Heal Mary
By Heal Mary
Heal MaryJan 16, 2023
Transforming Healthcare: Ose and Uwa's Mission for Health Innovation and Equity
Today, we are joined by Ose and Uwa, to explore their work and expertise in transforming healthcare. Ose, a clinical expert with over a decade of experience, is deeply committed to addressing health disparities within marginalized communities. Uwa, a STEM MBA candidate and cancer survivor, brings her passion for innovation and social impact to revolutionize healthcare. Join in a thought-provoking conversation about their journeys, challenges, and visions for a future where healthcare is equitable and accessible to all.
How California Black Health Network is creating greater access and equality in the healthcare system.
In this episode, we chat with Rhonda Smith, the dynamic Executive Director of the California Black Health Network. With a career marked by leadership in health organizations and impactful community initiatives, Rhonda brings a wealth of experience and unwavering passion to our conversation. Join us as we delve into Rhonda's remarkable journey, exploring her work, her vision for healthcare advocacy, and the evolving landscape of health equity.
Website: https://www.cablackhealthnetwork.org/
Contact: info@cablackhealthnetwork.org
Phone Number: (916) 333-0613
Facebook: https://www.facebook.com/yourCBHN?fref=ts
X / Instagram: @yourcbhn
Pride in Health: Breaking Barriers with the National LGBT Cancer Network
In this episode, we're diving deep in with Scout from the National LGBT Cancer Network to embark on a conversation delving into some of the projects and initiatives led by Scout and the Network, the challenges faced by the LGBT community in the realm of research and healthcare, and how acts of allyship are important in this current legislative landscape.
Join us for an exploration of advocacy, resilience, and community on the Heal Mary Podcast!
Phone number: 212-675-2633
Empowering Hearts: Championing Women's Cardiac Care with Sheryl from Her Heart Sounds
Today we're diving into a conversation with Sheryl, the heart behind Her Heart Sounds. We explore Sheryl's journey from SCAD survivor to advocate, and her nonprofit, Her Heart Sounds. Her Heart Sounds provides support and education, empowering women who have survived a cardiac event with the knowledge and resources they need to navigate their healing journey. Join us as we learn more about the disparities women face in cardiac care and the work Sheryl has done to combat this on this episode of the Heal Mary Podcast.
Contact Info:
Website: https://herheartsounds.org/
Facebook: https://www.facebook.com/groups/426100138489531
Surviving & Thriving: Deborah from the Young Survival Coalition
Get ready for an inspiring chat diving into the awesome work of the Young Survival Coalition (YSC), supporting young adults facing breast cancer. We're joined by Débi, who's behind YSC's Community Support. She's a young survivor herself, bringing her personal experience to help over 18,000 followers online and with us today. We'll explore Debi’s story, and the issues young adults face in the cancer space, and how YSC started small and blossomed into a global movement. Join us as we unpack the amazing impact of YSC, making sure young adults facing breast cancer never feel alone in their journey.
Website: https://youngsurvival.org/
Instagram: @youngsurvivalcoalition
Facebook: https://www.facebook.com/youngsurvivalcoalition
The Power of Precision Medicine with Michelle Morand from CTOAM
Michelle Morand is the Co-Founder of Cancer Treatment Options and Management (CTOAM). Michelle is on a mission to revolutionize cancer care by providing swift and personalized protocols for patients.
Join us as Michelle tells us what’s new in cancer treatment, we explore the vital role of tailored treatments in the face of a cancer diagnosis, and discover how CTOAM can provide personalized care accessible to all.
Tune in for an insightful conversation that sheds light on the exciting future of cancer care.
