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Black Cancer

Black Cancer

By Jodi-Ann Burey

Black Cancer explores the cancer journeys of everyday people of color. Host Jodi-Ann Burey weaves a narrative about race, health, and life and helps listeners discover the wisdom trauma can bring.
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You Have To Do It Afraid (with Kandis Draw)

Black CancerSep 07, 2021

00:00
01:10:07
You Have To Do It Afraid (with Kandis Draw)

You Have To Do It Afraid (with Kandis Draw)

Welcome to Black Cancer, a podcast about the nuances of our lives as people of color told through our cancer journeys. I'm your host, Jodi-Ann Burey. Our guest on today’s episode is Kandis Draw, a cancer advocate, pianist and writer.

I think many, not all, but many adult children know they’ll have to take care of their parents at some point in their lives. At some point your parents will get sick. At some point your parents will need help. At some point, we - the adult children, enter into what they call the “sandwich generation” - middle aged adults who are simultaneously taking care of aging parents and their own children.

But we all don’t get sandwiched in that way. Sometimes this thing that might happen to our parents at some point in the future, is happening now.

A few years ago, Kandis Draw, when she was just 30 years old, found herself in between jobs with a full-time job of taking care of her mother, who received an unexpected diagnosis of Stage 4 Ovarian Cancer, and taking care her younger siblings. Like many caregivers, it’s easy to lose yourself in the shuffle. In this episode, we talk about the work - THE WORK of caregiving and how Kandis turned that work into a mission - serving now as a national advocate for the Ovarian Cancer Research Alliance. We also discuss genetic testing, support groups for caregivers and much more.

Here’s my conversation with Kandis.

Sep 07, 202101:10:07
I'm Going to Tell Him Everything (with Lauren Tarpley)

I'm Going to Tell Him Everything (with Lauren Tarpley)

Our guest on today’s episode is Lauren Tarpley. At the time of this recording, Lauren was about a third of the way through her chemotherapy treatment. For the breasties out there, Lauren is BRCA-, HER2+ and hormone receport negative. She’s a wife with a toddler and because of her cancer diagnosis, she also has “three little boys in the freezer” - her description not mine. Lauren and I talk about her diagnosis path and what it means (for both of us) to be in a statistically unlikely situation. You’ll hear us talk a lot about AYA cancers - an acronym for adolescent and young adult, which is a cancer experience Lauren elevates on her platform. We also talk about decision-making for her family planning - specifically navigating this as a young adult.

Just a heads up - we have a mic switch just a few minutes in. We are trying to make this podcast during a pandemic, so thanks so much for understanding!

Here’s my conversation with Lauren.


Find more about Lauren on Instagram:

  • https://www.instagram.com/typeaguidetocancer/
  • https://www.instagram.com/lifewithlittleones.podcast/
Jul 20, 202101:17:55
I'm About That Life (with Tamika Felder)

I'm About That Life (with Tamika Felder)

Our guest on today’s episode is Tamika Felder. Tamika is a successful nonprofit founder, a cancer advocate, an award-winning director, an inspiration leader, and so much more. Her organization is called Cervivor and it’s a movement to end cervical cancer. You can learn more at cervivor.org.

Tamika was diagnosed with cervical cancer over 20 years ago - and has been unstoppable building her dreams. Her courage, wisdom, and spark are absolutely contagious. The author of "Seriously, What Are You Waiting For? 13 Actions To Ignite Your Life & Achieve The Ultimate Comeback," Tamika empowers everyday people to bounce back by equipping them with tools to find perspective after tragedy and loss. You will absolutely want to take notes and set aside some time for reflection after this. I am still beaming with everything she shared!

Jun 28, 202101:27:44
It's Like a Cold Burn (with Kelvin Yates) [BONUS]

It's Like a Cold Burn (with Kelvin Yates) [BONUS]

It's Black Cancer's first bonus episode! ⁠ ⁠ I wanted to highlight a specific conversation Kelvin had about our shared neuropathy. #Neuropathy refers to damage or dysfunction of the peripheral nerves. It can be hard to describe and the experience can be incredibly isolating and when you describe it to other people, it can be really really difficult for others to understand. When Kelvin and I first met, our neuropathy is a HUGE part of how we bonded. Finally! Someone who understands!⁠

Jun 27, 202123:13
I Don't Have Any Limitations (with Kelvin Yates)
Jun 22, 202101:35:48
We Did It Together as a Family (with Kim Young)

We Did It Together as a Family (with Kim Young)

Our guest on today’s episode is Kimberly Young, who led the team of her siblings and family members to support her mother’s journey with multiple myeloma. We talk about her mother’s diagnosis journey and faith works in tandem with the process. What most moved me about Kim’s story is the love and closeness of her family, which only amplified as they navigated a time of crisis.

