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Caregiver Chronicles

Caregiver Chronicles

By Sarah Brown
This is the story of my personal and professional life as a caregiver. I’ve been a CNA for 15+ years and have 2 children on the autism spectrum. In addition to that I’ve cared for family members with dementia. It can be crazy and overwhelming at times but caregiving is my life. This is our story.
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March 2022 Family Update
In this episode, Sarah and Jeremy give a family update. They cover mask mandates being lifted in schools, Joey's recent battles with illness, Remy joining the track team, Jeremy's battle with long Covid and Sarah's personal healing journey. Plus, they look ahead to what's coming up in April on "Caregiver Chronicles." Remember, We are affiliated with AngelSense. If you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
26:29
March 27, 2022
Oh the Stories We Tell (with special guest Chris Templeton)
In this episode, Sarah interviews Chris Templeton from "Oh the Stories We Tell" about his unexpected journey as a caregiver. He also shares his model to create more meaning and happiness in your life. Which can be beneficial for any caregiver Check it out at www.ohthestorieswetell.com Remember, We are affiliated with AngelSense. If you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
58:07
March 20, 2022
Deep Vibes (with special guest Federico Allegro)
In this week's episode, Sarah and Jeremy interview Federico Allegro, one of the founders of Deep Vibes. Deep Vibes is an app designed to help families and caregivers of dementia patients. To learn more about Deep Vibes, you can go to their website, www.deepvibes.ai We are affiliated with AngelSense. If you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
22:06
March 13, 2022
Greg Locke and Autism Controversy
In this week's episode, Sarah and Jeremy tackle the autism controversy brought by Tennessee pastor Greg Locke who asserted that autistic children are really possessed by demons. We are affiliated with AngelSense. If you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
24:37
March 06, 2022
February 2022 Family Update
In this episode, Sarah and Jeremy catch you up on everything going on with the family from Joey's increased stemming to Remy's anxiety issues and a Valentine's date night. Plus, they update you on some changes coming to the podcast due to changing work schedules. We are affiliated with AngelSense. If you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
27:05
February 27, 2022
Happy Healthy Caregiver (with special guest Elizabeth Miller)
In this episode, Sarah interviews the Happy Healthy Caregiver herself, Elizabeth Miller, about her caregiving journey and advice she has for other caregivers. Links to some of the things discussed in this episode: Daughterhood Circles - https://www.daughterhood.org/new-circle-page-2/ CareYears Training Academy – if people want to use their experience to become a Certified Caregiving Consuitant (i.e. coach) - https://bit.ly/CareYearsCCC Happy Health Caregiver coach services- https://happyhealthycaregiver.com/product-category/caregiver-coaching/ We are affiliated with AngelSense. If you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
40:05
February 20, 2022
AngelSense (with special guest Jeannie Callahan)
In this week's episode, we are joined by Jeannie Callahan from AngelSense to discuss the GPS tracking system that we use on our son and how it can help give parents of special needs kids a sense of ease. We are affiliated with AngelSense. If you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
30:10
February 13, 2022
Cannabis Nursing Solutions (with special guest Ashley Wynn-Grimes)
In this episode, Sarah interviews Ashley Wynn-Grimes, founder of Cannabis Nursing Solutions, about how cannabis can be used in healthcare, who may need it and who shouldn't use it, as well as tackling the stigma that surrounds cannabis. For more information, feel free to contact Cannabis Nursing Solutions at: cannabisnursingsolutions@gmail.com Plus, if you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
36:30
February 06, 2022
CircleOf (with special guests Alanna McLeod and Kerry Lange)
This week, Sarah interviews Alanna McLeod and Kerry Lange from the app, CircleOf, about how it can help all caregivers and possibly make their lives easier. Check it out at www.CircleOf.com. Plus, if you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
36:06
January 30, 2022
Driving With Autism (with special guest Andrew Arboe)
