Koze avè m

Kijan w t ap reyaji si w ta vin gon maladi ki p ap janm geri ? Ou tap santi w kondane oswa ou t ap kontinye viv a fon pandan w ap pwofite de chak moman ou gen chans viv ?
Envite nou semenn sa, Watson Saintil, deside viv lavi li a fon epi goumen pou reyalize rèv li.

Watson se yon jèn gason 29 lane ki depi 19 lane ap viv ak yon maladi, polyarthrite rhumatoïde, ki detanzantan ap defòme kò l epi redui kapasite li pou l fonksyone.
Depi lè l gen 10 lane l ap soufri ak maladi sa e depi lè sa lavi l se yon konba kotidyen kont yon maladi ki p ap janm geri men malgre tout sa Watson pa dekouraje e li kontinye lite pou l reyalize vi l, reyalize tèt li epi vin moun ke l swete ye a. Watson se yon jèn gason ki gen anpil kouraj ak detèminasyon. Nan lane 2010 Watson fè yon operasyon kote yo mete yon pwotèz nan kòl ki te dwe dire 10 lane. Jodia Watson bezwen opere pou mete yon nouvo pwotèz men lajan an anpil. Jodia l ap mande nou èd nou e li espere sipò nou pou sove lavi l.

Our guest this week sits down with us for a second time. You may remember him from season one in an episode titled "Maladi m nan paka geri”, in which he educated many about a rare chronic disease, rheumatoid polyarthritis affecting the joints and the mobility of the individual. Watson Saintil, now 29, was diagnosed when he was around 10 and ever since, it's been a daily battle that brought about many complications, including a skin disorder called psoriasis. While his spirit is still on the upbeat and his zeal for life, unwavering, he comes to us with yet another challenge... In the year of 2010, Watson underwent a pelvic replacement surgery during which a prosthetic which could only last 10 years was put in place. Today, Watson needs a new prosthetic and the cost of even the most affordable one is far beyond his means. He hopes that his plea will be a cry to your generosity.

Time and again, the Haitian proverb, "maladi pa tonbe sou pye bwa, maladi tonbe sou kretyen vivan" have been quoted. This literally translates as diseases fall not on trees but on human being and is saying in essence that sickness does not discriminate. It knows no social status and can affect anyone.

Our guest this week is one of the many pink ribbon thrives who graciously shares the many challenges she had to face on her journey with the disease. She is a mother and a wife and works in the social services. She explains how, on the other side of her ordeal which included a unilateral mastectomy she was able to find the true meaning of life.

This week, Koze avè m sits down with Soinette Désir, woman right activist, tailor and cook among other things. Growing up, Soinette was full of life, engaging in farming with her family and always dreaming to own lots of lands. And one day, what started as a fever while attending a funeral will be the cause of a year long hospital stay and a complete change in the course of her life. Aside from having to adapt to societal stigma, Soinette also needed to adapt to environments where people with disabilities are not always accommodated; she recalls choosing to miss lunch everyday at school because the lunchroom and the restroom are on different floors thus making it difficult to have access to the lavatory after her meal. Today as an activist, she sheds lights over the living condition of people with disabilities in Haiti with a very contagious positive attitude and zeal for life.

The principle of presumption of innocence explains that until one can be proven guilty, one must be considered innocent under the law. But our guest recalls his verdict being confirmed as guilty, even before appearing before a judge. Painter, guitarist, musician Jean Bernard Thomas is an artist that wears many hats. His compositions have rotated around many radios around the country and around the world. But being a well-known and celebrated artist didn't prevent him from coming face-to-face with injustice. Despite being a public personality, Jean Bernard Thomas remains a man of the people; very down to earth and approachable by all. One night, while conducting a painting workshop and going about his regular music activities, he heard violent and persistent banging at his front gate. It was the local police forcing their way into the artist's home without a warrant and after 6 pm, time after which one cannot be arrested unless if caught in the act. Shockingly, Mr. Thomas learned that he was linked to a case of kidnapping that he knew nothing about. And while all they found was weed, he, along with other friends and artists who were present, was taken into custody and spent the next two months behind bars. In our talk this week, Mr. Thomas took time to not only share about his experience as an inmate which was really an opportunity to grow, mature and birth new music, but also to shed light on the living condition of other inmates at the national penitentiary in Port-au-Prince, Haiti.

