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The Independent Life

The Independent Life

By Center for Independent Living of North Central Florida

The Independent Life is a podcast where we explore the services, issues, ideas, and people who will empower you to become the best version of yourself imaginable, attain your goals for Living Independently, and to serve others to your fullest potential.
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Inspiring Leadership with Sarah Goldman & Whitney Doyle

The Independent LifeJul 15, 2022

00:00
01:15:58
Empowering Independence: CIL Day 2024

Empowering Independence: CIL Day 2024

In this episode, we dive deep into the heart of CIL Day 2024, a pivotal event where Centers For Independent Living convene at the Capitol in Tallahassee to advocate for the rights and needs of individuals with disabilities. Tony, reflects on this year's remarkable success, marked by increased engagement with senators and representatives, signaling a growing momentum for the cause.


Joining the conversation are esteemed guests who played vital roles in this year's event, as well as, in their every day role serving and advocating for our consumers. Jane Johnson, Executive Director of The Florida Association of Centers For Independent Living (FACIL), representing all 15 centers in Florida, provides insights into the collaborative efforts that make CIL Day possible. Brian Johnson, Chief Program Officer at the Center for Independent Living of Broward and Gold Coast, shares his perspectives on the impact of CIL Day on the local community.

A highlight of this episode is Ken Kerstetter's firsthand account of attending CIL Day for the first time. As the Associate Director at Resource Center Disability Solutions, serving Brevard and Indian River Counties, Ken offers a fresh perspective on the significance of meeting with legislators and sharing stories of empowerment.


We explore the year-round dedication that culminates in CIL Day, from grassroots advocacy to strategic planning by the FACIL legislative committee. The importance of securing funding to support independent living services is emphasized, with concrete examples illustrating the impact on individuals' lives.


Our guests delve into their sources of inspiration and the values that drive their commitment to this critical work. From a shared dedication to promoting independence to a passion for fostering inclusive communities, their insights shed light on the enduring significance of CIL Day and the ongoing fight for disability rights.


Tune in to gain a deeper understanding of the tireless advocacy efforts behind CIL Day and the transformative impact on individuals striving to live independently within their communities.


Feb 08, 202401:27:50
Empowering Voices: Navigating Disability Culture and Leadership with Christina Mills

Empowering Voices: Navigating Disability Culture and Leadership with Christina Mills

In this compelling episode, we sit down with Christina Mills, the Senior Director of Inclusive Policy & Advocacy for Elevance Health, who has just returned from a transformative trip to Japan with JIL (Japan Independent Living). Christina shares her insights into disability history, paying tribute to the influential figure, Justin Dart, and exploring the impact of his advocacy.


Delving into her personal journey, Christina opens up about her upbringing with Osteogenesis imperfecta, a genetic disorder that shaped her resilience. From navigating the challenges of growing up with a disability to being invited to the Youth Leadership Forum in California, her story is one of empowerment and determination.


Drawing from her extensive experience with the California Independent Living Council and active involvement in the state association, Christina discusses her advocacy work within sectors such as emergency management and digital access for people with disabilities.


Tony and Christina engage in a rich conversation, exploring the intricate nuances of disability identity and culture. They tackle the paradox of cultivating a distinct disability culture while advocating for inclusion. The dialogue extends to strategies on how advocates can work in unity to achieve independent living and leadership. Join us for an enlightening conversation as Christina Mills and Tony unravel the complexities of disability advocacy, paving the way for a more inclusive and empowered future.

Jan 18, 202401:27:38
Bridges of Unity: Reflections on Independence and Collective Growth with Tony Delisle

Bridges of Unity: Reflections on Independence and Collective Growth with Tony Delisle

In this reflective episode, Tony shares his thoughts on the past year, expressing gratitude for the milestones achieved by CILNCF and its role in fostering independence. But Tony, ever the visionary, isn't one to rest on laurels. He shares his philosophy of being pleased with where we are but never satisfied, always hungry for improvement—a sentiment that echoes the spirit of the entire independent living network.


The episode unfolds with Tony exploring the profound connection between the independent living philosophy and the broader state of humanity. For Tony, it's more than just an organizational goal; it's a commitment to nurturing the collective spirit of humanity, encouraging people to embrace change and strive towards becoming the best versions of themselves. With the new year, Tony looks optimistically at the challenges that lie ahead, recognizing them as opportunities for growth—emphasizing that CILNCF is in the business of receiving people going through challenges.


Disability, for Tony, is not a barrier but a thread that weaves through the fabric of the human experience, connecting us all. He shares his vision for disability to be a force that brings people together, a unifying element that transcends societal divisions. In a world that sometimes seems determined to tear us apart, Tony urges us to let disability be the bridge that brings us together.


Tony's hope and wish for the future resonate throughout the episode—to see humanity come together more and more. Join us in this inspiring journey of reflection, unity, and the unwavering pursuit of a world where everyone, irrespective of ability, is embraced, valued, and celebrated.

Jan 04, 202442:11
A Visionary Dialogue on Adaptability, Advocacy, and Leadership with David Farm

A Visionary Dialogue on Adaptability, Advocacy, and Leadership with David Farm

Welcome to another empowering episode of The Independent Life Podcast! In this episode, Tony engages in a refreshing conversation with David, the Executive Director of the Commission for the Transportation Disadvantaged. What makes this episode particularly special is the shared journey of Tony and David, both navigating the world with low vision and overcoming similar challenges in education, thanks to the support of their parents. From the challenges faced in navigating the education system to the importance of resiliency and adaptability, this episode unveils the personal stories and shared experiences that have shaped both Tony and David.

Together, they dive into David's multifaceted experiences, spanning health and humane services, employment, and transportation. Listeners will gain insights into the challenges of being a student with a disability, the importance of assistive technologies, and the need for accommodations in education. The episode delves into personal growth, emphasizing the significance of adaptability and resiliency. The conversation unfolds into a rich exploration of disability as an asset rather than a liability, as they exchange thoughts on not succumbing to society's preconceived notions about disability.

Leadership takes center stage as they dissect its true essence. It's not just about holding a position of authority but involves teamwork and taking ownership of decisions. David shares his journey in political science, public policy, and disability advocacy as he reflects on what is effective in destigmatizing disability. 

Dec 21, 202301:33:30
Catalyzing Change: Advocacy, Leadership, and Transforming Healthcare with Jennifer Ungru
Dec 12, 202301:27:35
Lobbying Beyond Politics: A Faithful Journey with Darrick McGhee

Lobbying Beyond Politics: A Faithful Journey with Darrick McGhee

In this enlightening conversation, our guest, Darrick McGhee, a seasoned lobbyist for the Florida Association Center for Independent Living, unveils the the diverse facets of his life. Beyond the realms of political influence, Darrick is also a Pastor and a man of unwavering faith. Together, Tony and Darrick embark on an exploration of the distinctive intersectionality of lobbying, spirituality, and personal development. Darrick's experiences in both the public and private sectors provide a fresh perspective on what this role can truly embody.


In this episode, Darrick lays bare the challenges faced by the disability community, drawing on his own experiences to create a narrative that resonates with authenticity. The conversation delves into the transformative power of education, dismantling social and cultural stigmas, and breaking free from limiting beliefs that hinder personal and collective progress. Darrick shares his formula for triumphing over adversity, inspiring all who tune in to believe in their own capacity to overcome. Tony and Darrick engage in a discourse on profound topics such as self-discovery, examining the question, "Who am I?" to unlock a deeper understanding of life's purpose. They explore the significance of facing challenges head-on and emerging stronger, using Darrick's life circumstances as a powerful testament to resilience.


This conversation goes beyond the surface, exploring the heart of advocacy, faith, and the transformative journey of a lobbyist who is not only making a difference in the political landscape but also in the lives of those he serves. This episode is a beacon of empowerment, urging us all to reflect on our own paths and the potential for growth that lies within.


Episode Resources:

For More Information about the Center for Independent Living of North Central Florida, please visit http://www.cilncf.org/
Contact Us: cilncf.org@gmail.com
Gainesville office: (352) 378-7474 
Ocala Office: (352) 368-3788 


Dec 01, 202301:29:46
Leadership, Advocacy, and the Power of Utility: A Conversation with Commissioner Gabriella Passidomo

Leadership, Advocacy, and the Power of Utility: A Conversation with Commissioner Gabriella Passidomo

Join us as we sit down with Commissioner Gabriella Passidomo, recently reappointed to the Florida Public Service Commission by Governor Ron DeSantis. Commissioner Passidomo, a dedicated public servant, takes us through her journey from serving in the FPSC’s Office of General Counsel to becoming a crucial figure in ensuring Floridians have access to essential utilities.

A member of the National Association of Regulatory Utility Commissioners (NARUC), Gabby sheds light on her involvement in NARUC committees and task forces, emphasizing the significance of planning and safety in the realm of gas utilities. Delve into her advocacy for the Florida Telecommunications Relay Incorporated (FTRI), a service vital for those with hearing impairments, and discover her commitment to continual improvement in this crucial program.

The conversation takes a personal turn as Gabby shares insights into her experiences with disability, drawing inspiration from her grandfather's journey towards independence with the support of personal care attendants/home-aids. She discusses the importance of equity in utility services, particularly for those with lower incomes.

Tony engages Commissioner Passidomo in a candid discussion on leadership philosophy, emphasizing the values of connection, communication, and collaboration. Gain valuable insights on handling unconstructive criticism, a lesson applicable to leaders and individuals alike. Gabby's unique perspective as an ultra-athlete adds an intriguing layer to the conversation, exploring the parallels between the discipline required in athletics and its impact on one's approach to life.

Tune in for a thought-provoking exploration of leadership, advocacy, and the diverse roles Commissioner Gabriella Passidomo plays in shaping the landscape of public service and utilities in Florida.


Episode Resources:

  • PSC Website: https://www.floridapsc.com/


Book Recommendations:

Nov 09, 202301:21:37
Navigating Florida's Legislative Landscape with Jane Johnson

Navigating Florida's Legislative Landscape with Jane Johnson

In this episode, we sit down with Jane Johnson, the dedicated CEO of the Florida Association of Centers For Independent Living (FACIL), representing all 15 centers across the Sunshine State. As Florida gears up for its upcoming legislative season, Jane takes us on a journey through the world of advocacy, legislation, and the power of collaboration.

Jane begins by providing an insightful introduction to FACIL, shedding light on the organization's mission and its crucial role in supporting people with disabilities in Florida. Join us as she delves into the intricate details of the legislative season, giving us a glimpse of the cultural and political climate in the state.

