![The Lighthouse Podcast](https://s3-us-west-2.amazonaws.com/anchor-generated-image-bank/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
The Lighthouse Podcast
By Lighthouse Family Retreat
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The Lighthouse PodcastOct 11, 2022
![Episode 136: Rallying Against Childhood Cancer](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 136: Rallying Against Childhood Cancer
Join us as we delve into the inspiring story behind the founding of the Rally Foundation for Childhood Cancer Research. Our hosts sit down in person with Dean Crowe, the driving force behind Rally Foundation, to uncover the grassroots initiatives, community involvement, and cost-efficient strategies that have fueled the organization's mission to combat childhood cancer.
From empowering volunteers, families, and friends to become advocates in the fight against pediatric cancer to the heartwarming stories of Rally Kids, we explore the profound impact of community-driven efforts in driving research and support for young cancer patients. Additionally, we discuss Rally Foundation's collaborations with researchers, scientists, and medical institutions, shedding light on significant breakthroughs and the pivotal role families and patients play in shaping research priorities.
Moreover, we explore the vital role of Rally Kid Research Funds in empowering families and friends to contribute meaningfully, offering support and hope to those battling childhood cancer. Looking toward the future, we discuss the primary goals and milestones that the Rally Foundation aspires to achieve in the coming years to advance childhood cancer research and support young patients and their families.
Connect with the Rally Foundation: Website | Facebook | Instagram
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![Episode 135 | Leia Hunt: Called To Do More In This Life](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 135 | Leia Hunt: Called To Do More In This Life
Welcome back to the Lighthouse Podcast! Last September, we had the privilege of attending a poignant gathering in Washington, D.C., called "CureFest." Amidst the inspiring atmosphere, we had the honor of encountering remarkable individuals and organizations. Today, we're thrilled to share a heartfelt conversation with Leia Hunt, one of the extraordinary souls we met at CureFest.
Leia's journey began at the tender age of 2 1/2 when she was diagnosed with Retinoblastoma. She had a total of 26 surgeries and relapsed during her two-year cancer journey. Inspired by her own family's journey, Leia founded Leia's Kids to offer support and hope to families facing similar challenges. She discusses the creation of journals and the heartwarming children’s book "Princess Marygold," which aimed to bring light to young cancer warriors' lives.
As we explore the long-term effects of chemotherapy, Leia sheds light on what parents can expect and how they can best support their children through any challenges that may arise. She also shares the evolution of her faith throughout their journey and offers words of encouragement to those affected by childhood cancer.
You will walk away from this episode being so encouraged by Leia's voice for childhood cancer and find inspiration in her message of finding beauty and normalcy in every circumstance.
In the opener, Chris mentioned our Amazon wishlist. If you would like to check it out, you can do that by following this link: https://a.co/boWB9K8
Connect with Leia's Kids: Website | Facebook
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![Episode 134 | A Faith Filled Yesterday, Today & Tomorrow](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 134 | A Faith Filled Yesterday, Today & Tomorrow
Welcome back to the Lighthouse Podcast! This is our March edition, but don't forget that we have 133 other episodes you can also listen to. Today, Chris and Christy have the privilege of talking with Pamela Jones. Pamela's daughter, Sarah, was diagnosed with T-Cell Acute Lymphoblastic Leukemia at the age of 12.
Before that diagnosis, back when Sarah was an infant, they had a miracle happen that you will want to hear! That miracle set the stage for a powerful faith journey through her life. Pamela and her family realized that God is the same yesterday, today, and tomorrow. They would continue to claim his promises through the journey ahead.
Going through cancer treatments as you turn from pre-teen to teen was incredibly difficult for Sarah. But she continued to hold on to her faith that could move mountains. The Bible tells us not to fear 365 times, and Sarah, as well as her family held on to that through the valley lows.
Pamela joined a Facebook group for families going through this journey. And it provided friendship, community, and encouragement. She continues to share about the tough times and the blessings along the road. In closing, she encourages families going through this to accept help no matter how hard it is to say "yes."
In the opener, Christy mentioned that we have space for first-time families walking through childhood cancer on our weeklong summer retreats. And that we also have space on an upcoming weekend retreat in Jasper, GA. You can learn about those by going to https://www.lighthousefamilyretreat.org/retreat.
![Episode 133 | A Journey of Resiliency](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 133 | A Journey of Resiliency
We are so thrilled to be starting season 8 of the Lighthouse Podcast! First and Foremost, we wanted to make you aware that our posting schedule is changing slightly. For this season, new episodes will drop on the first Tuesday of each month. We encourage you to go back and listen to the helpful episodes from Season 1 to 7.
Now, let us introduce you to our guests for the first episode of this season - high school sweethearts - Zach and Karli Lansdell. The Lansdell’s currently reside in Rome, GA, and have one outdoor-loving, huge heart, and all-boy named Levi. Their journey with childhood cancer began when Levi was diagnosed with Acute Myeloid Leukemia on August 10, 2022.
The journey was long and intense, as they spent over 200 days in the hospital. They did amazing things to make the hospital feel like home and keep Levi comfortable and happy.
They have now moved into the post-treatment plan, and that brings its own challenges. Through their journey, they learned to advocate with gut feelings, ask for help, and be honest with your mental health. Both Zach and Karli leave us with some encouraging advice that can be taken to heart right away.
In the opener, Chris and Christy mentioned that our retreat applications are open for both families walking through childhood cancer and volunteers. You can learn more by visiting our website at www.lighthousefamilyretreat.org
![Episode 132 | Team Hutson](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 132 | Team Hutson
Today, we're joined by Dan and Kate Hutson. Dan & Kate are the parents to 4 beautiful children, Audrey, Elijah, Jack & Greta. In August of 2021, their lives took an unexpected turn when their son, Elijah, began displaying unexplained bruising all over his body within a remarkably short span. On their 8th wedding anniversary, August 3, 2021, Elijah received the diagnosis of ALL, marked by Philadelphia chromosomes—a moment that reshaped their family's trajectory.
In this candid conversation, they emphasize the crucial role of advocating for your family's needs within the hospital setting, highlighting parents' unique understanding of their child's needs. Their story underlines the incredible blessing of support from their family, friends, church community, and the invaluable aid provided by their child life specialist. For parents embarking on a similar journey, they share valuable advice and wisdom born from their own experiences.
They proudly refer to themselves as "Team Hutson," fully aware that the Lord continues to walk alongside them in this journey. Their most heartfelt prayer is to share their testimony and draw others closer to Jesus. All glory to God.
Tune in to this heartfelt conversation of faith, resilience, and insights on navigating the storm as a family.
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![Episode 131 | From Nurse to Mom: When Roles Reverse](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 131 | From Nurse to Mom: When Roles Reverse
Welcome back to The Lighthouse Family Podcast as we welcome the incredible Mary Ann Massolio. As a mother of two, Jay and Kathleen, Mary Ann wears multiple hats—serving as the Executive Director of the 1Voice Foundation and dedicating herself to Pediatric Hematology/Oncology Social Work in Tampa Bay for almost three decades.
