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The Lucky Few

The Lucky Few

By The Lucky Few Podcast

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.
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5. Friendship with GiGi's Playhouse and Just Like Me

The Lucky FewMay 16, 2018

00:00
58:12
250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line?

250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line?

Friends, we had another hot topic in our group text that we knew we needed to bring on the pod to have with all of you! Today we’re chatting about the February 25th episode of “Saturday Night Live” with a guest host who used his niece and her Down syndrome diagnosis as a punch line to his set. We’re talking about our reactions and the larger conversation: who has the right to use Down syndrome and disability as a joke or punch line? Join us as we discuss the discomfort when jokes are made for an audience not connected to someone with Down syndrome and whether the laugh is at the expense of the person with the disability. Listen in as we unpack the complexities of comedy, connection, and the importance of shifting narratives.


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SHOW NOTES


Learn more about Josh Blue


More episodes to check out:


JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 


MICHA’S NEW BOOK

Pre-order Micha’s new book Blessed Are The Rest Of Us coming April 4, 2024! (All pre-order’s purchased through Baker Book House receive a signed copy with a lucky few temporary tatoo!)


THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Mar 26, 202455:48
249. One Million Reasons To Celebrate….The Lucky Few Podcast LIVE!

249. One Million Reasons To Celebrate….The Lucky Few Podcast LIVE!

For nearly 250 episodes we’ve had educational, encouraging, and meaningful conversations amplifying voices and shifting narratives for individuals with Down syndrome. Over the last 6 years, we’ve tackled topics on education, health & wellness, accessibility, stereotypes, legal rights, media representation, advocacy, and so much more! We were even recognized with the 2023 Media Award at the National Down Syndrome Congress Convention! We’ve had so many great moments but the best part of this podcast is being part of this one-in-a-million community!

March 8th we got to celebrate LIVE in San Diego, California! It was so special getting to meet our listeners, play some trivia, chat about the many ways we’ve learned, advocated, and celebrated over the last six years, and have a special guest share their good news!! 

On March 14, 2024, we marked our MILLIONTH DOWNLOAD, we’re so grateful to every one of you, for listening, sharing, and being part of The Lucky Few community. We look forward to a million more laughs and reasons to learn, advocate, and celebrate alongside this incredible community. Thanks for your support narrative shifters, cheers to a million more!!!


SHOW NOTES

Trivia Links:

Ways we’ve learned, advocated, and celebrated:

Thank you to our event sponsors and vendors:

Special thanks to our partner:

GiGi’s San Diego


Special thanks to Haven by Communal, Jen Byard, Jen & Addie Jones


JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Mar 20, 202401:04:51
248. Everything No One Tells You About Parenting A Disabled Child (w/Kelley Coleman)

248. Everything No One Tells You About Parenting A Disabled Child (w/Kelley Coleman)

We’re so excited to welcome feature film executive turned author and disability advocate, Kelley Coleman to the show! Her book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Support releases TODAY!! Friends, this book is like gold, it provides the kind of support and confidence we all need to navigate and understand the complex systems, services, and supports no matter what diagnosis our kids have. It’s a resource we’ll be looking to for years to come, providing us with helpful questions, checklists, and ways to access services based on your child's individual needs. We celebrate finding friendship and community throughout the disability community, and Kelley shares how the Down syndrome community has embraced her and her son. She even shares how disability rights activist Judy Heumann shared her enthusiasm for a resource like Kelley’s book and emphasized the importance of sharing stories as self-advocates and nondisabled advocates in the disability space. This is a book and conversation we’re so grateful for, this is an episode you don’t want to miss!


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SHOW NOTES



JOIN THE MOVEMENT

Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today! 


THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Mar 12, 202458:21
247. The Transition To Adulthood: Fostering Independence, Dignity Of Risk, & Supporting Decision-Making (w/ Amy Julia Becker)

247. The Transition To Adulthood: Fostering Independence, Dignity Of Risk, & Supporting Decision-Making (w/ Amy Julia Becker)

Friends, we’re so excited to have award-winning writer, speaker, podcaster, disability advocate, and Mom of three, Amy Julia Becker, joining us for a third time today! She’s here to chat about what the journey with her daughter Penny has looked like after turning 18 and entering adulthood. She’s been in the process of making decisions about education, employment, guardianship, independent living, and so much more! We chat about navigating new services, and agencies, and Teresa from Social Security. What’s been the decision that has felt like the weightiest part of the transition into adulthood so far. How she’s included Penny in the decision-making process, her thoughts on guardianship, and so much more. Turning 18 brings on a whirlwind of decisions, Amy reflects on how it’s paralleled the early years and shares advice to consider in your child's middle and high school years. This is an episode you not only don’t want to miss, but you’ll want to bookmark and take notes on!!


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SHOW NOTES


Our Previous Episodes w/ Amy Julia: 


Episode mentioned:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Mar 05, 202401:08:29
246. Heart Health & Navigating Heart Defects (w/Dr. Lorraine Schratz)

246. Heart Health & Navigating Heart Defects (w/Dr. Lorraine Schratz)

Friends, we know that seeing specialists and hearing your child could potentially have cardiac issues after receiving a prenatal diagnosis can all be overwhelming. We also know that while months of celebrating and advocating for awareness can be helpful, but also adds to those valid overwhelming feelings when you’re new to a diagnosis. While those statistics are true, 50% of babies born with Down syndrome are born with heart defects. There are also incredible advancements in cardiology and amazing physicians like our guest this week Dr. Lorraine Schratz there for your family every step of the way! 

Dr. Schratz is a pediatric and fetal cardiologist at Massachusetts General for Children and an instructor at Harvard Medical School. She acknowledges the fear that comes with a diagnosis but emphasizes the advancements in medicine that have led to fewer follow-up surgeries for people with Down syndrome. Dr. Schratz stresses the importance of providing families with both medical facts and emotional support, tailoring information to their needs, and encouraging patients to ask as many questions as they need to. She shares her advice to create healthy habits for our kiddos with and without heart defects, what to expect when receiving a diagnosis, and recommends resources for support. We’re so grateful for conversations like these, and in the words that Dr. Schratz’s patients wanted to send us, “It’ll be ok!” 


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SHOW NOTES


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


Feb 27, 202456:44
245. Can An Advocate Get It Wrong Sometimes?

245. Can An Advocate Get It Wrong Sometimes?

Friends, you know we don’t shy away from asking the hard questions; today we’re diving into a complex one: Can an advocate get it wrong sometimes? We discuss the balance of advocating and learning, the foundation of a good advocate, and how humility shapes our advocacy journey. We explore the responsibility and journey of advocating for those with Down syndrome, and why being a listener and learner is key to effective advocacy. How long do you have to be part of something to be an advocate? What is the foundation of a good advocate? What happens if you do get it wrong? Tune in to hear our personal stories, how we’ve grown along this journey so far, and the importance of humility in advocacy. Join us for a thoughtful conversation you won't want to miss!