The heart of the discussion revolves around the legislative agenda FACIL is championing. With unwavering dedication, Jane shares valuable information for those involved in public entities, shedding light on the intricacies of the advocacy process.

One key aspect that Jane and Tony explore is the importance of networking with other organizations. They emphasize the need to work closely with agencies like the Agency for Persons with Disabilities (APD) and the Department of Child and Family Services to create a more inclusive and supportive environment for individuals with disabilities.

Tune in to this episode to gain a deep understanding of the vital work FACIL is doing, the legislative season ahead, and the passion that drives the leaders in the field of independent living. It's a journey that promises to inspire and inform.

Oct 26, 202301:29:19
Empowering Change: Systems, Leadership, and Unity with Mary Mayhew

Empowering Change: Systems, Leadership, and Unity with Mary Mayhew

In this episode, we explore the vital systems that primarily serve vulnerable communities. We delve into the intricacies of these systems, from Medicaid and child protective services to housing and transportation. Our guest, Mary Mayhew, is tasked with overseeing these massive systems that impact the lives of hundreds of thousands, if not millions, of individuals. Her role is not just about maintaining the status quo; it's about finding ways to make these systems better and more responsive to the needs of the most vulnerable members of our society, many of whom are people with disabilities.

Tony and Mary engage in a dynamic discussion about the inherent purpose and essence of these systems, aimed at extending a helping hand to those in need. Together, they explore the strategies and opportunities for improvement within these systems, dissecting the "why" behind their existence and their fundamental mission.

Mary shares invaluable insights about leadership, the importance of a guiding "north star," cultivating self-confidence and self-worth, and embracing humility. Through personal anecdotes and experiences, they tackle the challenges we all face in life and how we can approach them with resilience and determination.

This episode isn't just about systems and leadership; it's also about personal growth and self-care. Discover the significance of building a strong social support system and the importance of dedicating time to be of service to others. In an increasingly divisive world, they also explore ways to foster unity and bridge the gaps that separate us.


Oct 12, 202301:28:46
A Journey of Resilience and Purpose with Cammeron Smith

A Journey of Resilience and Purpose with Cammeron Smith

Join Tony Delisle on this inspiring episode as he sits down with Cammeron Smith, a dedicated professional working at the CILNCF Gainesville office, focusing on paratransit services. Cammeron's remarkable work involves reaching out to the consumers to determine their need for paratransit services, breaking down the transportation barriers that hinder individuals from accessing education, employment, and full community inclusion.

In this deeply moving conversation, Cammeron shares his personal journey into the world of disability, a journey that began with a traumatic accident that should have taken his life but didn't. He delves into the physical, mental, emotional, and spiritual challenges he faced in the aftermath of the accident and how these experiences transformed his life.

Cammeron and Tony explore the higher purpose and calling that emerged from Cammeron's circumstances. They discuss the struggles he faced while recovering and the ongoing transformation he continues to undergo. Together, they dive deep into the world of post-traumatic stress disorder (PTSD), shedding light on what it's like to be triggered into a PTSD episode and how Cammeron employs techniques to manage and overcome these distressing situations.

The conversation also touches on the crucial topic of mental health, with Cammeron candidly sharing his struggles and how he's working towards overcoming the challenges. He emphasizes the importance of establishing a daily routine as a foundation for mental well-being.

Cammeron's story is not only one of resilience but also a testament to the significance of fellowship and unity among individuals. He passionately discusses the importance of finding and creating our life's purpose, showcasing his commitment to helping others overcome their obstacles and lead independent lives.


About Cammeron:

Cammeron Smith, originally from Williston, FL, relocated to Gainesville during 7th grade, attending Fort Clarke Middle School and Buchholz High School. In high school, they studied Italian for four years, participated in marching band, and played lacrosse. His college journey began as a nursing major at Santa Fe College, simultaneously contributing to the Gator Band's drumline for two years. However, a life-altering car accident prompted a change in direction. Cammeron transitioned to IT-Security Risk Management, earning their A.S. degree in Spring 2022. Currently pursuing a Bachelor's in IST-Security, Cammeron anticipates graduating in Spring 2025. He is passionate about philosophical conversations, Star Wars, Marvel, DC, and sports. Future aspirations include living abroad to broaden their cultural horizons and fulfilling their dream of creating a comic.


Episode Resources:

Sep 28, 202301:31:12
Equity at the Heart of Retail: Serving the Community With Monica Simmonds

Equity at the Heart of Retail: Serving the Community With Monica Simmonds

In this episode, we sit down with a true champion of health equity, Monica Simmonds, the Director of Health Equity Program Implementation for Walmart. But before we dive into the incredible work Walmart is doing, we rewind to a chance encounter that set the stage for a transformative partnership. Tony and Monica, who share a unique journey that began during Tony's first semester of his doctoral program at the University of Florida. Little did he know that teaching a class would lead to a powerful partnership focused on serving marginalized communities, particularly people with disabilities. Together, they embarked on service-based projects that harnessed evidence-based approaches to better understand how to support those in need. Monica joins us to shed light on the incredible work Walmart is doing to promote health and wellness within communities, especially for those facing health inequities. They delve into discussions on disability, attitudes, beliefs, and the importance of serving people with disabilities in society. The conversation takes a deep dive into vital topics such as social determinants of health, health disparities, and health inequities. Discover why Walmart has made it their mission to address these issues and how it's fundamentally ingrained in their values and goals. Monica also shares her insights on solving complex issues affecting marginalized communities and the innovative approaches required to make a lasting impact. Community emerges as a central theme, highlighting the pivotal role played by community-based organizations in this mission. Throughout the episode, we explore the core values and virtues that drive Monica's dedication to this work. Learn what motivates her every day and why she finds inspiration in serving others. Join us for a thought-provoking conversation that uncovers the intersection of retail, health, and community, and how a giant like Walmart is making a meaningful difference in people's lives.



Episode Resources:

  • Connect with Monica Simmonds: https://www.linkedin.com/in/monica-simmonds-msph-10268221b/
  • About Monica Simmonds: https://monicasimmonds.com/
Sep 14, 202301:40:54
Connecting Needs to Resources with Mark Fafard

Connecting Needs to Resources with Mark Fafard

Are you or someone you know in search of essential resources and services within your community to meet unique needs? If you're seeking affordable housing, medical assistance, transportation, social support, or ways to become more involved in your community, this episode is a must-listen! In this informative episode, we're delving into a remarkable solution for a pervasive challenge faced by many individuals and families in search of specialized resources and services within their communities.


Mark Fafard has dedicated his efforts to creating a revolutionary web-based tool, "My Needs Network," an interactive platform has emerged as a beacon of hope for those grappling with finding the right resources to meet their specific needs. Tony and Mark's discussion navigates the genesis of My Needs Network and how it has evolved into an indispensable resource for individuals and families, especially those living with disabilities. The real magic lies in the fact that the platform is built with the intention to be continuosly improved and innovated by the very people it serves. Feedback, insights, and experiences from users will shape the platform into a robust network brimming with diverse resources and services across various categories. But My Needs Network isn't just about locating services; it's a dynamic hub fostering connections, relationships, and empowerment. This episode unravels the platform's unique features that empower users to not only access resources but also to connect with one another, forming a supportive community that transcends the virtual realm. As Tony and Mark delve into the platform's current status and its immense potential, it's clear that the future is a tapestry woven by the community it serves. The platform's growth, evolution, and impact are intrinsically tied to the contributions of the individuals and families it caters to. Through sharing their stories, expertise, and support, users can transform into invaluable resources for others, creating a self-sustaining cycle of empowerment. "My Needs Network" is a testament to the strength of collaboration, empathy, and technology. With countless individuals seeking assistance yet unsure where to turn, this episode shines a light on the transformative power of My Needs Network in illuminating the path towards necessary resources. Tune in to uncover the captivating journey of its creation, its present impact, and the boundless possibilities it holds for a more connected and supported future. Whether you're someone in need or someone who knows someone in need, this episode hopes to help you navigate towards connecting with the necessary resources.


My Needs Network Mission:

Designed for and driven by families and caretakers, My Needs Network is a special needs specific, community-based resource platform. We provide easy to use networking tools for special needs families and organizations to connect, share and find resources. My Needs Network’s abilities and content is solely dependent on the valuable information and expertise provided by the special needs community.


My Needs Network Message:

Dear Special Needs Community: Please note, this is YOUR platform so if you have any suggestions, edits, ideas, or comments that will lead to My Needs Network working for you, please let us know. This includes but not limited to:

  • Resources that need to be added to the database
  • Edits to preexisting resources
  • Ideas for additional tools to be added to My Needs Network
  • Ideas to improve existing My Needs Network tools
  • General thoughts on improving My Needs Network overall

Contact Mark: mark@myneedsnetwork.com


Episode Resources:

Aug 31, 202348:52
Building Inclusive Communities with Ashlyn Michael

Building Inclusive Communities with Ashlyn Michael

In this captivating episode, we're joined by an inspiring individual who is making waves in the world of community engagement and empowerment. Ashlyn Michael, our Community Health Worker at The Center For Independent Living of North Central Florida, sits down with us to share her remarkable journey and shed light on the invaluable work she's been doing to foster a sense of belonging and visibility within the community.


In this candid conversation, we delve deep into Ashlyn's personal journey, navigating life with a low vision disability. Through her own experiences, she brings an unparalleled perspective on the challenges and triumphs faced by those who often go unseen. We'll learn how Ashlyn's unique insight serves as a driving force behind her passion for making a real difference.


Together, Ashlyn and Tony dive into the heart of the matter—what does "community" truly mean? Through a thought-provoking conversation, they dissect how to authentically connect, ensuring every individual feels not just included, but celebrated. And it starts with one fundamental principle: asking and understanding what people what they truly need.


Disability identity comes to the forefront as Ashlyn eloquently articulates the complexities of defining oneself within the context of disabilities. The conversation delves into the intrinsic drive to serve others and the core values that fuel Ashlyn's dedication to her work. From adaptability to social fluency, and from empathy to the innate desire to make a positive impact, listeners gain insight into the qualities that make Ashlyn's approach so effective and inspiring.



