latter part of 2020 to the Retina UK Local Peer Support Groups.
18:52
May 19, 2021
E-Newsletter April 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/. 
06:38
April 23, 2021
Unlock Genetics
The different tracks within this episode feature Retina UK Research Development Manager Kate Arkell in conversation with Georgina Hall, Consultant Genetic Counsellor at the Manchester Centre for Genomic Studies about why you might consider getting a genetic test. It is followed by Retina UK Information and Support Manager Denise, who speaks to Georgina about the practicalities of getting a genetic test. Finally Bhavini and Martin share their very different experiences of genetic testing and counselling. Find out more by visiting our website: www.RetinaUK.org.uk/genetics.
39:07
April 21, 2021
Retina UK Professionals' Conference - April 2021
The Conference took place on Friday 16 April 2021. It was held online due to restrictions currently in place. The programme is available to download as follows: PDF format: https://retinauk.org.uk/wp-content/uploads/2021/04/Professionals-Conf-2021-FINAL-2.pdf Word format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-Professionals-Conference2021.docx
03:50:22
April 21, 2021
Retina UK Annual Conference - April 2021
The Conference took place on Saturday 17 April 2021. It was held online due to restrictions currently in place. The programme is available to download as follows: Programme in PDF format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-annual-conf-prog_2021-FINAL-2.pdf Programme in Word format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-Annual-Conference2021.docx The programme is also available in audio format on this channel.
04:07:25
April 21, 2021
Retina UK Annual Conference & AGM 2021 - Programme
Annual Conference - 17 April 2021, starting at 9.30am with the AGM, followed by the Conference at 10.00am. More information is available on the Retina UK website at www.RetinaUK.org.uk/annual-conference.
20:17
April 15, 2021
E-Newsletter March 2021
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/
08:39
March 29, 2021
Look Forward - Spring 2021 - Issue 173
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2021 (Issue 173)
53:34
February 24, 2021
From Small Beginnings: an interview with Lynda Cantor, founder and Honorary President of Retina UK
A written article based on this recorded interview is available in the Spring 2021 edition of our Newsletter, Look Forward: https://retinauk.org.uk/information-support/publications/
16:18
February 24, 2021
E-Newsletter January 2021
A PDF copy is available here: https://retinauk.org.uk/information-support/publications/
07:47
January 25, 2021
E-Newsletter December 2020
Latest Retina UK Podcast features Luxturna treatment Retina UK Annual Conference The Big Give Christmas Challenge Charles Bonnet Syndrome Patient Information Event Local groups Christmas Raffle Tech tip Sight Village news 10 for 10 Virtual Challenge
07:14
December 4, 2020
First NHS treatment for an inherited retinal dystrophy - Retina UK speaks to three recipients
Retina UK Research Development Manager Kate Arkell speaks to three of the first people to receive the Luxturna (voretigene neparvovec) treatment in the UK. Jake, Lee and Matt all received the Luxturna gene therapy at the start of 2020. They all have two faulty copies of the RPE65 gene and are living with Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP.