In this episode, Sarah is joined by Andrew Arboe to discuss "Driving With Autism," a program he runs to help autistic people who are capable of driving learn what they need to know to drive. Check out some of the links below:Autism Driving Prep Education Classes | Driving With Autism Driving with Autism - Home | Facebook https://www.linkedin.com/company/autismdriving Driving With Autism (@drivingwithautism) • Instagram photos and videos Plus, if you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
31:09
January 23, 2022
Story Time: Joey's Foot
In this episode, Sarah and Jeremy discuss Joey's recent foot injury and visiting the hospital with a nonverbal child during a pandemic. Plus, if you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
20:13
January 17, 2022
AAC Devices (with special guest Renee Toper)
In this week's episode, Sarah and Jeremy are joined by AAC advocate Renee Toper to discuss the importance of these devices for people who are nonverbal or who are limited verbally. Plus, if you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
51:20
January 09, 2022
2021 Year In Review
In this episode, Sarah and Jeremy recap everything that happened with Caregiver Chronicles in 2021, including major guests as well highs and lows. Plus, they preview some of the upcoming events for 2022. Plus, if you are looking for a GPS tracker to help with a family member who may be an elopement risk, please check out AngelSense at https://www.angelsense.com/?ref=sarahstelmachbrown
23:31
January 02, 2022
Holiday Gift Giving for Kids on the Spectrum
In this episode, Sarah and Jeremy look at some tips for giving gifts to kids on the autism spectrum and why traditional gifts might not be the right presents for them.
22:19
December 20, 2021
Profound Autism
In this episode, we discuss a recent article in "Psychology Today" calling for a label of "Profound Autism" for those on the spectrum in more dir need of services.
25:56
December 13, 2021
New Routines and Adjustments
In this episode, Sarah and Jeremy discuss new routines, adjustments and some big wins with Joey.
26:53
December 06, 2021
COVID Recovery and Changes Are Coming
In this episode, Sarah and Jeremy are back to discuss the recent COVID battles for Jeremy, Remy, and Joey, as well as some changes coming to our personal and professional lives.
23:22
November 14, 2021
Remy’s Diagnosis (re-issue)
In this week’s episode, we have a reissue of our interview with Remy talking about his autism diagnosis.
19:29
November 07, 2021
The Time Joey Kicked Mommy’s Butt (Re-issue)
In this week’s episode, we recount Sarah’s struggles with Joey while Jeremy took Remy to the movies. (This is a re-issue of an earlier episode.)
21:04
October 31, 2021
Caring for a Kid with COVID
In this episode, we discuss our return to quarantine after Remy tested positive for COVID-19 and how we are taking care of him while trying to keep Joey isolated from his brother.
17:54
October 24, 2021
Caregiver Isolation
In this episode, Sarah and Jeremy discuss isolation for caregivers during a pandemic.
25:26
October 20, 2021
Family Update September 2021
In this live episode, we recap the crazy events leading into September and October of 2021. This was recorded live on Facebook and Instagram.
40:23
October 10, 2021
Caregiver Burnout (Re-issue)
In this episode, Sarah and Jeremy discuss Caregiver burnout and Caregiver stress. (This is a re-issue of a previous episode.)
29:11
October 03, 2021
#JeepLife Giving Back (with special guest Alana Ducharme)
In this week's episode, the founder of Jeep Life of the Northeast; Alana Ducharme; to discuss their upcoming event; Jeeptacular; to benefit the Boys and Girls Club of Providence, Rhode Island. You can donate by emailing Alana  JeepLady222@gmail.com or Dominique Abatecola - dabatecola@elmwoodcdjr.com Or on their facebook page  https://www.facebook.com/groups/jeeplifeofthenortheast/
22:43
September 26, 2021
Today's Autistic Moment (with special guest Philip King Lowe)
In this episode, Sarah speaks with the host of "Today's Autistic Moment" podcast, Philip King Lowe, about being an autistic adult, what challenges he and other autistic adults face and how we, as a community, can respect and listen to autistic voices. Check out his podcast at: https://todaysautisticmoment.com/
49:02
September 19, 2021
The Lafaya Way (with special guest Lafaya Mitchell)
In this episode, Sarah talks with Lafaya Mitchell about her methods of calming and supporting neurodivergent kids.  https://lafayaway.com/
37:22
September 13, 2021
August 2021 Family Update and Back to School
In this week's episode, Sarah and Jeremy recap the month of August and discuss Back to School with two autistic children.