... and what if one day, you wake up and all that was routine becomes foreign?

For our guest this week, this was not the narration of a novel or another horror movie on a Friday night. It was reality. Celebrated guitarist and founding member of the group Strings, the dexterity of his fingers can be remembered as background music for the always anticipated summer pageant competition Miss Videomax. Influenced by Latin and Haitian style, his music was appreciated by audiences around the globe. All was well when he noticed that his hearing was declining. Randomly over the radio, he overheard that one of the signs of a brain tumor is hearing loss. He saw fit to bring it to the attention of his physician who ordered an MRI scan and that is when the news hit him that he indeed had a 10 centimeters growth in his brain and that time was running out. With faith and the support of family and friends, he took the necessary steps and 17 hours later, he was out of the surgery room with a stitched skull, all strapped up and completely disfigured. But the cherry on top of this whole ordeal was when he found out that what he mastered and was celebrated for; his ability to make a guitar speak became completely foreign to him. Just like a new born, he needed to learn once again all the genesis of life. But because his will to take full advantage of this second ticket to life was much stronger than all aspects his disability, he took all the steps towards his recovery, one day at a time, one step in from of the other. And upon returning on stage, the support of his fans did not fail to confirm to him that his hard work was not in vain. He reminds all not to take another second for granted and that tomorrow is only a bet.

In the last episode of the first season of Koze avè m, we took the time to say thank you and express gratitude to our listeners, staff and everyone that made it possible for all to hear a unique story every week. Few listeners took time to share their opinions of the first season as well as what they are looking forward to for other seasons to come. Koze avè m will enter its second second season in the fall of 2019 with new guests and even more life changing stories.

Watson Saintil se yon jèn gason 29 lane ki depi 19 lane ap viv ak yon maladi ki detanzantan ap defòme kòl epi redui nan kapasite l pou l fonksyone. Depi lè l gen laj 10 zan lap soufri ak yon maladi ki rele polyarthrite rhumatoïde e depi lè sa lavi l se yon konba kotidyen kont yon maladi ki pap janm geri. Malgre sa Watson pa janm dekouraje, li adapte l ak maladi a e li kontinye lite pou l vin moun li swete ye a.

Tranbleman tè 12 janvier 2010 se yon eksperyans anpil nan nou Ayisyen afekte pa li. Menm si moman sa pa afekte nou tout menm jan se youn nan eksperyans ke anpil nan nou gen “en commun”. Samantha Junie Pierre se yon jèn fanm vanyan epi angaje ; li se yon militant pou dwa timoun ak fanm andikape. Samantha renmen lavi pase tout bagay menm si lavil pat toujou fasil. Lap viv ak yon andikap depi tranbleman tè 2010 la e depi lè sa lap eseye vanse san okipe l de rega sosyete a sou li.
Samantha kwè ke diferans ak divèsite se yon bèl bagay e dapre li si yon moun pa aksepte l ak diferans li pwoblèm nan se kay moun nan li ye se pa lakay pal.
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January 12, 2010 is inarguably a date that has left an indelible mark in the hearts and minds of Haitians around the world. It only took 35 seconds to change the course of life and decide to live purposefully. Our guest this week, Samantha Junie Pierre, was going about her daily routines when tragedy hit and caused 24 hours to last 3 days. It would take 3 days to get her out of this ordeal by breaking the neighbor's wall. Pulling Samantha from under the rubble also involved a task that no one ever looks forwad to in this life; using a saw to remove the lifeless limb trapped under a gate for 3 days. Desiring to survive at all cost, Samantha even offered to take matter into her own hands. She was pulled out in one piece with her left arm in such bad shape that it would later be amputated above the elbow, one finger at a time. Now an amputee, she will face the very unsolicited yet readily available stigma that society inflicted upon her. But her zeal for life is what keeps her fire ablaze to take full advantage of this second chance. Today, she is an activist and work for an organization that provides support for people with disability.