Mary Ann's journey took a profound turn when her son, Jay, was diagnosed with 4th stage non-Hodgkin's lymphoma at the tender age of 9. In the midst of his brave battle, Jay tragically passed away just six months into treatment. This heartbreaking experience not only reshaped Mary Ann's professional trajectory but also sparked a deep resolve within her. In honor of Jay's memory, Mary Ann established the first school in the United States exclusively for children battling cancer.
Her vast firsthand understanding—from navigating her own child's treatment to supporting families through bereavement—grants her a wealth of wisdom about the intricate dynamics of family experiences during these trying times. Tune in as Mary Ann shares her remarkable story and the impactful work she continues to carry out in memory of her son.
To learn more about 1Voice Foundation, click HERE
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![Episode 130 | 6 Rounds to Resilience](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 130 | 6 Rounds to Resilience
Welcome back to The Lighthouse Family Podcast! Today, we're privileged to welcome Chalene Skinner as our guest. Her journey is truly extraordinary, centered around her daughter, Easton. Easton's path began at birth, born with Down Syndrome, and took a significant turn at the age of 3 with a diagnosis of ALL (Acute Lymphoblastic Leukemia), charting an unexpected journey for their family.
Life took a challenging turn when Easton was 5, and Chalene and her husband went through a divorce. For Chalene, this period was an immensely trying time, navigating her daughter's cancer journey while facing the emotional strains of separation.
In her pursuit of healing and self-expression, Chalene turned to writing. Her book, "6 Rounds to Resilience," offers profound insights from her experiences. This book provides invaluable insights to those facing challenging times. Its simplicity and practicality make it a valuable resource for anyone navigating life's challenges. Join us as we delve into Chalene's inspiring story and explore the invaluable wisdom she shares in "6 Rounds to Resilience."
To purchase 6 Rounds to Resilience click HERE
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![Episode 129 | Let Go & Let God](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 129 | Let Go & Let God
Welcome to the Lighthouse Family Podcast. In this episode, we're honored to have Jamie Perkins as our guest. Jamie and her husband, Tommy, are loving parents to two amazing children, Griffin (14) and Julia (12).
Their lives took an unforeseen turn when their son, Griffin, was diagnosed with Optic Nerve Glioma just before third grade. Fast forward to 2021, when the tumor's size doubled, requiring immediate treatment. Jamie delves into the deeply personal experience of caring for Griffin, navigating the challenging adjustments, and reshaping their reality post-treatment, all while witnessing the remarkable strengthening of faith and family bonds.
In our conversation, Jamie bravely discusses Griffin's journey from five stable years without any changes in his tumor to the sudden doubling in size. She candidly reflects on the challenge of overcoming the fear of the tumor potentially changing again, highlighting the difficulty in navigating this new reality without succumbing to constant fear.
She further delves into the post-treatment phase, highlighting the unforeseen challenges of readjusting to home life and the importance of not rushing through the process. Amidst the challenges, Jamie reflects on the growth in her faith, offering words of wisdom and advice to families stepping into life after treatment.
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![Episode 128 | A Faith-Fueled Journey](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 128 | A Faith-Fueled Journey
Welcome to another touching episode of the Lighthouse Podcast. Today, we are honored to have Brindley Drake as our guest. Brindley and her husband, Dillon, share a beautiful family with two amazing boys, Dalton and Cooper. Last fall, just before school started, their lives took an unexpected turn when Cooper began experiencing severe leg pain. A visit to the emergency room unveiled a heartbreaking diagnosis of cancer, altering the course of their lives forever. Throughout their journey, a profound faith in God has been the guiding force, providing hope and strength.
In this episode, we delve into the Drake family's story, exploring the powerful impact of faith in navigating life's challenges. Brindley shares touching moments, including Dalton's heartfelt reaction to Cooper's leukemia diagnosis and the invaluable support they received from a child life therapist and therapy dog, Sabel. The family's relocation to Lubbock, TX, becomes a focal point, prompting reflections on divine guidance.
Brindley graciously imparts advice to other families facing similar challenges, emphasizing the importance of accepting help when offered.
Join us for a heartfelt conversation that showcases the resilience and faith of the Drake family. We hope you find inspiration and encouragement in today's episode of the Lighthouse Podcast.
Send us a message on social and share with us what you are thankful for:
![Episode 127 | Supporting Siblings with Dr. Susan Conradsen](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 127 | Supporting Siblings with Dr. Susan Conradsen
Welcome back to the Lighthouse Podcast. In this episode, we have the privilege of talking with Dr. Susan Conradsen, a dedicated mother of two children, Annalise and Daken. Beyond her role as a mother, Dr. Conradsen is a licensed clinical psychologist and currently serves as an Associate Professor of Psychology, Director of the Signature Experience Program, and the Director of the Women's and Gender Studies Program at Berry College in Rome, GA.
Dr. Conradsen's journey in the field of pediatric oncology began during her graduate school years when she specialized in pediatric consults within hospitals. This experience provided her with profound insights into the psychological aspects, family dynamics, and essential resources required for families embarking on the challenging path of childhood cancer.
In this episode, Dr. Conradsen shares invaluable insights with parents, particularly in the context of supporting siblings. Her wealth of expertise and real-world experience equips families with the tools and knowledge they need to navigate the complexities of the journey. Dr. Conradsen emphasizes the importance of maintaining open communication and fostering a sense of inclusion for siblings. We hope the wisdom and guidance shared in this episode will be as beneficial to you as it was to us.
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![Episode 126 | An Unexpected Discovery](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 126 | An Unexpected Discovery
In this episode of The Lighthouse Family Podcast, we have the privilege of hearing from Dustin and Tatiana Rose. Together, they have a beautiful son, Max (4yrs old). Max was 3 1/2 years old when their world was forever changed.
Max's initial medical concern, suspected scoliosis, led to an MRI revealing a Ganglioneuroblastoma mass near his spine, a diagnosis they never saw coming. Their path forward was uncertain, as they sought opinions from multiple oncologists, each offering different treatment options for this rare tumor's challenging location.
Their story takes a turn as they find a surgeon in New York who holds the confidence to remove the tumor without the need for chemotherapy, leading them on a journey made possible by the incredible organization Flight of Hope. The 10-hour surgery, while successful, marked the beginning of a new set of challenges. Max's development of scoliosis and the necessity for a full upper-body cast add to the complexities they face as he copes with limited mobility and non-verbal communication.
Throughout their story, a common theme emerges - the journey through and beyond childhood cancer is a rollercoaster of emotions, and understanding one another's feelings is paramount. The aftermath of being "cancer-free" can prove just as challenging as treatment, emphasizing the significance of the unwavering support of family and friends.
Join us as we dive deep into this extraordinary story, and witness the incredible strength and resilience of Dustin, Tatiana, and Max on The Lighthouse Family Podcast.
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![Episode 125 | Hearts of Resilience](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 125 | Hearts of Resilience
Welcome back to the Lighthouse Family Podcast. Today, we have the privilege of speaking with Martika Peterson, a devoted mother alongside her husband Damien, raising two beautiful children, Kaidence and Damien.
In this episode, Martika shares a heart-wrenching journey that began with her daughter's severe headaches in October 2021. Their world took a devastating turn in September when Kaidence's grandmother was diagnosed with COVID-19 and tragically passed away in October.
