Cure Chronic: The Chronic Movement
By Cure Chronic
Cure Chronic: The Chronic MovementOct 17, 2020
Living Well with Arthritis, welcome back Sandra!
Sandra was diagnosed with juvenile rheumatoid arthritis at the age of eight. Today, she also lives with osteoarthritis.
Arthritis has shaped many aspects of her life and has driven her to inspire others to thrive with different types of this disease.
As a radio and podcast host and producer, moderator and family caregiver, Sandra strives to create awareness about arthritis and the importance of arthritis research. Be sure to check out her podcast Chronically Driven, A podcast about being in the driver's seat when it comes to our health and wellbeing, mind body and soul and check out Arthritis Wellness Conversations https://www.arthritisresearch.ca/arthritis-wellness-conversations/
Follow her on Instagram and connect with her @ChronicallyDriven
Living with Chronic Pain - Welcome Back Darren
September is chronic pain awareness month, and we welcome back Darren to talk more about his story living with chronic pain. Darren talks about living in chronic pain and how most painkillers don't actually work! He talks about the ups and downs of living with chronic pain, and his medical story! Connect with him by sending him an email darrenradke44@gmail.com check out his book here: https://www.amazon.com/Deceived-Within-Living-APS-Lupus/dp/1663222932
National Celiac Disease Awareness Day Deanna's Story with Her Family
Celiac disease runs all over in Deanna's family, starting with her father-in-law, then to her brother-in-law, her daughter and son. Her daughter was six years old when she was diagnosed, she looked very unhealthy and had major gut problems but now she is very healthy - 10 years later, thriving as a 16-year-old! Strangely enough, her daughter decided to do a science project on Celiac disease and found out that her brother also had celiac!
Deanna's Journey with her family has certainly had its ups and downs, and they now have a great system in place to make sure that no one is harmed by their disease. She is excited that there are so many more options out there to consume for her kids, and her family for as well as so many different resources available.
She is a part of different blogs to learn more about the disease and the different products available for her family. If you have any comments or questions or want to get in touch with Deanna feel free to send her an email at DThorogood22@gmail.com. And check out these awesome links www.celiac.ca
Facebook https://www.facebook.com/groups/canadianceliacassociation
Mental Wellness Living with Lyme, Julie's Story.
This is Julie, she has lived with Lyme disease, she was diagnosed in 2016 after 6 years of misdiagnosis. After her trip to Asia, she quickly became sick, dealing with so many different physical symptoms, as well as major mental health struggles as well. She lived with depression and anxiety for years, and it wasn't until she worked with a naturopath that helped her get her diagnosis with lyme, who then helped her get in touch with a Lyme literate doctor. Indicating that she had Lyme and malaria, parasites and Epstein bar. So she started a 10 month protocol, a very expensive out of pocket protocol at that! This protocol was constantly changing her physical health and mental wellbeing. The Herxing effect was immense that caused so many severe psychological effects, she mentions that the words depression and anxiety don't even describe the effects that she was living with, feeling bouts of manic and psychosis - a complete roller coaster. She lives day to day, good days and bad days but continues to stay strong for herself and advocating for others.
My story with my brother, Alex. Suicide Prevention Week Sep 5 to 11
ATTENTION: Some explicit content, at 14mins with his story and how he passed away.
I don't normally talk about his story, for whatever reason, but mental health, especially in the chronic community is so important! My brother passed away of suicide back in 2008, he was 19. I'm so grateful that I was able to spend 18 years of my own life with him, growing up with a brother even though today it is quite sad. I do go over what it's like experiencing suicide, living with him and without him, so many emotions and feelings that I have gone through after experiencing suicide. I also do talk about very specifically how he passed away so if you are having a great day, maybe listen to this podcast on another day.
I appreciate everyone's support and thank you so much for listening to my story and following this podcast.
Follow me @CureChronic and if you have a story to tell check out my website www.CureChronic.com
Deceived from within & manipulated by a specialist - Darren's Story!
It took 5 years for someone to just listen to him. He was finally diagnosed with APS and lupus, he struggled for years with being misdiagnosed, given medications that weren’t helping plus being manipulated by specialist, once he found out his true diagnosis he was finally able to take some control over his life and his health. He nows lives on disability, which was a struggle on its own to acheive, and as he says it’s not all what its cracked out to be. But he was able to write a book about his story and all of the troubles he went through.