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SHOW NOTES: 

Other episodes to check out:


JOIN US LIVE!

After six incredible seasons, and nearly 250 episodes, we’re excited to celebrate this one-in-a-million community! Over the last six years we’ve laughed, learned, and shared meaningful conversations, we’re so grateful to every one of you!

Whether you’re a weekly listener or new to The Lucky Few fam, we hope to see you in San Diego or have you tuning in virtually!

When: Friday, March 8th, 6:30 pm- 9:30pm

Where: Haven by Communal, 3381 30th Street San Diego, CA 92104

What: Doors open at 6:30 pm for cocktail hour. Enjoy drinks, merchandise/books from self-advocates, connecting with local DS community partners, and more! The LIVE podcast recording begins at 7:30 pm!

Note: This is an adult-focused event.

We cannot wait to see you there!!

Head to the luckyfewpodcast.com and click on the banner to get your tickets they’re selling fast!


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT
Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Feb 21, 202401:01:39
244. Love, Advocacy, & A Viral Proposal (w/Matthew Schwab & Lucia Romano)

244. Love, Advocacy, & A Viral Proposal (w/Matthew Schwab & Lucia Romano)

Friends, we’re celebrating Valentine’s Day with a couple that are sharing their enchanting love story! Their engagement was marked by a viral video and widespread media, Matthew Schwab and fiancé Lucia Romano share everything from their first date to their dreams for the future. This power couple is dedicated to shifting narratives for people with Down syndrome and the entire Intellectual and Developmental Disability community. From being fluent in multiple languages, working, driving, owning a public speaking business, living independently, ballroom dancing, community volunteering, participating as a multi-sport athlete in The Special Olympics, and giving a TEDx Talk, these two are the definition of a power couple! They have a shared passion for advocacy and hope their story will help challenge stereotypes about people with Down syndrome. We discuss their advice for those nervous about dating, and their moms share advice for families navigating their loved one's dating. This is an episode (and love story!) you don’t want to miss!


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SHOW NOTES


Listen to past episodes with Matthew:

Listen to our episode with Down For Love Producer Robyn Paterson


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Feb 13, 202459:02
243. Still, The Best We Can (w/Heather & Josh Avis)

243. Still, The Best We Can (w/Heather & Josh Avis)

Friends, last February we (Heather & Josh!) had an unscripted conversation about challenges with IEP’s and what the best setting for Macy’s education would look like. They say a lot can happen in a year, and when it comes to school, that’s an understatement. We’re talking about Macy’s journey in the last year, from a Charter school program and ultimately her decision to return to a life skills program. The importance of seeking advice, but most importantly, following our kid's lead, and asking what they want. If you’re feeling the exhaustion of fighting for a space where your kid feels belonging, we see you, you’re not alone. Join us for another unscripted conversation about inclusion in our schools, how it's worked (and not worked) for our kids the last year, and so much more! Be sure to let us know your thoughts, feelings, and experiences after listening to this episode.


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SHOW NOTES:

Other episodes to check out:


JOIN US LIVE!

After six incredible seasons, and nearly 250 episodes, we’re excited to celebrate this one-in-a-million community! Over the last six years we’ve laughed, learned, and shared meaningful conversations, we’re so grateful to every one of you!


Whether you’re a weekly listener or new to The Lucky Few fam, we hope to see you in San Diego or have you tuning in virtually!


When: Friday, March 8th, 6:30 pm- 9:30pm

Where: Haven by Communal, 3381 30th Street San Diego, CA 92104

What: Doors open at 6:30 pm for cocktail hour. Enjoy drinks, merchandise/books from self-advocates, connecting with local DS community partners, and more! The LIVE podcast recording begins at 7:30 pm!


Note: This is an adult-focused event.


We cannot wait to see you there!!


Head to the luckyfewpodcast.com and click on the banner to get your tickets they’re selling fast!


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Feb 06, 202449:12
242. Is Inclusion A Privilege?

242. Is Inclusion A Privilege?

Friends, today we’re diving deep into the heart of our favorite topic: inclusion! We chat about the barriers preventing true inclusion and we're challenging societal norms and asking the important questions about what defines human worth. What kind of person gets to be celebrated? What kind of person with Down syndrome gets to be celebrated? We explore the buzzword status of “inclusion,” the role of privilege in accessing support and services, and so much more. As we navigate this journey, we recognize the honor and burden of advocating for a more inclusive world. Progress in inclusion is happening, but are we truly championing the essence of every individual? Is the current system promoting equal access and opportunities? We’re asking all the questions, you don’t want to miss this thought-provoking episode!


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SHOW NOTES



Other episodes to check out:


JOIN US LIVE!

After six incredible seasons, and nearly 250 episodes, we’re excited to celebrate this one-in-a-million community! Over the last six years we’ve laughed, learned, and shared meaningful conversations, we’re so grateful to every one of you!


Whether you’re a weekly listener or new to The Lucky Few fam, we hope to see you in San Diego or have you tuning in virtually!


When: Friday, March 8th, 6:30 pm- 9:30pm

Where: Haven by Communal, 3381 30th Street San Diego, CA 92104

What: Doors open at 6:30 pm for cocktail hour. Enjoy drinks, merchandise/books from self-advocates, connecting with local DS community partners, and more! The LIVE podcast recording begins at 7:30 pm!


Note: This is an adult-focused event.


We cannot wait to see you there!!


Head to the luckyfewpodcast.com and click on the banner to get your tickets they’re selling fast!


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


Jan 30, 202458:21
241. Developing A Down Syndrome Health Instrument w/Dr. Stephanie Santoro

241. Developing A Down Syndrome Health Instrument w/Dr. Stephanie Santoro

Jan 23, 202438:41
Throwback: Creating Inclusion For All Learners (w/Tim Villegas)

Throwback: Creating Inclusion For All Learners (w/Tim Villegas)

Throwback Episode 218: Creating Inclusion For All Learners (w/Tim Villegas - Originally aired 8/1/23)


Friends, we’re taking the month of August to talk all things Back to School, today we kick off the series with a discussion on implementing inclusion in the classroom. We’re joined by Tim Villegas, he’s the director of communications for the Maryland Coalition for Inclusive Education (MCIE), a nonprofit that seeks to be the catalyst for the meaningful and successful inclusion of all learners in their neighborhood schools. Throughout his 16-year career in education, Tim has advocated for including students with extensive support needs in general education classrooms. He is the founder of Think Inclusive, a podcast for inclusive education, and Inclusive Stories, a narrative podcast series about families and school districts fully committed to inclusive education. Join us as we chat about all things inclusion in our schools: advice for educators, parents, and those in leadership looking to create spaces where everyone belongs. This is an episode packed with resources, be sure to check our show notes for all the links to helpful books, organizations, and films!