Imajine w manman w ta bliye non w ! Kijan w tap santi w ?
Rose-Adèle Joachim rakonte nou moso nan istwa lavil ki chanje akoz maladi paranl sitou manmanl ki gen Alzheimer.

Anpil moun konnen Samantha Colas kòm animatris Soleil d’Été, yon konkou chan pou timoun ke l ap anime depi plis pase 10 lane. Apre tout siksè sa Samantha deside al patisipe nan konkou Miss Haïti pou l ka sèvi modèl pou plis moun. Lè l fin ranpòte konkou sa li pat sispann resevwa kritik sou rezo sosyal yo. Yo kritikel pou sa l mete, jan l penyen, janl pale, janl mache e yo jije kel pa merite siksè li. Moman sa yo te difisil men Samantha aprann de yo e jodia li vin yon moun ki grandi.
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For some, it respresents affirmation; a sense of great accomplishment which confers a degree of respect and admiration while for others, it gives an opportunity to have an opinion and offer non requested and destructive criticism from their couch behind the silver screen or by using their free social media subscription unproductively. This week, Koze avè m goes beneath the twinkling hollow silver circle with Samantha Colas, Miss Haiti 2018. Former host of Soleil d'Été, Samantha Colas believed that she had more under her belt and went for the very coveted title of Miss Haiti. Born in Port au Prince she was crowned in 2018. But the cheers would only last for about a night. She woke up to reality when she found out the next day what social media had to say. What was being shily whispered throughout the competion like her choice to wear her hair natural or her overall physic was on full blast after the crown had landed on her head. She was even stoned for what represents her second ticket to life; a scar in her arm from being trapped under the rubble of the devastating earthquake of January 12, 2010. Today, Samantha believes that although she had to go over few hurdles, the experience she gained from the competition, with all that came with it, was only sweet- not at all bitter. She encourages anyone who wishes to race for the crown to use the stones thrown at them to build bridges which they can use to cross over to the much sunnier side. She also encourages delayed gratification and reminds that only with hard work and discipline can all that one's heart desire come to fruition.

Stéphanie Daniel gen 23 lane e li soti nan bakaloreya ane sa. Li aprann plonbri sanitè e apre lanmò papa l li tal fè ladesant kay moun. Lè l te fèk rive kay la yo te byen akeyil men sa pat pran anpil tan pou yo te chanje avè l ; yo te kòmanse maltrete l, bat li pou dan ri, fèl fè travay ki pat pou laj li, rele l rèstavèk. Epi yon jou pandan la l chèche dlo lannuit pou matant li, 6 jèn gason mete lapat sou li. Jodia Stéphanie gen yon timoun ki konsevwa jou swa sa. 8 lane apre move eksperyans sa gras ak sipò anpil òganizasyon Stéphanie rive kanpe e li gen kouraj pou l pale de move moman sa yo.
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In the illustrious Ti Sentaniz, Maurice Sixto presents an issue that is very common in the Haitian society; the sad reality of children having to work as household servants under horrendous conditions. Colloquially known as restavek, this phenomenon is usually brought about either by the death or absence of the birth parents or caregiver or the lack of resources to provide for the child. Known for his usually bold and unapologetic writing, it can be observed that Sixto left out some of the most dreadful aspects of restavek in Ti Sentaniz.
Koze avè m sat down with Stéphanie Daniel, a 23 year old young woman who experienced this ordeal when she was brought to live with her aunt after her father’s death. She proves Ti Sentaniz to be shining lights into an issue that is not being spoken about loud enough by confirming that she was mistreated, not sent to school and order to do chores that were not suitable for a child of her age. She goes further to confide that today, she is mother to a 8 year old son whose father she does not know because he is the fruit of a rape she was the victim of while running errands at ungodly hours for the household.

