The Project Sebastian Podcast


An episode of The Project Sebastian Podcast

By The Project Sebastian Podcast
Real talk about How our special needs families deal with the day to day challenges, struggles and some of the triumphs along the way.
More places to listen

More places to listen

The Update
Sebastians MRI...:( The rest of the years going forward. :)
July 16, 2019
BDSRA Family Liaison Tracy Kirby
Listen as Tracy Kirby discusses her role as one the Nations largest advocates in helping families affected by Batten disease find love, hope and support.
June 18, 2019
Bill Bussey
 A former police officer, Rodeo superstar, sheriff dispatcher and all-around guys guy, Shares his story. As we listen to him overcoming life's challenges through his own loss of sight, We are reminded that sometimes we just should not wait. Today's guest is almost blind and an advocate and independent contractor for a great company called eSight. Bill Bussey. To reach out to Bill for anything from eSight to coping with blindness call him at +1 (830) 388-0832
April 28, 2019
In my opinion
Why do we react so badly, Why do we run? Why are we crippled with fear?  Its ok ....It just is...
April 2, 2019
Episode 12
Todays episode...The amazing Dr. Jill Weimer! Jill Weimer, Ph.D. Associate Scientist and Senior Director of Therapeutic Development   Sanford Research Dr. Jill Weimer is a developmental neuroscientist and oversees the management and continued development of the translational arm of Sanford Research in Sioux Falls, South Dakota. She started at Sanford Research in 2009 as an assistant scientist, and her research program focuses on the molecular mechanisms mediating development of the cerebral cortex and how disruption in these processes can lead to a whole host of neural pediatric disorders, including Batten’s disease and Neurofibromatosis Type 1. Dr. Weimer grew up in north central Missouri and moved to upstate New York where she received her bachelor’s degree and Ph.D. in neuroscience from the University of Rochester. She completed her postdoctoral training in the Neuroscience Research Center at the University of North Carolina in Chapel Hill with a focus on developmental neuroscience. 
February 28, 2019
ENTREPRENEUR, WORLD TRAVELLER, DJ, CELEBRITY PODCASTER, & LIFE ENTHUSIAST AND SPECIAL NEEDS ADVOCATE. Vernon tells his story about helping his family from across the country while discovering his true calling.
January 18, 2019
Holiday message with Sebastian and Gage
Listen as my boys give all of us a holiday message!
December 24, 2018
John Montazeri: Father, Advocate, Businessman
Take a listen as this father of autistic child describes his life full of challenges, Depression, Marriage, Money, the current state of insurance with special needs ad how he is dealing with the loss of a very special person.
December 12, 2018
Today we talk to a sibling of a special needs kid. Gage, my son, goes deep into his relationship about his brother and talks candidly about the challenges of being a younger brother were anger and resentment played a part in the downfall of most of his relationships. Throughout his brothers challenges in life Gage found himself left out only to become one of sebastian‘s biggest supporters.
November 17, 2018
Dena bogrow •Listen as this special-needs mom tackles and 18-year-old suffering from several forms of autism. Attacking the day-to-day challenges of divorce, daily activities, home based business as well as finding the spiritual aspect to survive
October 26, 2018
Vanessa severance
Batten disease cln2 mom discusses the hardships of full-time care with full-time jobs
October 1, 2018
Getting to know your host, Christopher Velona
September 29, 2018
Batten disease...
Greg Lopez~We discuss the everyday challenges of an Autistic adult and a father of 5 who is relentless in helping others in the batten community
September 18, 2018
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