Connect with Darren and send him an email at darrenradke44@gmail.com
Check out his APS and Lupus Fighter Logo merchandise: https://www.cafepress.com/apsfoundation/17161390
Be sure to follow his blog: apsandlupusfighter.blogspot.com
Lastly check our his book!
Amazon: Deceived from Within: Living with APS and Lupus: Radke, Darren: 9781663222930: Amazon.com: Books
Barnes & Noble: Deceived from Within: Living with Aps and Lupus by Darren Radke, Paperback | Barnes & Noble® (barnesandnoble.com)
iUniverse: Deceived from Within By Darren Radke (iuniverse.com)
Living with pain is exhausting, Dee's story!
After 6 years, she was finally diagnosed with Endometriosis. Doubled over in pain every month with her periods, she was always told that “it will get better as you get older”. Her pain was so traumatic it caused more than just problems with her uterus, she experienced vomiting, bowel problems and more. She dealt with trial and error drugs, and felt like no one cared about her pain and what she was experiencing. After years she would fight with doctors, because of their ignorance towards Endo, she felt like the doctors wanted to just mask the symptoms, with no action of what they are going to do about the problem. She started feeling crazy, like she was making up her symptoms. She had to stand up and tell these people that she knows her body best! Listen to her story, and be sure to connect with Dee on Instagram @endowarrior_x
Diagnosed to Passionate, Lauren's Story
Lauren has Lyme, POTS and EDS plus she is allergic to everything! Living with both diseases, she lived with a huge sense of loss and not being able to live the life she used to live, not being able to eat the foods she wants to eat - she has had to completely alter everything in her life! Her silver lining is discovering her new passions in life, after being diagnosed. Her love for nutrition and cooking, being creative in the kitchen and how she can make the foods she eats tolerable for her but tasty! Plus connecting with so many amazing new people, that understand what she is going through! She does PT and pilates to help her EDS and she tries to incorporate and manage her lyme through diet and supplementation, using an infrared sauna really helps her as well. Be sure to connect with her on insta @lesswithlaur or send her an email: lesswithlaur@gmail.com
Self Care in Remission with Becky and Sandra!
It is so important to have a self care regime, especially to keep up healthy when we are healthy. If there is a way we can prevent illness, prevent hospital visits and flare-ups then that is what we need to do. Be sure to follow Sandra @ChronicallyDriven and check out her podcast Chronically Driven!
Medication just masks Symptoms with Alex
Alex has been living with endometriosis and thoracic disease since she was 14. Although her mother dealt with the same disease, it still took the doctors 5 1/2 years to diagnose Alex. Unfortunately she dealt with gaslighting, not being believed or being told lies about the disease causing her to suffer for 5 1/2 years with symptoms, without a diagnosis and without any type of treatment. On average, globally, it takes 7 to 10 years to get a diagnosis for endometriosis and approximately 1 in every 10 women have endo. However, because of the time it takes to get a diagnosis Alex believes that that statistic about endometriosis is much higher. Especially due to the fact that 40 to 50% of infertile women actually have endometriosis.
Alex started the endometriosis foundation of Canada in order to start advocating for women in Canada but also all over the world to help reduce this lengthy diagnosis time and help women all over the world with this medical condition!
Check out Endo Canada: www.endometriosiscanada.com
Follow Alex On Facebook and Instagram - yellowbowsxo
Self Care should always be #1 - Becky's update with Sandra!
Sandra is the voice of the podcast Chronically Driven and in this podcast we get to hear a bit more about my story, what I learned and how important self care it! Be sure to listen to her podcast and how we are in the driver's seat to our health and wellness and follow Sandra on Instagram @ChronicallyDriven!
Remission to Shock, with Kim!
Diagnosed with Ulcerative Colitis when she was 22 years old Kim actually went into remission for years and forgot about having the disease!