Contact Info:
Email: info@ctoam.com
Toll-Free Phone Number: 1-833-493-5463
Website: https://www.ctoam.com/
YouTube: https://www.youtube.com/@TheCancerGuy
One-on-One Consultation: https://www.ctoam.com/consultation/
Free Online Self-Advocacy Course: https://help.ctoam.com/just-the-facts?fbclid=IwAR35CQN4UjIVydhqnEBBMX6EQhPogoRN8fq3Tr6wWwAptFWuWzatx9sh6GI
From Diagnosis to Dedication: Karen Fisher's Journey through Colon Cancer and Advocacy
Intro for Karen:
In today's episode, we have Karen Fisher, a Pharmacist and the President of the Citrus Colorectal Cancer Foundation, who faced an unexpected diagnosis of stage 2a colon cancer in May 2020 at the age of 54.
Karen's journey began with a startling revelation during a colonoscopy. As she navigated the complex world of cancer diagnosis and treatment, she found herself in search of a comprehensive support system. Despite her background as a pharmacist, Karen realized the need for specialized guidance beyond her knowledge. This inspired the creation of the Citrus Colorectal Cancer Foundation, with the support of her medical team.
In this episode, Karen shares her journey of transformation from a colon cancer patient to a dedicated advocate - join us as we explore her story.
From Diagnosis to Dedication: Karen Fisher's Journey through Colon Cancer and Advocacy
In this episode, we have Karen Fisher, a Pharmacist and the President of the Citrus Colorectal Cancer Foundation, who faced an unexpected diagnosis of stage 2a colon cancer in May 2020 at the age of 54.
Karen's journey began with a startling revelation during a colonoscopy. As she navigated the complex world of cancer diagnosis and treatment, she found herself in search of a comprehensive support system. Despite her background as a pharmacist, Karen realized the need for specialized guidance beyond her knowledge. This inspired the creation of the Citrus Colorectal Cancer Foundation, with the support of her medical team.
In this episode, Karen shares her journey of transformation from a colon cancer patient to a dedicated advocate - join us as we explore her story.
Contact Info
Email: citruscrc@gmail.com
Facebook: https://www.facebook.com/groups/910377606422936/?mibextid=oMANbw
Instagram: @citrusccf
Phone Number: (352) 503-8777 (text or call)
Website: https://www.citruscrc.com/
Colon cancer is a bummer: what the CCF is doing to help educate the world
We sat down with Surabhi Dangi-Garimella from Colon Cancer Foundation to find out just what we know these days about colon cancer from how effective diagnosis and prevention can be. Also, their foundation covers practical things like whether or not your insurance will cover your screening tests, signs to watch for in your poop 💩 and why you can't be shy about what's in your diet.
From myth to mitigation: preventing breast cancer as a teenager
In this podcast, we're talking to Eileen from Mauer Foundation for Breast Health about the importance of working with adolescents to advocate for prevention of breast cancer and other diseases. More importantly, it's about eating well and exercising in a way that you love!
Find out how their organizations work in the community early and help young people get on track with their health early with recognition of the lifestyle influences of using alcohol, marijuana and vaping.
Breast reconstruction is not a boob job
Meet Alicia the founder of After Breast Cancer providing access to mastectomy bras, camisoles and prosthesis for people who cannot afford them.
A boutique owner who works with women to feel beautiful daily, Alicia's organization helps those who need after care most. Her program helps women access breast prosthetics, mastectomy bras and camisoles. Alicia addresses the misconceptions and mindset of what happens to women and their journey after treatment including the fact that breast reconstruction and the impact it has on mental health is not the same thing as a "boob job".
This is DRIVEN: the road to recovery from paralysis
Brandi Kurka has a background in exercise science and is the Executive Director for the organization conquer paralysis now. The organization was started by racecar driver Sam Schmidt who sustained a spinal cord injury after crashing into a wall at over 200 mph in January of 2000. That same year he started Conquer Paralysis Now. 23 years later, Brandi Kurka has taken the organization to new heights including DRIVEN a program devoted to the lifestyle needs a person living with paralysis has - especially around personal goals and social networks. They've also expanded their support of paralysis from injury to include those from conditions like MS, stroke and other neurological conditions. The organization has one big dream to fill “a world where there is a cure for paralysis and people with neurological conditions can live entirely independent.”
