This is Growing Old

Medicaid and SNAP have long provided essential support for vulnerable adults. However, a recent proposal in Congress to reduce funding for these programs threatens to undermine equitable access to care for millions of older Americans, many of whom are living with Alzheimer’s disease and related conditions.

This week, we're joined by Natalie Kean, Director of Federal Health Advocacy at Justice in Aging, to explore the serious implications these proposed cuts could have on vulnerable adults.

We at the Alliance are deeply grateful for our dedicated Board of Directors, who help amplify our mission. On today’s episode of This is Growing Old, our Board Chair, Michele Markus, joins us to share insights on the year ahead.

It’s Heart Month—a busy and exciting time here at the Alliance as we gear up for Heart Valve Disease Awareness Day on February 22nd. In the spirit of the season, we’re thrilled to be joined by Amy Johnson, President and Director of Rock from the Heart. Amy will share their incredible efforts to educate people about aortic and heart valve disease, support families affected, connect patients with vital resources, and inspire us all through the healing power of music.

Caregiving is a radical act of empathy. To give care is to recognize the needs of another and provide support and companionship. All of us have received care at some point in our lives, and many of us will provide care in one way or another. Yet, the concept of care often goes underexplored, leaving caregivers unrecognized and their contributions undervalued. 

In honor of National Caregiver’s Month, we're joined by Stage Director, Playwright, Producer and scholar, Dr. Derek Goldman, to discuss his ground breaking play The Art of Care. This production, developed in part by its ensemble, tells a powerful story made up of real-life narratives. It shines a light on the sacrifice, hardship, and profound beauty that define the caregiving experience

In June, the Alliance joined policymakers and patient advocates on Capitol Hill to discuss the unintended consequences of the Inflation Reduction Act (IRA). While the IRA offers benefits like capping out-of-pocket costs and reducing vaccine expenses, it also raises concerns about how plans are incentivized to control costs. These concerns are detailed in a recent report by the Alliance and Manatt.

Joining us today to explore the implications of the IRA for older adults, along with the steps CMS can take to protect beneficiaries, is the Alliance's Public Policy Manager, Adina Lasser.

In an era dominated by digital media, cultivating media literacy skills is essential to navigate the digital landscape safely and confidently.

Joining us to examine the importance or media literacy, the dangers of internet falsehoods, and the unique challenges that older adults face as they navigate web is Dr. Carol Quade, an adjunct professor at Northern Virginia Community College's Annandale Campus, volunteer at the Lifetime Learning Institute of Northern Virginia, and expert in communications and media studies.

Starting over can be daunting, even terrifying, for many older adults. But for Nell Irvin Painter, an accomplished educator turned artist, it was as simple as placing a brush on a canvas. In this episode, we explore Nell's fearless leap into the arts after a distinguished 30-year career as a professor and historian. Join us as we discuss her inspiring journey and the joy of embracing a new chapter in life.

February is American Heart Month, a time to increase awareness around the risk factors, symptoms, and treatments for heart disease. Each year, we are joined by hundreds of advocates, organizations, care centers, and clinicians to share critical resources that may save lives.

As we prepare for Heart Valve Disease Awareness Day, taking place every February 22nd, we're proud to welcome our guest Robyn Peacock, a heart disease survivor, patient-advocate, and Womenheart Champion. Tune in as Robyn shares her life-changing journey with heart disease and what drives her advocacy work

As we channel the lessons learned from years past into actions that shape equitable futures, we at the Alliance are grateful for such a passionate board of Directors to help amplify our mission. Joining us on today’s episode of This is Growing Old to reflect on the year ahead is our Board Chair, Michele Markus.

‘Tis the season to sleigh preventable diseases like COVID, Flu, RSV and Pneumonia. In this episode, we’re joined by CEO of Healthy Women Beth Battaglino to discuss the crucial role that vaccination plays in creating a safer, merrier holiday for you and your loved ones. After all, it’s Our Best Shot!

Are you familiar with the symptoms of Alzheimer's? Neuropsychiatric symptoms, or NPS, are mood and emotional symptoms of dementias and other brain diseases that are often overlooked and under-treated. This Alzheimer's Awareness Month, we're amplifying the voices of those experiencing NPS.

Today, we're joined by Terry Montgomery, a friend of the alliance, a patient advocate, and someone who, after receiving a dementia diagnosis, has committed her voice to ensuring that Alzheimer's patients have access to treatments and care and that there's a nurturing community for everyone.

As we observe pride, a time when LGBTQ+ plus folks celebrate their enduring fight for liberation, we must recognize the communities that strengthen this movement. Zami Nobla is one of those groups. Founded by Mary Anne Adams, a Metro Atlanta community activist, social worker, and public health researcher, Zami Nobla aims to increase opportunities for networking and social support and to explore the healthcare needs and coping strategies of Black lesbian older adults.