After years gone by she started to have some really strange symptoms and she was told that it was her female parts (unreal!) Then FINALLY they told her these symptoms are caused from her Ulcerative Colitis! Her symptoms became increasingly worse as the she dealt with major stress from a custody battle for her daughter. Then in 2016 she had excruciating pain and was told that she was overreacting about the amount of blood she was passing and pain she was experiencing. Thankfully she is mostly in remission from medication and has her own podcast called This is Your City! Check it out at ThisisYourCity.ca and follow her on Instagram @thisisyourcitynow
Your body knows better than anyone else about your health with Jenn!
From getting skin cancer diagnosis, to Hashimotos from black mold, she has learned to take care of herself, by listening to her body more, and understanding what foods she is putting in her body. Diet and exercise are tools to use to heal the body, but understanding that exercise can be a stressor as well. Releasing the stress in the way our bodies can, and learning when the body says no and how important down time is! Listen to your body, the experts don’t always have the best answers for YOU. https://wholistichealthboss.com and Instagram: @Wholistichealthboss
The doctors work for us, not the other way around: With Lisa!
After not healing from a shoulder surgery in 2012, to being misdiagnosed with a neurological disorder then having to go to the Mayo Clinic to find some answers. Then being put on all kinds of medications to control seizures, tremors and more, but Lisa knew that the medication was not working, or helping. The docs were just trying to find medications to mask the symptoms, instead of diagnosing the actual problem. She finally had to take her health into her own hands by researching her medications that she was on, and getting answers for herself. As Lisa started to advocate for herself, she was getting the run around from her doctors, leaving her with more questions than answers. Her health deteriorated so badly, that she thought she was going to die. She found out that part of her health deteriorating was due to medical negligence. She finally decided to get a whole knew medical team, that she was going to interview and when she started being taken off medication, she soon realized that these medications were masking symptoms of severe POTS and EDS, as well as a major heart defect from birth! From her experience, she now has the ability to advocate for herself, and ask more questions and stand up for her life and her health.” Connect with her on instagram @conroy_lgc and she just launched her website and respectively rant! ChronicallyConroy.com
"Find Your Inner Warrior" Gina's Story with Lyme!
After walking her dog through a trail in Connecticut, she found a tick on her neck 5 days later! (Yikes!) then after 30 days later she started getting very sick with all sorts of different, and very strange symptoms! As the illness got better and got worse, she saw her doctor and got tested several times for lyme and it kept coming back negative! Overtime she kept getting worse, after getting tests and more tests done for a year straight she started losing hope. But then she took matters into her own hands and sought out a Lyme literate doctor that she paid for out of pocket. The doctor said “You are classic Lyme disease, Gina” and she felt a surge of relief. However, that was just the start of a journey with Lyme!
Follow her to learn her story with Lyme on Instagram @GinaVallesFit Check out her new venture on Instagram @immunewarrior_ and be sure to follow her fitness studio on Instagram @ginas_total_fitness
Please tell me it's ulcerative colitis!
Getting back into the swing of things! Here's a bit of an update for me and I want to know what are you going to do? Are you getting the COVID Vaccine, or are you not? Let me know, connect with me on Instagram and Facebook @CureChronic or send me an email Info@CureChronic.com I am super interested to know your opinion and what your plan is! Finally a Big Shout Out to all of the advocates out there making a difference and changing lives, because of you we are creating this massive chronic community to help so many people with what they are going through, and making life better for others AMAZING!
If you have a story to tell about surgery, or some life altering experience book a time slot for a podcast here: https://www.curechronic.com/book-online
Life without a Colon, Becky's Flare Up.
This year has been a crazy year and here we all thought that 2020 was bad! Starting this January I started feeling a bit of a flare coming on, and I was doing everything I could to help stop it, eating healthy, doing more meditation, exercise etc. But the stress of this year just became too much and the fear of the flare getting worse took over, and the flare got worse. I ended up in the hospital on the 25th of March for three weeks, in the middle of the flare up I ended up switching GI doctors, which I am so grateful for my new GI specialist, shout out to Dr. Chalmers-Nixon out of Fernie BC, you saved my life. While I was in hospital in Calgary, the GI team started me on Xalgenz, but after 5 days we found out it was not working and that prednisone was giving me this fake feeling of getting better, so on Good Friday, Easter weekend, I met with the surgical team and discussed having a full colectomy, to take out my entire colon. I have never had major surgery like this before, so it was very much a shock to me. I ended up having the surgery on April 5th and recovered in hospital that week, and was able to come home April 11th. I have been getting better and better each day, good days and bad days still, but I feel like I am getting my strength back and I am feeling back to my normal self again. Listen to my story and how everything happened so fast. *Yikes!* -Becky
Leader in Wellness, with Lyme with special guest Melissa!
