Susan Hendrix My Story Living With Lupus

Episode 32 Chronic Disease Coalition HQ

An episode of Susan Hendrix My Story Living With Lupus

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By Susan Hendrix My Story Living
Susan Hendrix is a lupus survivor who has achieved a great deal while dealing with this chronic illness. She will take you through her lows and highs, but most importantly she will bring further awareness to this chronic illness and allow others to know you can still live your life to the fullest. Susan Hendrix is educated in the field of Health and Science, at the age of 29 she became an entrepreneur and established her own Durable Medical Equipment Company along with a Medical Consulting Firm. Cover art photo by http://efeck.com ("SM")
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Life Lessons with Shelia Smith
You'll hear from Motivational Speaker, Creator of Rightsideof50 and Life Lessons on How to Be a Better You. This is Session 2 of Episode 2
19:24
August 16, 2019
The Most Common Reasons Individuals With Lupus Are Hospitalized
You'll hear the most common reasons why individuals with lupus are hospitalized and research shows why they are readmitted back into the hospital. You'll also hear about PAH, and what I've been going through dealing with this rare condition.
30:59
August 16, 2019
Breast Cancer Awareness
In this episode you'll hear some statistics on breast cancer, but most importantly you'll hear Motivational Speaker Tasha Brown tell her story of surviving breast cancer.
32:58
August 9, 2019
Lupus Low Disease Activity State Linked to Reduced Healthcare Costs. Progentec Granted $1.7M
In this episode you'll hear how low disease activity reduces healthcare cost, and why its important for physicians of lupus patients, to try to educate patients on how to get to this state. Also you will hear how Progentec has developed new technologies that could possibly diagnose patients early and also can tell when a patient will go into a flare. This is done by biomarkers.
31:19
August 2, 2019
Episode 80 The Lupus Family Registry and Repository/The National Lupus Registry
In this episode you will hear what the purpose of the Lupus Family Registry and Repository is, you will also hear about the weaknesses and strengths of the Lupus Family Registry and Repository. You will also hear about the National Lupus Registry and the purpose it serves.
42:33
July 26, 2019
Episode 79 Life Lessons With Shelia Smith
In this episode you will hear from Motivational Speaker and Creator of Rightsideof50
48:33
July 19, 2019
Episode 78 Major Challenges Of Lupus
What does the medical field consider to be the major challenges in lupus in 2019? Also you hear about cardiac issues in minority populations who have been diagnosed with lupus, who's at higher risk for cardiovascular disease?
38:23
July 12, 2019
Episode 77 Oral Health For Lupus Patients
In this episode we will discuss some of the problems patients with lupus has when it comes to their teeth. You will also hear the winners of the poetry contest given by Author Henery X.
47:22
July 5, 2019
Episode 76 Human Rights
In this episode you'll hear about human rights. Trump Administration views on providing soap for children in immigration custody. Is this a violation of the children's human rights? I give my opinion.
33:29
June 28, 2019
Episode 75 Pop Up Tuesday!
In this episode you'll hear about a jury that awarded a woman $3M, also do you need help getting your Rx, and Detroit's own Author Henery X has a poetry contest. So you know what to do grab your cup of ☕ your cup of 🍵 and if your listening late at night you know I appreciate you so grab your favorite glass of 🍷 and join me for My Story Living with Lupus!
25:45
June 25, 2019
Episode 74 This past week in healthcare investigations
In this episode you'll hear about Dead Kids, Hospital's Secret Tapes; Hush-Hush Alzheimer, Trina CEO Going to jail. Also Ebola Funds Wont Help Congo Until The Disease Spreads and finally Inpatient Opioids Influence At-Home Use. So you know what I want you to do grab your cup of ☕your cup of 🍵 and if your listening late at night you know I appreciate you, so grab your favorite glass of 🍷and come on and join m ed right hear on My Story Living with Lupus Podcast.
46:43
June 21, 2019
Episode 73 Kids With Lupus, Damage Ahead
In this episode you will hear about the affects of corticosteroids usage and the damages it causes on children with lupus. You will also hear about the Charli ed E & Minnie P Hendrix Foundation endeavours that will start in January,2020
28:34
June 14, 2019
Episode 72 Rightsideof50
In this episode you'll hear exactly what the Rightsideof50 is all about.
31:02
June 7, 2019
Episode 71 Bishop Elect Dr. Henry Nelson
In this episode you'll hear a Motivational word, along with music to touch your spirit
49:42
June 6, 2019
Episode 70 Hatch-Waxman Act
You will exactly what the Hatch-Waxman Act is and what it means to the patient and the impact on the pharmaceutical industry. You will hear about a natural herb that I have been taking for pain. And finally you will hear two interviews first Katherin Eban, and secondly lawsuit that has been filed against the generic pharmaceutical companies, which was aired on PBS NewsHour.
