Public Interest Group on Cancer Research
By Public Interest Group on Cancer Research
Disclaimer: Information is shared for the purposes of education and exchanging information/perspectives only. The information posted should not be interpreted as medical advice. All health information should be discussed with your health care provider. Each individual is responsible for their own content.
Public Interest Group on Cancer ResearchApr 17, 2024
Episode 9 – Those with lived experience are the best teachers and speakers: Listen to our chat with Stephanie Budgell
On behalf of the Public Interest Group on Cancer Research, welcome to Episode 9 of our podcast series!
Our special guest today is Stephanie Budgell 😊
Stephanie is a person with a history of cancer living in Newfoundland and Labrador.
In this episode:
· Stephanie talks about her lived cancer experience and how COVID-19 pandemic has impacted her
· Stephanie, Janine, and Sevtap talk about cancer in young folks and importance of advocacy on behalf of others
Sharing cancer-related stories may not be easy, but folks like Stephanie and Janine do that anyhow, in order to advocate for other patients, for better conditions, for better outcomes and health, for better prevention, screening, treatment and survivorship support.
We hope that you will like and appreciate Stephanie’s story.
For questions/comments please contact Sevtap at savas{at}mun.ca.
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segments used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Episode 8 – “I had a tumor of the size of a tissue box” –Bonnie Morgan and Alana Walsh-Giovannini tell us about ovarian cancer and Belles with Balls
On behalf of the Public Interest Group on Cancer Research, welcome to Episode 8 of our podcast series!
Our special guests today are Bonnie Morgan and Alana Walsh-Giovannini 😊
Bonnie and Alana are the co-founders of Belles with Balls, a community and charity organization in Newfoundland and Labrador focusing on ovarian cancer education and research (https://belleswithballsnl.com/).
In this episode, Bonnie, Alana, and Sevtap chat about:
· Everything from the symptoms of ovarian cancer, lived experiences, and genetics in ovarian cancer
· How a community organization with 8 dedicated women raised over $500,000 for ovarian cancer education and research in Newfoundland and Labrador
· Exceptional work of Belles with Balls in supporting ovarian cancer education and research in the province
· Messages of hope
Disclaimer: Information is shared for the purposes of education and exchanging information/perspectives only. The information posted should not be interpreted as medical advice. All health information should be discussed with your health care provider.
For questions/comments please contact Sevtap at savas{at}mun.ca.
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segments used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Episode 7 – Do you get patient-centered cancer care? A cozy, hopeful, and inspirational chat with Dr. Maisam Najafizada
On behalf of the Public Interest Group on Cancer Research, welcome to Episode 7 of our podcast series!
Our special guest today is Dr. Maisam Najafizada 😊
Dr. Najafizada is the interim Assistant Dean of Social Accountability and an assistant professor of Health Policy at the Faculty of Medicine, Memorial University.
In this episode:
· Dr. Najafizada and Sevtap chat about everything from what it means to have a patient-centered cancer care to the current state of healthcare in Canada, existing barriers and opportunities, and social accountability activities
· There is something exciting and useful information for everyone in this episode, from cancer care to science and health policy :)
For questions/comments please contact Sevtap at savas{at}mun.ca.
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segments used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Episode 6 – A story of childhood cancers, resilience, and using lived experience to support others– Alan Winnett from Candlelighters NL shares
Our special guest today is Alan Winnett.
Alan is a member of the NL Candlelighters’ Board, and recently became its Vice President.
There is a lot to learn from Alan's experience as a parent with a child affected by cancer.
In this episode:
· Alan discusses his experience as a parent of a child diagnosed with cancer, and the operations of the community organization (NL Candlelighters: https://www.candlelightersnl.ca/) that supports kids and their siblings affected by cancer, including the Camp Delight, a pediatric oncology summer camp.
· Additionally, at the end Sevtap gives brief info about the pediatric cancers.
For questions/comments please contact Sevtap at savas{at}mun.ca.
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segments used (Loopster). "Loopster" Kevin MacLeod incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Episode 5 –“Prepare to die, but plan to live”: An impactful chat with Geoff Eaton about his lived experience, young adult cancers, and Young Adult Cancer Canada (YACC)
On behalf of the Public Interest Group on Cancer Research, welcome to Episode 5 of our podcast series!
Our special guests today is Geoff Eaton 😊 Geoff is the Director of Young Adult Cancer Canada (YACC).
In this episode:
· We talk about Geoff’s experience as a young person diagnosed with cancer, how this shaped his leadership and community work, activities and support provided by YACC to young adults diagnosed with cancer in Canada, and more.
· Additionally, at the end Sevtap gives brief info about young adult cancers in Canada – what are they? How many folks are affected? What are the main priorities in addressing young adult cancers?
For questions/comments please contact Sevtap at savas{at}mun.ca.