Melissa is #Lyme warrior, entrepreneur, wellness fanatic, Voice First Pioneer and TedX Speaker. To say she is busy in as understatement, because she is also a Mom of 2 boys, and a published author. In business Melissa is the founder of The Güüd Company - a voice-first wellness company. Find our Flash Briefing, "Today's Health Tip" for Amazon Alexa or as a podcast on iTunes. Founder at The Scoop, Inc. based in Princeton New Jersey as PrincetonScoop, a hyper-local Social Media Marketing Consultancy. Founder of RestoreOurShore.com, a philanthropic movement in 2012 which raised and dispersed funds directly to charities in NJ hardest hit by Hurricane Sandy.
She is currently battling a lyme relapse and sharing the journey on Instagram and Clubhouse.
Be sure to follow her journey on Clubhouse: @melissaklepacki
Check out her website: www.wellnesswarriors.club
The The Güüd Company on Facebook: https://www.facebook.com/TheGuudCompany
Instagram: @melissahallklepacki
LinkedIN: @melissahallklepacki
Major Life Changes to MS with Rachel
In 2019, after a year of life changing events; pregnancy loss, family loss, and a major job change, Rachel began experiencing numb/tingly hands and feet, vision loss (diagnosed as Optic Neuritis), and extreme brain fog and fatigue. Two months later, after many tests Rachel was diagnosed at 29 years old with Relapsing Remitting Multiple Sclerosis (RRMS). Now a year and a half later, Rachel is taking more control of her diagnosis and overall health and well-being living with MS. Through the support of her family, friends, community, and fellow warriors she has gained new perspectives on life with MS. She has become an activist for MS and Chronic Disease Awareness, championing her own team for Walk MS for the last two years. Rachel loves connecting with others and building a network of support – connect with her on social media!
@ms__rach (Instagram)
Unexpected Remission welcome back Shamitris
We welcome back Shamitris this episode and she has wonderful news about her journey into remission! Though it seemed like a long one, her story unfolds unexpected truths and hardships that she is grateful to have gone through. Be sure to connect with her on instagram @Shamitris and check out her story with Adenomyosis.
Holistic approach to thrive with Rachel
Rachel is a holistic wellness coach who specializes in guiding clients in balanced intuitive eating, positive mindset practices and low-impact exercise. After being diagnosed with rheumatoid arthritis at age 23, she sought out holistic approaches to managing symptoms so she could continue to thrive in her active life.
Rachel offers private autoimmune coaching, hosts a podcast (Autoimmune and You), and recently self-published a cookbook, titled Fresh Start Cookbook that has 100% gluten-free and plant-based and incorporate easy to find ingredients, her blog and her website https://www.rachelalbo.com. Be sure to check out what she has to offer!
Be sure to connect with her on Insta @rachelalbo
Later Lyme ✌️ Welcome back and ✨CONGRATS✨ Rachel!
Rachel joined us a little while ago to tell us her story with Lyme disease, and although she was diagnosed just over a year ago (but suffered for much longer than that!), she is so excited to tell us that she is in remission! Here are some incredibly affective tools she used in order to help her get there, and hopefully they will help you too!
PEMF: Pulse Electro Magnetic Field Therapy: https://www.drpawluk.com
Herbal Tincture, the most effective ones being: Burbur Pinella, Cumanda, Samento, Banderol Use discount code HEALINGWITHRACH - https://www.nutramedix.com/cowden-support-program-month-1.html. “These statement have not been evaluated by the FDA. These products are not intended to diagnose, treat, cure, or prevent any disease.”
Myers cocktails
Connect with her on Instagram: @healingwithrach
Chronic Pain, Chronic Hope with Alex
Diagnosed with heart failure, problematic hands resulting with a failed surgery causing chronic pain, along with PNES (Psychogenic Non-epileptic Seizures), scoliosis and mental health challenges. Although Alex has many different life challenging health problems, she remains an advocate for people suffering with invisible disabilities, to help create more of norm for people to have a safe space to talk about their chronic pain!
