Aunty M Brain Tumours Talk Show

Headsmart: Raising awareness of the signs of a brain tumour

An episode of Aunty M Brain Tumours Talk Show

By Claire Bullimore
Hi, I am Claire Bullimore, founder of Aunty M Brain Tumours and I am here to give a platform for brain tumour sufferers, survivors, family or friends to share their stories. Also interviewing a number of brain tumour charities, support groups.

Find out more about Aunty M Brain Tumours at auntymbraintumours.com/

Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients.
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Joss Fleming Talks About Having Surgery In An Interventional MRI Operating Theatre
Joss Fleming talks about her brain tumour experience and how she now loves raising funds for the The National Brain Appeal which is part of the The National Hospital for Neurology and Neurosurgery.  Joss was a patient on the dedicated Brain Tumour Unit and had her surgery in the Internationale MRI operating theater. Both of which are innovations funded by The National Brain Appeal.    Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
17:13
July 13, 2019
Who Are The National Brain Appeal?
Tariza Dauntseau tells us about  The National Brain Appeal. A charity dedicated to raising vital funds for The National Hospital for Neurology and Neurosurgery, and the UCL Queen Square Institute of Neurology.  Since the charity began in 1984 they have raised over £45m for state-of-the-art equipment, major building programmes and life-saving research.  Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
22:51
July 11, 2019
Interview with Ellie's Fund Brain Tumour Trust
We are joined by Ellie's Fund – Brain Tumour Trust was set up after the death of 14 year old Ellie Othick-Bowmaker. During the 3 years that she fought her 2 brain tumours,  Ellie helped to raise over £25,000 for Brain Tumour Research (BTRS).  "We provide assistance to families who live in Yorkshire and across the Humber and who have a child going through treatment for a brain tumour. We also support families within the Borough of Scarborough (UK) who have a child with any form of cancer. We raise awareness about brain tumours and support established research projects".   Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
04:31
July 10, 2019
Brainstrust Help People Live Life With A Brain Tumour
 Will Jones the Chief Executive of Brainstrust talks about what Brainstrust do and how they can help you.  "We’re here to help you live life with a brain tumour" - Brainstrust Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest You can also find out more about Dawn on the Aunty M Brain Tumours Blog -  Click Here 
30:54
July 9, 2019
A Charity That Gives Gift Boxes To Local Children With Life Threatening Illnesses
Be inspired by Tyler Eillis. A young man who has been battling a brain tumour since he was 12. He talks about being diagnosed and how he really wants to support others children who are unwell.  Tyler and his mother Janice set up  Tyler’s Trust . A charity that give gift boxes to local children with life threatening illnesses, they also do boxes for siblings.  In addition to this they supply local hospitals with emergency overnight parental bags in Chichester and Worthing. Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
08:29
July 7, 2019
Sarah Collins Talks About Her Meningioma Story
Sarah Collins shares her personal experience when she was diagnosed with a Meningioma.  Sarah has been a professional singer for most of her life and had no warning that she had a Satsuma sized tumour sitting in her brain. Here is her story..   Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
25:33
July 6, 2019
My Daughter's Name Will Go On
Shona lost her daughter Tasha in December 2015 to a Diffuse Intrinsic Pontine Glioma also known as DIPG .  Tasha was an ambassador for The Brain Tumour Charity and supporting the #HeadSmart campaign. Shona Floyd is now a Regional Healthcare Engagement Manager for The Brain Tumour Charity.  Shona shares Tasha's story and about Tasha being an ambassador for The Brain Tumour Charity and supporting their #HeadSmart campaign. Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. 
19:38
July 4, 2019
What Is Wear A Hat Day About
I had the pleasure of interviewing Brain Tumour Research's Campaign Manager Hugh Adams. Hugh talks about where the money goes for Wear A Hat Day.  "I'm passionate about improving the outcomes for those diagnosed with a brain tumour and this will only be achieved through increased funding into research". - Hugh Adams   Find out more of the work here: Brain Tumour Research    Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. 
03:38
July 4, 2019
Brain Surgery Left Me With Left Side Paralysis
Leander Stone was diagnosed with a Sphenoid Wing Meningioma.  She had no symptoms prior to her diagnosis and it was by chase that it was picked up by a MRI. She was having the scan for something not related to a brain Tumour.  Leander talks about her Post Brain Surgery and being left with Left Side Paralysis.  Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
03:31
July 2, 2019
Diagnosed with a Astrocytoma Cerebellar and Ataxias
Sam Carson talks about when he was diagnosed with an Astrocytoma Cerebellar Tumour at the age of four. He talks about the effects that it has left him with including a rare neurological condition called ataxia which affects his balance and speech. Sam, does believe it was brought on by the brain tumour which he had removed when he was five. Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
04:31
July 2, 2019
Carol Vaughan Was In A coma For 12 Days