18:10
September 05, 2021
Cohen Caregiver Support (with special guest Bill Cohen)
In this episode, Sarah interviews Bill Cohen from Cohen Caregiver Support about providing support for caregivers. You can find him at: https://lnkd.in/gMXA7mC
33:07
August 29, 2021
Holistic Help for the Caregiver (with Dr. Crystal Cliff)
In this episode, Sarah speaks to Dr. Crystal Cliff about holistic health and how it can blend with traditional Western medicine. Check out her website at: https://www.phoenixmoonacupuncture.com/
39:42
August 22, 2021
1 Year Anniversary (with special guest Dave Carter)
It's our one-year anniversary. Our friend, Dave Carter, is stepping in the interviewer's chair and interviewing us for this episode.
32:35
August 15, 2021
Happy Autism (with special guest Mishka Sibert)
In this episode, Mishka Sibert joins us to discuss her business with her nonverbal brother Happy Autism, and how it's helped their bond as siblings. Plus, she discusses some celebrity endorsements she's received for some of her t-shirts with her brother, Samko's artwork on them. For more on Mishka and Samko check out http://happyautism.co  For more Caregiver Chronicles go to https://flow.page/caregiverchronicles
33:51
August 08, 2021
July 2021 Family Update
This week Sarah and Jeremy give an update on the family. We continue to discuss Joeys sleep regression, and his progress. We also talk about Sarah's recent resignation from her job as a CNA. 
21:47
August 01, 2021
#Vaccinated (with special guest Ajmer D.)
This week, Sarah interviews a fourth grade teacher who also worked in a COVID shelter. For more information go to http://Www.hashtagvaccinated.ca
19:53
July 25, 2021
Asperger's Controversy
In this episode, we tackle the Asperger's controversy and whether certain terms and labels are needed when discussing Autism Spectrum Disorder.
19:49
July 18, 2021
Healthcare Binders
In this episode, Sarah and Jeremy look at the different types of healthcare binders for caregivers.
23:50
July 11, 2021
Sleep Regression
In this episode, we discuss Joey's recent sleep regression, some previous causes of sleep regression and how it is negatively affecting us.
21:54
July 04, 2021
Family Update #4
In this episode, Sarah and Jeremy update listeners on the changes in the past six weeks; including services for Sarah's grandmother, the end of the school year, preparing for summer school and day trips with kids on the spectrum.
23:60
June 27, 2021
Tribute to Memere Tardie
In this episode, we look back at the life of Sarah's grandmother, Lucille Tardie, who passed away on June 11, 2021. Thank you for everything, Memere. Please check out our flowcode: flowcode.com/p/Z3B0gHo9?fc=0
21:05
June 20, 2021
Echobox Memory Vault
This week Sarah and Jeremy interview Tim and Tannis Roberts, creators of the app Echobox. We talk about how Echobox can be used to help caregivers for dementia patients, and non-verbal persons. Also as a tool to connect generations, and offer support for grieving families   For more information on Echobox Memory Vault go to echobox.ca For more information on Caregiver Chronicles https://flow.page/caregiverchronicles 
25:35
June 13, 2021
Genetic Testing
This week, Sarah and Jeremy discuss genetic testing and how it is used to help families with a member on the autism spectrum. Check out the flowcode for links to podcatchers, YouTube, our website and our merchandise store. flowcode.com/p/Z3B0gHo9?fc=0
18:10
June 06, 2021
"Loop" (with special guest Erica Milsom)
This week, we interview Erica Milsom, the screenwriter and director of the Sparkshort "Loop," about the short and what it means for the autism community.  Check out our show on podcatchers, YouTube, our website and our merchandise at: flowcode.com/p/Z3B0gHo9?fc=0
30:05
May 23, 2021
May 2021 Family Update
In this episode, Sarah and Jeremy discuss various things going on with their family and with Caregiver Chronicles and their sister podcasts on the Withmywifepod podcasting network.  https://flow.page/caregiverchronicles 
28:39
May 16, 2021
Ice Cream in the Cupboard (with special guest Pat Moffett)
In this episode, Sarah interviews Pat Moffett; author of "Ice Cream in the Cupboard;" about his book and movie detailing his wife's battle with early onset Alzheimer's and his advocacy since her passing.