SHOW NOTES

Learn more about MCIE ⁠Website⁠

Follow MCIE on ⁠Facebook ⁠

Follow MCIE on ⁠Instagram ⁠

Follow MCIE on ⁠Twitter ⁠

Follow MCIE on ⁠LinkedIn ⁠


Learn more about ⁠Think Inclusive⁠

Listen to ⁠Inclusion Stories⁠


Learn more about ⁠TASH⁠

Learn more about ⁠The Beyond Access Model⁠


Check out ⁠Including Samuel⁠

Check out ⁠Who Cares About Kelsey?⁠

Check out ⁠Intelligent Lives⁠

Check out ⁠My Disability Roadmap⁠

Check out ⁠Club 21⁠

 

Books to check out (Educators & Parents): ⁠Leading for All: How to Create Truly Inclusive Excellent Schools⁠

⁠Reimaging Special Education: Using Inclusion as a Framework to Build Equity and Support All Students⁠

⁠Unwanted: Fighting to Belong⁠ 


Check out these episodes: 

⁠10. Inclusion - An Educator’s Perspective with Kristin Enriquez Pt. 1⁠

⁠11. Inclusion - A Parents Perspective with Kristin Enriquez Pt. 2⁠

⁠132. BTS Pt 3 - What's the impact of inclusion? (ft. Kristin Enriquez)⁠

⁠39. Back to School w/IEP Experts Vickie Brett & Amanda Selogie⁠


DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!


LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Jan 19, 202401:09:08
Throwback: Is There Such A Thing As A Difficult Parent?

Throwback: Is There Such A Thing As A Difficult Parent?

Throwback Episode 237. Is There Such A Thing As A Difficult Parent? (Originally aired 12/12/23)

There are so many feelings when we enter spaces alongside our loved ones with Down syndrome and disabilities. The question, “Is there such a thing as a difficult parent?” It made us think deeply about advocacy, boundaries, and how gender, race, and cultural stereotypes can play a role in this question. What does it mean to advocate? What is your job as your child's advocate? If you make people uncomfortable does that make you difficult or does that make you an advocate? Is there a way around advocating and not being labeled a difficult parent? Friends, you don't want to miss our conversation on this hot topic!


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SHOW NOTES:


DISCOUNT CODE:

Friends, grab your narrative shifting gear over on⁠ The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSORS:

Thank you,⁠ Enable SNP⁠ for sponsoring this episode!

Thank you,⁠ Jack’s Basket⁠ for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Jan 18, 202453:52
Throwback: Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer)

Throwback: Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer)

Throwback Episode 232: Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer - Originally aired 11/9/23)

Friends, we’re excited to have Jack’s Basket founder Carissa Carroll back on the show! Today she’s joined by Dr. Erin Plummer to chat with us all about a new curriculum they are launching for medical providers. They’re providing practical online training for providers to review the literature and allow reflection on their own experiences of giving a diagnosis. What could they do better? What went well? What were they feeling? How might their patient have felt? Carissa shares her own experience with receiving her son’s Down syndrome diagnosis and her passion for changing a family’s diagnosis story from the very beginning. We’re so grateful for the work Carissa and Dr. Plummer are doing for our community and can’t wait to share this incredible project they’ve been working on that will make a positive impact for so many families!


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SHOW NOTES



Check out previous episodes with Carissa Carroll:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, ⁠Enable SNP ⁠or sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!


LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Jan 17, 202449:41
Throwback: Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson)

Throwback: Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson)

Throwback Episode 234: Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson - Originally aired 11/21/23)

On episode 226 we shared our thoughts on the hit Netflix series Down For Love which follows several people with Down syndrome as they navigate “the triumphs and trials of dating.” If you listened to “Our Thoughts On The Netflix Series Down For Love,” then you know how much we loved this show and appreciated the conversations that it started. We’re so excited to keep the conversation going with the Producer of the show, Robyn Paterson! Robyn is a filmmaker and screen creative based in New Zealand committed to promoting diversity, respect, partnership, and equity both on and off the screen. Best known for Down for Love (Netflix), In the Zone (Apple TV), Grand Designs: New Zealand, and Finding Mercy (Prime Video), and the current President of the Directors and Editors Guild of Aotearoa New Zealand. Friends, we get a behind-the-scenes look at the process of approaching the storytelling of participants with Down syndrome and the intentional decisions that made the show so impactful. Robyn shares the challenges and impactful moments of filming Down For Love, along with the differences from other reality-type shows. We chat about the casting process to ensure diverse and authentic representation, and so much more! We promise there are no spoilers, just an incredible conversation about the responsibility to tell diverse, authentic, and honoring stories of people with disabilities.

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SHOW NOTES

  • Learn more about Robyn’s Production company, ⁠Sweet⁠.


DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSORS:

Thank you, ⁠Enable SNP ⁠or sponsoring this episode!


Thank you, ⁠ABLEnow⁠ for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!


LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Jan 16, 202450:37
Throwback: Our Thoughts On The Netflix Series “Down For Love”

Throwback: Our Thoughts On The Netflix Series “Down For Love”

Throwback Episode 226. Our Thoughts On The Netflix Series “Down For Love” (Originally aired on 9/26/23)

Have you heard about the Netflix series “Down For Love”?! We’ve been hearing about it from friends, family, and even one of our kid's healthcare providers, all with rave reviews. So we set aside some of the reality shows that we feel a bit guilty about admitting we’ve watched and enjoyed a wholesome reality dating show of people with Down syndrome on a quest for love. This show highlighted so many things for us to think about as parents. The conversations that we’ll need to have about boundaries and consent, what we’d want to see for our kids, and so much more. It of course brought up so many questions that we dive into like: Did the show represent all types of people with Down syndrome? Does the show honor people with Down syndrome? Is the title “Down For Love” problematic or just a fun pun? We’re diving deep into not only the show, but our thoughts (and some fears!) on our kiddos dating. This is an episode you don’t want to miss!


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SHOW NOTES


DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSORS:

Thank you, ⁠Enable SNP ⁠for sponsoring this episode!

Thank you, ⁠Jack’s Basket⁠ for sponsoring this episode!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!


LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.