Initially, Martika believed Kaidence's headaches were stress-related due to the loss of her best friend, her beloved grandmother. It wasn't until Thanksgiving Day 2021 that she decided to seek medical help, concerned for her daughter's health. The emergency room visit revealed a mass on Kaidence's right temporal bone.
Their journey then led them to Birmingham, where a series of tests and a biopsy unveiled a diagnosis on January 11, 2022: Langerhans Cell Histiocytosis. Since then, Kaidence has been receiving dedicated treatment and care.
Martika takes us through the challenging days, the emotional rollercoaster, and the gratitude she feels as they near the end of this challenging journey, with everything going according to their dedicated oncologist's plan. Join us for an inspiring and heartfelt conversation as Martika shares her family's resilience and unwavering love in the face of childhood cancer.
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![Episode 124 | Thank you, God, for giving us all this JOY!](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 124 | Thank you, God, for giving us all this JOY!
In this profoundly moving episode, we have the privilege of talking with Kelli Youngblood. Kelli and her husband Matt have two beautiful children, Emerie (10) and Lane (7).
Their story began with an unexpected twist when Lane was playing soccer with his dad and suddenly experienced excruciating stomach pains. A trip to the hospital and a shocking diagnosis from the oncology team changed their lives forever: Lane had cancer. After a nephrectomy to remove his kidney and 24 weeks of intensive treatment, Lane was declared cancer-free in October 2021. The relief was palpable, but their journey was far from over. In February 2022, routine scans brought devastating news—Lane's cancer had returned and had now spread to his lungs.
Kelli courageously shares her personal struggle with accepting help from others throughout their journey. She recounts two powerful conversations that shifted her perspective, allowing her to see the blessings God had bestowed upon her family when they needed them the most.
Faith is a central theme in Kelli's story. She opens up about her profound faith in the Lord, & entrusting everything to Him. Their son, Lane, displayed incredible faith at such a young age. With an unwavering spirit, he would begin every prayer, even in the hospital receiving treatment, with the heartfelt words, "Thank you, God, for giving us all of this JOY." This joy became a constant presence throughout their challenging journey.
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![Episode 123 | Strength Through Struggle](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 123 | Strength Through Struggle
Welcome back to The Lighthouse Family Podcast. In today's episode we have the honor of speaking with Brent & Jade Campbell. Together they have three children, Haddie, Ruby & Judson. Brent serves as the pastor of Faith Baptist Church in Lahoma, OK, while Jade is a dedicated stay-at-home mom. In the early months of 2022, their world was dramatically altered when they received the heart-wrenching news from medical professionals that their beloved daughter, Haddie, had been diagnosed with leukemia.
They begin by recounting the duration it took for Haddie to persistently voice her discomfort before the shocking discovery of her leukemia & how they processed the news individually and as a family.
In this candid conversation, Brent and Jade also shed light on the realities of the "maintenance" phase and how they've come to realize that life doesn't merely return to the way it was before the diagnosis. Their journey has led them to embrace a new "normal," recognizing that their lives have been forever changed.
Throughout this challenging experience, Haddie has emerged as an incredible inspiration to everyone fortunate enough to know her. She expresses gratitude to all those who have cared for her and played a part in helping her overcome cancer, and she continues to lean on her unwavering faith in the Lord.
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![Episode 122 | Redefining 'Normal'](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 122 | Redefining 'Normal'
Welcome back to The Lighthouse Family Podcast. In today's episode, we have the honor of speaking with Camille Connor. Camille and her husband, Bob, have a son, Stafford, and identical twin daughters, Caroline and Connor. Their lives took an unexpected turn in 2013 when Caroline received a diagnosis that would change their family forever—Juvenile Pilocytic Astrocytoma.
Camille begins by expressing her gratitude for having identical twins, as it enabled them to observe that Caroline wasn't growing at the same pace as her sister. After a series of tests, including a revealing MRI, they received the life-altering news of her tumor.
Despite the formidable medical challenges Caroline has faced, she has displayed an incredible level of resilience and maintained a remarkable level of health, considering the numerous medications she has had to endure over the past nine years. Although the tumor has impacted her vision, Caroline's adaptability and strength are nothing short of awe-inspiring.
In this episode, Camille shares her perspective on the concept of "normal" and emphasizes that there isn't a universal standard. She highlights the uniqueness of every individual's story. Past experiences have taught her not to grow too complacent, as life can change in an instant. She encourages us all to savor the present, recognizing the blessings that God has bestowed upon us.
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![Episode 121 | Mom Guilt](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 121 | Mom Guilt
Welcome back to the Lighthouse Family Podcast, where today's episode is truly special. We have the pleasure of hosting one of our esteemed board members, Courtney DeFeo. Courtney and her husband, Ron, are the parents of two beautiful teenage daughters, Ella and Larson. She has a natural gift for communication and is passionate about writing, speaking, and providing parents with valuable tools to navigate the journey of parenthood.
The conversation begins by exploring Courtney's insights and challenges in this phase of motherhood, naturally transitioning into the topic of mom guilt. Courtney guides listeners, especially those grappling with this common struggle, helping them discern the distinction between guilt as convictions from the Spirit and condemnation from the enemy. Relatable examples of convictions and condemnations are shared, making the discussion all the more relatable.
Furthermore, the conversation extends to parents navigating childhood cancer, addressing the difficulty many face in seeking and accepting assistance when needed. Guidance is provided for those who struggle with asking for help, emphasizing the importance of support during challenging times.
Join us in this insightful and uplifting episode as we navigate the complexities of mom guilt, discover the grace within, and empower parents with valuable tools to overcome challenges along their journey.
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![Episode 120 | Unbreakable Bonds](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 120 | Unbreakable Bonds
Welcome back to the Lighthouse Podcast! In this episode, Chris and Christy embark on an incredible journey alongside Teka Dodd, a mother with an extraordinary story to share. Teka and her husband, Nathaniel, are the loving parents of four beautiful children: Chloe (13), Aryanna (11), Serenity (3), and Amelia (1).
Their story takes an unexpected turn in 2016 when Teka receives a rare and life-altering diagnosis—a brain tumor. But the twists don't end there. The following year, in 2017, their lives take another startling twist when Chloe, their eldest daughter, is diagnosed with the same rare brain tumor. Their case is nothing short of unique, marking the first genetic report of its kind in the United States.
From December 2016 to June 2022, Chloe had not one but four brain surgeries. She candidly shares about the difficulties of these surgeries and the incredible resilience Chloe demonstrates in recovering after each one. Yet, amidst their medical battles, the Dodds are dealt another challenging card. Teka experiences a deeply traumatic birth experience just days before Chloe's scheduled brain surgery. Through the lens of their shared medical trauma, Teka emphasizes the profound importance of prioritizing quality time together as a family.
As our podcast draws to a close, Teka leaves us with the practical wisdom she's gained from a compassionate nurse and the invaluable life lessons she and Chloe have learned along the way. Join us in this extraordinary mother-daughter journey that exemplifies strength, resilience, and the unbreakable bonds of love. Prepare to be inspired and uplifted by their remarkable story.