33:03
May 09, 2021
Living Life in the Middle (with special guest Pat Sheveland)
In this episode, we speak to bestselling author Pat Sheveland about her new book "Living Life in the Middle" and how it looks at multi-generational families.
37:40
May 02, 2021
Interview with a Boy on the Spectrum (with special guest Remy Brown)
In this episode, Sarah and Jeremy interview their son, Remy, about his experiences growing up on the autism spectrum.
23:50
April 25, 2021
Autism by the Numbers
In this episode, Sarah and Jeremy look at some statistics related to autism.
23:12
April 18, 2021
The Autism Project (with special guest Joanne Quinn)
In this episode, Joanne Quinn from The Autism Project joins us to discuss Autism Acceptance Month, the Virtual Autism Walk coming up later this month and some of her experiences as an autism parent. Check them out at: https://theautismproject.org/
30:54
April 11, 2021
Autism Awareness and Acceptance
In this episode, we discuss the differences between Autism Awareness and Autism Acceptance and why you can't have Autism Acceptance without Autism Awareness.
31:49
April 04, 2021
The Journey of a Dementia Caregiver (with special guest Theresa Stelmach)
In this episode, Sarah sits down with her mother, Theresa Stelmach, to discuss her grandmother's battle with dementia and Theresa's work as the primary caregiver.
37:05
March 28, 2021
Family Update #3
In this episode, we recap some of our biggest family moments since our last update; including Joey's attempted sleep study, Remy returning to school and Sarah's grandmother going into a nursing home.
20:36
March 22, 2021
Coronavirus Pandemic 1 Year Later
In this episode, we look back at the 1-year anniversary of coronavirus being declared a pandemic and the crazy year it has been since that decision.
25:54
March 14, 2021
The Time Joey Started School
In this episode, we discuss Joey's transition from Birth to Three to attending school and the ensuing regression that came with that transition.
23:01
March 07, 2021
CTFSN Interview
In this episode, Sarah and Jeremy interview Crystal from CTFSN (Connecticut Family Support Network) about the tools available for those in need.
25:25
February 28, 2021
Hearts United Collaboration
In this weeks episode, we talk to Christina from the brand new podcast Hearts United. She shares her story with us. 
18:33
February 21, 2021
Sarah Received Her Second Dose of the COVID-19 Vaccine
In this episode, Sarah talks about the time she received the second dose of her COVID-19 vaccine.
11:24
February 14, 2021
Autism Facts and Myths
In this episode, we take a look at some facts and myths surrounding the autism spectrum and autism diagnoses.
21:27
February 07, 2021
Family Update #2 - January 2021
In this episode, we give an update on how our boys are doing with all the transitions from in school learning, distance learning and battling illness.
20:40
January 31, 2021
What being a CNA means to me
In this episode Sarah Talks about being a CNA/CMT and what it means to her. She also has a few statistics on the job. 
22:35
January 24, 2021
The Time Sarah Got Her First Dose Of The COVID Vaccine
In this episode Sarah shares her experience getting the Pfizer COVID vaccine. She talks about side effects and debunks some myths about it as well. 
23:41
January 17, 2021
Last Week of 2020 Recap
In this episode, we look back at our last week of 2020 as caregivers.
19:45
January 10, 2021
2020 Wasn't So Bad
In this episode, we look back at some of the good things that happened in 2020.
