Susan Hendrix My Story Living With Lupus
By Susan Hendrix My Story Living
Susan Hendrix My Story Living With LupusNov 23, 2018
The Breakdown of Health and Health Care in Communities of Color/P2
In this episode we conclude with how medical education contributes to racial inequities in health. How bias exists in ER departments regarding patients of color. And understanding black distrust of the medical community. And you will also hear about a 12 year old girl who died.
Reference
Understanding Black Distrust of Medicine Understanding Black Distrust of Medicine | Findings | University of Michigan School of Public Health | Racism | Vaccines | Infectious Disease | Health Disparities (umich.edu)
A Smithsonian magazine special report
The Historical Roots of Racial Disparities in American Health Care | Science| Smithsonian Magazine
The Breakdown of Health and Health Care in Communities of Color
In this two-part episode, I talk about the breakdown of health in underserved communities of color. What really causes the high rate of obesity, hypertension, and heart disease.
It's All About Health Equality And Health Equity
Join me on March 1, 2024, to learn more about health equality and health equity. It's time to eliminate health disparities. And it's time for you to become your own best advocate.
Male Sex, Neuropsychiatric Damage Associated With Increased Risk for NPSLE Flare
In this episode you will hear what neuropsychiatric is, the damage it causes and those who are at risk the most. You will also hear about what signs and symptoms to look for.
Cancer Risk With Sjogrens Syndrome
The 411 on Collagen and Autoimmune Illness
In this episode you will hear about collagen is it really effective for those with autoimmune illnesses. You will also hear about Racial-Ethnic Diversity and how the U.S. should expect a rise in lupus cases. Lastly you will hear about how older patients with lupus lack follow-up care after a hospitalization.
References
Cleveland Clinic
MedPageToday
The Benefit of Remote Blood Pressure Monitoring
In this episode I discuss if there is a real benefit to RPM and the research that has been done. Also, you will hear about Vexas Syndrome, what it is and the signs and symptoms.
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IN: Susan Hedrix
See what helps those with lupus on Amazon https://www.amazon.com/shop/iamlupus
Who' At The Helm When It Comes To Your Health
If you are not in control of your health who is? This episode is all about the importance of taking control of your health and stop allowing others to make decisions for you.
Reference
CDC
World Health Organization
To be a gust on My Story Living with Lupus Podcast email: mystorylivingwithlupus@gmail.com in the subject area state guest and tell us about you.
Check us out on Amazon at: https://www.amazon.com/shop/iamlupus
You will find products that I use to assist me.
Check out our website at: https://mystorylivingwithlupus.com, For information on FREE online classes regarding Hypertension
Vitamin & Mineral Deficiencies Associated With Lupus/Lupus In Men
Breast Cancer Awareness with Tasha Brown
In this episode you will hear the story of Tasha Brown Breast Cancer Activist, Stage 3 Breast Cancer survivor, Stage IV MBC. Wife, Mother and Grandmother . She advocates for African American Women to go and get checked for this silent killer. She gives me motivation to continue on brining awareness to chronic illnesses. You can contact Tasha via social media at: IG: tasha_47loveme, breastcancer_stage_lll_tasha
It All About The Remix a Conversation With Dr. Patricia Dhar
In this episode it's about the remix with Dr. Patricia Dhar, you will also hear about what I've been up to and a look into the future of My Story Living with Lupus Podcast.
Glitazone Drug May Cut Lupus Heart Risk
In this episode you will hear about how Glitazone Drug May Cut Lupus Heart Risk. Glitazone (Actos) has been widely used by diabetics.
We all believe that Americans should have a right to healthcare, but do we really have it, we are a country that will preach to other countries about preserving human rights, but we don't talk the talk nor walk the walk in the country.
Resource
MedPage Today
Visit our store at T-Shirts by My Story - TeePublic Store | TeePublic
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Visit the Charlie E & Minnie P Hendrix Foundation to see what we are doing: https://mystorylivingwithlupus.com
#lupus #heartrisk #glitazone
What's The 411 On The 988?
In this episode I talk about the 988 Crisis Lifeline and how much health disparities actually will cost the United States by 2040. You will also hear about how a small device helped me make through the worst lupus flare that I have ever had.
Resources
MedPage Today
Calmpak - www.calmpak.org
Visit my TeePublic Store - T-Shirts by My Story - TeePublic Store | TeePublic ***Help us to continue to educate, empower those in underserved communities.
The Healing Power of I Don't Know
In this episode you will hear about the healing power of I Don't Know, basically why it's so hard for physicians to just come out and say that they don't know what is going on regarding your health.