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![Episode 119 | Navigating the Storm](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 119 | Navigating the Storm
Welcome to another inspiring episode of the Lighthouse Podcast. We are in week two of Childhood Cancer Awareness Month, sharing heartfelt stories of families navigating the challenging journey of childhood cancer.
This week, we have the privilege of sitting down with Mia Bell, a remarkable single mother to three incredible children: Maurice (20), Cory (17), and Chloe (11). In 2017, their world was abruptly turned upside down when Chloe was diagnosed with stage IV neuroblastoma at four years old. After completing the initial treatment, Chloe faced relapse after 21 months.
Mia's story is one of unwavering resilience and determination. She sheds light on the significance of maintaining a sense of normalcy for Chloe throughout their journey, incorporating art therapy, yoga, gymnastics, and creating memories with her brothers.
As a single parent, Mia shares her experiences guiding her boys to self-sufficiency at a young age while she was by Chloe's side during treatment. Even from the hospital, she maintained consistent communication and made it a priority to verbalize her love for them daily.
Tune in to this emotional episode as we illuminate the path of resilience and love that defines the Bell family's journey and find inspiration in their story of strength and purpose.
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![Episode 118 | Smiley for Kylie](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 118 | Smiley for Kylie
Welcome to the Lighthouse Podcast. Today, Chris and Christy are joined in studio by Mark and Robin Myers, the loving parents of four beautiful girls: Meredith (27), Kendall (25), Jenna (23), & their precious Kylie, who went to be with Jesus at the tender age of 12.
Kylie was diagnosed with Ewing’s Sarcoma, an aggressive bone cancer. Her cancer journey was marked by a unique ability to find joy even in the face of adversity. When Kylie first learned about her cancer, her first response was, "God must have a great big plan for me." Kylie fought back against cancer with unwavering faith and positivity, sharing her journey through pictures and videos, touching the lives of fellow fighters and her SmileyForKylie followers.
Kylie's deep faith in God was a cornerstone of her life. She became a believer at a young age, and her faith journey was intimately connected with her battle against cancer. Throughout her treatment, Kylie continued encouraging others, both fellow pediatric cancer warriors and those reaching out to her through social media. Her primary goal was simple yet profound: "To make God smile."
When faced with the reality that her body was succumbing to cancer, she expressed a "strange peace" about dying. Kylie's final requests to her family were that they care for her beloved kitten and continue the fight to cure childhood cancer.
Join us as we delve into the inspirational story of Kylie Myers, a young girl who lived each moment with love, godly joy, and unwavering faith, leaving an indelible mark on all privileged to know her.
For more information about Smiley for Kylie, click HERE
To view the short film Kylie & Liza, click HERE.
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![Episode 117 | A Sisterly Journey](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 117 | A Sisterly Journey
Join us on this heartfelt episode as we have the privilege of speaking with a remarkable sister duo, Cami Bergman and Jackie Huettner. Cami, a mother of five beautiful children – Keaton (17), Kira (15), Keely (6), Kyzer (3), and Kolt (7 months) – shares an inspiring story about her daughter Keely, who bravely faced a Leukemia diagnosis at the tender age of 4. Through the challenges and triumphs of Keely's journey, Cami and Jackie's bond has grown even stronger, despite living six hours apart. Tune in as they share their touching experiences and the unbreakable connection that has blossomed through the power of family and love.
For more information about the Gold Party, click HERE
To learn more about attending or serving on a fall retreat, click HERE
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![Episode 116 | Living in the Moment](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 116 | Living in the Moment
In this poignant episode, we have the privilege of sitting down with Syhteehia Slaughter, a remarkable mother of three boys - Gary (21), Qua (18), and Tyson (9). Their lives took an unforeseen turn when Qua, at the age of 18, was diagnosed with stage 4 Renal Medullary Carcinoma on September 3, 2022, with doctors giving him less than a year to live. The shockwaves of this diagnosis resonated through their family, upending their world in an instant.
As a single parent and the sole provider for her family, Syhteehia opens up about how she navigates uncharted territories. Her fierce dedication to keeping Qua's spirits high, despite the heaviness of his illness, speaks to her unwavering strength. Through the ups and downs, Syhteehia's faith journey has deepened, teaching her the value of living in the present moment and cherishing every interaction with her children. The perspective shift from a life dominated by work to one rooted in presence and connection has been profound.
Join us as we delve into the inspiring story of Qua, a young warrior, and his family's steadfast commitment to resilience, hope, and the enduring power of love in the face of adversity.
Gold Party: https://e.givesmart.com/events/v8f/
Weekend retreats: (volunteers) https://www.lighthousefamilyretreat.org/regional-fp (retreat family) https://www.lighthousefamilyretreat.org/regional-rf
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![Episode 115 | A Sibling's Perspective](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 115 | A Sibling's Perspective
In this deeply moving podcast episode, we sit down with Lexie Mulvihill, a remarkable individual who shares her heartfelt journey as a sibling to her brother Jake, who battled cancer with unwavering spirit. Lexie paints a vivid picture of the precious bond she shared with her brother, describing how their relationship was a source of joy, strength, and endless inspiration. Through candid anecdotes, she walks us through her experiences as a supportive presence in her brother's life, offering insights into caregiving's challenges and triumphs while managing her commitments as a high school student and competitive swimmer.
With a touch of vulnerability, Lexie shares how Jake's passing left her feeling heartbroken yet motivated to carry forward his legacy of positivity. She delves into the ways she keeps his memory alive, the role of mental health in her ongoing journey, and the invaluable advice she extends to others experiencing grief and loss. Join us as we delve into a heartfelt conversation that explores sibling-hood, caregiving, resilience, and the enduring power of love.
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![Episode 114 | Knowing Your Child](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 114 | Knowing Your Child
Welcome to Season 7 of The Lighthouse Podcast! In this episode, we have the privilege of sitting down with Karen Stubbs, founder of Birds on a Wire—a ministry dedicated to supporting and empowering mothers through every stage of motherhood. With 35 years of marriage to her husband Greg, they've raised four children and have been blessed with five grandchildren.
Today, Karen sheds light on the fascinating world of temperaments and how understanding them can revolutionize parenting. It all started when Karen struggled to comprehend her son Taylor's behavior at around age 3. Thankfully, a friend recommended "Personality Plus for Parents" by Florence Littauer, which opened Karen's eyes to temperaments and how God wired us all differently.
Karen provides practical examples of how parents can support their children through different temperaments, including those on treatment, while fostering sibling harmony. In crises, Karen emphasizes the significance of recognizing each temperament's core needs. This knowledge enables parents to meet specific needs daily, enhancing their child's emotional well-being.
Lastly, Karen delves into the importance of understanding your spouse's temperament, especially during emotional moments. By appreciating and respecting each other's unique emotional responses, couples can provide the space and support aligned with their God-given wiring.
To find out more about Birds on a Wire, visit https://birdsonawiremoms.com/
Check out our recent blog for more information and helpful tools.
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![Episode 113 | A Journey of Love and Loss](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 113 | A Journey of Love and Loss
Join Chris and Christy on this heartfelt episode of the Lighthouse Podcast as they have a poignant conversation with Chris and Amanda Decicco. They have three children, Zach (11), Ava (7) and their son Jayden who was promoted to Heaven in April of 2015.