33:25
November 30, 2020
Look Forward - Winter 2020 - Issue 172
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2020 (Issue 172)
01:05:21
November 2, 2020
E-Newsletter October 2020
This edition includes details about: The Retina UK Christmas raffle Usher Kids UK family Zoom calls Charles Bonnet syndrome patient information event The difference we made in 2019 Virgin Money London Marathon 2021 Volunteers needed to test new memory stick project
06:21
October 13, 2020
The new MyEyeSite application and how it will give people living with rare eye conditions ownership of their own digital medical data
Retina UK Research Manager, Kate Arkell, speaks to Professor Andrew Webster, Professor of Molecular Ophthalmology at University College London and Consultant Ophthalmologist at Moorfields Eye Hospital; Dr Nikolas Pontikos, Computational Scientist, currently a Eye Moorfields Charity career development Fellow at University College London and Nick Nettleton, Founder and CEO at Loft Digital. The MyEyeSite application aims to give people with living with rare eye conditions ownership of their own digital medical data. https://myeyesite.health/ 
34:35
October 6, 2020
Impact Report 2019
Thanks to you ... The impact we made in 2019
03:42
September 22, 2020
E-Newsletter - September 2020
This E-Newsletter includes information about: Our BBC Lifeline appeal Virtual local group meetings Research funding Royal Parks half marathon Volunteers needed to test new app Christmas raffle Audio material Feedback
06:56
September 15, 2020
Look Forward - Summer 2020 - Issue 171
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2020 (Issue 171)
46:49
July 20, 2020
Retina UK COVID-19 response - 17 March 2020
This is a voice recording of an article posted on the Retina UK website: https://retinauk.org.uk/general-news/retina-uk-covid-19-response/
02:37
March 17, 2020
Look Forward - Spring 2020 - issue 170
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2020 (Issue 170)
51:35
February 28, 2020
Look Forward - Winter 2019 - Issue 169
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2019 (Issue 169)
45:58
November 18, 2019
Retina UK Annual Conference - September 2019
Listen to the audio recordings from the Retina UK Annual Conference on 28 September 2019 in Milton Keynes.
04:24:11
September 28, 2019
Retina UK Professionals' Conference 2019
Listen to the audio recordings from the Retina UK Professionals' Conference on Friday 27 September 2019 in Milton Keynes
03:45:57
September 27, 2019
Look Forward - Summer 2019 - Issue 168
The latest newsletter from Retina UK containing updates from all areas of the charity; the latest research news; our Annual Conference and other events; the information and support we provide and the difference this makes. None of this would be possible without your support and we also celebrate the many ways you get involved.
45:21
August 13, 2019
Findings from sight loss survey 2019
National sight loss charity Retina UK has published its unique insight into the experiences of those living inherited retinal conditions. Almost 1,000 people completed a survey earlier this year to help the charity understand the real-life experiences, challenges and expectations of those living with these conditions. Tina Houlihan, Chief Executive, said: “We are an organisation entirely focussed on people living with inherited retinal dystrophies; to make the biggest difference for our community and have the right priorities we need to constantly learn more about real-life experiences, challenges and expectations of families living with these conditions.”
49:42
July 24, 2019
Look Forward - Spring 2019 - Issue 167
Our printed Newsletter, Look Forward, is produced three times per year. It is available in print, on audio, in digital format and also in Braille. For more information and to subscribe to Look Forward, please visit:  https://retinauk.org.uk/ 
51:18
April 16, 2019
Look Forward - Winter 2018 - Issue 166
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2018 (Issue 166)
41:44
November 12, 2018
Look Forward - Summer 2018 - Issue 165
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2018 (Issue 165)
40:47
August 13, 2018
RPFB Annual Conference 2018
Below are recordings from the RP Fighting Blindness (now Retina UK) Annual Conference held on 23 June 2018. Welcome & Intro Dr Stephen Hicks presentation Victoria Claire presentation Dr Laura Brady presentation Voice Control presentation Dr Mariya Moosajee presentation Prof Susie Downes presentation & Prof John Marshall Award OxSight Workshop RP Question time & Conference Close Annual General Meeting
04:39:38
June 23, 2018
Look Forward - Spring 2018 - Issue 164
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2018 (Issue 164)
42:02
May 4, 2018
London Information Day - 7 December 2017
Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) London Information Day held on 07 December 2017. London Information Day – Part 1 London Information Day – Part 2 London Information Day – Part 3