Connect with her!
https://www.instagram.com/awesomely.chronically.ill.girl/
https://www.facebook.com/LifeofAlexandra/
Movement for Fibro with Naomi
After an unexpected accident, leaving Naomi's life turned upside down, it was her strength and resilience that pushed her through. Those she still suffers with the pains and uncertainty of Fibromyalgia, she lives the life she wants to live, and never gives her disease any say! She helps her pain through kind movement and helps empower others with Fibro as well! She is now working as personal trainer, helping others with fitness and doing some awesome bootcamps, connect with her:
Facebook: https://www.facebook.com/Fibrowellbeingwarrior
Her Website: https://fibrowellbeing.wixsite.com/fibrowellbeing
Insta: @fibrowellbeingwarrior_official
Her Fitness Facebook Page: https://www.facebook.com/Bodypositivefit
YouTube for Awareness with Marti
Marti has been living with MS for a little while now, and she got an unexpected diagnosis of the "suicide disease" Trigeminal neuralgia. She was fortunate enough to be able to have surgery right before the pandemic, to help her with those pains, but she still deals with symptoms of multiple chronic diseases. She has become an advocate for women with MS, as well as women of color dealing with chronic disease, be sure to check our her inspirational social pages and her YouTube channel!
Connect with her:
IG @martis_mslife
FB martismslife
You Tube Marti’s MS Life
Misdiagnosed to Empowering with Allyn
Allyn Amerongen is a chronic illness coach and lifestyle strategist specializing in empowering women with chronic illnesses to overcome obstacles and step into their calling. Her signature techniques focus on strengthening mindset and building healthful practices, allowing for women to live a joyful life beyond the boundaries of illness.
Professionally, Allyn has 15+ years in the chronic pain/illness field with training from Mayo Clinic and is certified in the Knowledge Broker Blueprint. On a personal note, Allyn’s passion for helping others stems from her own battle with Fibromyalgia, Chronic Fatigue Syndrome and Chronic Migraines.
Connect with her on her social:
Instagram: https://www.instagram.com/doingitdespite/
Website:https://doingitdespite.com
Facebook: https://www.facebook.com/groups/241010897203748
Instagram: https://www.instagram.com/doingitdespite/
Mindset Mastery Freebie: https://view.flodesk.com/pages/5e7411525af0de0026e16017
Advocating for Arthritis in Adolescence with Ishita
Ishita is a lovely young lady, living in India, she has been diagnosed with scoliosis and a weird arthritis to celiac diagnosis! As most of us believe, celiac causes gastrointestinal problems, but for Ishata, it actually caused severe arthritis. As such a young lady this is incredibly hard to live with going to school, and just trying to live a 'normal' life as a 16 year old. She certainly wishes she started a gluten free diet a lot earlier, but now she advocates for young teenagers with chronic illness! Follow her on Instagram @curvy.spine
Laughing through a pandemic with Moyna
Moyna and I had some great laughs recording this podcast, we also chatted about living with MS through a pandemic, being a mom with MS and how our bodies don’t react they way they used to with alcohol (yikes!), and a bunch more! Here’s to some laughs! Connect with Moyna on Instagram @LifewithMoyna
UC changed her plans for life, with Gaby
Diagnosed with #Ulcerative #Colitis in 2017, Gaby quickly learned how to speak up and become her own advocate when her doctor just wasn’t listening to her! She was able to switch doctors and get onto a treatment plan that is working great for her, that she believes she is in remission. The crazy thing that UC did for her though, is it altered her career plans and now because of her experience in hospitals and the medical industry, she has started on a path to become a physicians assistant! Listen to her story and be sure to connect with her on Instagram: https://www.instagram.com/fitfourtitude/ and check out her blog: https://fitfourtitude.wordpress.com
Pranic Healing with Dr. Haritha
Haritha has been an energy healer, specializing in #Pranic #Healing for over a decade. Her practice helps people with pain, release of negative energy and repressed emotions (and much more!) Listen to her story with energy healing and learn how her pranic can help you heal! Be sure to connect with her before the end of the year to get 20% off your sessions, use code CureChronic. Check out her website and schedule a free consultation at www.pranicway.com
Instagram @pranicway
Learning our true paths with Chelsea
Chelsea is living with #Multiplesclerosis and it’s amazing how our diseases can change our paths, but maybe this is our real path that we are supposed to be on. Chelsea wanted to be a doctor but her MS seemed to pull her in a different direction. Her education and experience in medicine allowed her to have more empathy to patients and an understanding to the medical field, but she is now a teacher in chemistry, to help impact the community! She has been able to balance her career and her health and wellbeing, therefore assisting in her overall health over the years. Now she is into body building and power lifting! Connect with her on instgram @mswarrior.chelsea and Facebook: @mswarrior.chelsea
Lessons from Lyme with Rachel!