39:55
May 31, 2019
Episode 69 Veterans + PTSD=Autoimmune Disease
In this episode you will hear if PTSD in Veterans really cause autoimmune diseases such as lupus. You will also hear about The Warrior Stands In Their Pain. So you know what to do, grab your cup of coffee, your cup of tea and if your listening late at night grab your favorite glass of wine and join me right here on My Story Living with Lupus".
35:32
May 24, 2019
Episode 68 The Strength of a Warrior/Champion
In this episode you will hear that half of Americans still don't or shall I say fail to realize what lupus is. Also you will hear about the Warrior/Champion Strength.
18:28
May 10, 2019
Episode 67 The Way Of The Warrior/Champion
In this episode I will provide to a message that will make you think and reflect on your life living with Lupus. You will also hear questions from a lister for Author Henery X (Long).
50:52
May 4, 2019
Episode 66 Antoinette Thames A Lupus Champion Story .
In this episode you will hear about 60 doctors and Pharmacists who were busted. Also Antoinette Thames tells her story of Living with Lupus.
42:06
May 3, 2019
Episode 65 Interview with Author Henery X (Long)
In this episode you will hear recent research performed by NYU Medical School. You will also hear about Award Winning Short Film Standing Eight. You will hear my interview of Detroit's own Author Henery X (Long) he will be telling you about his current book "It Was Destined...Urban Legend ". So it back grab your cup of coffee, your cup of tea and if your listening late at night grab your favorite glass of wine.
46:11
April 26, 2019
April 19, 2019
51:48
April 19, 2019
Episode 64 What Is Nash
In this episode you will hear about $1.2B scam bust by the Feds, also you will learn about Nash, what it is, signs, symptoms and treatments.
32:45
April 12, 2019
Episode 63 Inspirational and Motivational Tuesday
You'll hear Pastor Ken Simmons keep it real with Inspirational and Motivational word to keep you going.
51:57
April 9, 2019
Episode 62 Inspirational and Motivational Friday With Susan Hendrix
This is an Inspirational Word to get you through your day.
12:21
April 5, 2019
Episode 61 Lupus Vs HIV Part 2
In this episode you'll hear the statistics regarding those who are living with HIV/Aids in the U.S. and Globally especially in Sub-Saharan Africa. You will also hear about the proposed health care cuts to Medicare and Medicaid.
42:09
April 5, 2019
Episode 60 Lupus vs HIV/Aids
In this episode you will be surprised of what these two illnesses have in common. You will also hear a case study journal publish in the NIH (National Institutes Of Health ).
33:31
March 29, 2019
Episode 59 HIV/Aids
Coming up this Friday 2 part series.
02:04
March 27, 2019
Episode 58 Inspirational Tuesday
It's Inspirational and Motivational Tuesday with Pastor Raymond Collins of Houston, TX.
32:11
March 26, 2019
Episode 57 Leukopenia and Lupus
In this episode you'll hear about what leukopenia is, the signs and symptoms and how it is diagnosed. You'll also hear about a research study regarding cytopenia amongst individuals diagnosed with lupus which was reported in Lupus News Today.
29:31
March 22, 2019
Episode 56 Inspirational and Motivational Tuesday with Pastor Raymond Collins
This episode is intended to give you a word of inspiration that will motivate you throughout the week.
48:16
March 19, 2019
Episode 55 Oak Park, Michigan Doctor and Son Raided by Feds
In this episode I will talk about the Oak Park, Michigan Doctor and Son who were raided on Tuesday. And I will also explain what Step - Therapy really is. Follow me on Twitter, and IG My Story Living with Lupus. Also visit our website.
47:10
March 15, 2019
Episode 54 Inspirational and Motivational Monday
We all go through situations in life, but how we react to those situations can truly determine the out come. You'll hear not only an Inspirational word but a motivational word of hope with Pastor Ken Simmons of Merriville, Indiana.
26:25
March 11, 2019
Episode 53 Hemolytic Anemia and Lupus
In this episode you'll hear about the what exactly is hemolytic anemia, signs, symptoms and treatment for those of us with lupus. So you know what to do.
15:14
March 8, 2019
Episode 52 Pulmonary Hypertension and Lupus
In this episode I will talk about what PH is, the development of PH in patients with SLE, PH and SLE diagnosis and prevalence, treatment of PH in patients with SLE. You will also hear about the research that has been published on this topic. You can follow mystorylivingwithlupus on #IG and visit our website https://mystorylivingwithlupus.com contact me via email: mystorylivingwithlupus@gmail.com
22:58
March 5, 2019
Episode 51 Fibromyalgia vs. Lupus
In this episode you'll hear about the differences in symptoms, pain, causes and treatment. You will learn about CRPS and what it is. Also listen closely because I'm doing a giveaway.