Carol Vaughan talked about her experience with her brain tumour. On the 28th July 2008 Carol went to a courthouse for jury duty and was excused early. When she was going back to her car, she fell on the ramp. Because she fell, someone coming to her aid called the ambulance. In the ER after a CT scan, they found a brain tumour. “I was drifting in & out of consciousness, then woke up 12 days later”    Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
18:19
June 29, 2019
Brain Tumour Research - Where Your Money is Going?
I had the pleasure of interviewing Professor Geoff Pilkington and Helen Fillmore, the Principal Researcher.  Professor Geoff Pilkington and his team of specialist researchers within the Cellular and Molecular Neuro-Oncology Group are working tirelessly to find new levels of understanding in one of the most complicated and challenging battle-grounds in medicine today: to achieve a full understanding of all types of brain tumour and the methods required to cure them.   The very well known charity 'Brain Tumour Research' play a central role in enabling Professor Pilkington and his team to advance the work at the University of Portsmouth.      Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
24:30
June 29, 2019
Headsmart: Raising awareness of the signs of a brain tumour
We talked to Headsmart.  The only dedicated campaign which works on raising awareness for the signs of a brain tumour. Especially the symptoms of brain tumour in children and teenagers. This is done by equipping parents, the public and healthcare professionals with the information they need.  Headsmart is part of The Brain Tumour Charity. Their goal is to reduce average diagnosis times of brain tumours to four weeks or less in line with NHS targets. Identifying tumours early reduces the chance of a child developing long term disabilities and can ultimately save their life.  Sadly 10 children and teenagers are diagnosed with a brain tumour every week in the UK, that's more than one a day.  This is why these symptoms cards about the signs of a brain tumour are life changing.  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
19:12
June 12, 2019
Why Brain Tumours Affect Hearing
Dr Borka Ceranic who is the Hearing Specialist at St George's Hospital. She talks about how brain tumour's or a brain injury can effect hearing.  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
27:47
June 11, 2019
Diagnosed with a Brain Tumour and Hydrocephalus
Danielle McGriskin was diagnosed with a brain tumour and hydrocephalus when she was just 13yrs old. Now at the age of 18 she talks to us at Croydon Radio about living with an illness and how she finds it helpful helping others. She has been raising funds for The Brain Tumour Charity for many years and is an ambassador for them.  She was also given The Diana Award for the Courageous Citizen Award in 2013.    Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016)   
05:07
June 10, 2019
Having a Brain Tumour and Third Nerve Palsy
Emma Young was diagnosed in June 2012 with a brain tumour, a meningioma and has had two brain surgeries and radiotherapy. She tells us about her diagnosis and where she is now with her treatment.  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
04:24
June 9, 2019
Why Brain Tumours Can Affect Our Vision
I am joined by Bridget Kavanagh who works on the Eye Unit in Croydon University Hospital. She talked about how often she see's brain tumours and how important it is for people to have yearly eye checks.     Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016)   
04:30
June 8, 2019
How to Use the Natural Healing Power of Your Mind & Body
Anthony Wright is an International Speaker, Trainer and Author.  Anthony is a brain tumour survivor. " I had nine operations, two radio-therapies, a week in a coma and a month in a wheelchair".  He has a unique understanding of how the brain functions and offers workshops on a Neuroplasticity – Training For Management.   He will also be talking about his book: You Can Self Heal: How to Use the Natural Healing Power of Your Mind & Body.   Find out more about Anthony at his website HERE  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
09:39
June 7, 2019
I Was Diagnosed With a Colloid Cyst.
Claire Snyman from Canada, talks about her personal experience when she was diagnosed with a rare benign brain tumour, a colloid cyst..  Claire went on to write the  book ‘Two Steps Forward – Embracing life with a brain tumor’.  She was inspired to start to write her book based off her journals. Two years later, and 70 000 words later, Two Steps Forward is now available in e-book and print copy! "It was in 2010, after a vertigo attack and the onset of migraines, that I was diagnosed with a rare benign brain tumour, a colloid cyst.  I was 34 at the time and the mother of a 4-year-old and I heard the words that no one ever wants to hear: “You have a brain tumor.” My first thoughts were of my husband and son. I felt numb. As part of my treatment, I became part of the group of ‘watch and wait’ brain tumor patients around the world who are monitored with yearly MRI scans"  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
09:21
June 6, 2019
My Brain Tumour Led Me To Be A Torch Bearer At The 2012 Olympics
Julia Lavington talks to us about her brain tumour story and being a torch bearer at the 2012 Olympics.   She will be sharing her story and what positives she found after going through the trauma.   Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
05:55
June 5, 2019
How To Understand PIP If You Have A Brain Tumour?
Robert Shaw talking about his personal experience as being diagnosed with a brain tumour and also how to understand Government Benefits for people diagnosed with brain tumours, in particular the Personal Independence Payments (PIP).    Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