Being misdiagnosed for years, being told it was in her head, the tests were coming up ‘normal’ Rachel started losing hope, and fast. She lost weight and even told her parents that if she kept on this path, she was going to die, and she didn’t know why. It wasn’t until one day that she was brought to a naturopath and with a whopping $500 consult fee, she took the chance and thankfully she did, because he asked her the golden questions “have you ever been diagnosed with Lyme Disease” Listen to her tell her story and be sure to connect with her on Instagram: Healingwithrach
Diet and Lifestyle to lower chronic disease, with Emily!
Emily has #Graves Disease and she is a Certified Nutrition Specialist, Licensed Dietitian Nutritionist and Certified Lactation Counsellor, so she understands how diet is so important when it comes to disease, but we are not really given a lot of information about diet! It’s up to us to get a team that will teach us how to eat properly for a healthy lifestyle, especially living with disease. Emily's approach to nutrition explores the relationship between diet, biological systems, lifestyle, and environment to target optimal whole-body function through diet and lifestyle changes.
Listen to Emily’s story and connect with her on Instagram: @emmpowered_nutrition and check out her website: https://www.emmpowerednutrition.com
Check out this book on how foods affect the body: How not to die by Dr. Michael Greger
Living with Type 1 as a Mom, photographer and more with Louise!
Louise was diagnosed with Type I Diabetes when she was young and it's been up and down, and a lot of work since! Listen to her story with pregnancy, having children with type I and so much more. She now helps people going through really difficult times, so photography allows her to still experience the joyful sides of peoples lives. Connect with her on Instagram: Louiseagnew and check out her photography and her blog here: https://louiseagnewphotography.com
Let's just add to the list, with Alexis
Alexis has a pretty big hand that has been dealt with, her diagnosis being Hashimotos, chronic migraines, Shuermann's Kyphosis, Scoliosis, Anxiety, Depression and Idiopathic Asthma, but she also has OCD, ADD and potential fibromyalgia. Listen to her story, how she lives with everything and how empowering and inspiring she is, despite her health! Connect with her on Facebook: Alexis Rush
Living with Ankylosing Spondylitis with Steff!
Dealing with AS is one thing, but Steff deals with so much more including medications, canceling plans over and over and even just taking it easy can be painful for her… Oh, and then there is the “painsomnia”. Listen to her story with AS and what she is doing now to help herself, advocate for herself and others plus creating awareness of what AS really is.
Check out her blog: https://ankylosingspondylitis.net/author/stephaniedipardo/
Connect with her on Instagram: Totallyfunkless
And be sure to buy her book “Just Breathe” on Amazon here: https://www.amazon.com/dp/B086KYFVWS
Autoimmune Diseases are weird, with Stevie!
Stevie was diagnosed with Rheumatoid Arthritis back in 2018, and her life did more than just a 180. From marathons, to bed ridden her life certainly did a massive shift when she got the diagnosis. Thankfully as a dietitian she knows how to take care of herself and because of her career she was able to get quite a fast diagnoses! She still tries to get on her bike everyday and go for walks with the dog, regardless of the arthritis and the pain. Connect with her on Instagram: @stevielynlyn she has some awesome photos of her fluffer and some poorly plated food (according to her!)
Healing Stage IV with Modern & Holistic Treatments, with Ethan
Ethan is an inspirational soul, living each day present with love and gratitude, while living with the ups and downs of Stage IV brain cancer, Glioblastoma.