On Wednesday, February 22nd, the Alliance will be joined by more than 119 partners who are all working together to help raise awareness of valve disease—what it is, who’s at risk, what the symptoms are, how it’s detected, and how it’s treated.

This year, we’re proudly expanding internationally with the help of Heart Valve Voice Canada. There are an estimated 11 million Americans with heart valve disease and more than 1 million Canadians—so this topic is of great importance to both of our organizations. Heart Valve Voice has a number of exciting events and outreach activities planned for Heart Month and Valve Disease Day, and their managing director, Ellen Ross, is here to tell us more about their work. 

It’s Heart Month, which is a busy time at the Alliance as we prepare for Heart Valve Disease Awareness Day on February 22nd. In the spirit of Heart Month, we're joined by Lindsay Clarke, the Senior Vice President of Health Education & Advocacy at the Alliance, to talk about the risk factors, symptoms, and importance of increasing awareness about Valve Disease. Lindsay has been heading up Valve Disease Day since its start in 2017 and leads our efforts to educate consumers, patients, caregivers, and healthcare professionals on a variety of diseases and conditions of aging.

It’s no secret that vaccination is our best defense against preventable illnesses like the flu and COVID-19. However, for our most vulnerable communities, access to preventative care can feel just out of reach.

Luckily for us, the Adult Vaccination Access Coalition is combatting the financial obstacles to critical treatment that many older Americans face. Joining us today is a patient advocate and co-manager at AVAC, Abby Bownas. Tune in as we discuss the importance of vaccination along with the amazing work that AVAC is doing to support older adults everywhere this flu season.

It’s hard to believe that 2022 is over. As we step into a new year, it’s important to look back and reflect on the year that we’ve just had. Dan Perry, Founder of the Alliance for Aging Research and member of our Board of Directors, joins Alliance President and CEO Sue Peschin to reflect on the moments that defined 2022. 

On the heels of National Family Caregivers Awareness Month and National Alzheimer's Awareness month, we're joined by two patient advocates that epitomize this critical intersection. Roger Cochran is a member of the Early-Stage Alzheimer's Advisory Commission for the Alzheimer's Association. He has an MA in Anthropology, MS in Health Systems (Ga Inst Tech), a Ph.D. in Sociology, and has worked for over 30 years in community health planning. Roger is also living with Alzheimer's disease. Dorothy Merrick is married to Roger and is also his primary caretaker. She is passionate about the topic of Alzheimer's disease and is a powerful advocate for her husband and others living with this condition.

 During our chat, we explore their journey together, as they navigate the challenges that follow the early stages of Alzheimer's disease.

In August, the Inflation Reduction Act was signed into law. The bill includes provisions to address a number of issues including healthcare, to climate change, and deficit reduction. In this episode, we're joined by our very own VP of Public Policy and Government Relations, Michael Ward, to discuss some of the most important provisions of the bill for older adults, as well as how you can engage with the federal government to ensure that patients are able to easily benefit from the law’s changes.

Who needs the bells and whistles when inventor, Robert Bolen is changing the world with a button? Created as a teenager to help restore the independence of a friend, the Button Helper has empowered thousands of older adults, veterans, and differently abled individuals to dress themselves with dignity and ease. As the Button Helper continues to enhance lives across the country, Robert is proving that the most enduring innovations aren’t always complicated. They just make life easier.

Robert Bolen joins us to demonstrate just how easy, accessible, and inclusive the Button Helper really is!

Each year, the Rally for Medical Research raises awareness of the urgent need for increased investment in the NIH to improve health, spur progress, inspire hope, and save lives. In collaboration with over 350 organizations, the Rally urges policymakers to make biomedical research a national priority. Now in its 10th year, we are proud to celebrate the critical advances made possible by the efforts of advocates nationwide.

Joining us today for the conversation is Jon Retzlaff, Chief Policy Officer and VP of Science Policy and Government Affairs at the American Association for Cancer Research (AACR). Since launching the Rally in 2013, AACR has united thousands of Americans in one cause: the vital national importance of medical research.

July is UV Safety Awareness Month, which is a time to spread awareness about how important it is to protect our eyes and skin from the side effects of ultraviolet rays. This month continues to be a reminder on the connection between over exposure to UV light and cancers that occur in the eyes, lips, and the skin. While sun safety has always been an important topic, especially as we age, the last couple of years have added new confusion to which sunscreens we should buy and how to use them properly.

Joining us today for the conversation is Jay Sirois, Vice President of Regulatory & Scientific Affairs at the Consumer Healthcare Products Association. CHPA is the leading voice fighting to ensure that Americans have access to over-the-counter (OTC) medications, dietary supplements, and consumer medical devices they can count on to be reliable, save money and time, and deliver new and better ways to get and stay healthy.

