We're sharing stories, responses and discussing the theme of this year's Sickle Cell Awareness Month, "Sickle Cell Taught Me..."
Current event links:
Black Blood Matters: https://www.wavy.com/news/health/red-cross-black-blood-matters-for-some-with-sickle-cell-anemia/
Sickle Cell Patients Should Have Medical Exemption in the UK: https://sicklecellanemianews.com/2020/08/19/uk-nhs-medical-exemption-petition/
Millions of Americans carry the sickle cell trait, many without knowing it. Could they be at risk for severe Covid-19?: https://www.statnews.com/2020/09/03/millions-carry-sickle-cell-trait-could-they-be-at-risk-for-severe-covid19/
When Actions Speak Louder Than Words — Racism and Sickle Cell Disease: https://www.nejm.org/doi/full/10.1056/NEJMp2022125
A 'Why Sickle Cell' episode featuring Rhiannon and her mother Scherika's inspiring journey to cure Rhiannon's sickle cell disease and lupus. An honest look into what it takes to undergo a bone marrow transplant.
A huge thank you to Be the Match for sponsoring this episode. For more information about Be the Match, visit: https://bethematch.org/sicklecell
Sickle cell disease doesn't stop him. He received his MBA and traveled throughout Asia while doing it.
This 'Why Sickle Cell?' series episode features Ade Adeyokunnu and how he navigates advocacy, higher education and travel.
What do you get when you're an individual living with sickle cell disease and a physician? You get Dr. Oladipo Cole.
This 'Why Sickle Cell?' series episode features Dr. Cole and how he navigates living with sickle cell disease and being a physician.
Talking about the mistreatment we endure in healthcare settings.
• ‘Every time it’s a battle’: In excruciating pain, sickle cell patients are shunted aside - https://www.statnews.com/2017/09/18/sickle-cell-pain-treatment/
• Sickle cell patients face a ‘fight for everything’ — even attention - https://usat.ly/2EGKz8J
A sickle cell warrior and a pharmacist with sickle cell trait chatting about the current state of sickle cell and looking to the future. Also featuring a Warrior Story about overcoming priapism. Bear with our cheesiness, it our first episode!
Stephen's WSCD piece: https://bit.ly/2I0eie3
Friends? Sickle Cell 101's Social Media
-Facebook: Sickle Cell 101
Subscribe to get alerts on new episodes!