Jan 15, 202448:39
Throwback: Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)

Throwback: Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)

Throwback Episode 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate - Originally aired 5/23/23)

Friends, we recognize and appreciate that so many of you come to us for our open, honest, and candid conversations week after week. After seeing the response Heather was receiving over on @theluckyfewoffical under a post that she wouldn’t be celebrating an abled person asking a disabled person to prom, we knew this topic deserved another conversation. We also knew the conversation deserved to include a person with disabilities. Our producer and self-advocate Ashley Fraccalossi joins us for this candid conversation on honoring people with disabilities and when that line can get blurred or crossed. She helps break down with us what inspiration p*rn means in the disabled community, unconscious bias, and how her own experiences with disability have shaped her views on this topic. We’re grateful to not only hear from her today, but to continue this important conversation with all of you. May we all continue to learn, listen, and grow from conversations like this together.


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SHOW NOTES



DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!


LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!

Jan 12, 202401:11:57
Throwback: Poet, Author, “Levitator Of Language”: Sid Ghosh (w/Mom Dr. Vaish Sarathy)

Throwback: Poet, Author, “Levitator Of Language”: Sid Ghosh (w/Mom Dr. Vaish Sarathy)

Throwback Episode 229: Poet, Author, “Levitator Of Language”: Sid Ghosh (w/Mom Dr. Vaish Sarathy - Originally aired 10/17/23)


Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have poet, author, and “levitator of language,” Sid Ghosh on the show! He describes himself as, “just your autistic boy next door with Down syndrome!” His Mom, Dr. Vaish Sarathy joins us as Sid’s communication partner and also shares their journey of using spelling to communicate with the world. This incredible sixteen-year-old is the author of two chapbooks: Give a Book and Proceedings of the Full Moon Rotary Club. It’s a unique opportunity and honor to feature a non-speaker on a podcast and for the first time in The Lucky Few Podcast history, we’re offering a ⁠VIDEO version⁠ of this episode! Friends, whatever version you choose, this is an episode you don’t want to miss!


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SHOW NOTES


Listen To Previous Episodes With Dr. Sarathy:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, ⁠ABLEnow⁠ for sponsoring this episode!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!


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Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Jan 11, 202454:53
Throwback: Guardianship, Conservatorship, & Supported Decision-Making

Throwback: Guardianship, Conservatorship, & Supported Decision-Making

Throwback Episode 214. Guardianship, Conservatorship, & Supported Decision-Making (Originally aired on 7/4/23)

Friends, what better conversation to have on an episode released on a holiday that celebrates America than to talk about the differences between Guardianship, Conservatorship, and Supported Decision-making? We have attorney and Executive Director of Massachusetts Advocates for Children, Anna Krieger here to help explain the differences and similarities between these options. Anna is a nationally recognized expert on Supported Decision-Making and has trained, advocated, and written widely on the topic alongside decision-makers and their supporters. We’re also joined by self-advocate Craig Kinney and his mom Sandy, who have chosen Supported Decision-Making and are sharing their experience with us today! We hope this episode helps you think about what next steps you may consider when deciding what is best for your family.


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SHOW NOTES

⁠The Center for Public Representation⁠

⁠National Resource Center for Supported Decision Making⁠

⁠For more information on Conservatorship, Guardianship, & Supported Decision Making by State⁠

⁠Massachusetts Advocates for Children⁠


DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, ⁠Jack’s Basket⁠ for sponsoring this episode!


⁠EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket⁠

⁠EP 180 "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)⁠


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!


LET’S CHAT

Email ⁠⁠hello@theluckyfewpodcast.com⁠⁠ with your questions and Good News for future episodes.

Jan 10, 202401:01:34
Throwback: Nurturing Meaningful Connections With Our Kids
Jan 09, 202451:19
Throwback: Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko

Throwback: Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko

Throwback Episode 205: Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko (Originally aired 5/2/23)


Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.


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SHOWNOTES:

Learn more about ⁠Down Syndrome Clinic To You⁠  


If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!


Friends, grab your narrative shifting gear over on ⁠⁠⁠The Lucky Few Merch Shop⁠⁠⁠ and use code PODCAST for 10% off!


LET’S CHAT:

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


HELP US SHIFT THE NARRATIVE: Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

Jan 08, 202445:48
240. Ready To Slay Another Year

240. Ready To Slay Another Year

Friends, we're kicking off the new year with a bang! In our exciting sixth-season premiere, join us as we dive into the festivities, reflections, and dreams that come with the arrival of 2024.

We're sharing our favorite traditions and bidding farewell to everything we left behind in 2023. Ever wondered about our New Year's Eve and New Year’s Day shenanigans? We spill the beans on the NYC ball drop, the bathroom dilemmas, and why we've never braved the waiting game for those glittering lights.

Join us as we delve into our goals for 2024, both for our families and The Lucky Few Podcast community. Advocacy, inclusion, friendship, hope – these are the themes we're exploring and continuing to champion. We share our dreams of making this community even bigger and better, and we express our gratitude for the best listeners on the planet.

But wait, there's more! We want to hear from you. What are your three words for 2024? Share your dreams, aspirations, and resolutions with us as we embark on another new year. Happy New Year, friends! Let's slay 2024!


SHOW NOTES

Check out Olive and June


Listen to our episode with Sid Ghosh:


Check out our New Year’s Episodes from previous seasons:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Jan 02, 202451:45
239. 2023 In Review: Celebrating A Spectacular Season

239. 2023 In Review: Celebrating A Spectacular Season

And just like that, we’re wrapping up our 5th season! 2023, what a year! We’re coming close to ONE MILLION DOWNLOADS, we had listeners in 36 countries, and 64% of listeners discovered us this year! Welcome new and old friends, we’re glad each and every one of you is here, shouting worth and shifting narratives for people with Down syndrome! We’re so grateful we get to connect and have so many incredible guests and conversations on the show. 


Today, we’re reflecting on the incredible conversations we’ve had this year. We're highlighting so many amazing topics and moments from your top listened, most shared, and our favorites! Cheers to a year of connections, good news, and joy that this community has brought us. Stay tuned we’ve got some epic plans for 2024!


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Top 5 Listened To Episodes of 2023:

Most Shared Episode of 2023:

Some of our favorites:

Self-Advocates Episodes:

  • Our First-Ever Video and Audio Version Of A Pod Episode with our friends, Sid Ghosh & Dr. Vaish Sarathy!

Our host's picks for their favorite host-only episode this year:

“Producer’s Picks” for 2023


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Dec 26, 202358:54
238. Empowering Wellness: TruFit's Adaptive & Inclusive Fitness Revolution (w/ founders Adam & John White)

238. Empowering Wellness: TruFit's Adaptive & Inclusive Fitness Revolution (w/ founders Adam & John White)

Friends, grab your workout pants because this episode is all about the positive effects of health, and wellness, and how fitness is for everyone—especially our loved ones with DS.