Kim works for one of the biggest health insurance companies in the United States, so she shares her perspective on navigating the health insurance process and finding organizations offering financial resources and social support that insurance can’t fully cover. To honor her mother’s legacy, Kim continues to work as a cancer advocate in faith-based organizations.

This will be the first of two episodes this season focused on multiple myeloma. Thank you to the Leukemia and Lymphoma Society for your sponsorship and support of this special series.

More about LLS + Multiple Myeloma:

Black Americans have twice the incidence of myeloma as white Americans. What’s more, recent studies show that Black Americans are significantly less likely to receive the latest treatments, and are more likely to experience treatment delays. As a champion for myeloma patients, caregivers, survivors, and families, The Leukemia & Lymphoma Society (LLS) is determined to change this. We believe every patient deserves to receive the best care and support possible while we work tirelessly toward cures.

LLS is dedicated to helping Black Americans with myeloma access the treatment and care they need to survive and thrive and improving quality of life. We provide trusted, free tools and resources to help patients and caregivers navigate the treatment landscape more effectively and cope with the disease.

Listen to more stories on caregiving on the Black Cancer podcast:

Jun 15, 202101:41:46
It's Not Enough to Say We Survived (with Darcie Green)

It's Not Enough to Say We Survived (with Darcie Green)

Our guest on today’s episode is Darcie Green, who brings multiple identities to our conversation today. She’s the daughter of a survivor, care giver, advocate, activist and the Executive Director of Latinas Contra Cancer. Latinas Contra Cancer is an organization with a mission to create an inclusive health care system that provides services to the underserved Latino population around issues of breast and other cancers. She’s incredibly smart, so funny, and we had A LOT to talk about. This is the last episode of Season 2 of Black Cancer, and it exemplifies everything we’ve talked about on this platform AND more - more like understanding cancer through a social justice lens, examining the disproportionate philanthropic funding for organizations led by people of color and what our communities STILL do despite structural under-resourcing that determines our health.

P.S. This episode aired the day the United States surpassed 500,000 COVID-19 deaths - half a million people. Disproportionately Black and Brown people. The racial inequities of the life-saving vaccine roll out was absolutely top of our minds - which is why this conversation started A BIT before I even had my microphone set up for our recording! hahaha. You won’t want to miss a single moment of this episode. It’s truly a master class in understanding so many dynamics of cancer care - and what we can learn about the interconnectedness of what care can look like for all our people. And as always, check out the show notes for links to what we talked about.

Here’s my conversation with Darcie:

  • Darcie shares about how her father's journey grounded her work in community health advocacy (47:51)
  • The strengths and expertise in self and communal advocacy already held in our communities (1:12:00)
  • Disproportionality in funding and support for organizations led by and that serve communities of color (1:36:53)

More on this episode:

Feb 23, 202102:02:29
Holding Space for Yourself (with Marissa Thomas)

Holding Space for Yourself (with Marissa Thomas)

Our guest on today’s episode is Marissa Thomas, breast cancer survivor (stage 2 estrogen positive) and founder of For the Breast of Us, a breast cancer community for women of color.

You know, after I received my diagnosis, it took a few weeks before I texted my doctor, “wait, do I have cancer?” It was after that I started to search for online cancer forums - of any kind, to help make sense of my experience. And, let me tell you, ah - it provided so much relief. Well, up until a point. Being a woman of color is always the lens through which I experience the world and I just couldn’t find anything - anything at all, that could meet me there. I’m so glad For the Breast of Us exists now, because I for sure could have used it back then. A space, similar to this podcast, to be in community with other folks of color grappling with the intricacies of grief, support, and needing to be seen in a system that wasn’t designed to see us. Where else but on our platforms can you engage in a conversation about how lotion saves lives? You’ll have to wait for the last third of the show to get that!

