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WTCF! A Cystic Fibrosis Podcast

WTCF! A Cystic Fibrosis Podcast

By What The CF! A Cystic Fibrosis Podcast

When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong.

What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey.

We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living with CF to help to paint a well-rounded vision of what living with Cystic Fibrosis.
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TRAILER - Ep. 1 - Diagnosis

WTCF! A Cystic Fibrosis PodcastFeb 08, 2021

00:00
01:15
Episode 18: CFNZ Lisa Burns

Episode 18: CFNZ Lisa Burns

Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no one is left behind now that Trikafta is funded. There's still no cure, and not everyone can take Trikafta, so CFNZ want all in the community to know that they are there for everyone. Listen to end to hear an exclusive fundraiser coming up from Lisa for Sweatember!


Jul 28, 202333:35
Episode 17: Wrestler

Episode 17: Wrestler

Ingrid chats to Dustin Raynor, better known as professional wrestler Dustin Bozworth. Dustin shares his story living with cystic fibrosis from childhood, to pro wrestling, to reality TV on ‘Stone Cold’ Steve Austin’s Broken Skull. It’s an inspiring conversation and he’s a very unique and ambitious person. We’re proud to have spent time learning more about his amazing life story so far.
Jul 10, 202329:43
Episode 16: Hospital

Episode 16: Hospital

Ingrid shares their journey during a recent hospital admission and Orson gives his views on the whole adventure
Jul 02, 202328:14
Episode 15: Bella Powell

Episode 15: Bella Powell

Ingrid sits down with Bella Powell, a young woman with CF who was the first in New Zealand to get Trikafta thanks to the late Sir Bob Elliott – who gave her this gift of life during his final months by funding the drug for her.

Following on from our last episode with Patrick Gower who broke the Trikafta story here in NZ, Bella shares her side of the story – her childhood in hospital, facing declining health in her teens and then becoming the face of the CF awareness and Trikafta campaign in New Zealand, to her journey working in some of the biggest and best theatrical productions in Australia.

I can not thank Bella enough for her honesty in what is an often difficult conversation that brings back lots of memories, both good and bad. What comes through loud and clear is her love and admiration for Sir Bob and all that he has given her. She articulates it all with poise, authenticity and positivity. Thank you Bella xx

Love the podcast? Support us through buymeacoffee.com/wtcfpod

ZOONO DISCOUNT CODE INSIDE! Tune in to get your discount code to receive 2 x 50ml Zoono hand sanitiser for free when you use our exclusive global code with any other purchase. And, the whole store is currently on 40% off (while stocks last, excludes the UK) so visit zoono.com today for this fantastic offer!

Mar 27, 202301:10:42
Episode 14: Journalist, Patrick Gower
Feb 25, 202354:50
Episode 13: Back to School

Episode 13: Back to School

Ingrid chats with Helen Ulyatt, mother to an active 9-year-old CFer called Sophia. They chat about how she prepped for starting school and all the fears and worries surrounding this milestone, as well as managing trips to camp and hopes for the future.

ZOONO DISCOUNT CODE INSIDE! Tune in to get your discount code to receive 2 x 50ml Zoono hand sanitiser for free when you use our exclusive global code with any other purchase. And, the whole store is currently on 40% off (while stocks last, excludes UK) so visit zoono.com today for this fantastic offer!

Jan 23, 202344:21
Episode 12: Our diagnosis story
Oct 19, 202234:56
Episode 11: Never Better
Sep 06, 202240:57
Episode 10: CF Toddler
Jul 31, 202245:09
Episode 9: Transplant
May 17, 202242:04
Episode 8: Kalydeco
Apr 19, 202249:01
Episode 7: Trikafta
Mar 23, 202255:13
Episode 6: Book

Episode 6: Book

Ingrid chats to Eilís Moroney, the author of 'Our Baby Has 65 Roses' and mum of a little person with CF - two-year-old AibhÍn, about diagnosis and how writing a book was her coping mechanism.
Listen to the podcast for your chance to win a copy of the book, and email your answer to
wtcfpod@gmail.com. You can also purchase the book here.
Find out more about CFNZ here to access resources.
What the CF! A Cystic Fibrosis Podcast was born out of a curiosity to learn more, support others, tell stories and share experiences while we navigate our own CF journey.
Series one of the podcast will focus on diagnosis and will feature conversations with Cystic Fibrosis medical experts, CFNZ, Genetic Counselling, and more.
Ingrid and Ian’s story:
“When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. The road to diagnosis took several painful weeks. What started with kisses on salty skin soon became a persistent cough prompting many GP visits and eventually an X-Ray - the results of which opened the gates to the possibility of CF.​
From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. Only a week after diagnosis we were chucked into the COVID lockdown left to digest this huge news within our wee family. The overwhelm was real, and although the team at the hospital were amazing, it was the online community of CFers and their families where we found an abundance of warmth and understanding.”​
What the CF! A Cystic Fibrosis Podcast is currently seeking funding and taking donations, 10% of which will go to Cystic Fibrosis New Zealand. For more information contact Ingrid on wtcfpod@gmail.com
Sep 01, 202151:22
Episode 5: Dads

Episode 5: Dads

Eddie, Henry and David are all parents of little CFers. Ian chats to these three dads about diagnosis, telling friends and family, and what NOT to say to a CF parent. Thanks again to our guests for sharing so candidly and we know it's going to help others in the community. For further info visit whatthecf.com.

Apr 12, 202142:55
Episode 4: Genetics
Mar 29, 202134:02
Episode 3: Mums

Episode 3: Mums

Sophie, Kayla and Jessica are all mums of little CFers born during the pandemic. Ingrid chats to these mums about diagnosis, telling friends and family and what NOT to say to a CF parent.

Mar 15, 202141:43
Episode 2: CFNZ Fieldworkers

Episode 2: CFNZ Fieldworkers

Ingrid chats to Sue Lovelock, Southern Fieldworker for Cystic Fibrosis New Zealand. 

Sue has worked as a fieldworker for 14 years and knows all too well the pain and fear of diagnosis, the heartbreak of the disease and the positive and happy lives that people with CF can live in NZ. Thanks so much to Sue for such a great chat. Find out more about CFNZ here https://www.cfnz.org.nz/ to access any of the resources we discuss in this podcast.

Mar 01, 202126:01
Episode 1: Diagnosis
Feb 15, 202135:09
TRAILER - Ep. 1 - Diagnosis

TRAILER - Ep. 1 - Diagnosis

Check out the trailer for the very first episode of What The CF! A Cystic Fibrosis Podcast - COMING SOON -  episode 1, we chat about our journey to getting a diagnosis for our son -  just prior to the first lockdown in March 2020.

Feb 08, 202101:15
November 6, 2020

November 6, 2020

Nov 06, 202000:60