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segments used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Episode 4 – “There is a future where we do not have to worry about cancer”: Vision by two young leaders - Sophia Ryan and Emma McIsaac
On behalf of the Public Interest Group on Cancer Research, welcome to Episode 4 of our podcast series!
Our special guests today are Emma McIsaac and Sophia Ryan 😊 We also have a wonderful co-host today, Kayla Crichton 😊
Emma, Sophia, and Kayla are all young, undergraduate students at Memorial University – future is bright!
In this episode:
- We discuss the importance of volunteering, fundraising, and rising awareness about cancer research and support programs.
- We focus on the Canadian Cancer Society’s Relay for Life 2024 event and participated by many across the country.
- Memorial University’s Relay is scheduled for March 23, 2024 and co-chaired by Emma and Sophia.
- At the end, we also give a brief info about Canadian Cancer Society’s activities, including support to persons affected by cancer, funding research projects and clinical trials, and publishing the annual Canadian Cancer Statistics report. You can check their website for further information and how to contact them: https://cancer.ca/
Kayla and Sevtap wholeheartedly thank Sophia Ryan and Emma McIsaac for sharing their vision for the future and their tremendous contributions to cancer awareness and fundraising through their activities as the co-chairs of the MUN’s Relay for Life event - 2024.
For questions/comments please contact Sevtap at savas{at}mun.ca.
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segments used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Episode 3 - "You saved my life": A story of a Newfoundland and Labrador family, genes & cancer by Derrick Bishop and Dr. Jane Green
On behalf of the Public Interest Group on Cancer Research, welcome to Episode 3 of our podcast series!
Our special guests today are Derrick Bishop and Dr. Jane Green! 😊
In this episode, we discuss about cancers running in families (which are also called hereditary cancers), how genetic discoveries help families ( including from Newfoundland and Labrador), how hereditary cancers are experienced by folks, and what have been done so far and what can be further done to help alleviate the negative consequences of hereditary cancers in Newfoundland and Labrador (and beyond).
Around 5-10% of certain cancers are estimated to be hereditary in nature, with genetic features affecting our risk of developing cancers significantly. Examples include breast, ovarian, colon, retinal and many other cancers. Hereditary cancers usually develop earlier and in multiple members of the family compared those who do not have a hereditary condition. If you suspect a hereditary condition, please talk to your physician.
I (Sevtap) thank Derrick Bishop and my colleague Dr. Green for sharing their story, knowledge, and insight.
For questions/comments please contact Sevtap at savas{at}mun.ca.
A video recording of this conversation can be found here: https://www.youtube.com/watch?v=pXdelLbDiD4&t=2008s
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segment used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Further reading:
https://www.cancer.gov/about-cancer/causes-prevention/genetics
https://cancer.ca/en/cancer-information/what-is-cancer/genes-and-cancer
https://www.cancer.org/cancer/risk-prevention/genetics/family-cancer-syndromes.html
At the intersection of being trans and having gendered cancer: A candid, timely, and educational conversation with James Moriarty
On behalf of the Public Interest Group on Cancer Research, welcome to Episode 2 of our podcast series!
We have a very special guest today, James Moriarty! 😊
In this episode, James provides his experience and thoughts about cancer, cancer screening, and cancer care experiences as a transgender man in Newfoundland and Labrador.
All very important topics, considering that we have around 60,000 transgender men and women in Canada, and they too can develop cancer.
Being a transgender person, having a gendered cancer, jumping over the many cracks, advocating for better conditions, and educating everyone – literally – about what needs to improve in healthcare and community is not an easy job.
We – Janine, Jason, and Sevtap – thank James for educating all of us by sharing his story, knowledge, and insight.
We will do our part and educate ourselves further. We all should do. Please join us.
For questions/comments please contact Sevtap at savas{at}mun.ca.
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segment used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Episode 1 - A cozy chat about cancer, Newfoundland and Labrador, and fate of a bagel
On behalf of the Public Interest Group on Cancer Research, we are pleased to welcome you to Episode 1 of our podcast series!
In this episode, Jason, Janine, and Sevtap talk about cancer, numbers and experiences in Newfoundland and Labrador, and how in the midst of everything, we can find a moment to share and laugh.
For questions/comments please contact Sevtap at savas{at}mun.ca.
We gratefully acknowledge Kevin MacLeod (incompetech.com) for the music segment used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed Under Creative Commons: By attribution 3.0 http://creativecommons.org/licences/by/3.0/
Episode Pilot - Introduction to our team and project!
On behalf of the Public Interest Group on Cancer Research, we welcome you to our podcast!
In this short Episode, we introduce the awesome team behind this exciting podcast series and the project.
We welcome your questions and comments: please contact our lead Sevtap Savas at savas{at}mun.ca.
We gratefully credit Kevin MacLeod (incompetech.com) for the music used (Loopster). "Loopster" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 3.0 http://creativecommons.org/licenses/by/3.0/