Part 2: Good Grief - the discussion of joy, death and life after health trauma
At 32, Shanlee was excelling at her career as a lawyer, met the love of her life and moved cities to start new. It's then that she gets a breast cancer diagnosis. In part 1 of this podcast, we spoke to Shanlee about what it was like to get diagnosed, how her life changed in that moment and how she decided to move forward as an active player in her healthcare.
In this episode, we go deeper into views on life and death and how to heal after the trauma. More importantly, we talk about hope.
Want to get in touch with Shanlee?
Shanlee on instagram here
Shanlee's website here
(coming soon)
Underserved and under the radar: how the angels behind Angelmira are helping women living with advanced cancer
Imagine not being able to afford healthcare, coming from underrepresented or newcomer communities, and trying to manage your family, your financial and time resources and trying to complete the medical paperwork to try and get treatment for cancer. We talk to the President of Angelmira Maricarmen Planas Silva who has been both a scientific researcher and an advocate for women with advanced cancers for decades . We talk about what they do to help women diagnosed with advanced or metastatic cancer improve their quality of life and outcomes through education, companionship, scientific research and integrative support.
Rock Solid: one person’s Cystic Fibrosis journey from incurable to treatable and beyond
In this episode we talk to Emily Schaller the founder of Rock CF foundation that helps support thousands of patients living with Cystic Fibrosis across the United States. Emily shares the incredible story of being diagnosed at just 18 months with a prognosis that she wouldn’t live long enough to graduate from High School.
Now at 41, she talks about the treatments that helped her get from living day to day to managing a disease and a healthy lifestyle to now being able to dream about a future of retirement and home ownership.
And find out what she thinks we should be doing with our time on this planet.
This episode is Rock Solid: one person’s CF journey from incurable to treatable and beyond.
Good Grief: The discussion of joy, death, life after health trauma
Every so often you meet someone who has overcome such a huge life challenge that it makes you really embrace your life and how precious and challenging and wonderful it can be. You’re going to be so inspired by Shanlee’s story. It really starts at the age of 32 when a lot of us begin really excelling at our careers, she had moved companies and cities and met the love of her life. It's then that she gets a breast cancer diagnosis.
What I love about this story and what I hope you get to hear from it is yes, she had cancer but it’s not about the cancer it’s about how she took action in her own health care, by being an active participant, how she came to terms about living in the present for the future and defines her relationship between life and death.
Want to get in touch with Shanlee?
Shanlee's website here (coming soon)
The Powerhouse Behind Infinite Strength
Roberta Lombardi is the President and CEO of Infinite Strength, an organization that supports single mothers from underrepresented communities. Roberta started the inspiring organization as she herself was going through her own breast cancer experience when she saw the financial, emotional and mental it took. Her own experiences of losing her hair, side effects from treatment and dealing with depression caused her to step into a new role in her life, one that would help the lives of so many others.
Listen in on how she shares her growing organization, the impact they're having in 17 states and what she says is the biggest burden to single moms dealing with cancer.
Get ready to be inspired by Roberta and Infinite Strength.
Breathe Easy: What you didn't know about LUNG diseases
We're talking all about respiratory health (aka stuff to do with your lungs) and you'll never guess what everyday items are major contributors to respiratory health problems! We sit down with Kelly Nichols from the RHA (respiratory health association) to find out just what is lung disease (like COPD, COVID, lung cancer), why it's such a growing problem for us and what we can do about it.
With a diverse career serving in various roles that started in performing arts, Kelly took a turn to science and research, and is now focused on community and environmental activism and outreach. She is a passionate, and dynamic mission-driven leader who is making an impact and creating positive and meaningful change in her community.
Find out more about Respiratory Health Association.
Take A Breath of Hope
Starting off in corporate America, Nancy pivoted to the non profit world and has been with A Breath of Hope for 10 years as their first Executive Director to advance their mission in the world of Lung Cancer.
Her depth of knowledge and empathy for such a difficult and sad disease, brings a lens that we hope changes the stigma against lung cancer and helps patients get the treatment and support they need and deserve earlier.
