HAE Speaks

HAE Speaks

By US HAEA
HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.
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Episode 4- life before and after an HAE diagnosis of a child.
Episode 4 - Mandy is a mother and caregiver to her son, Luke.   Listen as Mandy shares a part of their journey,  life before and after an HAE diagnosis of a child.
16:23
August 3, 2020
Ongoing Research for New HAE treatments.
Tony Castaldo, CEO of the HAE Association provides an information packed update on the new HAE treatments that are being developed by 9 companies. Tune in to this  podcast for the latest exciting details about this vitally important HAE research. Here is a list of companies and their websites listed in order as they are discussed in the podcast. BioCryst: www.biocryst.com Kalvista: www.kalvista.com Phavaris: pharvaris.com Attune Pharmaceuticals: attunepharma.com CSL Behring: www.cslbehring.com BioMarin: www.biomarin.com RegenxBio: www.regenxbio.com Intellia Therapeutics: www.intelliatx.com Ionis Pharmaceuticals: www.ionispharma.com
13:29
July 3, 2020
COVID interviews
Missy interviews an HAE patient, caregiver and two Brady Club youngsters about COVID. Each of them with great ideas and tips during this time.
27:47
June 2, 2020
Episode 1: Life as a Caregiver (Missy M.)
Episode 1 HAE Speaks Podcast:  Missy M. shares a glimpse into her life as an HAE caregiver for her husband Mike.   For more information about HAE and the US Hereditary Angioedema Association please visit HAEA.org
15:10
May 1, 2020
What is HAE?
A brief overview of HAE and the Hereditary Angioedema Association.
02:27
May 1, 2020