P.S. There’s a story at the end where I basically admit that I”m a terrible human being. Don’t come for me. We all have our journey towards growth and enlightenment.

Highlights from our conversation:

  • Figuring out whether to disclose racial microaggressions with your providers (10:25)
  • Marissa shares about meeting Cristina, another young mother battling cancer (40:59)
  • Navigating her cancer journey with a teenaged son (1:04:53)

More from this episode:

Follow Black Cancer at blackcancer.co and on Instagram at @_black_cancer.  Learn more about creator and host Jodi-Ann Burey at jodiannburey.com.

Transcripts will be available on the website a week after the episode airs.

Feb 15, 202101:42:40
My Desire is to Stay Here (with Angela Thomas)

My Desire is to Stay Here (with Angela Thomas)

Welcome to Black Cancer, a podcast about the nuances of our lives as people of color told through our cancer journeys. I'm your host, Jodi-Ann Burey.

And talk about nuances. Our guest on today’s episode is Angela Thomas, a nurse, mother and woman of faith who laced up her gloves and kicked cancer in the ass. What I love about being a person of color is our rich tradition of storytelling. It’s alive in our communities and most importantly, keeps our communities alive. Angela’s storytelling grounds us in the value of time. We interrogate the notion of “leaving everything up to God” and how that works alongside using her faith, we talk about her path to diagnosis, the actual logistics of preparing for the worst, learning to say no, our hair, our dreams, and so much. So much more. You’re in for a treat until the very end.

Before we get started, just a heads up. This was recorded in Decemeber 2020 a time when we were both still really impacted by Dr. Susan Moore’s experience battling COVID-19.

Feb 08, 202101:45:04
Nobody But Me (with Angelica Garcia)

Nobody But Me (with Angelica Garcia)

Welcome to Black Cancer, a podcast about the nuances of our lives as people of color told through our cancer journeys. I'm your host, Jodi-Ann Burey. On today’s show, Angelica Garcia joins me to talk about self-advocacy as women of color and how sustaining that work needs to be. For ourselves and for our familes in the US and abroad. We learn about Angelica through her experiences caring for her cousin’s cancer journey in the US, her father’s cancer journey in Colombia, and then her own years old cancer scare coming back to haunt her - right at the start of a pandemic. Where do we put our energy and focus as we navigate the challenges in our lives? How do we integrate our identities with our traumas?


Here's my conversation with Angelica:

  • How sharing our stories connects us with others (8:06)
  • Angelica finds out she had to have her thyroid removed(27:47)
  • Finding out that her father was sick with cancer in Colombia (50:50)
Feb 01, 202101:20:00
Proud Beautiful (with Michelle Audoin)

Proud Beautiful (with Michelle Audoin)

Welcome to Black Cancer. I’m creator and host, Jodi-Ann Burey. Today’s guest is Michelle Audoin. Her journey with her body and her breasts started when she was just 14 years old. How do those moments of fright and trauma come back to us years later? What do we learn about not only accepting our bodies, but defending our bodies against racism articulated as disbelief and erasure? Well, it’s a journey. And you can learn more about Michelle’s journey and how she created the Breast Recognition Project - a beautiful catalogue of the mastectomy scars of women of color… in just a few moments. But before we get started, I have to remind you to check the show notes for links to these amazing photos and the stories of the women.

Here’s an overview of our conversation:

  • Michelle recounts the impact of finding a lump in her breasts at age 14 (10:40)
  • "I don't care what you say, the breasts need to go" - Michelle after her first diagnosis (31:15)
  • Michelle dreams up the Breast Recognition Project and brings it to life (52:07)

More from this episode:

Follow Black Cancer at blackcancer.co and on Instagram at @_black_cancer.  Learn more about creator and host Jodi-Ann Burey at jodiannburey.com.

Transcripts will be available on the website a week after the episode airs.

Jan 25, 202101:16:54
Am I Going to Die Today? (with Dr. Virtaj Singh, M.D.)

Am I Going to Die Today? (with Dr. Virtaj Singh, M.D.)