Before his encounter with cancer, Ethan was traveling the world, teaching Yoga, offering intuitive coaching, studying Dance, Writing Music, Practicing Massage & more. He's now had 4 head surgeries. The first surgery was a brain surgery in October, 2019. This was followed by 7 weeks of intensive radiation and low dose chemo. Although Ethan felt strongly to treat his condition as holistically as possible - it was very important to receive these immediate therapies to halt this life threatening condition.
Ethan's vision is to inspire others with severe conditions like his - by sharing his story, Fully healing from Glioblastoma, cultivating radiant health on all levels, manifesting his inner gifts (writing, yoga, art, dance, music, healing & coaching work), and help others evolve into the highest version of themselves.
Connect with him on Facebook: @EthanSisser and be sure to follow his journey and donate on his website: https://www.ethansangels.org
Misdiagnosis and talking about normal bodily functions with Amy!
Amy has migraines, celiac disease, endometriosis, fibromyalgia and Hypermobility Joint syndrome. She was misdiagnosed for years, she was told it was all in her head and her periods we're according to many "normal" even with so much pain! She also had to deal with a huge and terrifying incident in July, during a pandemic!
Listen to her story, her frustrations and more and be sure to connect with her on Instagram: @chronic_mumma
MindBody Medicine with Dr. Kim D'Eramo
It's definitely not everyday that we get to speak to doctors who understand the most important connection we need to have, the mind body connection. Listen to her talk about what she does, how she helps her clients and her book! We definitely need more doctors like Dr. Kim Deramo, she inspires us, motivates us and educates us on her practice.
She is a Physician and a Best-Selling Author of The Mind Body ToolKit, and Intuitive Healer. She has the ability to read into your energy system and immediately know what is most disrupting your health so it can be released, and she wants to show you how to do this for yourself too.
Your body has the ability to heal itself. If you’ve struggled with a chronic illness, pain, anxiety, or unrelenting fatigue and tried “everything” to heal, then be sure to connect with her on Instagram: @DrKimDeramo and check out her website: www.DrKimD.com or send her an email kim@drkimd.com
The Mind and More with Adam
Listen to this episode with Adam who gets your brain thinking, we chat about the mind, our mindsets with chronic disease and the deep dark stuff about the world. Adam has his own story suffering with addiction, and chronic pain and how his mindset was something that innately changed his life.
Be sure to connect with him and watch what he is doing at https://thementalmasteryalliance.com and connect with him on Instagram @thementalmasteryalliance
The Treatment Worked!! Welcome back Tom!
Tom updates us with his progress from his stem cell treatment over a year and a half ago and he still has not had a cluster headache in that time! But, he has some VERY exciting news to share with us! Listen to the podcast to find out!
To recap, Tom has what's known as "the Worlds most painful disease" #TrigeminalCephalalgiaNeuralgia also known as Cluster Headaches, or the suicide disease. 😲
Connect with Tom on YouTube: @ClusterHeadSurvivor
Instagram: @cluster_head_survivor
Be sure to read his blog about cluster headaches, mental illness and more: www.clusterheadsurvivor.blogspot.com
My Peach Fuzz: a journey with Adenomyosis with Shamitris
This lovely afro-Latina is fighting for #Adenomyosis awareness and research. Shamitris dealt with countless doctor visits, many of them disregarding her telling her it is all in her head! We all know when we feel pain, we're not making it up -- it is real. She finds relief now with CBD, holistic treatments like Acupuncture and more. She also writes about her journey to raise awareness and understanding towards Adenomyosis to ultimately help other Adeno-warriors out there. Check out her website: https://www.mypeachfuzz.com
and connect with her on Instagram: @mypeachfuzzblog
From Dr. to Patient with Dr. Lynn Rogers
Dr. Lynn Rogers is the former Director of the Neuralplasticity Laboratory at the Shirley Ryan AbilityLab and a former dominant athlete, completing multiple Iron Man races and more, but in July of 2017, she went from Ironman ready to paralyzed. She has been diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), where she could spend months in the hospital repeatedly making progress and then relapsing. Her body attacks its own nervous system, eating away the nerves coating and damaging the nerves themselves. Her journey is a bit of a rollercoaster, and she is looking to do more aggressive treatment, contact her:
Insta: Lynnrogers2008
and follow her journey on her website: lynnrogers.squarespace.com
Let’s Talk Chronic Pain with Dr. Justin Ternes
Dr. Ternes has a background in Physical Therapy and he is passionate about helping every patient address their pain, injury and/or physical limitations through a unique blend of functional exercises, manual therapy skills, biopsychosocial education, pain science and mindfulness techniques.
