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Trisomy Family Stories

Trisomy Family Stories

By SOFT UK

A collection of stories and experiences from families dealing with Trisomy 13 and 18.
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SOFT UK Family Stories - Episode 6: Laura (Bereavement/ TFMR)

Trisomy Family StoriesMar 20, 2021

00:00
17:25
In Conversation With Mary: The Frailty of a Butterfly

In Conversation With Mary: The Frailty of a Butterfly

In today's podcast we are talking with Mary Wasacz about her journey with Cathy Anne.


Mary recounts Cathy Anne's story and her diagnosis of Trisomy 18, and how she and her husband John gave her normalcy and love during her short life.


Mary will also be reading an excerpt from her book about Cathy Anne's life: The Frailty of a Butterfly: My Journey Through Newborn Loss.


You can find Mary's book here:

Amazon: https://www.amazon.co.uk/Frailty-Butterfly-Journey-Through-Newborn/dp/1667891715

Bookshop: https://bookshop.org/p/books/the-frailty-of-a-butterfly-my-journey-through-newborn-loss-mary-wasacz/20141396?ean=9781667891712


About Mary:

Mary Wasacz is a family therapist and clinical specialist certified by the American Nurses Association. She was the bereavement and spiritual care coordinator for hospice for over twenty years. Mary and her husband have three children and eight grandchildren. She and her husband are avid travelers who have visited all seven continents. They currently live in New York's suburbs, where they dote on their three parrots.


To reach out to SOFT UK visit: www.soft.org.uk

To contact us, email: contact@soft.org.uk

Mar 13, 202444:03
Baby Loss Awareness Week 2023: In Conversation with Kate Sonley

Baby Loss Awareness Week 2023: In Conversation with Kate Sonley

In support of Baby Loss Awareness Week 2023 we are talking with Kate Sonley, mummy to Amber. Kate bravely talks about her story, sharing the ins and outs of her journey. Reach out at contact@soft.org.uk For support, contact support@soft.org.uk To find out more, visit www.soft.org.uk

Oct 13, 202330:57
From Past To Present: Reflecting on Demi's Trisomy 18 Journey

From Past To Present: Reflecting on Demi's Trisomy 18 Journey

Ahead of the annual Scottish Family Day we interviewed one of our longstanding parents Demi Powell who shared her story about Connor, her baby boy who was diagnosed with Trisomy 18, 22 years ago. It was a great insight to how she has found the family days over the years especially what makes the Scottish family day special. To register please sign up here https://www.eventbrite.co.uk/e/scottish-soft-family-day-2023-tickets-645476015137?aff=oddtdtcreator Reach out at contact@soft.org.uk For support, contact support@soft.org.uk To find out more, visit www.soft.org.uk

Sep 12, 202332:09
Embracing the Extraordinary Journey: Positive about Down syndrome

Embracing the Extraordinary Journey: Positive about Down syndrome

The podcast today is part of our series, chatting to partner organisations to find out more about what they do. This podcast welcomes Nicola Enoch, joining us from Positive about Down Syndrome and she is their Founder & CEO. As a down's syndrome parent herself she set this charity up for families looking for further support and resources.

Found out more: https://downsyndromeuk.co.uk/

Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk

Aug 10, 202327:11
Pregnancy after a Trisomy 18 diagnosis

Pregnancy after a Trisomy 18 diagnosis

We spoke to Mandy Nelson, mother to Amari, who has Trisomy 18 and who recently became a mother to Dante. In this episode, Mandy shares her heartfelt journey from her pregnancy with Amari, to the present day, where Amari is now a thriving 3.5-year-old, albeit with special educational needs. She also took us through what it's like having a baby after a high risk pregnancy and shared honestly about how it impacted her bonding with her son whilst pregnant. She shares some amazing anecdotes and a wonderful message about the importance of advocating for your child. Reach out at contact@soft.org.uk For support, contact support@soft.org.uk To find out more, visit www.soft.org.uk

Jul 06, 202342:14
Leaving the hospital with my Rainbow baby

Leaving the hospital with my Rainbow baby

We spoke to Becky Smith, Mum to Freddie who had trisomy 18 and more recently, she became Mum to Jaxon, her Rainbow baby. Becky opens up about her overwhelming fears and anxiety throughout the pregnancy, revealing how she cautiously began preparing for the arrival of her little one only around the 30-week mark. Step into her world and immerse yourself in a real-life story of pregnancy after loss. Reach out at contact@soft.org.uk For support, contact support@soft.org.uk To find out more, visit www.soft.org.uk

Jun 29, 202323:60
A Sibling's Path: From Loss to Strength as a Rainbow Baby

A Sibling's Path: From Loss to Strength as a Rainbow Baby

Join us for an insightful episode of the SOFT UK podcast as we speak with Jess Scott, whose life has been profoundly influenced as a rainbow baby after the loss of her sister, Sarah, to Patau syndrome. Listen to her remarkable journey, and how it has shaped her relationships, career, and parenting. Be sure to catch her three important messages at the end, delivering a story of honesty and optimism you won't want to miss.


Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk


Jun 21, 202321:16
Navigating the Complexities of Genetic Counseling: Insights from a Trainee Genetic Counselor

Navigating the Complexities of Genetic Counseling: Insights from a Trainee Genetic Counselor

Join us for an enlightening discussion with Beth Hughes, a trainee Genetic Counselor, as we delve into the fascinating world of genetic testing and ethics. In this episode, we explore a range of intriguing topics, including the cutting-edge advancements like Non-Invasive Prenatal Testing (NIPT), the concept of Mainstreaming, and the roll out of improved newborn screening. Beth shares her firsthand experience working with a family grappling with a diagnosis of balanced translocation trisomy 13, shedding light on the emotional complexities and medical considerations involved. Tune in to gain valuable insights into the world of genetic counseling, you're sure to learn something new!


*Correction for Podcast Content*


Egg and sperm cells normally have 1 copy of a chromosome and join together to make an embryo with 2 copies. If someone has a balanced translocation, sometimes when their DNA replicates and separates to make an egg or a sperm cell, the cell has 2 copies of a chromosome instead of the normal 1. This means when it joins with an egg or sperm cell with 1 copy, the resulting embryo has 3 copies of a chromosome and has a trisomy.


Reach out at contact@soft.org.uk For support, contact support@soft.org.uk To find out more, visit www.soft.org.uk

Jun 14, 202336:33
Making a Difference: The Power of Volunteering with SOFT UK

Making a Difference: The Power of Volunteering with SOFT UK

 In our latest podcast episode, we had the pleasure of speaking with Tina, one of our dedicated volunteers at SOFT UK. Tina has taken on various roles with us since she first got involved, and in our conversation, she shares what she's learned from volunteering and how she puts those lessons into practice in her everyday life. We also had the opportunity to hear about the individuals who have made a significant contribution to SOFT, and who Tina would like to thank.
If you're interested in learning more about volunteering with SOFT UK, this episode is for you. Listen in to discover how you can make a difference and get involved in our mission to support families affected by trisomy 13 and 18.


Reach out at contact@soft.org.uk 

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk



May 31, 202311:11
Improve, Inspire, Empower (Bereaved)

Improve, Inspire, Empower (Bereaved)

Join us for a heartfelt conversation with Raliene and Josh Banks, parents of Faith, a beautiful soul diagnosed with Trisomy 13 in 2022. In this inspiring dialogue, we explore the untold perspective of a grieving father, gain invaluable insights they wish they knew earlier, and witness their incredible resilience in their #JourneyForFaith.

Discover more of their touching story at Raliene's blog: https://raebanks.com/journeyforfaith/

Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk T

o find out more, visit www.soft.org.uk


May 18, 202341:20
Improve, Inspire, Empower (Bereaved)

Improve, Inspire, Empower (Bereaved)

Join us for a heartfelt conversation with Raliene and Josh Banks, parents of Faith, a beautiful soul diagnosed with Trisomy 13 in 2022. In this inspiring dialogue, we explore the untold perspective of a grieving father, gain invaluable insights they wish they knew earlier, and witness their incredible resilience in their #JourneyForFaith. Discover more of their touching story at Raliene's blog: https://raebanks.com/journeyforfaith/ Reach out at contact@soft.org.uk For support, contact support@soft.org.uk To find out more, visit www.soft.org.uk

May 18, 202341:20
The origins and aims of #TFMRAwarenessday
May 04, 202320:24
Breaking the Silence: Deaf Awareness Week (living with trisomy)
May 03, 202315:44
In Our Own Little Bubble: Coping with TFMR - Marie's Story
May 02, 202327:23
In Conversation With Richard: A Siblings Journey
Apr 06, 202316:51
In Conversation With Sarah: A Mosaic Pregnancy and Journey (Living with trisomy)
Mar 20, 202321:23
Working With Eastenders
Mar 20, 202330:27
With The Benefits of Hindsight (Bereavement)

With The Benefits of Hindsight (Bereavement)

We had a great chat with Chris O' Toole about his daughter Maria's story and what he has learnt 30 one years later. His perspective as a Dad, urging people to reach out for support was really touching.