Welcome to Black Cancer. I’m creator and host, Jodi-Ann Burey. And this episode, well, I’m kinda the guest too? A little yes and no. Today’s guest is Dr. Virtaj Singh, M.D. He’s my physiatrist, who also has a sub specialty in pain. After two years in and out of doctor’s offices, I found myself in his, and a year later, he’s the one who ordered the MRI that found the tumor in my spine. This is the first episode of Black Cancer that’s about my own story. It’s also the first episode that does a really deep dive on a diagnosis journey. Mine. And I hope this can be an offering that finding a care provider that provides, well… care… is possible.
Normally, when I title each episode, I use an illustrative phrase from one of our guests. But this time, the title, “Am I Going to Die Today?” came from me. In editing this episode, I realized how many times I looked to Dr. Singh to answer that question. I realized how many times I had to sincerely ask myself that question. Is the tumor going to kill me? Is the surgery going to kill me? Is this depression going to cause me to kill myself? Are the cops, when encountering a women crying about all these questions swarming her head, going to kill me first? Fearing for our bodies and our right to live seems to be the condition of Black life. And I am tired.
How Dr. Singh has and continues to show up for me gives my mind a place to rest. He’s someone I can trust. Who - as you will see - says things straight. And who has my back. Get it? Spine joke.

Here’s an overview of our conversation:

How racism might have impacted Jodi-Ann’s path to diagnosis (9:01)

What happened when Jodi-Ann stopped going to Dr. Singh’s clinic (24:43)

How the healthcare industry needs to confront racism systemically (1:18:31)


More about this episode:

What’s a physiatrist?

Cubital tunnel syndrome

Thoracic outlet syndrome

Electromyography (EMG)

Jedi public health: Co-creating an identity-safe culture to promote health equity

Hotel that kicked Jodi-Ann out for crying : Best Western Sandpoint Idaho (F them)


Follow Black Cancer at
blackcancer.co and on Instagram at @_black_cancer. Learn more about creator and host Jodi-Ann Burey at jodiannburey.com.
Transcripts will be available on the website a week after the episode airs.
Jan 18, 202101:23:21
What We Do For Our Bodies (with Dr. Kavita Jackson, M.D.)

What We Do For Our Bodies (with Dr. Kavita Jackson, M.D.)


Our guest on today’s episode is Dr. Kavita Jackson - breast cancer warrior M.D. We talk about her experience from launching her career as an emergency room physician to facing Stage 2 Invasive Ductal Carcinoma - breast cancer. A mother of two small children, the daughter of immigrants from India. She draws on the strength of those who support her to navigate treatment and her relationship with her body. We work through understanding that our mind and our bodies - they’re fighting the same war. To heal ourselves.


After the credits, stay on for a few more moments to listen to Dr. Jackson and I discuss cancer swag, the concept of corporate pink washing, and negotiating potential silver linings - if we can call them that - to our respective cancer journeys.


Just a heads up. This conversation was recorded before the death of Dr. Susan Moore. The physician who, before she succumbed to COVID-19, posted videos online about the racism she experienced by the hospital team where she was being treated. I say this because we touch on a few topics in this conversation that we would have likely brought that up. We’re not NOT talking about it. When these conversations are recorded and when they’re posted may be achronological with current events.


You can follow Dr. Kavita Jackson on Instagram at @drkavitajackson.


Here’s an overview of our conversation:

  • How our immigrant parents raise the bar for our possibilities (11:30)
  • Dr. Jackson uncovers her fears about chemotherapy (22:22)
  • Learning about what justice and equity look like in our bodies (53:34)


Follow Black Cancer at blackcancer.co and on Instagram at @_black_cancer.  Learn more about creator and host Jodi-Ann Burey at jodiannburey.com.


Transcripts will be available on the website a week after the episode airs. 

Jan 11, 202101:32:50
The Greatest Ode to Her Sacrifice (with Janice Omadeke)

The Greatest Ode to Her Sacrifice (with Janice Omadeke)

Welcome to the 2nd Season of Black Cancer! I’m creator and host, Jodi-Ann Burey. Before we get started, I just want to thank you so much for being here. Seriously. This podcast is about you. It’s about giving yourself the space to maybe see yourself and your own experiences in new ways. It’s about finding new language to support the people you love. It’s about creating new spaces of vulnerability for us as Black and brown people to be ourselves. Imagine. So thank you for taking the time to be you.