From the moment Jayden was diagnosed with terminal brain cancer, Chris and Amanda faced the unimaginable challenge of coping with their son’s limited time. They discuss the initial shock of receiving the prognosis & how they began to process the overwhelming emotions that came with it.
Amanda opens up about her spiritual journey, finding solace and guidance in her faith. Surrendering to God's will, she learned to let go of control and trust the process. Her Christian journey inspired her to become a listening voice for families in similar situations. She wrote "The Hero Within," a book that shares their inspiring journey and offers hope to others facing adversity.
In their conversation, Chris and Amanda emphasize the importance of surrendering to God, letting go of control, and trusting in His plan. They discuss how they keep Jayden's presence alive within their family, talking about him and celebrating his birthday as a cherished part of their lives. They actively participate in charity events and give back to families enduring similar journeys.
Discover the power of faith, resilience, and giving back as they offer invaluable insights and support to families navigating similar paths.
To order Amanda's book, The Hero Within, visit Amazon.
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![Episode 112 | Embracing the Present in the Midst of Cancer](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 112 | Embracing the Present in the Midst of Cancer
Welcome back to the Lighthouse Podcast! In this episode, Chris and & Christy had the honor of speaking with Christy Owens. She is married to her husband, Ira, and they have three children, Grace, Noah & Jonas.
Christy's son Jonas was diagnosed with Pre-B-Cell Leukemia at 16 months old. She opens up about the initial struggles of his diagnosis, treatment, and the uncertainties that plagued her family throughout their three-year journey. Christy shares a pivotal moment when she learned to focus on the present rather than fearfully anticipating the future. She found strength and trust in God's goodness, learning to focus on the present rather than anxiously worrying about the future.
As Christy immersed herself in a supportive Facebook group titled Christian Parents of Kids with Cancer, she found solace, encouragement, and a platform to express her emotions through writing and sharing bible verses. Eventually, the Facebook page was given to Christy, and this space has become a sacred place for mothers to find strength, support, and spiritual nourishment. Discover the power of coming together and serving one another through the love of Christ amidst life's most difficult trials.
During the conversation, Christy mentioned a group study on the book The Hiding Place. The group study will be held via Zoom starting on June 12th on Wednesdays at 6pm - 7pm (Pacific Time)/9pm - 10pm (Eastern Time). To join the Facebook group mentioned, visit https://www.facebook.com/groups/christianparentsofkidswithcancer
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![Episode 111 | Shining the LightZ of Hope](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 111 | Shining the LightZ of Hope
On this episode of the Lighthouse Podcast, Chris and Christy speak with Brent and Susan Woodard, parents to their daughter, Grace (10), and Zachary, who was promoted to Heaven from a rare neuromuscular disease in May 2019. Despite his illness, Zachary's mind remained strong even as his muscles stopped developing, requiring him to use a ventilator and undergo multiple hospitalizations.
During one of his hospital stays, a family friend decorated Zachary's room with Christmas lights, which not only brightened up the space but also brought joy to Zachary and caught the attention of the hospital staff. This simple act of kindness inspired Zachary to want to do the same for other children in the hospital. Shortly after, Zachary met Jesus. Brent & Susan found their new purpose in life was to fulfill Zachary’s dream, and Lightz of Hope was born.
Lightz of Hope aims to bring hope and happiness to children affected by long-term illness or disability by giving them LIGHTZ, a symbol of hope. Brent and Susan continue to honor Zachary's legacy through this mission, spreading joy and making a difference in the lives of children and their families.
To find out more about LightZ of Hope, head over to their website at https://www.lightzofhope.org/.
In the opener, Chris and Christy mentioned our Amazon wishlist for summer retreats. If you would like to purchase anything, you can find out more by following this link. They also mentioned the Enneagram podcast episodes. You can find them by scrolling back to episodes 10, 11, and 12. Questions? Reach out to us at podcast@lighthousefamilyretreat.org.
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![Episode 110 | Raising Brave Conversations: Equipping Parents to Discuss Difficult Topics](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 110 | Raising Brave Conversations: Equipping Parents to Discuss Difficult Topics
Welcome back to the Lighthouse Podcast! In this episode, Chris and Christy had the privilege of speaking with Sara Olsher. Sara is a single mother to a 12-year-old daughter, the CEO of Mighty + Bright, Author, and Executive Director of the Resilience Campaign.
At the age of 34, Sara was diagnosed with breast cancer and found herself frustrated with the lack of resources explaining cancer to children. Sara began to have foundational conversations with her daughter, explaining her diagnosis and treatments. During her treatment, Sara began designing resources specific to cancer — including a children's book explaining the science of cancer and a visual calendar for kids to take the chaos out of treatment.
Sara ends our discussion by sharing two helpful tips for parents: 1. Be open and honest with your children about what is happening. 2. Spend 10-15 minutes individually each day with your kids to connect and make them feel seen.
For information on the resources mentioned, head to the Mighty & Bright website at https://mightyandbright.com/cancer.
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![Episode 109 | Coping with Trauma and Grief](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 109 | Coping with Trauma and Grief
Welcome back to the Lighthouse Podcast! In this episode, we explore the effects of trauma and grief on the body and brain and how individuals can cope with these difficult experiences. Our guest, Heather Cobb, brings over 20 years of experience helping children and adults of all ages and walks of life through grief and trauma.
Heather begins by discussing the definition of trauma using examples we can all understand. She explains trauma's effects on the body and brain and how it can lead to long-term negative consequences if not properly addressed. She then dives into the impact of unresolved grief, highlighting its physical and emotional toll on individuals.
Moving on to coping mechanisms, Heather cautions against certain methods that don't work, such as using substances or engaging in risky behaviors. She then offers helpful tips and strategies individuals can use to cope, including mindfulness, being outside, sleep habits, and other self-care activities.
Heather acknowledges that not everyone has access to professional counseling and provides practical advice for those who may not have the financial or logistical means to seek therapy. She encourages you to move towards community and find a safe person. In closing, through her insights and expertise, listeners will understand better how trauma and grief affect the mind and body and practical strategies for managing.
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![Episode 108 | Your Mess & Your Message](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 108 | Your Mess & Your Message
For the first time ever, The Lighthouse Podcast goes on the road to record an episode while on a week-long seaside retreat. Our guest today is Jordan and Mindi Linscombe from Colorado. Jordan and Mindi have four kids - Bear (13 years old), Brody (10 years old), Blake (8 years old), and Brooklyn (5 years old). The Linscombe family loves serving with Lighthouse on retreats, and we love having them!
In 2015, they started noticing things weren't right with Brody. One side of his neck was much larger than the other side. After going through a few rounds of antibiotics from the pediatrician, they decided to go to Children's Hospital Colorado. Ultimately, it was there that he was diagnosed with Anaplastic Large Cell Lymphoma. In hindsight, they found out that If they didn't take him to the hospital when they did, he would have died in two weeks. Jordan and Mindi share that the importance of listening to your gut is vital.