Find out how a stop smoking campaign led to the false narrative that lung cancer is caused by smoking (60% of cases are NON-SMOKERS). And did you know almost 2x as many women die of lung cancer than breast cancer?!
Take a deep breath and listen in.
Find out more about A Breath of Hope Lung Foundation here.
Taking the Stage with the founder of Upstage Lung Cancer
We're taking the stage with the incredible survivor and advocate, Hildy from Upstage Lung Cancer.
Starting with an accidental slip in some new shoes, Hildy's wild journey led her down a path to an early lung cancer diagnosis. After catching and treating it early enough, Hildy now spends her energy gathering the performing arts community together to help support driving awareness of lung cancer to the general public through her non-profit."We use our breath and our lungs to sing and to talk and we try to have a positive use in that direction."
What she explains beyond the fact that lung cancer is a leading cause of cancer death and a disease that is likely to impact women, is that lung cancer is also treatable if diagnosed early enough. "Beyond the CT scan, we're looking at much more innovative ways of finding lung cancer early [...] It goes to 22% survival in 5 years to almost 60% survival if you get it at the earliest possible stage"
Bloodied Up: The battle of a blood cancer survivor
Melissa Antoncic knows firsthand how hard it is to fight through a cancer diagnosis to a complete remission. She was diagnosed with acute lymphocytic leukemia (ALL) at 19 years old and found there was a lack of services and support available.
“I felt like I fell between the cracks, not really being a child or an adult in the eyes of the healthcare providers. At that point, I knew I had the capacity to ensure that the same thing didn’t happen to others,” Melissa said.
As Director of Patient Support at BCFM since 2016, Melissa can ensure that those cracks don’t have the opportunity to claim more people diagnosed with blood cancers. She is in charge of developing, supporting and managing statewide programming and services for pediatric and adult blood cancer patients and their families.
Before joining BCFM, she was the lead Grief Support Coordinator at Arbor Hospice, where she worked for more than nine years, providing emotional support and resources to grieving children and adults through group therapy and individual support.
Melissa holds a Bachelor of Science degree in psychology from Michigan State University, and received her Master of Science in Social Administration from Case Western Reserve University, but that’s not how she started out her education. Growing up she wanted to be a veterinarian and was in the pre-vet program at MSU before her leukemia diagnosis. After her diagnosis, she knew she could make a bigger impact with her life.
“I really enjoy knowing that I’m a part of something bigger. At BCFM, we provide an opportunity not just to offer emotional or financial support, but to truly impact the lives of blood cancer patients in the state of Michigan,” Melissa said.
Cancer before 40 - how to stop living a deferred life
In this episode, our founder speaks with her sister Cindy who, alongside of their eldest sister Stephanie, was diagnosed with early stage breast cancer in 2017. Thankfully to a genetic test, doctors were able to catch the cancer early but both sisters underwent surgery to remove their breasts and ovaries and had both went through chemotherapy treatments. Cindy by coincidence was also the same age that their mother had been when she was diagnosed with Stage 4 breast cancer. Listen in on this chat about her views on most people living a “deferred life of maybes, one day and some time”, on what she remembers from her mother’s cancer diagnosis and finally on the value of self-care. Here is her story.
Bloodlines: What's new in blood cancer treatments?
Hannah Sharpe from the life science team joins us to talk about all the new clinical trial treatments available for blood cancers (hematological cancer) like leukemia and lymphoma. She covers targeted gene therapy, immunotherapy and combo therapy while talking about advances in chemotherapy.
If you'd like to do a search for treatment options, visit www.healmary.com or email us at hello@healmary.com if you need any assistance.
For questions to ask your doctor about clinical trial options, click here.
When life gives you 2x the lemons - Josephine's story of both of her parents getting diagnosed with cancer
Josephine had an incredible role at a Fortune 500 company when her dad was diagnosed with lung cancer and then her mom followed with a breast cancer diagnosis forcing Josephine to quit her role and become a full time caregiver. She takes us through what that was like but what is fantastic about Josephine is her message of hope and of support.