Our guest on today’s show is Janice Omadeke, the Founder and CEO of The Mentor Method, who found herself accelerating her business and managing the grief of her mother’s passing to pancreatic cancer at the same time. In this episode, we talk about our duty as the children of immigrants to actualize more than what our parents dreamed of for our lives, how we at times must split ourselves to be strong, and arduous, but necessary processes of grief. Grief how it looks, feels, and sounds like to us. 


Learn more:

Transcripts will be available soon at blackcancer.co.

Learn more about Jodi-Ann at https://jodiannburey.com.

Jan 04, 202101:22:20
I Can’t Be the Only One Who’s Going Through This (with Jared)

I Can’t Be the Only One Who’s Going Through This (with Jared)

In this episode of Black Cancer, Jared shares a story layered with multiple narratives one on top of the other. An unprecedented public health crisis, an unexpected cancer diagnosis and Jared’s father’s unwelcoming reaction to his engagement announcement to his long time partner. There are a lot of questions that just don’t have answers in how to make sense of it all. That’s because this is Jared’s life. In real time. 

Oftentimes, survivors and “the survived” talk about cancer in the present tense because its impacts are always with us. But Jared’s story is happening now. His father’s battle with brain cancer is happening now. These unanswered questions, at the time of this recording, remain unanswered now. So why share it? Because we know there are a lot of people out there whose cancer journeys are just beginning and unfolding now. We want you to know that you are not alone. 


Post Show: Message from Jodi-Ann about the end of Season 1 of Black Cancer 


This episode was created during the 2020 global COVID-19 pandemic and the movement for Black lives.

Oct 19, 202001:16:26
The Malignancy of Both (with Frantz Berthaud)

The Malignancy of Both (with Frantz Berthaud)

In this episode of Black Cancer, Frantz Berthaud, whose professional life as an Administrative Director at the Dana Farber Cancer Institute and personal life collide.

This episode is titled “The Malignancy of Both” because Frantz and I discuss the malignancy of racism and what our world could look like if we attacked it with the level of rigor we do cancer. We also talk about his journey with his sister’s triple negative breast cancer, its malignancy, and the tools his sister sent for him to change the course of cancer for other women of color like her. Just like all the other episodes this season, we recorded this interview during the COVID-19 pandemic. This becomes our entry point into talking about racism in the workplace and in our healthcare system.

Here are Frantz’s listener recommendations:

Something to read:

Something to listen to:

Someone to know: 

Bonus Links

Oct 12, 202001:27:57
She Wasn't By Herself (with Erin Douglas)

She Wasn't By Herself (with Erin Douglas)

In this episode, photographer Erin Douglas shares a perspective we don’t often get to hear from when it comes to cancer narratives: the caregiver. Specifically, the family member who re-prioritizes their lives so that they can put the needs of their loved one first. That’s what Erin did for her mother, who is recovering from a recent, second instance of cancer. Between living at the hospital and staying by her side at home, Erin hadn’t slept in her own bed for six months.

There is one thing Erin did keep going during her stay at the hospital: The Black Burner Project. Check out Erin’s Burning Man photography on Instagram and do yourself a favor -  look up her feature about her work in Essence Magazine.


Black Burner Project:

Here are Erin’s listener recommendations:


Post Show Goodies: No post show this week!


The full transcript will be posted SOON on blackcancer.co.

Oct 06, 202001:21:34
I Want Black Women to Have More Choices (with Erika Stallings)

I Want Black Women to Have More Choices (with Erika Stallings)

In this episode, Erika Stallings, a New York based attorney, writer and BRCA awareness advocate, share her story about uncovering her BRCA2 gene mutation in her 20s, the importance of medical literacy - even with financial resources and social capital, and her journey to a preventative mastectomy. This episode was recorded a few days after learning about Chadwick Boseman's tragic passing due to Stage 4 colon cancer.