Episode Resources:

Aug 17, 202301:34:37
Triumph Over Adversity: Embodying Positivity and Advocating For Disability Rights

Triumph Over Adversity: Embodying Positivity and Advocating For Disability Rights

Join us for an inspiring episode as we sit down with Sean, whose life changed dramatically when he was diagnosed with Multiple Sclerosis (MS) in 2003. From facing initial misdiagnosis to navigating insurance denials, Sean's journey sheds light on the harsh realities individuals with disabilities endure. Discover how he embraced optimism and empowered himself with a positive mindset, leading to remarkable transformations. Sean's passion for writing led him to explore the legacy of Justin Dart, the Father of the Americans with Disabilities Act, and delve into the rich history of the disability rights movement. Tune in for an eye-opening conversation on courage, resilience, and the power of positivity in the face of adversity.

Meet Sean Spence, a visionary leader with an unwavering commitment to community service, organizational development, and fundraising. Throughout his career, Sean has honed his expertise in various domains, including marketing, event production, and business management, amassing an impressive track record of raising over $20 million to support critical causes.

Sean's entrepreneurial spirit has driven him to found and successfully run two ventures: The Sunrise Agency, a thriving marketing firm, and Community Events, a renowned event production company. Additionally, he contributed significantly to a $700 million e-commerce company, serving on its esteemed leadership team.

With a keen understanding of marketing and organizational building, Sean has traversed diverse roles, gaining invaluable insights along the way. Today, he channels his passion and skills to collaborate with The Salvation Army, where he actively raises funds and awareness to empower those living in poverty and facing the aftermath of disasters.

Sean Spence's journey is a testament to his dedication to making a positive impact in the world, and his determination to build a more compassionate and inclusive society.


Episode Resources:

Aug 03, 202301:16:23
Helping Children With Special Needs Be Their Best, with Jeanetta Bryant

Helping Children With Special Needs Be Their Best, with Jeanetta Bryant

On this episode, Tony is joined by Founder and CEO of Abilities Workshop, Jeanetta Bryant. Abilities Workshop is dedicated to serving families and caregivers to those with special needs so that they can be their best. If you have a child that has been diagnosed with Autism or another Special Needs Diagnosis, Abilities Workshop is here to help. They offer a variety of programs and workshops to help you and your family navigate this process. They also have series that have been designed for the newly diagnosed family's all the way through to families looking for ways to find success as an adult. 


Jeanetta Bryant is a dynamic and compassionate leader in the special needs community. With over 10 years of experience in the industry and 3 years with Abilities Workshop, Inc., she has dedicated her career to restoring hope and encouragement to families with children who have special needs. Her journey into this field began when her daughter was diagnosed with a medical condition. Over the last decade, Jeanetta has witnessed her child defy the odds and overcome their diagnoses, inspiring her to become an advocate, author, and speaker. She has written books, developed learning apps, and founded a non-profit organization to provide resources and support to families in need. Prior to starting her non-profit, Jeanetta had a diverse background in entrepreneurship and corporate sales, managing national accounts in a business-to-business environment. With a Bachelor's degree in Interdisciplinary Information Technology - Digital Media, she is skilled in programming, graphic design, advertising, and marketing. Jeanetta is a dreamer who believes in hard work and never giving up on a project. She is known for her honesty, thoughtfulness, compassion, quick decision-making abilities, and her willingness to constantly learn and adapt to different audiences. At Abilities Workshop, Inc, Jeanetta works with parents, pastors, and teachers to help children with special needs reach their full potential. She provides workshops, podcasts, live events, and publications to help families access the resources they need. The organization also participates in local resource fairs, events, and walks, and provides materials for other events. In her personal life, Jeanetta is a big fan of chocolate, romantic comedies, and college football (Go Noles!). But her true pride and joy is her family - her husband Matt Bryant and their two children, Jackson and Lindsey. Together, they love making memories at theme parks and simply laughing and talking in the kitchen. Overall, Jeanetta Bryant is a dedicated advocate for families with special needs and an inspiring leader in the community. She is committed to working together with others to provide support, resources, and hope to those who need it most.


Jul 20, 202301:20:21
Promoting Health and Empowering Communities with Sarah Catalanotto

Promoting Health and Empowering Communities with Sarah Catalanotto

In this thought-provoking episode, we are joined by Sarah Catalanotto, as we delve into the remarkable work of Area Health Education Centers (AHEC) in the state of Florida. Join us as we explore the extensive programming AHEC offers to promote health and facilitate the learning of pre-health professionals, including medical doctors, nurses, occupational therapists, physician assistants, and physical therapists.

AHEC goes beyond traditional classroom education, providing invaluable hands-on experiences that bridge the gap between theory and practice. By working with individuals facing health disparities, AHEC nurtures essential skills such as health literacy, cultural competencies, and an understanding of social determinants of health.

Our guest, Sarah, shares her personal experiences with disability and how she has channeled her knowledge and passion into serving people with disabilities through AHEC. Together, we explore the challenges faced by individuals with disabilities in navigating the healthcare system and discuss the significance of addressing these issues head-on.

As an adjunct professor at the University of Florida in the College of Public Health and Health Professions, Sarah teaches a course called Community-Based Participatory Research. At the heart of this course is discovering how to engage communities, gain their trust, and empower them to identify their needs. We explore the development of programs and policies that address these needs and discuss sustainable approaches to community health initiatives.

Throughout the conversation, we emphasize the importance of mobilizing communities to improve the health of individuals with disabilities. By empowering communities, we can tackle the root causes of preventable diseases and work towards a future where everyone can lead longer, healthier lives.

Join us for this enlightening episode as Sarah shares her insights and advice on how to navigate the healthcare system, mobilize communities, and champion the health and well-being of individuals with disabilities. Together, we can foster positive change and build a healthier, more inclusive society.


Sarah Catalanotto, MPH, CTTS, is the Executive Director at Suwannee River Area Health Education Center. Sarah has been with Suwannee River AHEC since 2011. In this role, she plans, organizes, directs, and evaluates the center’s programming and day-to-day operations. In addition, Sarah assists with grant writing and the development and management of the organization’s budgets, along with coordination of two statewide and two national associations. Prior to working at Suwannee River AHEC, she was a Tobacco Prevention Specialist within the Alachua County Health Department’s Tobacco Prevention and Control Program, and served as a Community Coordinator for the Chronic Disease Program. Sarah received her Bachelor of Art in Political Science and Sociology from Flagler College. Following her passion in healthcare and access to care, she pursed a degree in Public Health from the University of Florida College of Public Health and Health Professions.


Episode Resources


Jul 06, 202301:13:07
Disability: It's Not What You Think

Disability: It's Not What You Think

In this thought-provoking podcast episode, join hosts Tony Delisle and Vanessa Spero as they delve into the multifaceted world of disability. In their engaging webinar, they unravel the intricacies of disability - exploring the definition, synonyms, and positive language associated with the term "disability." Tony and Vanessa go beyond mere definitions to discuss the concept of independent living and the vibrant culture surrounding it. They explore the attitudes and beliefs that shape our understanding of disability, addressing the pervasive issue of stigma within society. Together, they provide a comprehensive view by discussing the perspectives of individuals working within the disability community, as well as sharing insights from those with personal experiences of disability. Through their conversations, they hope listeners gain a broader understanding of the diverse range of experiences and perspectives within the disability community. Understanding the lexicon, laws, and cultural aspects surrounding disability can be daunting for those with limited exposure. Drawing from their own personal and professional experiences, Tony and Vanessa offer listeners an intimate glimpse into the world of disability, with the intentions of shedding light on the challenges faced by individuals with disabilities, while also highlighting the incredible resilience and strength within the community. Stereotypes and stigmas are confronted head-on in this enlightening conversation. Tony and Vanessa debunk common misconceptions and provide invaluable insights to improve communication and foster inclusivity when interacting with people with disabilities. Additionally, they touch upon important legislation and laws pertaining to disability rights, empowering listeners to advocate for equality and accessibility. Join us in this engaging and heartfelt discussion, as we challenge preconceived notions, and inspire listeners to embrace diversity and inclusion. Note: This podcast episode is intended for informational purposes only and should not be taken as legal or medical advice.

Jun 22, 202358:41
Mobilizing and Engaging the Disability Community: A Path to Inclusion and Empowerment with Dr. Mark Salzer, PhD

Mobilizing and Engaging the Disability Community: A Path to Inclusion and Empowerment with Dr. Mark Salzer, PhD

Join us on a thought-provoking journey as we delve into the world of community psychology and the significance of mobilizing and engaging the disability community. In this captivating podcast, we sit down with Dr. Mark Salzer, a renowned licensed clinical community psychologist and professor in the College of Public Health at Temple University. Dr. Salzer shares his personal experiences and insights that led him to the field of mental health and his unwavering commitment to fostering community inclusion. Through engaging conversations, we explore the fundamental questions: What is community participation, and why is it crucial? Dr. Salzer guides us in understanding the transformative power of creating environments that not only tolerate but genuinely welcome individuals with disabilities. Discover the profound impact that active involvement and inclusion can have on people's lives, enabling them to experience a true sense of belonging, unity, and harmony within their communities.


With a mission to connect, engage, and empower individuals, Dr. Mark Salzer shares valuable strategies for increasing community participation and fostering inclusivity. Drawing from his extensive expertise, he provides practical insights on how we can create stronger, more supportive communities that value the unique contributions and perspectives of all their members. Tune in to this enlightening podcast, as we uncover the importance of community engagement, the power of inclusion, and the transformative potential within each of us to create a society that celebrates diversity and strengthens through unity.



Dr. Mark Salzer, PhD, is a distinguished professor at Temple University's College of Public Health. He has served as the principal investigator and director of the Temple University RRTC on Community Living and Participation for People with Serious Mental Illnesses since 2003. With over $30 million in federally funded research grants, Dr. Salzer has made substantial contributions to effective community mental health and rehabilitation services. He has published extensively, delivered over 450 presentations worldwide, and received prestigious awards for his impactful work. As a department chair, Dr. Salzer led significant achievements in student enrollment, faculty recruitment, and research funding. He has played pivotal roles in various committees, accreditation efforts, and grant review panels. Dr. Salzer's collaboration with government and community agencies has resulted in millions of dollars in new service grants, solidifying his commitment to improving mental health support.


