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WTCF! A Cystic Fibrosis Podcast

WTCF! A Cystic Fibrosis Podcast

By What The CF! A Cystic Fibrosis Podcast
When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong.

What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey.

We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living with CF to help to paint a well-rounded vision of what living with Cystic Fibrosis.
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Episode 6: Book
Ingrid chats to Eilís Moroney, the author of 'Our Baby Has 65 Roses' and mum of a little person with CF -  two-year-old AibhÍn, about diagnosis and how writing a book was her coping mechanism. Listen to the podcast for your chance to win a copy of the book, and email your answer to wtcfpod@gmail.com. You can also purchase the book here. Find out more about CFNZ here to access resources. What the CF! A Cystic Fibrosis Podcast was born out of a curiosity to learn more, support others, tell stories and share experiences while we navigate our own CF journey. Series one of the podcast will focus on diagnosis and will feature conversations with Cystic Fibrosis medical experts, CFNZ, Genetic Counselling, and more. Ingrid and Ian’s story: “When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. The road to diagnosis took several painful weeks. What started with kisses on salty skin soon became a persistent cough prompting many GP visits and eventually an X-Ray - the results of which opened the gates to the possibility of CF.​ From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. Only a week after diagnosis we were chucked into the COVID lockdown left to digest this huge news within our wee family. The overwhelm was real, and although the team at the hospital were amazing, it was the online community of CFers and their families where we found an abundance of warmth and understanding.”​ What the CF! A Cystic Fibrosis Podcast is currently seeking funding and taking donations, 10% of which will go to Cystic Fibrosis New Zealand. For more information contact Ingrid on wtcfpod@gmail.com
51:22
April 26, 2021
Episode 5: Dads
Eddie, Henry and David are all parents of little CFers. Ian chats to these three dads about diagnosis, telling friends and family, and what NOT to say to a CF parent. Thanks again to our guests for sharing so candidly and we know it's going to help others in the community. For further info visit whatthecf.com.
42:55
April 12, 2021
Episode 4: Genetics
Trigger warning  - this podcast discusses pregnancy termination following pre-natal testing. Ingrid chats with Genetic Counsellor Kelly Sullivan about all things genes when it comes to getting the Cystic Fibrosis initial diagnosis. Kelly explains what causes CF, what happens in your genetic counsellor meeting, and the options for couples wanting more children. Check out our blog for further reading as discussed in the podcast.
34:02
March 29, 2021
Episode 3: Mums
Sophie, Kayla and Jessica are all mums of little CFers born during the pandemic. Ingrid chats to these mums about diagnosis, telling friends and family and what NOT to say to a CF parent.
41:43
March 15, 2021
Episode 2: CFNZ Fieldworkers
Ingrid chats to Sue Lovelock, Southern Fieldworker for Cystic Fibrosis New Zealand.  Sue has worked as a fieldworker for 14 years and knows all too well the pain and fear of diagnosis, the heartbreak of the disease and the positive and happy lives that people with CF can live in NZ. Thanks so much to Sue for such a great chat. Find out more about CFNZ here https://www.cfnz.org.nz/ to access any of the resources we discuss in this podcast.
26:01
March 01, 2021
Episode 1: Diagnosis
We discuss the journey to diagnosis for our son Orson at six months old. From pregnancy and birth, tests, diagnosis and processing the news. It's emotionally a highly charged episode but we end up laughing quite a bit which we're pleased to be able to do together through this crazy journey. We'd love to hear from you. You can leave a voice message for us here  - comments, stories or questions. And, feel free to comment, like, share and subscribe on any other channels. If you'd prefer to email us please contact wtcfpod@gmail.com
35:09
February 15, 2021
TRAILER - Ep. 1 - Diagnosis
Check out the trailer for the very first episode of What The CF! A Cystic Fibrosis Podcast - COMING SOON -  episode 1, we chat about our journey to getting a diagnosis for our son -  just prior to the first lockdown in March 2020.
01:15
February 08, 2021