Get the full list of Erika's mentions here:
blackcancer.co/erika/

Erika's listener receommendations:
Someone(s) to know:

Eve L. Ewing, Sociologist at the University of Chicago, the author of Ghosts in the School Yard: Racism and School Closings on Chicago’s South Side (book) and Blue Bloods: America’s Brotherhood of Police Officers (article) | eveewing.com/
Josie Duffy Rice, President of The Appeal; lawyer and journalist; wrote “The Abolition Movement” for Ta-Nehisi Coates’ September issue of Vanity Fair | www.vanityfair.com/culture/2020/08/the-abolition-movement

Something to read:

Min Jin Lee, Free Food for Millionaires | www.minjinlee.com/book/free-food-for-millionaires/
[a not to read bonus] Sanzo - text to order sparking water | www.drinksanzo.com/
[didn't make it in the episode edits] - Caste: The Origins of Our Discontents by Isabel Wilkenson | www.nytimes.com/2020/07/31/books/review-caste-isabel-wilkerson-origins-of-our-discontents.html

Something(s) to listen to:

Hear to Slay, a podcast with Roxane Gay and Tressie McMillian Cottom | www.heartoslay.com/
Black Men Can't Jump in Hollywood, a podcast hosted by Jonathan Braylock, James III and Jerah Milligan | blackmenpodcast.com/
Denzel Washington is the Best Actor of All Time Period, a podcast by W. Kamau Bell and Kevin Avery | www.earwolf.com/show/denzel-washington/


Post Show Goodies: No post show this week! Take that time to check out all Erika’s links and recommendations.

The transcript for the episode will be posted soon!

Learn more about Erika Stallings: erikastallings.com/

Learn more about Jodi-Ann Burey: jodiannburey.com/
Sep 29, 202001:07:55
I'm Not Afraid of Losing Something Now (with Sharon Eldridge)
Sep 21, 202001:02:21
Trained Self-Preservation Mode (with Juliette Austin)
Sep 14, 202001:36:22
In Defiance of Pain (with Yejin Lee)

In Defiance of Pain (with Yejin Lee)

In this episode, Yejin Lee tells Jodi-Ann about losing her mother to breast cancer during her first year as an undergraduate student at Boston College (where Jodi-Ann and Yejin met) and its impact on her then and now.

This conversation hits on hard lessons about how we, as women of color relate to our bodies as we process pain. We explore the blessing and the curse that is our strength, our embodied expectation to be strong, and what it takes to heal. We talk about the 2020 movement for Black lives, the tools we use to grieve, and the power of our voices to survive.

You can find Yejin at yejinlee.co. She is an equity informed career coach and non-profit organizational consultant.


Post Show Goodies:

Jodi-Ann asks Yejin about her mother’s name.


Here are Yejin’s recommendations:

  • Someone to know: Rebecca Kelly G, an arts, equity, and justice consultant, facilitator, interdisciplinary artist, and former civil rights attorney
  • Someone to read: Sing, Unburied, Sing by Jesmyn Ward
  • Something to listen to: Hidden Brain, A podcast by Shankar Vedantam at NPR


Episode transcripts are available at: blackcancer.co

This episode was created during the 2020 global COVID-19 pandemic and the movement for Black lives.


Sep 07, 202001:10:09
To Wake Up. To Heal. To Become This Person (with Shayla Martin)

To Wake Up. To Heal. To Become This Person (with Shayla Martin)

In this episode, Jodi-Ann Burey speaks with Shayla Martin, who was diagnosed with Invasive Ductal Carcinoma - IDC. Shayla shares how her journey of surviving cancer and her mastectomy has completely changed the trajectory of her life: how do you cope with cancer when it's the thing that put you on the path for your purpose? Shalya provides details on the happenstance way she found her tumor and her path towards treatment. There are several parts of the cancer journey others do not see and this episode reveals a bit more of what that looks like for Black women. 

Jodi-Ann and Shayla bond over always having appointments with Memorial Sloan Kettering Cancer Center on the calendar, Black natural hairstyles and the markers we have in our lives because of cancer.  Jodi-Ann and Shayla also discuss passages from Audre Lorde’s book, The Cancer Journals, and how breast reconstruction has changed her relationship with her body and what it means to face your own mortality.  

Post show goodies: 

  • what we do with all the cards 
  • what work schedules and life plans looked like after the moment of diagnosis, and 
  • how we try to be more present in our lives. 

Here are Shayla’s listener recommendations: 

  • Someone to know: Brene Brown 
  • Someone to read: Brene Brown’s books on vulnerability 
  • Something to listen to: music - throw yourself a party! 

Episode transcripts on blackcancer.co. Click here for the transcript for this episode. 

This episode was created during the 2020 global COVID-19 pandemic and the movement for Black lives.

Aug 30, 202001:13:28