Reach out at contact@soft.org.uk

For support, contact support@soft.org.uk

To find out more, visit www.soft.org.uk

Mar 15, 202326:09
Introducing Sarah: SOFT UK Trisomy Advocate
Mar 14, 202311:44
SOFT UK: Royal Parks Half Marathon Discussion (Fundraising)
Mar 08, 202310:23
Can HIV Cause Trisomy 18 Edwards Syndrome
Mar 06, 202311:37
Fiona’s Story (Living with trisomy)
Mar 06, 202330:13
What is Rare Disease day?
Feb 27, 202316:29
Introduction to a Professional Advisor: Jenny Hudson

Introduction to a Professional Advisor: Jenny Hudson

We speak to our newest Professional Advisor, Jenny Hudson. She is a chiropractor with an interest in breastfeeding support about we hear how she came to be involved with SOFT and how she hopes to make a difference to the charity.

To share your story or get involved get in touch: contact@soft.org.uk

Dec 07, 202215:29
Introduction to a Professional Advisor: Jenny Hudson

Introduction to a Professional Advisor: Jenny Hudson

We speak to our newest Professional Advisor, Jenny Hudson. She is a chiropractor with an interest in breastfeeding support about we hear how she came to be involved with SOFT and how she hopes to make a difference to the charity.

Dec 07, 202215:29
In Conversation With Charlotte Pt 2: Rainbow Baby

In Conversation With Charlotte Pt 2: Rainbow Baby

Some define a rainbow baby as a baby that is born after a loss. This podcast revisits Charlotte Clark's journey who currently is expecting her rainbow baby at 34 weeks. She shares life after Blaze and anwsers some interesting questions for those families trying or thinking about trying for a rainbow baby and/or expecting themselves.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Music: Precious Memories by Shane Ivers - https://www.silvermansound.com

Aug 04, 202233:19
In Conversation With Becky: After a Loss (Bereavement)

In Conversation With Becky: After a Loss (Bereavement)

In this continuation of our conversation, Becky tells us about Heidi’s funeral, what bereavement felt like for her and why she became a SOFT trustee.


If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Music: Precious Memories by Shane Ivers - https://www.silvermansound.com

Jul 29, 202219:56
In Conversation With Charlotte (Bereavement)

In Conversation With Charlotte (Bereavement)

Charlotte Clark shares her amazing journey about her beautiful baby Blaze, who was diagnosed with Trisomy 18 during the pregnancy. Charlotte bravely shares the challenges and concerns she faced during this time.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Music: Precious Memories by Shane Ivers - https://www.silvermansound.com

Jul 21, 202222:16
In Conversation With Lauren: A Siblings Perspective

In Conversation With Lauren: A Siblings Perspective

In a conversation that demonstrated many emotional ups and downs over the years, we spoke to Lauren, sister to Christine, who passed away 25 years ago from Trisomy 18. A really interesting account of how a sibling experiences the death of a sibling at a young age and how this can affect someone at every stage of life thereafter.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Music: Precious Memories by Shane Ivers - https://www.silvermansound.com

Jul 14, 202226:28
In Conversation With Becky: Thin Places (Bereavement)

In Conversation With Becky: Thin Places (Bereavement)

Becky shared her story of baby Heidi's life including pregnancy, diagnosis and birth. She explains how she managed to overcome the negative outlook from doctors and find some positivity for her experience.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Jul 11, 202224:58
In Conversation With Paul: A Dads Perspective (Dads/ TFMR)

In Conversation With Paul: A Dads Perspective (Dads/ TFMR)

In a very emotional and honest conversation, we heard from Paul McClean, Ben's Dad. This powerful story discusses difficulty falling pregnant,TFMR and seeking help following a loss. It's definitely not to be missed and we hope that it's a story that will help many others facing a similar situation. 