We’re thrilled to talk with TruFit’s founders, John & Adam White, on the show! Today they share how in 2010, they identified an unmet need within the fitness community, prompting them to establish TruFit Adaptive Fitness. Thirteen years later, their solution is clear: TruFit Adaptive Fitness uses technology to provide fitness solutions for people with intellectual and developmental disabilities, and today they share the vision that fitness is for everyone. 


The TruFit community is doing some revolutionary things by building the fundamental positive message around fitness with modified exercise workouts tailored for specific disabilities. 


From community events to collaborating with local OT, PT, and adaptive PE Coaches and healthcare providers to empowering parents. They are making health and wellness inclusive and comprehensive. Let’s go!


SHOW NOTES


Follow TruFit:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, AbleNow for sponsoring this episode!


ABLEnow accounts are the result of a grassroots, cross-disability advocacy effort. The idea originated with a group of parents who recognized the inequity of not being able to save money in their child’s name for fear of losing essential benefits (such as Medicaid).

 

These advocates helped to change the law, so people with disabilities can achieve a better life experience.

 

Today, ABLEnow accounts are available to qualified individuals in all 50 states.

 

Learn if you, or someone you know, is eligible for an ABLEnow account at ABLEnow.com


HELP US SHIFT THE NARRATIVE

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Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Dec 19, 202354:45
237. Is There Such A Thing As A Difficult Parent?

237. Is There Such A Thing As A Difficult Parent?

There are so many feelings when we enter spaces alongside our loved ones with Down syndrome and disabilities. The question, “Is there such a thing as a difficult parent?” It made us think deeply about advocacy, boundaries, and how gender, race, and cultural stereotypes can play a role in this question. What does it mean to advocate? What is your job as your child's advocate? If you make people uncomfortable does that make you difficult or does that make you an advocate? Is there a way around advocating and not being labeled a difficult parent? Friends, you don't want to miss our conversation on this hot topic!


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SHOW NOTES:


DISCOUNT CODE:

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP for sponsoring this episode!

Thank you, Jack’s Basket for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Dec 12, 202357:24
236. Making Space For Grief (w/Claire Bidwell Smith)

236. Making Space For Grief (w/Claire Bidwell Smith)

Friends, we’re so excited to have licensed therapist and grief expert, Claire Bidwell Smith on the show to give us some tools and resources for coping with the grief that comes with a Down syndrome diagnosis. Led by her own experiences with grief, and fueled by her work in hospice and private practice, Claire strives to provide support for all kinds of people experiencing grief and is devoted to expanding the conversation around grief and loss. We’re chatting about tools and strategies for grief around a diagnosis, grieving a life we’d imagined for our loved one, managing anxiety around medical issues that can come with a Down syndrome diagnosis, and so much more. No matter where you are in your journey, we want you to know, that you’re not alone. We hope this episode provides some helpful tools, strategies, and support.


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SHOW NOTES

Order a copy of Claire’s book: Anxiety The Missing Stage of Grief


Check out our episodes with Lindsey Strickland: 


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT
Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Dec 05, 202358:48
235. All The "Big Feelings"

235. All The "Big Feelings"

Happy, sad, angry, frustrated, excited, it’s not always easy to know how to express these feelings, especially for our kiddos with Down syndrome. Today we’re talking about all those “big feelings” that can be hard to regulate at times. We’re chatting about how we’ve been working on helping our kiddos handle all those “big feelings” and so much more. How we’ve had to become a “detective” of our kiddo's feelings and learned to recognize how some of them can be affected by nutrition, sleep, activity, etc. Navigating emotions isn’t easy for anyone, putting these feelings into words can sometimes be even harder. Learning what tools have been helpful for our kiddos to express and feel understood has been essential, especially entering those teen years! Friends, this is an episode you don’t want to miss!

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SHOW NOTES

Related Episodes:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP for sponsoring this episode!

Thank you, Jack’s Basket for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Nov 28, 202354:49
234. Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson)

234. Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson)

On episode 226 we shared our thoughts on the hit Netflix series Down For Love which follows several people with Down syndrome as they navigate “the triumphs and trials of dating.” If you listened to “Our Thoughts On The Netflix Series Down For Love,” then you know how much we loved this show and appreciated the conversations that it started. We’re so excited to keep the conversation going with the Producer of the show, Robyn Paterson! Robyn is a filmmaker and screen creative based in New Zealand committed to promoting diversity, respect, partnership, and equity both on and off the screen. Best known for Down for Love (Netflix), In the Zone (Apple TV), Grand Designs: New Zealand, and Finding Mercy (Prime Video), and the current President of the Directors and Editors Guild of Aotearoa New Zealand. 
Friends, we get a behind-the-scenes look at the process of approaching the storytelling of participants with Down syndrome and the intentional decisions that made the show so impactful. Robyn shares the challenges and impactful moments of filming Down For Love, along with the differences from other reality-type shows. We chat about the casting process to ensure diverse and authentic representation, and so much more! We promise there are no spoilers, just an incredible conversation about the responsibility to tell diverse, authentic, and honoring stories of people with disabilities.

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SHOW NOTES

  • Learn more about Robyn’s Production company, Sweet.
  • Learn more about Paralympic Gold Medalist, Jai Waite.


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP or sponsoring this episode!


Thank you, ABLEnow for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Nov 21, 202354:04
233. Celebrating The Season: 2023 Holiday Gift Guide

233. Celebrating The Season: 2023 Holiday Gift Guide

Oprah’s favorite things are legendary, just like our gift guide- prepare to unwrap some magic with our 2023 gift ideas! We’ve got some rad ideas for everyone on your list from gifts for kiddos, grandparents, spouses, teachers, and more! Friends, we’ve scoured the corners of creativity and combed through countless options to find the perfect gifts for this years list. From functional, to educational, to downright stylish, and something to wrap it all up with, we’ve got you covered. You know we can’t resist some fun holiday stories with memories of the worst gifts we’ve ever received. Grab a cup of cocoa, sit back, and relax because The Lucky Few Podcast 2023 Holiday Gift Guide has you covered!


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SHOW NOTES


Micha’s Picks:


Mercedes’ Picks:

Sentence building puzzles:


Heather’s Picks:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSORS:

Thank you, Jack’s Basket for sponsoring this episode!