Episode Resources:

  • The Temple University Collaborative on Community Inclusion: https://www.tucollaborative.org/



Jun 08, 202301:06:41
Empowering Wounded Warriors: Exploring the Impactful Work of the Wounded Warrior Project® with Jonathan Pruden

Empowering Wounded Warriors: Exploring the Impactful Work of the Wounded Warrior Project® with Jonathan Pruden

In our last episode, we had on Jonathan Pruden, Wounded Warrior Project’s® Special Advisor to the Chief of Staff for Warrior Care, who shared his journey of disability and finding purpose in supporting veterans with service-connected disabilities. As an Army veteran, Jonathan's firsthand experience as an IED casualty in Iraq led him to advocate for fellow warriors. He testifies before Congress, develops programs like Working with Wounded Warriors, and promotes peer support. Jonathan's commitment extends to volunteering, policy work, and speaking engagements, highlighting the challenges faced by injured service members. If you didn't get a chance chance to listen to the previous episode, we encourage you to listen to the enlightening conversation of empowerment and resilience with Jonathan.


In this episode, we explore the impactful work of the Wounded Warrior Project’s®, a nonprofit organization dedicated to supporting injured service members and veterans. Join us as we delve into the programs and services offered by WWP, ranging from physical and mental health support to career counseling and adaptive sports. Discover how WWP promotes holistic care and assists wounded veterans in transitioning to civilian life. We also discuss the organization's advocacy efforts and public awareness campaigns, shedding light on the challenges faced by injured veterans. Tune in to gain insights into the inspiring initiatives of the Wounded Warrior Project and their mission to empower and uplift wounded warriors.


Episode Resources:

Wounded Warrior Project®: https://www.woundedwarriorproject.org/

May 25, 202301:03:53
Advocating for Veterans with Service-Connected Disabilities: A Journey of Purpose with Jonathan Pruden

Advocating for Veterans with Service-Connected Disabilities: A Journey of Purpose with Jonathan Pruden

Join us on this episode as we dive into the inspiring story of Jonathan Pruden, Wounded Warrior Project’s® Special Advisor to the Chief of Staff for Warrior Care. This is the first of two parts where Jonathan shares his journey into disability and how he found his purpose in helping other veterans with service-connected disabilities.


Jonathan Pruden is an Army veteran and the Special Advisor to the Chief of Staff for Warrior Care at Wounded Warrior Project. He provides assistance to warriors in complex crisis situations, conducts initial assessments, and refers them to appropriate internal or external resources. Jonathan is also a liaison for high profile warrior care cases, ensuring rapid, coordinated, and collaborative responses.


During his military service, he served as a Medical Service Corps Officer and later as an Infantry Officer. Jonathan was on the initial invasion of Iraq with 3rd Infantry Division and on July 1st, 2003 became one of the first Improvised Explosive Device (IED) casualties of Operation Iraqi Freedom. Despite undergoing 20 operations, including the amputation of his right leg, he earned his MA in Public Affairs from the University of Florida and began working with Wounded Warrior Project.


Jonathan has testified before U.S. Senate and U.S. House committees on affairs such as DoD-VA Transition Issues, Palliative Care, Prosthetics/DME, and support for caregivers and care for those struggling with PTS and TBI. He has also helped develop various programs, including the Working with Wounded Warriors (W4) program for the White House and WWP's Peer Support Program, which trains warriors on how they can support their brothers and sisters just beginning their road to recovery.


In addition to his work at Wounded Warrior Project, Jonathan volunteers at the VA and Team Rubicon, and serves on several government and non-profit advisory boards and steering committees. He regularly engages in policy work and speaks to groups about his experiences and the challenges faced by injured service members.


Learn more about advocating for veterans with service-connected disabilities on this must-listen episode. Get ready to be inspired by Jonathan's journey of purpose!


Episode Resources:

Wounded Warrior Project®: https://www.woundedwarriorproject.org/

May 11, 202301:21:50
Cracking the Code on Rural Community Health: The Power of Community Health Workers with Dr. Laura Guyer

Cracking the Code on Rural Community Health: The Power of Community Health Workers with Dr. Laura Guyer

Welcome to this episode of our podcast, where we continue to pull the thread on community with Dr. Laura Guyer. As we emerge from the isolation brought by the COVID pandemic, we believe that reconnecting, re-engaging, and reuniting our community and the community of people with disabilities is more important than ever. Tony and Dr. Guyer met at the University of Florida and have worked together on collaborative efforts for a few years now, working to build community academic partnerships. In this episode, they discuss the concept of community health workers and how this model can be used to meet the needs of our community, especially those living in rural areas. Community health workers are people who represent the target communities, such as communities for people with disabilities. For example, if we want to meet the education needs of people with disabilities, we may consider targeting a student in high school or their parents to be a community health worker. Another example is our newest program, the AgrAbility project, which aims to aid farmers, ranchers, other agricultural workers, and farm family members living with a disability. We may target a farmer who has a disability and who is interested in helping support other farmers who have disabilities. Dr. Guyer and Tony discuss the utility of community health workers in meeting the needs of rural communities. The Center for Independent Living of North Central Florida serves 16 out of the 67 counties in Florida, and they are predominantly rural communities. They also delve into how the counties in our rural area rank in county health rankings and the work that needs to be done in promoting the health of these counties. They also discuss how we can potentially propose cracking the code on addressing the needs of people in rural communities, by the use of community health workers. Join us in this conversation to learn more about the importance of community health workers and their potential to serve our communities in need.

Apr 27, 202358:24
4-H Youth Development with Vanessa Spero

4-H Youth Development with Vanessa Spero

In this episode, we continue our conversation about the Florida AgrAbility project and talk about how important this program is to our farmers in Florida and to our community. If you haven't had a chance to listen to our previous episode on AgrAbility with Lindsey Head and Serap Gorucu, we highly encourage you to take a listen and learn about the Who, What, and Why of Florida AgrAbility. In this conversation, Vanessa lays the ground work for her enthusiasm for disability advocacy, as a mother of a son who has down syndrome. Vanessa Spero works for the University of Florida, Institute of Food and Agricultural Sciences Extension as a 4-H Youth Development Agent. She earned her BS from Cornell University in Animal Sciences and her MS from Florida Institute of Technology in Environmental Education. Vanessa joined extension in 2007 and has worked for extension for 15 years. Previously she had volunteered with the Peace Corps in West Africa, the Jane Goodall Institute in East Africa, and owned and operated her own non-profit in East Africa. Her interests led her to a pursue a career in non-formal education with a focus on teaching about the environment. More specifically within Extension, her programs began to focus on gardening with youth. By teaming up with the Family and Consumer Sciences Agent in Brevard (Elizabeth Shephard), she began targeting healthy eating and nutrition concepts as part of her programming. Over the years she has presented at national conferences (North American Association for Environmental Education, National Association of Extension 4-H Agents, Extension Professionals of Florida, etc.), received awards (National Extension Association of Family and Consumer Sciences Environmental Education Award, Florida Association of Extension 4-H Agents Program in Excellence Award, etc.), and secured grant funding (United Healthcare, Florida Agriculture in the Classroom, Florida Department of Agricultural and Consumer Sciences, etc.), to promote gardening and healthy eating initiatives.



Episode Resources:

  • Florida 4-H: https://florida4h.ifas.ufl.edu/
  • A Soccer for Success Innovation: https://ussoccerfoundation.org/blog/a-soccer-for-success-innovation/



If you have topics you'd like for us to discuss with our community and listeners, leave a comment or contact us at cilncf.org@gmail.com

For More Information visit: Center For Independent Living of North Central Florida

  • 352-378-7474 (Gainesville office)

352-368-3788 (Ocala Office)

Apr 13, 202301:22:38
Supporting Farmers with Disabilities through AgrAbility with Dr. Serap Gorucu and Lindsey Head

Supporting Farmers with Disabilities through AgrAbility with Dr. Serap Gorucu and Lindsey Head

The National AgrAbility Project is a federally-funded program that aims to help farmers, ranchers, and other agricultural workers with disabilities to continue working and living independently. The project is a collaboration between the United States Department of Agriculture (USDA) and various universities across the country. The primary goal of the National AgrAbility Project is to provide assistance to agricultural workers who have physical, cognitive, or other disabilities that may make it difficult for them to perform their work safely and efficiently. The project provides a variety of services to help these workers overcome the barriers that they may face in their work, including:

  • On-site assessments: AgrAbility staff members can visit a farm or ranch to assess the needs of the worker and make recommendations for modifications to the workplace or equipment that may help them to work more comfortably and safely.
  • Technical assistance: AgrAbility staff members can provide information about adaptive technology and equipment that may be useful for agricultural workers with disabilities, as well as training on how to use this equipment.
  • Education and training: The National AgrAbility Project offers workshops, webinars, and other training opportunities for agricultural workers with disabilities, as well as their families and caregivers. These events cover a wide range of topics related to agriculture and disability, including assistive technology, financial planning, and workplace safety.
  • Peer support: The project also provides opportunities for agricultural workers with disabilities to connect with others who have similar experiences, through support groups, mentoring programs, and other peer-to-peer support services.

Overall, the National AgrAbility Project is a valuable resource for agricultural workers with disabilities who want to continue working in the field. The project helps to ensure that these workers can work safely and efficiently, while maintaining their independence and quality of life.


In this episode, we speak with Dr. Serap Gorucu, PhD from the department of Agricultural and Biological Engineering at The University of Florida and Lindsey Head, Principal Investigator for the Florida AgrAbility Program. The National Agrability Project has been around since 1990 and is now in 21 states. This is the first time Florida has received funding for this program. Serap and Lindsey discuss why agriculture is so important for everybody, as it touches everything from food, medicine, transportation, clothes, and more. Agriculture is fundamental to our society and culture, and they delve into what farming culture is like. They also talk about why they are inspired and passionate to support those who work in agriculture. The Florida Agrability program received notice of award 8 months ago in August 2022 and now has an amazing team whose goal is to serve farmers and those who work in agriculture and have disabilities or have been injured. Agriculture is one of the most dangerous professions in the United States, making it crucial to reach out to this community, meet them, gain their trust, and better understand their needs and challenges so that they can continue farming. Serap and Lindsey both emphasize that farmers are the backbone of our society, and supporting them is essential. They talk about their “why” - why farming, why a program like this exists, and why they do it. Tune in to learn more about how the AgrAbility project is helping to support farmers and agricultural workers with disabilities, and why it is so important to continue this work.


Episode Resources:

Mar 30, 202301:20:57
Disability Dojo: Building Community

Disability Dojo: Building Community

Mar 16, 202344:50
How to Advocate Effectively with Jane Johnson

How to Advocate Effectively with Jane Johnson

Advocating for the rights of people with disabilities is an essential step towards creating a more inclusive, equitable society. People with disabilities are often subjected to discrimination, lack adequate access to resources and services, and are underrepresented in the public sphere. Disability advocacy seeks to address these issues by amplifying their voices and advocating for improved policy changes.   