June 15th is World Elder Abuse Awareness Day (WEAAD). The purpose of WEAAD is to provide an opportunity for communities around the world to promote a better understanding of abuse and neglect of older persons by raising awareness of the cultural, social, economic and demographic processes affecting elder abuse and neglect.

In recognition of the day, we are joined by Deborah Royster, the Assistant Director of the Office for Older Americans at the Consumer Financial Protection Bureau (CFPB), to share the tools and resources for later life financial security. 

On February 22 we'll be hosting our sixth annual Heart Valve Disease Awareness Day, a conference dedicated to increasing recognition of the specific risks and symptoms of heart valve disease, improve detection and treatment, and ultimately save lives. Valve Disease Day would not be possible without the more than 100 partners who have joined the campaign to lend their voices. Among the incredible organizations that we've partnered with is the National Caucus and Center on Black Aging, the only national organization devoted solely to providing effective leadership in making minority participation in aging services a national issue and priority.

This week, we sat down with NCBA president and CEO Karyne Jones to discuss the importance of health equity in combatting valve disease along with the NCBA's role in raising awareness. We're looking forward to celebrating this year with a Valve Disease Day virtual celebration, a Facebook Live, a Twitter chat, and more. 

Please visit https://www.valvediseaseday.org/ to see how you can get involved.

On January 11th, the Centers for Medicare & Medicaid Services released an NCD proposal that would require “coverage with evidence development” for monoclonal antibody therapies aimed at amyloid for the treatment of Alzheimer’s disease. CMS’ coverage determination is deeply troubling, as it restricts Medicare recipient access to critical treatment.

Here today to discuss CMS’ national coverage determination and its implications on patients who suffer from Alzheimer’s Disease and other dementias is David Farber, an expert on international reference pricing, healthcare reimbursement, and the regulatory approval process for drugs and medical devices.

The CDC has recommended COVID-19 boosters for many Americans and has also approved co-administration of COVID-19 vaccines with other vaccines. Though many Americans have received their COVID-19 boosters and their flu shots this Winter, there are many questions about co-administration and vaccine hesitancy remains. Here to answer some common questions about co-administration, dispel myths, and share tips to keep older adults protected against all vaccine-preventable diseases is National Foundation for Infectious Diseases’ Medical Director, Dr. William Schaffner.

It's hard to believe that 2021 is almost over. As we prepare for the new year, it's important to look back and reflect on the year that we've just had. Jim Scott, Chair of the Alliance for Aging Research's Board of Directors, joins Alliance President and CEO Sue Peschin to reflect on the year's top stories in aging and health.

Colder weather is upon us, and that means that many older adults may be isolated at home. Here to talk about how Meals on Wheels is making a difference is Meals on Wheels President and CEO Ellie Hollander. 

At the Alliance for Aging Research, we are all about helping people live longer, happier, more productive lives. Unfortunately, ageism in our society can be a huge barrier to healthy aging. Here to talk about ageism is Ashton Applewhite, an activist and author who wrote This Chair Rocks: A Manifesto Against Ageism.

Being able to afford out-of-pocket prescription drug medications is a problem for millions of Americans, especially older adults. Every year, Medicare beneficiaries pay on average over 3,200 in out-of-pocket expenses for prescription drugs. For an older adult on a fixed income, this is no small chunk of change. Alliance for Aging Research Vice President of Public Policy Michael Ward is joined by Amy Niles, Executive Vice President of the PAN Foundation to talk about why out-of-pocket costs are so high, the real-world impacts of growing out-of-pocket costs for older adults, and what we can do about it.

Jay Reinstein is a graduate of the Alliance’s Talk NERDY to Me program, which trains older adult on patient-centered outcomes research and the clinical trials process. Jay, who has early-onset Alzheimer’s disease, shares his story this Alzheimer's Awareness Month.

Dr. Felipe Sierra is an internationally known research leader and advocate in the fields of geroscience and aging biology. He is currently chairing the 2nd Euro-Geroscience Conference, which will take place in Toulouse, France on March 24-25, 2022. Prior to his current position, Dr. Sierra most recently served as Director of the Division of Aging Biology for the National Institute on Aging at the NIH. Alliance for Aging Research President and CEO Sue Peschin talks with Dr. Sierra about the emerging field of geroscience, his upcoming conference, and the secrets to healthy aging.

Sue Peschin, President and CEO of the Alliance for Aging Research, talks with Dr. Rhonda Randall, Chief Medical Officer for UnitedHealthcare Employer and Individual, about the UnitedHealth Foundation’s America’s Health Rankings Senior Report. 

View the report here: https://www.unitedhealthgroup.com/newsroom/posts/2021/2021-5-18-report-challenges-older-americans-791889.html.