Along the journey, Jordan and Mindi experienced anxiety, panic attacks, and loss of control. But they also experienced good counseling, community, and hope. Jordan shares a phrase that has helped them, and they share it with many other families they are blessed to walk with. Here's the phrase - "Fear tells us "what if," but faith tells us "even if."'
In closing, Mindi shared the importance of finding a church community so you don't walk alone and in isolation. She also gives permission to ask for help when needed, as people really want to help you! Jordan shares advice about making sure to touch and smell something real daily. This helps you stay grounded in the journey amidst our digital world.
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![Episode 107 | Why Do Bad Things Happen To Good People?](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 107 | Why Do Bad Things Happen To Good People?
Join us for an insightful and uplifting conversation on the complexities of life and the power of hope. Our special guest, Joel Thomas, lead pastor at Buckhead Church, joined Chris and Christy today on the Lighthouse Podcast. Joel and his wife, Jenn, live in Georgia with their four children - Talan (16), Gentry (14), Kason (9), and Nixon (7).
Whether you are a believer or not, today's topic is one we all wrestle with. This episode will explore the issue of why bad things happen to good people. Our conversation begins with a discussion on the definition of "bad things" and whether or not we are good judges of what is truly bad. We then define what being a "good person" means and how our perceptions can shift gratitude.
Joel shares his experiences and examples of finding purpose in difficult situations. We end our discussion on a positive note by exploring the concept of genuine hope and how it can provide comfort and inspiration in times of adversity. Be encouraged, as true hope is available to you!
If this episode leaves you with questions about faith, please email us at podcast@lighthousefamilyretreat.org or call us at 404-590-5338. We would love an opportunity to talk with you!
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![Episode 106 | God's Pursuit](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 106 | God's Pursuit
Today, Lance & Susan Smith joined Chris and Christy on the Lighthouse Podcast. Lance and Susan have two children - Aiden, who is eleven years old, and Annabelle, who is nine years old.
Annabelle's journey began at three years old with excessive thirst and hunger, leading to a diagnosis of Diabetes Insipidus. However, a spot on her hip led to a further diagnosis of Langerhans Cell Histiocytosis. After a year of treatment, including chemotherapy, Annabelle finished her treatment in February 2020. Amidst the cancer journey, her family experienced a rollercoaster of events, including hip dysplasia, gall bladder surgery, and adenoid removal.
Lance reflects on how Aiden handled everything, while Susan shares how Annabelle coped with everything. Amidst the tough times, their faith was shaken, and they were mad at God. Their faith became like a rollercoaster, but they experienced how God pursued them directly. Susan dreamed about eagles and received a note from a stranger, while Lance had his own stories of God pursuing him personally. As they continue to navigate their journey, they hold on to their faith and trust that God will see them through.
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![Episode 105 | Defining Moments](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo400/8044645/8044645-1597677402745-7f41b03242008.jpg)
Episode 105 | Defining Moments
Today on the Lighthouse Podcast, Chris & Christy talked with Brad & Jessy Wilson. Brad & Jessy have two children - Emi (8) and Ellison (2). Currently, they live in Tennessee and love it there!
In this episode, they share the story of Ellison's battle with a life-threatening illness. When Ellison was just eight months old, Jessy noticed some concerning symptoms and took him to the ER and pediatrician, but he was told everything looked fine. However, Jessy didn't give up and reached out to St. Jude for help. Ellison had surgery, and they discovered he would have died if they hadn't taken action.
During the surgery, Jessy had a defining moment in her faith and fully surrendered to God. Brad, her husband, also realized that their children are not their own; instead, they are God's, and they are stewarding them for Him.
Along the journey, Jessy struggled with her mental health, Emi struggled with all the changes to their family, and Brad & Jessy were dealing with marriage hardships. While there were struggles, there were also so many blessings as well. Ellison made a lifelong battle buddy during his treatment at St. Jude. As a family, they attended a Lighthouse Retreat, which made a world of difference in their family. Last but not least, Ellison has made it two years with no evidence of disease.
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![Episode 104 | A Testimony to Share](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 104 | A Testimony to Share
Today, Dustin and Chelsea Cooley joined Chris and Christy on The Lighthouse Podcast. The Cooley family lives in Arkansas with their two daughters - Emma Brooke (6 years old) & Elizabeth Grace (14 months old). Emma was diagnosed at three years old with B-cell Acute Lymphoblastic Leukemia.
After the diagnosis, they headed to St. Jude to determine the next steps. During this chapter, they faced many challenges as a family including a miscarriage and a death in the family. They also experienced an abundance of blessings. Both Dustin and Chelsea had their faith grow significantly in different ways. You will be encouraged as they share the challenges, blessings, and faith journey.
They also share about their Lighthouse Family Retreat experience. While apprehensive and nervous, they were surprised by what a life-changing week it was for them. Being away from the chaos of cancer and treatment for a week was incredibly helpful for everyone in the family.
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![Episode 103 | The Importance of Advocacy](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 103 | The Importance of Advocacy
Chris and Christy talked with Chris and Stefanie McKinney today on The Lighthouse Podcast. The McKinney family lives here in Georgia. Chris & Stefanie have two daughters - Maddie (9) & Emily Kate (2).
In this episode, you will learn how important it is to advocate for your child as well as the benefits of this. The turning point for their family was an ultrasound order from ENT. That ultrasound led to a biopsy and eventually the diagnosis of Stage 4 Metastatic Neuroblastoma. During the journey, they found hope in song lyrics and their community. Last but not least, they talk through the lessons and perspectives they learned along the Childhood Cancer road.
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![Episode 102 | A Foundation of Faith](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 102 | A Foundation of Faith
Welcome back to the Lighthouse Podcast. Today we have the pleasure of talking with Meredith Bozeman. Meredith has been married to Matthew for 22 years this June. Together they have three adopted children - Tiffany (13), Correy (10), and Michael (8). Their son Corey was diagnosed with Undifferentiated Round Cell Spinal Tumors in 2020 and is still in treatment today.
Today's episode will give you some background information on their family. Correy's cancer diagnosis made treatment more difficult because it was so rare. Correy has been through three rounds of 6-weeks of radiation, a total of 90 radiation treatments. Meredith walks us through the after-effects of treatment for Correy, their marriage, and the family. Last but not least, you will find encouragement from the Bozeman Family journey through gratitude, blessings, and a particular Bible verse.
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![Episode 101: Practical Tips from a Clinical Pharmacy Specialist](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 101: Practical Tips from a Clinical Pharmacy Specialist
Welcome back to the Lighthouse Podcast! Chris and Christy have the privilege of talking with Joshua Elder today. It's so great to have Josh on the podcast representing his profession as a Clinical Pharmacy Specialist. It's the first time Chris and Christy have talked with someone in this profession.
He lives in Kentucky with his wife and two daughters, who are six and four years old. In his free time, he volunteers as a counselor at a pediatric oncology camp and loves to travel.
In the episode today, you will hear about the role of an Oncology Pharmacist and why it's essential. You will also learn practical information about supportive care medications like Zofran, Bactrim, and more. Last but not least, you will listen to some specific side effects to look out for. In conclusion, Josh shares how his role is in a lot of larger hospitals. If you are unsure you have access to a Clinical Pharmacy Specialist, ask your medical team about it.