On today's episode, Jane Johnson joins us to recap CIL Day at the Capital, which took place on January 26th. Tony, CIL Gainesville staff, and others throughout the Independent Living Network converged at the Capital in Tallahassee; they met with legislators and heads of state agencies to talk about the Legislative Agenda. Jane and Tony get into a conversation about advocacy, unpacking the current legislative agenda, and the pillars of The Independent Living Movement. They also discuss their partnership with special programs such as Agrability, which supports farmers with disabilities, and a pilot program serving inmates with disabilities who are preparing to be released back into the community.


We also talk about the upcoming expiration of the Federal COVID-19 Emergency Declaration, which is set to expire on May 11, 2023. For those on Medicaid or knows anyone on Medicaid, this is an extremely important episode to listen to, to ensure that you are not left without the type of insurance and resources you need when this executive order expires.


Episode Resources:

  • Check Your Eligibility via Access My Florida: https://www.myflorida.com/accessflorida/ 
Mar 02, 202301:25:18
Self-Directed Home Care with Mark Altieri

Self-Directed Home Care with Mark Altieri

Self-Direction. Participant-Direction. Consumer-Direction. Regardless of what it is called in your state, these phrases represent a long term-care option for Medicaid eligible individuals and their families that puts them in control. If you or a loved one is an individual with disabilities, chronically ill, or simply aging, self-directed home care is your alternative for supporting you in performing everyday activities.  Your alternative to admittance into restrictive long-term institutional care, or to using a home-care staffing agency that offers little to no choice or control over your support workers and services.


Public Partnerships | PPL supports you and your family in that choice to remain in your home and community. As Medicaid law in most states prohibits direct cash payments, our role as a Financial Management Service (FMS) provider, is to help you in your role of the employer of your own support workers.  They assist you in hiring, paying for your choice of support workers and services, all within your state-approved personalized spending budget and local rules. 


Mark Altieri is the V.P. of Business Development for Public Partnerships. He joins us on this episode to share his story and his family's experience with homecare. Mark works passionately to empower people who have chosen to remain independent in their homes and active within their communities.  He talks about the services that Public Partnerships offers, ranging from helping people navigate through complex systems of eligibility, enrolling people into the services they need, providing homecare services, and helping people to live an independent life. Public Partnerships works to empower people to have and make the choices that are necessary in their lives to stay in their homes without having to go into unnecessary institutionalized care.


Episode Resources:

  • Public Partnerships: https://www.publicpartnerships.com/


Feb 16, 202354:40
Empowering Parents to Advocate with Michelle & Henry

Empowering Parents to Advocate with Michelle & Henry

On this powerful episode, we are joined by husband and wife, Dr. Michelle Medeiros and Dr. Henry Medeiros. They join us on the podcast to share their journey as parents raising a child with disability, specifically through the educational system. Michelle and Henry vulnerably share their experience with learning how to navigate an educational system that does more to exclude and alienate a child when they misbehave versus finding ways to understand why. They share their desperate need to find a diagnosis for their son when they came to the realization that there is a chance he could fail out of school if this continued. From their experience, they also share steps on how parents can be advocates for their children. 

Dr. Michelle Medeiros, assistant professor of Spanish in Marquette University’s Klingler College of Arts and Sciences. Michelle specializes in Latin American literary and cultural studies of the 19th and 20th centuries, gender studies, history of science, and travel writing. Her current research project explores the intersection of science, gender, and visual culture in the works of women scientists in an attempt to further unveil the complex ways in which the modern culture of scientific production developed and the role of gender in this process. She teaches a broad range of courses including literature, culture, and language arts.  

Dr. Henry Medeiros is an Associate Professor of Agricultural and Biological Engineering at the University of Florida. His research focuses on the development of novel artificial intelligence models and robotic systems to improve agricultural production.


EPISODE RESOURCES:

Resources about CPS:



The Kids We Lose



Books for parents: https://drrossgreene.com/the-explosive-child.htm



Books for teachers: https://drrossgreene.com/lost-at-school.htm


Resources and support groups and videos:



If you have topics you'd like for us to discuss with our community and listeners, leave a comment or contact us at cilncf.org@gmail.com!

For More Information visit: Center For Independent Living of North Central Florida

  • 352-378-7474 (Gainesville office)
  • 352-368-3788 (Ocala Office)
Feb 02, 202301:39:06
"How Can I Serve?" with Cheryl Russell

"How Can I Serve?" with Cheryl Russell

Cheryl Russell shares her journey in discovering her own disability and her experience of being a parent with a disability. She is an IPE Advocate (Individualized Education Plan) for parents with students who have a disability in the school system. She helps parents and guardians with students with disabilities prepare for for the IEP Program, helping to set the expectations for what to do before, during, and after IEP meetings. Cheryl works to ensure parents and students have the necessary resources to be successful academically and beyond. She provides real skills and knowledge that’s needed to be successful in these IEP meetings.


Cheryl also talks about the 4th Annual Disability Resource Expo, held locally in Gainesville, FL. This is a day event will take place Saturday February 4th at Trinity Church, from 11am - 3pm. The expo will have community based organizations, public agencies, private businesses, faith based organizations, providing all different types of resources for people with disabilities and their families, from infants to seniors. The expo will also have free screenings for vision, auditory, and education. This year, the expo will also be providing physical screenings for blood glucose for diabetes, blood pressure, COVID-19 vaccines, and the seasonal flu vaccines.


This expo is driven by those who are needing these resources and asking themselves, “How can we serve?”


Resources:

  • Disability Resource Expo Facebook Event: https://fb.me/e/2eVSqObji
  • Sign up to volunteer: https://www.signupgenius.com/go/70a0e4ca5a92ea2fa7-disability1#/
Jan 19, 202301:10:34
Bridging The Gap Between Clinic and Community, with Dr. Nancy Hardt

Bridging The Gap Between Clinic and Community, with Dr. Nancy Hardt

Nancy Hardt is known for her dedicated commitment, demonstrated leadership, innovative approaches and proven impact on improving access to primary care health services and positive health outcomes of Florida’s at-risk populations. Her innovative approaches for positively impacting health outcomes in Florida include: data to action -- providing data in a format that is both engaging and focused through hotspot density maps that depict prevalence of adverse health conditions at the census block level; place-based interventions – taking the services to underserved populations; telling the story; and providing hands-on opportunities for students to personally experience serving at-risk populations. In Alachua County, she is a leader promoting productive community collaborations to provide services to people where they live and work. Hardt has built up community assets, enhanced organizational capacity, supported training programs and fostered system change that has led to lasting policy changes to improve health.

In retirement, she collaborates with community leaders to address local health equity issues, specifically early childhood brain development as an important social determinant of adult health. A health report card for Alachua County was developed by Dr. Hardt, and key indicators were mapped, resulting in numerous community actions to respond to highlighted health inequities. She spearheaded the University response, the Mobile Outreach Clinic, in which an interprofessional team meets the needs of the underserved in neighborhoods throughout Alachua County.

In six years of operation, more than 23,000 free health care visits were provided by community health professionals, faculty, and student volunteers. This effort resulted in a significant reduction in premature births and documented cases of child abuse and neglect.

She co-founded the innovative Intimate Partner Violence Clinic in conjunction with the College of Law, in which law and medical students learn together how best to meet the needs of victims. This clinic has over 99% success obtaining orders of protection on behalf of their clients, more than twice the rate of success in this community. The law-medicine partnership led to formation of Peace4Gainesville which seeks to reduce trauma and enhance resilience for children and adults.

She serves on the statewide AIDS Education Advisory team, The Healthy and Safe Schools Coalition, Domestic Violence Fatality Review Team and Pregnancy Associated Mortality Review Team. She was a Robert Wood Johnson Health Policy Fellow serving as a health legislative advisor for U.S. Senator Jeff Bingaman and Speaker of the House Nancy Pelosi. She has served in faculty positions at the universities of Florida, Kentucky, Memphis and Tennessee. Her undergraduate degree is from Sweet Briar College and her Medical Doctorate is from Loyola Stritch School of Medicine.


Resources:

  • UF Health Disparities Research and Intervention Program: https://ufhealthdisparities.med.ufl.edu/about/health-disparities-info/
  • Lars and the Real Girl: https://www.imdb.com/title/tt0805564/
  • Crip Camp: https://cripcamp.com/


If you have topics you'd like for us to discuss with our community and listeners, leave a comment or contact us at cilncf.org@gmail.com

For More Information visit: Center For Independent Living of North Central Florida

  • 352-378-7474 (Gainesville office)
  • 352-368-3788 (Ocala Office)
Jan 05, 202301:43:53
COVID-19 Vaccines and Their Impact on People with Disabilities with Dr. Venditto and Dr. Vijay

COVID-19 Vaccines and Their Impact on People with Disabilities with Dr. Venditto and Dr. Vijay

 This is a critical conversation and a center of gravity for why people should listen to this is that even though we may be over the pandemic, the pandemic is not over us. There are thousands of people who are dying every week due to COVID. We are currently entering into what is predicted to be a disruptive winter with COVID and other strands of viruses circulating around large holiday gatherings.


On this episode, Tony is joined by Dr. Vincent Venditto and Dr. Vijay Vasudevan to discuss outreach efforts to the community about getting the vaccine, what they should know, what questions to consider asking, knowing the different types of vaccines for COVID and their efficacies, when to get vaccinated.


Dr. Vincent J. Venditto is an assistant professor in the College of Pharmacy at the University of Kentucky. He received training in vaccine design and immunology and continues to investigate vaccine strategies to better understand how the immune system works in disease progression. He obtained a BS in chemistry from Gettysburg College and then worked for two years at the NCI, NIH as a cancer research trainee before attending graduate school. He obtained a PhD in chemistry from Texas A&M University and worked on vaccine development as an NIH postdoctoral fellow at University of California, San Francisco. Students and fellows in his lab come from diverse backgrounds with interests in chemistry, biology, drug delivery and experimental therapeutics, but a common goal of exploring novel methods to modulate the immune system. Students and fellows in his lab are encouraged to utilize their skills to advance projects while learning new skills to better appreciate the various aspects of designing novel immunotherapies.