22:37
January 03, 2021
A Caregiver Christmas
In this episode, we recap our Christmas morning with two kids on the Autism Spectrum along with time spent with Sarah's grandmother battling dementia.
19:20
December 27, 2020
Long Term COVID effects and Preventing Spread
In this episode Sarah discusses her long term effects from contracting COVID 19. She also discusses what to do if you get it to prevent spread in your home. 
14:46
December 21, 2020
The Time Joey Kicked Mommy's Butt
In this episode, Sarah and Jeremy discuss taking one son with autism to the movie theater for the first time while the other one has an eventful day at home.
21:04
December 13, 2020
The Time I Experienced Caregiver Burnout, And What To Do.
In this episode, Sarah and Jeremy discuss Caregiver burnout and Caregiver stress.
29:11
December 06, 2020
Family Update Time - November 2020
In this episode, we give an update on our family right before Thanksgiving, along with our experience with parent-teacher conferences and schooling in the times of COVID.
24:58
November 29, 2020
The Time Jeremy Donated Bone Marrow
In this episode, Jeremy discusses the events that led to him donating bone marrow stem cells.
14:41
November 22, 2020
The Time Scouts Helped Our Boys Part 2 (with special guest Dave Carter)
In this episode, we resume our interview with Dave Carter about how Scouts can be helpful for kids.
25:08
November 15, 2020
The Time Scouts Helped Our Boys Part 1 (with special guest Dave Carter)
In this episode, we talk with our local Scout leader, Dave Carter, about how scouts can be helpful for families with kids on the spectrum or with other developmental issues.
33:13
November 08, 2020
The Time We Interviewed "The Spectrum Dad" (with special guest Fred Marvel)
In this episode, we interview Fred Marvel, aka The Spectrum Dad. He hosts a fellow podcast looking at the life of an autism parent. We chat, compare stories and learn more about each other and how to cope as autism parents.
31:49
November 01, 2020
The Time COVID Shut Down Schools... Again
In this episode, we discuss the recent closure of schools in our community, after a positive coronavirus test, and how it is affecting our children on the spectrum.
32:33
October 25, 2020
The Time We Went to the Rock and Roll Hall of Fame (with special guest Remy Brown)
In this episode, Remy joins us again to discuss our trip to the Rock and Roll Hall of Fame with two boys on the autism spectrum.
35:60
October 18, 2020
The Time We Discussed Dementia (with special guest Tracey Ducharme)
In this episode, Sarah and fellow CNA/CMT Tracey Ducharme discuss signs of dementia, therapies and other facts from both a personal and professional perspective.
43:03
October 11, 2020
The Time We Watched "Loop"
In this episode, we discuss the Pixar Spark Short, "Loop," and how it can help people understand some children on the autism spectrum.
33:26
October 04, 2020
The Time The Kids Started School During a Pandemic
In this episode, we discuss the first week of school during a pandemic. One of our kids started Kindergarten in school while the other is doing distance learning from home.
36:08
September 13, 2020
Bonus Episode: The Time We Battled Coronavirus
In this bonus episode, Jeremy provides an update on Sarah as she battles coronavirus.
05:60
September 11, 2020
The Time We Started in Healthcare (with special guest Jen Shardlow)
In this episode, Sarah interviews her coworker, Jen Shardlow, about how the pair of them got into healthcare and what it has been like working in an assisted living facility during a pandemic.
25:26
September 06, 2020
The Time Remy was Diagnosed with Autism (with special guest Remy Brown)
This episode is about the time our older son, Remy, was diagnosed with autism. He joins us on this episode to discuss how autism affects his life and how he's responded since his diagnosis.
19:29
August 30, 2020
The Time Joey was Diagnosed with Autism
In this week's episode, we look at the time our son, Joey, was diagnosed with autism and how our journey as autism caregivers began.
23:14
August 23, 2020
The Time We Started a Podcast: Caregiver Chronicles
This is our introduction to our new podcast for caregivers, both personal and professional. We'll be sharing our story with you to help let other caregivers know they aren't alone.
04:10
August 16, 2020