Also new approve first systemic treatment for alopecia.
Go on over and visit my TeePublic store at: https://www.teepublic.com/stores/my-story?page=6&ref_id=26353
Also go on over to https://mystorylivihngwithlupus.com store and check it out also
Resource
MedPage Today
Racial and Ethnic Bias in Pulse Oximetry and Clinical Outcomes
In this episode you will hear what researchers say about racial bias in pulse oximetry and how it delays clinical outcomes for patients of color. You will also hear the TYK2 Inhibitor shows promise in Lupus.
Resource
MedPage Today
Please visit my TeePublic Store all you have to do is click the link below.
TeePublic Link: : https://www.teepublic.com/stores/my-story?ref_id=26353
Lupus, Sexuality and Intimacy
In this episode I talk about having open communication with your wife, girlfriend or partner about lupus and sex. You will also hear about Monkeypox case reported in the U.S. and lastly one in four Medicare patients being harmed during hospital stay.
Resource
MedPage Today
National Institute of Health
Check out my store at: https://www.teepublic.com/stores/my-story?ref_id=26353
Check out my website: https://mystorylivingwithlupus.com
Charlie E & Minnie P Hendrix Foundation for Chronic Illness: https://cemphfoundation.com
Researcher Tom Paladino/ Scalar Light
In this episode you will find out about Scalar Light Healing from Researcher Tom Paladino, share your thoughts on this subject. Also, in this episode you will hear about "In Lupus Normal-Appearing Skin Is Not Normal and Shocking Mismanagement in Our Organ Donation System Is Causing Needless Death.
Resource
MedPage.com
Medical Gaslighting Nothing New to Women of Color
In this episode you will hear about Medical Gaslighting, NASH, Medical Errors and Know Who Is Operating on You.
Resource
MedPage Today
Study Suggest Why Women Outnumber Men in Lupus
In this episode you will hear about two studies the first is Why Women Outnumber Men in Lupus and Mixed Results for Oral Lupus Drug in Phase II
You will also hear about the current health challenges that I have been dealing with.
Resource
MedPage Today
Doctor Sued Over Stem Cell Treatments/Case of Cannabis Doctor Goes Up In Smoke
In this episode you will hear the latest about my medical treatment, and my decision about a medication the doctor wants me on. Also, you will hear about a doctor who was stating that stem cell treatments could cure COVID-19.
Resource
MedPageToday
HHS to Revise Doctor-Insurer Dispute Process Under No Surprises Act/Self-Efficacy’s Impact on Pain and Fatigue in Black Women with Lupus
In this episode you will hear about the No Surprises Act (Surprise Billing). Self-Efficacy Impact on Pain and Fatigue in Black Women with Lupus. And a subject near and dear to my heart Stem Cell Therapy. Check out one of my Youtube channels below that I talk about my journey and research on Stem Cell Therapy for Lupus.
Resource
lupus.org
MedPage Today
Susan Hendrix- My Journey for Stem Cell Therapy (My Journey For Stem Cell Therapy (Mesenchymal Stem Cell) PT. 2(92) My Journey For Stem Cell Therapy - YouTube (92) My Journey For Stem Cell Therapy PT. 1 - YouTube (92) My Journey For Stem Cell Therapy (Mesenchymal Stem Cell) PT. 2 - YouTube
What Is Rheumatoid Arthritis?
In this episode you will hear about if RA is an overlapping condition to Lupus. Also, you will hear if Kidney Disease Gene Risk Info Aids Prevention in Primary Care.
Resources
MedPage Today
Experimental Treatment Offers New Hope Against Lupus
You will hear about the trail for a new treatment for lupus, this information was published on May 26, 2021. For the phase 1 trial, the team recruited 31 patients with at least one of several autoimmune conditions, including systemic and cutaneous lupus.
Resource
U.S. News (27, May 2021) Experimental Treatment Offers New Hope Against Lupus.
PTSD May Play a Role in the Development of Lupus
In this you will hear what research state about PTSD in the development of lupus, also you will hear about my upcoming procedure. We also pay tribute to the first Africa American Doctor in Honor of Black History Month James Derham.
Resource
MedPage Today (18, February 2022) PTSD May Play a Role in the Development of Lupus.
The Most Common Neuropsychiatric Disorder People with Lupus Have
In this episode you will hear about the most common neuropsychiatric disorder people with lupus have. You will also hear the latest in lupus news. You will hear about African American women with lupus at higher risk for adverse perinatal outcomes. You will also learn a little-known Black History Fact.