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

#softuk #TFMR #podcast #Trisomy13 #PatausSyndrome #babyloss #Dadsperspective

Jul 04, 202230:24
In Conversation With Sandeep: A fathers perspective of Trisomy 13 (Bereavement)

In Conversation With Sandeep: A fathers perspective of Trisomy 13 (Bereavement)

In honour of Father's day this year, we spoke to Sandeep Sankoli, husband to Sonia, from SOFT UK and father to Dhian, and two other young children. Listen to this unusual story including IVF treatment, and a missed diagnosis of Trisomy 13 during pregnancy. Hear how long it took for the family to get a conclusive diagnosis and all about their journey with their precious son. It is a really great account by a Dad and so enlightening to hear his perspective on things.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk


Jun 16, 202242:51
A siblings perspective of Trisomy

A siblings perspective of Trisomy

In a first for SOFT podcasts, we spoke to Faith Jackson - Docherty, a sibling affected by Trisomy 18. She tells us of her memories of her baby sister Charlotte, from when she was 4 years old. The importance of parents speaking openly and honestly is apparent when she tells her story. A useful listen for any expectant parents wondering how to handle a diagnosis of trisomy 13/ 18 with their other children.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Jun 03, 202211:03
Fundraising With The Flock: Flockmass

Fundraising With The Flock: Flockmass

Listen to this upbeat chat about the first gaming fundraiser done for SOFT, late last year. We discuss the group that took on the challenge; plus all the people involved in making the event a success. A really unique and fun fundraiser that ended up over achieving the set target.

To find out more about The Fock head over to: https://www.twitch.tv/team/theflock

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk


May 26, 202209:36
Trisomy Awareness Month: Empowering Hope (Living with trisomy)

Trisomy Awareness Month: Empowering Hope (Living with trisomy)

We spoke to an amazing couple, Sarita and Kareem Edwards about their incredible 5 year old son, Elijah with full Trisomy 18. It's an inspirational way to end off #TrisomyAwarenessMonth as he is so well for a child with this condition. The podcast includes an endearing guest appearance by Elijah himself. It's also a wonderful opportunity to hear from a Dad when we discussed how this diagnosis affected them as a couple. It's all summed up with their message of hope and love at the end.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Mar 31, 202245:51
Trisomy Awareness Month: Talking with Gareth, a trustee and fathers perspective (Bereavement)

Trisomy Awareness Month: Talking with Gareth, a trustee and fathers perspective (Bereavement)

This conversation with Gareth is an important one, as we hear how Dads can be affected by baby loss. His daughter, Phoebe, lived for 3 days and he found it terribly difficult to deal with at the time. His involvement with SOFT began by running sponsored races to raise funds for SOFT and has evolved to him 'meeting and greeting' people at SOFT conferences and now as a Trustee. We value his involvement and it's interesting to hear how SOFT has changed in the time he has been involved.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Mar 23, 202223:50
Trisomy Awareness Month: Talking with Juliette, a trustee and volunteer perspective (Bereavement)

Trisomy Awareness Month: Talking with Juliette, a trustee and volunteer perspective (Bereavement)

We spoke to Juliette about her personal journey with her daughter, Amelia, who had Trisomy 18. It's touching to hear how she has both relied on SOFT for support and now provides it as a support volunteer and trained bereavement counsellor. It's truly a labour of love for the Bradley family, as Juliette's husband, Matt, helps SOFT with their website and IT.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Mar 16, 202214:28
Trisomy Awareness Month: Interview with Jenny Robbins, a founder of SOFT UK

Trisomy Awareness Month: Interview with Jenny Robbins, a founder of SOFT UK

Listen to this informative chat with Jenny Robbins, founding member of SOFT UK. We heard the fascinating story of how SOFT was started back in the 1980s in the context of limited/ outdated information on Trisomy 13 and 18. Listening to how connections were made locally and overseas with other families with Trisomy 13 and 18 babies and children, through surveys and letters, was so interesting. We found out about the very first conferences and how the support that SOFT offers has changed with the advent of technology.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Mar 12, 202215:33
Trisomy Awareness Month: Verity's Village (Living with trisomy)

Trisomy Awareness Month: Verity's Village (Living with trisomy)

We had a catch up with Beverly Jacobson in the States to hear how her daughter Verity, with Trisomy 18 is; what's new with Verity's Village since we last spoke and how the launch of her book 'From Diagnosis to Delivery' is doing as well as what her plans for Trisomy Awareness month are. We also shared all the exciting things SOFT UK have planned for the month of March to celebrate #TrisomyAwarenessMonth.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Mar 08, 202229:16
The Right Choice for You: Emma's Story (TFMR)

The Right Choice for You: Emma's Story (TFMR)

As part of our Ended Pregnancies series of podcast, 'The Right Choice For You' we spoke to Emma Belle, mum to Willow and founder of support group, TFMR Mamas, . She spoke openly about their IVF journey, and how they heartbreakingly discovered that the baby she was carrying had Trisomy 18. Listen to her powerful message at the end about finding safe spaces to express yourself and find support.