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![Episode 100 | The Gift of Presence](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 100 | The Gift of Presence
Chris & Christy happily hosted Annie Ellise today on the Lighthouse Podcast. Last year, Annie moved to Birmingham to become a pediatric oncology nurse with Children's Healthcare of Alabama. You will find her outdoors doing walks or runs in her free time. She also leads a discipleship group of four college girls that go to Samford.
Today you will hear how she got into oncology. You will also learn about what she calls "the gift of presence." Annie firmly believes she can make a big impact on her 12-hour shift. In addition, she talks to Chris and Christy about what it's like being a medical lead.
In the opener, Christy mentioned our Amazon wishlist with many options for every price range for supplies needed for our restorative retreats. Check it out by clicking this link.
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![Episode 99 | Let Your Faith Be Bigger Than Your Fear](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 99 | Let Your Faith Be Bigger Than Your Fear
Chris and Christy gladly hosted Christina White on The Lighthouse Podcast today. Christina and her family live in Kentucky. Christina and her husband, Jason, have two children - Isaiah (age 7) & Moriah (age 10).
Their Childhood Cancer journey began after weeks of Isaiah having an unexplained fever and foot pain that led to a limp. Isaiah was taken to the hospital and diagnosed with Philadelphia-positive B-cell Acute Lymphoblastic Leukemia (ALL) on March 1, 2021. He was hospitalized for 25 days to implant a port and initiate chemotherapy.
As a pharmacist, Christina was able to navigate insurance issues, side effects, and proper dosing with ease. She even had to teach Isaiah to swallow pills with candy and games. If you are having problems with medication, reach out to your oncology hall pharmacist. They are a great resource to help with any issues!
During this episode, you will hear about the challenges of isolation and the blessing of the people and organizations they have met. In closing, Christina shares her source of encouragement during the journey as well as some practical tips to help you in your journey.
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![Episode 98 | Practical Tips from a Registered Nurse](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 98 | Practical Tips from a Registered Nurse
Happy Valentine's Day to our listeners! We are back with the second episode of The Lighthouse Podcast. Today Chris and Christy are spending time with Sarah Bottino. Sarah graduated with a Bachelor of Science in Nursing from Kennesaw State University. For the past nine years, Sarah has loved being a registered nurse at the Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta at Egleston.
In the episode today, Sarah shares about her calling into pediatric oncology. She is passionate about educating families on how to care for their children during treatment. The biggest thing she has learned through her job is that - kids are resilient. The episode discusses disciplining your children during treatment and how important it is. Sarah says: "You have permission to parent your children with the long run in mind."
During the episode, you will hear some helpful resources to take advantage of. Sarah also walks us through some practical tips for parents to use while caring for their children. Lastly, she shares her favorite and challenging parts of her job.
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![Episode 97 | The Rivera Family Story](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 97 | The Rivera Family Story
We are happy to be back for season six of The Lighthouse Podcast. It was an honor and a privilege to host Grant & Jenn Rivera. Together they have two girls - Lauren (9 years old) and Reese (7 years old). At ten months old, Reese began the Childhood Cancer journey once a stage 4 tumor was diagnosed at the base of her spine.
They had many decisions along the way, but the first one was where was the best place to start Reese's treatment. After much prayer and discussion, they decide to go with Children's Healthcare of Atlanta. Her treatment was set as surgery and chemotherapy. From a parent's perspective, they share how difficult and overwhelming that time was.
Grant & Jenn also discuss how they both processed and handled the journey differently. Early in the process, they committed to starting with empathy for one another and that this wouldn't tear their marriage apart. They also desired to keep Lauren's life as normal as possible. Jenn shares how their village rallied around them and helped with their needs. When someone asks how they can help, you should say YES! Their village helped with mowing their lawn, making dinners, carpooling Lauren, and much more!
Save the date for the next "Ring the Bell Event" - September 20, 2023.
Learn more at www.CHOA.org/ringthebell and www.ReesesFund.org
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![Episode 96 | Priorities During The Journey](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 96 | Priorities During The Journey
For our last episode of season five, Chris and Christy hosted Cory and Lix Mixdorf. The Mixdorf family has five children - Miles (age 14), Madelyn (age 12), Mason (age 11, Meyer (age 6), and Monty (age 5). Their cancer journey began when Myer was diagnosed with Medulloblastoma at four.
From the beginning of the journey, they decided they didn't want this diagnosis to negatively impact their family and marriage. They chose to prioritize time together as a family and a married couple, no matter the circumstance. During the journey, they experienced an incredible community and many blessings.
In closing, Cory and Liz shared some personal advice about walking the kids through trauma, not hiding their emotions, and accepting help when offered. Last but not least, they encourage families not to waste the story God is writing in your life.
As we end season five, we have to take a moment to say "thank you." Thank you for listening each week. Thank you for sharing the podcast with friends and family. We will return for season six on February 7, 2023. In the meantime, please share your feedback on the Lighthouse Podcast with us: https://www.surveymonkey.com/r/ZF6LWV9
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![Episode 95 | The Long Road](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 95 | The Long Road
Chris and Christy hosted Jeffrey & Rachel McLaughlin today on the Lighthouse Podcast. The Mclaughlin's have two children - Brylei (age 12) and Owen (age 8). Owen was diagnosed at 13 months with a brain tumor and is currently under treatment at the Children's Hospital in Aurora, Colorado. Owen has experienced clinical trials, chemo, and much more since 2015.
On the episode today, Jeffrey and Rachel share the long road of treatment for Owen. When one person is diagnosed with cancer in a family, it affects everyone. Rachel shares how she went from denial to surviving to thriving. She's thankful for Jeffrey as he encouraged her not to lose faith in God. In conclusion, they both talk about the feelings they experienced and the community that has continued to surround them.
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![Episode 94 | Hope, Prayer, Testimony, and Peace](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 94 | Hope, Prayer, Testimony, and Peace
Chris & Christy had an opportunity to talk with John & Tricia Simmons today on the Lighthouse Podcast. Together they have three children - Kade (age 8), Cooper (age 5), and Judah (age 4). Judah started with symptoms of lethargy, bloated belly, and easily bruised in late summer of 2019. He was also running high fevers. Thankfully the pediatrician agreed to run labs and the results came back not right. In August 2019, Judah was referred to the Children's Hospital with the diagnosis of B-Cell Acute Lymphoblastic Leukemia (ALL) at 15 months old.
After Judah was diagnosed and treatment began, they were transferred due to John's job as a worship leader. It was a fearful time in preparation for moving plus leaving their community in Georgia. However, once they moved to Louisiana, God worked to make things much smoother than they anticipated. They are both so thankful for their faith to see them through!
John shares that he never questioned God, got angry, or asked: "why." Instead, the questions that came to mind were: "what does God want to do with this?" and "what story can we share?" He continues to say that our faith is what we live every day. And the truth is - we live in a broken world. God didn't plan for your child to have cancer. But God will help you through and use your story to encourage others in the process.