Resources
Medline Plus (02, February 2022) SAD. Retrieved from: https://medlineplus.gov
Lescrooge (02, February 2022) The most common neuropsychiatric disorder people with lupus have. Retrieved from: www.lescrooge.org
Healio (02, February 2022) African American women with lupus at higher risk for adverse perinatal outcomes. Retrieved from: https://www.healio.com
#lupus #africanamericanwomenpregnacy #sad #mystorylivingwithlupuspodcast
More Than 200,000 Americans Have Lupus?
In this episode you will hear research from 1 year ago that states the number of individuals with lupus is 200,000 and larger numbers have not been unverified. You will also hear how lupus can affect the heart.
Resources
John Hopkins (2022) How Does Lupus Affect The Cardiovascular System
usnews.com (2022) More Than 200,000 Americans Have Lupus (Health News)
#lupus #cardiovascularsystem #americanswithlupus #mystorylivingwithlupuspodcast
Lupus And The Liver
This episode is about how lupus will attack the liver and you will hear about my latest diagnosis that involves the liver. You will also hear about Younger Age Deemed Risk Factor of Flare in Patients Discontinuing Glucocorticoids.
Resources
Lupus Foundation
Rheumatology Network
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#autoimmune #liverdisease #lupus #mystorylivingwithlupuspodcast
Medical Marijuana and Lupus
In this episode you will hear why the use of Medical Marijuana has not been approved for the treatment of lupus, you will also hear about what CBD is, Cannabinoids. Find out why the use of Marijuana has been approved for epileptic seizures.
Reference
Yale Medicine - From "miracle drug" to medicine?
Lupus Foundation - Medical Marijuana (cannabis) and Lupus
#marijuana #cannbis #lupus #mystorylivingwithlupuspodcast
SLE and Lymphoma/Latest in Lupus Research
In this episode you hear the latest on my journey and how I've been doing. Also, I give a brief connection of SLE and Lymphoma. You will also hear the latest in Lupus Research.
Resource
Lupus Foundation of America
American College of Rheumatology
#lupus #lymphoma #lupusresearch #mystorylivingwithlupuspodcast
SLE and Non Hodgkins Lymphoma
In this episode you will hear about my recent diagnosis of non hodgkins lymphoma, I will tell you the signs, you will also learn how B/T Cells play a role in non hodgkins lymphoma. You will also hear the latest in Lupus News.
Resources
MayoClinic
Lupus Foundation of America
#lupus #nonhodgkins #lymphoma #mystorylivingwithlupuspodcast
Elderly-Onset Of SLE
In this episode you will find what research states about elderly-onset of sle. Also you will hear about the Wide Differences in Thinking Skills and Abilities Linked to Cognitive Dysfunction in Lupus Patients. Did you know that individuals with sle are at a higher risk of cancer. You will also hear my health update and a tribute to my mother.
Resources
Lupus Foundation Of America (14, October 2021) Wide Differences in Thinking Skills and Abilities Linked To Cognitive Dysfunction in Lupus
National Library Of Medicine (31, October 2021) Elderly-onset systemic lupus erythematosus: prevalence, clinical course and treatment
John Hopkins Lupus Center (31, October 2021) Lupus and Cancer
Susan Hendrix (01, November 2021 Health Update
#lupus #elderlyonset #cognitivedysfunctioninlupus #lupusandcancer #mystorylivingwithlupuspodcast
High Rates Of Retinopathy Seen In SLE Patients
In this episode you will hear why researchers state that once diagnosed with SLE, patients should have his/her eyes checked. Also you will hear what Sjogren's Syndrome is and why individuals are more likely to be diagnosed with lymphoma, and how researchers have developed a tool for doctors to better score the risk of non-Hodgkin's lymphoma. You will also hear the latest about my journey dealing with swollen glands, and why I'm being tested for Igg4 Disease.
Resource
https://lymphomanewstoday.com
Sjögren's Syndrome: Causes, Symptoms, Diagnosis & Treatments (clevelandclinic.org)
An Overlapping Case of IgG4-Related Disease and Systemic Lupus Erythematosus - PubMed (nih.gov)
Sentinel Lymph Node Biopsy
In this episode you will find out what a Sentinel Lymph Node Is, and why a biopsy needs to be performed and how its performed. You will also here about a new study which identifies new genetic links to lupus.
October is Breast Cancer Awareness Month Please go and get your Mammogram. We are all in the Fight For A Cure!