If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Mar 02, 202230:28
Bereavement: Other Peoples Reactions

Bereavement: Other Peoples Reactions

Today we talk about the difficult subject of how other people handle the loss of your baby. Hannah shares some of the strange things that people have said to her, sometimes out of panic as they don't know what else to say, and the impact that this had on her.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Feb 22, 202220:01
Bereavement: The Impact on Relationships

Bereavement: The Impact on Relationships

In this podcast we spoke with Hannah. We discussed what impact losing her son Cillian had on Hannah's marriage and other significant relationships in her life. It was interesting to hear how she has changed as a person and how this has had an effect on others around her.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Feb 15, 202217:12
Bereavement: Ways of coping

Bereavement: Ways of coping

We spoke to Hannah about some of the coping mechanisms she has developed since losing her son Cillian. Some are the usual things we've all heard of before, but one is rather unusual and was even surprising to her.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Feb 08, 202211:07
Bereavement: Chloe's Story

Bereavement: Chloe's Story

We spoke to Chloe about her daughter, Penelope, whose Trisomy 18 diagnosis was missed during pregnancy, but who lived for 2,5 years. The months and years that followed her loss were extremely tough and there were times when she didn't know how she or her husband would make it through. She bravely explains how she has since been diagnosed with Complex PTSD and is seeking help with a psychologist. Hear more about her journey and what she has done for SOFT UK in Northern Ireland.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Feb 01, 202221:19
Bereavement: Loss During Lockdown

Bereavement: Loss During Lockdown

We spoke to Hannah about the difficulties of experiencing loss during lockdown and how she managed to plan her baby's funeral despite all the restrictions. She speaks beautifully about the ways in which they still made the event special and kept traditions that meant a lot to their family.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Jan 25, 202221:38
Bereavement: Hannah's Story

Bereavement: Hannah's Story

We spoke to Hannah O'Gallachoir about her antenatal diagnosis of baby Cillian's condition, Trisomy 13. We discussed how she found out about SOFT and why she loves volunteering for us as a support volunteer. Hear more about her journey as well as her message for other bereaved families.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Jan 18, 202217:38
Against All Odds: Helen's Story (Expectant parent)

Against All Odds: Helen's Story (Expectant parent)

Helen is expecting a baby girl with Trisomy 18 and she joins us for a podcast conversation as part of our 'Against All Odds' series. We chat about the journey through diagnosis, their uncertainty around continuing the pregnancy or not, as well as the added complications of having older children already. We also hear how joining the monthly SOFT support calls helped to normalise some of the feelings she was experiencing.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Dec 20, 202147:20
The Right Choice for You: Naomi's Story (TFMR)

The Right Choice for You: Naomi's Story (TFMR)

Naomi’s story is the 3rd one in the ended pregnancy series, ‘The Right Choice for You’. She was very open about her experience, from discovering the issues, to the end of the journey including funeral arrangements. She felt it was important to tell her story as there were no others around like it when she was going through the same thing.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Dec 17, 202156:50
The Right Choice for You: Rachel's Story (TFMR)

The Right Choice for You: Rachel's Story (TFMR)

The next podcast in the ended pregnancy series, ‘The Right Choice for You’, is with Rachel, who was a first time Mum when she discovered problems during the routine screening offered during pregnancy. She tells us how she came to the decision and what impact that has had on her life since.)

Dec 13, 202146:40
The Right Choice for You: Caroline's Story (TFMR)

The Right Choice for You: Caroline's Story (TFMR)

Today’s podcast is the first in our ended pregnancy series called ‘The Right Choice for You’. It’s a very open and brave conversation with Caroline, who discusses all the considerations in making the extremely difficult decision to end her pregnancy. We hear about the emotions and thoughts she experienced afterwards and how she has coped over since losing her son, 7 years ago.

If you have a story to share, or wish to connect with other families, then please reach out to:  contact@soft.org.uk

To connect with SOFT UK, please visit our pages:

Website: www.soft.org.uk

Facebook:  http://www.facebook.com/SOFTUK

Instagram: https://www.instagram.com/soft_uk/

Twitter:  http://twitter.com/soft_uk

Dec 10, 202142:36