Dr. Vijay Vasudevan is the Associate Data Scientist at Autism Speaks. Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. They do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.


If you have topics you'd like for us to discuss with our community and listeners, leave a comment or contact us at cilncf.org@gmail.com!
For More Information visit: Center For Independent Living of North Central Florida
352-378-7474 (Gainesville office)
352-368-3788 (Ocala Office)

Dec 22, 202251:52
Who We Are Through The Lens of Disability

Who We Are Through The Lens of Disability

On this episode, we present a panel discussion about disability identity. At a state conference .. Tony had the opportunity to moderate this panel discussion based on the topic of disability identity. This discussion is both critical and foundational to who we are as people; disability helps to really form our perspective of who we are and our place in the world, which drives our thoughts, words, and actions. Understanding how all this impacts our identity is such an important aspect of having a disability.

Panelists:

  • Drew Dees: CILNCF High School High Tech Coordinator
  • Whitney Doyle: Executive Director for the Florida Alliance for Assistive Services and Technologies (FAAST)
  • Sarah Goldman: Director of Administration and Youth Initiatives for the Florida Independent Living Council (FILC)
  • Chris Littlewood: Instructional Technology Coordinator for the Center for Public Safety Innovation (CPSI) at St. Petersburg College; FILC
Dec 08, 202247:27
A Mission To Connect And Engage

A Mission To Connect And Engage

And we are back! Tony kicks off Season 3 of The Independent Life by sharing his reflection and gratitude from when we first launched the podcast on Thanksgiving Day.. 2 years ago.

Also sharing what you can expect from Season 3 - we’re going take a more intentional look at the independent life and how its impacting people with disabilities in various areas, especially with social situations and support. We want to dive into what the independent life means when it comes to community and unity, and how its impacting our ability to live independently.

Tony recognizes our current state as a period of transition, noting how the independent living network was founded from the spirit of transitioning people in the early 1970s, out of institutional care settings and back into the community. Taking a look at all the existential conditions we’ve been through in the past couple years, with COVID at the core, causing a rippling impact across our entire world. From Tony’s perspective, he feels this is a pivotal moment in humanity’s trajectory.

Our hope for this season is to work towards connecting more with those in our community who have disabilities, and those who love and live with those who have disabilities. We’re excited to learn from their perspective as they live through these transitional times; exploring what they’re doing, how they’re doing it, and WHY they’re doing it. What is their why and what is driving them during these times.

In Season 3, our mission is to connect and engage with our community. As a community, we have a shared struggle that we can learn from each other and together we are stronger as a community. We’re going to look to the community to help orient us. We want to learn from you; we want to help be your voice of advocacy and awareness for living the independent life.

Our goal is to create safe spaces for people to lean into their vulnerabilities with courage. This is a space where we come to share stories and have conversations with diverse groups of people who are dedicated and committed to collaborating and bringing people together.

We’re going to come together by seeing through the lens of other people’s points of view and to be able to explore their journey so that we, as people with disabilities, know how to best rebuild out community and making our world a better place.


We want to hear from you! Reach out to us if you have a story you'd like to share or a message you want to spread: 

  • Email: theindependentlifepodcast@gmail.com
  • Instagram: @theindependentlifepodcast
  • TikTok: @theindepdentlifepodcast


Nov 24, 202215:59
A Call To Action For Unity and Community

A Call To Action For Unity and Community

Today we wrap up Season 2 of The Independent Life Podcast and what a season it has been! On today’s episode, Tony emphasizes the message on unity and the shared human condition that we call disability.

He reiterates the thread we’ve pulled on throughout the podcast, of this idea that we can always work towards becoming better versions of ourselves; collectively, we’re on a quest to create and fulfill our purpose. We may not be there yet but knowing that there is power in knowing that there are so many ways we can seek to improve ourselves - mentally, physically, emotionally, socially, spiritually, professionally, financially, etc. It is part of the human condition to seek improvement.

We invite you to continue along this journey with us, as we aim to see things from the perspective of others; to share conversations about independent living and connections in a safe space. In preparation for Season 3, we’re going to be working to expand our message across more platforms so that we have more reach with our messaging, tying our advocacy efforts into the services that CILs and the IL Network provides to its community and consumers.

Our Call To Action is this: We want to hear from you. To our listeners and our community, we want hear what you have been going through and your experiences; what’s on your mind and in your hearts that you want to share with the world? Our intentions and hope is to facilitate more engagement and connections within our community.

One of the Independent Living philosophies is to be consumer driven, consumer created, and consumer controlled. This is the goal we seek to build a better tomorrow. As social beings, we’re wired for the need to come together, to be there for one another; we are better together, stronger together. This is our opportunity to create the tomorrow that we all want through unity, through disability.


Connect with Us! We want to hear from you!

  • Contact: theindependentlifepodcast@gmail.com
  • Instagram: @TheIndependentLifePodcast
Oct 20, 202223:11
Disability Dojo Reflections, Pt.2

Disability Dojo Reflections, Pt.2

On our final dojo for the season, Tony wraps up his reflections on the remaining dojo episodes, N-Z, as he continues to share his takeaways on the threads we’ve pulled within these dojos. Let's always remain mindful as we continue traveling the road of becoming the best version of ourselves possible.

Key Takeaways:

  • 00:00:46 Need
  • 00:04:54 Opportunity
  • 00:07:29 Purpose, Passion, and Philosophy 
  • 00:13:55 Questions
  • 00:16:39 Resistance and Resilience
  • 00:22:06 Suffering and Service
  • 00:26:07 Time 
  • 00:22:06 Suffering and Service
  • 00:26:07 Time 
  • 00:29:37 Unity
  • 00:33:32 Values, Virtues, and Vulnerability 
  • 00:39:21 X-Men Superheroes
  • 00:44:32 Youth Transition
  • 00:47:51 Zen and Zeno



Oct 18, 202253:38
Learning To Own Your Identity With Rita Inman

Learning To Own Your Identity With Rita Inman

 

Oct 13, 202247:44
Disability Dojo Reflections, Pt.1

Disability Dojo Reflections, Pt.1

On today’s dojo, Tony’s intention is to take stock in what we’ve talked about on the past Disability Dojo episodes from Season 2. This is Part 1 of his reflections, A-M, on some of the threads we’ve pulled within these dojos, so that we can continue work towards becoming the best version of ourselves possible.

Key Takeaways:

  • 00:01:23 Authenticity
    Being authentic to our true selves as we are delivering our services to consumers
  • 00:03:51 Beliefs and Behaviors
    Do we have a fixed mindset and limiting beliefs or do we have a growth mindset to believe that we can capable? What can we do to facilitate taking on or giving up behaviors that can help transform our lives?
  • 00:07:36 Choice and Control
    Freedom to make the choices in our own lives and, understanding what is up to us and what is not up to us
  • 00:09:34 Disability and Diversity
    Two things that unify and brings us together. We are built on diverse cultures and societies and we share the ability to celebrate those differences.
  • 00:12:14 Equality and Equity
    Equality represents each individual or group of people is given the same resources or opportunities. Equity recognizes that each person has different has different circumstances and allocates the exact resources and opportunities that are needed to reach that equal outcome
  • 00:15:28 Forgiveness
    Forgiving of others for the wrong they may have done us for our own health and wellbeing. Forgiving for our own wrongdoings and for when we haven’t been the best versions of ourselves to others, and commit to being better.
  • 00:18:27 Gratitude
    Gratitude can serve as an antidote to getting beyond the stress and allow us to be grateful for the circumstances that life has given us. Exercising gratitude practices on a regular or daily basis, can help to benefit overall wellbeing and quality of life.
  • 00:22:10 Humility
    Humility keeps us in that lane of seeking to always learn and to not think we’re better than others. Being in the seat of the learner and always seeking to learn more
  • 00:25:22 Independence
    Recognizing that independence can be an individualized meaning that is different for each person and each lived experiences. It’s meaning can also be on a spectrum based on social and environmental context. Independence is uniquely gifted to each of us
  • 00:28:48 Justice
    The arc of the moral universe is long but it bends toward justice. There’s things in history that happened that shouldn’t have happen and it is our responsibility to work towards bringing equilibrium to those situations
  • 00:31:39 Kindness
    The importance of being good and loving to one another. Do unto others as you would have them do unto you; treat other people with the concern and kindness you would like them to show toward you.
  • 00:35:14 Love
    Love for ourselves, love for our family, love for our neighbor. Recognizing that love should be given to other people regardless if it is ever returned.
  • 00:37:46 Meditatio Malorum
    Meditating on our own mortality, inviting us to think about the last day that we’re going to live on the very day that is right in front of us; how would we choose to live this day and make it our best? What thoughts would you hold if you knew you only had today left to live? The idea of (pre)Meditatio Malorum is not induce panic or depression but rather to live our best day possible, with our reflection and meditation on our own mortality. The lesson here is to try and choose the best thoughts, the best words, and the best actions possible to live the best day that we can have.
Oct 10, 202241:46
Assistive Computing And Innovative Technologies with Dave Platt

Assistive Computing And Innovative Technologies with Dave Platt

On today’s episode, Tony dives into a conversation with Dave Platt about assistive computing and his journey into making technological devices more accessible for people with disabilities and older adults.

Dave teaches user experience engineering at Harvard University Extension School, and at companies all over the world. He is the author of 12 books, and of MSDN Magazine’s monthly back-page column “Don’t Get Me Started” . Microsoft designated him a Software Legend in 2002

Dave’s journey into assisted computing and innovative technologies started when his father began experiencing limitations with the devices and technologies he wanted to use on a regular basis. Dave wanted to make sure his father had access to music, movies, sports, and all the things that he enjoyed watching or listening to. He sought out solutions to making these complicated systems, simpler. In his class at Harvard University Extension School, he assigns a project to his students to pick something that is widely used in the general population and thats technologically driven, then develop a way to make it simpler and more accessible for people with disabilities and those that might have limitations.

He started researching and teaching about user experience at Harvard extension school with the knowledge that we can now build any kind of software that we want to build - we’re no longer constrained by limitations. Now anything that we think can make our users happy or more productive is something that we can pursue developing. Dave shares the sentiment that anytime that a software does not meet its potential or does not meet the needs of its users, its not because we couldn’t do the right thing, but rather its because we didn’t know what the right thing was to do - at that time.

In this conversation Dave helped Tony to better understand the culture of programmers and helped to widen his perspective of it, sharing that there is a younger generation out there who are looking out for us so that we can be included in this wonderful new world. Together, Tony and Dave collectively resonate on a quote by Margaret Mead, “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has.”