Chak istwa inik e nou pa janm viv eksperyans yo menm jan. Apre Nathalie Sauveur, nou fè yon bèl koze ak Gabriel Aladin ki li menm tou avèg. Men istwa pal la diferan.
Gabriel vin avèg lè l gen 17 lane e depi lè sa l ap fè fas ak anpil difikilte. Premye difikilte a sete akspete ke li p ap janm ka wè ankò. Apresa fòk li te jwenn yon mwayen pou l kontinye al lekol. An atandan li jwenn solisyon ak pwoblèm sa Gabriel pèdi 3 lane nan pakou akademik li. 3 lane say o te difisil anpil pou li. Apresa bagay yo te reprann plas yo piti piti e Gabriel fini lekòl klasik li e jodia li ap fè 2 etid nan 2 fakilte diferan. Li fè konnen ke maladi li rann li pi detèmine e motive ke avan.
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After Nathalie Sauveur, Koze Avè m sits down with Gabriel Alandin who, like Nathalie, is affected by blindness. Gabriel became blind at the age of 17. According to Gabriel’s mother, medical negligence is in part to be blamed for her son’s condition. She recalled that at birth, amniotic fluid got into his eyes and this was never addressed by doctors.
When he became blind, one of Gabriel’s main concerns was the social stigma associated with blindness especially in a society where very few are educated on how to accommodate visually impaired individuals; this caused him to withdraw from many social gatherings. Because of his condition, Gabriel’s academic performance took a nosedive which caused him to drop out of school for three years and his family was deeply affected. After these 3 years, he learns about SHAA, which is an organization that works with visually impaired individuals in Haiti. At SHAA, Gabriel learned braille and computer science, experienced inclusiveness and was equipped with the necessary tools to complete his education. When asked how his disability has changed his life, Gabriel confirms that he is now more determined ever. He reminds one to not express pity on the visually impaired individual for on the flip side of their disability, they are removed from the concept of night and day and therefore know no boundaries.

Nathalie Sauveur se yon jèn fanm ki dinamik e ki gen anpil detèminasyon.
Depi lè l gen 13 lane li paka wè men li pa janm kite andikap sa tiye gwo rèv li genyen yo. Li simonte eprèv apre eprèv jiskaske li rive fè etid li nan Relasyon Entènasyonal e li deside itilize istwa li pou motive epi enspire lòt moun.
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In this episode, Koze avè m welcomes Nathalie Sauveur. A dynamic professional in the field of communication, Natalie was born and raised in Haiti. The firstborn of her family, she recently received a degree in international relations. An upbeat and gregarious spirit that will not be unnoticed, Natalie will light up any room as our conversation will prove. At the age of 13, she was struck with blindness. She uses her story to not only educate about blindness and visual impairment as it pertains to both the individual and their family but also to uplift, to understand that beyond the disability lies an individual full of potentials who deserve to experience a great quality of life. She explains that despite he disability, she experiences a fulfilling life because now, she gets to see with the eyes of her heart.

Marlie Thervil se premye envite nou nan Koze avè m e ak li nou pale de gwosès prekòs pandan lap rakonte nou istwa li.
Marlie se yon jèn fi 24 lane ki fèt e ki viv Ayiti pandan lontan avan l kite peyi a pou l al viv Kanada.
Lè Marlie te gen 14 lane li tonbe ansent e eksperyans sa chanje lavi l konplètman.
Jodia Marlie ap viv ak pitit li Lheyla ki gen 9 lane. Lheyla se yon jèn tifi dinamik epi epanouyi e Marlie se yon jèn manman satisfè epi yon jèn pwofesyonèl akonpli.
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In this episode, we talked about teenage pregnancy through the story of Marlie Thervil.
Marlie, 24, was born and lived in Haiti for a period of time before leaving for Canada. She became pregnant at 14 and life was never the same. Marlie faced many hurdles, especially in a society where being a teen mother is frowned upon. But with the love and support of her parents, she fought until she saw the light at the end of the tunnel.
Today, she is mother to Lheyla; a beautiful and brilliant 9 year old, and Marlie, a fulfilled mother and a dynamic professional in the medical field. 

Premye epizòd Koze avè m nan se okazyon pou Alexandro Nicolas prezante tèt li epi prezante podkas la bay tout oditè yo.
Li envite yo vini viv bèl eksperyans sa ak li.
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In this first episode Alexandro Nicolas introduces himself and the podcast to listeners.
He welcomes them into the exciting Koze avè m journey.

Koze avè m jingle