Thank you, ABLEnow for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Nov 14, 202346:42
232. Shifting The Narrative Through Unexpected News Curriculum For Providers (w/Carissa Carroll & Dr. Erin Plummer)

232. Shifting The Narrative Through Unexpected News Curriculum For Providers (w/Carissa Carroll & Dr. Erin Plummer)

Friends, we’re excited to have Jack’s Basket founder Carissa Carroll back on the show! Today she’s joined by Dr. Erin Plummer to chat with us all about a new curriculum they are launching for medical providers. They’re providing practical online training for providers to review the literature and allow reflection on their own experiences of giving a diagnosis. What could they do better? What went well? What were they feeling? How might their patient have felt? Carissa shares her own experience with receiving her son’s Down syndrome diagnosis and her passion for changing a family’s diagnosis story from the very beginning. We’re so grateful for the work Carissa and Dr. Plummer are doing for our community and can’t wait to share this incredible project they’ve been working on that will make a positive impact for so many families!


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SHOW NOTES



Check out previous episodes with Carissa Carroll:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, Enable SNP or sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Nov 09, 202350:58
231. Love, Marriage, & Equality w/Craig & Heather (w/Mom’s Lisa & Pat)

231. Love, Marriage, & Equality w/Craig & Heather (w/Mom’s Lisa & Pat)

Friends, thank you for celebrating Down Syndrome Awareness Month with us! Today we wrap up our celebration with self-advocates Craig Blackburn & Heather Hancock-Blackburn. This power couple is talking all about love at first sight, marriage equality, long-distance relationships, and so much more! From shifting narratives to building careers, and competing in Special Olympics across the country these incredible self-advocates have so much to be proud of. Heather’s Mom Lisa and Craig’s Mom Pat join us to share what it was like as parents to witness their love story and advice for parents and caregivers. Craig & Heather you had us at hello, we just love your love! You don’t want to miss this epic celebration of love, self-advocacy, and equality. 


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SHOW NOTES

Learn more about marriage equality for people with disabilities:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Oct 31, 202357:01
230. Artist, Boss Lady, Soon To Be Aunt: Grace Reber (w/Mom Bonnie)

230. Artist, Boss Lady, Soon To Be Aunt: Grace Reber (w/Mom Bonnie)

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have artist, entrepreneur, and soon-to-be Aunt, Grace from Grace Place Art! Grace and Mom Bonnie join us to share about their journey starting a small business and the projects they’ve been working on. What started as a fun project of creating original artwork for family has become an online business, collaborations, and opportunities to give back. Grace and her Mom are passionate about empowering others and have spoken to classrooms around the world! When Disney’s Pixar commissioned a piece of artwork, Grace and her parents decided on the perfect character that they felt connected to their own journey. From becoming a boss lady to giving back, to preparing to be an Aunt, and so much more, this is an episode you don't want to miss!


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SHOW NOTES


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSORS:

Thank you, Enable SNP for sponsoring this episode!


Thank you, Jack’s Basket for sponsoring this episode!


HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Oct 24, 202358:39
229. Poet, Author, “Levitator Of Language”: Sid Ghosh (w/Mom Dr. Vaish Sarathy)

229. Poet, Author, “Levitator Of Language”: Sid Ghosh (w/Mom Dr. Vaish Sarathy)

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have poet, author, and “levitator of language,” Sid Ghosh on the show! He describes himself as, “just your autistic boy next door with Down syndrome!” His Mom, Dr. Vaish Sarathy joins us as Sid’s communication partner and also shares their journey of using spelling to communicate with the world. This incredible sixteen-year-old is the author of two chapbooks: Give a Book and Proceedings of the Full Moon Rotary Club. It’s a unique opportunity and honor to feature a non-speaker on a podcast and for the first time in The Lucky Few Podcast history, we’re offering a VIDEO version of this episode! Friends, whatever version you choose, this is an episode you don’t want to miss!


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SHOW NOTES


Listen To Previous Episodes With Dr. Sarathy:


DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


THANK YOU TO OUR SPONSOR:

Thank you, ABLEnow for sponsoring this episode!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

Oct 17, 202356:30
228. The Hip Hop Homies With Extra Chromies: Merrie, Eric, & Collin (w/Director Carol Tingey)

228. The Hip Hop Homies With Extra Chromies: Merrie, Eric, & Collin (w/Director Carol Tingey)

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! We’re excited to have Hip Hop Homies founder and director Carol Tingey along with Homies Merrie Ellsworth, Eric Gardner, and Collin Curtis! Founder and director Carol Tingey started dance classes 5 years ago when she saw the need for activities for our friends with Down syndrome who have aged out of high school. Hip Hop Homies started as a small group of friends getting together to dance and have fun, but has grown into weekly classes and performance outreach! Self-advocates Merrie, Eric, and Collin tell us about their lives and journey to becoming part of The Hip Hop Homie community! Merrie just celebrated another birthday on October 7th, and is “40 and fabulous!” Eric celebrated his birthday on October 8th and turned 53! Collin just graduated from high school and shares his love of participating in rodeos! We’re so excited to introduce you to our new incredible friends!



SHOW NOTES

  • Follow The Hip Hop Homies on Instagram

  • Learn more about The Hip Hop Homies

  • Learn more about Home of the Homies


  • DISCOUNT CODE

    Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


    THANK YOU TO OUR SPONSORS:

    Thank you, Enable SNP for sponsoring this episode!

  • 47. Planning for the Future w/Phillip Clark from Enable SNP

  • 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP


  • Thank you, Jack’s Basket for sponsoring this episode!

  • EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

  • EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket)


  • HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    Oct 10, 202301:04:35
    227. French Fries, Modeling, & Meeting The Vice President (w/Ronnie “The Fry Guy” & Sister LaTasha)

    227. French Fries, Modeling, & Meeting The Vice President (w/Ronnie “The Fry Guy” & Sister LaTasha)

    Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! We’re excited to have entrepreneur, model, and french fry expert, Ronnie Brown aka “The Fry Guy” on the show to celebrate with us! He’s a wrestling enthusiast that you’ll find at the Crossfit gym in his spare time. After having a feeding tube for six years, it was love at first bite when he tried his first fry! Along with his sister LaTasha, Ronnie started selling fries in 2020 at a local festival and today they share everything they’ve learned from starting a small business. They even share a fun story about meeting Vice President Kamala Harris this year! This is an episode you’re not going to want to miss.


    ---

    SHOW NOTES


    DISCOUNT CODE

    Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


    THANK YOU TO OUR SPONSOR:

    Thank you, Enable SNP or sponsoring this episode!