Episode Resources:

  • Dave's Assisted Computing™ project where you can find the original Spotify music app that Dave built for his Dad: https://assistedcomputing.org/
  • TV Remote App for his dad: https://www.linkedin.com/posts/plattdave_dear-readers-im-looking-to-make-a-usable-activity-6947664384999452673-tHVr/
  • Why Software Sucks...and What You Can Do About It: https://www.amazon.com/gp/product/0321466756/ref=as_li_tl?ie=UTF8&camp=1789&creative=9325&creativeASIN=0321466756&linkCode=as2&tag=rollingthun01-20&linkId=CZVH2NMYBIMACAEB


Oct 06, 202201:00:08
Disability Dojo: Getting Involved and Looking For The Helpers

Disability Dojo: Getting Involved and Looking For The Helpers

On today’s dojo, Tony talks natural disasters and how we, as a community, respond to them. Anticipating the arrival of Hurricane Ian as it approached Florida’s West Coast, Tony reflects on previous hurricanes that have been met by Florida’s coastline, noting that many are still working to recover and heal from storms from over a decade ago.

When it comes to natural disasters, it affects everybody. No matter where we are geographically, shelters are getting activated due to increased occurrences of natural disasters. During these times, people with disabilities tend to be the most vulnerable population, before, during, and after disasters. Unfortunately, we are not yet at a place where we have systems in place to ensure all their needs are met, especially in the aftermath when the charge is recovery and helping people get back their lives.

Disasters are going to keep happening and our ability to respond efficiently and effectively is something that needs our attention today. Once disaster strikes, these issues become much more complicated. To ensure that all people are safe before, during, and after disasters, is something that we have to continually work towards getting better at, if we want to evolve together, as a culture, a community, and group of people that are connected and unified.

Remember to.. “Look for the helpers. You will always find people who are helping.”


Emergency Preparedness Episodes:

  • The North Central and Northeast Florida Healthcare Coalition: https://open.spotify.com/episode/2FIqW7SyoDVs2ll1bULbBp?si=fVxbgb98RYCbeGkWms-UqQ
  • Emergency Preparedness Collaboration: https://open.spotify.com/episode/2YhzJQdhUHPJRcWYI0Qerv?si=6A0YQbnoRmuQ9bSx5dOoMg
  • Emergency Management Leadership with Peter Newman: https://open.spotify.com/episode/0pmpVxI3Po2lhSsLCfHPW2?si=1m8A9J7GQJ-4tbHSp2MfuQ
  • Service Animal Preparedness and Advocacy with Laura Lee Putzback: https://open.spotify.com/episode/5Wd47qY1GuLKyu4577NvbK?si=uJX3A9JHSTyiOailKBB6dw
  • Emergency Management Disability Liaison with Laura George: https://open.spotify.com/episode/6WXRNwbXdWtwPGdlu7mHS7?si=DEK_6gQRQmC4uF0YbFrG2g
  • The Crucial Role of The Independent Living Network In Times of Emergency Preparedness: https://open.spotify.com/episode/6WXRNwbXdWtwPGdlu7mHS7?si=DEK_6gQRQmC4uF0YbFrG2g
Oct 03, 202217:22
Connecting To Why with Gerry Altamirano

Connecting To Why with Gerry Altamirano

Gerry Altamirano is an Inclusion Strategist at Tangible Development. He joins us back on the podcast with an exciting conversation around being socially conscience, civics minded, and philosophically astute. Gerry describes himself as an emotionally intelligent relationship builder who believes in changing people’s hearts and minds by connecting them to their why.

On this episode, Tony talks with Gerry about how he was raised, all the different parts of his identity, and how they intersect with one another. Gerry reflects on how all these factors have helped to shape his philosophical approach to disability, inclusion, equity, access, and how it has allowed him to become to successful in the area of his working with organizations to help promote disability inclusion. Gerry has an incredible amount of experience in this area, as he talks about some of the challenges and facilitators of where we have been, where we are today, and where we are going, in terms of the disability movement.

Gerry opens up about the challenges that advocates have in this area of work and shares some of the ways he thinks we can make sure that we all stay on the same page. His effort aims to lift each other up and to be sources of inspiration, regardless of our background, acknowledging that people have different experiences and how that helps to form how we see the world. Despite our differences, how we can all get together and become unified even if we come from different places and backgrounds?


Learn more about Tangible Developments: https://twitter.com/tangibledevel

Sep 30, 202201:04:42
Disability Dojo: Preparing For The Fall Harvest

Disability Dojo: Preparing For The Fall Harvest

On today’s dojo, Tony reflects on the Autumn Season and the lessons it can bring us as it related to preparations and harvest. The fall season is rich in examples. Tony takes this time to reflect upon the things he’s planted in the days, weeks, and months leading up to this season that would allow for an abundant harvest.

If you’re listening to this episode, Tony’s hope is that you can take stock of what’s around you and the changes in the air. Take time thinking about areas in your life that you’re benefiting from today that is a direct result from what you planted in the days, weeks, and months leading up to today. Take the time to ask yourself, “What could you be planting that you’ll be benefiting from in the future?”

Sep 26, 202216:54
A Force For Good And Changing The System From Within With Jane Johnson

A Force For Good And Changing The System From Within With Jane Johnson

Joining us on today’s episode is the one, the only, Jane Johnson. A dear friend and true champion of the Independent Living Network, we welcome Jane back onto the podcast to discuss legislative updates that includes new leadership, new funding opportunities, and keeping the end goal in mind. The Independent Living Network is currently in an expansive phase with opportunities on the horizon that could see tremendous impact within the community for people with disabilities.

Diving straight into the current changes that have already happened at the state level, Jane expresses an opportunity have a great fresh start with new leadership, sensing a much more open communication style and willingness to partner towards efforts that will improve the IL Network and the impact on CILs within their catch-men areas.

They talk in depth about the recent pilots with the Florida Department of Correction, a program conducted with inmates who are incarcerated, to provide an accessible employee readiness program. Through collaboration efforts, a trauma informed curriculum designed and developed for students with disabilities. This tremendous effort would not have been possible without the dedication and commitment from Lindsey Telg, Dr. Jacob Atem, Tony, and Jane to trail blaze this initiative to where it is today. Collectively, they worked to develop this training that every inmate is required to receive prior to being released. The pilot received overwhelming positive feedback from the department of corrections, as well as from the inmates who took the class. As a result of such great outcome, they’re now looking at taking the pilot to the next phase and expanding the program throughout the state. See below for episodes resources related to the creation and impact of this effort.

Jane has also been fundamental in supporting the efforts of the independent living network. She works tirelessly to ensure proper funding to operate initiatives, such as Adult Transitions, which helps to get people out of institutionalize care or prevent them from entering into institutionalized care by providing the necessary services in order to help keep them in the community. This effort also manifests into a lot of different services at Centers For Independent Living.

Jane exemplifies how to be a force for good and how to do this by not getting lost and selling out to the system but instead to be better because of it. She shares how she doesn’t allow herself to be associated with certain legislators or political parties but rather to be associated to the cause, which is independent living. For Jane, that is the one thing - supporting people disabilities to live as independently as possible. For her, that is a constant that doesn’t change no matter who she’s talking to or making a funding request from. The needs are the same: serving at risk and underserved populations. In closing, Jane talks about how diligence is the mother of good luck, that things don’t just happen; its the right time, right place, right people coming together and willing to work together for an outcome.


Episode Resources:




Sep 22, 202252:02
Disability Dojo: The Four Philanthropists

Disability Dojo: The Four Philanthropists

On today’s dojo, Tony talks about having a growing awareness and frame of reference for how to best serve others. He reflects on his recent conversation with Eric Davis, sharing how he has been impacted by him and his work, without prior communications or correspondences. As a result, Tony expresses how it has influenced the way he sees the world. Eric’s openness was so authentic and illuminating during their conversation; his vision on how to serve people to the maximum, and his idea and vision, has Tony feeling entangled in his world.

Tony also shares his reflection through the story of The Four Philanthropists. He examines the importance of meeting the concrete needs of people and how Centers For Independent Living and agencies like St. Francis Home provides food, water, and temporary shelter for people that are homeless. He drives home the message that this is the first place we really need to start when working with people because if don’t have those physical and physiological needs met, its much more challenging to help in the other areas.


Episode Resources:

  • Becoming of Maximum Service To Others With Eric Davis and Mark Brisbane: https://open.spotify.com/episode/1rwHkkQ6kJSRzWWOkIzi17?si=E5F2eVBSToOcSULpKWUttw
  • Dedicating Their Lives To Creating a Change: With Eric Davis and Mark Brisbane: https://open.spotify.com/episode/0Abya6M0YdOqU0A3odUjAf?si=XFXsPJhnTXKlhkC66nMGWw
  • The Four Philanthropists: https://www.goodreads.com/book/show/16121550-the-four-philanthropists
Sep 19, 202220:15
Dedicating Their Lives To Creating A Change With Eric Davis and Mark Brisbane

Dedicating Their Lives To Creating A Change With Eric Davis and Mark Brisbane

On part two of Tony’s conversation with Eric and Mark, he dives right into talking about systemic, policy-based changes and how we can really come up with solutions to affordable housing. They talk about humanization for both sides of the equation; noting how oftentimes property owners are demonized for their role due to a lack of understanding of what property owners may be going through, as people who is also working to operate a business. They emphasize the importance of the property managers’ role in finding a solution to address affordable and accessible housing. Eric shares that what makes him effective when it comes to executing his role and his job, is that he truly understands both sides: the people they serve and that of the property owners.

They also get into a discussion about things that Eric has seen on a individual level that he’s been able to work with people on; things that they’ve been able to gain that have allowed them to put themselves in a position where they have been able to get housed and be a part of the solution. Some of the things that are needed when working with individuals is coming from a place of non-judgment, a place of humility, having an attitude of gratitude; coming from a heartfelt place is a way that we can help individuals, to inspire them to go above and beyond what they think they’re capable of.

Collectively, they express that this issue is one that is bigger than any of us. Eric shares real life stories and situations to illuminate the type of situations that people are in, in hopes of shedding light and empathy towards those who are currently living in very challenging situations. Collaboration on this issue is key; working together on this situation helps to humanize the individuals we serve. Developing and cultivating a relationships with property owners is a real and effective piece of addressing the issue of affordable housing; they get to see firsthand the impact they can have on someone’s quality of life. They discuss the need to allocate more resources, more money, more people to ending homeless and focusing on the real solution, which is housing. It takes people who are willing to dedicate their life to creating a change.