08:57
June 4, 2019
I Promised My Son I Would Share His Story
Jacky Fredrickson talks about her book 'JON'.  This is a book about her son who she lost to brain cancer. Jon was 16 when he started to complain of headaches and sickness. An eyesight test revealed the shocking news that he had developed a brain tumour. Over the months and years that followed Jon and his devoted family endured a roller-coaster ride of treatment and therapy, diagnosis and disappointment, until finally no more could be done for Jon, and he died at the age of only 26 with his devoted parents at his bedside. Jon’s illness did not prevent this brave young man from setting up home on his own, travelling around the country independently and embarking on a successful career. His mother Jacky kept a diary of her years of trial, and she has now developed it into this moving and inspiring book.  You can get a copy of the book HERE   Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
10:57
June 4, 2019
Music Got Me Through My Darkest Days
Sam also known as Laptop Philharmonic, tells the story when he was diagnosed with a brain tumour and his recovery.  He talks about being a music artist and putting together the album CRANIOTOMY because he wanted to share the insights he had with the world after his diagnosis and recovery. You can download his album for FREE HERE  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
20:17
June 4, 2019
Living with Brain Cancer
Karl Martin talked about having brain cancer and how he deals with the fact he is living on borrowed time now. It is a very heart warming and honest interview and shows the power of love and determination.   Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
12:55
June 3, 2019
God Got Me Through My Meningioma Ordeal
Melinda D’abbenigno shared her experience when she was diagnosed with a brain tumour and how without her faith she couldn't have coped.   Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016)   
17:35
June 3, 2019
Surviving a Brain Tumour and Bullying
Elizabeth Silvas also known as Lizzy, shares her experience when at the age of 11 was diagnosed with a brain Tumour and her ordeal with bullying at school.  From such a young age Lizzy found refuge though the very famous Sonic The Hedgehog  games. She talked about having a passion for something saved her.   You can also follow Lizzy on her Twitter    Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016)  
20:11
June 3, 2019
Living With An Inoperable Benign, Brain Tumour
Julie Liddle, shares her experience when she was diagnosed with a brain tumour and how she became a Brain Tumour Support Worker.   Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
18:03
June 3, 2019
The Importance of Charity Collaborative Work
Tina Boden is a leading voice in the UK for Micro Business. As a Strategist, Connector, Interim Director, Speaker, Writer.     In this interview Tina talks about her work with Ellie’s Fund and Brain Tumour Research and Support across Yorkshire and how it is so important for charities to collaborate with each other for the greater good of the brain tumour community in the UK.   Find More About Tina and her work and how she can help you HERE   Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
06:26
June 3, 2019
Chris Lewis Talks about Living with Cancer
Chris Lewis talks about his experience of living with stage 4 Mantle Cell Lymphoma for over 12 years.   Until July 2007 Chris was a self-employed Business Consultant.  It was then that Chris was diagnosed with a rare blood cancer and given only six months to live! After aggressive chemotherapy and a stem-cell transplant Chris was surviving the terrible disease.  "I saw how poor the cancer support sector really was, being so disjointed and not really addressing any practical issues, that I decided to talk out about it to see if I was the only one who felt that way. I wasn’t, and very quickly friends of mine had started me a website dedicated to cancer patents to help spread the word.  This site is now the most popular cancer blog in the UK and I am frequently invited to speak around the world about my experiences. I can now use my influence to change things for everyone affected by cancer, and I have been able to start a unique charity SimPal that gives free phones and sim cards to anyone affected by cancer. The only charity of it’s kind in the world".  You can find out more about Chris's blog here:  Chris’s Cancer Community Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 
15:48
May 14, 2019
I Survived a Brain Tumour and Breast Cancer
Dawn Hamill has survived not only a brain tumour but also breast cancer.  Dawn was diagnosed with a Benign Parasaggital Meningioma in November 2008 and later on in 2014 was diagnosed with Grade 2 Invasive Ductal Carcinoma Breast Cancer.  Listen here to her extraordinary story and how she has gone on to be a blogger. Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest You can also find out more about Dawn on the Aunty M Brain Tumours Blog -  Click Here 
27:44
May 5, 2019
My Son Was Diagnosed With A Ependymoma
Linda Rickford Talks About When Her Son Was Diagnosed With A Ependymoma. After going through a nightmare of a time when her son was diagnosed with a brain tumour, she doesn’t want any other mother to struggle the way she did.  Linda recalls the whole experience and how now she has been supporting the Astro Brain Tumour Fund for many years.   Find out more about Aunty M Brain Tumours at auntymbraintumours.com/ Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. 
24:06
May 3, 2019
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