Resource
Lupus Foundation Of America (2021, 08 October) Study Identifies New Genetic Links To Lupus
Medlineplus.gov (2021, 06 October) Sentinel Lymph Node Biopsy
Melissa Coulier
Melissa Coulier is a trailblazer in the field of photography, she is here to tell her story of living with lupus.
Lifestyle Brand M/M melandmelco.com
#melissacoulier #lupus #mystorylivingwithlupuspodcast
Patti Kaye Bevilacqua
In this episode you will hear about the journey and triumphs of Patti Kaye Bevilacqua of living with MS.
#ms #pattibevilacqua #chronicillness #mystorylivingwithlupuspodcast
Medical Error What's That?
In this episode you will here how medical errors can affect your care, and what is considered a medical error. Also is Hypothyroidism-Depression Link as Strong as We Think? Suicides Rising for Black Girls. Latest in Healthcare News.
#medicalerror #suicidesrisingforblackgirls #mystorylivingwithlupuspodcast
Christina Kantzavelos - Begin Within Today
In this episode you will meet Christina Kantzavelosa California licensed psychotherapist and writer, but most importantly she also suffers from chronic illness. We are discussing healing, your mind, body and spirit and living a positive life, and how journaling can help you do just that.
Pick up your Begin Within - A Daily Healing Journal at: https://beginwithintoday.com and receive 10% off of your purchase using discount code: LUPUSWARRIOR. Get yours while supplies last.
To join the Empowerment Circle - go directly to: https://beginwithintoday.com
Facebook.com/beginwithintoday
Instagram.com/beginwithintoday
twitter.com/bwtjournal
linkedin.com/christinakantzavelos
#positivity #chronicillness #beginwithintoday #mystorylivingwithlupuspodcast
Clinical Challenge: Diagnosing Hidradenitis Suppurativa
In this episode you will hear the clinical challenges when it comes to diagnosing HS. Also, you will hear the latest in lupus news, along with the conclusion of Injecting Cocaine Into Your Spine for Science.
Resources
MEDPAGE TODAY (12, August 2021) Clinical Challenge: Diagnosing hidradenitis suppurativa
MEDPAGE TODAY (22, July 2021) Injecting cocaine into your spine for science
Lupus Foundation of America (24, August 2021) For African Americans with Lupus, 'Lact-Cer' May Help predict heart disease
#hiradenitissuppurativa #lactcert #mystorylivingwithlupuspodcast
Author Heather Rendulic
In this episode you will hear the amazing story of Author Heather Rendulic journey of living with Cavernous Angioma.
To purchase her book Head Strong Through Life, Love and Brain Surgery. Go to her website- heatherheadstrong.com
#cavernousangioma #headstrong #mystorylivingwithlupus.com
Deceived From Within Author Darren Radke
In this episode Author Darren Radke discuss his journey of living with both APS an autoimmune illness that is more common in women. It is rare fewer than 200,000 cases per year in the United States. He also discusses his symptoms of lupus.
To purchase this inspirational book go to: www.deceivedfromwithin.com. You wont be disappointed.
#antiphospholipidsyndrome #malelupus #mystorylivingwithlupuspodcast
How Men Can Cope with a Chronic Disease Like Lupus
In this episode men will learn some coping techniques on how to cope with lupus. Also you will hear how HCQ is associated with lower risk of developing endometriosis in women with lupus. Part 2 of injecting cocaine into your spine for science yes, doctors actually did this. And lastly you will hear why I have to have a biopsy performed.
Resource
Lupus Research - How Men Can Cope with a Chronic Disease Like Lupus
Lupus Foundation of America - Hydroxychloroquine is associated with lower risk of developing endometriosis in women with lupus.
MEDPAGE TODAY - Injecting Cocaine Into Your Spine for Science
#menwithlupus #endometriosisinwomenwithlupus #mystorylivingwithlupuspodcast
Healthy Lifestyle Limits Lupus Risk?
In this episode you will hear what states about living a healthy lifestyle may limit the risk of an individual having lupus. Also you will hear about the importance of seeking help from a qualified mental health professional. Lastly it's story time, that's right story time. You will hear part 1 of injecting cocaine into your spine for science.
Resource
MEDPAGE TODAY (24, July 2021) To prevent chronic illness, start with mental health.
MEDPAGE TODAY (22, July 2021) Injecting Cocaine Into Your Spine For Science
MEDPAGE TODAY (22, July 2021) Healthy Lifestyle Limits Lupus Risk — Diet, exercise, weight, smoking, and moderate alcohol use contributed to lower risk in women
#lupus #mentalhealth #healthylifestyle #mystorylivingwithlupuspodcast
New Testing Improves Disease Diagnosis and Helps Guide Treatment Decisions in Lupus
In this episode you will hear about the newly published research that further demonstrates the effectiveness of the lupus diagnostic test known as the AVISE Lupus Test. Also you will hear about the Urban Institute study on the outcomes of black and white patients.