53:26
March 1, 2019
Episode 50 Cardiac Catheterization What Is It?
In this episode you'll hear about What Is Cardiac Catheterization? What the procedure entails, risk and why one was performed on myself. #hearthealthmonth
41:25
February 22, 2019
Episode 49 Lupus Brain Fog
In this episode you'll hear about the signs, symptoms, causes and coping strategies for dealing with Lupus Brain Fog.
28:55
February 15, 2019
Episode 48 How Lupus Can Cause Bipolar - Like Mood Symptoms
In this episode you will hear about the different types of Bipolar Disorders, symptoms and treatments. You will also hear how lupus can cause Bipolar - Like Mood Symptoms
31:45
February 8, 2019
Episode 47 Most Common Misconception about Lupus
You'll hear about two women who have become authors despite of living with lupus. You'll hear email responses and you'll hear about the Most Common Misconception about Lupus.
31:57
February 5, 2019
Episode 46 Lyme Disease VS. Lupus
In this episode you'll hear about why Gabapentin has become a controlled substance in Michigan. You will also hear about the similarities and differences of lyme disease and lupus.
43:17
January 25, 2019
Episode 45 Inspirational Saturday Remix
You will hear uplifting and Inspirational gospel music from various artists. ENJOY!
33:08
January 19, 2019
Episode 44 Smooth Sounds Of Jazz
You will hear music from Boney James, Jaheim, and Anita Baker. Enjoy
28:16
January 18, 2019
Episode 43 Part 2 Opioid Epidemic With SLE Patients
You will hear research findings/ statistic on Opioid Use and Death in Chronic Pain Patients with Systemic Lupus Erythematosus . You will also hear an interview on Racial bias in treatment in pain patients.
39:50
January 18, 2019
Episode 42 Author Henery Long
You will hear thought provoking spoken word from his book Positive Energy 24/7. writepath247.com You will hear the latest from Tuskegee Alum Granddaddy O.G. - "On Me" (sound cloud)
12:46
January 16, 2019
Episode 41 The Smooth Sound Of Jazz
In this episode you'll relax to the smooth sounds of jazz to relax your mind and spirit. Enjoy
32:03
January 12, 2019
Episode 40 Inspirational Saturday - Dont Look Back
You will hear various gospel recording artists
23:39
January 12, 2019
Episode 39 Part 1 Opioid Epidemic Who's At Fault
In this episode, you will here facts and Statistics regarding the Opioid Epidemic. This is Part 1 of a 2 part episode.
38:00
January 11, 2019
Episode 38 Inspirational Saturday
Music from a variety of gospel singers.
26:42
January 5, 2019
Episode 37 Call In
Call in from Author Henery Long, and my response.
03:49
January 4, 2019
Episode 37 Pain Management Alternative
In this episode I discuss Alternative Treament for Pain Management that is less harmful to the body of lupus patients.
29:25
January 4, 2019
Episode 36. PSA
Happy Holidays, from My Story Living With Lupus
00:13
December 24, 2018
Episode 35 CKD
In this episode you'll hear about how lupus affects the kidneys and the stages of chronic kidney disease. Also you'll hear about a lupus warrior who is in need of a kidney donor.
32:59
December 21, 2018
Episode 34 Author Henery Long
You will hear selections of Author Henery Long work, from Positive Energy 24/7
10:08
December 15, 2018
Episode 33 Inspirational Saturday
Inspirational Gospel Music to uplift your soul.
36:56
December 15, 2018
Episode 32 Chronic Disease Coalition HQ
Interview with Executive Director Scott Bruun of the Chronic Disease Coalition HQ.
35:15
December 14, 2018
Episode 31 Inspirational Saturday
Inspirational gospel songs.
21:23
December 8, 2018
Episode 30 Rights as A Patient/Interview with Michelle Hudson
In this episode I provide the listner with their rights as a patient. In the second half of the podcast Michelle Hudson tells her story of Living with Lupus.
31:02
December 7, 2018
Episode 28 Inspirational Saturday
Inspirational gospel music from various artists.
25:37
December 1, 2018
Episode 28 What If
What if talks about two different situations regarding medical care and treatments. What If It Happened To You?
32:30
November 30, 2018
Episode 26 Living With A New Normal
I'll discuss how to live a new normal with a chronic illness.
26:02
November 23, 2018
Episode 25 Inspirational Saturday
You will hear inspirational music from various artists.