    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    Oct 03, 202351:56
    226. Our Thoughts On The Netflix Series “Down For Love”

    226. Our Thoughts On The Netflix Series “Down For Love”

    Have you heard about the Netflix series “Down For Love”?! We’ve been hearing about it from friends, family, and even one of our kid's healthcare providers, all with rave reviews. So we set aside some of the reality shows that we feel a bit guilty about admitting we’ve watched and enjoyed a wholesome reality dating show of people with Down syndrome on a quest for love. This show highlighted so many things for us to think about as parents. The conversations that we’ll need to have about boundaries and consent, what we’d want to see for our kids, and so much more. It of course brought up so many questions that we dive into like: Did the show represent all types of people with Down syndrome? Does the show honor people with Down syndrome? Is the title “Down For Love” problematic or just a fun pun? We’re diving deep into not only the show, but our thoughts (and some fears!) on our kiddos dating. This is an episode you don’t want to miss!


    ---

    SHOW NOTES


    DISCOUNT CODE

    Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


    THANK YOU TO OUR SPONSORS:

    Thank you, Enable SNP for sponsoring this episode!

    Thank you, Jack’s Basket for sponsoring this episode!

    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


    Sep 26, 202352:29
    225. NYC Buddy Walk Highlights
    Sep 19, 202342:09
    224. Embracing All The Seasons Of Life w/Kayla Craig

    224. Embracing All The Seasons Of Life w/Kayla Craig

    Friends, we have Kayla Craig joining us back on the show to share the incredible message of her new book Every Season Sacred available for pre-order today (out Sept. 19th)! As a former journalist, author, and podcaster Kayla shares how she wanted to write a book speaking to the deep pains, joys, and injustices that come with being human. She hopes this book will speak to the honest lived experience and meet every parent where they are in life. Through the seasons of parenting her daughter Eliza, she’s come to see the world in a whole different way and learned to appreciate embracing all the seasons of life. Kayla invites us to embrace the moments we so often pass by. This is an episode you don’t want to miss!


    ---

    SHOW NOTES

    Previous Episode with Kayla Craig

    75. What makes a family? (Adoption + Motherhood w/Kayla Craig)


    DISCOUNT CODE

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    THANK YOU TO OUR SPONSOR:

    Thank you, ABLEnow for sponsoring this episode!


    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


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    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    Sep 12, 202350:22
    223. Included, Seen, & Heard: The Impact of Successful Inclusion

    223. Included, Seen, & Heard: The Impact of Successful Inclusion

    When we first learned about a school that was dedicated to inclusive education practices in a New York Times article this June called A Brooklyn School Pioneers New Ways to Teach Children With Disabilities we knew we had to have them on! Today we’re joined by PS 15, The Patrick F Daly Magnet School of the Arts, Principal Julie Cavanagh, and teachers Rachel Marks and Megan Macfie. It’s through educational pioneers like these educators at PS 15 who are breaking barriers and proving inclusion can work. They have worked hard to create a culture of trust and transparency breaking the barriers of the fear of the unknown and taking the risks needed to make inclusion work. We’re so excited to continue these important conversations about inclusion in our schools.


    ---


    SHOW NOTES


    DISCOUNT CODE

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    THANK YOU TO OUR SPONSOR:

    Thank you, ABLEnow for sponsoring this episode!


    HELP US SHIFT THE NARRATIVE

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    Sep 05, 202301:04:35
    222. Summer Recap
    Aug 29, 202352:30
    221. A Letter To The Parents Of Our Kid's Peers

    221. A Letter To The Parents Of Our Kid's Peers

    Friends, today we’re talking about school and friendship in a different way, this episode is to the parents of our kid's peers. We’re sharing our thoughts on having conversations every kid deserves to have about disability and why it’s important. We think about our own childhoods and our first interactions with people with disabilities. How we as parents can make intentional choices about the way we talk about disability with our kids. We share some encouraging moments we’ve seen other parents approach including our kids with Down syndrome. Let’s keep shifting those narratives parents, whether you have a child with Down syndrome or not!


    ---

    SHOW NOTES


    From this episode:


    Listen to the episode with Micha & her friend Melynn- 6. Friendship Pt. 2 with Guest, Melynn Henry


    Other resources:


    DISCOUNT CODE

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    THANK YOU TO OUR SPONSOR:

    Thank you, Jack’s Basket for sponsoring this episode!


    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


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    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    Aug 22, 202301:00:16
    220. Back To School Jumpstart w/ Dr. Vaish Sarathy

    220. Back To School Jumpstart w/ Dr. Vaish Sarathy

    We are so excited to have Dr. Vaish Sarathy back on the show! Vaish is here to discuss counterintuitive ideas to jumpstart learning, reading comprehension, and so much more! She’s a Functional Nutrition Practitioner and Math and Science Educator. She comes to Nutrition and Education with a mission to reframe health, cognition, and learning for children with Down syndrome or Autism. Her perspective is shaped by her Autistic, non-speaking 16-year-old son, with Down syndrome: a published poet and author. She challenges all of us to rid the limiting assumptions from our expectations of where our learners should be in their educational journey. Instead: assuming intelligence aggressively, knowing our learners have the ability to learn and understand how to bridge the gaps to reach them. You don’t want to miss this one, friends!


    ---

    SHOW NOTES


    Listen To Previous Episodes With Dr. Sarathy:


    DISCOUNT CODE

    Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


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    Aug 15, 202301:00:45
    219. Tips & Tricks For Your Back To School Toolkit 

    219. Tips & Tricks For Your Back To School Toolkit 

    Aug 08, 202358:21
    218. Creating Inclusion For All Learners w/Tim Villegas

    218. Creating Inclusion For All Learners w/Tim Villegas

    Friends, we’re taking the month of August to talk all things Back to School, today we kick off the series with a discussion on implementing inclusion in the classroom. We’re joined by Tim Villegas, he’s the director of communications for the Maryland Coalition for Inclusive Education (MCIE), a nonprofit that seeks to be the catalyst for the meaningful and successful inclusion of all learners in their neighborhood schools. Throughout his 16-year career in education, Tim has advocated for including students with extensive support needs in general education classrooms. He is the founder of Think Inclusive, a podcast for inclusive education, and Inclusive Stories, a narrative podcast series about families and school districts fully committed to inclusive education. Join us as we chat about all things inclusion in our schools: advice for educators, parents, and those in leadership looking to create spaces where everyone belongs. This is an episode packed with resources, be sure to check our show notes for all the links to helpful books, organizations, and films!



    SHOW NOTES

    Learn more about MCIE Website

    Follow MCIE on Facebook 

    Follow MCIE on Instagram 

    Follow MCIE on Twitter 

    Follow MCIE on LinkedIn 


    Learn more about Think Inclusive

    Listen to Inclusion Stories


    Learn more about TASH

    Learn more about The Beyond Access Model


    Check out Including Samuel

    Check out Who Cares About Kelsey?