03:39:11
December 7, 2017
Look Forward - Winter 2017 - Issue 163
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2017 (Issue 163)
37:24
November 8, 2017
Look Forward - Summer 2017 - Issue 162
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2017 (Issue 162)
44:46
September 6, 2017
RP Fighting Blindness Annual Conference 2017
24 June 2017 Exhibition, stands and registration open Convene and Conference Welcome (5 mins) Chairman, Don Grocott Presentation one: Small Molecule Therapies (30 mins) Professor Mike Cheetham Presentation two: Changing the Final Destination – correcting the mistakes in our genetic make up to prevent disease progression (20 mins) Professor Tara Moore Tea and coffee break (40 mins) with a chance to view the stands and chat Please reconvene promptly for the second session Genetic Testing in RP – an update (30 minutes) Professor Susie Downes The John Marshall Award – RP Scientist of the Year presentation (15 mins) Presented by Professor John Marshall MBE, RPFB Trustee Chief Executive’s Conference Address (15 minutes) Tina Houlihan, Chief Executive, RP Fighting Blindness Lunch (55 mins) - Lunch is provided and the stands will remain open Please reconvene promptly for the afternoon session Inspirational speaker: Steve Bate MBE (30 mins) Workshop Sessions (60 mins) Genetic Management (Held in main room) Retinal Implants (Held in room two) Benefits (Held in room three) RNIB Connect (Held in room four) Employment (Held in room five) Tea and Coffee Break (30 mins) with a chance to view the stands and chat Please reconvene promptly for the final session RP Question Time (60 mins) Chaired by Professor John Marshall MBE and joined by this morning’s medical speakers Chairman’s Conference Address (10 mins) Don Grocott, Chairman of the Board Annual General Meeting (35 mins) The formal business matters of the charity Non-members are welcome to attend but are unable to speak or vote on any resolution
04:15:14
June 24, 2017
Families Conference 5 - 7 May 2017
Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) Families Conference, held 5th to the 7th of May 2017. Welcome & Introduction  Inherited Retinal Dystrophies and Syndromes – Prof Andrew Webster  What can an alliance of patients and professionals achieve – Prof Graeme Black Medical Q & A The current clinic experience for families – Rob Henderson The Genetic Eye Clinic experience – Theo Gale Life beyond diagnosis – Laura Ross How families cope and provide the right support for their children – Bo Anderson Q & A Translating Science into Medicine – Dr Mariya Moosajee Science Q & A A Family Story – Chloe Joyner & Bhavini Makwana Pathway to support for education – Wendy Sainsbury The Appreciative Enquiry Session (part 1) The Appreciative Enquiry Session (part 2) The Appreciative Enquiry Session (part 3) The Appreciative Enquiry Session (part 4) The Appreciative Enquiry Session (part 5) The Appreciative Enquiry Session (part 6)
06:37:55
May 8, 2017
Look Forward - Spring 2017 - Issue 161
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2017 (Issue 161)
41:27
April 18, 2017
Look Forward - Winter 2016 - Issue 160
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2016 (Issue 160)
42:04
November 14, 2016
Aberdeen Patient Information Day - 15 September 2016
Below are recordings and copies of the presentations from the RP Fighting Blindness Aberdeen Patient Information Day held on 15 September 2016. Aberdeen Patient Information Day – Part 1 Aberdeen Patient Information Day – Part 2 Aberdeen Patient Information Day – Part 3 Aberdeen Patient Information Day – Part 4 Aberdeen Patient Information Day – Part 5
02:24:55
September 15, 2016
Look Forward - Summer 2016 - Issue 159
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2016 (Issue 159)
46:30
May 12, 2016
Look Forward - Spring 2016 - Issue 158
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2016 (Issue 158)
42:50
February 29, 2016
Look Forward - Winter 2015 - Issue 157
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2015 (Issue 157)
35:23
December 14, 2015
Look Forward - Summer 2015 - Issue 155
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2015 (Issue 155)
52:52
May 29, 2015
Look Forward - Spring 2015 - Issue 154
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2015 (Issue 154)
44:24
February 26, 2015
Look Forward - Winter 2014 - Issue 153
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2014 (Issue 153)
47:33
December 1, 2014
Look Forward - Summer 2014 - Issue 151
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2014 (Issue 151)
54:37
May 28, 2014
Look Forward - Winter 2013 - Issue 149
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2013 (Issue 149)
44:28
November 29, 2013
Look Forward - Autumn 2013 - Issue 148
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2013 (Issue 148)
43:46
August 30, 2013
My Vision of Hope - A remarkable story
by Lynda Cantor with Yvonne Higgins Read by Hilary and Geoff Strutt
05:29:11
June 1, 2006