51:13
November 17, 2018
Episode 24 New Lupus Research
New Research on Lupus.
21:15
November 16, 2018
Episode 23 Inspirational Saturday
You will hear the inspirational music of various artists.
58:14
November 10, 2018
Episode 22 Author Henery Long / Granddaddy OG
You will hear excerpts from Author Henery Long book Positive Energy 247. You will also hear the music of Tuskegee University Alum Granddaddy OG.
17:15
November 9, 2018
Episode 21 Patient Doctor Communicating
Conversation with my doctor regarding communicating better with lupus patients.
25:06
November 8, 2018
Episode 19 Inspirational Saturday
I pose the question "Do You Want To Make It? You will hear a variety of inspirational gospel music.
47:04
November 3, 2018
Episode 18 High Rate of Suicide with Patients With Lupus
In this episode, I will discuss the rate of suicide with patients with SLE, along with Neuropsychiatric Manifestations of SLE. National Suicide Prevention Lifeline: 1-800-273-8255
37:31
November 2, 2018
Episode 17 Inspirational Saturday
You will hear songs from Pastor Marvin Sapp, Pastor Donnie Mc Clurkin, Rev. James Cleveland, The Queen of Soul Aretha Franklin, Tramaine Hawkins and MC Hammer
41:47
October 27, 2018
Episode 16 Do Lupus Patients Suffer From Depression
I'll discuss if lupus patients suffer from depression. Also I will give the symptoms and signs of clinical depression. #elitecircle🔘
28:16
October 26, 2018
Episode 15 Inspirational Friday
Songs to give you encouragement featuring Marvin Sapp, Marvin Winans
12:48
October 19, 2018
Episode 14 Elia Perez CEO & President
You'll hear an interview with The Lupus Foundation of America, Utah Chapter CEO & President Elia Perez
20:35
October 15, 2018
Episode 13 Is Healthcare a Right or Privileged
I'll discuss the Pros and Cons of Healthcare as a Right or Privileged. Also you will hear a portion of a paper I written while working on my Master Degree (The Fleecing of American Healthcare System). This paper entails how some doctors order duplicate testing and services on patients which can ultimately raise healthcare expenditures. Also the paper details the need for healthcare for all. #ELITECIRCLE
25:14
October 12, 2018
Episode 12 Tomaka Monique Lewis-Cooper
Tomaka Monique Lewis-Cooper tells her story of Living with lupus.
24:53
October 8, 2018
Episode 11 Current Events Rant
I'm talking about Brett Kavanaugh and the importance of getting out to vote in November.
18:08
October 4, 2018
Episode 9 The Forgotten Population
In this episode you will hear statistics on the Native American Population Dealing With Lupus.
21:57
September 28, 2018
PSA: Upcoming Discussion
The forgotten population, I'll be discussing the challenges in lupus that Native Americans face.
01:18
September 22, 2018
Understanding ANA Testing
In This episode you will hear about what ANA testing entails and why it is performed. You will also hear about the acronym SOAP and what it stands for.
22:52
September 21, 2018
Episode 7 Things You Need To Know
In this episode I will inform you on the 11 SLE criteria when dealing with lupus. You will hear from Delebra Hudson on living her life with lupus.
38:04
September 14, 2018
Episode 6 The Day My Heart Stopped.
Episode 6 is dedicated to Wanda Allen who gained her Angel Wings. Also you will hear about how heart disease is a major complication of lupus. You will also hear about the day my heart stopped November 2014. Please help bring Awareness to this Chronic Disease Called Lupus, we are in need of further funding for research for a cure.
27:19
September 10, 2018
Episode 5 Living A Healthier Life With Lupus Susan Hendrix
In this episode you will hear about how Abundant Harvest Aquaponics is providing organic produce to the community and schools. You will also learn how I changed my eating habits after being on Prednisone, and what chemicals are placed in foods, along with the use of antibiotics to make livestock grow bigger. Remember dont Live to Eat instead Eat to Live, your body is a Temple.
20:20
September 8, 2018
Episode 4 The Cost Of Treating Lupus Susan Hendrix
In this episode I will be discussing the cost of treating an individual with lupus. The impact that this chronic illness causes and one of my experiences of being admitted into the hospital.
23:50
September 2, 2018
Episode 3 My Family's Reacton To My Diagnosis Susan Hendrix
In this episode you will hear about my family's reaction to my lupus diagnosis.
20:09
August 31, 2018
Episode 2 Finding The Right Doctor Susan Hendrix
In this episode I will explain how I had to find the right doctor to help control the symptoms of lupus. You will also find out why I keep my illness from my family and when they were finally informed about my illness.
14:17
August 28, 2018
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