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The Myositis Family Podcast

The Myositis Family Podcast

By The Myositis Association

Welcome to the Myositis Family Podcast sponsored by The Myositis Association (TMA). The Myositis diagnosis and journey is different for each person and includes more than the individual. This podcast is designed to share patient stories, provide support, information, and inspiration for our Myositis family and caregivers.

Disclaimer: “The expressed views and opinions are from the myositis community and not an endorsement from TMA. Please consult with your medical team before trying any new product or treatment.”
Currently playing episode

Ep 11 | Malati -- IBM

The Myositis Family PodcastNov 26, 2022

00:00
13:13
S2 E3 | Corene DM Md5 Young Adult

S2 E3 | Corene DM Md5 Young Adult

We know that everyone's myositis journey is different, but we also know that some things are similar. Join in and listen to Corene's story and journey with DM and Md5 as a Young Adult.

Mar 27, 202323:21
S2 Ep 2 | Chuck - DM

S2 Ep 2 | Chuck - DM

Join us and listen in as Chuck shares his journey with dermatomyositis, from its harrowing start into a place of acceptance. We know that every myositis journey is different, and Chuck's is a perfect example.

Feb 26, 202311:21
S2 Ep 1 | Eric - DM

S2 Ep 1 | Eric - DM

Join us and listen in as Eric shares his journey with dermatomyositis, from its gradual start into a place of full blown. We know that every myositis journey is different, and Eric's is a perfect example.

Jan 26, 202312:43
Ep 12 | Krista

Ep 12 | Krista

Join us and listen in as Krista shares her journey with dermatomyositis, from its harrowing start into a place of acceptance and recovery. We know that every myositis journey is different, and Krista's is a perfect example.

Dec 26, 202216:15
Ep 11 | Malati -- IBM

Ep 11 | Malati -- IBM

Join us and listen in as Malati shares not only her journey with IBM but also some tips for thriving with this disease. We know that every myositis journey is different, and Malati's is a perfect example.

Nov 26, 202213:13
Ep 10 | Molly

Ep 10 | Molly

Join us and listen in as Molly shares her journey with dermatomyositis, along with her family's support. We know that every myositis journey is different, and Molly's is a perfect example.

Oct 24, 202216:50
Ep 9 | Colleen -- NAM/PM

Ep 9 | Colleen -- NAM/PM

Join us and listen in as Colleen shares her journey with PM and then NAM. You will enjoy hearing how her horses made adjustments to accommodate her condition. We know that every myositis journey is different, and Colleen's is a perfect example.

Sep 26, 202216:25
Ep 8 | Fiona

Ep 8 | Fiona

Join us and listen in as Fiona shares her journey with dermatomyositis, the years of ups and downs until she took control of her recovery. We know that every myositis journey is different, and Fiona's is a perfect example. You'll enjoy her tips for wellness and regaining her physical strength.

Aug 26, 202215:50
Ep 7 | Jason -- NAM IIM

Ep 7 | Jason -- NAM IIM

Join us and listen in as Jason shares how his diagnosis has affected his family and his tips for family and caregivers. We know that every myositis journey is different, and Jason's is a perfect example.

Jul 26, 202214:46
Ep 6 | Robert

Ep 6 | Robert

Join us and listen in as Robert shares his journey with dermatomyositis, from one treatment to another. We know that every myositis journey is different, and Robert's is a perfect example.

Jun 26, 202214:07
Ep 5 | Barbara -- Antisynthetase Syndrome/ILD

Ep 5 | Barbara -- Antisynthetase Syndrome/ILD

Join us and listen in as Barbara shares her journey with myositis, from one diagnosis to the next. Even with her medical background, Barbara faced similar struggles with getting diagnosed and treatment. We know that every myositis journey is different, and Barbara's is another perfect example.

May 26, 202219:29
Ep 4 | Bruce -- IBM

Ep 4 | Bruce -- IBM

Join us and listen in as Bruce shares his IBM journey, from 'it came from nowhere' and how he is managing this progressive disease. We know that every myositis journey is different, and Bruce's is a perfect example.

Apr 26, 202214:16
Ep 3 | Danielle

Ep 3 | Danielle

Join us and listen in as Danielle shares her journey with dermatomyositis, from its harrowing start into a place of acceptance and recovery. We know that every myositis journey is different, and Danielle's is a perfect example.

Mar 26, 202214:57
Ep 2 | Vuma

Ep 2 | Vuma

Join us and listen in as Vuma shares his journey with dermatomyositis and polymyositis, undergoing a battery of tests before being diagnosed. We know that every myositis journey is different, and Vuma's is a perfect example.

Feb 26, 202221:34
Ep 1 | Elisa

Ep 1 | Elisa

Join us and listen in as Elisa shares her journey with dermatomyositis, from its harrowing start into a place of acceptance and recovery. We know that every myositis journey is different, and Elisa's is a perfect example as a woman of color. 

Feb 05, 202220:05