Listen to his story about how he jumped into this field, more information on the techniques he uses, how he helps men with anxiety, stress and more. His podcast will inspire you to learn more about holistic approaches to pain management.
Connect with him: www.trueself.health
Instagram: @trueselfhealth
www.evryman.com
Check out his Men’s Group Sunday 1pm PST that is open for all men to explore what a men’s group is like. They call it “CrossFit for Emotion”
Also be sure to check out Wim Hof: https://www.wimhofmethod.com And Dr. Rhonda Patrick: https://www.foundmyfitness.com
Here is a 15 Minute Movement and Breathwork Flow that is a great way to start the day!
https://vimeo.com/464405279/6fb336b2b8
“Your mind controls your body, your breath controls your mind”
-Dr. Justin Ternes
Staying Positive with MS with Moyna
Diagnosed with Multiple Sclerosis at the beginning of 2020, this has been the most challenging year of her life. Upon diagnosis, Moyna started conducting tons of research, looking for support groups or general MS resources. She noticed a reoccurring theme within the MS community. She did not see many people who looked like her or had similar backgrounds. It motivated Moyna to create her Instagram. Sharing her journey and stories in hopes of inspiring others. The positive reception from her Instagram lead her to create a website and begin blogging. MS has been an inspiration to cherish each day. Moyna can be reached by Instagram @lifewithmoyna. Also, her website lifewithmoyna.com
Healing Lyme Naturally with Sue!
Lyme disease can be detrimental on a person's health, and it seems to be a disease that is hard to diagnose and treat, especially in Canada. Listen to Sue's journey with Lyme, how she was diagnosed, her amazing natural treatment and what she is doing now to not only help the Lyme community, but also the chronic disease community.
Connect with her: Instagram: @indicapable her website: https://indicapable.ca
YouTube: Indicapable.
Facebook Lemons for Lyme page: https://www.facebook.com/suzyjocookshelp
Facebook Indicapable page: https://www.facebook.com/INDICApable-1569587413142228
Facebook Saskatchewan Lyme (Vector-borne/Zoonotic) Disease Support Group that I manage with another woman: https://www.facebook.com/groups/1120278671431231
"I wish I could just change my diet" with Natalie
Natalie is a wellness consultant from Montreal, who also happens to have Crohn's. Like so many with chronic illness, she's lived the struggle of juggling pain, frustration and daily life whilst trying to seem like she's totally fine. For years she worked at trying to stay healthy with diet and medication but more recently she found meditation and neurofeedback, both of which she thanks for keeping her in remission and living a vibrant life.
You can find her at: www.lavienourrie.com
Facebook: https://www.facebook.com/lavienourrie
Instagram: https://www.instagram.com/la_vie_nourrie/
Twitter: https://twitter.com/LaVieNourrie
An M.S. diagnosis during a pandemic with Lina!
Dealing with any lifelong disease diagnosis is hard, but Lina got the bad news, right as COVID-19 started. She experienced symptoms of M.S. as early as her childhood, which she was recently told by her specialist, but nothing could have prepared her for the isolation and having to experience new medications and infusions on her own. She has gotten better since the beginning of this year with treatment and a great attitude, and she continues to advocate for herself and seek help, and new friendships, through social media. Listen to her story and her awesome advice! Connect with her on instagram @TheLightofLina and check out her project @TheLightIChose
The Chronic Fashion Trend with Clarissa!
Clarissa has been living with Colitis for 16 years now, and has recently graduated in fashion! With an eye for fashion and a heart to help others, she is creating awareness to reduce the fashion stigma and emphasize the need for a clothing line for those with chronic disease. We all know how uncomfortable 'normal' clothes can be during a flare, so we turn to sweats, the comfies and bed!
Connect with her on insta @RissWright or send her an email at ClarissaWright94@hotmail.com