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![Episode 93 | Surviving vs Thriving](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 93 | Surviving vs Thriving
Manny & Natalie Salinas joined Chris & Christy on the Lighthouse podcast today. Together they have five children - Jonah (9), Abel (7), Ezra (5), Esther (3), and Felix (1). Jonah was diagnosed with Mature B-cell Lymphoma in 2020.
Through their journey, they met some incredible people and an impact was made on their hearts from how they were prayed for and cared for. They also discovered how to focus on thriving instead of surviving through difficult seasons as a family. God came alongside them when they prayed fervently for strength.
In the opener, Chris and Christy talked about our fundraising efforts on Giving Tuesday. We are working to expand our Travel Angels program, which helps cover some of the costs associated with traveling. If you feel led to give, you can do so here: https://lighthousefamilyretreat.salsalabs.org/2022GivingTuesday/index.html
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![Episode 92 | God's Fingerprints](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 92 | God's Fingerprints
Charlie and Kati Bayne joyfully joined Chris and Christy on the Lighthouse Podcast today. Together they have four kids - Maci (8), Anna (6), Chase (4), and Hallie (5 months). During the year 2020, they moved to a new home, found out they were pregnant, had a miscarriage, Chase's health didn't seem normal, and Covid entered the picture. Then, Charlie was officially diagnosed with Pre-B Acute Lymphoblastic Leukemia when he was 2 1/2 years old. Charlie and Kati shared about the challenging times they experienced, providential relationships that were a gift, and blessings from God. Through everything, they were able to see the fingerprints of God and lean on their faith as well as God-given relationships.
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![Episode 91 | Challenges & Miracles](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 91 | Challenges & Miracles
Chris & Christy had the opportunity to talk with the Hair family on the Lighthouse Podcast today. Bryan & Jayme have two kids - Bella, who is 7 years old, and Josiah, who is 10 years old. Bella was diagnosed with Juvenile Polycyclic Astrocytoma and had surgery. After surgery, she developed Posterior Fossa Syndrome. On the episode today, they share about Bella's diagnosis, treatment, surgery, and recovery. They also experienced many miracles and challenges along the way. Bryan & Jayme also take some time to share about Bella's journey to God and what happened at a Lighthouse Retreat. In closing, they share a lesson they learned along the way and why it's so important for everyone.
Chris & Christy mentioned in the opener about giving us feedback on the podcast. We would love to hear from you! Share your feedback: https://www.surveymonkey.com/r/ZF6LWV9
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![Episode 90 | God Provides](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 90 | God Provides
Justin & Chasity joyfully joined Chris and Christy on the Lighthouse Podcast today. The Ladd's have two kids - Asher, age 5, and Ezra, age 2. Asher was diagnosed with Acute Myeloid Leukemia in 2018 and then relapsed in 2020 with a lemon-size tumor on his brain. On this episode, Justin & Chasity walk us through diagnosis, treatment, relapse, and bell ringing. Justin shares how God covered him with a blanket of peace. Chasity talks about how she struggled with unanswered questions after the relapse. In the end, they both felt that God always provided what they needed even when they didn't know what that was. There were struggles and blessings along the journey, but they always felt God with them and they are grateful for their faith.
In the opener, Chris mentioned the podcast episode about enneagrams. You can listen to that one - right here. Christy announced the Advent Devotional: A Family Countdown to Christmas. If you are a family living through Childhood Cancer, we want to get you an advent devotional. November 6th is the last day to request a copy for your family (and you can request one here). And if you want to purchase one or give one, you can order one here.
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![Episode 89 | The Importance of Faith and Community](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 89 | The Importance of Faith and Community
Chris and Christy talked with Jamie Teoli on the Lighthouse Podcast today. Jamie is married to Tommy and together they have three kids - Leo (6), Luca (3), and Liviana (10 months). Luca was diagnosed with a Wilms Tumor in his kidney in 2020. He has endured surgery to remove his kidney and chemotherapy.
Jamie reflects on those days during diagnosis and treatment. She speaks about how the pregnancy with Liviana was a blessing in the midst of the storm. Luca walked through his cancer journey will a smile on his face everyday. Jamie talks about how her faith in God helped her tremendously through the journey as well. She also endured some troubles with family support and had to set up boundaries. Thankfully, she did have friends and even strangers rally around them. In conclusion, Jamie shared about the "cancer comparison" and how that affected her. She also talked about what she learned from this process the last few years.
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![Episode 88 | Roe Roe's Heroes: The Tucker Family Story](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 88 | Roe Roe's Heroes: The Tucker Family Story
Chad & Meredith Tucker joined Chris & Christy on the Lighthouse Podcast today. They celebrated their 10th wedding anniversary this year. They live in North Carolina and together have three kids all with double names - Carson Perry (8), Pearl Monroe (6), and Franklin Reeves (2). Their daughter, Pearl Monroe, was diagnosed with Acute Lymphocytic Leukemia in November 2019. Those early days were hard as Meredith was pregnant with Franklin Reeves plus the world was entering a global pandemic. Chad and Meredith share how their community surrounded them during the storm with fundraisers, meals, texts, and phone calls. It was tough to say "yes" to letting others help but in the end, they were so thankful for the aid and encourage others to accept help when it is offered. Pearl Monroe, whom they lovingly call "Roe Roe," rang the bell on her birthday this year and it was a glorious moment of celebration!
The Tucker family started a non-profit called Roe Roe's Heroes. Roe Roe's Heroes raises awareness for childhood cancer, promotes blood drives, helps raise money for cancer research, provides financial assistance to families, and tells the incredible stories of other families going through similar experiences. To support this non-profit, check out their online store.
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![Episode 87 | Fight with Faith](https://d3t3ozftmdmh3i.cloudfront.net/production/podcast_uploaded_nologo/8044645/8044645-1597677405997-8108db7018d65.jpg)
Episode 87 | Fight with Faith
Chris & Christy hosted Nate and Shae Hansen on the Lighthouse Podcast today. Nate and Shae have six kids between the ages of 5 to 17 years old. That's right - they are a family of eight and they live in Salt Lake City, Utah. Their son, McKay, was first diagnosed in February 2014 with stage four high-risk neuroblastoma. While his body was full of cancer cells, he hit remission and had clean scans until February 2021. It had been 7 years since his first diagnosis to the weekend when he relapsed. Right now, they are almost two years into treatment for his second battle with cancer.
Nate and Shae walk us through the perspective shift they have experienced between the two cancer battles. With this round of McKay's battle, the family dynamics were much different than in the first round. Nate talks about how he encouraged the family to "fight with faith." Shae shares what she learned from the first battle and what she brought into the second battle. Additionally, they have learned not to take for granted seasons of good health.
The Hansen family chooses to live life to the fullest each day instead of living toward the finish line of treatment. Nate and Shae have worked hard to be intentional with the family by making time with them a priority (even if it's time in the car). In closing, they shared how even though it was challenging to be served and taken care of, they are so blessed by it. Last but not least, they encourage other families walking through a cancer journey to accept help when it's offered no matter how hard it is to accept.
In the opener, Chris and Christy announced that our Advent Calendar is coming out soon! If you are a family living through childhood cancer, we would love to gift you a copy. Simply fill out this request form with all your information and we will mail you an advent calendar in November.