Resource
Lupus Foundation of America (14, July 2021) AVISE Lupus Test Improves Disease Diagnosis and Helps Guide Treatment Decisions
Los Angeles Times (14, July 2021) Same hospitals, same surgeries, but worse outcomes for Black Patients than White Ones.
#lupus #newtesting #structuralracisiminhospitals #mystorylivingwithlupuspodcast
Slow Steroid Tapering Succeeds in SLE/Fibromyalgia likely the result of autoimmune problems/ Nurse Suspended Over TikTok Videos About Patients
Go and leave a review, like and subscribe.
#steroid #sle#fibromyalgia #tiktoknurse #gastroparesis #mystorylivingwithlupuspodcast
How Much Is Too Much/ Lupus And Your Emotional Health
In this episode you will learn about Anxiety and Lupus. I will give you some techniques to help you cope.
Resource
HSS (28, June 2021) Lupus and Anxiety
verywellmind.com (28, June 2021) How Much Is Too Much
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Don't forget to follow me on IG- @iamlupus IG-mystorylivingwithlu
#lupus #anxiety #mystorylivingwithlupuspodcast
In Lupus Keep BP Below 130/80
In this episode you will hear why researchers believe it for individuals with lupus maintain a lower BP. Also in this episode you will hear about Tumid Lupus Erythematosus, Signs, Symptoms and Treatments and lastly What Is Whole Persons Health, Is it Physical, Mental, Environmental?
Resource
MedPage Today (19, June 2021) In Lupus, Keep BP Below 130/80
NIH (19, June 2021) Tumid Lupus Erythematosus
PubMed (19, June 2021) What is Whole Person Health. Retrieved from: https://pubmed.ncbi.nlm.nih.gov/
Latest in Health Care News
In this episode you hear about a black doctor who won a $2.75 million verdict, and you will never guess what the judge in the case did. Also you will hear about association of California's prescription drug coupon ban with generic drug use. And lastly Houston Methodist sued over vax mandate.
Resource
MedpageToday (01, June 2021) Houston Methodist Sued Over Vax Mandate
JAMANetwork (15, June 2021) Association of California’s Prescription Drug Coupon Ban With Generic Drug Use
Orlando Sentinel (04, June 2021) Doctor plans to appeal after judge rejects jury’s verdict in AdventHealth discrimination suit
#healthcarenews #houstonmethodist #prescriptiondrugs #mystorylivingwithlupuspodcast
When Hyperactive Proteins Trigger Illnesses/Plant-Derived Compound May Help Treat Chronic Pain
In this episode you will hear how hyperactive proteins trigger illnesses, also do you think that plant-derived compounds could help treat chronic pain? Also you will hear how doing some exercises can help with chronic pain management.
If you are listening on Applepodcast please subscribe, rate and leave a review.
Resource
Medical News Today (09, June 2021) Plant-derived compound may help treat chronic pain.
Science Daily (02, February 2021) When hyperactive proteins trigger illnesses
#hyperactiveproteins #plantderivedcompound #mystorylivingwithlupuspodcast
For Lupus Mental Health, Physical Activity Matter/ Lung Hemorrhage In Lupus: Which Patients Die?
***Disclaimer Discretion Advised***
In this episode you will hear what researcher state how inactivity in individuals with lupus causes depression. Also you will hear about Lung Hemorrhage in, Lupus, risk factors include older age, longer disease duration, infection and certain treatments.
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Resource
MedPage Today ( 05/31/2021) Lung Hemorrhage In Lupus
MedPage Today ( 05/31/2021) For Lupus Mental Health, Physical Activity Matters
#lupus # #lunghemorrhage #mystorylivingwithlupus
What Connects Lupus And Diabetes?
In this episode you will hear what really connects lupus and diabetes is it caused by the medication that we take for lupus? Is the connection based on antibodies? Or is it both? You will find out!
Resources
MEDPAGE TODAY (23, May 2021) Op-Ed: Diabetes Is Not An Equal Opportunity Killer---Policy change and community intervention can help fight disparities. Retrieved from: https://www.medpagetoday.com/endocrinology/diabetes/92742
Dr. Gary (22, May 2021) What Connects Lupus and Diabetes? Retrieved from: https://www.drgaryslupustreatment.org/