Episode Resources:

  • Becoming of Maximum Service To Others With Eric Davis and Mark Brisbane: https://open.spotify.com/episode/1rwHkkQ6kJSRzWWOkIzi17?si=Jp8wULVzTsiKnmjTlL3oUA
  • St. Francis House: https://stfrancishousegnv.com/
  • CIL Housing Program making a difference!: http://www.cilncf.org/meet-mark-brisbane/
Sep 15, 202249:57
Disability Dojo: What Kind Of World Do We Live In?

Disability Dojo: What Kind Of World Do We Live In?

Albert Einstein said, "The most important decision we make is whether we believe we live in a friendly or hostile universe."

On today’s dojo, Tony explore’s this question. He shares real life examples and scenarios, some which he has experienced himself and others from those he knows within the community. He examines and dissects the nuances of how each situation could sway anyone one way or the other. Based on his lived experiences and those of others, Tony shares his perspective and asks for us to reflect on our own vision of how we view the world.

Sep 12, 202220:34
Becoming of Maximum Service To Others With Eric Davis and Mark Brisbane

Becoming of Maximum Service To Others With Eric Davis and Mark Brisbane

On today’s episode, Tony gets into an authentic and heartfelt conversation with Eric Davis, Director of Housing at St. Francis House and Consumer Specialist Mark Brisbane, who oversees housing efforts at CILNCF. Together, they work to get people into affordable, accessible, and safe housing.

Eric joins us today to share how he operates first and foremost, from a place of humanity, and from a place of light and of love. He emphasizes the importance of speaking directly to the people that he serves and not just listening to what others may say.

Eric opens this conversation by speaking with vulnerability about his own lived experiences, which he believe is essential to include, as it is a part of who he is and a part his story. Eric shares what its like to have schizophrenia, what it’s like to be addicted, and to be challenged with mental health conditions. He also talks about what its like to overcome those situations and to be transformed by those situations; to be someone whose mission in life is to maximize service to other people, especially in the arena of affordable housing and working with people who are challenged through the same things he has experienced. Eric expresses the importance of making the issue of homelessness, something that can resonate with all people, sharing stories that illustrates how anyone can find themselves in a situation where they’ve become homeless. For those listening who may not understand homelessness or have ever met someone in this situation, Eric brings a level fo humanity to this conversation, in an effort to make it relatable to those of us who don’t have the lived experiences he’s had. He talks about some of the causes of homelessness, adverse childhood experiences, and how important this issue homelessness is. Eric goes on to share his vision of a better day, in terms of addressing the affordable housing issues.


Episode Resources:

  • St. Francis House: https://stfrancishousegnv.com/
  • CIL Housing Program making a difference!: http://www.cilncf.org/meet-mark-brisbane/
Sep 08, 202201:02:58
Disability Dojo: Reflecting On Labor Day And Employment For People With Disabilities

Disability Dojo: Reflecting On Labor Day And Employment For People With Disabilities

On today’s dojo, Tony takes a brief look into the history of Labor Day, as it is important to know the purpose and intention for it’s inception. Until preparation for this dojo, Tony himself had a vague understanding of the history and origins for Labor Day, which always falls on the first Monday in September. It’s origins point to the year 1882 and began in New York City, where people organized in Union Square on the first Monday of September during the industrial revolution, in the reconstruction era. The focus for Labor Day was to celebrate workers and to have some leisure time but during this time, working conditions were becoming what we would consider deplorable and there weren’t any protections in place for working people. Many young children at this time were not going to school; they were working in factories and in harmful working conditions. Part of the protest was to protest the working conditions, better wages, the right to organize, and child labor. Within a few years, this caught on to other states, where they began organizing and advocating for more fair working conditions. In 1894, President Grover Cleveland, made Labor Day a national holiday. It wasn’t until 1938 that Franklin Roosevelt passed the first federal protection for workers. In these federal protections came the 8 hour work day, 5 day work weeks, and the end of child labor.

Shifting gears from the history of how Labor Day, Tony reflects on how in his position as Director of CIL, he is constantly needing to stay up to date with labor laws. Some of the ones that stand out to him and that he thinks is very important, especially as it pertains to people with disabilities, is that we can’t discriminate based on disability, race, ethnicity, age, or how people identify themselves. In tony’s most recent conversation with Allison Chase, they talked about how the unemployment rate is 2-3 times greater in people with disabilities than without disabilities. Tony describes the interesting employment market we’re in today and shares his hope that it will provide a unique opportunity to close the gap in the inequities between the employment rates of people with and without disabilities.


Episode Resources:

  • Building Trust and Lasting Relationships With Allison Chase: https://open.spotify.com/episode/5q4Fl05pcmfGsUro4FRIP0?si=XBJV7XKgSm6k9PTZK-ic8g
  • History of Labor Day: https://www.dol.gov/general/laborday/history
Sep 05, 202225:59
Building Trust and Lasting Relationships with Allison Chase

Building Trust and Lasting Relationships with Allison Chase

With more than twenty-five years’ experience, Allison Chase has dedicated her career to the employment of people with disabilities. As President & CEO, Chase is committed to ensuring The Able Trust is the leading expert in Florida for disability workforce inclusion, providing valuable resources to businesses, employment service providers, communities and Floridians with disabilities. Chase has worked in the public, private, and non-profit sectors giving her a 360-degree perspective of the field.  She has Bachelor’s and Master’s degrees in Rehabilitation Services, and completed the National Executive Leadership Institute for rehabilitation leaders at the University of Oklahoma.

The mission of The Able Trust is to be a key leader in providing opportunities for successful employment for Floridians with disabilities. The organization was created by the state legislature in 1990 as the Florida Endowment for Vocational Rehabilitation, as a direct supporter of vocational rehabilitation efforts by state agencies and community organizations. Operating under the dba of The Able Trust, the organization has helped to put thousands of individuals with disabilities to work, and has supported employment-related efforts in all counties of Florida.


Episode Resources:

  • The Able Trust: https://www.abletrust.org/
Sep 01, 202201:00:16
Disability Dojo: Principles For Living The Good Life

Disability Dojo: Principles For Living The Good Life

On this dojo, Tony reflects on celebrating the 7th anniversary since he’s joined The Center For Inpdendent Living of North Central Florida, as the director. Tony recalls well-known author and motivational speaker Dr. Wayne Dyer having passed away on the same day he came onboard at CIL. This event has Tony reflecting on Dr. Dyer’s teachings and expansive work in self-development, to which Tony is constantly learning how to implement into his life. On this episode, Tony shares Dr. Dyer’s principles on how to live the good life.


Episode Resources:

  • Dr. Wayne Dyer: https://www.drwaynedyer.com/
Aug 29, 202235:00
The Impact of High School High Tech with Drew Dees

The Impact of High School High Tech with Drew Dees

High School High Tech is a free program for high school students with disabilities. The Center For Independent Living works to get students into the program as early as their freshmen year, to help guide them through the process from the beginning of their high school years to the end. The main purpose is to prepare students with disabilities for life after high school. This effort helps students to figure out what it is they want to do after high school, whether that’s going straight into the workforce or if they want to explore the post secondary education option. What Drew expresses enjoying the most about the program is how students are able to explore and try new things and the opportunity for them to get hands on, real world experience.

The High School High Tech program is designed for students to learn and explore what their special interests are, then a program is created around those interests. Students get immersed in the actual field they’re interested in, to confirm whether or not it’s the right field for them. Participants are connected to hands on experiences, such as job shadowing, internships, field trips, and workshops. Students get to learn life skills, such as financial literacy, resume building, and skills that are needed whether they’ll be choosing to take the route of going into the workforce or into post secondary education.

High School High Tech also provides interactive and engaging special projects for the participants, such as encouraging entrepreneurialship and tapping into the imagination that students have about creating products or services that can make the world a better place.

This is an exciting program especially at the start of a new school year. Enrollment is year round, for any school year. Two workshops are held monthly and are designed to interest of the students; the program takes significant efforts to meet students where they are.

Drew has seen first hand and have heard from both students and parents how much of a difference this program has made. One of the most impactful aspects of this program is that it offers students in high school a role model and mentors who help to encourage and show students that they are capable of achieving what they want out of life; believing in students when they most need it.

Drew leads by example, by overcoming challenges and barriers in his own life and he’s now eager and inspired to show others how they can lift themselves up to live the independent life.


Episode Resources:


HSHT contact:

Aug 25, 202246:18
Disability Dojo: How Present Moments Can Impact The Future

Disability Dojo: How Present Moments Can Impact The Future

To kick off today’s episode, Tony takes us through a story about a teacher who initially misjudged one of her students and made assumptions about them before taking the time to learn about the student’s full story. He shares this story to provide an example of how our interactions and treatment of someone in the present moment can impact their future. This story serves as a reminder to how many of those in the disability community are misjudged before they’re given the opportunity to truly be seen for who they with consideration to their life circumstances.

From his life experiences, Tony has seen firsthand how everyone has their own challenges and are going through something that we may not have the privilege to yet see. Unlike the teacher, we don’t have access to their files but if we did, perhaps we could also experience enlightenment that could explain why this person may be the way they are. Though we may not have someone’s file to review prior to interacting with them, what if we just treated people with more compassion, with better communication, and with more encouragement? What if we didn’t take things so personally and reached out to find understanding? What if we had the courage to take a step beyond our own thinking? Maybe it could change the course of their future but also, our own future.

As a takeaway from today’s dojo, Tony invites you to think of all the people currently in your life who may have a backstory that you know nothing about and how you can change the way you see and interact with them. How can you interact with them better, how can you conduct yourself better in the present moment? How can you endeavor to imagine transforming yourself and perhaps even transforming them and maybe both parties will be met with unexpected success. What we do now will impact our future and the future of other people. You’ll never know how much impact we have on somebody in the present moment and how that impact will shape their future.


If you have topics you'd like for us to discuss with our community and listeners, leave a comment or contact us at cilncf.org@gmail.com! We'd love to have guests participate with Tony on our Disability Dojos- so if that person is you, reach out and let us know!

For More Information visit: Center For Independent Living of North Central Florida

  • 352-378-7474 (Gainesville office)
  • 352-368-3788 (Ocala Office)
Aug 22, 202219:57