    Check out Intelligent Lives

    Check out My Disability Roadmap


    Check out Club 21

     

    Books to check out (Educators & Parents): Leading for All: How to Create Truly Inclusive Excellent Schools

    Reimaging Special Education: Using Inclusion as a Framework to Build Equity and Support All Students

    Unwanted: Fighting to Belong 


    Check out these episodes: 

    10. Inclusion - An Educator’s Perspective with Kristin Enriquez Pt. 1

    11. Inclusion - A Parents Perspective with Kristin Enriquez Pt. 2

    132. BTS Pt 3 - What's the impact of inclusion? (ft. Kristin Enriquez)

    39. Back to School w/IEP Experts Vickie Brett & Amanda Selogie


    DISCOUNT CODE

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    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


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    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    Aug 01, 202301:08:17
    217. The Things People Say
    Jul 25, 202358:07
    216. Continuing Affects Of The Pandemic On Inclusion In Our Schools (w/Common Ground Society)

    216. Continuing Affects Of The Pandemic On Inclusion In Our Schools (w/Common Ground Society)

    It has been over three years since the Covid-19 pandemic began and today we are chatting about how our school systems have seen continued impact on students, teachers, and parents. Who better to chat with than Larkin O’Leary and Emily King, representatives of the Common Ground Society?! Larkin runs the nonprofit @common.ground.society, what started as “Just Two Moms” doing a presentation on Down syndrome in a preschool classroom has led to advocacy at over 90 different schools in 5 counties and a few trips to California’s capitol! Today she’s joined by Emily King, a presenter, Common Ground Society’s board treasurer, and a mother to a child with Down syndrome. We chat about the positive impact of inclusive teaching on students of all abilities, how we can work together to create meaningful change, and so much more. Friends, we’re so excited to have them on today chatting all about the incredible work they’re doing in our schools!


    ---


    SHOW NOTES

    Learn more about Common Ground Society

    Listen to Larkin O’Leary’s TedX Talk: Fostering Differences on Common Ground

    Listen to previous episodes with Common Ground Society:

    70. The Power of "Just Two Moms" w/Jessica Hunter & Larkin O'Leary

    91. Putting the "Social" In Social Distancing w/Jessica Hunter & Larkin O'Leary

    More episodes to check out:

    67. Unpacking Privilege & Understanding Intersectionality w/Jalondra Davis

    101. Jalondra Davis on Race, Disability, & Advocacy

    94. IEPs during Covid-19, ft. IEP Lawyers Vickie Brett & Amanda Selogie


    The Myth of Average Ted Talk mentioned in this episode


    DISCOUNT CODE

    Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!


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    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    Jul 18, 202354:43
    215. Disability Access Services At Theme Parks
    Jul 11, 202343:39
    214. Guardianship, Conservatorship, & Supported Decision-Making

    214. Guardianship, Conservatorship, & Supported Decision-Making

    Friends, what better conversation to have on an episode released on a holiday that celebrates America than to talk about the differences between Guardianship, Conservatorship, and Supported Decision-making? We have attorney and Executive Director of Massachusetts Advocates for Children, Anna Krieger here to help explain the differences and similarities between these options. Anna is a nationally recognized expert on Supported Decision-Making and has trained, advocated, and written widely on the topic alongside decision-makers and their supporters. We’re also joined by self-advocate Craig Kinney and his mom Sandy, who have chosen Supported Decision-Making and are sharing their experience with us today! We hope this episode helps you think about what next steps you may consider when deciding what is best for your family.


    ---

    SHOW NOTES

    The Center for Public Representation

    National Resource Center for Supported Decision Making

    For more information on Conservatorship, Guardianship, & Supported Decision Making by State

    Massachusetts Advocates for Children


    DISCOUNT CODE

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    THANK YOU TO OUR SPONSOR:

    Thank you, Jack’s Basket for sponsoring this episode!


    EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket

    EP 180 "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)


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    Jul 04, 202301:03:32
    213. The Beauty & Challenges of Adaptive & Inclusive Programs

    213. The Beauty & Challenges of Adaptive & Inclusive Programs

    Today we’re talking about our personal experiences with adaptive and inclusive programs. We know both can be successful, we also know what's worked and what hasn’t worked for our kiddos. From basketball, baseball, dance, surfing, theater, gymnastics, ski lessons, soccer, and swim team, we’ve tried what seems like every activity imaginable! We’ve seen our kids thrive in both inclusive and adaptive programs, and we’ve also seen our kids face challenges with both. Let’s pause and realize that these spaces can be so beautiful but equally hard for our kiddos. We chat about how and when we step in and say something, and when we’ve learned to simply step away. No matter what kind of program works best for your child, there’s nothing better than seeing our kids thrive and develop relationships with friends of all abilities. No matter what season of finding the best activity or program for your child you’re in, we hope you know you’re not alone in the trial and error of finding just the right spaces for your incredible kids.


    ---

    SHOW NOTES

    Check out A Walk on Water Surfing 

    Check out Challengers Athletics 

    Check out YMCA

    Learn more about Adaptive Sports


    Related episodes:

    85. Is Inclusion Always The Best Option?

    172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani


    DISCOUNT CODE

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    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


    HELP US SHIFT THE NARRATIVE

    Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

    Jun 27, 202359:50
    212. Working Together & Impacting Change w/ NDSC’s Jordan Kough

    212. Working Together & Impacting Change w/ NDSC’s Jordan Kough

    Jun 20, 202349:54
    211. Connecting, Supporting, & Balancing It All (ft. The Husbands!)

    211. Connecting, Supporting, & Balancing It All (ft. The Husbands!)

    Dads, father figures, this one’s for you! Today The Lucky Few Dads are taking over to chat about nurturing the connections with their kiddos with Down syndrome and what this journey of fatherhood has taught them so far. Josh, Andy, and Chris share what they’d tell their younger selves and how they’ve grown as fathers so far. Some of the changes they’ve made in their careers and family dynamics that have benefited their families. How important it is to normalize asking for support from friends and family. Looking for opportunities to get involved with their kiddos, being flexible while finding what works best for their family, and so much more. They take a moment to brag about their wives and share the superpowers of our three favorite ladies! Friends, you won’t expect their answers!! Happy Father’s Day to all the father figures out there advocating and learning from your kiddos every day! We see you and celebrate you!  


    ---

    SHOW NOTES

  • Listen to EP 120 with Josh & Chris

  • Listen to the Mom’s take on nurturing connections with our kiddos!


  • More resources Josh, Chris, & Andy love:

  • Check out D.A.D.S 

  • Check out Fatherhood.gov 

  • Check out Dad to Dad Podcast


  • DISCOUNT CODE

    Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


    LET’S CHAT

    Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.


    HELP US SHIFT THE NARRATIVE

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    Jun 13, 202347:31